Sep 102026
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

With apologies that this has been posted with such late notice due to illness.

On the 11th of September, MPs will vote on whether to legalise assisted dying in England and Wales. If the vote passes, the bill will undergo edits at the Committee and Report stages, then MPs will vote again on the amended bill.

Take action

What you need to know before MPs vote on Assisted Dying – Disability Rights UK

Write to your MP

Join our protest

This is a flyer with a picture of the UK Parliament on it. In big red at the top are the hashtags 'Vote No' and 'No To A D'.

Text asks people to join disabled people against cuts at a protest against the Assisted Dying (AD) Bill on Friday 11 September 2026. Assemble at 8.30am for 9.30am start, at Parliament Square Westminster, London, SW1P 3BD.

The flyer advises to bring water, hat, power bank for phones, medication.

 

Poster for Disabled People Against Cuts protest against the Assisted Dying (AD) Bill.

#VoteNo #NoToAD. “Our lives are not up for a vote.”

Friday 11 September 2026 at Parliament Square, Westminster, London SW1P 3BD. Assemble at 8.30am. Protest begins at 9.30am.

Attendees are asked to bring water, a hat, phone power bank and any required medication.

“No to Assisted Dying. Fund social care, palliative care, pain management, give us dignity in life.”

The event is for disabled people, families, friends and allies. Step-free access is available.

“Together we fight for dignity, rights and a life worth living.”

Jun 172026
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Statement for Press – return of assisted dying bill co-sponsorship by Marie Tidball MP

From Disabled People Against Cuts

FOR IMMEDIATE RELEASE

17.06.26

Lauren Edwards, MP for Rochester and Strood, has announced her intention to uphold Parliamentary democracy through returning the Terminally Ill Adults (End of Life) private member’s bill to Parliament, claiming the House of Lords blocked the will of the Commons in failing to pass the bill earlier this year.

Disabled People Against Cuts [DPAC] joins Deaf and Disabled People’s Organisations [DDPOs] across the UK in fearing this move.

She has stated her plan not to allow the Commons to amend the bill this time around.

The bill’s previous passage through the Commons was beset with multiple breaches of democratic principle, none of which she has any plans to address.

These breaches prevented Deaf and Disabled people including those with terminal illness and our representative organisations from having our concerns heard over the content and quality of the bill as well as the process by which it was passing until it reached the House of Lords.

Our concerns were not motivated by an opposition to the principle of assisted dying nor by any lack of ability to understand the bill nor by mistaken beliefs that the bill would impact us, as supporters of the bill regularly claimed.

There are many ways in which the bill would impact Deaf and Disabled people – not least because many of us are Disabled by terminal conditions and also because Deaf and Disabled people die from terminal conditions too – in fact we are statistically more likely to die earlier and from preventable illness.

Legislation dealing with terminal illness therefore has an arguably even greater significance to us than to non-Disabled people.

We are extremely anxious – indeed distressed – at the prospect of another attempt to legalise assisted suicide via Private Member’s Bill and in particular via the same seriously flawed attempt at legislation as before.

We are not at all reassured by co-sponsorship of the bill with Marie Tidball MP, herself an openly Disabled member of Parliament.

We see this as nothing short of a cynical attempt to gas light DDPOs and terminally ill people with concerns about legislation.

This is the same role played by Tidball in the passage of the previous bill when her involvement in the Commons’ public bill committee served to block amendments that would have provided greater safeguards.

Opposition to the bill in the House of Lords was primarily motivated by the fact that the bill itself is not fit for purpose. In its current form it will undoubtedly serve to remove choice and control from terminally ill people and shorten the lengths of time that they are able to live from the point of diagnosis.

Terminally ill people cited by bill proponents and featured in the media who voice support for legalisation only ever comment on the principle of assisted dying and never on the specific concerns with the content of the bill which DDPOs and professional bodies have raised.

Using their voices to discredit the voices of DDPOs and concerned individual terminally ill people is another example of the gas lighting we have endured.

If Lauren Edwards MP had a genuine concern for democracy and had even the vaguest interest in Parliamentarians appropriately fulfilling their responsibilities as legislators and duties of scrutiny, she would not be attempting to bring in such a monumental legislative change via a process that is unfit for this purpose, she would instead be looking to legislate for provision of a Royal Commission into the issue.

 

For more information contact:

Disabled People Against Cuts – mail@dpac.uk.net

Ellen Clifford – 07505 144371

 

END

 

Notes for Editor

  1. Disabled People Against Cuts is a UK-wide grassroots campaign group set up to oppose the brutal and disproportionate impact of austerity and welfare reform on Deaf and Disabled people. The context of continuing cuts and regression of our rights is directly relevant to the level of threat which the Terminally Ill Adult (End of Life) poses to our lives.
  2. There is not a single Deaf and Disabled People’s Organisation [DDPO]across the whole of the UK who supports the TIA bill. DDPOs are organisations run and controlled by Deaf and Disabled people.
  3. Below is a list of democratic failures of previous bill which we call on Lauren Edwards MP to remedy with the new bill. Although these are not legal requirements for a private member’s bill, the magnitude of the legislative change that such a bill would require makes these essential in order to avoid breaching the human rights of Deaf and Disabled people. The role of a Disabled MP as co-sponsor is not an adequate substitute for provision of the below.
      • Timescales need to be much longer at ALL stages of the bill. For example, the first draft of the TIA bill was produced less than three weeks in advance of the second reading debate. This was not only inadequate for MPs but also prevented DDPOs and Deaf and Disabled people with terminal conditions from accessing the draft with time to lobby their constituent MPs with any concerns.
      • Bill materials including draft text of the bill itself to be available in accessible formats including easy read and BSL.
      • Impact assessments including equality impact assessment to be published at the outset including in accessible formats. EIA to be fit for purpose and actually address potential adverse impacts on all equalities groups rather than just focusing on ensuring good access to the assisted dying service. Timely publication to allow for DDPOs to raise any problems with the quality of the EIA.
      • Call for written evidence to be available in accessible formats and to be publicly announced with targeted outreach to DDPOs.
      • Targeted outreach by the bill sponsor to hear the voices of people with terminal conditions within scope of the bill who have concerns about the bill.
      • Assurance of no messaging to MPs or the media that the bill does not affect/is not relevant to Deaf and Disabled people to discourage consideration of our views and concerns.

4. Issues which the majority of terminally ill people cited by politicians and featured in media have not seemed to be aware of: Big savings to health and social care budgets associated with introduction of a new voluntary assisted dying service as included in the bill impact assessment.

  • The reasons why the vast majority of palliative care professionals are opposed to legalisation including the threat it poses to investment in palliative care services, especially within the context of inadequate investment in and ongoing cuts to palliative care services and how the combined impact will be to reduce choice for terminally ill people in a far more substantial way than legalisation will increase it.

 

  • The fact that, according to experienced palliative care consultants, only a tiny proportion of terminally ill patients need to die in pain. Stories of individuals dying in pain put forward by supporters of the bill are, in the most case, situations that could have been avoided by access to adequate palliative care early enough. Supporters of the bill openly acknowledge that legalisation will inevitably mean wrongful deaths. We would ask how many members of the public would want assisted dying rather than palliative care for a loved one if pain were not an issue when the latter would mean longer with them?

 

  • Safety issues with the drugs currently used for assisted suicide in other jurisdictions and occurrences/risk of unpleasant and/or prolonged deaths.

 

  • Resistance by bill supporters to safeguard against people with terminal conditions choosing to end their lives not because they want to but because of: financial considerations of others; inadequate social care support; coercion by overstretched carers; quality of life judgements by medical professionals [amendments on all of which were voted down].

 

  • Lack of provision for identification of changes to a terminally ill person’s life able to alter their wish to end their life prematurely, for example through access to counselling, palliative care, social care or peer support.

 

  • Legal loophole passed in the Commons regarding promotional advertising of assisted dying.

 

  • Range of vested market interests in legalisation of assisted dying.

 

  • Implications for those with anorexia who are covered via a loophole in the bill.

 

  • Significant professional opinion that the mental capacity test used in the bill is inappropriate and fails to provide sufficient protections within the context of the bill.

 

  • Concerns raised by the Equality and Human Rights Commission as well as disability groups and organisations throughout passage of the bill, none of which were adequately addressed and most of which were dismissed out of hand by supporters of the bill. In addition to DDPOs, concerns were raised by groups and organisations representing, for example, people with anorexia, people with Down’s Syndrome, Mencap, and domestic abuse survivors.

 

  • Terrible inadequacy of the bill Equality Impact Assessment not only with respect to disability issues but also with regards to potential adverse implications for women experiencing domestic abuse and people from radicalised minorities.

 

  • Unwillingness by bill supporters to learn from the experiences of people with terminal illness/Deaf and Disabled people to improve the bill, for example the statistically evidenced role of fear over reality for new diagnoses and ways to alleviate that fear without recourse to premature ending of one’s life.

 

  • Implications for Deaf and Disabled people in Scotland and Northern Ireland due to interesting legislation, for example where Westminster has power over NHS provision of expensive life-saving treatment drugs to which Disabled campaigners have to fight for access.

 

  • The fact that data and research from jurisdictions where assisted suicide or euthanasia and assisted suicide are legalised (both are distinct forms of assisted dying) is severely limited but in every one, the original eligibility criteria for legalisation has widened.

 

  • The impact of legalisation on overall suicide rates. Evidence from other jurisdictions shows that the rate of overall non-assisted suicides does not reduce when assisted suicide is legalised but instead indicates that this rate increases. This is due to the normalising impact it has on suicide within wider society and because most suicides of terminally ill people occur straight after diagnosis rather than closer to death within a timeframe that comes within scope of legislation. This is an especially important concern for legalisation within the current UK context given the ongoing and only worsening crisis in mental health services. It is also a concern voiced by the UK Suicide Prevention Tsar, Professor Louis Appleby, and again disregarded by supporters of the bill.
Dec 202025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

Labour accused of ‘horrifying’ betrayal of disabled people after slashing Tory accessible housing target 1

Watchdog dismisses DWP’s description of DNS editor as ‘vengeful’ and ‘vexatious’ for asking to see deaths email 3

Labour ministers considered means-testing PIP, but later ruled it out, watchdog’s report shows 6

Welsh government publishes 10-year plan for disability rights… but fails to include any long-term policies 8

Falconer dismisses attempts to protect four groups of disabled people in assisted dying bill 11

Government’s housing agency fails to mention accessible homes in new five-year strategy 14

Watchdog’s league table on rail passenger assistance is ‘misleading’, say accessible transport campaigners 16

Minister rejects pleas from disabled peers for national wheelchair and equipment strategy 18

Other disability-related stories covered by mainstream media this week 20

 

 

Labour accused of ‘horrifying’ betrayal of disabled people after slashing Tory accessible housing target

The Labour government has been accused of a “truly horrifying” betrayal of disabled people after slashing an accessible housing target proposed by the last Conservative government.

On 18 March 2024, Tory housing minister Felicity Buchan finally promised to introduce new rules that would ensure all new homes were built to the strict M4(2)* standard of accessibility, except for cases where this was “impractical and unachievable”.

Conservative ministers had been considering and consulting on the measure – a long-standing demand of the disabled people’s movement – for at least five years, but the general election came before any further action was taken.

This week, the Labour government – after more than a year of delays and false promisesfinally published its own plans for accessible housing in a consultation on changes to the National Planning Policy Framework.

But the consultation shows that Labour wants to cut the percentage of new homes that should be built to the M4(2) standard from 100 per cent – under the Tory plans – to just 40 per cent.

Housing secretary Steve Reed said the new framework would “get Britain building” and “place the key to homeownership into the hands of thousands more hardworking people and families”.

But instead of supporting plans for all new homes to be built to a decent accessible homes standard, the consultation document says the government is “proposing a national minimum that ensures at least 40% of new housing over the course of the plan period is delivered to M4(2) standards”.

There will also be no minimum level for the proportion of new homes that are suitable for wheelchair-users, which disabled housing campaigners believe should be set to at least 10 per cent.

Chancellor Rachel Reeves said the reforms “back the builders not the blockers, unlock investment and make it easier to build the 1.5 million new homes across every region – rebuilding the foundations of our economy and making affordable homes a reality for working people once again”.

The government’s press release announcing the consultation includes a string of approving comments from the home-building industry.

Disabled people and their organisations now have the opportunity to deliver their response to the consultation, which ends on 10 March.

But Fazilet Hadi, head of policy for Disability Rights UK, has already accused the government of a “lack of principle” and betraying disabled people.

She said: “The announcement that only 40 per cent of new build homes need to be built to improved accessibility standards is truly horrifying, leaving disabled people feeling betrayed and excluded, and questioning the government’s commitment to disability equality.

In a society where the number of disabled people across all ages is increasing and in which only a tiny fraction of homes are accessible, it is absolutely incredible to witness the government’s lack of principle and lack of forward planning.

Requiring 100 per cent of all new-build homes to be built to improved accessibility standards with 10 per cent to wheelchair-user standards would have been the right thing to do, creating a level playing-field for developers and sending a strong signal that our housing stock must change, to meet the needs of our older and disabled citizens.

The government’s failure of resolve and watered-down proposal leaves a bitter taste, raising questions about whose interests are being served.”

Inclusion London also criticised the move.

It said the government’s proposal “falls short of what disabled people need” and would leave thousands with unmet housing needs.

Laura Vicinanza, Inclusion London’s senior policy and stakeholder engagement manager, said the government had “pledged in their manifesto to champion the rights of disabled people” and “promised to work with us and put our voices at the heart of decision-making”.

She said: “We believe the government should follow the London Plan approach on accessible housing, where 90 per cent of new-build homes are planned to be accessible and adaptable and [another] 10 per cent to be wheelchair-accessible.

This approach delivers far better outcomes for disabled people than other areas in England.

We urge the government to reconsider their approach, listen to disabled people and develop ambitious planning policies that leave no one behind.”

Asked how Reed justified slashing the accessible housing target, the Ministry of Housing, Communities and Local Government had not commented by 11am today (Thursday).

*Homes built to the M4(2) standard have 16 accessible or adaptable features, similar to the Lifetime Homes standard developed in the early 1990s to make homes more easily adaptable for lifetime use, while M4(3) homes are those that are supposed to be fully wheelchair-accessible

18 December 2025

 

 

Watchdog dismisses DWP’s description of DNS editor as ‘vengeful’ and ‘vexatious’ for asking to see deaths email

The information commissioner has dismissed attempts by the Department for Work and Pensions (DWP) to describe a disabled journalist as “vengeful” and “vexatious” after he tried to obtain information about its years of safeguarding failings.

Disability News Service (DNS) editor John Pring was trying to secure an unredacted version of a DWP email that is likely to reveal key information about links between the department and hundreds, and probably thousands, of deaths over the last 15 years.

But DWP refused to release the email, accusing Pring of a “vexatious” request, and later telling the information commissioner that his years of investigations* suggested he was a “vengeful requester” and that his actions could cause distress to the department’s civil servants.

Information commissioner John Edwards has now concluded that DWP failed to provide any evidence for its claims.

His decision notice said Pring’s continuing freedom of information efforts were “clearly in the public interest” and that the department “cannot label a requester vengeful on the basis that they publish articles that do not agree with DWP’s actions”.

The email DNS has been seeking was sent from the office of Tory work and pensions secretary Therese Coffey in February 2021, but the document was almost completely redacted, with eight of its nine bullet points blacked out, when it was provided to Pring in response to an earlier request.

The email related to a secret “critical friend” report written for Coffey by Conservative peer Baroness Neville-Rolfe, which called on DWP to reduce the number of suicides of benefit claimants and other “very bad cases” linked to its actions.

DWP refused to release the unredacted email, telling DNS in response to a freedom of information request in February 2025 that the request was “vexatious”.

When DNS complained to the Information Commissioner’s Office (ICO), DWP told the commissioner that Pring had imposed a significant “burden” on the department over “a period of years” relating to “the work the Department undertakes to support vulnerable customers”.

What DWP did not tell the commissioner was that these freedom of information requests, which date back more than a decade, have helped expose how senior DWP figures spent more than a decade covering up evidence linking the department with countless deaths of disabled people who relied on the social security system.

Pring’s book on these deaths, The Department, was published last year*, and was praised by the incoming Labour minister for social security and disability, Sir Stephen Timms.

The freedom of information requests have also led to numerous parliamentary interventions, national media coverage, and repeated public humiliation for senior civil servants and DWP ministers from both the Conservative and Labour parties.

But DWP told the information commissioner that Pring’s work indicated “a negative approach to the work that the Department undertakes to support vulnerable people” and “leads to the view that this request is part of a persistent and repetitive campaign and so vexatious in nature”.

It said this indicated that Pring could be considered a “vengeful requester”.

And after Pring described the initial claim that he was being “vexatious” as “ridiculous”, DWP told the information commissioner that the “repeated requests for information and the tone and language used by the complainant in communications… could be considered as harassment and has the potential to cause distress to DWP colleagues”.

Because the February 2021 email was written four years previously, DWP added, the freedom of information (FOI) request was “diminished in value and not justified”.

There was no mention in DWP’s evidence to the commissioner that many of Pring’s requests over more than a decade had exposed wrongdoing and cover-ups and how the department’s actions had led to the deaths of countless disabled claimants.

Edwards said in his decision notice that the department had failed to provide “any evidence or detailed explanations to substantiate its assertions”, while he was “not persuaded that the request can be characterised as vexatious”, and he was “disappointed at the paucity of DWP’s arguments”.

He said: “The complainant is an investigative journalist specialising in disability and welfare rights.

Whilst FOI requests to DWP may cause a burden, they are a recognised part of the journalistic process.”

He added: “Scrutiny of information relating to previous decisions or actions by a public authority is clearly in the public interest, for example to aid understanding of actions taken and whether lessons were learned.”

And he concluded: “It is not the role of a journalist to cast a positive light on information obtained under FOIA**.

DWP cannot label a requester vengeful on the basis that they publish articles that do not agree with DWP’s actions.”

The commissioner also dismissed any suggestion of harassment, saying in the decision notice: “It is well established that public officials should be open to scrutiny and criticism.

Whilst they should obviously be protected from excessive or distressing criticism, DWP has provided no evidence that this has occurred in this case.”

DWP will now need to provide a new response to Pring’s FOI request to see the unredacted email.

It is just the latest in a string of DWP failures on transparency since Labour came to power, continuing years of similar failings under successive Conservative-led governments.

At Labour’s annual conference in Liverpool, in September 2024, Sir Stephen told Pring: “The department has absurdly refused to answer lots of the questions that you have asked and that is something that we want to change… because public scrutiny is a good thing, and it puts pressure on ministers and on civil servants to have the consequences of what they are doing known about publicly.”

Despite his words, the failures on transparency have continued in the last 15 months.

Asked to comment on the ICO ruling, the department’s refusal to follow his plea for greater transparency, and whether the department should apologise to Pring, Sir Stephen had not responded by 11am today (Thursday).

Asked if the department would apologise for its comments about Pring, if it accepted a culture change was necessary within DWP, and if it would now release the unredacted email, a DWP spokesperson said: “We are currently considering the ICO’s decision notice and will respond within the timescales set by the commissioner.”

Debbie Abrahams, the Labour chair of the Commons work and pensions committee, said in a statement: “One of the foundations of a thriving democracy is the publication of accurate information for scrutiny in a safe and timely manner.

In its decision, the commissioner noted that the DWP had taken the wrong interpretation of the rules about which he had written to the department before on its poor FOI record, and it’s right it be made to look at its practices again.

Freedom of Information rules are in place to hold the balance between the privacy of people and the sensitivities of information and the public interest in knowing that information, and they should be adhered to.”

*The Department: How a Violent Government Bureaucracy Killed Hundreds and Hid the Evidence, Pring’s book on the years of deaths linked to DWP’s actions and failings, is published by Pluto Press

**The Freedom of Information Act

18 December 2025

 

 

Labour ministers considered means-testing PIP, but later ruled it out, watchdog’s report shows

Labour ministers considered the possibility of means-testing personal independence payment (PIP) last year, but then ruled out the option, the Department for Work and Pensions (DWP) has admitted.

A decision notice issued by the information commissioner reveals that ministers considered means-testing PIP in the “early days” of the Labour government, which was elected in July 2024.

But the potential policy, which has been under discussion within DWP for at least five years – and almost certainly much longer – was rejected by early this year.

The information came following a freedom of information request by welfare rights expert Finn Keaney, who asked DWP in May for reports produced since Labour came to power in July 2024 that discussed the possibility of making PIP a means-tested benefit.

When DWP responded, it admitted that it “holds information relevant to your request”.

It also admitted that there was “a legitimate public interest in understanding the rationale behind proposed changes to disability benefits, including whether and how the Department has considered the option of means-testing PIP”.

It then added: “The information requested includes early-stage analysis and internal advice that is directly informing live policy development.”

But it refused to release the documents, taking advantage of a Freedom of Information Act exemption that “protects the private space within which Ministers and their policy advisers can develop policies without the risk of premature disclosure”.

Keaney complained to the Information Commissioner’s Office (ICO) about DWP’s refusal to release the documents.

Although the commissioner has now ruled in DWP’s favour, the ICO decision notice makes it clear that means-testing PIP was considered by Labour DWP ministers and then ruled out as a policy option.

DWP told the commissioner that the advice and analysis documents it held were “part of active policy discussions” that influenced the government’s decision-making on PIP and the broader system to support disabled people.

And it said the material included “advice and analysis developed during early policy formulation and was considered alongside other potential options”.

Keaney had previously pointed to the limited opportunity for public scrutiny of many of the government’s plans for welfare reforms, and to the risk that DWP was avoiding “meaningful scrutiny and feedback from those affected”.

He told DWP earlier this year that this meant there was “an increased urgency and importance for the public to have oversight of welfare policy at the earliest stages of its development”, to avoid undermining democracy and restricting the public’s ability to hold the government to account over policy development.

But DWP told the commissioner that the government has now “confirmed its commitment to maintaining PIP as a non-means-tested cash benefit”, and it warned that “publishing advice on policy options not pursued could lead to unnecessary confusion or concern”.

The department also acknowledged the “legitimate public interest in understanding the rationale for changes to disability benefits and how means-testing of PIP has been considered” but said that PIP reform was “highly sensitive and remains under active public and Parliamentary scrutiny”.

Despite DWP admitting that means-testing PIP had been ruled out, the commissioner said that releasing the documents “would have a direct and detrimental impact on the policy development process”.

He said there would be “a significant public interest” in the information because it would “aid the public’s understanding of policy considerations relating to welfare reform” and would provide “interested stakeholders” with an “insight into the analysis of the issues in question”.

But he concluded that “the balance of the public interest” meant the papers should not be released.

The government is currently reviewing the future of PIP, with the review led by Sir Stephen Timms, the minister for social security and disability, and two disabled co-chairs, Dr Clenton Farquharson and Sharon Brennan.

There has been mounting evidence that DWP civil servants have been keen – and possibly still are – to cut spending on disability benefits by means-testing PIP.

Two years ago, Disability News Service (DNS) was told that participants in focus groups had been asked questions about which groups of people “deserve” various benefits and what they think about the idea of means-testing “extra cost” benefits.

Questions about the “extra cost benefit” ended with participants being asked whether it should be means-tested on the grounds of “affordability”, although it was never clear who had funded the focus groups.

Two years earlier, the Conservative government had published its Shaping Future Support green paper, which suggested that ministers could create a “new single benefit” to simplify the disability benefits application and assessment process, which could “provide support for disabled people and people with health conditions on low income and with extra costs”.

Work and pensions secretary Therese Coffey later told DNS at a fringe meeting at the party’s annual conference in October 2021 that merging PIP with universal credit was “on the table”.

Just a month later, DNS reported how a DWP civil servant had told a disability charity that the Conservative government planned to merge PIP with universal credit, although not for at least six years.

Meanwhile, new official statistics show complaints about DWP have rocketed in the last year.

The number of complaints received rose from 5,260 in the quarter ending September 2024 to 8,005 in the quarter ending September 2025, an increase of 52 per cent.

The most striking increase related to universal credit, where complaints increased by 82 per cent compared to the September 2024 quarter (from 2,200 complaints to 4,005).

Complaints about DWP mistakes, delays, and a lack of respect from DWP staff all rose on the previous quarter.

Complaints to the Independent Case Examiner, which act as an appeal process for those not satisfied with the outcome of a DWP complaint, also rose steeply.

For the September 2025 quarter, ICE received 2,645 complaints, an increase of 13 per cent from the previous quarter (2,334 complaints), and an increase of 61 per cent from September 2024 (1,642).

18 December 2025

 

 

Welsh government publishes 10-year plan for disability rights… but fails to include any long-term policies

The much-anticipated disability rights plan for Wales has left it to the next Welsh government to come up with a strategy to tackle the long-term barriers disabled people face in their daily lives.

When the Welsh government published its long-awaited plan on Monday (15 December), following a 12-week public consultation, it was accompanied by no major announcements or new funding.

Instead, the Disabled People’s Rights Plan 2025 to 2035 offers more than 60 short-term actions, which the Welsh government expects to be completed by 2027.

Most of these are minor measures, listing actions the Welsh government is already taking, or promising reviews, to update guidance, conduct evaluations, improve engagement, or raise awareness.

There is no pledge in the plan to introduce a right to independent living, no promise to incorporate the UN Convention on the Rights of Persons with Disabilities into Welsh law, and no commitment to funding disabled people’s organisations, all demands made by Disability Wales in its new manifesto.

There is also no promise to create a new minister for disabled people, another Disability Wales demand.

The explanation for the lack of long-term action is hidden on page 24 of the 80-page document, with the plan admitting: “Future Governments will set the medium to long-term actions they will take to achieve the ambition and outcomes for disabled people set out in this 10-year plan.”

The plan does not even include details of how progress will be measured, with that still to be decided.

But in one of the few new measures announced in the document, a new external advisory board, which will be led by disabled people, will “provide independent advice and guidance” on implementing the plan.

Instead of detailing a long-term strategy, the 80 pages are filled with descriptions of the existing barriers disabled people face across neighbourhoods, places, and transport; employment, income, and education; independent living, health, and social care; and justice and supporting environments.

The plan also lists existing legislation, strategies, action plans, programmes, guidance, frameworks and reviews.

Among the short-term actions announced in a separate document, the government promises an update of anti-bullying and safeguarding guidance; to work with local authorities and transport operators to update data on blue badge parking spaces; and to “collaborate with disabled people’s organisations to design and deliver a new funding stream that addresses social care needs”.

On a right to independent living, it promises only “to continue to work with all providers, including local authorities, to ensure that disabled individuals are able to live independently at home, wherever possible”.

The roots of the plan lie in the ground-breaking Locked Out report, which was co-produced with disabled people, and commissioned by the Welsh government, and which exposed the levels of exclusion experienced by disabled people in Wales during the pandemic.

The report led to a Disability Rights Taskforce and now the Welsh government’s 10-year Disabled People’s Rights Plan.

Chairs of the taskforce’s working groups will be included on the plan’s new external advisory board. 

