Aug 012017
 

 

The Chronic Illness Inclusion Project is a new research project aiming to capture the views, needs and aspirations of people with chronic illness. Sign up to get involved. In the longer term our ambition is to grow into a user-led organisation.

new project aims to give a voice to people with chronic illnesses that get overlooked and misunderstood by the systems that should be supporting us.

The Chronic Illness Inclusion Project is a research project aiming to capture the views, needs and aspirations of people with chronic illness. It is part of the DRILL programme of user-led research and is supported by the Centre for Welfare Reform. You can sign up to find out more and get involved here

As a sufferer of chronic ill health, I fully support the Chronic Illness Inclusion Project. People with chronic ill health are forgotten by governments when designing policies and never mentioned. We are often hidden by the umbrella term of ‘disabled’. The impacts of chronic ill health are wide ranging, from severe fatigue and cognitive problems, to days spent in lots of pain. The effects have a huge impact on the day to day functioning of a person. Many spend long hours unable to sleep or sleeping for long hours out of sheer exhaustion. You really cannot grasp those impacts unless you are affected by chronic illness. It’s not just the physical issues, you have to store that energy up to even have a shower or even go out for the day and plan well in advance, only to spend the next few days paying the price for small bit of enjoyment. It is time our voices were heard too, instead of our voices being alone in the wilderness. It can be very isolating. I urge people to join and support this campaign.”

– Gail Ward, Disability Campaigner DPAC NE/Black Triangle Campaign

We are inviting people to sign up to our mailing list where we can keep you up to date with activities and opportunities to get involved. Currently we’re planning an online discussion forum for people who are interested in having in-depth discussions about the social and political aspects of living with chronic illness. But in the longer term our ambition is to grow into a user-led organisation. How this happens could be up to you!

It will take time because we are two people with chronic illness working very part time hours. But this is a lottery-funded project where numbers count so by joining us you can help to show what a large and overlooked group we are.

Find out more by signing up to the mailing list

Thanks,

Catherine Hale and Jenny Lyus.

Oct 312014
 

Below are ALLFIE’s (Alliance for Inclusive Education) crucial principles for inclusive education. We all agree that education is a fundamental part of life, as such these principles are crucial for disabled children and adults and for their right to be educated in an inclusive enviroment.
DPAC fully supports ALLFIE’s principles and calls for ‘Education not segregation’ for all Deaf and disabled learners.

The principles are:

Diversity enriches and strengthens all communities;

·       All learner’s different learning styles and achievements are equally valued, respected and celebrated by society;
·       All learners to be enabled to fulfil their potential by taking into account individual requirements and needs;
·       Support to be guaranteed and fully resourced across the whole learning experience;
·       All learners need friendship and support from people of their own age.
·       All children and young people to be educated together as equals in their local communities;
·       Inclusive Education is incompatible with segregated provision both within and outside mainstream education;

Education not Segregation

May 162014
 

We are asking all local council candidates to pledge their support for developing inclusive education practice if elected onto the council.

For DPAC members not standing, we want your local council candidates to pledge their support for inclusive education practice.

We would like to have a photo of candidate with his or her party rosette, name, borough and ward and a sentence or two on why she or he is supporting ALLFIE’s manifesto demands.

We would like to aim for every candidate to offer his or her support for inclusion.

Please follow link: http://www.allfie.org.uk/pages/work/manifesto.html

Send photos to simone.aspis@allfie.org.uk

 

May 082014
 

“An Inclusive Education and a Fulfilling Life” Conference Saturday 7th June 2014 10am until 3.30pm
Email: afulfillinglife2012@gmail.com
Accessible Venue Kahawa Café 163 New Union Street
Coventry CV1 2PL

Purpose: This conference sets out to bring together disabled people, the parents of disabled children and those with SEN, and their non-disabled allies to explore common ground, opportunities and choice with regard to independent living and enjoying an education alongside their peers.

The conference will:
• Be respectful and accessible
• Be informative and participatory
• Use cooperative learning approaches
• Give examples of where things are working
• Discuss why life is getting harder for disabled people.

Refreshments: Lunch provided

The charge will be: £2.00 disabled people and family members
£4.00 for allies (professionals etc)
This in a not-for-profit event; all proceeds are to cover the cost of the conference. Please pay on the day but we do need a definite commitment that you are coming so we can make arrangements.

Interested in attending or want more information?

Please book a place: Email: afulfillinglife2012@gmail.com
Organisers: Elaine Hill, Rob Punton, Keith Venables, Caroline & Maresa MacKeith
Advisors: Katie Clarke, Steve Cooper & Tara Flood
Text or call: 0780 587 8729

For more information about ALLFIE: http://www.allfie.org.uk

 

May 042014
 

People who don’t use the spoken word have a great deal to say about communication. People who do use the spoken word have a great deal to learn about communication from people who don’t.

Quiet Riot is a group of young adults who don’t use the spoken word. Quiet Riot had their first meeting four years ago. They meet in Manchester but come from around the UK, with members in Holland and Ireland.
They are:

Paul-Thomas Allen
Judathan Allen
Raphael Allen
Danian Allen (1984-2005)
Heathar Barrett
Nadia Clark
Gareth Donnellon
Thiandi Grooff
Josh Harris
Anthony Kletzander
Maresa MacKeith
Dan Stanton
The communication used by many members of Quiet Riot is known as Facilitated Communication Training (FCT) a strategy introduced into the UK by Marion Stanton, who is currently lead UK Assessor and trainer:

,http://www.candleaac.com/staff.htm

Marion invited Rosemary Crossley, from Australia to meet with families in the UK almost fifteen years ago, who in turn introduced many of the Quiet Riot members to FCT.
http://www.annemcdonaldcentre.org.au
FCT is now used very effectively as a primary means of communication by many people around the UK. Using a key board on which to type, a trusted assistant (facilitator) supports the person to manage their body’s motor movements, which can be impaired as a result of sensory overloads/invasions as well as a wide diversity of other body motor issues.

FCT has fundamentally changed the opportunities for members of Quiet Riot:
” I am a man with no speech. I am a user of the pointing method of communication. I listen well and understand what is said… I am operating a perfectly weird body. I am wonderfully made..”

Raphael Allen
” I’m wondering if using Facilitated Communication will help to understand me better and give me some respect. I wish more people were given the chance to use facilitated communication it is great to be given a voice”

Anthony Kletzander.

“Having no voice is not great but at least I can type good things. Being in good company like kids who talk. Talking with me makes me happy.”

Heathar Barrett

http://www.heatharashley.co.uk/Home.html
“Trust your belief in your child. FC opens doors for those of us whose voices deny us use. People have to listen to our voices in the wilderness of disability. I can do things you elevate your expectation to. Look beneath the surface of appearance and see the qualities that are within”

Josh Harris.
I think FC is such a part of me that its difficult to think of it as an entity in it’s own right. I feel very lucky to have been surrounded by people who respected my communication giving me a limited experience of negativity around FC. I do however know that there are those who dismiss FC, I see this in their faces and reactions. My concerns are for those young disabled people who, for whatever reason, are affected by such situations.

Blake Williamson
Too bad I was seen as dumb of mind as well of mouth. Words offer all the possibilities of fine choices switching from a non-being to educated in the eyes of the world. The route to my intellect is now open”

Paul-Thomas Allen.
” in the end the funny woman from Australia ( Rosemary Crossley) gave direct explanations, we ran away as slow as could be. Facilitation was a map just to find out about going A.W.O.L. I was not seen as a thinker with reason until I used typing. I type to talk differently. It is very good being able to communicate.”

Judathan Allen
” I am aware that you don’t realise how I am able to type. I go to university. Perhaps one day I will have a part on T.V. And you will have the opportunity to read my fan’s praises.”

Danian Allen (1984-2005)
“To be able to express myself as full as possible, without the correct method my answers are limited ” and “To be recognised as intelligent enabling me to live an independent life in my own home ”

http://www.contactcandle.co.uk/about_dan_stanton.htm
Dan Stanton
“(FC ) allows me to communicate ,to have a voice.
Way in which it changed my life
I gave my opinion on my medical treatment
I Am Real
I am Real
Not a malfunctioning person with a confused mind
Just a normal thinking person
Who laughs, complains, shows sadness and happiness.

