Contents
DWP’s plans ‘in tatters’ as McFadden scraps white paper on further disability cuts 1
‘Shocking’ figures show parents linked to DWP service face death rates up to three times higher 3
Committee calls cuts bill ‘discriminatory’, even though all its Labour MPs voted for it 10
Disabled people warn of ‘severe’ consequences if chancellor removes Motability VAT exemption 13
Regulator’s annual report shows impact of social care crisis on disabled people 18
Other disability-related stories covered by mainstream media this week 19
DWP’s plans ‘in tatters’ as McFadden scraps white paper on further disability cuts
Ministers have dumped plans for a major white paper containing a swathe of further cuts and reforms to disability benefits, following months of activism by disabled people and allies that forced the government into a major U-turn this summer.
Work and pensions secretary Pat McFadden, who only took on the role last month, confirmed the move in a meeting with representatives of disabled people’s organisations (DPOs) earlier this month.
One DPO said yesterday (Wednesday) that the admission was a “major success” for disabled people who fought the summer cuts bill.
But DPOs also warned that activists would need to keep up the pressure on ministers because McFadden had made it clear that, despite abandoning the white paper – which is likely to have significant political implications for the Labour government – individual measures would be taken forward.
He insisted in the meeting – first revealed this week by Greater Manchester Coalition of Disabled People – that further reforms would go ahead, but they would be introduced individually rather than all together in a white paper.
The white paper was set to be based on many of the measures outlined in the Pathways to Work green paper, and responses to a subsequent public consultation.
The results of that consultation should be published before the end of this year.
The decision to bin the white paper means that many of the reforms suggested in March’s green paper – including removing the health element of universal credit for those under 22; reform, and possibly cuts, to Access to Work; a time-limited replacement for contributory employment and support allowance; scrapping the work capability assessment; and changes to the safeguarding, conditionality and sanctions regimes – are likely to be announced separately over the coming months.
Some – but not all – of the reforms will still require legislation.
McFadden’s admission that he had dumped the white paper was made in a meeting on 14 October with Fazilet Hadi and Svetlana Kotova from umbrella organisation DPO Forum England.
Hadi, head of policy for Disability Rights UK, told Disability News Service (DNS): “I definitely think that the amazing campaigning from disabled people and our allies against the PIP cuts has left the government feeling very bruised.
“The change of heart in publishing a DWP white paper, and the delay in launching the SEND white paper, bear this out.
“Having said this, Pat McFadden has been moved to DWP to drive through cuts to social security, so the lack of a white paper doesn’t mean that there won’t be further threats to the benefits of disabled people.
“It just means that those threats won’t all come at once.”
Kotova, director of campaigns and justice at Inclusion London, agreed.
She said: “There is a pause, but it does not mean reforms won’t be coming.
“And we need to keep the pressure and persuade or force the government to switch its focus from cutting benefits or ‘fixing us’ to be more work ready to putting resources and its attention to making workplaces more inclusive.”
Among their arguments in the meeting, she said, was for the government to move money from employment support towards the Access to Work scheme.
Steve Darling, the Liberal Democrat work and pensions spokesperson, has lodged a parliamentary question about the “deeply disturbing” situation after being alerted by DNS.
He said: “At the time of a cost-of-living crisis, it is concerning that the secretary of state could be moving away from a more thoughtful, considered approach, to one more driven by cuts than by strategy.
“This will only add to the stress and uncertainty that disabled people are facing with the threat of more cuts to disability benefits next year.
“I have therefore asked the secretary of state a named day parliamentary question to find out when (if at all!) the white paper will be published, to try to shed some light on this fraught situation.”
Rick Burgess, from Greater Manchester Coalition of Disabled People, who first revealed publicly that the white paper had been dumped, told DNS: “They are not confident that they will get a big piece of legislation through parliament anymore.
“It shows we really scared them. It’s a huge embarrassment for them. All their plans are in tatters, and they are afraid of losing another showdown in parliament.
“A Starmer government couldn’t survive another drubbing.”
But he said he did not think ministers had changed their attitudes towards welfare reform, only that they were not confident they could push a large bill through parliament.
And he said it would be much harder for disabled people to stop a stream of smaller reforms, and that “keeping track of them is going to be really tricky”.
Linda Burnip, co-founder of Disabled People Against Cuts, said the government’s move to drop the white paper was “obviously a major success for disability rights activists and the many months of campaigning”.
But she said it appeared likely that ministers would use secondary legislation to “sneak things through in dribs and drabs and hope changes won’t be noticed”.