Disabled campaigners who worked on the taskforce were reluctant this week to criticise the Welsh government’s plan, stressing instead the need to pressure future governments to fill out the long-term strategy.

They also highlighted the “unprecedented” level of co-production with disabled people that has taken place.

Disability Wales*, which is part-funded by the Welsh government, declined to comment on the content of the plan.

But DW’s chief executive Rhian Davies, a member of the Disability Rights Taskforce and chair of its independent living/social care working group, said the plan was “born from the dark days of the pandemic, where disabled people were an afterthought in public policy, resulting in high numbers of avoidable deaths and thousands more facing loneliness, isolation and hardship”.

She said: “Coupled with over a decade of austerity and the cost-of-living crisis, many disabled people are ‘barely surviving’.

Nevertheless, the high level of engagement among disabled people in the work of the taskforce, together with the collective leadership demonstrated by the 10 taskforce working group chairs, shows the resilience and commitment within our community to creating a more inclusive future where disabled people ‘truly thrive’.

With Senedd elections on the horizon, taking forward delivery of the plan will fall to the new Welsh government working co-productively with the external advisory board, including pinning down detail regarding the actions as well as the measurement framework.

It is vital that the cross-party commitment secured to date follows through beyond the election to ensure that the demands of disabled people for an equitable and inclusive society in Wales are fully realised.”

Joe Powell, chief executive of All Wales People First, which is also part-funded by the Welsh government, described the plan as “a new and ambitious vision for Wales”, which was “unprecedented in its co-production with disabled people and represents the most detailed and comprehensive involvement and feedback from disabled people to date”.

He said: “For the plan to achieve its intended impact, it is vital that any incoming Welsh government builds on the existing short-term, micro-level targets and develops these into a fully realised macro-level approach over the plan’s 10-year lifespan.

Without sustained commitment of time and resources, there is a significant risk that the plan will fail to deliver meaningful change, undermining the trust and goodwill of disabled people across Wales.”

Dr Natasha Hirst, a disabled activist who chaired the taskforce’s access to services working group, praised the “positive language and aspirations” of the plan, which were in “stark contrast to the deeply dehumanising and punitive rhetoric and policies of the UK government”.

She said the “long period of genuine co-production with disabled people and our organisations in Wales” had been “an important process for identifying the barriers that exclude us and damage our quality of life and has built an institutional and political commitment to the social model”.

She added: “There’s still much more to be done and it’s essential that we now secure cross-party support for this 10-year plan.

Political parties must make a firm commitment to taking it forward in their election manifestos and supporting the funding of the work once a new government is in place.”

Jane Hutt, the Welsh government’s cabinet secretary for social justice, said in a statement alongside the plan’s publication: “We are committed to ensuring that disabled people can participate in Welsh society on an equitable basis, free from barriers, and to creating an inclusive and accessible environment for all.

This 10-year plan represents our commitment to true inclusion and participation.

I thank the Disability Rights Taskforce and everyone who contributed to the consultation, ensuring the plan is grounded in lived experience.

We must now all work together to make sure the plan succeeds and that the values of accessibility, inclusion, and co-production are central in all that we do.”

*Disability Wales is a Disability News Service subscriber

18 December 2025

 

 

Falconer dismisses attempts to protect four groups of disabled people in assisted dying bill

The Labour peer trying to steer the assisted suicide bill through the House of Lords has rejected attempts to remove eligibility from disabled people who are homeless, in prison or pregnant, and from many young disabled people.

Lord Falconer rejected amendments – several of which were suggested by disabled crossbench peer Baroness [Tanni] Grey-Thompson – that would have prevented disabled people in all four groups from being eligible for an assisted death.

The amendments were dismissed by Falconer as the Lords again debated some of more than 1,150 amendments proposed to the terminally ill adults (end of life) bill, which would offer the possibility of an assisted suicide to terminally-ill people in England and Wales who have been found to have less than six months to live and are over the age of 18.

Baroness Grey-Thompson had proposed amendments that would have protected those impacted by imprisonment, pregnancy and homelessness, and which she said she had suggested to “invite debate” on how these groups could be affected by legalising assisted dying.

On homelessness, she said: “We have to understand the impact that homelessness might have on people’s decision-making abilities.”

Baroness [Sue] Gray, former chief of staff to prime minister Sir Keir Starmer, told fellow peers: “Not only are people who are homeless by definition cut off from and invisible to key public services, including healthcare, but they often have complex further needs, such as abusive relationships, poor mental health and addiction.

How can we imagine that they will not be at risk of being offered an assisted death simply because those needs are judged too hard to meet, or because someone else has decided that their lives are not worthwhile?”

She said that had happened in Canada, where “the parameters for an assisted death were widened soon after the law was passed, and we duly saw examples of individuals dying by Medicaid explicitly because they were affected by isolation and homelessness”.

She said: “While I have other reservations about the bill and the pressuring effect it will have on disadvantaged groups, I am especially concerned that we are looking to introduce it at a time when the cost of living means that homelessness has reached critical levels throughout the UK.”

She added: “It is wholly impossible to justify leaving out safeguards that would prevent homeless people being coerced into an assisted death, whether through abuse, absence of choice or simply their despair.”

Baroness [Nuala] O’Loan, the human rights expert and former police ombudsman for Northern Ireland, told peers on Friday (12 December): “Solutions to things such as poverty and homelessness should not involve offering people assisted death rather than a home, possibly in sheltered accommodation, in which they may be able to flourish.”

On pregnancy, Baroness Grey-Thompson said: “A woman may or may not know that she is pregnant. She may be more or less than 24 weeks pregnant.

A woman may prefer to terminate the pregnancy prior to requesting assisted death, or she may not; she may just choose to carry on to end her life.

But having information available is a really important part of making an informed decision.”

She said states and countries around the world that had legalised assisted dying had come up with varied ways of dealing with the issue, which she said were “really important things that we need to have much more clarity on”.

On prisoners, Baroness Grey-Thompson said they “can be very vulnerable and prone to suicide” and can also “experience a lack of care and palliative care”.

Baroness [Claire] Fox, the former Brexit Party MEP, said prisoners should be omitted from any bill.

She said: “Letting prisoners have access to and be eligible for assisted death would be very close to reckless state abandonment of those prisoners to something very deeply dark.”

The state “effectively putting a prisoner to death via lethal drugs” was “far too like capital punishment, which I have long opposed and do not approve of”, she said.

Lord [Kevin] Shinkwin, the disabled Conservative peer, supported an amendment that would have prevented any young disabled person with an education, health and care plan (EHCP) from being eligible for an assisted death.

He said it would protect “vulnerable young adults who deserve and need extra protection on account of their disability” and that such protection was “neither patronising nor discriminatory”.

But Lord Falconer dismissed all four sets of amendments, around homeless people, prisoners, those who are pregnant, and young disabled people with EHCPs.

On terminally-ill people who were homeless, he said he was “very strongly against that right to an assisted death being taken away from them, but the safeguards will apply, to be sure that it is their clear and settled view and not the product of coercion”.

He said he believed prisoners “should be entitled to exactly the same position as everybody else” because the safeguards in the bill were “sufficient” and it would “be wrong to exclude prisoners from this right”.

On pregnancy, he said that “safeguards can adequately deal with this, and I am not in favour of any change in relation to it”.

And he said he was also “very against” excluding anyone with an EHCP being excluded from the bill’s provisions, again because of the safeguards already within the bill.

He pointed to comments he made the previous week, in which he said it was right to consider whether “enhanced protection” was needed for all those under 25 – which will include those with an EHCP – although he believed 18 was the right minimum age for an assisted death.

The issues around further protection for prisoners, homeless people, disabled young people and pregnancy are likely to be discussed again at the bill’s report stage.

Peers have now dealt with only 10 of more than 80 groups they will need to debate to finish the Lords committee stage of the bill, with all the bill’s remaining stages needing to be completed by the time parliament’s current session ends, probably in May, for it to become law.

18 December 2025

 

 

Government’s housing agency fails to mention accessible homes in new five-year strategy

The government’s housing and regeneration agency has failed to explain why its new five-year strategy fails to mention disabled people, or the need to address the accessible housing crisis.

Homes England published its five-year strategic plan last week.

It came just days before the government launched a consultation on changes to the National Planning Policy Framework, which is set to slash targets for accessible new homes that were promised by the last Conservative government (see separate story).

The Homes England document brags of how the agency has “established itself as an essential delivery partner in tackling the nation’s housing challenges”.

And it says it will need to “radically increase” its activity so it can support the sector in delivering the government’s target of 1.5 million new homes by the end of the parliament.

The strategic plan also describes the agency’s responsibility to drive innovation in “modern construction methods”, design, environmental sustainability and building safety.

But none of its six objectives mention the urgent need for all new homes to be built to strict accessibility standards, or for more homes to be built that are suitable for wheelchair-users.

Not one of the 15 key performance indicators (KPIs) by which it will track its own performance mentions accessible housing.

Across the document’s 35 pages, there is not a single mention of disabled people or disability, or of accessible housing.

Since its election victory in July 2024, the Labour government has repeatedly failed to take action on the accessible housing crisis, despite promising soon after the election that it would do so “shortly”.

In October 2025, housing secretary Steve Reed failed to include any pledge on accessibility in a major announcement on delivering a series of new towns across England.

A subsequent report on new towns, commissioned by the government, also failed to mention disabled people, with the 135-page report containing only two brief references to the need for accessibility, either of the new homes themselves or the built environment surrounding them, and including no mention of working-age disabled people.

This week, more than 17 months after the general election, the government finally published its plans, which threaten to slash accessible housing targets promised by the Conservative government.

These plans saw the government accused of a “truly horrifying” betrayal of disabled people and of ignoring the accessible housing crisis.

Disabled campaigners and allies wanted the government to strengthen guidance so all new homes must be built to the strict M4(2)* “accessible and adaptable” standard, and a minimum of 10 per cent of new homes meet the M4(3) standard, which means they would be suitable for a wheelchair-user.

But the government wants to cut the percentage of new homes built to M4(2) standard from 100 per cent – under the Tory plans – to just 40 per cent, with no targets for wheelchair-accessible homes.

Mariella Hill, policy and campaigns officer for Inclusion London, which has campaigned for action on accessible housing, said: “Homes England’s failure to mention disabled people or accessible housing in its strategy is a serious omission.

Only around 13 per cent of homes in England have basic accessibility features, meaning most disabled people cannot even visit, let alone live, in the existing mainstream housing stock.

Government strategies that ignore this crisis will fund and deliver homes that many of the people who need them most simply cannot use.

In the meantime, disabled people are trapped in homes that deny their right to an independent life, where they cannot access basic facilities or carry out everyday tasks like showering or cooking.

The government and its housing agency must focus not just on building more homes, but on building the right kind of homes for the people who urgently need them – accessible social rent homes.”

Homes England refused to explain why it had failed to mention both disabled people and accessible housing in its five-year strategy, but it said in a statement: “As the government’s housing and regeneration agency, our focus is on delivering the high-quality, safe and sustainable homes England needs in vibrant, inclusive communities.

It is important to us that as many people as possible have access to quality homes that are fit for purpose.

Accessible housing provision is determined by local planning policy, as set out in the National Planning Policy Framework.

Adhering to local planning policy is one of the conditions that all housebuilders must meet when receiving funding from us.”

The Ministry of Housing, Communities and Local Government had failed to comment on the Homes England failure by 11am today (Thursday).

*Homes built to the M4(2) standard have 16 accessible or adaptable features, similar to the Lifetime Homes standard developed in the early 1990s to make homes more easily adaptable for lifetime use, while M4(3) homes are those that are supposed to be fully wheelchair-accessible

18 December 2025

 

 

Watchdog’s league table on rail passenger assistance is ‘misleading’, say accessible transport campaigners

Disabled campaigners have dismissed a watchdog’s “misleading” new league table that claims to show the best performers in assisting disabled rail passengers.

The “benchmarking” report by the Office of Rail and Road (ORR) claims that two of the best-performing train companies for passenger assistance are Govia Thameslink Railway (GTR) and Southeastern.

But GTR and Southeastern are the train companies that have gone furthest in running driver-only operated trains to unstaffed stations, often replacing onboard and station staff with roving “mobile” staffing units, say campaigners.

Three years ago, GTR admitted in a leaked document that it had been breaching access laws for more than 10 years across large parts of its rail network.

Southeastern and GTR were also highlighted three years ago by The Association of British Commuters (ABC) as key offenders for denying disabled passengers the ability to “turn up and go” (TUAG) without booking assistance in advance.

ORR claims Southeastern has the best score for reliability (based on the proportion of disabled passengers who received none of the assistance they had booked in advance) over the last three years.

It ranks the top five providers as Southeastern (eight per cent said they received none of the assistance they had booked), LNER (eight per cent), Network Rail (eight per cent), Avanti West Coast (nine per cent) and GTR (10 per cent).

The worst performer is Northern Trains, with 16 per cent, with South Western Railway (15 per cent) and West Midlands Trains (14 per cent) only slightly better.

Five of the top nine performers in the ORR league table – Southeastern, GTR, Great Western Railway, Chiltern Railways and Greater Anglia – were found by ABC research in 2022 to be discriminating against disabled passengers by regularly denying TUAG services to those who need boarding assistance.

Emily Sullivan, a disabled researcher in equality and human rights and co-founder of ABC, said she was “sceptical” about whether the ORR figures provided an accurate picture of equality and discrimination when it came to passenger assistance.

She said Southeastern and GTR were “the same two operators where driver-only operation and ‘mobile staffing’ are most progressed, after years of cuts to onboard and station staff”.

And she said that ranking train operators by their performance on pre-booked assistance was “a gift for potential train operator manipulation of the system, which could even make the worst for TUAG appear to be the ‘best’ for booked assistance.

The use of a league table is also misleading due to the very different types of networks and patchwork of different staffing policies.

The standards for data collection are themselves discriminatory and every time they publish data including only ‘booked assistance’ they are by implication telling disabled people they do not have the equal right to travel.”

Another leading disabled campaigner, Christiane Link, a consultant and adviser on accessibility, also criticised the ORR figures.

She said: “I don’t think these statistics are sound. They focus too much on booked assists and ask people after months about their travel experience.

I think it’s overdue that the ORR focus more on the provision of Turn Up and Go, not just booked assists, and ask people directly after travelling about their experience, not months later.”

It is the first time ORR has attempted to rank rail passenger assistance.

The regulator particularly shamed South Western Railway (SWR), West Midlands Trains (WMT) and Northern Trains for their poor performance.

It said SWR and WMT “showed a pattern of sustained poor performance in delivering reliable passenger assistance” and have been asked to submit “detailed action plans” for improvement.

Despite already having been told to implement an improvement plan following concerns raised last year, Northern told ORR four months ago that about 800 passenger-facing staff had not completed disability awareness training.

ORR has now launched a formal investigation into this failing by Northern.

The regulator plans to expand its benchmarking framework next year to include new data sources and measures such as post-assistance passenger confidence, staff training compliance, TUAG reliability, and feedback on the Passenger Assist mobile phone app.

18 December 2025

 

 

Minister rejects pleas from disabled peers for national wheelchair and equipment strategy

The government has dismissed pleas by disabled peers for ministers to introduce a national strategy to address the “untenable” state of wheelchair and community equipment services.

A trio of disabled peers told ministers in the House of Lords how the current state of services was preventing the removal of key barriers to independent living.

But a Labour minister made it clear the government had no plans to draw up a national strategy for wheelchair provision, while also appearing to rule out a national strategy on community equipment.

Lord [Kevin] Shinkwin, a Conservative peer, and himself a wheelchair-user, highlighted the “delays in hospital discharge, loss of independence, social isolation, with the inevitable impact on mental health, and, of course, avoidable deterioration in health and well-being” that were caused by the flaws in the system.

He said that high-quality wheelchair provision provides “high value” to both wheelchair-users and wider society, and the current system “does not make economic sense”.

Baroness [Sal] Brinton, another wheelchair-user and a senior Liberal Democrat peer, called for a national strategy “that serves the needs of disabled people and their families, while offering value for money to commissioners and the public purse.

What we have at the moment is the exact opposite.”

Two months ago, an inquiry by the all-party parliamentary group for access to disability equipment found an “inconsistent” community equipment system that was in crisis due to fragmentation, underinvestment, and a lack of leadership.

Baroness Brinton, a member of the all-party group, said the “forensically detailed” report showed how “systematic barriers” prevented millions of disabled children and adults across the UK from accessing the equipment they need to live “safely and independently”.

Another disabled peer and wheelchair-user, Lord Blencathra – former Conservative Home Office minister David Maclean – criticised the postcode lottery in services, with delays in assessment and delivery that can leave disabled people without mobility support for months.

He said many of the wheelchairs provided are “heavy, cumbersome or not tailored to users’ daily lives, forcing some to buy their own”, while assessments “often fail to consider lifestyle needs, reducing independence and social participation”.

He told fellow peers: “NHS England acknowledges variation in service quality and outcomes.

Putting it simply, NHS wheelchairs are dirt cheap and for that you get big, heavy, ugly things which appal young people who may need to use them.”

He also called for a national NHS wheelchair services strategy.

The three disabled peers were responding to a debate secured by former Labour health minister Lord Hunt, who said the provision of wheelchairs and community equipment for disabled people was “a disgrace” and “absolutely woeful”.

Lord Hunt, a patron of the Wheelchair Alliance, said wheelchair services were “inconsistent and under-resourced”, with “a system that prioritises lowest initial cost over long-term value and reliability.

There are no consistent national standards, no independent regulation and few clear paths for users seeking repairs, reporting faults or making complaints.

As a result, many disabled people experience long waiting-times, delays in hospital discharge, loss of independence, social isolation and, tragically, avoidable deterioration in health and well-being.”

He said it was “the same dismal picture” with community equipment, which includes hoists, grab rails and medical beds. 

The sharing of responsibility between local authorities and integrated care boards (ICBs) leads to “fragmented and inconsistent delivery”, he said.

And he said that community equipment was “the silent crisis at the root of the challenges we face in providing community and social care”.

Lord Hunt said he was “absolutely convinced that we need a national strategy, underpinned by the appointment of a national clinical director accountable to ministers and backed up by strong performance management”.

But the junior health minister, Baroness Merron, said there were “no plans to publish a national strategy for wheelchair provision”.

She said ICBs were responsible for wheelchair services “based on the needs of their local population”, and NHS England had developed “policy guidance and legislation to support ICBs” to ensure they commission “effective, efficient and personalised wheelchair services”, while a wheelchair quality framework was published in April.

She said local authorities had a statutory duty to provide community equipment, and the government’s 10 Year Health Plan for England provides them with the “freedom and autonomy” to do so.

She said: “In this regard, it is important that we are giving systems a greater degree of control and flexibility over how funding is deployed to get this done.”

She said the pandemic had contributed to a backlog of referrals to wheelchair services, but all ICBs and community health services now have a duty to “actively manage and reduce waits over 18 weeks, and to develop a plan to eliminate all 52-week waits”.

She told fellow peers: “The approach of the 10-year health plan identifies disabled people as a priority group.

Our neighbourhood health service will support disabled people, and the 10-year plan focuses on choice and control over their care.

I have heard what noble Lords have said, and I will take that back.

I hope the steps we have made will make a difference, but I recognise that there is so much more to do.”

18 December 2025

 

 

Other disability-related stories covered by mainstream media this week

Austerity cuts to non-health related benefits led to a rise in people claiming disability benefits, according to a thinktank. The Institute for Fiscal Studies says cuts to housing support for private renters in 2011, for example, directly reduced incomes of families affected by £667-per-year and increased the number of people receiving disability benefits: https://www.mirror.co.uk/news/politics/austerity-cuts-likely-caused-surge-36387370

The government is to invest £3 billion in creating bespoke places within local state schools for pupils with special educational needs and disabilities (SEND). The plan, announced by Bridget Phillipson, the education secretary, to create up to 60,000 places within mainstream schools, will be partly funded by the suspension of a group of planned free schools, saving an estimated £600 million in the coming years: https://www.theguardian.com/education/2025/dec/11/labour-funding-children-send-local-school-spaces

A major review into rising inactivity among Britain’s young people has been launched by former health secretary Alan Milburn, with a promise not to shy away from “uncomfortable truths” or “radical” solutions. A panel of experts will help draw up recommendations. Milburn has also launched a call for evidence to help shape the investigation, saying a “coalition of the concerned” must mobilise to save a generation not earning or learning: https://www.theguardian.com/society/2025/dec/16/alan-milburn-launches-major-uk-review-into-rising-inactivity-among-young-people (this review was announced last month and will focus only on sick and disabled young people: https://www.disabilitynewsservice.com/new-investigation-on-neets-will-only-target-young-disabled-people-dwp-document-shows/)

The Home Office has failed to protect vulnerable migrants it locks up in detention centres, a high court judge has ruled. Mrs Justice Jefford found an unlawful failure of the systems designed to protect immigration detainees from inhuman and degrading treatment under article three of the European Convention on Human Rights and that these failings had been going on for years. The judgment could affect thousands of people who are at risk: https://www.theguardian.com/uk-news/2025/dec/15/home-office-fails-to-protect-vulnerable-migrants-high-court-judge-rules

The Department for Work and Pensions needs a management and cultural overhaul if it is to restore public trust after the benefits scandal which left hundreds of thousands of unpaid carers in debt, a key government adviser has warned. Professor Liz Sayce led a scathing review of the carer’s allowance scandal, which found the DWP system and leadership failures were responsible for carers unknowingly running up huge debts, some of which resulted in serious mental distress and, possibly, criminal convictions for fraud: https://www.theguardian.com/society/2025/dec/14/government-carers-allowance-scandal-liz-sayce-civil-service

18 December 2025

 

News provided by John Pring at www.disabilitynewsservice.com

 

Dec 112025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

McFadden brags about cutting disability benefits, just as his own strategy warns of ‘deep material poverty’ 1

Minister misleads MPs as mystery deepens over new £2 billion cuts to disability benefits 3

Duty to disabled passengers in railways bill is ‘too vague’ and must be strengthened, MPs are told 5

Peers urged to ‘err on the side of caution’ and raise minimum age limit in assisted suicide bill 7

Scottish and UK governments are failing to uphold disability rights, says watchdog 9

Thousands of disabled people in one county should benefit from care charging legal case victory 11

Other disability-related stories covered by mainstream media this week 14

 

 

McFadden brags about cutting disability benefits, just as his own strategy warns of ‘deep material poverty’

The work and pensions secretary has bragged about cutting disabled people’s support, three days after launching a child poverty strategy which warned that more than a million children in families where someone was disabled were living in “deep material poverty”.

Pat McFadden told the BBC’s Laura Kuenssberg on Sunday that his government had halved the health element for new claimants of universal credit because “under the Tory system we inherited, people got double the money for declaring themselves unfit for work”.

And he said he did not rule out further cuts to benefits.

But his comments on Sunday morning came three days after his Department for Work and Pensions (DWP), alongside the Department for Education and the prime minister, had launched Labour’s new Child Poverty Strategy.

The strategy’s evidence pack states that “single parent families and families where someone has a disability (are) particularly overrepresented in deep material poverty”.

In 2023-24, according to the strategy, there were 1.3 million children in a family where someone is disabled (22 per cent of those children) who were in “deep material poverty”.

The evidence pack points to disabled people’s “high additional living expenses such as transport, home adaptations, or specialist equipment”, while “caring responsibilities or accessibility issues can mean that it is difficult or not possible to find work that suits [those families’] requirements”.

The report itself says that “deep material poverty is especially pronounced for children in single parent families and children in families with disability”.

And it adds: “There are parents who may not be able to work, for example due to severe disability, or who fall on difficult times outside of their control.

It is not right that we have a system where children are penalised through no fault of their own.”

Three days later, McFadden boasted to Kuenssberg about doing exactly that by slashing the health element of universal credit for most new claimants by about £50 a week from next April.

Announcing the Child Poverty Strategy, the government said it would lift about 550,000 children out of poverty by 2030 and tackle the “root causes of poverty by cutting the cost of essentials, boosting family incomes, and improving local services”.

Measures include making it easier for new parents who receive universal credit to return to work by extending eligibility for upfront childcare costs to those returning from parental leave; ending the unlawful placement of families in bed and breakfasts beyond the six-week limit; introducing a new legal duty for councils to notify schools, health visitors, and GPs when a child is placed in temporary accommodation; and taking measures to help families buy more affordable infant formula.

The government had already announced at last month’s budget that it was removing the universal credit two-child limit that was imposed by the last government in 2017.

Asked by Disability News Service (DNS) to respond to McFadden’s comments, and to say whether he would apologise for his misleading statement about claimants “declaring themselves unfit for work” – when there is a lengthy and harsh “fitness for work” assessment process – a government spokesperson said: “We are reforming the broken system we inherited by tackling perverse incentives around sickness claims, increasing face-to-face assessments, and investing £1 billion to help sick and disabled people into good, secure jobs.

We want a welfare state that supports those who need it while helping people into work and delivering fairness to the taxpayer.

That’s why we’ve launched the Timms Review to make PIP fair and fit for the future, while Alan Milburn’s investigation into young people and inactivity will help us tackle the key barriers behind youth unemployment.

Thanks to our decision to scrap the two-child limit and introduce a wider package of measures for families we will lift 550,000 children out of poverty by the end of this parliament.”

This week, McFadden also released a written statement updating MPs on his department’s plans to improve its record on safeguarding benefit claimants.

It details a series of actions taken since a report on “safeguarding vulnerable claimants” was published by the Commons work and pensions committee in May.

Much of the statement had already been included in a letter he wrote to the committee on 18 November, on which he was questioned by the committee the following day.

McFadden admitted in this week’s statement that an assessment of DWP’s safeguarding approach had found “some good practice, but also variation in awareness, skills, and accountability”.

He said the first year of a new five-year DWP strategy would focus on “raising staff awareness of safeguarding responsibilities, building capability through training, and strengthening relationships with local authorities, health services, and voluntary organisations”.

He will publish a DWP safeguarding policy framework next year, setting out the department’s “comprehensive approach”.

McFadden said DWP “remains open to adopting a statutory duty” to safeguard claimants, one of the key recommendations in the committee’s report.

But there was no mention in his statement of the committee’s call for a new independent body to investigate cases where claimants have been seriously harmed by DWP’s actions.

DNS has previously shown how senior civil servants and ministers spent more than a decade covering up evidence that linked DWP’s actions with hundreds, and probably thousands, of deaths of disabled people who relied on the social security system*.

Documents secured through freedom of information requests, inquest reports, and investigations by bereaved family members show how DWP destroyed incriminating records, failed to share crucial evidence with its own independent reviewers and grieving relatives, and even lied to a coroner.

*The Department: How a Violent Government Bureaucracy Killed Hundreds and Hid the Evidence, DNS editor John Pring’s book on the years of deaths linked to DWP’s actions and failings, is published by Pluto Press

11 December 2025

 

 

Minister misleads MPs as mystery deepens over new £2 billion cuts to disability benefits

The disability minister has refused to apologise after misleading MPs about concerns over nearly £2 billion in new cuts to disability benefits.