I am real”

Gareth Donnellon.

Funding, Quiet Riot and the ODI
Quiet Riot campaigned for three years with no funding. Members financed their own attendance at the meetings in Manchester. They were brought together by a commitment, to talk with each other in a safe place, to plan campaigns and enjoy their Right to Communication: a right for every human being. The long term aims of Quiet Riot are to change the ways in which society welcomes and values people who do not use the spoken word.

Quiet Riot has been hosted and given hospitality by Greater Manchester Coalition of Disabled People (GMCDP), since the first meeting. ACE North, have also provided a venue for larger gatherings, again free of charge.

In our fourth year the The Edge Fund, a creative and democratic funding body, offered funding to Quiet Riot* which is being used to enable Quiet Riot to develop a customised website where they can reach out to local and global connections giving more people an understanding of FCT and an opportunity for the many people around the world who are needlessly denied their voice.

Funding for groups, at the “cutting edge” in societies, like Quiet Riot, is an important political issue. Given that the very existence of Quiet Riot provides a powerful reflection of people who have been failed within their own society. Quiet Riot has emerged despite statutory organisations who have failed to serve their legitimate support requirements.

The name of Quiet Riot appears to be a challenge for some, which was illustrated when Quiet Riot considered making a funding application to Office for Disability Issues (ODI), a government, established body to orchestrate the voice of disabled people in the UK. Quiet Riot was invited to change the name, to one less controversial ! – perhaps F— O– might be more appropriate! We have no funding from any government agency, which allows a freedom to critically question and challenge government and it’s agents, which has to be an essential feature of any campaigning group.

Quiet Riot members now in their twenties and thirties have each had the powerful support from their families, to have their voice heard, often against significant opposition from schooling authorities. An important lesson for schooling services to learn is that labels attached to any individual cannot convey anything of value about an individual. Such labels lead teachers into a cul-de-sac about an individual, requiring a great deal of time trying to find a way out.

Meaningful appreciations of another person’s skills, contributions and qualities will emerge via a mutual and respectful relationship. Such relationships can start with mutually respectful communication. The early schooling experience for many QR members was in segregated settings and very far from respectful :

Segregated Education

“Special education is a cruel solution to educate people like me. I had the label (PMLD ) evil! I asked real people if they are aware of atrocities in school. Ask and ask again was anyone aware how awful it was doing stuff in special school. Emphasise it. The school system was a a vert (lawn) where seeds of alarm flew away. No one sussed what a serious affaire was swept away under the alters of Abraham . I was a walled prisoner in my own world dying slowly. When I returned from school each hour I sat thinking- give me a tool to communicate”

Judathan Allen.
“Special school you think is bad. It is the nondescript way they teach is dull. They only had lots of detritus to share.”

Paul-Thomas Allen.
The health service starts the process of diagnosis and categorisation of disabled people by creating labels that the schooling system uses to segregate and devalue disabled people. Authorities engage in convoluted assessments, measuring and testing the “capacity” of individuals. The disabled person is incidental to this process: it is an institutional response to legitimise prejudice and discrimination against a disabled person.

“I have no sex no gender apparently I only have this alleged affliction. reports and labels are the sum of my parts. There was never a label beyond disabled.i am just punk I am just an allocation of resources.”

Paul Thomas Allen
Institutions continue to segregate and devalue the human being as they have done for many decades.
” I have sorrow in my heart for you not learning the proper inclusion of me.”

Heathar Barrett
Segregation at school age will tend to lead to more segregation in adult life – feeding the “services” that exist for the maintenance and protection of the institution and its processes.

Labels of “deficit” are attached to the individual and reflect the approach of an institution. We need to shift these labels away from the individual to the institution. Therefore, the constant need for institutions to measure and categorise people could be described as Obsessive Compulsive Disorder (OCD). Some Schools, Colleges and Universities have Profound and Multiple Learning Disabilities (PMLD) because they have failed to welcome and learn from people they continue to reject and exclude based upon the negative differences the institutions have determined and cultivated. This is particularly true of people who do not use the spoken word for their communication.
“In my pupil days at home I learned children whose bodies operated differently were not welcome really anywhere in the high schools in the myopic time we lived in. I thought then real choice was just for those talking people”

Raphael Allen
“Being alone I feel Dead”

Heathar Barrett
It is soul destroying to continually have your contributions and efforts for participation thwarted by systematic indifference, ignorance and rejection. Such an approach to people is abusive and a total denial of their human rights. There continues to be a disturbing amount of confusion around the language and practice of inclusive education. We cannot give people inclusion, people have to Feel included.
” I invite experts to ask how we feel and our opinions. Autism really offers the world a fine lesson in humanities We require understanding, respect trust and love. In return we test the worlds ability to accept differences that exist between people ”

Josh Harris.
http://www.communitycare.co.uk/2008/01/16/josh-harris-autism-and-the-ambition-to-become-a-rabbi/#

qr pic 1

We know inclusion is working up and down the country in schools, colleges and universities for people with the diversity of impairments. We know people are included when we change the way we offer support in response to an individual’s particular requirements and when there is a welcome of difference and different voices for people to participate and contribute to the learning environment they are an integral part of.
” I would like to take this opportunity to say thank you for your accommodating and satisfying subject in question. There was very much calm and confident re-assurance surrounding me when in your real lecture of thought and wisdom. For me acceptance is from within a massive heart. Please have diversity bring you good joy in real life. With very fond and great thoughts for life – To Lesley Groom University Tutor from Heathar Barrett.

Hope and acceptance are a luxury I do enjoy. I feel very immense greatness about the university of my love and life in the making of a good great free future. We are moving forward.

Heathar Barrett.

My School
By

Maresa MacKeith
“Taking The Time”
www.inclusive-solutions.com
http://www.one-for-all.org.uk/

The thought of starting was ecstatic,
I wanted to learn so much.
To me the building was magic,
With life in its crumbling husk.

The thought of being ordinary,
Filled me with a joy I can’t tell.
Still the thought of that building keeps memory,
For me of pure water: a well.
It was because I had ordinary teachers, who recognised that I had skills, that I am where I am now, doing English at university. The special education system did not do that for me; it endlessly measured my incompetence.

Maresa MacKeith

 

However, when a school refuses to change, to welcome and accept different ways of learning, it cannot be overstated just how oppressive it is to be seen as different, when your difference is devalued by the organisation that claims to be a place of learning!
“It should be perpetuated that I have no differences. I just need really cool people to understand my ways. I am in my difference the despoiler of your pattern”

Paul Thomas Allen.

“I’m really tired of being different”

Anthony Kletzander
For people who do not use the spoken word there can be a continual and exhausting struggle to have your voice heard. For many people with the label of autism who use FCT, there can be a massive amount of time and energy required to overcome or manage their bodies’ sensory changes in order to type each and every word.

ice cream
I am finding it very hard to be a free fast user of FC when I am not focused on feeling anxiety free”

Heathar Barrett-
communication board in hand doing ordinary things like buying an ice cream. This does not require a “transition plan” or “a service delivery audit” Or a specialist training programme to create a team of ” Whippy Therapist”

QR fell walking
Heathar using her communication aide on a walk across the moors.
Again no “specialist service” getting in her path.
“I am an individual with my own wants. Sometimes my neurons do screw up and it takes time to fix them.”

Paul Thomas Allen
” being autistic causes sensory problems like bright lights which makes me feel dizzy and they burn my eyes. I also have problems with loud noises. They really scare me and make me feel really nervous”

Anthony Kletzander.
“People inspire me all the time. It’s the easy things I envy like people who are pain free”

Josh Harris

The only way we can get near to understanding what is required for an individual to type whilst having to manage the permutations of sensory invasions, which could relate to all the senses and more within any given learning environment, is by being respectful and responsive to the individual. Having a mutually respectful communication is essential.
As for what we can do to encourage change in Universities, I think there is a wider issue here. If FC is not accepted as a means of communication during examinations, as it was when I did my GCSE’s and A levels, then the next generation of disabled academics are thwarted in accessing university through such academic routes. The universities are poorer places for not having a fair representation of all students in their Halls and of course where we are never seen we are never easily accepted nor understood

Blake Williamson.
Professionals have a responsibility to shift their lack of understanding or toleration of ignorance about different ways of communication and recognise that the denial of a person’s communication is not simply the denial of a learning experience but the consequences can be life threatening.