McFadden told Fazilet Hadi and Svetlana Kotova at the meeting that no decisions had yet been taken on barring under-22s from the health component of universal credit, and that it was a priority of his to get more young people into work.
They said he seemed to indicate that time-limiting contributory benefits would be taken forward relatively soon.
Hadi said: “We emphasised the need for government to join up its policies on disabled people and to coproduce solutions with us.
“We urged him to move funding to the Access to Work scheme from the additional money being spent on employment support.”
Reforms – and almost certainly cuts – to personal independence payment are expected to follow next autumn, following a review being headed by Sir Stephen Timms, the minister for social security and disability.
Sir Stephen today (Thursday) launched the review, and announced his disabled co-chairs – Dr Clenton Farquharson and Sharon Brennan – as well as a recruitment process for the 12 members of a steering group that will jointly lead the review.
He said the majority of this steering group would be disabled people or representatives of DPOs.
DWP had not commented on McFadden’s admission by noon today (Thursday).
30 October 2025
‘Shocking’ figures show parents linked to DWP service face death rates up to three times higher
Parents who pay to support a child through the Department for Work and Pensions (DWP) and its Child Maintenance Service (CMS) face death rates up to three times higher than others the same age, according to “shocking” and “deeply troubling” new figures.
Analysis by Disability News Service (DNS) has shown that, for every age group between 20 and 54, those who use the service – known as “paying parents”* – face a much higher rate of death than those of the same age who do not have to deal with the CMS.
DNS carried out the analysis using figures obtained from DWP through a freedom of information request.
The request followed concerns raised by campaigners who have called for an inquiry into the deaths of parents driven to take their own lives by DWP’s refusal to correct errors in child support demands.
The figures, which are particularly exaggerated for younger age groups, have been passed to the Commons work and pensions committee, which is at the early stages of an inquiry into concerns about CMS.
Among the inquiry’s aims will be how to “improve the way it deals with families”, and concerns over how CMS calculates payments, and enforcement of its decisions.
The DNS analysis shows that, for all those aged 20 to 24 in England and Wales, the rate of deaths in 2024 was 0.04 per cent, compared with 0.13 per cent for CMS paying parents (more than three times higher).
For those aged 25 to 29, the rate of death was more than twice as high for paying parents, and for those 30 to 34 it was twice as high (0.12 per cent versus 0.06 per cent).
The difference in death rates narrows for older age groups, but there is still a substantial difference for every group analysed by DNS, with CMS paying parents aged 50 to 54 facing a death rate of 0.46 per cent in 2024, compared with 0.34 per cent for all adults in that age group.
Results for 2022 and 2023 show similar, striking differences.
Over those three years, there is not a single age group between 20 and 54 – the only groups examined in the analysis – where the death rates are not higher for paying parents than for all adults in England and Wales.
Although the figures do not show how many of these deaths were suicides, they do add strong evidence to the claims of campaigners who believe the higher rates of death for paying parents are at least partly caused by errors by CMS and its toxic culture, including its refusal to correct its mistakes.
DWP said this week that it was carrying out reforms aimed at streamlining CMS but that it did not “recognise” the DNS figures or any suggestion of a causal link between the actions and culture of CMS and the deaths of paying parents, although it did not point out any errors in the DNS calculations.
Ian Briggs, from research and campaign group STOPS (StopSuicides UK), which focuses on the harm caused by CMS, said: “I, and many others, have long known that the CMS and the DWP have been responsible for driving many parents to suicide.
“For years we have tried to highlight this to the DWP, yet every attempt is met with the same denial – that there is no link between the CMS and suicides.
“Even when presented with clear and credible evidence gathered by the STOPS group, the official response from ministers has remained one of outright dismissal.”
His son Gavin took his own life five years ago.
The coroner at Gavin’s inquest refused to investigate his father’s claims that the actions of the CMS had contributed to his decision to take his own life, even though the agency had wrongly claimed he owed £16,000 in support payments, after claiming his income was £76,000 rather than the £26,000 it was in reality.
Ian Briggs said this week: “The mortality rates recently revealed through John’s** research and exposed by Disability News Service cannot all be explained away as coincidence.
“While not every death may be due to suicide, these figures reveal a deeply troubling pattern that demands urgent scrutiny.
“At some point, there must be a full and independent public inquiry into these disturbing facts and the systemic failures within the CMS and DWP that continue to destroy lives and families.
“I would like to personally thank John and Disability News Service for… exposing these shocking mortality rates, and for giving a voice to the countless families – like mine – who have suffered unimaginable loss.”