The Department for Work and Pensions (DWP) has added to these transparency concerns by itself providing misleading information about the cuts, and again refusing to clarify how many disabled claimants will be affected, and how much they will lose.

Two weeks on from the budget, it is still unclear how DWP and its ministers intend to cut £85 million next year, £310 million in 2027-28, £520 million in 2028-29, £580 million in 2029-30 and £455 million in 2030-31, from spending on disability benefits.

Treasury documents, published on the day of the budget, show the cuts are connected with increasing DWP’s “capacity” to carry out reassessments of claimants through the work capability assessment (WCA), increasing the number of face-to-face benefit assessments, and “extending Personal Independence Payment [PIP] award reviews periods”.

The budget costings document says these changes will “ensure people receive the right health or disability benefit and the system is sustainable”.

But it is unclear from budget documents exactly how these changes will cut spending on disability benefits, and how any cuts will be split between disabled claimants of PIP and universal credit.

Last week, Disability News Service (DNS) reported the government’s refusal to explain how it will cut spending through these measures, despite repeated requests for clarity.

Following the DNS story, the Liberal Democrat work and pensions spokesperson, Steve Darling, asked in Commons work and pensions questions for an explanation of how disabled people would be impacted by the cuts, which he said had been “quietly sneaked into the budget the other week”.

DNS has been seeking clarification on the cuts from DWP and the Treasury since 26 November, the day of the budget.

And on 1 December, DNS copied in Sir Stephen Timms – the minister for social security and disability – to an email to DWP’s press office, highlighting concerns that he was breaching the post-election pledge he made 14 months ago to improve transparency within DWP.

The email asked for an explanation of how the £1.95 billion in cuts would be achieved.

But responding in parliament on Monday (8 December) to Darling’s question about the DNS report, Sir Stephen told him: “I do not know what the honourable gentleman is referring to.

I will happily look into the report he has spoken of.”

When DNS then asked if Sir Stephen would apologise for misleading Darling and fellow MPs, the DWP press office itself produced a misleading statement.

It said: “The £1.9 billion in welfare savings were announced by the chancellor at the budget and set out in full in the budget document.

This will be delivered through measures such as tightening eligibility for overseas pension accrual, reforming Motability, and reducing duplication in benefit administration.”

This is not correct.

The budget costings document makes no mention of the Motability tax changes or pensions in its brief section on the £1.95 billion cuts to “health and disability benefits”.

Instead, the document refers to “operational improvements to health assessments”, including the WCA, “changing the frequency of Personal Independence Payment (PIP) award reviews”, and plans to “increase the number of face-to-face health assessments conducted across both PIP and the WCA”.

Asked why it had provided further misleading information on top of Sir Stephen’s misleading answer to Darling, DWP had not responded by 11.30am today (Thursday).

Meanwhile, Liberal Democrat MP John Milne asked Sir Stephen on Monday if he agreed that the widely-ridiculed claim by Tory shadow work and pensions secretary Helen Whately that “millions are getting benefits for anxiety or ADHD along with a free Motability car” was “clearly nonsense” and “one of the least accurate claims ever made by a politician”.

Sir Stephen said he agreed, although he said that “choosing the most misleading claim is a tough contest”.

Another minister was asked by Liberal Democrat MP Caroline Voaden why one of her constituents in South Devon had spent “nearly two weeks calling the DWP every day to find out why his employment and support allowance had been stopped without warning”, but “each time he called, he waited for over an hour, only for the line to be cut off with no reply”.

DWP minister Andrew Western said such service was “unacceptable” and he promised to “look into it on her behalf”.

The SNP’s Chris Law asked Sir Stephen what action he was taking after nearly 1,000 new and existing claimants had a work capability assessment cancelled by private sector contractor Maximus since 9 September 2024.

He said a whistleblower had told him cancellations were “a regular occurrence, largely because of IT services provided by the DWP”, with one of his Dundee constituents having their WCA cancelled five times.

Sir Stephen said he would be “happy to look into the details”.

11 December 2025

 

 

Duty to disabled passengers in railways bill is ‘too vague’ and must be strengthened, MPs are told

A statutory duty in the new railways bill to ensure ministers and public bodies promote the needs of disabled passengers is “too vague” and must be strengthened as the legislation passes through parliament, MPs were told yesterday (Wednesday).

The transport select committee was hearing evidence from experts a day after the government’s railways bill passed its second reading in the House of Commons.

Emma Vogelmann, co-chief executive of the disabled people’s organisation Transport for All (TfA), welcomed the inclusion in the bill of a statutory duty that will force those in charge of the railways to take account of “the needs of disabled persons”.

Labour had previously dropped plans to ensure there was a statutory duty on accessibility in the bill.

But Vogelmann told MPs on the committee that the duty’s wording was “very vague” and “too unenforceable” and “doesn’t guarantee improvements for disabled passengers”, despite the “desperate change that is needed in terms of accessibility”.

She said TfA wanted the bill strengthened so there was a duty to “actively and continuously improve accessibility across the rail network” and ensure there are “measurable outcomes” that show what progress is being made every year.

The bill currently says that ministers, Great British Railways (GBR) and the Office of Rail and Road will have a duty to carry out their roles – alongside other statutory duties – in “the manner best calculated to promote the interests of users and potential users of railway passenger services including, in particular, the needs of disabled persons”.

But Vogelmann told the MPs the legislation should be strengthened to “make sure that accessibility is enforceable and that it is an over-riding, consistent priority for Great British Railways as opposed to at the moment where we feel it is potentially not given enough enforcement power and it is subject to political will in some instances”.

She said the current wording of the duty was “almost purposefully vague”, which risked perpetuating the “tick box” culture and lack of meaningful action on accessibility across the rail system.

She added: “The lack of enforceable standards, the lack of enforceable actions, is really why disabled people feel excluded from the rail network at the moment and why many of us face so many barriers.”

The previous day, a string of MPs had highlighted the need for meaningful improvements to accessibility on the railways, during the bill’s second reading.

The bill will create GBR, a new publicly-owned company that will bring together management of passenger services and rail infrastructure.

The government also plans to use the bill to introduce a stronger passenger watchdog and to simplify fares and tickets.

Transport secretary Heidi Alexander told MPs the bill would “sweep away the fragmentation and dysfunction that have plagued the railway for too long and will bring the 17 organisations involved in running the railway together into one public body, Great British Railways, which is the directing mind that this industry has long called for”.

Many MPs in the debate called for improvements to the government’s Access for All programme, which funds access improvements at rail stations.

Conservative MP Mark Pritchard said “more needs to be done on step-free access” because there was “currently very little in the bill that suggests that more will be done, particularly for rural stations such as Cosford, Shifnal or Albrighton in Shropshire.

If it cannot be done at every station, and there is no money for that, there at least needs to be step-free access and improved disability access somewhere along inter-county railway lines.”

Adam Dance, the Liberal Democrat MP for Yeovil, said: “Too many rural railway stations are not accessible for disabled people.

Without support staff, constituents in Yeovil have had serious accidents at railway stations.

Although the government’s accessibility priorities, which we are debating today, are welcome, does my honourable friend agree that we need a strengthened Access for All programme?”

Keir Mather, a junior transport minister, told MPs he had “heard the calls from colleagues across the house about the importance of the Access for All scheme”, and that the government was continuing to fund the scheme.

Disability News Service reported last month that the government’s new “roadmap to an accessible railway” – covering England, Scotland and Wales – appeared to suggest a reduction in real spending on the Access for All programme, with the roadmap promising a future commitment to only spend “up to” £70 million a year.

Conservative and Liberal Democrat MPs voted against the bill receiving a second reading, but it was easily passed by 329 votes in favour to 173 votes against.

11 December 2025

 

 

Peers urged to ‘err on the side of caution’ and raise minimum age limit in assisted suicide bill

Peers have been urged to “err on the side of caution” and raise the minimum age limit for an assisted death from 18 to 25, as part of a controversial bill that aims to legalise the practice.

As the House of Lords again debated some of the hundreds of amendments proposed to the terminally ill adults (end of life) bill, peers were told that a minimum age of 18 was “contrary to the mounting evidence of when the brain is fully formed”.

Labour peer Baroness [Luciana] Berger told fellow peers last Friday (5 December) that social media had become “a powerful driver of harm” and that research showed young people in vulnerable situations were “disproportionately exposed to posts that glamorise suicide or present suicidal thoughts as normal, appealing or even fashionable”.

She said she was “haunted” by the words of a young disabled woman who had said in evidence at an earlier stage of the bill: “I’m in care. I’ve got disabilities. The government will pay for me to die under this bill, but it won’t pay for me to live.”

Baroness Berger reminded peers that the children’s commissioner, Dame Rachel de Souza, had said she would “far rather that we erred on the side of caution, protecting those who have had terrible lives, terrible experiences, have been abused, have had their families turn them out, protecting those [with] extreme mental illness, protecting those with special educational needs and disabilities, protecting anorexic children who are heading into adulthood”.

Baroness Berger said: “I am clear that we must continue to say to children and young people: ‘Yes, your life matters. Even if it will be a short life, it matters.’”

Labour peer Lord Falconer, who is sponsoring the bill in the Lords, said he believed 18 was still the right age, but that “maybe the answer is some assurance that there is a more intense assessment for people aged between 18 and 25”.

The issue is likely to be debated again at the bill’s report stage.

Meanwhile, the disabled Conservative peer Lord [Kevin] Shinkwin warned of a further attempt to “weaken” the bill’s protections after Lord Falconer proposed an amendment that would affect the adjustments that must be made for those with language and literacy barriers, including people with learning difficulties.

The bill currently states that doctors assessing someone for an assisted suicide “must first ensure the provision of adjustments for language and literacy barriers”.

But Lord Falconer suggested in his amendment that doctors should instead “take all reasonable steps to ensure… effective communication”.

Lord Shinkwin said he failed to see how the change would “do anything other than weaken this bill” and would “fundamentally weaken one of the bill’s safeguards, such as they are”.

He said the bill “makes a mockery” of the Labour party’s “fine, noble and honourable tradition” of “advancing disability rights”.

He said: “It shreds a tradition that deserves to be preserved, not sacrificed in such a profoundly cynical and misleading way as to make out, as the amendment does, that this is somehow only a drafting change.

There is a reason why not one organisation of or for disabled people supports the bill; they know that disabled people need the bill like a hole in the head.

I marvel that the noble and learned lord does not seem to realise that the bill is dangerous enough already without the removal of provisions that would at least acknowledge the obligation to first ensure that communication adjustments were made; for example, for people with learning disabilities or users of British Sign Language.”

There was also criticism of Lord Falconer’s proposed amendment by Baroness [Nuala] O’Loan, the human rights expert and former police ombudsman for Northern Ireland, who said his amendment would introduce “a far less specific test, and consideration must be given to setting standards for the level of communication which is required”.

She asked Lord Falconer whether his amendment would “inadvertently disadvantage those with specific learning difficulties and similar vulnerable groups”.

Lord Falconer insisted that the amendment was “not a watering down at all” but he said he would discuss Lord Shinkwin’s concerns with him before the next stage of the bill, although “at the moment, it looks to me to offer just as good, if not better, protection”.

Peers have now dealt with only six groups of amendments, out of the – currently – 84 they will need to get through to move onto the next stage of the bill in the Lords, with further debate planned tomorrow (Friday).

The Hansard Society said this week that if the Lords continued at its current pace it would “far fall short of what is needed to complete the remaining groups in time”, with parliament’s current session due to end in the spring, probably in May.

11 December 2025

 

 

Scottish and UK governments are failing to uphold disability rights, says watchdog

The Scottish and UK governments are both failing to uphold the rights of disabled people in key areas, according to an annual report by Scotland’s human rights watchdog.

Two of the 10 areas of “urgent concern” highlighted by the Scottish Human Rights Commission in its State of the Nation 2025 report focus on continued breaches of disabled people’s rights.

The report – presented this week to the Scottish parliament – says the support for people with learning difficulties and autistic people to live in their own homes is “inadequate”, with many forced to live in accommodation that is “institutional, inappropriate, and not in the area that they would call home”.

The Scottish government has failed to put in place the necessary community-based support to deliver the right to independent living, it says.

It also points to the lack of “transparency and monitoring” to ensure action in this area meets human rights requirements.

The report also warns that disability benefits fail to provide a “decent standard of living” and are at risk of being cut, even though disabled people are more likely to live in poverty than people living in households where no-one is disabled.

Disabled people and disabled people’s organisations told the commission last year that social security payments that are meant to cover additional disability-related costs for daily living “are in fact being used to cover basic household expenses such as food”.

Disabled people are “going without enough income to meet costs” and facing rising debt, and are often unable to pay for fuel, including the cost of charging their medical equipment.

The report adds: “Despite these impossible choices, UK politicians have been actively considering further cuts and changes to disability support.”

And, it says, some of the proposed policy choices “actively undermine the rights of disabled people”.

It particularly highlights the £50-a-week cut to the health element of universal credit for most new claimants, from next April, which is happening at a time when disabled people “are struggling to make ends meet”.

The cut, it says, “is particularly inconsistent” with the UK government’s obligation to realise rights progressively under the UN International Covenant on Economic, Social and Cultural Rights.

Despite the UK government failing to rule out future cuts to spending on personal independence payment (PIP), the Scottish government – which is now responsible for its own version of the extra costs benefit, adult disability payment (ADP) – has “indicated that it does not intend to change ADP to reduce spending”, the report says.

But it says that the Scottish government has still not demonstrated that it has taken a human rights approach to budgeting “that both aims to ensure there is no worsening of disability-related poverty” and, where there is such poverty, to reduce it.

It adds: “Devolution is no excuse for failing to respect, protect and fulfil human rights.”

Derek, a disabled person interviewed for the report, says: “It feels like a lot of the human rights are being chipped away.

We keep working away to make sure disabled people’s voices are being heard, but sometimes it can be disheartening, and I feel like I don’t have the energy.”

He has been supported by Glasgow Disability Alliance, and he told the commission: “My confidence came, not as an individual but from being involved in and as an ally to a movement.

The barriers affect so many areas of life. It took me 20 years of fighting my local housing authority to get information in an accessible format, never mind accessible housing.”

Among the report’s calls for action from the Scottish government, it says the necessary housing and social care support must be in place to ensure a right to independent living.

And it says ADP and “other forms of social security and financial support to cover the costs of disability” must “meet those specific needs”, in line with the UN Convention on the Rights of Persons with Disabilities.

Other areas of concern highlighted by the report include healthcare provision; the housing crisis that is denying people across Scotland access to “safe, affordable and adequate housing”; high levels of food insecurity and unaffordability; and changes to the UK social security system that “disadvantage the most marginalised people and families”.

Professor Angela O’Hagan, chair of the Scottish Human Rights Commission, said: “People are struggling to heat their homes, feed their families, or access basic services, and this is fuelling real frustration and tension across our communities.

At times like these, human rights matter more than ever. They provide the framework that requires public bodies to act fairly, protect people’s dignity, and direct resources to those who need them most.

The most effective way to rebuild trust and reduce anger is to make these rights a lived reality for everyone.”

She added: “This report is a clear call to action.

We urge the Scottish parliament and all public bodies to use its findings to make better decisions about legislation, budgeting and service delivery.

Human rights set the minimum standards that people in Scotland should be able to depend on, especially during tough times.”

Meanwhile, the Equality and Human Rights Commission (EHRC) has warned the UK government it is failing to uphold “fundamental” human rights, including access to healthcare for disabled people, the right to peaceful protest, and freedom from exploitation for migrant workers.  

In a new report, published on Human Rights Day, the commission assessed progress on some of the 302 recommendations (PDF) made by other UN member states at the UK’s Universal Periodic Review in November 2022.

The EHRC report says successive government disability strategies and action plans have failed to focus on improving health services for disabled people, despite data showing disabled people in England face greater barriers to healthcare and are more often on NHS hospital waiting-lists than non-disabled people.  

11 December 2025

 

 

Thousands of disabled people in one county should benefit from care charging legal case victory

Hundreds, or even thousands, of service-users in Kent should benefit from a legal case taken by a disabled woman who spent years over-paying care charges because the county council failed to tell her about crucial rules.

Kent County Council – which is now run by the right-wing Reform UK party after a landslide election victory earlier this year – has now backed down and agreed to do more to tell disabled people in the county how calculating their disability-related spending could reduce their care charges.

A disabled woman known as PXA had been forced to cancel her council-funded support because she could not afford the higher charges imposed in September 2024 when the council changed its charging policy, leading to her and thousands more disabled people in the county seeing sharp increases in their weekly care charges.

After seeking legal advice, she learned that she had been overpaying her care charges for years because her disability-related expenses had never been assessed.

PXA won permission for a judicial review of the council’s actions, but the local authority backed down and settled the case, days before a trial was due to begin last week.

The case revolved around the council’s failure to do enough to tell disabled people about the disability-related expenditure (DRE) system.

When calculating a person’s social care charges, a local authority must – if it treats their disability benefits as income – deduct what that person spends in DRE.

But Kent County Council’s policy since 2003 had been to deduct a standard amount for DRE and only to carry out an assessment of their actual spending if the disabled person asked for one.

The council set this standard amount at £21 in 2003, and reduced it to £17 in 2011, failing to increase it to allow for inflation for the next 14 years.

Legal firm Gold Jennings, which represents PXA and three other claimants, found that between them they had overpaid tens of thousands of pounds in care charges.

The firm believes there are “hundreds if not thousands” of other disabled people in Kent who were unaware that they should request an assessment of DRE to try to reduce their care charges.

The council’s own statistics show that, of about 16,000 individuals paying for their care in the county, only a few hundred had requested a DRE assessment.

Gold Jennings said PXA’s case was assisted by “compelling” evidence from the disabled people’s organisation Inclusion London, which used its virtual DRE assistant to highlight how disability-related spending for many people was likely to be significantly more than the £17 per week used by Kent County Council.

Even the council’s own figures – using individual assessments carried out in the 11 months after the September 2024 policy change – put average DRE at £55.46 per week.

Disabled people with this average level of DRE would have been overpaying care charges by nearly £2,000 per year.

PXA provided evidence that she had “never properly been told about DRE or that she could request an assessment”, said Gold Jennings.

The council has now agreed to make significant changes to its policy, including referring to DRE in its annual charging letters; providing clearer guidance in its DRE factsheet; and changing guidance to ensure council staff tell claimants about DRE and its importance in cutting charges.

It has also agreed to credit a “goodwill” amount to PXA to reduce her future care charges.

Svetlana Kotova, director of campaigns and justice at Inclusion London, said: “We are pleased with the outcome of this legal challenge and sincerely hope the changes that Kent agreed to make will enable many disabled people who use social care to keep more of their money.

This case shows very powerfully the problems in practice with the DRE assessment process, which in theory allows disabled people to prove their extra disability costs so that they can keep more of their disability benefits, but is often unworkable.

People don’t know about DRE and the process of claiming it is very complicated and often demeaning.

It is wrong that people with very high support needs end up being overcharged for the essential care they need.

This just pushes disabled people into deeper poverty.

This is why Inclusion London have been campaigning to scrap care charging altogether.”

Clare Jennings, head of public law at Gold Jennings, said the consequences of the council’s actions were that her clients had been overpaying by thousands of pounds a year for their care, for many years.

She said: “I am deeply concerned that my clients’ situation is not unique and that there will be hundreds, if not thousands, of others like them in Kent, and thousands more in other local authority areas who operate similar policies, who have overpaid for their care, enriching local authorities by tens of millions of pounds.”

A council spokesperson said: “Faced with increasing demands for complex care, rising costs of care and a lack of adequate funding from central government, we are having to take tough decisions to make sure future essential services are sustainable.

Unlike a number of other UK councils, Kent County Council delayed using powers given to local authorities under 2014’s Care Act to take into account higher, or enhanced, rates of disability benefits when assessing how much people should contribute to the cost of their care.

Following public consultation in 2024, the decision to change this policy and increase the amount some people contribute to the cost of their care was not taken lightly and we included a £900,000 contingency in the budget to help with increased disability-related expenses.”

11 December 2025

 

 

Other disability-related stories covered by mainstream media this week

Health secretary Wes Streeting is launching an independent review into rising demand for mental health, ADHD and autism services in England. It will look at both whether there is evidence of over-diagnosis and what gaps in support exist: https://www.bbc.co.uk/news/articles/ce8q26q2r75o (this confirms the launch of a review that DNS first reported on two months ago: https://www.disabilitynewsservice.com/alarm-over-governments-choices-to-lead-over-diagnosis-review-that-could-help-ministers-cut-benefits/)

The Conservatives have begun a policy review to slash the scope and cost of the benefits system, with Kemi Badenoch saying an “age of diagnosis” for “low-level mental conditions” was fast making it unaffordable. While it is up to the review to come up with specific policies, the Conservative leader hinted that some payments could become time-limited, saying one element would examine “at what stage support should come in, and how long it should last”: https://www.theguardian.com/society/2025/dec/09/badenoch-announces-tory-review-of-which-conditions-qualify-for-benefits

Senior Scottish politicians fear there could be a risk of “death tourism” from terminally-ill people travelling from other parts of the UK to end their lives in Scotland. A cross-party group of MSPs, including deputy first minister Kate Forbes, said the looser controls on eligibility written into an assisted dying bill for Scotland could attract people who are unhappy with stricter rules planned for England and Wales. The Scottish bill is expected to have its final vote in February: https://www.theguardian.com/society/2025/dec/10/scotlands-looser-rules-on-assisted-dying-could-lead-to-death-tourism-say-senior-politicians

A new strategy focusing on disabled people in Northern Ireland will go out for public consultation. Communities minister Gordon Lyons outlined details of the draft plan on Tuesday in the assembly. Disabled People Against Cuts has already issued a briefing paper spelling out the draft strategy’s “failures”: https://www.bbc.co.uk/news/articles/cm21zg3jlxdo

One of the most senior civil servants in the Department for Work and Pensions (DWP) has placed the blame for the carer’s allowance benefits crisis on victims, many of whom have been left with life-changing debts. In an internal blogpost written for Whitehall colleagues, Neil Couling, director general of DWP services, said individual failings by carers were “at the heart” of the issue that has been likened to the Post Office Horizon scandal: https://www.theguardian.com/society/2025/dec/06/senior-dwp-civil-servant-blames-victims-for-carers-allowance-scandal

Scottish Labour’s education spokesperson has quit over her friendship with a convicted sex offender. Disabled MSP Pam Duncan-Glancy resigned after the Daily Record approached her and her party about her links to disgraced former councillor Sean Morton: https://www.dailyrecord.co.uk/news/politics/scottish-labour-education-spokeswoman-quits-36358285

11 December 2025

 

News provided by John Pring at www.disabilitynewsservice.com

 

Dec 052025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

DWP and Treasury silent over mystery of £2 billion cuts to disability benefits 1

Unacceptable’ new figures show rejections of Access to Work claims have shot up this year 3

Watchdog’s silence after removing figures that showed social security spending is not ‘spiralling’ 5

Manifesto calls on next Welsh government to enable disabled people to ‘flourish and thrive’ 7

Deaf people who use BSL face ‘entrenched’ health and social care exclusion, say government advisers 9

Years of scapegoating rhetoric has led to ‘envy and resentment’ of those with blue badges, research finds 11

Other disability-related stories covered by mainstream media this week 14

 

 

DWP and Treasury silent over mystery of £2 billion cuts to disability benefits

The government has refused to explain the impact that last week’s budget will have on disabled people who receive benefits, despite repeated requests for clarity over cuts of up to £580 million a year.

The Department for Work and Pensions (DWP) and the Treasury have both failed to provide any details of the cuts to spending on disability benefits of nearly £2 billion over five years.

It is just DWP’s latest failure of transparency since Labour’s new minister for social security and disability, Sir Stephen Timms, promised to improve its openness to public scrutiny in September 2024.

Treasury documents published on the day of last week’s budget showed that, from next April, the government will increase DWP’s “capacity” to carry out reassessments of disabled people’s capacity for work through the work capability assessment (WCA).

DWP will also carry out more face-to-face assessments, which have been drastically cut back since the early weeks of the pandemic, both through WCAs and assessments of eligibility for personal independence payment (PIP).

The Treasury’s budget costings document also said DWP would be “changing the frequency” of reviews of PIP awards, which would allow it to “complete award reviews on time, reducing the number of people who are called to a PIP assessment when their function has not changed, and allowing providers to redirect resource to WCA re-assessments”.

The budget document described this measure as “extending Personal Independence Payment award reviews periods”.

The budget costings document said these changes will “ensure people receive the right health or disability benefit and the system is sustainable”.

But there are significant question-marks over these measures, because the changes together are set to save the government £85 million next year, £310 million in 2027-28, £520 million in 2028-29, £580 million in 2029-30 and £455 million in 2030-31, a total of £1.95 billion over five years.

Disability News Service (DNS) has been asking the Treasury and DWP to clarify how these cuts will be made for more than a week.

The Treasury initially claimed that the budget documents were not announcing new policies, but were “just costing existing plans from planned welfare reforms – so nothing new from this”.

But neither department has been able to point to where or when these “existing plans” were announced by DWP, particularly the changes in reviews of PIP awards, and how these changes will affect PIP recipients and those on out-of-work disability benefits.

Although the government has previously made it clear that it wanted to increase reassessments through the WCA, and to increase the number of face-to-face WCAs and PIP assessments, these ideas were included in March’s green paper.

Green papers are supposed to lay out policy proposals for consultation, but they are not announcements of final decisions on government policy.

DNS has been unable to find any DWP announcements on these and the other measures in last week’s budget documents since the spring budget on 26 March 2025, other than a brief reference to carrying out more PIP face-to-face assessments in a speech by the then work and pensions secretary Liz Kendall in May.

Both DWP and the Treasury have refused to provide clarity on the budget changes, with DWP instead releasing a statement that failed to explain what measures it was taking on PIP award reviews*.

It is the latest in a string of DWP failures on transparency since Labour came to power, continuing years of similar failings under successive Conservative-led governments.

At Labour’s annual conference in Liverpool, in September 2024, Sir Stephen told DNS: “The department has absurdly refused to answer lots of the questions that you have asked and that is something that we want to change… because public scrutiny is a good thing, and it puts pressure on ministers and on civil servants to have the consequences of what they are doing known about publicly.”

Meanwhile, DWP’s controversial new anti-fraud bill – now to be known as the Public Authorities (Fraud, Error, and Recovery) Act – has become law after receiving royal assent on Tuesday.

Last month, cross-party MPs warned that ministers’ refusal to introduce a key protection into the bill could see a repeat of the countless deaths caused by the austerity measures of past governments.

And they warned that future “authoritarian” governments could misuse the powers the Labour government has claimed through the bill, which applies to England, Scotland and Wales.

One of those powers will allow DWP to force banks to examine the accounts of claimants of means-tested benefits and then provide details of any accounts where there have been potential breaches of benefit eligibility rules.

Disability Rights UK said it was “deeply concerned” at the “bank spying bill” becoming law.