Anthony Kletzander from independent living to institutionalization

Anthony Kletzander, one of the founder members of Quiet Riot lived independently in Dublin in his own flat, with his own 24hr support. Because people, uninvited came into his life and chose to deny his FC, he was forced into an institution after he had experienced a full life living independently, with his own support staff. Within days he was given antipsychotic medication against his wishes, this resulted in emergency hospital treatment. Anthony’s voice continues to be denied at the institution.
“Tell them to stop giving me medication. I have no choice it makes my head feel strange”

“I would love to be in independent living. It is much better than residential.”

“Really trying to be accepted into society is very difficult and I am really saddened by this”

This is the clip about university. Nua Health Care in Ireland refuse to accept Anthony’s communication. They have also refused his right to independent living. Anthony was hospitalised twice from this institution over a period of three weeks. Anthony’s struggle continues made more difficult by Nua Health Care continuing to deny Anthony’s voice.

https://www.dropbox.com/s/oxh98ewgf54qthq/MVI_0121.MOV

 

qr anthony typing
Anthony Kletzander. Typing with Marion Stanton just half hour after meeting with her. Nua Health Care refused her offer of support.
Fear

A poem
by
Maresa MacKeith

He watches, and you are scared.
Mute and Flalling
If he could talk he would tell.
So you silence him.

 

qr grad pic

Maresa uses facilitated communication on her graduation day at Nottingham Trent University.
People who are prepared to deny a person’s communication when they don’t offer a meaningful alternative are abusing a person’s Human Rights.

It is an abuse of the power and authority of a psychologist or therapist to * deny a person’s means of communication, then have the effrontery to accept, a large fee, to carry out an “assessment” and make judgments and recommendations about the person’s life with whom they insist they cannot communicate!

” I have spent every day since birth when people think my head is bad like my body. Top physicians from all over came to inspect the Allen family, every one of them you imagine a certified genius. They ran me through their tests prosecuting me with steal augers. Pain like real despicable pain. Played with and investigated all facts collated their only conclusion was to find I was guilty. I was dense and better as a doorstop. I inhabited my own head just watching, I had to live the isolated life. I had to wait …. It did not occur to the world I am not retarded and a vicious anger I was cultivating. In my egg I stayed. In my soft manner to wither, it was sometimes insanity”

Paul -Thomas Allen.
I am unable to pronounce what thoughts are in my mind. When I use facilitation I am able to let others know how I feel. This is undoubtedly beneficial for my peace. Past appearances of the disabled are wrong. What people pronounce does not show how clever they are. I think it is because writing allows people to say exactly what they want. People make assumptions

Damian Allen ( 1984-2005)

Quiet Riot, DPAC and challenges powers and practices
Quiet Riot is an organisation that offers a much more powerful future for the person who does not use speech but insists that their voice is heard.
There is also a growing new network of organisations of disabled people in the UK and internationally who are challenging the oppressive practices and asserting the human rights of disabled people. It is co-ordinated by Disabled People against the Cuts (DPAC) This New Democratic and transparent approach is not seeking to justify the participation of disabled people around the UK but fundamentally challenging the powers and practices that seek to prevent their contribution and participation.

Facilitated Communication has enabled members of Quiet Riot to challenge the powers and practices that seek to silence people that do not use the spoken word.

http://www.centreforwelfarereform.org/who-we-are/fellows/nadia-clarke.html

Nadia Clarke
Quiet Riot are engaged in subjects like: Biology, English literature, Creative Writing, Poetry, Philosophy, Jewish Religious Studies, Music, Geology, Ethics and Human Rights at Universities around the UK, Ireland and Holland. Thiandi Grooff a member of Quiet Riot and uses FC is in her final year of undergraduate study at a University in Amsterdam. She has been been engaged in a detailed qualitative study into group identity.

This study shows that a safe place for discussions is very important: the participants are welcomed, without threat by opponents who reject their way of communicating or the State, and every effort is made to overcome barriers to speaking. In this study the benefits of the collective identity for the members of the group ( Quiet Riot) were clear: a more powerful personal identity and self-esteem that led to more courage to speak up and to engage in relations and actions outside the group.”
Thiandi Grooff
FCT is used by increasing numbers of people around the world and with whom there is a growing connection via the internet. A powerful collective voice is emerging and demanding their space to be heard. It is a voice to reckoned with

Joe Whittaker April 2014

With many, many thanks to the great guys at Quiet Riot for putting this together and to Joe-DPAC fully support Quiet Riot and FCT.

This piece has been put together for the European Independent Living Day May 5th created by ENIL to celebrate independent living and to highlight the impact of cuts on independent living- we want to add that those who reject FCT also reject independent living –please add your support

For donations and support for Quiet Riot, FCT or any of the issues mentioned in this piece please contact: whittakerjoe5@gmail.com

For those fighting for inclusive education please contact the Alliance for Inclusive Education (ALLFIE) http://www.allfie.org.uk/

 

Apr 042014
 

Dozens of young people with learning difficulties and their families have hit out at a decision to slash foundation learning courses for pupils with profound or moderate learning difficulties – from five days a week to three at One, formerly known as Suffolk One, in Ipswich. the link to the article in the East Anglian Daily Times is below.

Suffolk DPAC will be working with them to try to prevent this as the only other alternatives for their education are at special school sixth forms.

http://www.eadt.co.uk/news/ipswich_angry_parents_claim_education_of_children_with_learning_difficulties_will_be_damaged_after_one_cuts_foundation_courses_1_3478573#sharinganchor

As we know segregated classes within mainstream settings do not count as inclusive education. But neither does the forced placement of disabled learners in fully segregated settings of so called special schools, colleges, universities or any other learning environment. DPAC opposes both!

We refer all to our allies ALLFIE (The Alliance for Inclusive Education) for a better understanding of what inclusive education means and how it can be achieved-DPAC strongly supports Inclusive education as a fundamental principle of independent living and as the only way to achieve full equality and inclusion for all disabled people.

Please see the ALLFIE web site for more informaion on inclusive education and get involved in their campaigns

http://www.allfie.org.uk/

also please see the valuable comment from Joe Whittaker below

 

 

Dec 302013
 

As a grassroots campaign group DPAC wouldn’t exist without the dedication of all those who give their time to exposing what is happening: coming out on the streets, writing reports, researching, writing web content and policy critiques, heading up and being part of the growing number of local DPACs, organising events, engaging with social media and a whole set of other stuff that keeps DPAC vibrant, active and strong – its thanks to you that DPAC exists.  DPAC also want to thank the growing number of grassroots groups, individuals, academics, supporters, unions and organisations we’ve worked with in 2013.

2013 began with DPAC being awarded campaign of the year for our work in 2012 the year ends with DPAC being named as ‘people of the year’ by Owen Jones. In 2013 DPAC supported many local based protests on transport, the bedroom tax, ILF, local authority cuts and privatisation. We blocked roads protested against fuel poverty, fracking, the loss of legal aid, the bedroom tax, the closure of ILF and more. We set up Reclaiming our Futures 7 days of action joined by hundreds to celebrate the gains of the disabled peoples’ movement and to protest at the effects of imposed austerity on disabled people. DPAC launched the UK Disabled Peoples’ Manifesto which was followed by an EDM.We also published a number of reports.

There was cause to celebrate: the Government were ruled to have made the decision to close the Independent Living Fund unlawfully. Mental Health Resistance network succeeded in winning both case and appeal by the Government on the discrimination of the WCA. DPAC were approached by the UN prior to Raquel Rolnik’s UK visit to feed-in –her findings on the bedroom tax were devastating for the Government. DPAC led a whole range of events and join events on benefit justice to join together and fight the evils that this Government have imposed. While every protest, every campaign, every new network and every exposure of this Government is a success, we received growing numbers of emails from those left without money, food, homes and suffering cuts to their support.

In 2014 we must continue to fight and take all actions we can to change and expose the devastation this Government is causing to disabled people.

You can subscribe to receive all DPAC web posts or become a DPAC member at www.dpac.net.uk join us on twitter @Dis_PPL_Protest or on Facebook

 Key highlights of DPAC actions from 2013 below….