Craig Bulman, who was left with PTSD after the Child Support Agency mishandled his case – the agency, the predecessor of CMS, eventually paid him a £5,000 consolatory payment – said the figures uncovered by DNS were “shocking”.
He told DNS: “Even allowing for statistical margins, the death rates you’ve calculated are deeply disturbing and point to something seriously wrong within the Child Maintenance Service.”
The Child Support Agency’s failings left Bulman homeless, triggered a mental breakdown, and caused the loss of his job.
He said this week: “These figures confirm what families have been warning for years – that the Child Maintenance Service is operating without proper oversight or duty of care.
“Death rates among paying parents are up to three times higher than the national average, and yet the DWP has failed to investigate or publish these findings.
“This now warrants an independent inquiry under the Inquiries Act 2005.”
In January 2023, during the final session of a previous inquiry into CMS by the Commons work and pensions committee, Labour MP Debbie Abrahams told of a paying parent whose arrears had been inaccurately assessed “and the frustration that he found ultimately led to him taking his life”.
She said his mother had previously written to DWP “expressing real concerns about mental health” but there had been no reply.
She added: “This is not the first time. We had a panel before Christmas that also provided data about the suicides of paying parents who were inaccurately assessed in terms of the arrears that they owed.
“This is tens of thousands of pounds that they said that they owe, leaving literally pounds for them to exist on.”
She asked Tory work and pensions minister Viscount Younger at the time if DWP collected data on suicides of paying parents.
He told her: “Could I just say that, being new into the department, I am already aware, having seen some of the correspondence that I have had to look at and sign off on, of some absolutely tragic cases?
“It is absolutely appalling that cases can lead to people taking their own lives.
“That is dreadful and we must look at all ways in which we can avoid that or have systems and processes that do not lead to that.”
Despite those comments, a DWP spokesperson said this week: “Over 780,000 people engage with the Child Maintenance Service, many of whom are experiencing a difficult time in their lives, and all staff are trained to support vulnerable customers.
“We do not recognise this data or suggestions of a causal link between the CMS and deaths among parents.”
*Child maintenance covers how a child’s living costs are paid when one of the parents does not live with the child
**DNS editor John Pring
***The following organisations are among those that might be able to offer support if you have been affected by the issues raised in this article: Mind, Papyrus, Rethink, Samaritans, and SOS Silence of Suicide
30 October 2025
Former detective exposes culture of disability discrimination within ‘institutionally disablist’ Met
A culture of institutional disability discrimination within the Metropolitan police is exposed today by the former head of its disabled staff association.
Dave Campbell, who retired this year after serving 32 years as a police officer, has told Disability News Service (DNS) that he believes disability discrimination within the force is rampant and that the Met is institutionally disablist.
He believes this “corporate culture” impacts how the force engages with disabled members of the public.
Campbell was chair of the Met’s Disabled Staff Association (DSA) for six years, and he was also vice-president of the Disabled Police Association of England and Wales.
His disclosures come only days after DNS revealed that prosecutions of disability hate crime across the country were continuing to plummet, with police forces in England and Wales passing on just a tiny proportion of recorded cases to prosecutors.
For six years, Campbell repeatedly tried to persuade the Metropolitan Police Service (MPS) to act on his concerns, before his retirement earlier this year.
It was his intervention that ensured the recent Casey review of the force’s internal culture and standards of behaviour examined the treatment of disabled people, when its initial focus was on racism, sexism and homophobia.
He believes the review provided an “alarming insight into how disabled people feel about their place in the organisation”, as he told Met commissioner Sir Mark Rowley in a letter last year.
He has told DNS that the upper levels of the Met have made it clear through their actions and inflexible policies – which he says marginalise disabled staff, and stem from outdated attitudes – that they do not want people who become disabled to continue serving as police officers in the force.
He says several disabled officers and staff have left the force because of their disability-related treatment and have written directly to the commissioner expressing their “despair and concerns”, without receiving any acknowledgement.
Over the four years between 2019 and 2023, he says, more than 200 disability discrimination employment tribunal claims were taken against the Met, including a significant number which included claims of race or gender discrimination.
The Casey review found an even higher number – 358 – in the five years between 2017-18 and 2021-22, but it was criticised by disabled campaigners for concluding that MPS was institutionally racist, sexist and homophobic, but not that it was institutionally disablist.
Campbell believes the number of disability discrimination tribunal cases increased after the Casey review by up to 60 per cent in 2023-24 compared to the previous year, while the DSA received hundreds of emails from distressed colleagues about the way they were being treated by their managers.