It said on X/Twitter: “A government agency that is notorious for punitive sanctions and bureaucratic faults that have cost lives, this will have dire consequences.”

*The statement is included here as a footnote, as it failed to answer the questions put to the department by DNS: “We are increasing the number of face-to-face assessments and tackling the backlog of Work Capability Assessments we inherited, by changing the frequency of PIP assessment reviews. This will ensure claimants receive the right level of support while at the same time reducing unnecessary award reviews, as we shift our focus from welfare to work, skills and opportunities.”

4 December 2025

 

 

Unacceptable’ new figures show rejections of Access to Work claims have shot up this year

Ministers have been forced to admit that the proportion of Access to Work claims they are rejecting has leapt by more than a fifth this year, with disabled campaigners describing the figures as “unacceptable” and “clearly worrying”.

The figures, provided through a response to a written parliamentary question, show the proportion of applications rejected has risen by more than 22 per cent in 2025-26 so far, compared with 2024-25.

This follows a rise of more than 12 per cent in 2024-25, Labour’s first year in control of the Department for Work and Pensions (DWP)*.

It is the strongest evidence yet to support concerns being raised by disabled campaigners, who have been warning for months that Access to Work (AtW) support is being cut.

The figures came just days after Disability News Service (DNS) reported that DWP was claiming that “an issue” with data was preventing it releasing detailed monthly figures on AtW claims.

The new figures were released by Sir Stephen Timms, the minister for social security and disability, in response to a question from Labour’s former shadow minister for disabled people, Vicky Foxcroft.

Rather than requesting more detailed monthly data, as DNS had done, she had asked for the number and proportion of AtW claims that had been closed in each year since 2022-23.

In 2022-23, Sir Stephen told her, 31,482 applications were not approved, which was 30 per cent of all decisions.

The proportion of applications rejected fell to 24 per cent in 2023-24, the last full year of the Conservative government, but then last year under the new Labour government – which claims it is trying to increase the number of disabled people in work – it rose to 27 per cent of all applications being rejected (a 12.5 per cent increase).

And so far this year (April to October), the proportion of claims rejected has increased even more sharply, with 27,297 applications not approved, one in three (33 per cent) of all decisions, a rise of more than 22 per cent (six percentage points) on 2024-25.

Although he provided these figures, Sir Stephen failed to provide Foxcroft with data showing the frequency of reasons for rejections (which include “no contact from the applicant”, “insufficient evidence provided”, “applicant not eligible” and “application not pursued”.

Disabled consultant, broadcaster and campaigner Shani Dhanda, co-founder of the Access to Work Collective, said the increase in claims being rejected was “unacceptable”.

But she also called again for clarity from ministers on exactly what was happening within the AtW system.

She told DNS: “We still have no idea where people are being lost in the system, and the vague reasons given tell us nothing about what actually went wrong.

What we see on the ground is chaos: phone calls going unanswered, people cut off mid-call, evidence repeatedly misplaced, and applicants waiting so long for approvals, change of circumstances or renewals, that work opportunities disappear.

The fact that non-approvals have jumped to 33 per cent, the highest in recent years, while transparency has been stripped back, is unacceptable.

Access to Work is meant to support disabled workers, not shut them out.”

David Buxton, chief executive of the disabled people’s organisation Action on Disability, which in October produced evidence showing the average AtW support hours of disabled people it had been working with had plunged from 22.5 to just four in two-and-a-half years, said the new figures were “clearly worrying”.

And he criticised the department for the lack of transparency over what was driving the increased rejections.

He said: “Without clear data, we are all being left to guess, but what’s absolutely clear is that disabled people need a system that works.

We must push for workable, sustainable and effective solutions that genuinely support people to stay in work.”

He added: “The numbers point to a system that is struggling to meet disabled people’s needs.

When more than 100,000 applications over recent years have not been approved, and when a third of decisions this year are non-approvals, that has a very real impact on people’s ability to stay in work or take up new roles.”

Catherine Eadie, a social enterprise founder and Access to Work claimant, and a member of the Access to Work Collective, added: “For those of us dealing with Access to Work daily, these figures match what we see: procedural errors, misinterpretation of guidance, misplaced evidence, and delays so long that people’s jobs and businesses become unviable while they wait.

When approval rates drop this sharply and explanations get vaguer, trust is impossible.”

Foxcroft told DNS: “I encourage ministerial colleagues to investigate this concerning increase in the number of cases being rejected by the DWP and ensure that it feeds into their wider work on reform of the current programme.”

She said: “It has long been clear that Access to Work is not fit for purpose. 

I am pleased that ministers have acknowledged this and begun to take action through the Pathways to Work green paper.

These statistics show, however, that there is still a long way to go towards removing the workplace barriers disabled people face every day.”

DWP is expected to announce its proposals for AtW reform in the next few weeks.

*It took control in July 2024, so the first three months of 2024-25 were under Conservative control

4 December 2025

 

 

Watchdog’s silence after removing figures that showed social security spending is not ‘spiralling’

The government’s “independent” spending watchdog has refused to explain why it removed figures from its crucial budget forecast report that proved spending on social security is not spiralling out of control.

The move by the Office for Budget Responsibility (OBR) will help the government – and commentators – justify expected future cuts to spending, such as to personal independence payment and out-of-work disability benefits.

This week, the Sunday Times reported that the government was set to push ahead with plans, first proposed in March’s Pathways to Work green paper, to prevent disabled young people under the age of 22 from receiving the health element of universal credit.

And in a speech in London on Monday, the prime minister, Sir Keir Starmer, said that the social security system had “trapped people in poverty”, particularly young disabled people.

Her said young disabled people were being “simply written off” and trapped “in a cycle of worklessness and dependency for decades” which “costs the country money” and was “bad for our productivity”.

Disability News Service and academics, other journalists and disabled activists have been using the OBR figures since early this year to dismantle claims that “welfare spending” is increasing at an unmanageable rate.

But these crucial figures have been omitted from OBR’s latest Economic and Fiscal Outlook report, which was published last week alongside the budget.

The figures were first highlighted by a disabled activist in February, after they were included in the OBR’s October 2024 Economic and Fiscal Outlook.

The October 2024 figures showed that the share of GDP* taken by social security spending was stable, and was even predicted to fall from 11.1 per cent to 11.0 per cent in 2027-28 and 2028-29, before rising slightly back to 11.1 per cent in 2029-30.

Updated figures were included in an OBR report in March this year**, and they showed that social security spending was predicted to be even lower – as a proportion of GDP – than previously predicted.

The figures were included in one of the charts released alongside the Economic and Fiscal Outlook report, which is published alongside every budget.

That chart (chart 5.2) tracked “welfare spending” as a proportion of GDP for every year back to 2010-11, when it was 12 per cent of GDP.

But last week’s version of chart 5.2 was substantially different.

Instead of showing how spending has changed year by year since 2010-11 as a proportion of GDP, table 5.2 now shows how the proportion of government spending in different areas has changed relative to 2010-11 levels, making it impossible to compare social security spending levels year-by-year and prove that it has not “spiralled”.

What last week’s OBR report does show (see table 5.1 in the main report) is that the chancellor’s spending decisions – including scrapping the two-child benefit cap – have not led to an increase in the proportion of GDP being spent on social security, compared with previous predictions.

The figures show that welfare spending for 2024-25 was significantly lower than predicted last year (10.8 per cent compared with a predicted 11.1 per cent) as a proportion of GDP, while the predicted spending for this year is also lower than was forecast by the OBR last year (10.9 per cent versus 11.1 per cent), while the forecast levels for the next four years have remained unchanged.

These figures show that any attempt by media, civil servants and politicians – such as chancellor Rachel Reeves last year, DWP in January, and opposition MPs such as Tory leader Kemi Badenoch in September – to make false claims that social security spending is spiralling out of control would be misleading, if not deeply dishonest.

This week, OBR’s press office refused three times to even acknowledge emails asking why it had removed the historic figures from the report.

The Treasury had also not commented by noon today (Thursday) on whether it requested OBR to remove the historic welfare spending figures.

OBR’s refusal to comment came in a week that its chair, Richard Hughes, resigned after the watchdog mistakenly published its outlook report before Reeves had delivered her budget speech to MPs.

*Gross domestic product, the size of the country’s economy in a particular year

**Chapter five of OBR’s Economic and Fiscal Outlook – March 2025, chart 5.2, shows welfare spending as a percentage of GDP: https://obr.uk/efo/economic-and-fiscal-outlook-march-2025/

4 December 2025

 

 

Manifesto calls on next Welsh government to enable disabled people to ‘flourish and thrive’

The national body for disabled people’s organisations (DPOs) in Wales has issued five major demands to political parties ahead of next spring’s elections to the Welsh Senedd.

The Disabled People’s Manifesto, published by Disability Wales, includes a call for the UN Convention on the Rights of Persons with Disabilities (UNCRPD) to be incorporated into Welsh law.

It also demands a “robust” disabled people’s rights plan – which should include the appointment of a minister for disabled people – ahead of the current Welsh government’s 10-year plan, which is likely to be published this month.

And it calls for Welsh politicians to champion disabled people’s leadership – supporting disabled leaders in public life, and ensuring they are represented in decision-making and policy development – and for government to fund the work of DPOs.

The manifesto demands a guaranteed right to independent living, with reforms to social care, health and housing that focus on dignity, choice, and accessibility, and for the new government to promote inclusion, and end the institutionalisation of disabled people.

And it calls for the social security system to be devolved from the UK to the Welsh government, as has been – partially – achieved in Scotland.

The manifesto, From Barely Surviving to Truly Thriving, has been developed with DPOs from across Wales and individual disabled people.

In all, more than 250 disabled people helped shape the manifesto, which outlines demands from politicians over the four years from the May 2026 elections.

Although the Welsh Labour government included a pledge to incorporate UNCRPD into Welsh law in its programme for government in 2021, Disability Wales says no progress has been made towards this goal, and so the convention remains “a guiding framework rather than a legally enforceable standard”.

A draft version of the Welsh government’s Disabled People’s Rights Plan, when it was published in May, saw the government accused of putting up a “smokescreen” with a document that lacked “teeth” and was full of pledges to carry out reviews and produce guidance while offering no new money.

The 61-page plan included no significant promises on key areas such as social care, accessible housing and transport, and disability poverty, and was short of concrete targets.

Disability Wales says in its manifesto that the draft plan “must be strengthened to ensure long-term impact and accountability”, while there must be “sustained investment and infrastructure” for DPOs so they can be “essential partners” in delivering the plan.

Disability Wales also says in its manifesto that disabled people “remain underrepresented in political and public life”.

It calls for all political parties to publish the percentage of their representatives who identify as disabled people and their targets for improving these figures in the run-up to the 2026 Senedd and 2027 local government elections.

The manifesto says that barriers to independent living “strip away autonomy and keep people trapped in unsuitable housing, inflexible care arrangements and discriminatory environments”, and it calls instead for accessible housing, inclusive health services, and an end to institutional care.

It also calls for a national campaign to tackle the “ableism, stigma, and discrimination” faced by disabled people.

Devolving social security systems to Wales would enable “more responsive, fair, and inclusive support systems, designed in coproduction with disabled people and DPOs”, the manifesto says.

It concludes: “Disabled people in Wales deserve more than mere survival.

We deserve the right to truly flourish and thrive.

We know that change is possible, but it requires commitment, collaboration and courage.

We call on all political parties to adopt these five calls and work with us to build a Wales where disabled people are not just supported but celebrated.”

Disability Wales has also launched a “commitment form”, asking every political party and candidate to state clearly and publicly where they stand on each of the manifesto’s five calls.

Their responses will be updated during the Senedd election campaign and used afterwards to monitor delivery and implementation of the policy demands.

Rhian Davies, chief executive of Disability Wales (DW), said: “DW’s vision is for an inclusive, equitable and barrier free society.

Disabled people in Wales deserve more than mere survival; we deserve the right to truly flourish and thrive.

Following the recent module two Covid-19 Inquiry report, which criticised government failure to appreciate the level of risk faced by disabled people, resulting in escalating death rates and a reversal of rights, this manifesto is a call to action for all political parties to commit to real change.

Together, we can move from surviving to thriving.”

Natalie Jarvis, DW’s policy and research officer, said: “As someone involved in the co-production of this manifesto alongside DPOs and the voices of hundreds of disabled people across Wales, I have heard stories of exhaustion, frustration and injustice but also of hope, resilience and vision.

Disabled people know exactly what needs to change.

What we need now is the political will to act and for parties to commit to our calls within their own manifestos ahead of the elections.”

4 December 2025

 

 

Deaf people who use BSL face ‘entrenched’ health and social care exclusion, say government advisers

Deaf people who use British Sign Language (BSL) face “entrenched” and “systemic” exclusion from health and social care services across Britain, according to a new report by government advisers.

The report* found that Deaf and Deafblind people’s lack of access to services costs the Treasury millions of pounds through “unmet needs, wasted appointments and delays in care”. 

Better access to health and social care services would allow more Deaf and Deafblind people to find work and progress in their careers, and contribute more through taxation, says the report.

The report focuses on the experiences of Deaf and Deafblind BSL-users in England, Scotland and Wales, and is based on a review of their access to services carried out by the government’s BSL Advisory Board’s health and social care sub-group.

The report found a “deep-rooted lack of trust” within Deaf and Deafblind communities following repeated experiences of exclusion from services, which often left them “traumatised” by a lack of access to health and social care.

One Deaf woman spent five months sleeping in an accident and emergency cubicle because there was no bed available in mental health services that had BSL support.

Repeated access failures and exclusions often cause “accumulated trauma” over a person’s lifetime, says the report.

BSL users usually need “high levels of motivation, perseverance with inaccessible systems and patience with the inexperience of professionals trying to meet their needs” if they want to access services, the report found.

Many BSL-users avoid social care and health services completely due to their past experiences because they believe their communication needs will not be met. 

There are believed to be about 87,000 Deaf BSL-users in the UK, and 25,000 people who use BSL as their main language.

The report makes a string of recommendations to the UK and devolved governments, including calls to establish national, 24/7 video relay services for England and Wales; set up national BSL complaints services within England, Scotland and Wales; provide mandatory deaf, deafblind and BSL awareness training for all NHS and social care staff; and address “language deprivation” in deaf children through “early and comprehensive” BSL provision and support for families.

The Locked Out report* follows the passing of the British Sign Language (BSL) Act in April 2022, which was introduced as a private members’ bill by Labour MP Rosie Cooper and recognised BSL as a language of England, Wales, and Scotland.

The act provided Deaf people with no new rights, but it secured significant support from the Deaf community, and it led the following year to the government setting up its BSL Advisory Board to offer advice to ministers on key issues affecting the Deaf community.

All the board’s members are deaf or deafblind, or have deaf parents or a deaf child.

Craig Crowley, the board’s co-chair, says in a foreword to the report that the document is a “powerful call to action and a roadmap towards a more inclusive and equitable future for BSL users within our health and social care systems”.

He says: “We acknowledge the distressing reality of delayed diagnoses, inadequate treatment, and the emotional impact of communication breakdowns, but we strongly believe these are challenges we can, and must, overcome.”

The British Deaf Association (BDA) welcomed the new report and its “stark” findings, describing it as the “most comprehensive examination ever undertaken into the barriers faced by Deaf and Deafblind BSL users across the NHS and social care systems”.

It said the persistent failures in communication access were causing avoidable harm, entrenched inequalities, and the denial of basic rights for tens of thousands of Deaf and Deafblind people across the UK.

Rebecca Mansell, BDA’s chief executive, said: “This is a ground-breaking report that lays bare the challenges that deaf signers face every day with the NHS and care system. 

This report confirms what Deaf and Deafblind people have been telling government for decades: the health and social care system is not built with our communities in mind. 

We are particularly delighted to see the strong focus in the report’s recommendations on the steps that governments must take to address language deprivation in deaf children and adults.

We strongly endorse the recommendation that governments provide free BSL courses for the families of deaf children. 

This recommendation backs up the recently published report, The Value of British Sign Language – An Economic Analysis, written by Rand Europe, the policy research organisation.

This reports that the teaching of BSL to young deaf children and their families delivers an impressive economic return on investment – up to £14 for every £1 invested. 

This report requires a strong and supportive government response, and we will be contacting BDA members to urge them to write to their MPs.” 

The Department of Health and Social Care had failed to comment on the report by noon today (Thursday).

*Locked out: Exclusion of deaf and deafblind BSL users from health and social care in the UK

4 December 2025

 

 

Years of scapegoating rhetoric has led to ‘envy and resentment’ of those with blue badges, research finds

Years of scapegoating rhetoric and politicians casting disabled people as “scroungers” have reinforced prejudices about the blue badge parking scheme and led to “envy and resentment” instead of equal access, according to a four-year research project.

Half-hearted implementation of the scheme has left disabled people who rely on it feeling worried, angry and frustrated, and like “second-class citizens”, because of the encounters they have had while trying to use their badges, the research concludes.

The research was carried out by Vera Kubenz, a disabled postgraduate researcher at the University of Birmingham, and herself a blue badge holder.

She said this week that she feared that recent rhetoric around disabled people receiving “free cars” through the Motability scheme, and the need for cuts to disability benefits, would lead to a fresh wave of such aggressive and hateful encounters.

In a summary report based on her research, Disabled People’s Encounters with Strangers in Accessible Parking Spaces, Kubenz concludes that, as long as there is wider societal prejudice, hostility and suspicion aimed at disabled people, “there can be no such thing as a truly accessible space”.

As part of her research, she surveyed more than 300 disabled people with experience of encounters – good and bad – while using their blue badges.

In the survey, 74 per cent of disabled people said they had been accused of “faking” their impairments while using their blue badges.

These types of encounters were particularly common for younger disabled people, with some told they were “too young” to be disabled.

One of those who took part in the survey, who is 49, said: “A member of the public stopped me as I was parking in a Blue Badge space.

He knocked on my window, I wound it down and he told me I shouldn’t be parking there, and I had no right to be there.

I explained I was disabled. He said I was too young and there was nothing wrong with me.

I proceeded to get into my wheelchair and get out of the car, in fairness, he did look quite embarrassed when I got out of the car.”

The impact of such encounters was clear, with 91 per cent of disabled people who took part in the survey saying they worried about them, with 40 per cent always worrying and 35 per cent worrying a lot, while more than two thirds (68 per cent) said they sometimes did not use their vehicles because of the worry.

Another survey participant said: “A man in his 50s came over trying to take our car keys out of the car (luckily it was a keyless ignition Motability vehicle).

When he realised he couldn’t get the key he came round to my side trying to grab my Blue Badge.

We was called every name under the sun. The c word, the n word, lots of f yous.

All because we had parked in the disabled bay… I was that upset with the whole incident I wanted to just leave and not have my operation.”

Common locations for encounters were supermarket carparks (87 per cent of those surveyed), near shops (70 per cent) and at hospitals or GP surgeries (58 per cent).

Most people (70 per cent) experienced encounters between a few times a year and a few times a month.

People with chronic illness, who were neurodivergent, or who had mental health conditions were particularly likely to be confronted over their use of accessible parking spaces.

Many of those surveyed said that being under constant suspicion meant they always felt on edge and worried that an encounter could happen at any moment.

Two thirds (67 per cent) of disabled people taking part in the survey had experienced hate and harassment in accessible parking spaces.

Negative encounters could involve staring, tutting, or hushed comments, while nearly half (46 per cent) of people had been insulted and a third (32 per cent) had been threatened, while some (six per cent) had been subjected to physical violence.

But most people (69 per cent) had also had at least one positive encounter, often a positive chat with another blue badge holder.

Kubenz says in the report that enforcement of blue badge spaces is often a postcode lottery.

Although some of those surveyed said their councils took action to enforce rules around the use of blue badges, many others said their council took no action.

One said: “I wish that Blue Badge parking was properly policed because what we have now is the worst of both worlds, people making assumptions and not looking at the badge and trying to police it for the benefit of those who do, but in doing so make lots of assumptions.”

Ultimately, says Kubenz, all disabled people who use blue badges risk confrontations because “nobody can live up to the impossible stereotype required for being truly ‘deserving’”.

The survey of 304 blue badge holders was carried out in 2023, while there were 20 follow-up interviews; it was open to holders of blue badges who had had at least one encounter, were over 18, and lived in England.

Kubenz told Disability News Service this week: “I am very concerned that the renewed government and media statements about disabled people’s ‘free cars’ and cuts to both in- and out-of-work benefits will intensify the resentment non-disabled people have against all disabled people, and that this will lead to more encounters because people feel entitled to ‘police’ blue badge bays because they are seen as a perk rather than essential for access.

These confrontations can range from underhanded comments to intrusive questions, verbal abuse, and even physical violence.

I fear the current government rhetoric will directly contribute to more aggression and hate towards disabled people.”

She added: “Many of the people interviewed had little faith that the government would change anything about blue badge policy or awareness, precisely because they are responsible for so many of the misconceptions that lead to encounters.

I conclude in my research that currently the blue badge scheme only provides bare minimum access; it is not about equality, but about keeping disabled people ‘in their place’.”

On Friday 12 December, between 12pm and 1pm, Kubenz is hosting a webinar on the findings of her Politics of Parking project, with guest speakers Anjna Patel, a trustee of Disabled Motoring UK, and accessible transport campaigner Christiane Link

4 December 2025

 

 

Other disability-related stories covered by mainstream media this week

Health secretary Wes Streeting is launching an independent review into rising demand for mental health, ADHD, and autism services in England. It will look at whether there is evidence of over-diagnosis and what gaps in support exist. Reports of the review first emerged in October: https://www.bbc.co.uk/news/articles/ce8q26q2r75o

Labour proposed while in opposition how to introduce assisted suicide via a private members’ bill, suggesting that this would still allow “heavy influence” for the government in the process, a leaked document has revealed. The document proposed a change strikingly similar to the private members’ bill put forward eventually by Labour MP Kim Leadbeater. The leak raises fresh questions over how much government control there has been behind her bill: https://www.theguardian.com/society/2025/dec/03/labour-planned-in-opposition-introduce-assisted-dying-via-private-members-bill

Virgin Media has been fined £23.8 million for putting thousands of “vulnerable” people “at risk of harm” when switching them from an analogue to a digital landline. Media watchdog Ofcom found the company failed to protect people who relied on telecare alarms to call for help, after Virgin Media self-reported a number of “serious incidents” in November and December 2023: https://www.theguardian.com/media/2025/dec/01/virgin-media-fined-vulnerable-customers-landline-ofcom

4 December 2025

 

News provided by John Pring at www.disabilitynewsservice.com

 

Oct 232025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

Chancellor’s reported plans to impose VAT on Motability could add £3,000 to even the cheapest cars 1

Psychologists’ charity fails to raise concerns over job coaches in surgeries, weeks after £640K DWP contract 3

Peers derail government plans to hand some DWP staff powers to use force against benefit claimants 5

Reeves refuses to apologise for repeating false claim that social security spending is spiralling 7

Timms goes back on his word by refusing to provide crucial evidence of Access to Work cuts 8

Disabled people describe impact of ‘very unfair’ extra costs caused by DWP’s universal credit migration 9

Ministers’ refusal to raise limit on accessible housing grants is discriminatory, secret reports admits 11

Ministers finally announce progress on ‘liberty safeguards’, but also challenge vital definition 14

Other disability-related stories covered by mainstream media this week 16

 

 

Chancellor’s reported plans to impose VAT on Motability could add £3,000 to even the cheapest cars

The chancellor’s reported plans to target the Motability car scheme for new taxes in next month’s budget by removing its VAT exemption could impose an upfront cost of at least £3,000 on even the cheapest cars it offers, the company has calculated.

Motability Operations spoke out after an article in the Times – which has strong contacts within Whitehall – suggested that Rachel Reeves would be “dramatically reducing an exemption by which cars leased under the scheme do not have to pay VAT or insurance premium tax”.

The Times said that VAT tax breaks “worth about £1 billion a year are set to be scrapped in the budget”.

But targeting the Motability car scheme in next month’s budget by completely removing its VAT exemption would add thousands of pounds every three years to the bills of some of the poorest disabled people in the country.

The potential tax-raising measure – which would be aimed squarely at disabled people – follows months of mounting hostility aimed at disabled people and the Motability scheme in the right-wing media and on social media.

But Motability Operations, the company that runs the scheme, said this week that removing VAT relief “would make cars unaffordable for most disabled people, leaving only the wealthiest able to access the scheme – a result that would fundamentally undermine its purpose”.

It confirmed to Disability News Service (DNS) that, if Reeves placed VAT at 20 per cent on all Motability cars – and assuming no changes elsewhere in the scheme – it would increase the overall cost of a lease over three years by £3,000 for the cheapest cars it offers.

This would mean disabled people would have to find an advance payment of £3,000 for even the cheapest models, on top of having to contribute all their enhanced mobility component of personal independence payment (PIP) to fund their monthly lease payments.

It would mean the scheme would instantly become unaffordable to tens of thousands of disabled people seeking independent mobility.

Motability Operations said the median household income of a disabled person using the scheme is just £18,500, half the UK average.

Graham Footer, chief executive of Disabled Motoring UK (DMUK), told DNS: “DMUK is concerned by the recent reports in the national media that the chancellor is considering making changes to the Motability scheme, including removing the tax breaks.

The fact this is even on the table for consideration is a worry.

If the chancellor goes ahead with the changes, it will have a significant detrimental impact on Motability customers and for many it will put the scheme financially out of reach.”

A Motability Operations spokesperson said: “The scheme operates at scale, allowing bulk purchasing and strong manufacturer discounts.

Removing the zero-rating would erode this efficiency and undermine the social purpose of enabling independence and affordable mobility.

There would also be a knock-on impact to jobs in the automotive sector.”

Motability Foundation*, the charity that oversees the car scheme, has described some of the “recent, misinformed commentary” about the scheme as “profoundly disheartening” and said that it “unfairly stigmatises disabled people”.

It said the scheme “provides a vital service to disabled people, helping them to overcome significant mobility barriers” and “a foundation of independence which also helps to address the transport equity gap”.

Earlier this year, Motability Foundation’s disabled boss hit back at months of “hostile”, “harmful” and inaccurate media reports and online comments about how the scheme is run and its disabled customers.

Chief executive Nigel Fletcher said then that he believed the “climate of stigmatisation” of disabled people “risks rolling back decades of progress in promoting disability inclusion and understanding”.

He told DNS: “It creates an environment where disabled people are scrutinised and made to feel they must justify their right to mobility and participation. This is unacceptable.”

Coverage has included reports of comments made by Conservative leader Kemi Badenoch, who claimed that new Motability vehicles were being leased by people with food intolerances.

Other reports have suggested that Motability vehicles are handed out “free” – rather than in exchange for most or all of the higher rate mobility element of PIP, and sometimes an additional advance payment – and with few if any checks on eligibility, misleading statements that were repeated today (Thursday) by Conservative shadow work and pensions secretary Helen Whately.

There have also been widespread reports in the media and on social media attacking Motability customers and accusing them of abusing the scheme.