January

DPAC were awarded campaign of the year (2012) by Lipstick Socialists. They said: The fight back by disabled people as the Con/Dem Govt stripped some of the most ‘vulnerable’ sections of the community of their benefits. Their campaign against Atos (who made the decisions) during the Paralympics was inspiring and they have led the way in the fightback against the Con/Dem Govt. – See more at: https://dpac.uk.net/2013/01/#sthash.tEoKp2ds.dpuf

Co-op Campaign: stop the Atos Contract! Launched to publicise that Co-op were thinking of renewing a three year Atos contract for occupational health-Eventual outcome Co-op publically state they wouldn’t renew the contract with Atos.

DPAC call Vigil on Judicial Review initiated by Mental Health Resistance Network on WCA

Benefit Justice organising meeting by Tenants, DPAC unions and others held in London. We also live streamed London DPAC meeting so that everyone could access it. Annie Howard exposed Atos and DWP in relation to the data protection Act https://dpac.uk.net/2013/01/dwp-and-atos-make-a-mockery-of-the-data-protection-act/ Alan Shellbrooke a Tory MP said he wanted to introduce US style cards for those on benefits. We also linked with Fuel Poverty Action for the first of the 2013 actions on Fuel Poverty. We urged everyone to have their say on the Care Bill and to mention the ILF issues and posted advice on the Bedroom Tax and Discretionary Housing Payments and how to access them ahead of this inhuman misery. Condemn Love anti-Atos song by the excellent Kevin Robbins got it’s first airing

February

Victory for Daniel Roque Hall and Winvisable as Daniel is released from prison. Annie and Bob uncovered The Atos and DWP’s Land of make Believe https://dpac.uk.net/2013/02/atos-and-dwps-land-of-make-believe/

Owen Jones donates some of his prize from young writer of the year (donated by Lord Ashcroft) to DPAC https://dpac.uk.net/2013/02/thank-you-owen-but-we-wont-count-on-the-money-until-lord-ashcroft-puts-it-in-our-account/

We publicised the workfare cases The judgment on cases brought by Cait Reilly and Jamie Wilson mean that all but one of the Government’s workfare schemes (Mandatory Work Activity) that force unemployed people to work unpaid or lose benefits have been deemed unlawful. As we know IDS went off and rewrote the law- See more at: https://dpac.uk.net/2013/02/#sthash.jZLw1k5A.dpuf

We publicised an update on the Bedroom Tax, unfortunately not rewritten by IDS or anyone else. The post by Frank proved to be an unfortunate prediction of what was to come.

On ILF we produced a template letter for MPs and our collected FoIs on what Local authorities responses were to the ILF consultation https://dpac.uk.net/2013/02/what-local-authorities-said-about-the-closure-of-ilf/

Whitehall Traffic was brought to a standstill outside the Dept of Energy and Climate Change https://dpac.uk.net/2013/02/whitehall-road-block-brings-traffic-to-a-standstill-outside-dept-of-energy-climate-change/

Unum were finally nailed on driving Governments’ on welfare cuts https://dpac.uk.net/2013/02/unum-finally-nailed-through-bragging-on-driving-government-thinking/

DPAC and Inclusion London issued a statement on ILF while our National English DPOs remained silent https://dpac.uk.net/2013/02/defend-independent-living-save-the-independent-living-fund/

Annie Howard exposed the myths around the support group and ESA https://dpac.uk.net/2013/02/11-was-never-intended-to-be-the-number-of-people-in-the-support-group-dwp-big-blunder-annie-howard/

Atos and the treatment of mental health users and survivors was further exposed through You Tube, while  Kate Belgrave asked where were the MFCs at Atos – we’re still looking… https://dpac.uk.net/2013/02/harrowing-atos-assessment-and-where-are-the-mental-health-champions/

A letter from Ed Miliband was publicised after it was sent to us by a supporter https://dpac.uk.net/2013/02/letter-from-ed-miliband-on-atoswca-but-is-it-enough/

DPAC joined the campaign against the privatisation at Barnet and the great Crapita takeover https://dpac.uk.net/2013/02/urgent-stop-captia-10-years-plus-contract-for-council-services-in-barnet/

We launched a campaign against Colin Brewer who said that disabled children should be put down – he later resigned, but tried to put himself forward in a subsequent election process. https://dpac.uk.net/2013/02/urgent-stop-captia-10-years-plus-contract-for-council-services-in-barnet/

We published an email from one of our supporters which asked SCOPE what it was doing to save ILF , SCOPE suggested they get in touch with  DPAC https://dpac.uk.net/2013/02/scope-and-ilf/

March

We reposted the excellent Nick on ESA Process in Chaos and the Government cover-up https://dpac.uk.net/2013/03/dwps-esa-process-in-chaos/

As DPAC is on the working group of the European Network on Independent Living (ENIL)  against European austerity and its effect on disabled people we asked you to write to your MEPs to support  a push to get this debated in the European Parliament

March 13th was the court case on ILF in which 5 ILF users took the DWP to court against the proposed closure of ILF in 2015 We stepped up the campaign to publish stories of ILF users and those that would have benefited from ILF if it hadn’t been closed to new users in 2010 by Miller without even a dodgy consultation process. https://dpac.uk.net/independent-living-fund/

 The Benefit Justice Summit co-organised by DPAC in London brought together unions, grassroots groups, lawyers and tenants groups

We publicised news for parents of disabled children in the private rented sector and how they could claim money back from the DWP https://dpac.uk.net/2013/03/urgent-news-for-parents-of-disabled-children-renting-in-private-sector-money-back-from-dwp/

Beth Tichbourne was fined £745 plus costs for saying that David Cameron had ‘blood on his hands’ in an outrage that we should never forget  https://dpac.uk.net/2013/03/bethan-tichborn-cameron-has-blood-on-his-hands5503/

We publish an update on ILF court case with video https://dpac.uk.net/2013/03/ilf-court-case-update-and-implications/

 

DPAC and our sister org Black Triangle issue a joint statement on Labour and Bedroom tax https://dpac.uk.net/2013/03/joint-statement-and-petition-by-dpac-and-black-triangle-anti-defamation-campaign-in-defence-of-disability-rights-on-the-labour-party-campaign-against-the-bedroom-tax/

DWP and Government lies on ILF closure are exposed by DPAC in previously classified papers and memos from the DWP to ministers https://dpac.uk.net/2013/03/summary-of-secret-correspondence-from-the-dwp-to-mcvey-on-the-ilf-closure/

ESA appeals increase by 70% DPAC reposts Nick’s analysis https://dpac.uk.net/2013/03/more-chaos-esa-appeals-up-by-70/

Disability charities consistent apathy for disabled peoples’ lives, but not for their high salaries for directors was highlighted yet again https://dpac.uk.net/2013/03/how-the-big-disability-charities-let-down-disabled-people-again/

DPAC supported local protests and campaigns and also protests against staff cuts on railways and transport protests

April

April was the month that the condemns brought in more of their cuts for ordinary people the hated bedroom tax, the end of council tax support, the benefit cap and more https://dpac.uk.net/2013/04/the-nasty-party-go-on-the-offensive-against-disabled-people/

DPAC and UKUncut served eviction notices on our ‘favourite’ MPs –they had too many bedrooms –a complaint was put into You Tube who were told to remove the videos of IDS’ mansion https://dpac.uk.net/2013/04/eviction-notice-for-ids-and-oh-my-what-a-big-house-you-have/ https://dpac.uk.net/2013/04/ids-home-occupation-videos/

The TUC disabled workers refuse to join the Government sponsored Disability Action Alliance hosted by Disability Rights UK (DRUK) https://dpac.uk.net/2013/04/the-disability-action-alliance-or-whatever-happened-to-the-disability-strategy/

After news that the 5 ILF users that took the DWP to court had lost the case processes began to appeal the decision and still not a word of support from the big Disability charities or the aforementioned DRUK  https://dpac.uk.net/2013/04/claimants-to-appeal-high-court-decision-concerning-closure-of-the-independent-living-fund/

DPAC learns of a man who was arrested and tried in a secret court and jailed due to Atos –DPAC launches a campaign https://dpac.uk.net/2013/04/man-arrested-and-tried-in-a-secret-court-after-atos-assessment-support-needed-in-nottingham/

We also supported and co-organised a number of Benefit Justice summits across the country, supported more protests on transport and privatisation and continued to support the Barnet crisis