He has told Sir Mark that disability-led internal grievances are also at a high level, while many of his members had “no confidence or trust in the grievance management process” or in the ability of the Culture, Diversity and Inclusion directorate – set up after the Casey review – to produce change.
In the wake of Casey’s report, Campbell – as DSA chair – commissioned an independent review of disability inclusion and workplace adjustments in the force, by the Business Disability Forum (BDF), which reported its findings in September 2024.
Disabled colleagues in the DSA were asked if they had witnessed or personally experienced unfair treatment at work through disability-related harassment, bullying or discrimination, and 358 of the 775 who responded to the survey said yes (46 per cent), and another 123 (16 per cent) said maybe, a total of 62 per cent.
Of 504 police officers, 49 per cent said yes, and 15 per cent said maybe, a total of 64 per cent.
Of the 775 responses from disabled officers and civilian staff, less than 20 per cent (160) agreed with the statement: “MPS is an organisation that recognises and values disabled people.”
And just 65 (eight per cent) agreed that “feedback and complaints are listened to”.
One respondent said: “If you treated any of the other protected characteristics as you did disability then there would be uproar and heads would roll.”
Campbell believes the BDF report supports the view that MPS is institutionally disablist.
He told Sir Mark in last year’s letter: “In my experience Disability discrimination in the MPS is viewed less significantly and addressed differently in comparison to Race, Homophobia, Gender or any other type of Discrimination…”
In an earlier letter to Sir Mark, in 2022, Campbell told him: “There needs to be a change in attitudes [towards disabled officers] and an end to conscious labelling, as sick, lame, lazy, shirker, which are all derogatory terms yet seemingly acceptable…”
He has yet to receive any “tangible” response to the concerns he raised in last year’s letter and the survey report.
Campbell, a detective sergeant before his retirement, has himself twice taken successful action against the Met for disability discrimination, winning the first case at tribunal and then securing an MPS settlement before the start of a tribunal for the second case.
He describes himself as a person of ethnic origin, and has experienced intersectional discrimination, which he says is widespread in the Met.
He said the same complaints are being made “time and time again” at tribunal and through the force’s internal grievance process, which shows there is a “systemic” problem and failure to address these issues through an absence of “corporate memory” and a lack of “morality”.
Currently, about 3,500 police officers have adjustments made for them to allow them to continue in their roles, he said, out of about 36,000 officers in total across the force.
Campbell believes the number of MPS disabled officers and civilian staff may be as high as 10,000 – almost a quarter of the workforce – because many staff do not share their impairment with the force “due to concerns of how they will be treated”.
The Met’s DSA has more than 6,500 members and has 37 peer-to-peer support networks for disabled staff.
Campbell says he has increasingly been coming across incidents where the force’s occupational health department is making recommendations for adjustments to be made for officers who become disabled – often caused by their duties – but managers are refusing to agree to these adjustments.
Instead, officers are often told: “If you cannot do the job then you should just leave,” or: “This isn’t the right job for you.”
He told DNS: “We are just hitting a brick wall. This is about holding the police to account for systemic behaviour both internally and externally.
“If these attitudes exist towards disabled people in the workforce, what hopes do disabled people have when they become victims of crime?”
Louise Holden, Inclusion London’s senior policy officer for disabled people and crime, said: “I admire Dave Campbell and his tireless work within a disablist organisation.
“I share Mr Campbell’s concerns about how the Met treat disabled victims when their attitude to their own disabled staff is so appalling.
“Things have gotten worse since the A New Met for London plan following the Casey review.
“The work Inclusion London was involved in stopped and the new structure is a closed shop.
“Community confidence is at an all-time low.
“There has been no follow-up to the Casey review and with the Met decision to stop investigating non-hate crime incidents, without any consultation, it’s clear the Met is just not interested in disability issues.
“There has been no radical reform, only half-baked gestures and platitudes that amount to nothing.
“We are calling for renewed engagement with us, so we can support the Met with our expert knowledge on these issues.
“I hope the Met is ashamed of how they have behaved since the Casey review and want to work with us again.”
Commander Simon Messinger, the Met’s professionalism and senior lead for disability, said: “We are fully committed to driving positive change across the Met and fostering a culture of inclusion, and have taken significant steps to improve how we support disabled colleagues.
“This progress has helped us to achieve Disability Confident level three status, the highest level of recognition within that scheme, which reflects our determination to improve how we recruit, retain, and support our staff.