*Motability Foundation is a DNS subscriber

23 October 2025

 

 

Psychologists’ charity fails to raise concerns over job coaches in surgeries, weeks after £640K DWP contract

The national charity representing psychologists failed to speak out about the serious risks caused by placing work coaches in GP surgeries, just weeks after it was awarded a £640,000 contract by the Department for Work and Pensions (DWP).

There was alarm among many disabled people when DWP announced earlier this month that it was expanding a programme to “embed” job advisers in GP surgeries, mental health services and other healthcare settings.

They believe that for many disabled claimants of out-of-work benefits, particularly those with mental distress, ill-health and trauma, the idea of facing a DWP officer in a healthcare setting, at a time when they need support rather than pressure to discuss work, would be “horrifying”.

Among those speaking out was Dr Jay Watts, a disabled activist and herself a consultant clinical psychologist, who said: “It’s really dangerous for the government to put work coaches in GP surgeries.”

She said many mental health claimants already find it “scary” to visit their GPs because they “tend not to be believed”, while surveys show a substantial proportion of them are “absolutely terrified of the DWP”.

She said she feared the DWP scheme would prevent many claimants accessing healthcare.

Despite these concerns, the British Psychological Society (BPS) – which represents psychologists – appeared to be broadly supportive of the DWP scheme, in a statement it issued last Thursday (16 October).

It appeared to suggest that the scheme could be useful, given the right training for the job advisers, saying: “While a job adviser could act as an incentive and offer support to those with mental health problems to return to work, it is vital this isn’t to the detriment of a person’s recovery by adding further stress and anxiety.

Ideally, all job advisers should be psychologically informed and work to identify a person’s strengths and support them in managing change.”

But it has now emerged that this statement was published just four weeks after DWP awarded BPS a £641,000 four-year contract to carry out accreditation of the department’s in-house work psychologists.

BPS yesterday (Wednesday) denied any connection between the award of the contract and its statement on the DWP scheme.

But one campaigner, who first spotted the contract award, told Disability News Service this week: “The BPS’s views on employment advisers are totally compromised by this and should not be regarded as objective.”

The grassroots, user-led mental health group Recovery in the Bin (RiTB) added: “The BPS have betrayed every person in need of mental healthcare and social security.

We are being treated like livestock who either produce or are sent to the abattoir.

The NHS will be polluted with work fetishism and people will not trust anything medical professionals do, as everything will be corrupted to a work outcome, instead of what is best for the person.”

Another disabled activist said the BPS response was “appalling” and “completely unethical”.

They said: “I would be terrified if I had to face a DWP officer in my GP surgery, or worse, during an inpatient admission under the Mental Health Act.

The thought of anyone being in that situation when they need care, not pressure to discuss work, is horrifying.

Health professionals should protect lives, not enable harm.”

A spokesperson for the British Psychological Society said: “There is no connection between the awarding of the Department for Work and Pensions (DWP) contract and the British Psychological Society’s (BPS) stance on the government’s roll-out of work advisers in GP surgeries.

The BPS is an independent professional membership body, and our positions are shaped by our members, the best available evidence, and our ethical standards as set out in our charter.

Contract negotiations between the DWP and BPS remain ongoing and as such it would be inappropriate for us to comment further.

The BPS retains editorial and public independence and will continue to raise awareness where psychological evidence calls for challenge.”

There has been controversy for nearly a decade over DWP’s attempts to blur the lines between the health and employment systems by embedding work advisers in surgeries.

In March 2016, the Mental Health Resistance Network organised a protest about a year-long DWP pilot scheme which saw private sector job coaches placed in six GP surgeries in Islington, north London.

Denise McKenna, co-founder of MHRN, said at the time that the network would “never accept this scheme and we will never give up until it is abandoned”, and described it as a “drastic move” that would cause some people to stop seeing their GPs.

23 October 2025

 

 

Peers derail government plans to hand some DWP staff powers to use force against benefit claimants

Government plans under controversial new legislation to give some Department for Work and Pensions (DWP) staff “morally dubious” powers to use force against benefit claimants have been derailed by peers.

The public authorities (fraud, error and recovery) bill was set to give authorised DWP staff the same powers of search, entry and seizure as the police.

But unlike powers granted to the Public Sector Fraud Authority, the bill was also set to allow these officers to use “reasonable force” against benefit claimants when exercising their new powers.

Until now, one of the bill’s most controversial measures was that it is set to force banks to examine the accounts of claimants of means-tested benefits for potential breaches of benefit eligibility rules and then pass that information to DWP.

But a string of crossbench and opposition peers also raised concerns about the “reasonable force” measure on Tuesday during the bill’s report stage.

The crossbench hereditary peer Lord Vaux told the Lords: “This would make it lawful for a DWP officer – not a police officer, but a civil servant – to enter your home, seize your belongings and forcibly hold you down while doing so.”

He said this would be used against benefit recipients, a part of the population who are more likely to be disabled and are “more vulnerable” than the general population.

He said: “The use of physical force marks a far more serious infringement than the powers of search, entry and seizure alone.”

He was supported by Conservative peer Lord [Mark] Harper, a former minister for disabled people, who urged ministers to “not give power to use reasonable force to people who are not trained to use it and do not have proper oversight”.

The Liberal Democrat peer Lord Palmer said that “any exercise of physical powers must surely rest with the police.

Are we going to train a new breed of DWP officers who have to be tough and able to act as police? It is quite nonsensical.”

Baroness [Claire] Fox, a non-affiliated peer and former Brexit Party MEP, added: “I do not want DWP civil servants, who might have been on a minor training course, to have that power. I think it is wrong.

For them to have that power of physical force aimed at people on benefits seems wholly wrong and morally dubious.”

The Conservative shadow work and pensions minister Viscount Younger – a former DWP minister – said the government had “yet to offer a convincing explanation of why DWP officials need this power at all”.

He said Conservatives were “deeply concerned” by the new powers being granted to DWP investigators through the bill, and said the measures raise “profound questions about the limits of state power and the safeguards that ought to accompany it”.

Work and pensions minister Baroness Sherlock accepted that the bill would give authorised and trained DWP officers powers to use reasonable force against individuals, but she told fellow peers that the intention was for them “to be able to use that against property, not against people”.

And she said the search, entry and seizure powers would only be used for “serious organised criminality” and “where the DWP has a reasonable belief that someone has intentionally committed sophisticated, often high-value fraud against the DWP” and not against “an average benefit claimant who has accidentally overclaimed by £20”.

She said the “intention is that reasonable force will be used only against things, not people”, which “will be made clear in guidance and training”, and that the powers “will enable DWP-authorised investigators to use reasonable force to access locked cabinets and digital devices once they are lawfully on a premises”.

She said the law would also require that any application to the courts for a warrant to access a property would have to include “information about any vulnerable individuals who may be present on the premises”.

But an amendment proposed by Lord Vaux to remove from the bill the power to use reasonable force against individuals was approved by peers by 212 votes to 144.

Among the disabled peers voting in favour of Lord Vaux’s amendment were Liberal Democrats Baroness [Celia] Thomas and Lord Addington, and Conservatives Lord [Kevin] Shinkwin and Lord [Chris] Holmes.

No Labour peers voted in favour of his amendment.

It is not yet clear whether DWP ministers will attempt to re-introduce these powers into the legislation before the bill becomes law.

A DWP spokesperson said this morning (Thursday): “The amendment is subject to parliamentary process and will be discussed in the house in the next stages of the bill.”

The bill is due to return to the Lords today for its third reading, before it returns to the Commons for discussion of amendments made by peers.

23 October 2025

 

 

Reeves refuses to apologise for repeating false claim that social security spending is spiralling

Chancellor Rachel Reeves has refused to withdraw a misleading and inaccurate statement that scapegoated disabled people and other benefit claimants for the country’s economic problems.

In an interview with Channel 4 News, Reeves repeated the false claim that welfare spending was spiralling out of control.

She told the programme: “We can’t get to the end of this parliamentary session and have done nothing, because if more and more of our money that we spend as a government is spent on welfare, you’ve got less for the NHS, you’ve got less for schools.”

It came as government sources briefed the Times newspaper that Reeves was intending to raise revenue from the Motability disabled people’s vehicle scheme by £1 billion a year in the budget by attacking its VAT and insurance premium tax exemptions (see separate story).

Disability News Service (DNS) told the Treasury this week that Reeves should be aware that her statement on “welfare” was highly misleading.

This is because figures from the Office for Budget Responsibility reported last autumn* that welfare spending was stable as a proportion of GDP, and that it was lower than it was in 2015-16.

DNS shared figures with the Treasury that showed that the share of GDP was predicted to be 11.1 per cent in 2024-25; the same in 2025-26 and 2026-27; to fall to 11.0 per cent in 2027-28 and 2028-29; and to rise to 11.1 per cent again in 2029-30.

The Treasury, Department for Work and Pensions, and political parties, including Labour and the Conservatives, have been repeatedly shown these figures by DNS, and yet senior figures across the parties continue to claim that spending on social security is “spiralling”.

Last week, the Financial Times agreed with months of reports and analysis from DNS, academics and disabled campaigners, and concluded: “Costs are not spiralling.

Projected total welfare payments, at around 11 per cent of national income a year, are lower than when David Cameron was prime minister even though there are more pensioners.”

Chris Giles, the paper’s economics commentator, added in his article: “The welfare system is far from perfect but it cannot be blamed for your taxes rising in November’s Budget.”

The Treasury this week refused to comment on why Reeves and fellow ministers repeatedly claim that social security spending is spiralling out of control when it is not, and whether she would apologise.

*Chapter five of OBR’s Economic and Fiscal Outlook – October 2024, chart 5.2, shows welfare spending as a percentage of GDP: https://obr.uk/efo/economic-and-fiscal-outlook-october-2024/

23 October 2025

 

 

Timms goes back on his word by refusing to provide crucial evidence of Access to Work cuts

The disability minister has gone back on his word by refusing to provide crucial information that would help expose a “perverse”, secret programme to restrict grants made by the Access to Work disability employment scheme.

Sir Stephen Timms told Disability News Service (DNS) at Labour’s annual conference late last month that he would provide the date on which he approved an order from senior civil servants for Access to Work (AtW) staff to be more “scrupulous” in how they applied guidance.

Now, three weeks on, he is refusing to reveal this date.

This will make it harder to secure the order through a freedom of information request.

Instead of responding to an email from DNS seeking the information, Sir Stephen forwarded the message to the Department for Work and Pensions (DWP) press office.

But DWP’s press office also failed to provide the information.

It said in a statement: “No changes have been made to Access to Work policy.”

Instead of providing the date of the order, it provided background information which failed to clarify when, or if, Sir Stephen approved a document about the guidance, but suggested that the changes were put into effect through additional training for AtW case managers.

The briefing did confirm that Sir Stephen had been made aware that this work was taking place.

The DWP press office had failed to clarify the information it provided by noon today (Thursday).

Last week, DNS reported how official government figures revealed the first signs that ministers had been engaged in a “perverse” programme to secretly restrict AtW grants.

The DWP figures showed that the number of people who had any AtW provision approved fell by more than 10 per cent in the year to March 2025.

The figures also showed that the number of disabled people who had AtW requests for aids and equipment approved plunged by 16 per cent on the previous year, while approvals for support for travel to work fell by 14 per cent, and the number of approvals for mental health support dropped by seven per cent.

Figures from the last six months – not due to be published for another 12 months – will eventually show how the cuts to essential funding are “far more severe” than those shown in last week’s DWP figures, one disabled expert has predicted.

In the interview at the Labour conference in Liverpool last month, Sir Stephen admitted that he had seen a submission, which he had approved, which stated that AtW guidance would now be “scrupulously applied”.

He said he could not remember when he saw the submission, but his special adviser told DNS: “I think we need to check.”

Sir Stephen then said he would check in DWP records when this took place, and he added later in the conversation: “But what I can check, John*, is when this happened.”

*DNS editor John Pring

23 October 2025

 

 

Disabled people describe impact of ‘very unfair’ extra costs caused by DWP’s universal credit migration

Disabled people have described their anger with the Department for Work and Pensions (DWP) for failing to warn them of the significant hidden costs – which can be more than £2,400 a year – of transferring onto universal credit from their old “legacy” benefits.

They have come forward to share how the unexpected hit to their finances caused by moving onto universal credit from employment and support allowance (ESA) has impacted their ability to cope with the cost-of-living crisis.

They are facing extra costs from their local authority as a result of the move, even though DWP has previously insisted that they would – at least initially – be no worse off on universal credit than on their previous benefits once they were forced onto the new system through the “migration” process.

But Disabled People Against Cuts (DPAC) revealed last week that it had been hearing from disabled people who have been hit hard in two different ways by this process.

Some disabled people have seen their care charges to their local council increase, sometimes by more than £50 a week.

Other disabled people are receiving a much lower discount under their local council tax reduction scheme after migrating onto universal credit.

DPAC said this week that disabled people had continued to come forward to describe the extra costs they were facing, which appear to vary across the country.

DPAC is hoping a legal action might be possible, and it is still looking for disabled people who are eligible for legal aid and might be willing to take a legal challenge with DPAC’s support.

It also encouraged those affected to complain to their MPs, and to continue to share their stories with DPAC.

Linda Burnip, DPAC’s co-founder, said: “Many people are losing over £200 a month which is more than £2,400 a year from already meagre social security payments and that has to be wrong.

DPAC demand DWP explain what it knew and when about this added cost to the migration process.”

This week, disabled people have described to Disability News Service (DNS) the impact of the unexpected costs of migrating to universal credit from ESA.

Mark Catlin, from Hertfordshire, is now having to pay £30 a month in council tax – rather than nothing – after he was moved onto universal credit from ESA in May this year.

He assumed it was a mistake when he received the bill but when he called the council he was told that the council tax reduction for those on ESA was 100 per cent but was just 75 per cent if the same person moved to universal credit.

Catlin told DNS it was “not easy” to cope with the extra monthly cost.

He said he believed DWP did not care about the extra payments, and that most of its advisors were “not even aware of these changes; if they are, they’re not making people aware of them”.

And he said he was “pretty disgusted” with the council.

He said: “I don’t understand how they can justify the reduction change just because the name of the benefit changes, when there’s been no change in financial entitlement, especially with the cost of living being so changeable.”

Another disabled claimant, Lisa, from Plymouth, moved onto universal credit in June.

She told DNS: “I heard all the government statements saying those moving from legacy benefits would have their entitlement protected and income would stay the same.”

But she found out that the change meant her council expected her to pay 40 per cent of council tax charges, rather than the previous level of 20 per cent, which means an extra £41 a month.

Lisa, who has long-term health conditions, said the extra charge was “very unfair”.

She said: “It’s becoming more difficult to cover expenses and costs to just pay bills and food each month.

It has become clear the DWP and government ministers have wiped their hands of any responsibility of this extra charge, saying it’s up to the individual councils what rates they set their council tax levels at.”

Labour’s Debbie Abrahams, who chairs the Commons work and pensions committee, was not available to comment on the concerns this week.

Meanwhile, DWP has again refused to say if and when it became aware of the issue, whether it was concerned, or if it would take any action.

Last week, it issued the following statement: “We support millions of people through universal credit every year – including those who have moved from ESA – and it’s a top priority for us to ensure that people receive the help they are entitled to.”

23 October 2025

 

 

Ministers’ refusal to raise limit on accessible housing grants is discriminatory, secret reports admits

The continuing refusal of ministers to raise the upper limit on a scheme that helps disabled people make access improvements to their homes is discriminating against some of those with higher support needs, a secret government report has admitted.

The internal review into how the upper limit on disabled facilities grants (DFG) is working was obtained by Disability News Service (DNS) through a freedom of information request, after care minister Stephen Kinnock refused to publish it.

The DFG scheme helps councils in England fund access improvements to disabled people’s homes, but the upper limit of £30,000 was set in 2008.

Councils have a legal duty to provide adaptations for disabled people, subject to a needs assessment, eligibility criteria and a means test, and can also provide funding above the upper limit at their own discretion.

Adaptations can include stair-lifts, level access showers, widening doors, ramps, grab rails, raised toilets, access to gardens, height-adjusted kitchens, heating systems, loft conversions and home extensions.

Seven years ago, an independent review commissioned by the government recommended increasing the limit in line with inflation, and introducing regional variations.

Last year, shortly before the general election, a report by the cross-party levelling up, housing and communities committee highlighted “many shortcomings” in the DFG system, and called on ministers to review the £30,000 upper limit and set new regional upper limits which took account of inflation and construction costs.

Now an equality impact assessment carried out as part of a secret internal review has found that the upper limit of £30,000 is “likely to be adversely impacting small numbers of disabled people in some groups, including children with complex needs and working-age adults”.

It also found that disabled people of all ages “with severe conditions such as multiple sclerosis, Parkinson’s disease or those suffering from acquired brain injuries are also disproportionately negatively impacted by the current upper limit”.

It found that disabled people affected by the upper limit can see vital adaptations delayed as they seek additional funds for the work, “or in the worst cases, the adaptations are not provided”, which can have a “significant detrimental impact on disabled people and their families”.

But it concluded that this discrimination was “proportionate to achieving the aims of the upper limit” because it allowed councils to manage their DFG budgets and support “the majority of eligible individuals to receive an adaptation”.

The secret report added: “In reality, given the benefits of having an upper limit, it [is] unlikely that the DFG will ever be a suitable means of funding the entirety of high cost adaptations.

There is always likely to be some impact on that high cost cohort, which is always likely to require some additional funding from alternative sources.”

The report concluded that ministers needed to “continually keep the policy under review and improve our evidence and analysis”, particularly to fill “evidence gaps” on disabled people who have “dropped out of applying for a DFG or experienced delays because of the upper limit”.

It also concluded that there were “clear benefits for keeping an upper limit in place” because it “provides a mechanism that helps ensure proper conversations are held about alternatives to adapting the home, and to control costs”.

But it said the government should decide “whether the current level of the upper limit is still appropriate and whether it should be raised”.

Mikey Erhardt, policy lead for Disability Rights UK, said: “The continued refusal of successive governments to raise the upper limit is as frustrating as it is counterproductive.

Given the state of local authority finances, meaning top-up payments are unlikely, disabled people with the highest needs, whose lives could be changed by adaptations, will likely not get the changes they need to live safely in their own homes.

The government’s continued housing policy of prioritising the needs of developers, private landlords, and big business necessitates the continued use of systems like the disabled facilities grant.

Simply put – there are no accessible homes, and those actors have no intention to build them, so we need DFG to create them.

This report makes clear the goals of the government: short-term cost saving and cost saving alone.

The report makes clear the dangers of not raising the DFG ceiling.

We are calling on the government to do the right thing and raise the ceiling and link it to inflation so no more disabled people have to live in dangerous, inaccessible homes.”

Svetlana Kotova, director of campaigns and justice at Inclusion London, also criticised the government for failing to increase the upper limit.

She pointed to Inclusion London’s Barriers at Home report, which found earlier this year that one in three people with mobility impairments do not have level access in their own homes.

She said the government’s failure to raise accessibility standards on new homes and its failure to increase the upper limit on DFGs meant that “new, inaccessible homes will be built, and the adaptations we need won’t be fully funded”.

She said: “It is a scandal that in our country, disabled and older people now have to fundraise to ensure they can access the bathroom, bedroom or get out of the house.

The government can change this: make sure everyone who needs adaptations can get them, and raise minimum accessibility standards for new homes, so that 10 per cent meet the M4(3) wheelchair-user standard, and the rest meet the M4(2) accessible and adaptable standard.”

The government’s internal review found that most DFGs above the upper limit went to working-age adults (40 per cent) and disabled children (43 per cent), according to reports by councils from 2023-24, with older people receiving another 16 per cent.

The average cost of a high-value adaptation ranged from £47,206 in the north-east of England to £56,685 in the south-west.

The most expensive DFG to be reported by local authorities cost £159,000.

The average cost of a DFG in 2023-24 was about £10,000.

Landlords, the NHS and social services rarely contribute to higher-cost adaptations, so any additional funding must usually come from either the local authority or the disabled occupant.

Most councils told the government that their current budget was either not big enough to meet demand for DFGs, or that they would need to reduce their discretionary grants if budgets do not increase in the future.

DNS requested a copy of the internal review from the Department of Health and Social Care (DHSC) after care minister Stephen Kinnock told Liberal Democrat MP David Chadwick last month that the report would not be published.

Last October’s budget saw an £86 million increase in central government spending on DFGs, which was set to reach £711 million in 2025-26.

DHSC and the Ministry of Housing, Communities and Local Government (MHCLG) share responsibility for DFG policy.

They agreed to review the upper limit after a judicial review claim challenged its legality.

DHSC had failed to comment on the internal review by noon today (Thursday).

23 October 2025

 

 

Ministers finally announce progress on ‘liberty safeguards’, but also challenge vital definition

The government is set to push ahead with a long-delayed new system of safeguards that could have a significant impact on service-users who are unable to consent to restrictions placed on their liberty in health or social care settings.

There have been years of delays to the introduction of Liberty Protection Safeguards (LPS), which will replace the current Deprivation of Liberty Safeguards (DoLS) in England and Wales.

But care minister Stephen Kinnock finally announced this week that there will be a new consultation on the new LPS system “in the first half of next year”.

The announcement came as the Supreme Court this week heard a case brought by the Northern Ireland attorney general, which is examining the definition of “deprivation of liberty”.

The case challenges two 2014 rulings by the Supreme Court – one of which became known as the Cheshire West ruling – which significantly widened the definition of who would be protected by the DoLS system.

The Cheshire West ruling found that a disabled person was being deprived of their liberty if they were obliged to live in a particular place “under continuous supervision and control”, and they were not free to leave their homes or move away without permission, and they could not consent to decisions about their welfare.

It also found that such people needed “a periodic independent check on whether the arrangements made for them are in their best interests”.

But the Department of Health and Social Care has been heavily criticised for intervening in this week’s case and for asking the Supreme Court to set aside the Cheshire West ruling.

The 2014 rulings led to an increase in referrals from 13,700 in 2013-14 to 322,455 in 2023-24 and a backlog of 123,790 cases.

The rulings eventually led to the drawing up of the LPS system, based on a report by the Law Commission.

The last government had originally planned to bring in LPS in October 2020, but its implementation was repeatedly delayed by Conservative ministers.

The Department of Health and Social Care said this week that the new system would “deliver improved protection and an easier and improved system”.

It said the current DoLS system was “bureaucratic and complex” and led to “poor understanding and application of the law by professionals, unacceptable distress for families” and the lengthy backlog, which placed pressure on the social care system.

Kieran Lewis, rights and migration policy manager at National Survivor User Network (NSUN), said: “We urge the Department of Health and Social Care and the Ministry of Justice to treat their consultation on the Liberty Protection Safeguards with the care it deserves, making it genuinely accessible and actively seeking out people subject to deprivations of liberty, as well as their families and carers, to shape it.

We also echo calls to defend the Cheshire West judgement and ensure that any changes in the law around deprivation of freedom are made in close collaboration with disabled people and their organisations.

This is the bare minimum, considering the complete lack of trust that disabled people now have in this government, which continues to demonstrate its lack of real concern for them.”

Kinnock said the consultation was about “fixing a broken system by hearing directly from those with lived experience and their families”.

He said: “There is currently a shameful backlog in the system of unprocessed cases under the current system which means that people’s rights are not being protected.

At the same time, we know that many people in the system and their families find these intrusive assessments distressing.

This is about ensuring we are fully focused on the most vulnerable people in our society and their families – understanding their needs, ending the maze of referrals and paperwork, and delivering the best protections and safeguards possible.”

The responses from next year’s consultation will inform a new code of practice to the 2005 Mental Capacity Act, which will be laid before parliament.

23 October 2025

 

 

Other disability-related stories covered by mainstream media this week

Families with children left disabled by long Covid have told a national inquiry “it’s almost as if we don’t exist”. Thousands of children have been left disabled and often bedbound due to the post-viral syndrome which their parents say much of the NHS still refuses to recognise. They told the Mirror of their shock at discovering from the UK Covid-19 Inquiry that medics were told during the pandemic not to “label” children with long Covid – meaning thousands have never been properly diagnosed: https://www.mirror.co.uk/news/uk-news/covid-19-inquiry-reveals-forgotten-36115749

Placing debt and benefits advisers in GP surgeries could ease pressure on the NHS and improve patients’ health across the country, a pilot scheme has shown. The Financial Shield project, run across 34 GP practices in south London, found that more than half of participants reported improvements in their physical or mental health after receiving tailored financial support, with around one in three saying they needed fewer GP appointments afterwards. The scheme has government backing: https://archive.ph/tbQWL

Teachers, not councils, will take a greater role in assessing children with special educational needs and disabilities, the education secretary has revealed in an interview with The i Paper. Bridget Phillipson insisted that “formal assessment processes” would still take place but signalled plans to shift responsibility from local authorities to schools and teachers as she seeks to bring in higher overall standards of support in mainstream schools: https://archive.ph/AKoZj

Long-awaited plans to overhaul the crisis-hit special educational needs and disabilities system have been delayed. The schools white paper had been due to be published this autumn but will now be released next year. The decision is understood to have been made extremely recently, with education secretary Bridget Phillipson having given a speech on the white paper just last week: https://www.mirror.co.uk/news/politics/long-awaited-send-plans-delayed-36116454

Decades of efforts by mainstream politicians to roll back welfare programmes have given rise to an “extremely dangerous” discourse that has helped fuel the rise of the far right and right-wing populists in countries around the world, a top UN expert has told the Guardian: https://www.theguardian.com/world/2025/oct/21/welfare-cuts-have-fuelled-rise-of-far-right-and-populism-top-un-expert-says

One in 12 secondary pupils report being put into school isolation rooms at least once a week where they often spend in excess of eight hours, missing more than a full day of lessons, according to research. Children with special educational needs were more than twice as likely to be placed in isolation, otherwise known as internal exclusion, while students from low-income backgrounds were also disproportionately affected: https://www.theguardian.com/education/2025/oct/23/one-in-12-secondary-pupils-put-in-isolation-rooms-at-least-once-a-week-study-finds

An autistic man who volunteered for four years at Waitrose has lost his role after his mum asked if he could be paid. Tom Boyd stacked shelves and emptied stock cages at a branch in Cheadle Hulme, Greater Manchester, while being accompanied by a support worker. He began in 2021 and has now racked up more than 600 hours of volunteering: https://www.mirror.co.uk/news/uk-news/waitrose-sacks-autistic-volunteer-after-36106706

23 October 2025

 

News provided by John Pring at www.disabilitynewsservice.com

Jun 262025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

Disabled MP who quit government over benefit cuts tells DNS: ‘The consequences will be devastating’ 1

Disabled peers plan to ‘amend, amend, amend, amend, amend’ after assisted dying bill reaches Lords 4

Minister finally admits that working-age benefits spending is stable, despite months of ‘spiralling’ claims 5

This bill opens the door to scandal, abuse and injustice, disabled activists say after assisted dying bill vote 7

Timms says cuts must go ahead, despite being reminded of risk that disabled claimants could die 10

Absence of disabled people’s voices from assisted dying bill has been ‘astonishing’, says disabled MP 12

Timms misleads MPs on DWP transparency and cover-ups, as he gives evidence on PIP review 14

Ministers are considering further extension to disability hate crime laws, after pledge on ‘aggravated’ offences 16

Making all self-driving pilot schemes accessible would be ‘counter-productive’ and slow us down, says minister 17

Involve disabled people ‘meaningfully’ from the start when developing digital assistive tech, says report 19

Other disability-related stories covered by mainstream media this week 21

 

Disabled MP who quit government over benefit cuts tells DNS: ‘The consequences will be devastating’

Disabled Labour MP Vicky Foxcroft has described how she was left with “no choice” but to resign as a whip over government plans to cut billions of pounds a year from disability benefits. 