May

We supported CSRF in protesting at the |PCS conference and their refusal to refuse to implement benefit sanctions https://dpac.uk.net/2013/05/civil-service-rank-and-file-protest-at-pcs-conference/

We joined with False Economy in the search for the elusive Mental Function Champions at Atos , Dr Greg Wood  quits Atos and turns whistle blower https://dpac.uk.net/2013/05/where-are-the-mental-function-champions-at-atos-and-other-atos-type-things/

DPAC publishes info on Hardship payments and budgeting loans as we get more and more emails from people caught in the poverty and sanction traps set by the DWP –the post has been shared over 36,0000 times  https://dpac.uk.net/2013/05/hardship-paymentsbudgeting-loans-and-short-term-advances/

Black triangle meet with Scottish Government to discuss regulations regarding Atos and GPs https://dpac.uk.net/2013/05/esa-regulations-25-and-31-campaign-black-triangle-to-meet-with-scottish-parliament-welfare-reform-committee-chief-this-thursday/

The Mental Health Resistance Network win against Government on WCA , but spectra of legal aid cuts is raised too https://dpac.uk.net/2013/05/will-legal-victory-by-mhrn-against-atos-tests-be-our-last-we-need-to-act-now/

DPAC and the TUC disabled workers block Tottenham Court Road in an act of solidarity https://dpac.uk.net/2013/05/dpac-and-tuc-members-in-direct-action-of-solidarity/

DPAC publishes a critique of UKIP https://dpac.uk.net/2013/05/why-the-rise-of-ukip-is-dangerous-for-disabled-people/

DPAC’s own Ellen Clifford talks to real fare https://dpac.uk.net/2013/05/ellen-clifford-talks-to-real-fare-on-welfare-reform-and-protest/

June

June 1st marked a day of UK wide protests against the bedroom tax attended by DPAC

DPAC publishes stats by Nick that show the huge hike in sanctions under the Coalition  https://dpac.uk.net/2013/06/jsa-benefit-sanctions-sky-rocket-under-coalition/

DPAC holds a Birthday party protest for ILF https://dpac.uk.net/2013/06/press-release-independent-living-fund-birthday-protest/

The fight against the Bedroom tax continues with protests and new groups springing up and supporting each other across the country https://dpac.uk.net/2013/06/updates-the-fight-against-the-bedroom-tax/

DPAC publishes Lies, Damn IDS and Statistics  https://dpac.uk.net/2013/06/lies-damn-ids-and-statistics/

July

DPAC releases its program for 7 days of action, campaigns and protest: Reclaiming Our Futures https://dpac.uk.net/2013/07/reclaiming-our-futures-7-days-of-action/

DPAC joins protest at Downing Street against the bedroom tax

DPAC joins Justice Alliance to protest against cuts to legal aid

DPAC joins vigil for case against bedroom tax outside the Royal Courts of Justice

DPAC posts a list of advice and legal resources as emails from people in severe hardship escalates further https://dpac.uk.net/2013/07/advice-and-legal-resources/

Sisters of Frida go to Geneva to challenge the situation for disabled women at the UN https://dpac.uk.net/tag/sisters-of-frida/

We list the MPs that voted against a cumulative impact assessment https://dpac.uk.net/2013/07/for-fellow-extremists-everywhere-how-your-mp-voted-on-the-cumulative-impact-assessment/

Southwark DPAC challenge local politicians https://dpac.uk.net/2013/07/sdpac-challenge-local-politicians/

Government Issues ministerial statement on Atos https://dpac.uk.net/2013/07/government-issues-ministerial-statement-over-atos/

Bromley/Croydon DPAC join UKUncuts Stuff the Banks https://dpac.uk.net/2013/07/bromleycroydon-dpac-stuff-the-banks-update/

DPAC takes part in the anti-fracking protests at Balcombe where Caroline Lucas is arrested

August

Updates for Reclaiming Our Futures 7 days of Action https://dpac.uk.net/2013/08/reclaiming-our-futures-29th-aug-4th-sept-updates/

UK Disabled peoples’ Manifesto launched http://www.inclusionlondon.co.uk/UK%20Disabled%20peoples%20Reclaiming%20Our%20Futures%20Manifesto

John McDonnell puts forward an Early Day motion on the UK Disabled Peoples’ Manifesto put together by DPAC, Inclusion London, ALLFIE and Equal Lives Norfolk

Early Day Motion 483: Disabled People’s Manifesto
That this House warmly welcomes the launch of the UK Disabled People’s Manifesto, Reclaiming our Futures, developed by disabled people and their organisations across the UK, which sets out the shared vision of disabled people for an inclusive and equal society free from economic, social and cultural barriers; and urges all political parties represented in this House to engage in a constructive dialogue with the disabled people’s organisations promoting the manifesto with the aim of achieving its objectives. – See more at: https://dpac.uk.net/2013/09/early-day-motion-483-disabled-peoples-manifesto/#sthash.VWGXvrlo.dpuf

 

DPAC are asked by UN to assist Raquel Rolnik UN Special Rapporteur on Housing prior to her visit to the UK . The visit and her findings that the bedroom tax is regressive and unfair cause Tory ministers to say she should sort her own country out, she is a Marxist and produce other ridiculous statements in the right wing media https://dpac.uk.net/2013/09/un-investigator-recommends-for-bedroom-tax-to-be-scrapped-immediately/

DPAC block the front entrance of BBC for non reporting of the true situation in the UK under welfare cuts as part of the Reclaiming Our Futures 7 days of action http://www.katebelgrave.com/2013/09/disabled-people-against-cuts-block-front-entrance-of-bbc-portland-place/

DPAC host art exhibition and night of entertainment, plus a day debate on the continued relevance of the Social Model with Anne Rae, Colin Barnes and Debbie Jolly

The Brilliant Kate Belgrave writes on protests and Government Extremism, protests are held outside the DWP, the Department for Education, the Department of Energy, and the Department of Health before moving on to Parliament to host the launch of the UK Disabled People Manifesto: ‘reclaiming our Futures on the UK Freedom Drive day part of the Reclaiming Our Futures week of action

https://dpac.uk.net/2013/09/protests-and-government-extremism-kate-belgrave/

 

DPAC posts UK Freedom Drive film by Reel News https://dpac.uk.net/2013/09/uk-freedom-drive-the-film/

 

See also https://dpac.uk.net/2013/09/dpacrof-4th-september-highlights/

 

 

September

 

DPAC works with Just Fair on Independent Living Issues ahead of a planned visit by the UN special rapporteur on disability https://dpac.uk.net/2013/09/dpac-works-with-just-fair-on-independent-living-issues/

We publish George Berger from Sweden report on Atos, KPMG and the NHS https://dpac.uk.net/2013/09/atos-kpmg-and-the-nhs-be-afraid-be-very-afraid/

DPAC launches a new report on the WCA https://dpac.uk.net/2013/09/dpac-report-work-capability-assessment/

Two of the DPAC co-founders go to Strasbourg to join the European Network on Independent Living for the 6th ENIL Freedom Drive to march to the European Parliament and tackle MEPs. Debbie Jolly is elected to serve another term on the ENIL Board and presents on behalf of DPAC on protest and what is happening in the UK under imposed austerity http://www.enil.eu/campaigns/freedom-drive/

DPAC co-organises with Wow Petition for 10,000 Cuts Memorial for those that have died through Atos and in solidarity with all suffering under Cameron’s regime of imposed austerity https://dpac.uk.net/2013/09/10k-cuts-and-counting-video/ see also https://dpac.uk.net/2013/09/10000-cuts-and-counting-linda-burnip/

Dr Alison Wilde discusses the Paralympic Legacy https://dpac.uk.net/2013/09/paralympic-legacy-but-which-one/

DPAC supports the Ontario Coalition against Poverty who Government want to follow the lead of the UK in denying people their entitlements https://dpac.uk.net/2013/09/call-out-to-support-ontario-coalition-against-poverty/

October

IDS found misleading again https://dpac.uk.net/2013/10/ids-found-misleading-again/

DPAC and Black Triangle consider legal action against GPs who refuse to provide evidence for disabled people and those with long term health issues https://dpac.uk.net/2013/10/legal-action-has-your-gp-refused-to-provide-further-medial-evidence-for-your-dwp-appeal/