“We know there is much more to be done and will continue to work with the Met police Disabled Staff Association, and partners such as the Business Disability Forum, to drive further progress.”
A spokesperson for the mayor of London said: “The mayor is clear there is no place for harassment or discrimination in the workplace and is committed to working with the Met police to deliver a New Met for London where everyone can thrive.
“Since the Baroness Casey review in 2023 the Met has implemented a number of improvements for disabled employees, including the introduction of disability passports, Disability Smart assessments and the force is now a Disability Confident employer, improving how they recruit, retain and develop disabled staff.
“But there is more to do and the Met is working closely with the Disability Independent Advisory Group and the new chair of its Disabled Staff Association to listen and act on concerns to deliver a fairer and more inclusive Met.”
*If you have information about a police officer or member of staff who works for the Met and is corrupt or abusing their position and power, you can call the force’s anti-corruption and abuse hotline anonymously on 0800 085 0000
30 October 2025
Committee calls cuts bill ‘discriminatory’, even though all its Labour MPs voted for it
A Labour-led committee of MPs has called the government’s universal credit cuts act “discriminatory” and warned that it will push disabled people into poverty, despite every one of its Labour members voting for the legislation in July.
The Universal Credit Act will see the health element of universal credit halved for most new claimants from 6 April next year, from £105 to £54 a week.
All seven Labour MPs on the committee* voted for this cut in July.
But Labour’s Debbie Abrahams, who chairs the committee, said this week: “This is not only discriminatory, but without mitigations, will potentially push more people with disabilities and health conditions into poverty, exacerbating their condition and pushing them further away from the labour market.”
She was commenting on the publication of the government’s response to the committee’s report on the Pathways to Work green paper.
Her committee’s report had called on the government to delay the cut to the health element until it had carried out an “independent and comprehensive assessment of the impact the change could have on disabled people”.
But in this week’s response, the Department for Work and Pensions (DWP) dismissed those concerns.
Instead, it pointed to the “sustained, above inflation increase” to the standard allowance of universal credit (UC), which will also be introduced through the bill.
It said that this, together with the cut to the health element, would address “perverse incentives in the UC system and better encourages those who can work to enter or return to employment”.
Asked why she had voted for the cut to the health element when she thought it was discriminatory and would push more disabled people into poverty, Abrahams told Disability News Service (DNS) in a statement: “I worked very hard to secure major concessions on removing the cuts to PIP and people currently on UC health in the welfare bill.
“The bill isn’t perfect, and that was reflected in the work and pensions Pathways to Work report and its recommendations.
“However, voting against the bill would have meant that the increase in the standard allowance wouldn’t have gone ahead, and that was seen as a major positive aspect of the bill.
“This increase is not just for this year, but for each year until the end of this parliament.
“I am still continuing to work hard on securing mitigations around the reduction in support for newly disabled people from April next year and I remain committed to ensuring disabled people across the country have access to the support they need.”
Meanwhile, DWP has refused to explain to the committee what assessment it made of the bill’s impact on safeguarding, before the legislation was introduced to parliament earlier this year.
The bill had originally included steep cuts to personal independence payment (PIP), before a backbench Labour rebellion – following three months of activism from disabled people and allies – led to those measures being removed.
But there has been almost no discussion in parliament – and little or no information from ministers – on the bill’s potential impact on safeguarding claimants.
In its response to the committee’s report, DWP has made no mention of safeguarding, although it said that it had carried out an equality impact assessment for the bill.
But the impact assessments published on parliament’s website make no reference to safeguarding.
Asked by DNS why it failed to respond properly to the committee’s recommendation to release its assessment of the bill’s impact on safeguarding, and whether it did assess the safeguarding implications of the original bill, DWP said it was looking to improve its safeguarding approach, which included a review of the green paper consultation responses.
A DWP spokesperson said: “Our welfare reforms package was appropriately advised and numerous protections were baked into our plans.
“We are shifting our focus from welfare to work, skills, and opportunities, so more people can move out of poverty and into good, secure jobs as part of our Plan for Change – backed by £1 billion a year for employment support by the end of the decade.”
Grassroots groups of disabled people, such as Black Triangle, Disabled People Against Cuts, the Mental Health Resistance Network, and the Spartacus network, spent years highlighting deaths linked to DWP’s actions.
Concerns have also been raised by relatives who have called for action after the deaths of their family members.
Some of the evidence linking DWP with the deaths of benefit claimants has come through prevention of future deaths reports written by coroners, several of which only emerged years after they were written.