In her first interview since releasing her resignation letter last Thursday, she told Disability News Service (DNS) that the four years she spent as a shadow minister for disabled people had played a significant part in her decision.

And she also made it clear that the backbench rebellion over the cuts is “huge”, with many of the critics MPs who are “normally very loyal” to the government.

That became clear on Tuesday, when fellow Labour MPs – led by 11 select committee chairs – published a “reasoned amendment” which “declines to give a Second Reading” to the bill, although this is unlikely to be selected to be voted on by the speaker.

She has signed the amendment, which is currently supported by 162 MPs, including 126 other backbench Labour MPs.

Foxcroft says she was taken aback by the number of Labour MPs who approached her on Friday to share their concerns about the bill, as she came to the House of Commons chamber for the assisted dying bill debate (see separate stories).

“Many have come to me to share their concerns, to say they agreed with what I had said in my resignation letter,” she says. 

“And some of these were colleagues that you wouldn’t maybe have expected to have expressed concerns. 

“These are not the usual suspects from the left of the party, these are people who are normally very loyal and want to be loyal but know the government needs to change this.

“I mean, I’m the same myself, but I was left with no choice.

“I don’t want to speak out like this but the government needs to listen, so I will use my voice to amplify voices that are being ignored.”

It’s clear from Sunday’s interview that if she had thought she could effect change from within government, she would not have resigned, but she made her decision to quit when the bill was published last Wednesday, and she saw that ministers had made almost no changes since March’s green paper.

The next day, she resigned through a letter to the prime minister.

In fact, as DNS reported last week, the measures in the bill were in one respect even worse than those suggested by Pathways to Work, because of the misleading reference in the green paper to a premium for those in the “severe conditions group”, which the bill shows will only be a premium for new claimants.

This was confirmed by the minister for social security and disability Sir Stephen Timms, when he gave evidence to the Commons work and pensions committee yesterday (Wednesday).

Foxcroft’s criticisms of the bill are fuelled by her own lived experience as a disabled MP, but also by the evidence she gathered from meeting hundreds of disabled people, including many representatives of disabled-led organisations, during her time as shadow minister.

“We all know the benefit system desperately needs reform,” she says, “but PIP isn’t and has never been about getting people back to work. 

“PIP is there to help disabled people with everyday needs. It’s an in-work and out-of-work benefit, and it’s wrong to deny support from someone who needs help to wash, dress, or use a toilet.

“The cuts will literally remove this basic dignity.

“I couldn’t vote for cuts that would make 800,000 people worse off, with 250,000 pushed into poverty, including 50,000 children. That’s a real human cost. 

“And these cuts don’t make human needs disappear. They just shift the costs onto already over-stretched services such as the NHS, social workers and unpaid carers.

“It’s a false economy, with devastating consequences.”

She says she also understands disabled people’s concerns – evidenced in The Department*, by DNS editor John Pring – about the many deaths of claimants, including an estimated 600 from suicide during the incapacity benefit reforms, when there were similarly significant cuts and reforms to out-of-work disability benefits in the early 2010s under the Conservative-led coalition. 

She is reading the book and is aware that safety and safeguarding must be a key priority with any reforms, because of the risk of unintended consequences.

During Sunday’s interview, she repeatedly stresses the crucial part played in her decision to resign by her four years as shadow minister for disabled people, leading up to last year’s general election.

She says her engagement with disabled people while she was shadow minister showed her just how badly many of them had struggled through 14 years of Conservative government, and she stresses her admiration for those she worked with, even those who “shouted” at her when her party did not go far enough on disability policy.

“They were desperate to see the change that a future Labour government would bring for them,” she says.

“I said as shadow minister that we would work with them to ensure that changes that affected them improved their lives, but that has not happened.

“These changes we’ll be voting on have not been consulted on with disabled people and disabled people’s organisations, and it’s so important to make sure that consultation happens and their voices are heard when such big changes are taking place.

“That is one of the reasons I resigned.”

She made the same point in Friday’s debate on the assisted dying bill – which she voted against – when she spoke of the “negligible” consultation there had been with disabled people about the legislation, and told MPs: “Disabled people’s voices matter in this debate, and yet as I have watched the bill progress, the absence of disabled people’s voices has been astonishing.”

She is hoping ministers will receive this subtle message: that government must engage with disabled people right from the start of any policy-making process that will affect them.

Despite several questions from DNS, she refuses to criticise work and pensions ministers, including Liz Kendall.

But asked for her message to the prime minister, she is blunt. “He needs to revisit it,” she says.

Despite that bluntness, and her high-profile decision to quit as a whip, her resignation letter makes clear that she is fiercely loyal to the government, but just intensely frustrated at the deeply harmful proposed cuts to the universal credit health element, and particularly to PIP.

She points to government policies that would allow people on out-of-work disability benefits to try work without fear of having to go through the assessment process again if it doesn’t work out; reform Access to Work; introduce disability pay gap reporting; and ensure all disabled claimants have access to a supportive work coach if they need one.

But she says: “We need to be doing those things first before we even start considering how we are going to be reforming disability benefits. 

“And when we do eventually do that, we need to make sure that we do it with disabled people and organisations run by disabled people.”

She also lays a large part of the blame at the door of the Department for Work and Pensions (DWP) itself.

She knows from her time as shadow minister that many disabled people have zero trust in the department.

“This bill is most definitely not the right way to persuade disabled people to trust DWP,” she says, “and certainly not when we’ve not worked with them to ensure that we get this right.”

Speaking on Sunday morning, three days after her resignation letter was published, she says she is finally finding time to think after the “whirlwind” media storm it caused, but she insists she has no feelings of regret, although she is sad she had to take the step she did.

“I’m sad to leave my colleagues in the whips office, who I think are absolutely brilliant and do really good work,” she says. 

But there is also a keen sense that she knows time is running out to persuade the government to back off, with the bill’s second reading set to take place on 1 July.

“I want to see the government change this. Desperately. 

“They need to listen to what I’m saying, to what Labour MPs are saying, and what disabled people are saying.”

26 June 2025

 

Disabled peers plan to ‘amend, amend, amend, amend, amend’ after assisted dying bill reaches Lords

The disabled peer who has led UK opposition to the legalisation of assisted dying for decades has pledged to work to make a bill passed by MPs so “tight” that only a very few people will be able to take advantage of it.

Baroness [Jane] Campbell said she believed that if the legislation made it easy for people to take advantage of the new laws – if they are eventually approved by parliament – then “people for whom this bill was never intended will die in their droves”.

She was speaking to Disability News Service (DNS) just minutes after MPs had voted by 314 votes to 291 on Friday afternoon to approve the terminally ill adults (end of life) bill, which will legalise assisted suicide in England and Wales for some people diagnosed with a terminal illness, in certain circumstances.

The crossbench peer, who herself has a progressive condition, said she believes her task as a member of the House of Lords – which will now examine the bill in detail – will be to “amend, amend, amend, amend, amend, so it becomes so tight that anyone would find it difficult to get it”.

She also said her task will be to ensure there is no “slippery slope” that will allow the bill to be extended to an ever wider group of people.

But she said that even if she and fellow peers were successful in amending the bill to make it safer, they were “not miracle workers”.

Baroness Campbell, founder of Not Dead Yet UK (NDY UK), which sees legalisation of assisted suicide and euthanasia as “deadly forms of disability discrimination”, said: “There will be mistakes and people will die, whom if they’d had the right support could have lived a good life until they died, but what else can we do?”

She added: “Why choose people like us to help to die when they can so easily put in support and care to help people live dignified lives at home so that they can cope with the bad times, and get through them.

“Because people do get through them and it is possible to have a good death with a progressive or terminal illness. This is what people forget.”

Her fellow disabled crossbench peer, Baroness [Tanni] Grey-Thompson, who has also spent years opposing legalisation, supports Baroness Campbell’s strategy.

She said: “There are very few safeguards in [the bill] currently. Very few amendments were voted on.”

And she said there was no protection in the bill for people with Down’s syndrome or others with learning difficulties.

Before the vote, Baroness Grey-Thompson told DNS that there would be many amendments proposed in the House of Lords, if the bill was passed by the Commons.

She said: “There’s so little safety in this bill, and so little understanding of the lives of disabled people, and the current government’s plans for welfare.”

Last week, NDY UK released polling showing that two-thirds (65 per cent) of disabled people believe that if benefits are being cut – as they are currently through the Labour government’s universal credit and personal independence payment bill – disabled people living in poverty may be likely to seek an assisted suicide instead of struggling financially.

26 June 2025

 

Minister finally admits that working-age benefits spending is stable, despite months of ‘spiralling’ claims

A minister has finally admitted that spending on working-age benefits is stable, and is not spiralling out of control, despite months of claims from his own department and fellow ministers.

Sir Stephen Timms made the admission as he told the Commons work and pensions committee that ministers had decided not to carry out a public consultation on the billions of pounds of cuts to personal independence payment (PIP) and the disability element of universal credit because of the “urgency of the changes needing to be made”.

He was giving evidence in the committee’s final session of its inquiry into the government’s Pathways to Work green paper.

Sir Stephen, minister for social security and disability, said that spending on PIP had risen in real terms from £12 billion in the year before the pandemic to £22 billion last year, which he said was “not a sustainable trajectory”.

But the committee’s chair, Labour MP Debbie Abrahams, asked if he accepted the evidence of Ben Geiger, professor of social science and health at King’s College London, who had told the inquiry that working-age social security spending had remained at about five per cent of GDP* for the last decade.

Abrahams also asked Sir Stephen if he accepted that the rise in the number of PIP recipients has been due to demographic change, the nation’s poor health, and the increase in the state pension age.

The minister replied: “Well, yeah, I mean, much of what you say, I completely accept.”

He added: “I think that working-age social security spending as a percentage of GDP isn’t much more now than it was before the 2008-2010 recession, but as you say, the share on disability and incapacity benefits is very substantially up.”

He said most of this increase was in the last six years, and that while the “incidence of disability” had risen by about 17 per cent since just before the pandemic, the incidence of “benefit claiming” had risen by 34 per cent. 

Abrahams suggested an explanation for this was that more disabled people were needing to claim PIP because of financial pressures.

Sir Stephen agreed, and suggested that the government needed to cut spending on PIP, even though disabled people were only claiming it because they were struggling due to the cost-of-living crisis.

He said: “I think you’re absolutely right. I’m sure that the cost-of-living challenges are a very big factor in what’s happened.

“The people who may well have always been eligible but have not in the past claimed benefit are now doing, and that’s what’s driven this very substantial increase.

“As I say, the current trajectory is not a sustainable one and it is not in the interest of people who depend on PIP for it to be on a financially unsustainable trajectory.”

Disability News Service reported in February that claims by ministers, opposition politicians and the media that social security spending was “spiralling out of control” were false and “ideological”.

Last August, chancellor Rachel Reeves said the previous government had “let welfare costs spiral out of control”.

In January, the Department for Work and Pensions (DWP) said in a press release on benefit fraud that it wanted to “tackle the spiralling welfare bill”.

And in February, in a press release on disability employment, DWP claimed again that benefits spending was “spiralling”.

*Gross domestic product, the size of the country’s economy in a particular year

26 June 2025

 

This bill opens the door to scandal, abuse and injustice, disabled activists say after assisted dying bill vote

Disabled people’s lives will be increasingly in danger because of MPs’ failure to understand the risks posed by the assisted dying bill, devastated activists warned on Friday after the legislation was approved by the House of Commons.

Disabled activists had started gathering outside parliament at 6.30am last Friday in preparation for a crucial debate on the terminally ill adults (end of life) bill before a vote that determined whether it passed to the Lords.

The bill was eventually passed by the Commons by 314 votes to 291 on Friday afternoon, although disabled MPs strongly opposed the legislation (see separate story).

Before the vote, supporters of Disabled People Against Cuts (DPAC) and Not Dead Yet UK (NDY UK) held up traffic in front of the House of Commons with a last-minute direct action, accompanied by chants of “we are not… dead yet”. 

Author and activist Ellen Clifford, who has helped lead disabled people’s opposition to the bill over the last year, said she trusted the Lords to improve the bill more than MPs, some of whom she said had acted on “naked ambition” and the principle of assisted dying, rather than what was in the bill.

She said she hoped the bill’s passage through the Lords would improve the safeguards and provide opportunities “to show what a shambles the bill is”.

Among those disabled people outside the Commons was musician and activist John Kelly, who said after the vote was announced: “The truth is, our voices haven’t been listened to. 

“What this does is open the door for injustice. 

“To rely on a panel to decide my life of social workers, and psychiatrists, have you not read how many injustices and mistakes those people have made, how much abuse and how many rights have been denied disabled people?

“And what they have done is open the door to allow in yet more scandals, yet more abuse.”

Disabled activist Anna Landre told Disability News Service (DNS): “A lot of us are scared about the prospect of enshrining a state-funded ability to die when we don’t have properly-funded state services to live with dignity, let alone to thrive, let alone to get disabled people into work, like this government claims it wants to do.”

She said: “I most certainly don’t feel safer now.

“I think it’s going to create an atmosphere for disabled people that is increasingly unsafe, when our services are being stripped from us, when we’re going to have to fight even harder to get the basics, the scraps that we can already barely access and now in any medical, in any doctor’s office we enter, we face the prospect of being offered a death, of being offered [an assisted suicide].”

She said it was particularly unsafe for disabled people who face multiple marginalisations, including disabled women, who are more likely to be in an abusive relationship; disabled people of colour, who are more likely to be doubted by their medical practitioners; and disabled people of low socio-economic status, “who are looking at not being able to pay rent next month”. 

She added: “As a disabled woman, I’ve been trying to access a cervical cancer screening for over two years. 

“I wish this government would work on that rather than working on streamlining my access to suicide.”

Another leading activist, Simone Aspis, said that, as a disabled woman with learning difficulties, it was “a very sad day for our community”.

She said the bill was “really, really dangerous”.

She said she believed that, for her and other people with learning difficulties, assisted dying will become the “de facto” treatment option given to them by doctors.

She said: “The government keep saying that there is not enough money to go around, so we are going to spend money on creating an assisted dying service? 

“Where is this money going to be found? It’s going to be taken away from education, from care, from housing, from anything that supports us to have good lives.”

Aspis also pointed out that people with learning difficulties had been “excluded from this debate” because the bill had not been made available in easy read. 

Dermot Devlin, co-founder of DPAC Northern Ireland, said that, with the government’s cuts to disability benefits coming in, it was “a dangerous country now if you’re disabled… but we will keep fighting back.”

Chelsea Roff, a researcher and founder of the US-based charity Eat Breathe Thrive, who has fought for months to alert MPs to the risks the bill poses to people with eating disorders, said: “I’ve spent the last six months trying to raise awareness about this loophole, and hundreds of experts have warned parliament: charities, people with eating disorders, physicians, doctors, lawyers…

“I did that because I thought it was the right thing to do because I thought if MPs understood the evidence, they would act on it and amend the bill.

“I’m really disappointed and I think the evidence was minimised, it was dismissed, it was not meaningfully engaged with.”

Michael Lorimer, from DPAC Northern Ireland, said he was concerned that the bill gave ministers “massive executive powers”.

He said: “Given what they’re doing on benefit cuts, we can’t trust them to represent our best interests in terms of implementing this legislation. 

“It’s getting to the stage where Labour are a clear and present danger to disabled people’s lives here because of the benefit cuts and because this bill has gone through, giving them almost unlimited powers in terms of how they shape this legislation. 

“And they’ve been clear through the benefit cuts that they don’t value our lives.”

Jason de Souza said he believed the new law would be “a catalyst for a much wider agenda against disabled and vulnerable people, especially people who are in a situation where they need palliative care and support”.

Earlier, disabled activists had gathered nearby to share their final thoughts before the vote, after months of campaigning.

Devlin had told fellow protesters: “As a disabled person, this assisted dying bill breaks my heart. It terrifies me. 

“It tells me that my life, already pushed to the margins, already made harder by endless cuts and cruelty is… now disposable, it [turns] the language of choice and dignity into something darker.

“I want to live, I deserve to live, but this bill makes it clear to them that lives like mine are just too expensive to bother saving.”

The disabled crossbench peer Baroness [Tanni] Grey-Thompson fought back tears as she thanked disabled activists for attending the protest “despite the discrimination they face in their daily lives and inaccessible public transport”.

She said there was “so little safety in this bill, and so little understanding of the lives of disabled people, and the current government’s plans for welfare”.

Kevin Caulfield, former chair of Hammersmith and Fulham Coalition Against Cuts, said: “The bill, and what is happening with the universal credit and personal independence payment bill, really indicates disabled people’s position in society, because we have been sidelined all the way through this process. 

“People with life-limiting illnesses are disabled people and that’s in practice and in law and yet they have successfully managed to portray this bill as having very little to do with disabled people, and that’s a f*****g disgrace and it’s disgusting and the same is happening with the benefit cuts.”

Caulfield was given a terminal diagnosis 28 years ago, and says he “might well have decided to take the option” of an assisted death if it was available then “because I was a newly disabled person, I didn’t have access to other disabled people, I had no access to mental health support, and it may well have seemed like a reasonable option”.

But he said he was “still here 28 years later”, and there were “going to be many people in a similar situation to me, tens of thousands of people that will end up being dead as a by-product of this legislation”.

Disabled actor, writer and activist Liz Carr, said the number of disabled activists who had attended the protest was “amazing” in the context of spending cuts and “the struggle to survive”.

She told fellow activists: “You make me know that we’re right and that even if this goes through today and goes through to the Lords, we just keep going there because we know where this goes, we know what it means, we know how it will impact our community and other communities.”

Paula Peters, who had been the first to start the protest, at 6.30am outside parliament, said: “Whatever the outcome, we keep going, and we keep fighting, and we keep resisting… and we are not dead yet.”

Jamie McCormack, another disabled activist who refused to accept defeat, said: “We will fight on, we will fight for assistance to live, not to die. 

“We will fight to our very last dying breath.”

And George Fielding told fellow activists: “Our most precious public services, and the things on which we all rely, rely on doing no harm. 

“This bill will do harm; its very premise is to kill people, it’s a pre-designed process. 

“We are on the right side of history, always have been, and the resistance starts as soon as we hear the result today.”

26 June 2025

 

Timms says cuts must go ahead, despite being reminded of risk that disabled claimants could die

The minister for social security and disability has insisted that billions of pounds a year of cuts to disability benefits must go ahead, despite the risk that they will once again cause countless deaths of disabled claimants.

Sir Stephen Timms was giving evidence yesterday (Wednesday) to the Commons work and pensions committee about plans to cut billions of pounds a year from spending on personal independence payment (PIP) and the disability element of universal credit.

He was giving evidence to the committee’s final session of its inquiry into the government’s Pathways to Work green paper.

The first question he was asked, by committee chair Debbie Abrahams, was about the health impact of the cuts on disabled people, and whether the planned new employment support and jobs would be available by the time the government begins to implement the cuts next year.

She highlighted how research in 2015 by academics at Liverpool and Oxford universities showed the reassessment of disabled people on incapacity benefit through the work capability assessment was linked to about 600 suicides between 2010 and 2013.

Unpublished research also showed how cuts in 2017 – of nearly £30 a week to payments to new claimants of employment and support allowance who were placed in the work-related activity group (WRAG) – were associated with 130,000 “new onset mental health conditions”, she said.

Conservative ministers were ridiculed when they first announced the 2017 cuts and argued that they would “incentivise” those in the WRAG to find work.

Abrahams had already asked Sir Stephen what estimates the government had made of the impact the bill would have on health, in the light of these two pieces of research, at work and pensions questions on Monday.

He said on Monday that the Department for Work and Pensions was “working very closely with the Department of Health and Social Care to ensure that the health and care needs of people who lose benefits as a result of this process are met”.

And when asked again yesterday about the risk of harm caused by the bill, Sir Stephen said the government needed to make sure that both “employment support” and “health and care support” were in place when the cuts were implemented.

He said that new investment in infrastructure and jobs would be “coming into place” in the next few years, and with “what we are proposing on all of those fronts that we will be seeing the progress that we need”.

He added: “I don’t think it would be a viable option to say, well, we’re kind of not going to do anything about the health and disability benefits for a few years and see how things go.” 

The minister was also asked by Liberal Democrat MP John Milne about government plans to halve the health element for new claimants of universal credit next year from £97 per week in 2024-25 to £50 per week in 2026-27, and to freeze it at £97 for existing claimants from 2026-27.

Sir Stephen claimed there was a “very big incentive” for disabled people to “seek to be classified” as having limited capability for work and work-related activity (LCWRA), and so eligible for the health element top-up.

He said: “If they are classified as LCWRA they get a premium which is worth more than the universal credit standard allowance, and that is unavoidably a massive magnet for people.”

He pointed to a letter he had seen in which an MP’s disabled constituent had said that being classified as LCWRA – rather than as having limited capability for work – would mean they would be paid £400 a month more, which would mean they would be “comfortable”.

But Sir Stephen Timms appeared to suggest that a disabled person being financially “comfortable” on benefits was a bad thing.

He said: “And I think this is a really serious flaw in the current system, that it presents this sort of LCWRA status as a sort of something to aim for, that ‘if only I could get to that, I would be comfortable’, when the system should not be doing that to people.

“That is a very bad feature of the current system. 

“What the system should be doing is encouraging people to aspire to work and providing the support to make work possible and feasible, and so, yeah, we are wanting to substantially reduce that incentive.”

He said this would partly be done by raising the standard allowance of universal credit by £5 a week, as well as reducing the health element.

But Milne suggested that the government was concentrating on “Treasury first, needs second”, when what it should be doing was focusing on “needs first, Treasury second”.

26 June 2025

 

Absence of disabled people’s voices from assisted dying bill has been ‘astonishing’, says disabled MP

Disabled MPs have voted overwhelmingly against the assisted dying bill, and warned that it poses a clear danger to disabled people if it eventually becomes law.

Although the terminally ill adults (end of life) bill was passed by the Commons by 314 votes to 291 on Friday afternoon, disabled MPs strongly opposed the bill.

By Disability News Service (DNS) calculations, those MPs who have publicly self-described as disabled people voted against the bill by seven to one.

Disabled MPs who voted against the bill were Labour’s Jen Craft, Marsha de Cordova, Vicky Foxcroft, Liam Conlon, Emma Lewell and Marie Rimmer, and Liberal Democrat Steve Darling.

The only disabled MP who voted for the bill was Marie Tidball, who spoke repeatedly in favour of the legislation during its committee stage, and whose support has likely persuaded some wavering MPs of its safety. 

Of the eight disabled MPs, only Craft and Foxcroft spoke in Friday’s debate.

Craft told fellow MPs that their vote would have “real-world consequences”.

She warned that the medical establishment placed a lesser value on disabled people’s lives, and revealed that when told of her daughter’s Down’s syndrome when she was pregnant, “the first thing the midwife said to me after ‘I’m so sorry’ was, ‘I can book you a termination within 48 hours.’”

She said she could not support the bill “because we cannot legislate against discrimination and we cannot legislate out inherent bias”, and the bill did not have “the adequate safeguards in place”.

She said: “We have been told that there are panels that will provide a safeguard and take into account all of someone’s circumstances, and whether they have capacity. 

“However, those panels may in exceptional circumstances – the bill does not set out what those are – opt not to even meet the person whom they are discussing. 

“We know that the panels do not allow for family members and carers and those who know that person – if they have limited capacity, a learning disability or are unable to make certain decisions themselves – to play a role in that process or have any right of appeal.”

Craft said it was not the job of MPs to send a flawed bill to the Lords and then “out into the world, hoping that others will do our job for us and that it will all just come out in the wash”.

She said: “That is a dereliction of our duty as members of parliament. 

“If you have any concerns about this bill, now is the time to vote against it. You must do that. 

“You must not think that someone else will do your job for you. It is our decision.”

Foxcroft, who was speaking a day after resigning as a government whip over her concerns about the government’s disability benefit cuts, said she had previously been in favour of legalisation.

But she said that her four years as shadow minister for disabled people, during which she spoke to hundreds of disabled people and their organisations, showed they were “extremely fearful of assisted dying”.

She pointed to the huge numbers of disabled people who died during the pandemic, and those who had “do not attempt resuscitation” notices placed on their health records without their knowledge, which “made them fear for their lives”.

She said: “It made them fear that the authorities thought that their lives were worth less. It also made them fearful of what would happen if assisted dying was brought forward.”

She said disabled people “need the health and social care system fixing first” and “want us as parliamentarians to assist them to live, not to die”.

She said: “Disabled people’s voices matter in this debate, and yet as I have watched the bill progress, the absence of disabled people’s voices has been astonishing. 

“They have wanted to engage. Indeed, they have been crying out to be included, yet the engagement has been negligible. 

“I believe that only one disabled people’s organisation was given the opportunity to provide [oral] evidence to the committee.”

She also pointed to the failure to provide the bill in accessible formats, including easy read and British Sign Language.

She told MPs: “I will finish by saying that I am not opposed to the principle of assisted dying, but until we have a system that supports the right to life, I cannot support it. 

“Until we ensure that all safeguards are in place, I cannot support it. 

“And until the vast majority of disabled people and their organisations support the legislation that is being brought forward, I cannot support it.”

She added: “We are not voting on principles today. 

“This is real and we have to protect those people who are susceptible to coercion, who already feel like society does not value them, who often feel like a burden to the state, society and their family.”

26 June 2025

 

Timms misleads MPs on DWP transparency and cover-ups, as he gives evidence on PIP review

The social security and disability minister has misled MPs after suggesting he has ushered in a new era of openness and transparency in the Department for Work and Pensions (DWP).

Sir Stephen Timms told members of the work and pensions committee yesterday (Wednesday) that DWP was being “much more open” than under successive Conservative-led governments.

He had been asked by the committee’s chair, Labour MP Debbie Abrahams, about the review of personal independence payment (PIP) that he will shortly be leading. 

He was giving evidence to the committee’s final session of its inquiry into the government’s Pathways to Work green paper, which will see billions of pounds a year cut from disability benefits.

Abrahams highlighted how the department had previously failed to share its own secret reviews into deaths linked to the benefits system with independent experts commissioned by ministers.