Anita Bellows write another stunning piece exposing the bedroom tax https://dpac.uk.net/2013/10/bedroom-tax-the-policy-which-could-only-succeed-if-it-failed-anita-bellows/

DPAC organises vigil for Mental Health Resistance WCA case appeal by DWP https://dpac.uk.net/2013/10/vigil-for-wca-case-support-mental-health-resistance-network-21st-october/

DPAC joins UKUncut to protest to save Justice

DPAC join in protests against staff cuts on London Tubes https://dpac.uk.net/2013/10/boriss-latest-attacks-against-accessibility-and-safety-on-london-transport/ also see https://dpac.uk.net/2013/10/unions-unite-with-campaigners-on-tube-and-station-cuts/

DPAC publicises Punishing Poverty a report on Sanctions by Manchester CAB https://dpac.uk.net/2013/10/sanctions-punishing-poverty-new-report-by-cab/

DPAC publishes info on mandatory reconsideration https://dpac.uk.net/2013/10/some-information-on-mandatory-reconsideration-in-force-from-october-28th-2013/

UK Disability history month kicks off https://dpac.uk.net/2013/10/uk-disability-history-month-launch-event/

November

ILF users win appeal, Government say they won’t fight decision –a success but we wait for the Government next moves https://dpac.uk.net/2013/11/gov-will-not-appeal-court-ruling-on-closure-of-ilf/

https://dpac.uk.net/2013/11/victory-for-independent-living-rights-in-english-appeal-court/

DPAC reposts the critique of the Henwood and Hudson report as some in the disability field still claim that ILF should close https://dpac.uk.net/2013/11/why-the-henwood-and-hudson-report-failed-in-justifying-the-closure-of-the-independent-living-fund/

DPAC ask members and supporters to write to Penning on ILF https://dpac.uk.net/2013/11/write-a-message-to-penning/

Anita Bellows asks why Litchfield as ‘independent’ assessor of the WCA when he was involved in its design https://dpac.uk.net/2013/11/dwp-tactics-ask-litchfield-designer-of-the-wca-to-review-it-anita-bellows/

DPAC publishes info on fuel poverty as we receive more emails from people without heating or electricity due to sanctions and welfare cuts https://dpac.uk.net/2013/11/fuel-poverty/

Independent Living rights News is published on DPAC https://dpac.uk.net/2013/11/independent-living-rights-news-17-november-2013/

https://dpac.uk.net/2013/11/independent-living-rights-news-edition-2/

Paddy Murphy writes on the apparent idiocy of DECC https://dpac.uk.net/2013/11/disabled-people-and-fuel-poverty-what-does-decc-know-anyway/

DPAC attends the bedroom tax lobby at Parliament https://dpac.uk.net/2013/11/report-on-the-bedroom-tax-lobby-meeting-westminster-tuesday-12th-november-2013/

DPAC , Fuel Poverty Action and the London Pensioners are joined by hundreds on the streets to protest at unacceptable fuel poverty and deaths while the energy companies continue to make huge profits https://dpac.uk.net/2013/11/hundreds-protest-at-big-six-energy-companies-over-fuel-poverty-deaths/

https://dpac.uk.net/2013/11/npower-protest-against-31000-fuel-poverty-deaths-this-year/

DPAC supports ALLFIE’s campaign on no return to segregated education https://dpac.uk.net/2013/11/no-return-to-segregrated-education-please-sign/

DPAC and Inclusion London hear heartbreaking testimonies from disabled people affected by the cuts. We send them to the special rapporteur on disability.

DPAC and Inclusion London hold an Emergency  lobby at Parliament on Independent living to launch the DPAC report on Independent Living https://dpac.uk.net/2013/11/independent-living-and-the-cumulative-impact-of-cuts-from-the-streets-to-the-commons/

Mary Laver and ILF user film on life without ILF is posted https://dpac.uk.net/2013/11/an-important-request-on-ilf-from-mary-laver/

The Disability Crime Network write to the attorney General on disability hate crimes  https://dpac.uk.net/2013/11/disability-hate-crime-network-letter-to-attorney-general/

December

Anne Novis writes on hate crime https://dpac.uk.net/2013/12/a-life-less-valid-when-is-a-hate-crime-not-a-hate-crime-by-anne-novis-mbe/

Belgium vote yes on euthanasia for minors now accepted as law https://dpac.uk.net/2013/12/belgium-vote-yes-on-euthanasia-for-minors/

DPAC urges members and supporters to join Boycott Workfare in online action against workfare https://dpac.uk.net/2013/12/take-online-action-against-the-workfare-conference/

We publicise Habinteg’s report on the effect of the bedroom tax on independent living  https://dpac.uk.net/2013/12/what-price-independent-lives-a-new-report-on-bedroom-tax/

Government lose appeal against decision that WCA discrimates against those with mental health issues.  The Mental Health Resistance Network (MHRN) who instigated the case against the WCA celebrate another victory. MHRN a grassroots group were later joined by the charities, but without MHRN the case would not have got to the courts. https://dpac.uk.net/2013/12/victory-against-wca/

DPAC joins Boycott Workfare in targeting companies replacing paid work with workfare https://dpac.uk.net/2013/12/target-the-companies-replacing-paid-work-with-workfare/

DPAC support ALLFIE’s call for action https://dpac.uk.net/2013/12/educate-dont-segregate-allfies-call-for-action-on-the-10th-december-1pm/

We publicise Equal Lives’ video on how the cuts effect at the local level https://dpac.uk.net/2013/12/our-lives-equal-lives-norfolk-and-the-cuts/

DPAC posts video by Colin Barnes on the importance of the social model by UCU https://dpac.uk.net/2013/12/interview-with-colin-barnes-what-are-the-origins-of-the-social-model-of-disability-and-why-is-it-so-important-to-equal-rights-campaigners/

DPAC attends open meeting with Mike Penning https://dpac.uk.net/2013/12/feedback-from-todays-meeting-with-mike-penning/

DPAC publicises the case of Anthony  Kletzander’s  treatment in Ireland at the hands of ‘professionals’ as he is denied basic rights https://dpac.uk.net/2013/12/update-anthony-kletzander-needs-your-help/

Owen Jones names DPAC as one of his ‘person of the year’ choices for 2013 http://www.independent.co.uk/voices/comment/who-is-your-person-of-the-year-9018337.html

 

 

 

 

 

 

 

Dec 052013
 

Crippen Gove is in bed with the ghosts of segregation past  and future

ALLFIE WILL BE VISITING THE DEPARTMENT FOR EDUCATION on the 10th DECEMBER TO DEMAND THE GOVERNMENT BANISHES THE GHOSTS OF SEGREGATION PAST BY WARNING ABOUT THE NEW GHOSTS OF SEGREGATION FUTURE

CALL FOR ACTION on the 10th DECEMBER!  

WHERE & WHEN:

Date:      10th December @ 1 pm

Meeting place: the Café in Abbey Centre, 34 Great Smith Street, Westminster London SW1P 3BU

Contact:  Simone/Tara at ALLFIE – 0207-737-6030                               simone.aspis@allfie.org.uk / tara.flood@allfie.org.uk  / www.allfie.org.uk

ALLFIE logo

THE FACTS:

Since 2010 the numbers of disabled children and young people being forced into segregated education is on the increase, despite the Government’s UNCPD Article 24 (Right to Inclusive Education) obligations to develop a fully inclusive mainstream education system. This year the Government is pushing through SEN reforms that will increase, even further, the numbers of disabled children and young people being forced into segregated education – this is despite David Cameron, in 2010, promising parents of disabled children he would do all that he could to support their choice of inclusive education.

Time and time again, the Government have refused to listen to disabled people and our allies about the damaging impact the SEN reforms will have on the rights for disabled students and pupils to be included in mainstream education –
ENOUGH IS ENOUGH!!

We must ACT NOW to tell Michael Gove (Secretary of State for Education) and the Coalition Government that there must be no return to segregation!!

Today we are presenting the following DEMANDS to Michael Gove and the Coalition Government:

  • Disabled children and young people MUST have a right to be included in mainstream education.

 

  • Disabled children and young people MUST have a right to receive support to participate in mainstream education in accessible buildings.