Other evidence of persistent DWP safeguarding flaws has emerged through freedom of information requests to the department, which have revealed how hundreds of recommendations for improvements have been made by DWP’s own secret reviews into the deaths of claimants.
Some of these reviews showed DWP staff continuing to make the same fatal errors, year after year.
The evidence collected by DNS and others, stretching back more than a decade, has shown how DWP repeatedly ignored recommendations to improve the safety of its disability benefits assessment system, leading to countless avoidable deaths.
It also shows how DWP hid evidence from independent reviews, and how the department failed to keep track of the actions taken in response to recommendations made by its own secret reviews.
Evidence also demonstrates that the cultural problems within DWP extend far beyond the assessment system, touching all aspects of its dealings with disabled people in the social security system.
The evidence, compiled over the last decade by DNS and other journalists, academics and activists, shows systemic negligence by DWP, a culture of cover-up and denial, and a refusal to accept that the department has a duty of care to those disabled people claiming support through the social security system.
Much of that evidence has been brought together in a detailed timeline, as part of the Deaths by Welfare project headed by Dr China Mills and supported by Healing Justice Ldn, which works with marginalised and oppressed communities.
*Debbie Abrahams; Johanna Baxter; Damien Egan; Gill German; Amanda Hack; Frank McNally; and David Pinto-Duschinsky
**The Department: How a Violent Government Bureaucracy Killed Hundreds and Hid the Evidence, DNS editor John Pring’s book on the years of deaths linked to DWP’s actions and failings, is published by Pluto Press
30 October 2025
Disabled people warn of ‘severe’ consequences if chancellor removes Motability VAT exemption
Disabled people have warned of “severe” consequences if the chancellor goes ahead with reported plans to remove the Motability car scheme’s VAT exemption in next month’s budget.
Disability News Service (DNS) reported last week how the company that runs the scheme, Motability Operations, had warned that removing the VAT tax break entirely could impose an upfront cost of at least £3,000 on even the cheapest cars it offers.
There is no certainty that the chancellor will go ahead with removing the tax exemption entirely – which was revealed by the Times – and she may abandon the plans completely.
But the minister for social security and disability, Sir Stephen Timms, failed to deny plans to target the VAT exemption when asked by disabled Labour MP Emma Lewell on Monday about potential cuts to the scheme.
Instead, Sir Stephen said again that there would be no changes to personal independence payment until next autumn.
Yesterday, a Reform UK press conference on the party’s plans to slash disability benefits – particularly personal independence payment (PIP) – saw the party target the Motability scheme.
The party’s work and pensions spokesperson in the Commons, Lee Anderson, said the scheme had “got completely out of hand” and was “an absolute scandal”, and he suggested that all those receiving Motability cars should only be able to secure a “blue three-wheeler”*.
He said: “What’s wrong with that? Let’s go back to that.”
Meanwhile, disabled people who rely on Motability to maintain their independence have told DNS this week of the drastic impact that increased costs could have on their ability to afford a car through the scheme, and how this would affect their ability to work, enjoy leisure opportunities, and attend medical appointments.
Julia Dalton, a Motability customer for more than 40 years, relies on an adapted vehicle, which she says has allowed her “to work for over four decades, contribute taxes, and live independently” in east Yorkshire.
As an electric wheelchair-user, she needs a large vehicle with a hoist to lift her wheelchair into the car.
She said: “Without Motability, I could never have afforded a suitable vehicle.
“It is not possible for me to use a cheap second-hand car because if it breaks down, I cannot simply use a hire car that is not adapted for my needs.
“Without a reliable vehicle I would not have been able to get to work and would likely have lost my job.
“This scheme has protected my independence, wellbeing, and ability to contribute”.
She says that advance payments – on top of contributing the enhanced rate mobility component of PIP every month – have risen significantly in recent years.
Her latest vehicle in March cost her £4,000 in an advanced payment as well as £1,500 for essential adaptations.
She said: “I am managing financially, but even I would struggle to pay thousands more on top.
“If someone like me is at risk of coming off the scheme, what happens to those with less support?
“The consequences are severe: disabled people stuck at home; people losing work because they cannot travel; missed medical appointments; isolation.
“Motability is not a luxury. It is a lifeline.”
She added: “If exemptions are removed or costs continue to rise, we risk destroying a system that enables disabled people to live, work, and participate fully in society.
“I am deeply grateful for Motability. I want to see it protected for the future, so others can have the same opportunities that I had.”
Emma, from Leicester, told DNS that her Motability wheelchair-accessible vehicle (WAV) – which needed an advance payment of £4,500 – had made “a huge positive difference” to her life, and allowed her to continue to visit her dad after he had a stroke, firstly while he was in hospital, and then at home.