Disability News Service had exposed how the department failed to share both peer reviews – now known as internal process reviews (IPRs) – and coroners’ reports with the experts commissioned to review the work capability assessment between 2010 and 2014.

Abrahams asked Sir Stephen to reassure the committee that data on deaths associated with PIP assessments would be available to whoever led the review.

He told the committee: “I’ll be undertaking the review, so yes, the information will be available to me, and actually, you know, we are being – not least thanks to your work, chair – much, much more open about all of this now than was the case in the past.”

He said the department “want people to see what’s going on”. 

He said: “There isn’t any benefit for the department in hiding these things. 

“They were hidden too often in the past. And I think that’s one reason why the trust in the department deteriorated so badly, because people can see that things were being covered up and hidden and it shouldn’t have been happening.

“And I’m determined that it won’t happen in the future.”

But despite his comments, the department is continuing to hide crucial information about deaths linked to the disability benefits system.

This week, Disability News Service (DNS) submitted written evidence to DWP’s safeguarding review to highlight how DWP was still hiding crucial information that would expose its past actions and failings.

Last month, DNS reported how DWP had unlawfully failed to respond to a freedom of information request to see a secret “critical friend” paper from 2021 on the department’s safeguarding failures.

It is also continuing to refuse to release recommendations made by IPRs following deaths linked to universal credit, dating back as far as 2020.

DWP is also appealing a decision made by the information commissioner that the department should release to DNS “a paper detailing the impact of errors on vulnerable customers” that was discussed at the 12 October 2022 meeting of the department’s serious case panel. 

And the department is continuing to refuse to release a transcript of a training session on human rights law given to DWP staff employed on working-age benefits. 

These are just some of the reports being hidden by DWP; there are likely to be countless other reports and data being kept from other disabled campaigners and allies.

Sir Stephen said he hoped the terms of reference for the PIP review would be released before MPs rise for their summer recess on 22 July.

26 June 2025

 

Ministers are considering further extension to disability hate crime laws, after pledge on ‘aggravated’ offences

The government is considering whether to strengthen disability hate crime laws even further, after ministers agreed to make a long-awaited improvement that will mean longer sentences for offenders.

Home Office minister Diana Johnson announced last week that the government would act to extend the law so that standalone “aggravated offences” would 

apply to disability hate crime and hate crime motivated by sexual orientation or transgender identity.

She said the government would add an amendment to the crime and policing bill to make this change when it reached its committee stage in the House of Lords, keeping a pledge made in Labour’s general election manifesto last year.

This would mean an offender could be charged with an offence – such as assault, harassment or criminal damage – that was aggravated by hostility towards a disabled person, and they would then face a tougher sentence if convicted.

At present, aggravated offences only apply to racial and religious hostility, and a disability hate crime can only be addressed by a court during sentencing, where the sentence can be increased if prosecutors can prove the offence was motivated by disability-related hostility.

The move was proposed in an amendment to the crime and policing bill by Labour’s Rachel Taylor, who told fellow MPs last week that the current discrepancy “cannot be right”. 

She said: “We cannot say, as a society, that some forms of hatred are more evil than others.”

The amendment was supported by disabled Labour MP Marie Tidball, who said the “opportunity to legislate to strengthen the law on hate crime offences must be seized”.

Disabled campaigners have been calling for the change for more than a decade.

But one leading campaigner said the government needed to go much further.

The aggravated offences change was recommended by the Law Commission in December 2021, but it also made two other key recommendations to strengthen disability hate crime laws.

It called for existing offences of stirring up hatred, which only apply to race and religion, to be extended to disabled and LGBT+ victims.

And the Law Commission also said an offender should be found guilty of a disability hate crime offence if they had been “motivated” by “hostility or prejudice” towards disabled people, rather than – at present – only by hostility.

Dr David Wilkin, a disabled activist, researcher, author* and support worker for survivors of disability hate crime, welcomed the move to extend aggravated offences.

But he was critical of the continuing refusal – following years of resistance from Conservative governments – to implement the two other Law Commission recommendations.

He said: “Now, with the perfect opportunity to bring disabled people into the 21st century by establishing legislative equality, they are choosing once again to make sure that disabled people are treated differently, with their hopes and needs once again relegated. 

“Hate crime campaigners have looked forward to disabled people being offered the same rights as other protected groups in new legislation. 

“But now, having reached this timely and convenient critical moment, the Labour government are deliberately excluding those with the greatest needs from attaining simple, fair, and much needed equality.”

The Home Office has told Disability News Service that it will be considering these two further recommendations carefully.

A Home Office spokesperson said: “This government has committed to making our streets safer for everyone and nobody should ever be harmed because of who they are.

“Criminals motivated by racial or religious hate already get tougher sentences. 

“Now we are making sure thugs who carry out vile attacks against someone based on their sexual orientation, transgender identity or disability will also spend longer behind bars.”

*Disability Hate Crime: Perspectives for Change, is published by Routledge

26 June 2025

 

Making all self-driving pilot schemes accessible would be ‘counter-productive’ and slow us down, says minister

A transport minister has told peers that it would be “counter-productive” – and take too long – to draw up rules that would ensure all pilot schemes of self-driving taxis are accessible to disabled people.

Labour’s rail minister Lord [Peter] Hendy was responding to concerns from disabled peer Baroness [Sal] Brinton, who had asked whether the government would make sure disabled people could use the self-driving vehicles when the pilots begin in England next spring.

The former president of the Liberal Democrats told Disability News Service (DNS) earlier this month that she was “very, very concerned” that the government was planning to allow companies to launch self-driving taxis and minibuses even if their vehicles were not accessible to disabled people.

She told fellow peers that the launch of driverless vehicles was a “once in an era moment”, and that contracts with providers should ensure that ramps and audio and visual announcements are “designed in right from the start”.

She said: “The government need to ensure that taxis and bus-like taxis will have accessibility designed into them. 

“Otherwise, it will be like everything else for disabled people: reasonable adjustments after the event that are expensive for the manufacturer and never perfect for the user.”

Lord Hendy told her the government would be subject to equality laws in deciding how granting a permit could “improve understanding of how these services should best be designed for and provided to disabled and older passengers”.

And he said permits could enforce certain conditions, while “accessibility considerations” would be set out in guidance.

But he said: “It would be counterproductive to specify detailed requirements in regulation for innovative new services.”

He said it was likely that the first driverless vehicles would be “the same sort of vehicles” already used for taxis and private hire vehicles.

He added: “In the medium term, clearly there will be new designs, and there are already some that are suitable for wheelchairs and people with disabilities. 

“We have to acknowledge that automated vehicles are part of an exciting future, but they have to be implemented safely, and she is right that they have to be implemented to benefit all parts of the community.”

He said he had “great sympathy” with Baroness Brinton “striving to make sure that disability is treated in the mainstream, but if we are going to do this quickly, we have to recognise that the early adoption under this act is likely to be using the same sorts of vehicles as are used now”. 

He said: “What we are looking for in the medium-term future is new designs, which should have the facilities such as audio-visual equipment and facilities for people in wheelchairs that she would expect.”

Lord Hendy said the government needed to “design in – as far as we can – facilities for disabled people among this”, but the government “have to get going with this, because it is such an exciting future”.

But another disabled peer, the Conservative Lord [Kevin] Shinkwin, pointed out that deputy prime minister Angela Rayner had spoken of the importance of getting disabled people into work, and he questioned how “the retro, ad hoc inclusion of disabled people facilitates the realisation of that worthy goal”.

Baroness Brinton told DNS afterwards that Lord Hendy’s response was “very disappointing” and that she would now seek a private meeting with him to discuss her concerns.

Transport for All (TfA), the disabled-led accessible transport charity, said the government’s plans, which could exclude disabled people from the pilot schemes, were “unacceptable”.

Megan Barnett, TfA’s policy and public affairs officer, said: “Equal access to transport allows us to be part of society. 

“If self-driving vehicles are allowed to develop without disabled people, they will only deepen existing inequalities.

“We need a strong national policy to ensure that the design and rollout of this exciting new technology includes disabled people from the start, so our whole community can benefit from driverless vehicles, now and in the future.”

The Department for Transport announced earlier this month that firms would be able to pilot small-scale “taxi- and bus-like” services without being monitored or controlled by a human for the first time next spring, before a potential wider rollout when the Conservative government’s Automated Vehicles Act is implemented in the second half of 2027.

The government believes self-driving vehicles could help reduce deaths and injuries on the roads, add new public transport options in rural areas, and have the potential to improve mobility, accessibility and independence for those who cannot drive, including many disabled and older people.

26 June 2025

 

Involve disabled people ‘meaningfully’ from the start when developing digital assistive tech, says report

There must be “meaningful participation” of disabled people in the initial stages of developing new digital assistive technology, if its potential for supporting their independence is to be realised, according to a new report.

The Royal Society concluded that tech companies, researchers and governments should do more to remove barriers and engage disabled people in the design of digital assistive tools and services.

Among the recommendations made by the Digital Technology report*, launched this week, is that governments should not consider smartphones as any less a form of assistive technology than hearing aids, manual wheelchairs, or white canes.

But it also warns that many disabled people globally experience lower levels of income compared with non-disabled people, so digital assistive technology needs to be affordable if it is to be useful.

It calls on governments, technology companies and research funders to explore ways to ensure affordability.

As part of the research, the Royal Society – the UK’s national academy of sciences – commissioned the Research Institute for Disabled Consumers to survey a panel of 850 disabled people.

Three-fifths (62 per cent) of them said they used digital assistive technology, with more than half of this group doing so throughout the day.

The survey found that more than half of users of digital assistive technology (53 per cent) said they could not live the way they did without it.

The report defines digital assistive technology as “any technology that processes information to help make people’s lives easier”, such as audio-to-text apps, wayfinding and navigation apps, wearable health devices, smart home devices, sight assistance apps, and screen-reading software.

The report also calls for statistics bodies to collect more data on the daily barriers many disabled people experience with their sight, mobility, and memory, rather than solely focusing on their self-reported disability identity. 

Sir Bernard Silverman, emeritus professor of statistics at the University of Oxford and chair of the report’s steering committee, said: “As a statistician, I would particularly stress that the data we record, and how we categorise it, affects everything and everyone.

“Data on the functional challenges experienced by disabled people would help researchers and providers to ensure that digital products and services, especially in the AI age, are genuinely responsive to their needs.”

The report was developed by a committee of international researchers and technology experts, several of whom are themselves disabled.

Dr Hamied Haroon, a research fellow at the University of Manchester and a member of the Royal Society’s diversity and inclusion committee’s disabled scientists subgroup, said: “We shouldn’t be developing assistive technologies or policies without disabled people being front and centre of the process.

“How do you capture the day-to-day challenges faced by disabled people, or ensure you’re offering solutions that actually work, unless you talk to disabled people?”

Dr Haroon, a member of the report’s steering committee, added: “These assistive technologies are fundamental to the workplace and our daily tasks – but they can be prohibitively expensive or unusable in some settings.

“We need to look at removing these barriers, whether that’s costs, additional training, or infrastructure improvements – like addressing patchy mobile data services that can cut off disabled people in rural and deprived areas.”

*Disability Technology: How data and digital assistive technologies can support independent, fulfilled lives

26 June 2025

Other disability-related stories covered by mainstream media this week

Nearly 100,000 adults have been denied government-funded social care because of a decade’s worth of spending cuts, a Guardian analysis has revealed. The figures highlight how a range of government cuts have put so much pressure on the English social care service that it is leaving tens of thousands of people without the access to long-term care that they would have received 15 years ago: https://www.theguardian.com/society/2025/jun/25/adults-england-denied-state-social-care-due-to-cuts 

Heathrow “needs improvement” in how it assists disabled passengers, a regulator has found. The Civil Aviation Authority, which conducted the assessment, also gave the same rating to Edinburgh and Glasgow Prestwick airports. It said the three airports have “clearly more to do” in their provision of additional support. Fourteen UK airports were rated as “good” and 11 as “very good”. None were rated “poor”: https://www.independent.co.uk/news/uk/home-news/heathrow-civil-aviation-authority-frank-gardner-edinburgh-terminal-b2776464.html 

The mayor of London has said the government must think again about its plans to cut benefits for disabled people. Sir Sadiq Khan said the proposed changes would “destroy” the financial safety net of many disabled and disadvantaged Londoners: https://www.bbc.co.uk/news/articles/cn9y3q7eergo 

Downing Street’s disability cuts will have a “devastating” impact on women’s health and dignity and could breach equality laws, the government has been warned: https://www.theguardian.com/world/2025/jun/24/labours-benefit-cuts-may-discriminate-against-disabled-women-say-charities 

26 June 2025

 

News provided by John Pring at www.disabilitynewsservice.com

Jun 182025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

UK Deaf and Disabled People’s Monitoring Coalition

The UK Deaf and Disabled People’s Monitoring Coalition is a secular network of user led Deaf and Disabled People’s Organisations across the United Kingdom.

This paper sets out the reasons why we are not able to support the Terminally Ill Adults (End of Life) bill following report stage.

Many of our concerns echo those voiced by the Royal College of Psychiatrists, Royal College of Physicians and Association of Palliative Medicine.

We do not believe the bill has received sufficient scrutiny for legislation that will so fundamentally impact the relationship between doctor and patient.

For the Abortion Act there was months of engagement prior to introducing the bill and for the Human Embryology and Fertilisation Act, there was the Warnock Commission.

For this bill there has been no direct consultation with marginalised groups and the speed and inaccessibility of the passage of the bill has been a barrier to engagement.

The equalities impact assessment is frighteningly lacking and there has been insufficient consideration of adverse equalities impacts in jurisdictions where it is legal.

For example, a lawsuit is being brought against California’s End of Life Option Act on the grounds that it puts disabled people at greater risk of being coerced into seeking assisted suicide.

At the same time, the opinions of professionals with the most relevant expertise have been largely ignored.

Below we set out our key concerns with the bill as it now stands, a list of the amendments we supported which would have improved safeguards but which were voted down and a list of amendments that have been held up as safeguards but which fail to ally our fears.

This paper concludes with our recommendations for MPs.

KEY CONCERNS

No guaranteed access to palliative care. The bill places a duty on the Secretary of State to guarantee access to assisted dying but not to palliative care. Where deaths in pain do occur, the person has not accessed specialist palliative care or accessed it too late or for too short a time. One in four people who need palliative care do not get it. Palliative care provision across the country is patchy and facing cuts with hospice care under-funded.

No emphasis on suicide prevention. This is one key reason why the Royal College of Psychiatrists are against this bill. Suicidal ideation and hopelessness are treatable including for people with terminal illness. There is no mandatory psychological assessment as part of the application process and people who both meet the eligibility criteria for the bill and have mental health diagnoses are not excluded.

Inaccurate prognoses. People who are terminally ill with six month prognoses may have many months and even years left to live. According to figures from the Department for Work and Pensions, one in five benefit claimants given less than 6 months to live are still alive three months later. This makes it less inevitable that people with terminal illness should want to end their lives.

Inappropriate use of Mental Capacity Act as a safeguard. The MCA was not designed for this purpose and has a presumption of capacity. It is possible to be assessed under the MCA as having capacity and yet having impaired judgement due to for example, depression, malnutrition or coercive control. Doctors will be trained in coercive control but psychiatrists and other professionals report how difficult this is to detect even with many years of experience.

Insufficient provision for keeping people alive. Changes to a person’s circumstances can change their wish to die. The place for a multi-disciplinary team assessment is at the very beginning of the process with the aim of identifying options to improve the person’s situation. Instead, the bill has a multi-disciplinary panel at the end of the process rubber-stamping applications for assisted dying with no requirement to meet the person. There is no requirement for a doctor to consult a specialist in the patient’s condition or for the patient to have a meeting with a palliative care specialist. Patients will be able to access assisted dying more quickly and easily than social care, mental health support or suitable housing.

No requirement to include family members. Evidence from jurisdictions where assisted dying is legal demonstrates how traumatic it can be for family members to lose their loved ones in this way, especially if they do not find out until after and especially if their loved one made their decision when experiencing impaired judgement. There is no right to appeal assisted dying decisions for family members.

Safety concerns about assisted dying drugs. Death by assisted suicide can be very unpleasant. The patient needs to swallow a large number of pills which the body may reject resulting in vomiting. The drugs used as the same as used for death row prisoners and have been linked to, for example, experiences of dry drowning. The bill impact assessment says the “safety and efficacy” of substances used for assisted dying is “currently difficult to assess”.

Fear that assisted dying will replace access to services for terminally ill and disabled people wanting to live. The impact assessment shows savings that will be made to both health and social care budgets through this bill. This has increased concerns that the choice to live will be removed for those of us who cost more in support. One care home group finance manager messaged colleagues about savings they could realise through “aggressive promotion” of assisted dying as an option for residents. The voting down of an amendment to limit advertising of the assisted dying service alongside costs in the impact assessment for an NHS education campaign is concerning.

Insufficient attention to equalities impacts. The equality impact assessment accompanying the bill was not published until after Committee stage and is unfit for purpose. It concentrates on equal access to the assisted dying service and omits many key risks in terms of adverse inequalities impacts, ignoring data on for example low levels of awareness and access to palliative care services by racialised minorities and those facing socio-economic disadvantage.

Increasing non-assisted suicide rate. There is no evidence that legalisation of assisted dying reduces non-assisted suicides. Research on the contrary shows a rise in the overall suicide rate even after accounting for those deaths by assisted dying. This is likely due to suicide contagion. This risk needs to be understood within the current UK context of escalating levels of mental distress and already increasing suicide rates. There has been no discussion of this or proposal of measures to mitigate this risk.

Too great a reliance on Henry VIII powers. A worrying amount in the bill delegates powers to Ministers to make secondary legislation without full Parliamentary scrutiny. This is even more concerning for a bill that will prompt the founding Act of the NHS to be opened up. Deaf and Disabled people are disproportionately reliant on the NHS and potentially at significant risk from this bill. This aspect of the bill is therefore of great concern to us.

PROPOSED SAFEGUARDING CONCERNS THAT WERE VOTED DOWN

To close the anorexia loophole. The bill gives eligibility to people where the physical condition that meets the criteria is either the result of a mental health condition or of Voluntary Stopping Eating and Drinking. This is a huge concern within the context of a mental health system unable to cope with demand where young women with severe and enduring eating disorders are routinely labelled as “hopeless cases” and transferred onto palliative instead of receiving the support they need to live. In other jurisdictions Voluntary Stopping Eating and Drinking (VSED) is used by people who don’t otherwise meet the eligibility criteria to gain access to assisted dying.

To exclude from eligibility people with who are homeless and prisoners. Disabled people are over-represented among both as are self-harm and suicidal ideation. Homelessness and conditions in prisons are growing problems. These amendments would have protected against people choosing assisted dying because of adverse external factors rather than the “clear, settled and informed wish to die” that is part of the eligibility criteria within the bill.

Doctors to ensure that there are no remediable suicide risk factors before proceeding to the initial discussion about assisted dying and for psychosocial assessments to be conducted at the start of the process. These amendments would have provided a safeguard against people with impaired judgement seeking assisted dying due to a mental health condition and/or suicidal ideation.

To exclude from eligibility those seeking assisted dying for the benefit of others. This could include financial concerns. This amendment would have been an important safeguard against coercion.

To exclude from eligibility those seeking assisted dying because they feel like a burden. This is particularly relevant within the context of inadequate social care support services so that family members and friends experience greater strain. Around one half of those seeking assisted dying in Oregon consistently cite being a burden as a primary reason compared to one third concerned about pain.

To replace use of the Mental Capacity Act to assess capacity to make a “clear, settled and informed wish to die” with a new ability test to assess ability to make a clear, settled and informed wish to die free from impaired judgement.

For doctors not to be able to raise assisted dying with patients unless they mention it first. This is a major concern for disabled people due to the prevalence of negative medical attitudes towards disabled people’s quality of life and the risk of medical coercion. This risk is evidenced by experiences during COVID when Do Not Resuscitate orders were unlawfully placed on the medical notes of disabled people without their consent as well as a weight of evidence concerning discrimination and medical negligence within the health system. An amendment not to permit doctors to raise assisted dying with children was voted down at Committee stage but accepted at Report stage.

To prevent doctors from raising assisted dying as an option with people with learning disabilities and people who are autistic. Instead, clause 20 provides access to independent advocates for people in this situation.

Inclusion of a 28-day period between a terminal diagnosis and the start of the assisted suicide process. This is important because fear and depression are common responses to terminal diagnoses. Practitioners in other jurisdictions told the Committee at oral evidence how giving patients the option of assisted dying when first diagnosed calms their fears and that many never end up taking the drugs because their fears over pain never materialise. As proven by the lived experience of our members, the same can be achieved by better support accompanying diagnosis, including, crucially, peer support.

AMENDMENTS THAT FAIL TO ALLAY CONCERNS

Training for doctors in coercive control.

According to professional opinions shared with the Committee, it is very difficult even for those with many years of experience to detect coercive control.

Much stronger safeguards would have been making psychological assessments mandatory as part of the application process and excluding from eligibility those feeling a burden and those acting for the benefit of others.

Provision of independent advocates for “qualifying persons” including “those with learning disabilities, mental disorders, autism or other ‘substantial difficulties’ in understanding processes or information”.

The focus of this clause is on access to information rather than protection from coercion. As a safeguard it is limited in that those willing to act as independent advocates will likely be in favour of assisted dying and may therefore have a bias towards ensuring access to the service that clouds their alertness from detecting coercion.

It is unclear from where the independent advocates for this role will be sourced.

New multi-disciplinary panel including a psychiatrist and social worker.

This will replace the role of the high court judge in rubber stamping approvals at the end of the application process and with no requirement to meet the person or involve their family.

The proper place for this panel is at the beginning of the process.

Multi-disciplinary team involvement is good practice when needing to identify holistic solutions for improving a person’s situation.

The role of the multi-disciplinary panel as prescribed by the bill represents a mis-use of MDT involvement. It will not enable the psychiatrist or social worker to utilise their expertise.

Professionals willing to be on these panels will likely be in favour of assisted dying and may therefore have a bias that limits their ability to detect coercion.

It is also unclear how these panels will be resourced given shortages within both psychiatry and social work.

RECOMMENDATION

We urge MPs to vote against this bill at third reading. A Private Members Bill is not the way to legislate on such a complex issue and one that puts large groups of the most disadvantaged members of society at significant risk for the benefit of a small minority. A Royal Commission where objective scrutiny can take place and that hears equally from all sides of the debate is needed. Due to insufficient transparency in jurisdictions where assisted dying is legal there is a dearth of evidence. Attempts to remedy this and to plug research gaps must also happen.

Jun 182025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

By the UK DDPO Monitoring Coalition June 2025

Introduction

    1. The Equality Impact Assessment for the Terminally Ill Adults (End of Life) bill was published alongside the impact assessment on 2 May 2025.
    1. For a bill that proposes such fundamental changes to the practice of medicine in England and Wales, this was inexcusably late on in its passage through Parliament.
    1. Due regard for equalities impacts should occur at the beginning of any new initiative and inform the development of that initiative. An EqIA should not be treated as a bolt on extra.
    1. We have significant concerns about the content of this EqIA and agree with commentators who have raised concerns about its adequacy.1
    1. It takes at face value safeguards contained within the bill despite concerns raised by numerous professional bodies, organisations and individual witnesses as to their lack of strength.
    1. It also misses a number of potentially significant adverse equalities impacts and therefore also fails to propose measures to mitigate the risk of those.
    1. A criticism of the passage of the bill shared by doctors and Deaf and Disabled People’s Organisations (DDPOs) is the lack of engagement and account taken of our respective views, informed by expert opinion and lived experience, as well as those of other marginalised groups.2
    1. The EqIA is one example where our input would have been beneficial.

Summary of concerns

    1. Lateness of publication – the EqIA was published on 2 May, more than a month after the end of Committee stage and just two weeks before the first report stage debate.
    1. Coercion – the EqIA gives an inadequate assessment of risks of coercion and the strength of safeguards contained within the bill.
    1. Capacity – the EqIA fails to note question marks regarding the appropriateness of the bill’s use of the Mental Capaity Act (MCA) as a safeguard.
    1. Lack of disability understanding – mental health is inappropriately included as a separate category distinct from disability.
    1. Adverse equalities impacts gaps and omissions – there are a number of potential adverse equalities impacts relevant to the bill that are not included within the EqIA.
    1. These include:
      1. Disability – risk due to inadequate services to live
      1. Disability – risk of medical coercion
      1. Disability – risk from failure to exclude anorexia and voluntary stopping of eating and drinking
      1. LGBTQ+ – risk from fear of accessing palliative care services due to discrimination
      1. Racialised communities – lack of awareness and lower referral levels for end of life services
      1. Socio-economic disadvantage – risk of seeking assisted dying as a response to poverty
      1. Women – risk of coercion owing to inability to continue care-giving roles within the family
      1. Intersectional impacts for Disabled people experiencing socio-economic disadvantage; members of the LGBTQ+ community living with mental distress; women experiencing socio-economic disadvantage who are therefore at higher risk of domestic abuse
      1. Wider societal impacts including risk of an increase in non-assisted suicide rates and increased levels of disability hostility and hate crime

7. The EqIA is unfit for purpose and increases our already significant concerns regarding the adequacy of safeguards in the bill and its potential to cause adverse equalities impacts.

May 142025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

John Kirkpatrick

CEO

EHRC

john.kirkpatrick@equalityhumanrights.com and ceo@equalityhumanrights.com

cc

Valentine Murombe-Chivero

Head of Corporate Communications at The Equality and Human Rights Commission

valentine.murombe-chivero@equalityhumanrights.com

 

10 May 2025

 

Dear John

Complaint against the Labour Government and request for the EHRC to investigate the urgent threat to the equality and human rights of disabled people by a raft of policy announcements and planned legislation.

We are asking the EHRC to investigate the urgent threat to the equality and human rights of disabled people by a raft of policy announcements and planned legislation by the UK Government.  The disproportionate impact on disabled people if these measures go ahead need investigation for the following reasons:

  • the proposed cuts to welfare benefits for disabled people will push many into and further into poverty and are discriminatory relative to the rest of the population
  • ongoing austerity budgets for local authorities, impacting adult social care which many disabled people rely on for their independence
  • Ongoing cuts to NHS and mental health services disguised as efficiency savings
  • Safeguarding concerns and risks of harm and deaths – there is evidence from DWP that austerity cuts are associated with countless deaths, and with the level of mental distress. It is inevitable that further cuts will cause many more deaths. People continue to die as a result of DWP failings as it is. These cuts will make that even worse.
  • the impact of tax rises on NHS and social care service providers for disabled people and disabled people’s organisations (DPOs)
  • the impact of negative, misleading and false statements made by Keir Starmer, Rachel Reeves and Liz Kendall about disabled people and benefits and the impact this has on hate crime against disabled people
  • the disproportionate impact of the proposed changes to PIP and Universal Credit on people with learning disability, mental health conditions, autism and neuro-diverse conditions (see Big Issue story)[1]
  • the disproportionate impact on families with a disabled person who are already the poorest in society
  • the failure of the government to consult or coproduce with DPOs in shaping policy and legislation in violation of the CRPD and domestic legislation
  • the failure to carry out a comprehensive impact assessment ahead of the policy announcements and the publication of the Green Paper
  • MPs are going to be asked to vote on legislation before the OBR analysis is published in the Autumn

 

We are calling for this action by the EHRC under pillar two of your current strategic plan, where you commit to:  ‘act with speed and precision when responding to the most significant and urgent threats to equality and human rights’.