 

  • The Local Offer of services MUST support disabled children and young peoples’ access to mainstream education.

 

  • Local Authorities MUST continue to have a strategic duty to promote and develop the capacity of mainstream schools to deliver inclusive education practice as set out in the Inclusive Schooling Guidance.

    Join ALLFIE’s “EDUCATE DON’T SEGREGATE” Campaign now!
     
Dec 022013
 

ALLFIE WILL BE VISITING THE DEPARTMENT FOR EDUCATION on the 10th DECEMBER TO DEMAND THE GOVERNMENT BANISHES THE GHOSTS OF SEGREGATION PAST BY WARNING ABOUT THE NEW GHOSTS OF SEGREGATION FUTURE !

WHERE & WHEN:
Date: 10th December @ 1 pm
Meeting place: the Café in Abbey Centre, 34 Great Smith Street, Westminster London SW1P 3BU
Contact: Simone/Tara at ALLFIE – 0207-737-6030 simone.aspis@allfie.org.uk / tara.flood@allfie.org.uk / www.allfie.org.uk

THE FACTS:
Since 2010 the numbers of disabled children and young people being forced into segregated education is on the increase, despite the Government’s UNCPD Article 24 (Right to Inclusive Education) obligations to develop a fully inclusive mainstream education system. This year the Government is pushing through SEN reforms that will increase, even further, the numbers of disabled children and young people being forced into segregated education – this is despite David Cameron, in 2010, promising parents of disabled children he would do all that he could to support their choice of inclusive education.
Time and time again, the Government have refused to listen to disabled people and our allies about the damaging impact the SEN reforms will have on the rights for disabled students and pupils to be included in mainstream education –
ENOUGH IS ENOUGH!!
We must ACT NOW to tell Michael Gove (Secretary of State for Education) and the Coalition Government that there must be no return to segregation!!
Today we are presenting the following DEMANDS to Michael Gove and the Coalition Government:
• Disabled children and young people MUST have a right to be included in mainstream education.

• Disabled children and young people MUST have a right to receive support to participate in mainstream education in accessible buildings.

• The Local Offer of services MUST support disabled children and young peoples’ access to mainstream education.

• Local Authorities MUST continue to have a strategic duty to promote and develop the capacity of mainstream schools to deliver inclusive education practice as set out in the Inclusive Schooling Guidance.

Join ALLFIE’s “EDUCATE DON’T SEGREGATE” Campaign now!

 

View the petition

Nov 282013
 

ALLFIE NEEDS YOU!

Please sign our petition calling for

Lord Nash and the Govt to put back

the guidance on Inclusive Education

into the SEN Code Practice

The Government are threatening to turn back the clock for disabled children and young people with SEN by placing them back into special schools – BREAKING AN ELECTION PROMISE to parents who were told by David Cameron that he would do all that he could to help parents who want their children included in mainstream. Disabled people know through experience that segregated education does not work if we want to live together in society as respected adults.

The Government have removed all the guidance for Local Authorities and schools on inclusive education in their revised SEN Code of Practice which accompanies the new Children and Families Bill. The Guidance helps schools to do inclusion well.

WE KNOW INCLUSION WORKS, enabling thousands of disabled children to access a mainstream education where they can learn, make friends and feel they belong in their local communities – something which is impossible in even the best resourced special schools. Removing this guidance will waste over 20 years of painstaking development in the field of inclusion, leaving the coast clear for the rapid expansion of separate and privatised schools and colleges which is already underway. Parents will lose confidence in the ability of the mainstream to make safe and appropriate arrangements for their children and young people, and will feel they have no option but to accept segregation.

We must stop them now!

Lord Nash has responsibility for steering The Bill and the Code through the House of Lords where amendments can still be made before the final vote. ALLFIE has been trying to get a meeting with Lord Nash but he has either ignored or denied our requests – our patience has now run out! Let us take thousands of signatures to Lord Nash on the 10th December and show him that we will not accept a return to the mistakes of the past which are now threatening a whole new generation of young disabled people and those with Special Educational Needs.

PLEASE Sign the petition and say NO RETURN TO SEGREGATION!

Lord Nash, Department for Education: Government must put back all the guidance on Inclusive Education in the Special Educational Needs Code of Practice so Schools and College can be better at including disabled children and young people<http://www.change.org/en-GB/petitions/lord-nash-department-for-education-government-must-put-back-all-the-guidance-on-inclusive-education-in-the-special-educational-needs-code-of-practice-so-schools-and-college-can-be-better-at-including-disabled-children-and-young-people?utm_source=guides&utm_medium=email&utm_campaign=petition_created>
Once you have signed it please forward to all of your networks.

Alliance for Inclusive Education

Nov 122013
 

Add your voice to DPAC’s survey–what needs to change? What are the key issues for disabled people under this Government? We know most of them-but what about specific barriers: education, transport, building more accessible housing-are they getting worse or better?…Tell us…so it’s not just us arguing for change…

 https://www.surveymonkey.com/s/WYZVQXV

Aug 292013
 

Scope charity says they care about disabled peoples’ rights to access universal services close to their homes as part of their high profile ‘Britain Cares’/ ‘I Care’ campaign.

At the same time Scope is fundraising and asking the state to continue funding their institutionalised and segregated residential and educational services for disabled people.   

Throughout history special residential educational and care institutions have claimed to provide the education and care that disabled people need.  

We are here to dispel the myth of segregated ‘care’ and education services that are provided without our consent.  

do not:

·        Support disabled people’s choice and control over their lives.

·        promote disabled peoples inclusion in their local communities  

·        Support disabled people’s aspirations in education, training and employment.  

·        Support positive relationships between disabled and non-disabled people.  

·        Challenge the unacceptability of disability-related bullying and hate crime.

Scope is one of range of big business disability charities that are funded by the state to provide segregated education and care services at the expense of providing funding for independent living and inclusive education- things that are wanted by disabled people, their organisations and allies to provide proper independent living.

SCOPE supports the full implementation of the UN Convention of Persons with Disabilities that includes disabled peoples’ rights to inclusive education (Article 24) and Independent Living (Article 19).    

If SCOPE truly believes in disabled peoples’ human rights to be included in their local communities then they must stop the patronising caring campaign and be prepared to make fundamental changes to their paternalistic services.   

DISABLED PEOPLE WANT SCOPE ‘TO DARE’ TOO…..

We dare SCOPE to close their special schools and colleges.

We dare SCOPE to develop alternative services that will support disabled peoples access to mainstream education.

We dare SCOPE to support ALLFIE’s Inclusive Education manifesto demands. 

We dare SCOPE to close residential institutions and develop real independent living alternatives for disabled people

We dare SCOPE to stop all segregated services such as day care to enact the full inclusion of disabled people

We dare SCOPE to stop claiming that they work ‘with’ disabled people while they continue to gain service contracts from local authorities when there are active user-led disabled organisations in that area.

It’s not only Scope but all the other disability big charities who claim to support disabled peoples human rights that must be challenged and be prepared to dare to do what disabled people want: a right to be supported, to be educated, and to live in their local communities, free from the possibility of state sanctioned institutionalisation.    

Please join DPAC’s Reclaiming Our Futures campaign….. We Launch the ‘I Dare’ Campaign against Segregation and the Removal of our Rights online campaign on the 3rd Sept

disabled extremist i dare

With thanks to Ania for pic

‘I Dare’ Day 3rd Sept

This is not just about SCOPE but all those other big disability charities Leonard  Cheshire, MENCAP, MIND you name them- they all do it-they all claim to speak in our name. Add to this, this Government and we ‘dare’ to campaign against it all.

Sept 3rd is DPAC ‘s ‘I Dare’ day, a day of online action on twitter and Facebook , with a few surprises too.

We want to see people tweeting and spreading the word across social media against all those that try to take our rights away – that segregate us, that say they speak for us-we want to show them that we dare to fight back.

Flood twitter and Facebook with ‘I dare’ messages –here’s some we made earlier…..

I dare campaign

 

#I dare: speak up and campaign for independent living and to save ILF

#I dare: speak out about the lost of support for disabled people

#I dare: speak out on the increasing suicides and premature deaths from Atos assessments

#I dare: speak out on the increasing number of disabled people left without food because of cuts

#I dare: to tell the truth about what is happening in this country to disabled people under this Government

#I dare: to say that its not ‘care’ disabled people want, but the right to make our own choices

#I dare: to say I want rights not charity

#Britain dares #I dare #We dare

Inclusive Education NOT segregated Education for Disabled children and young people

#I dare to experience mainstream education!