She said: “WAV taxis are expensive and difficult to arrange, and using public transport would have been impossible for me health-wise.
“Without that access, he might have declined further or needed residential care.
“The scheme has literally kept our family connected and independent.”
She said the knock-on effects of removing the VAT exemption – and the insurance premium tax, which is reportedly also being considered – would “make it even harder for disabled people to stay mobile”.
She said: “The knock-on effects would be huge — more reliance on carers, increased pressure on health and social care services, and greater difficulty getting to appointments or even maintaining social contact and contributions to society.
“If the tax relief were removed, I simply wouldn’t be able to afford a vehicle and would be stuck in my house even more.”
Richard, a Motability-user for 30 years, from the West Midlands, told DNS that the scheme was vital as a wheelchair-user living in inaccessible housing, and that he and many others would be forced to leave the scheme because it would become unaffordable if its VAT exemption was removed.
He has a progressive, neurological muscle-wasting condition and uses his Motability car to drive to a pool to swim, which allows him to keep the strength in his shoulders that he needs to pull himself up and down the stairs of his home.
Without the car, he would not be able to use the stairs and would end up in expensive extra care housing or a nursing home.
He said: “Being stuck at home would be very detrimental to my mental health.
“It will have similar effects on many, especially those who would have to give up work due to unaffordable initial payments.”
April, who has been a Motability customer for 15 years and lives in Lancashire, said the scheme has allowed her to maintain her independence and job and “gets me to and from my workplace safely and stress free”.
She has a small automatic hatchback which now requires a £1,000 advanced payment, when previously there was no advance payment required.
She said: “I fear these government proposals will make Motability pass these costs on to the scheme users – to the detriment of those struggling on low incomes and those needing larger adapted vehicles.
“The scheme must be preserved for those of us that need it to maintain our independence, to work, attend appointments, and to live decently, with dignity and safety.”
Michael Newbold, from Staffordshire, a Motability customer for more than 20 years, said the scheme was “essential” for him and his disabled wife.
He said: “I need a car for appointments and shopping, also for leisure.”
They have already had to cope with the council stopping paying for a personal alarm, and for the insurance on his stairlift.
He said: “It’s like little by little they are taking all the things that make life easier.
“Most people, in my opinion, will not be able to afford the VAT rise if they are in a similar position as me.”
Another customer, Phil, told DNS that he and his wife Kath would be “totally screwed” without their Motability vehicle.
They are both disabled, but it is Kath who is the Motability customer as she uses a powerchair following a spinal stroke, so she needs a WAV.
Phil said: “We had to find a £4,000 down payment for our WAV and when it has to go back [at the end of the lease] we’ll have to find the same if not more for the next vehicle.
“Adding VAT on top would make it unaffordable for us.”
Without the car, he said, they would be “totally isolated”, and they already both struggle with their mental health.
He said: “I can only believe others in the disabled community will be affected in the same way.
“My wife and I are from Bristol and it’s a city with an awful bus service so another reason the Motability scheme is so vital for us.”
*A reference to the Invacar that was provided by the government to disabled people up until the late 1970s, when it was replaced by the Motability scheme
**Motability Foundation, the charity that oversees the car scheme, is a DNS subscriber
30 October 2025
Disabled people face ‘systemic’ barriers in accessing community equipment, parliamentary inquiry finds
A cross-party group of MPs and peers has called on the government to draw up a national strategy to address the “deeply troubling” and “systemic” barriers that prevent disabled people accessing the equipment they need to live independently.
Hundreds of disabled people and professionals across the UK fed into the inquiry by the all-party parliamentary group for access to disability equipment, which found an “inconsistent” community equipment system that was in crisis due to fragmentation, underinvestment, and a lack of leadership.
The inquiry heard of disabled children missing school because the correct hoists had not arrived; disabled adults unable to live independently and forced out of their jobs because repairs to equipment were taking months; and carers driven to “physical and emotional exhaustion”.
It found too many disabled people faced long delays, unsuitable equipment and “a lack of joined up support” within the system, which provides equipment such as grab rails, hoists, wheelchairs, ramps, specialist mattresses, and assistive technology.
The group’s report includes findings of a survey from more than 600 users of equipment, carers, professionals and equipment-providers.
More than half of equipment-users who took part (55 per cent) said they believed services were worsening.
The same proportion said they did not have access to the equipment they needed.