# I dare the Govt to implement the education related recommendations in the EHRC Hate Crime reports – what are they afraid of!

#I dare the government to give disabled people choice of mainstream provision – what have they got to lose other than a few quid invested in segregated ed!

And why not send an ‘I dare’ Picture to SCOPE to let them know what you think http://www.britaincares.co.uk/ show them #Britain Dares, better send us a copy too at: mail@dpac.uk.net

 

 

 

 

 

Nov 102012
 

 

“An Inclusive Education and a Fulfilling Life” Conference

   Saturday 17th November 2012   10.30am until 4.00pm  

                     Email: afulfillinglife2012@gmail.com          

Venue: The Hayes Conference Centre, Swanwick, Derbyshire, DE55 1AU

Purpose: This conference sets out to bring together disabled people, the parents of disabled children and those with SEN, and their non-disabled allies to explore common ground, opportunities and choice with regard to independent living and enjoying an education alongside their peers.

The conference will:

  • Be respectful and accessible
  • Be informative and participatory
  • Use cooperative learning approaches
  • Give examples of where things are working
  • Discuss why life is getting harder for disabled people.

 

Refreshments: Lunch provided

 

The charge will be: £5.00 disabled people and family members

£15.00 for allies (education professionals etc)

This in a not-for-profit event; all proceeds are to cover the cost of the conference.  Please pay on the day but we do need a definite commitment that you are coming so we can make arrangements.

Interested in attending or want more information?

Please contact us by emailing:  afulfillinglife2012@gmail.com

 

ALLFIE Contact: Convenor: Keith Venables,

Organisers: Elaine Hill, Caroline & Maresa MacKeith

National Advisors: Katie Clarke, Derek Wilson & Tara Flood

Text or call: 0780 587 8729 Email: afulfillinglife2012@gmail.com

For more information about ALLFIE: http://www.allfie.org.uk

      

             

Jul 202012
 

What are you currently working on?

I work at the Alliance for Inclusive Education which is a Disabled People’s Organisation that campaigns for all disabled learners to have access to mainstream education, no ifs, and no buts. Our current campaign is to fight the government’s continued attacks on inclusive education, as if disabled people ever had the right to inclusive education in the first place. Disabled learners are the only group of people who can be lawfully discriminated against when accessing mainstream education despite the government’s commitment to the UN Convention on the Rights of Persons with Disabilities and Article 24 which states that disabled people should not be “excluded from general education system and receive the support required.      Moreover we mustn’t forget that in terms of accessing 16+ education there is not a squeak on segregated education.

We are campaigning vigorously against the Government’s plans to remove the bias towards inclusive education through increasing segregated and education provision in both schools and colleges that is being proposed in the Government’s proposals for young disabled people in their draft Children and Families Bill.

We have been fighting against the outright attacks on disabled people’s right to mainstream education through the government’s academies programme and their attempts to weaken the special educational needs legal framework.    Additionally we have been campaigning against the Government’s attack on local authority’s role in providing coordinated specialist SEN services that are available free of charge for all state funded schools.   Such services may include behaviour support, educational psychologists, occupational psychologists, dyslexia therapists which can make a real difference in supporting mainstream schools capacity to support inclusive education practise for a whole range of disabled kids.

ALLFIE were successful in ensuring academies complied with the SEN framework and generally required to be have an intake of pupils of all abilities.    This doesn’t get away from the covert discrimination that disabled people and parents face in accessing mainstream education through admission procedures.

Please see ALLFIE’s website for on-going campaigning activity: www.allfie.org.uk

 

What do you see as the biggest threat to disabled people at the moment?  The Government’s

Disregard for the UN Convention on the Rights of People with Disabilities, European Human Rights Convention, Human Rights and Equality Acts duties in their responsibility for promoting inclusion of disabled people in mainstream
society.

Constant attack on anyone relying on the state for any kind of support, welfare benefits, housing, social and health care and so on.     Individualism, capitalism, competitiveness and productivity are the driving force of Government policy.   They are wrecking any kind of collective responsibility for supporting each other in times of need.

Plans linking duties to being entitled to state funded support – i.e. requirement to be looking for work whilst having a social housing tenancy or being in receipt of employment and support allowance.

Then we have disabled people being seen as scroungers when accessing benefits when time and time again it has been shown there is little evidence of fraud.

State’s responsibilities and Public sector’s duties being privatised by commissioning such services to the private sector such as profit making organisations, ‘social enterprises’ and charities.  This will undermine the integrity and democratic accountability for decisions that will have a huge impact upon disabled peoples’ lives.   ATOS is an example where the Work Capability Assessment should be under the direct supervision of the Department for Work and Pensions as opposed to a private company that is only interested in meeting the Government’s targets of getting disabled people off benefits so they get their contract renewed.   Simarily, private companies are involved in determining whether job seekers are doing enough to find work and if not they can contribute to the decision of withdrawing job seeker’s benefits.

Market determines what services will or will not be made available for disabled people.   Just because disabled people need services does not mean that the market will deliver – as it depends on whether a profit can be made by the provider.

The idea of objectivity and assessments without recognising the whole move towards carrying out individual assessments is based on a universal application of ideas.    There is an assumption in the work capability assessment that an ability to read, write, use a computer, lift objects and so on at home is an indicator of a disabled person’s ability to do paid work.     An ability to concentrate in a work setting is assumed if a disabled person has the ability to watch Eastenders.

The Big Society Bank where we are going to have the elite deciding who will be deserving poor or ‘needy’ and who will be providing those services.   As the bank will be providing loans instead of grants, only companies that can pay back the money will be considered – Disabled peoples organisations are unlikely to get any assistance.

Another major threat is the bio-psycho-social model replacing the good old social model of disability in terms of understanding the barriers that disabled people face.

What can disabled people do in the face of all these threats?

I think disabled people need to get together and think through what needs to happen in order for things to change. Reconceptualising how we understand disabling barriers in today’s society in order to challenge our most pressing threats, for example the bio-psycho-social model.

We need to work together in developing an ideal world that promotes inclusion, both in theory and in practise.

In terms of campaigns we need to link to wider anti-capitalist campaigns because we are affected differently but equally. Capitalism is there to divide us, it is about squeezing out the resources from the many (disabled people, women, Black and Minority Ethnic groups, the working poor and so on) for the benefit of an elite. We need to stand firm to this continuing threat to our freedoms.

 

What is the best action you have ever taken part in?

Anti-discrimination, Apprenticeships and the Jodie and Mary’s Equal  Right to Life campaigns.

Throwing stink bombs into a Leonard Cheshire Ballroom which stopped a charity ball and throwing false shit and sitting on a very doggy toilet outside the Department of Health against cuts to social care campaign.

 

Is there any message you would like to give DPAC members?

Kick some butt!

May 112011
 

David Cameron has acted on his threat to “Reverse the bias towards inclusion” for disabled children and other children who need extra help at school.  The Governments green paper ‘Support and Aspiration: A New Approach to Special Educational Needs and Disability” is based entirely on the medical model of disability and will push back all the progress for which disabled people have struggled over the last 20 years.  These proposals include:

  • Creating many more special school places
  • Removing the right of children to a legally enforceable ‘Statement of Special Educational Needs’
  • Re-introducing the infamous caveats in the law which allow local authorities to forcibly segregate disabled children
  • Allow many more schools to opt out of local authority control (and centralised services which support inclusion)
  • Put parents in control of their children’s financial resources until they are 25 years old

This is in the context of a massive cut back in the rights and resources being made available to disabled people and all the poor and disadvantaged families who constitute the group most vulnerable to these proposals, including changes to housing benefit, income support, DLA, rights to legal aid, Sure Start Schemes, Youth Work and so on.

WE MUST FIGHT BACK

PLEASE COME TO THE EVENT ON WEDNESDAY JUNE 29th, AND DEMONSTRATE OUR RESISTANCE TO THESE PROPOSALS

Meet at 11AM, on WESTMINSTER BRIDGE in front of St Thomas’s Hospital.

You can find more information about Inclusive Education at the ALLFIE website