One equipment-user told the inquiry that the support offered “barely scrapes the barrel of what people actually need to live their everyday lives.”
More than a fifth of those surveyed (22 per cent) said they had waited more than two months to receive their equipment once it had been approved.
The report heard of the experience of Rhys Porter, who has cerebral palsy, and went without essential equipment, including a hoist and home adaptations, for two years.
His parents had to help him use a commode seat in his bedroom and drag him into the family bathroom on a towel once a week.
He was only able to go ahead with vital surgery because the charity Newlife provided him with a portable hoist.
The report calls for a “cohesive” national strategy; funding reform of the current “fragmented” model; action to address lengthy waiting-times for assessments and equipment; improved communication with equipment-users and between local authorities, health bodies, and government departments; a national advisory board with service-user representation; and action to improve reuse and recycling of equipment.
Labour MP Daniel Francis, chair of the all-party group, said: “Across hundreds of testimonies, one message came through loud and clear: the system designed to support disabled children and adults is failing them.
“It is failing to deliver equipment on time, failing to provide the right support, and failing to listen to the very people it exists to serve.
“Under the current system we’re seeing children missing school, adults being forced out of work and carers injuring themselves.
“It’s failing patients, carers, and the sector alike, and it’s high time for the government to get a grip.
“Access to community equipment is not privilege, it’s a daily necessity.
“We need a national strategy for community equipment and clear leadership and accountability in its delivery.
“Ensuring everyone is given the right support at the right time is simply a matter of political will and commitment.”
The Department of Health and Social Care was unable to comment on the report by noon today (Thursday).
30 October 2025
Regulator’s annual report shows impact of social care crisis on disabled people
An annual report by the care regulator has highlighted how the continuing social care crisis is impacting disabled and older people who need support in their own homes.
The Care Quality Commission said in its annual State of Care report that the health and social care system remained “fragmented and under severe strain”.
It said that demand for local authority-funded support had continued to rise, while the job vacancy rate in adult social care was still three times higher than in the wider employment market.
And it said that more community services were “urgently needed” to support people to stay in their own homes for longer.
The report includes evidence from members of CQC’s Experts by Experience group, which has come from their own experiences of care and support and from talking to other service-users during CQC inspections.
Living in a rural area can particularly affect alternative options if a homecare agency is providing poor care, the report says.
One of the Experts by Experience told CQC: “The only other agency down the road hasn’t got any space for me. Where do you expect me to go?
“I’m telling you what’s wrong and the things I’m not happy with, but I don’t feel like I’ve necessarily got a choice to change that.”
CQC’s Experts by Experience said disabled people had told them how they had been “left to sit or lie in soiled or wet clothing for hours while waiting for their care worker to arrive”.
The report says: “As local authorities around the country increasingly look to make savings, it seems likely more will signpost people to support in the community, ration the care they do provide, and reduce the provision of other statutory and non-statutory services.
“As well as negatively affecting the health and wellbeing of those in need of social care support, this could increase the pressure on the health and care system and the voluntary, community and social enterprise sector, and further increase the burden on unpaid carers.”
As CQC only began implementing its new single assessment framework in January 2024, it is not possible to directly compare the latest ratings from its inspections with previous years.
Inspections have been focused on services where CQC information suggested people might be at risk.
The ratings produced through the framework for about 3,000 adult social care services (out of a total of about 20,000 services across England) show four per cent were rated inadequate, another 26 per cent were seen as requiring improvement, 67 per cent were rated good, and two per cent were seen as outstanding.
Professor Sir Mike Richards, CQC’s chair, said: “The Casey Commission will be an important step in reforming social care – but it won’t solve the core funding problem.
“We continue to call for long-term, sustainable funding for adult social care.”
30 October 2025
Other disability-related stories covered by mainstream media this week
Reform UK’s draconian plans to scrap the personal independence payment (PIP) for people with anxiety were last night labelled “cruel, heartless and reprehensible”. At a press conference in London, the party vowed to end PIP for claimants with “non-serious anxiety disorders” and introduce more regular reassessments for those who qualify: https://www.mirror.co.uk/news/politics/reform-uks-plans-rip-up-36150700
Journalist and former BBC presenter Mark Mardell was left feeling “humiliated” after he was told he could not board a Turkish Airlines flight due to having Parkinson’s disease and no doctor’s report. The broadcaster was unaware of this requirement and was shocked when he could not board his flight home from Istanbul to Gatwick: https://www.bbc.co.uk/news/articles/ce9dx4zgzjzo
30 October 2025
News provided by John Pring at www.disabilitynewsservice.com