The Government has failed and refused to carry out any effective analysis of the impact of this proposed legislation and policy changes.  Therefore, we are asking EHRC to do a human rights analysis of the Green Paper and the anticipated Bill, in line with your responsibilities to uphold the Human Rights Act and as part of UKIM for monitoring the CRPD.

We are also requesting the EHRC to urgently carry out a cumulative impact assessment to evidence the erosion of our rights and living standards by the new Labour Government.  There is precedent for you to carry out such an analysis, as you commissioned a cumulative impact assessment under the previous government, as published in 2018: The cumulative impact of tax and welfare reforms | EHRC

These proposed cuts, which amount to ongoing austerity for disabled people, do not address the concerns and recommendations from the UN CRPD committee in 2024 and in fact represent further regression of rights for our disabled population in the UK:

The UN Committee on the Rights of Persons with Disabilities published a report, after looking at the UK government’s progress since 2016. This was when the same committee found that austerity and welfare policies were leading to grave and systematic violations of Disabled People’s Human Rights.  The UN Committee did not see any progress in addressing those violations, moreover, it documented evidence of retrogression.

You can read the UN’s report here (DOCX).

Key quotes from the report

“The Committee concludes that no significant progress has been made … The Committee also notes that while some measures have been taken to address its recommendations … there are also signs of regression”

“The Committee finds that the State party has failed to take all appropriate measures to address grave and systematic violations of the human rights of persons with disabilities”.

The government does not consult with Disabled people and our organisations as it is obliged to (73) and uses a “rhetoric that devalues disabled people and undermines their human dignity” (74).

3 articles were mentioned in particular:

Article 19: Right to live independently and be included in the community

Disabled people are offered “bare subsistence” instead of “full enjoyment of the right to live independently and in the community” (77).

More and more disabled people are stuck in institutions with no plans to end “disability-based detention and compulsory treatment” (78-79).

Article 27: Right to work and employment

The “Work Capability Assessment (WCA) process is complex and onerous” and the “assessors are inexperienced and/or unqualified” (82).

Article 28: Right to an adequate standard of living and social protection

PIP is insufficient and its eligibility criteria are “contrary to the human rights model of disability” (76).

In 2023 UK was in violation of international law in not providing social protection which ensured an adequate standard of living, including for disabled people (86)

 

Here is a summary of the proposed changes to welfare benefits that will disproportionately affect disabled people relative to the non-disabled population:

  • It is estimated that through the Government’s proposed Personal Independence (PIP) cuts, between 800,000 and 1.2 million Disabled people will lose between £4200 and £6300 a year by 2029 to 2030 (Resolution Foundation, 2025).
  • According to DWP own calculation as well as the 250,000+ households the Green Paper cuts will push into poverty, the cuts are also forecast to hit 700,000 families that are already in poverty, many of whom are households with a disabled person.
  • The DWP’s modelling shows about 2.4m people in poverty gaining from the reforms will almost certainly be non-disabled UC claimants benefitting from the small rise in the standard allowance whilst disabled people will experience cuts.
  • Because PIP is a gateway benefit disabled people and their families who lose eligibility for PIP will also lose eligibility for Carer’s Allowance, council tax reduction and other passported entitlements.
  • According to the proposals, from 2028-29, getting PIP will be the factor that determines whether you get the health element of UC – meaning there will be no support specifically for Disabled people unable to work. Those who would otherwise qualify for the health element of UC – but not PIP (currently 600,000 people) – will therefore not get the element and be worse off by £2,400 per year (today’s prices; assuming they are new claimants who would otherwise have got the reduced health element
  • If the cuts to PIP are taken together with the Government’s proposals to scrap the Work Capability Assessment and replace current out of work disability benefits with a new “health” component of Universal Credit with eligibility tied to PIP, some claimants risk losing £9600 per year.
  • There will be no health element in UC for under 22s. Many disabled students rely on it to go to university so the knock on impact to future employment prospects of not going will be catastrophic for this group.
  • The current PIP fraud figures are 0% according to the DWP’s Fraud and Error in the Benefits System Annual Report of 2024, so the government’s crackdown on benefit fraud and its impact is inconsistent with the figures and very low rates of PIP fraud.

 

DISABILITY AND SOCIAL SECURITY – THE REAL PICTURE

Welfare spending is not out of control

  • What is true is that disability benefits as a share of overall welfare spending has risen. This is due to many factors, one being the increase in State pension age, but also NHS and mental health support waiting lists, the effects of Long Covid, and escalating mental distress among young people: see research by academic Ben Geiger These are all very real issues which we need the government to address.
  • Nearly £23 billion worth of social security and social tariffs currently goes unclaimed due to lack of awareness, stigma and the complexity of the UK social security system. See Missing out 2024: £23 billion of support is unclaimed each year | Policy in Practice. Unclaimed social security includes universal credit, pension credit, child benefit, carers allowance and housing benefit for pensioners. Social tariffs include council tax support (a rebate, not a payment/benefit), free school meals, free TV licence and various energy/broadband support schemes.

Actual benefit fraud requires a court of law to establish that a claimant knowingly or dishonestly claimed benefit. Only 820 people were convicted on this basis in 2023.  The DWP statistical definition of fraud is much less rigorous – it is an assessment by the DWP of those who were not entitled to benefit but could ‘reasonably be expected to know.’ DWP estimate that rates for this type of overpayment were 2.8% (£7.4 bn) in 2024.  Rates of overpayment for claimant error were put at 0.6% (£1.6bn) and DWP official error at 0.3% (£0.8bn).  See Fraud and error in the benefit system, Financial Year Ending (FYE) 2024 – GOV.UK.

Tests for eligibility for disability benefits are not too easy

  • Deaf and Disabled people who need disability benefits are too often found ineligible by assessments that are arduous, harrowing, frequently inadequate and result in arbitrary decisions. These are the same assessments that Labour criticised when in opposition and which were the subject of a number of highly critical Work and Pensions Committee reports: Health assessments for benefits – Committees – UK Parliament

 

  • The rate of assessment decisions over-turned at appeal is at an all-time high. Currently around two-thirds of PIP appeals are overturned in favour of the claimant compared to around half of universal credit and ESA appeals: Tribunals statistics quarterly: October to December 2024 – GOV.UK.However, many give up either before or after Mandatory Reconsideration stage because they cannot face the battle and due to lack of welfare advice and support to challenge unfair decisions.

 

  • Recent research demonstrates that people claiming benefits for reasons of mental health are living with high levels of mental distressMental distress among people receiving benefits: new evidence. This is in contrast to deliberate misrepresentations contained within political rhetoric and media reporting of people supposedly found eligible for benefits who have low levels of anxiety or depression.

 

  • This picture is further supported by OBR’s calculations that of the 163,000 benefit claimants with mental distress impacted by the proposals to change the WCA, only 3% would be able to find and undertake paid work.

 

  • Recent media headlines about 200,000 claimants found unfit for work who are ready and willing to work now were deeply misleading. The survey question to which these claimants responded was whether they could work now with the “right job” and the “right support”. There was no follow up question about the likely availability of either. The 200,000 figure was extrapolated from a much smaller claimant sample. People who have learning disabilities and/or are autistic were twice as likely to respond yes to this question. 49% of respondents felt they would never be able to work or work again. 62% of these customers were over the age of 50, and 66% felt their health was likely to get worse in the future: Work aspirations and support needs of health and disability customers: Interim findings – Department for Work and Pensions

 

Disability benefits do not act as a disincentive to work

  • Disability benefits keep Deaf and Disabled people out of absolute poverty.

 

  • In 2022/23, 16 million people in the UK living in families in poverty. Of these there were 8.7 million people in poverty who are Disabled themselves, or who live with a Disabled person, up from 6.9 million in 2019/20. 33% of people living in the lowest income decile are Disabled compared to just 9% in the top.

 

  • Even if you receive both out of work disability benefits and the higher rates of both the mobility and care components of PIP – currently on 2024/25 £783.16 pm ESA support group and £1400.50 pm UC LCWRA)- this is just 33% or 60% respectively % of the Minimum Income Standard (£28k pa) for a single adult.

 

  • The rate that Universal Credit standard allowance is paid at is deliberately set to be too low to survive on for anything but a very short, temporary amount of time. For those unable to earn a living through paid work, an out of work disability benefit component is essential in addition to the standard allowance.

 

  • Personal Independence Payment is a non-means tested extra costs benefit intended to contribute to the additional unavoidable expenditure that Deaf and Disabled people face. Scope estimates that Disabled people face on average extra costs of £1067 per month compared to non-Disabled people: Disability Price Tag 2024 | Disability charity Scope UK

 

  • Claimants in receipt of out of work disability benefits have the highest levels of support need. These include people with terminal illness and neurodegenerative conditions and people with profound and complex needs. Many claimants in this category spend a considerable amount of time in too much pain or distress or fatigue to function. Time during the week is taken up with medical and therapeutic appointments, accessing drugs and treatment and with assessments and monitoring linked to the services and support we rely on.

 

  • Many PIP claimants will not be able to continue in work if they lose access to this benefit. This is because engaging in paid work places extra demands on us that can exacerbate our conditions which in turn increases our unavoidable disability related expenditure. It also gives us less time on top of managing our impairments and illnesses to be able to function in other necessary areas of our lives such as domestic tasks. The OBR states that one sixth of PIP claimants are in work: Trends in working-age disability benefit onflows – Office for Budget Responsibility

 

  • Cutting disability benefits will push more households into poverty. Reports we are hearing say the cuts to be announced will impact a million Disabled people. The charities fear that 700,000 additional households containing a Disabled person will be pushed into poverty as a result of these cuts.

 

  • Disability-related poverty had increased dramatically even before the cost of living crisis:

 

  • 54% of all poverty in the country is now disability related.
  • The proportion of people in families with at least one Disabled child and one Disabled adult who were living in poverty rose by 7% from 2019–21 up to 46% in 2021-22. This is compared to a consistent figure of 17% for individuals in families with no Disabled members across these two years. [LINK]

 

  • Poverty moves people further from employment. In 2021–22, the poverty rate for individuals in a household in receipt of a disability benefit was 20%: Benefit levels in the UK – Work and Pensions Committee.
  • The research suggested the “main triggers” for applying for PIP were health deterioration, financial hardship and employment concerns.

 

 

Cuts to disability benefits will cost the economy more in the long-term

 

  • Cuts will cause substantial additional pressures on the NHS, mental health services, and social care services and will lead to an increase in survival crime. They are entirely inconsistent with the government’s pledge to reduce shoplifting! Disabled people impacted by cuts may be forced to find paid work in unsuitable jobs such as sex work.

 

 

 

Here is a summary of the impact of the local government finance settlement 2025/2026 on adult social care from Association of Directors of Adult Social Services (ADASS):

“While this additional funding is welcome, there remains a funding gap of over £1bn for adult social care to even standstill next year, which means councils won’t be able to fully meet people’s care and support needs.  This means that fewer people will be able to draw on care and support to help them stay independent and well, such as transport to go shopping, a regular cooked meal or support for family carers.

“Limiting the number of people who can access adult social care creates a vicious cycle; too many people reach crisis point and end up in hospital unnecessarily because they aren’t receiving low level care at home, and they can’t leave hospital because there isn’t enough support to return home safely.

“To get people home from hospital quicker and prevent them from needing to go there in the first place, the Government must commit to a long-term, fully funded plan for social care, to make care at home and in the community the default option for everybody.”

Melanie Williams, President of the Association of Directors of Adult Social Services

 

We hope this evidence of continuing violations of disabled people’s rights by the new Labour government, since its election last July, following 14 years of ‘grave and systematic violations’ of disabled people’s rights will mean you will act on this complaint, investigate and carry out the cumulative impact assessment as requested.

 

Yours sincerely

(final list of signatories TBC)

 

DPAC

[1] DWP figures released in response to an FOI request from the Benefits and Work website show how many people with different disabilities and illnesses currently receive the PIP daily living allowance having scored under four points in all categories. They include:

  • 214,000 claimants with arthritis – that’s 77% of all arthritis claimants receiving the daily living allowance
  • 38,000 with cardiovascular diseases – 62%
  • 45,000 with respiratory diseases – 55%
  • 38,000 with multiple sclerosis and neuropathic diseases – 48%
  • 23,000 with cancer – 33%
  • 11,000 with cerebral palsy and neurological muscular diseases – 24%
  • 26,000 with psychotic disorders – 23%

 

May 082025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

MDPAC Statement:

On Wednesday 7th May, Manchester DPAC and our supporters attended the DWP’s ‘consultation’ on the Pathways to Work Green Paper – which proposes slashing disability benefits by over £9bn pounds – at the Crowne Plaza Hotel in Manchester.

We were not invited. The organisers made very clear to us they did not want us there. We told them that their consultation was a sham. It was not open to all disabled people who are angry about the cuts, and it was slated to only ask attendees about 10 of the 22 proposals in the green paper – leaving us no say over the cuts that will cost lives in our community.

By turning up to the consultation unannounced, we forced DWP managers to back down on their ridiculous set up. They tried to lock us out, by putting security on the doors and police in the lobby. We got in anyway. They tried to shut us up by saying they couldn’t talk to us now, but would come back later for a ‘separate’ (meaningless) conversation. We just got louder.

Eventually, they agreed that our delegation could join their meeting AND that we could run our own consultation on ALL of the proposed cuts – not the insulting Q&A their politician bosses had sent them to do. We insisted that their staff record the answers of all disabled people – whether from our protest or not – and take these back to their bosses in Westminster. After a heated argument, they agreed. We then spoke to other attendees about how dangerous these cuts are. Unsurprisingly, the other people in the room were as worried and angry as we are.

Our action proved that, working together, we can fight our way to the table. We encourage every DPO to show up to their local consultation and demand entry. We have a right to be in every discussion about our lives. We will happily share our experience with you to help your DPO plan this kind of action.

The government, and their lackeys, want to shut disabled people out from decisions about us. They keep the venues secret. They turn us away at the door. They have the gall to tell us what can and can’t be discussed. We refuse to have the door slammed in our faces. We will continue to disrupt, take over, or shut down every sham PR exercise by this disablist government until a truly co-produced and democratic process is offered to us.

And we reject the cumulative oppression of the Assisted Dying Bill which leaves up prey to euthanasia, The Public Authorities (Fraud, Error and Recovery) Bill which gives DWP powers of arrest and to spy on our bank accounts, the discriminatory Mental Health Bill and the attacks on our Trans members.

In solidarity,

Manchester Disabled People Against Cuts

Nov 242024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net
DPAC encourages members and supporters to join us from 8am-3pm on 29th November 2024 at College Green, Westminster, SW1P 3SE. DPAC will be joining Not Dead Yet UK as we make clear our opposition to the Assisted Suicide Bill (Terminally Ill Adults End of Life Bill) as it goes to a vote at it’s second reading on 29th November 2024.
While some activists will join for the very early start at 8am, we recognise this isn’t going to be accessible for everyone so we would encourage you to join when you can, for as much or as little time as you can between 8am-3pm. We are aiming to have a decent turn out for 8am so that the morning media rounds see that there is a steady opposition to the bill on the day. Not Dead Yet UK, who we are working alongside in this campaign, will have red and white t shirts and hats if you’re trying to spot us.
We also recognise that not everyone can join or contribute to every campaign. This campaign has a particular focus on contacting MPs as this issue is going directly to a vote on the 29th November. If you are able to email your constituency email to explain why you oppose the bill (click this link for more information on why this is a dangerous bill https://dpac.uk.net/2024/11/choice-at-the-end-of-life-bill-briefing-from-uk-ddpo-crdp-monitoring-coalition-2/ ) that is one of the most effective ways you can support this campaign.
A private members bill gets 5 hours of debate in the House of Commons. You can follow the debate live on Parliament TV from 9:30am on Friday 29th November here: https://www.parliamentlive.tv/Commons.
We recommend people wrap up warm. There may be some opportunities to go inside Parliament throughout the day while the bill is being debated. The Methodist Central Hall in Westminster usually has its cafe open in the basement which can be a good place to rest and warm up as well. We encourage everyone to do what is right for them – attending vigils in winter won’t be possible for everyone.
Westminster underground is the nearest accessible station – accessible from platform to street level by lift
Buses 3, 11, 12, 24, 53, 87, 88, 148, 159, 211, 453 all stop nearby at Parliament Square London
Nov 192024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Please contact your MP by email or on twitter and ask them to attend the meeting on Mental Health and Assisted Suicide happening 6.30 – 8.30pm in Committee Room 17 in Parliament. This meeting is being run by DPAC, the UK DDPO CRDP Monitoring Coalition and Eat Breathe Thrive. It is a closed meeting so that MPs can feel safe to ask questions and discuss the sensitive issues they are being forced to consider due to this Private Members Bill. 

Template letter as below.

Chelsea Roff, founder of Eat Breathe Thrive says:

“A recent study found that anorexia nervosa has been classified as a terminal illness for assisted death in states like Oregon, Colorado, and California. Among 60 documented cases, a third described the deaths of young women in their teens or twenties. All were female. Many patients had high rates of depression (89%), suicidal thoughts (58%), and previous suicide attempts (37%), raising concerns about whether mental distress played a role in their requests to die.

There has also been a rise in cases where patients were prescribed lethal medication due to severe malnutrition. Colorado’s latest report includes 12 cases where “severe protein-calorie malnutrition” was listed as a terminal condition. It is unclear if these patients had anorexia, but malnutrition is not typically seen as a terminal illness, which raises important questions about how these laws are being applied.

Nearly all medical complications of eating disorders (with the exception of osteoporosis) are reversible with refeeding and weight restoration. In some of the cases we reviewed, patients who were described as terminal had never even received a full course of inpatient treatment nor fully restored their body weight. Anorexia nervosa is not a terminal illness, yet this has not prevented physicians in other countries from treating it as such, and citing the physical complications of a mental illness as terminal, contrary to a large body of scientific evidence.”

 

Dear MP,

As Parliament prepares for the second reading of the Terminally Ill Adults (End of Life) Bill on 29 November, there is an urgent need to consider its very real potential impact on individuals with mental health conditions, including eating disorders and those living with suicidal ideation and self-injury.

While debates on assisted dying often focus on matters of principle, the realities of implementing safeguards within the NHS are less frequently discussed.

This briefing will examine how broad definitions of ‘terminal illness’ could make young women with treatable eating disorders eligible for assisted dying, the difficulty of distinguishing voluntary requests from suicidal ideation, and the disproportionate risks faced by individuals living with suicidal ideation and self-injury.

We invite you to join us for a special briefing on these issues, sponsored by James Frith MP and co-organised by Ellen Clifford of UK Coalition of Deaf and Disabled People’s Organisations [DDPOs]* and Chelsea Roff of Eat Breathe Thrive*.

The briefing will take place on Tuesday, 19th November, 6:30-8:30pm, in Committee Room 17, House of Commons.

Speakers to include: Dr Annabel Price, Royal College of Psychiatrists; Professor Lars Mehlum, Founding director of the National Centre for Suicide Research and Prevention at the Institute of Clinical Medicine; Dr Agnes Ayton, Consultant Psychiatrist; Dr Ali Ibrahim, eating Disorder Consultant; Chelsea Roff. Eating Disorder Researcher and advocate; James Downs, Researcher and Eating Disorder Campaigner; Ellen Clifford, Disabled Activist and author. More to be announced.

Briefings and presentation hand-outs will be available on the day and sent electronically after the event to attendees. Please let us know of any access requirements.

We look forward to seeing you on Tuesday. Please RSVP to: chelsea@eatbreathethrive.org

 

*Eat Breathe Thrive is a nonprofit organization that works to prevent and help people recover from eating disorders through yoga.

* UK DDPO Convention on the Rights of Disabled People [CRDP] Monitoring Coalition is a network of used led organisations established to monitor implementation of the CRDP and lobby government on shared priorities for Deaf and Disabled people across the UK.

 

Nov 162024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

We are a secular, human rights network of organisations run and controlled by Deaf and Disabled people (DDPOs) from across the UK.[1] We monitor and campaign for implementation of the UN Convention on the Rights of Disabled People, promoting the interests of 16.1 million Disabled people.[2]   This includes those who are terminally ill and who live with progressive, life-threatening conditions.

The debate around legalisation of assisted suicide[3] (AS) requires profound sensitivity and compassion. On both sides of the argument are lived experience of pain, suffering and distress.

The implications of this Private Members’ Bill (PMB) are far-reaching with serious potential consequences.  There is no straightforward way to legalise AS and the issues involved are complex. There are no clear lines, only blurred boundaries.

This is why no DDPO in the UK is in favour of legalisation. Additionally, all medical bodies remain opposed or neutral on the subjects. Doctors working in specialities such as oncology, geriatrics and palliative care, those where they are most likely to work with dying people, are the most opposed.[4]

We urge Parliamentarians to rigorously engage with all perspectives and the evidence base on which they rest.

Our key concerns are as follows:

  • LIMITING ELIGIBILITY AND SAFEGUARDING
  • Need to consider in detail lessons from other jurisdictions where AS is legal.
  • Pressures to extend eligibility. This has happened in ALL jurisdictions where it has been legalised so far. Legal experts warn the same will happen here. Pressure is already being exerted to within Westminster and by the main campaigning organisations in favour.
  • Risk of abuse and need to consider whether AS can ever be safely legislated for.

 

NEED FOR PROPER SCRUTINY

  • Legalisation entails a fundamental shift in society but a PMB gives little scope for scrutiny.
  • Need for extensive pre-legislative work by an independent commission.
  • Inadequacy of the health and social care select committee inquiry as a basis for legislation.
  • Need to question unconscious assumptions about quality of life.

 

FIX THE FOUNDATIONS FIRST

  • Palliative care is in crisis. Choice at the end of life must include the choice to die at home and to die naturally in as little pain as current medical knowledge can provide for.
  • Services (NHS, social care, mental health) to support those who live in pain and distress are broken. Assisted suicide must not become a replacement for public services.

For more detail on the above see the following pages / go to: https://dpac.uk.net/2024/10/choice-at-the-end-of-life-bill-briefing-from-uk-ddpo-crdp-monitoring-coalition/

 

1)         LIMITNG ELIGIBILITY AND SAFEGUARDING

These two issues are of fundamental importance to the question of legalisation. There are no easy answers to either.

Any legislation must robustly safeguard against abuse. The risks are too big to disregard.

Those who are well-intentioned often under-estimate the capacity of others to take advantage of those whose situations make them vulnerable. Harsh reality is evidenced by the fact that Disabled people are statistically more likely to be victims of crime and abuse than non-Disabled people. We are three times more likely to be the victims of domestic abuse.[5]  

Consideration of adequate safeguarding must be informed by a full understanding of the factors involved in abuse and exploitation of those at the end of life, of the complex dynamic between carers and those needing support and of established difficulties not only spotting but also addressing abuse.

Examples of abuse from other jurisdictions where AS is legal must be carefully explored including reports of coercion pushing individuals to end their lives against their wishes[6] and the situation in Canada where AS has been linked to human rights concerns.[7]

Widening of the original eligibility has occurred in ALL jurisdictions where AS has been legalised.

Eligibility is a complex issue to begin with. It is not possible for doctors to give an accurate prognosis of how much longer a person has left to life. This makes it difficult to limit eligibility to those with only a set time left to live naturally and makes legislation vulnerable to extension.

In Oregon, the list of diagnoses covered by the definition of terminal illness under AS legislation has grown and now includes, for example, anorexia,[8] and diabetes.[9]

In 2021, the Canadian Parliament voted to extend their Medical Assistance in Dying (MAiD) programme to people with mental health conditions.[10] The introduction of this expansion has been paused until 2027.[11] Meanwhile, from 30 October, the Canadian province of Quebec started allowing people with incurable diseases or in the early stages of dementia to make advance directives specifying conditions under which they could receive medical assistance in dying without giving further consent.[12]

In four out of eight of the jurisdictions where AS is legal, young people living with mental distress who might otherwise have lived decades have been granted euthanasia. One study found that the majority of people labelled with personality disorders who have been granted EAS (euthanasia or assisted suicide) had not received any relevant evidence-based treatment.[13]

With wider eligibility, one of the areas of greatest concern involves questions of mental capacity, coercion and abuse of advance directives.

KC Alex Ruck Keene, who is a legal expert in mental health and mental capacity law and who represented Noel Conway, a man with Motor Neurone Disease who took his legal challenge fighting for the right for assisted suicide to the Supreme Court, says the idea that capacity is straightforward is “hopelessly naïve” and stresses that Parliament has to be aware that working it through is not immediately straightforward.[14]

In the Netherlands, there have been cases where people labelled as not having capacity have been held to advance directives made at a different time in their lives and forcibly killed against their wishes. There is one report from the Netherlands of a person being physically restrained by relatives, in order for the physician to administer the lethal dose.[15]

It is also not uncommon for patients to use physical conditions to access euthanasia or AS while motivated by reasons that are outside the eligibility criteria such as depression, loneliness[16] or homelessness.[17]

The percentage of those granted AS in Oregon who cite financial concerns as one of the reasons for their decision has been steadily rising over recent years.[18]

Inadequate pain control remains as an end of life concern for only around one third with loss of autonomy and inability to participate in enjoyable activities scoring highest.[19] Figures for those citing that they “feel a burden” remains at around one half.[20]

Autonomy and being a burden are distinctly different concepts from end-of-life pain.

They are also ones with which Disabled people are extremely familiar.

We understand that there is no inevitable connection between reliance on assistance to live and a desire to die.

If given the chance, and with the right support, people can and do adapt to circumstances they once imagined they would find intolerable.[21]

We have read reports of lobbying by MPs who support legalisation for the PMB to include those who are “incurably suffering[22].

Many of those campaigning for the right to take their lives through assisted suicide will not qualify under Leadbeater’s bill so legal challenges on the grounds of discrimination will inevitably follow any passage of the bill into legislation.

A dozen human rights barristers and legal scholars have warned that the Leadbeater bill could breach the European Court of Human Rights by denying some groups access to AS while granting it to others.[23]

We urge Parliamentarians to seriously consider whether AS can be safely legislated for in any form; and, not to allow any legislation to pass that is both without adequate safeguards against abuse and against future widening of eligibility beyond the original intention.

 

2)         NEED FOR PROPER SCRUTINY

The question of AS legalisation requires time for extensive study, evidence-based discussion and heavy scrutiny.

Legislation will turn an abstract idea into a reality with enormous implications, impacting the lives and deaths of millions of individuals as well as touching the lives of all those who care what happens to them.

Anecdotally, we know of family members of those who have chosen to have their lives ended through the MAiD programme in Canada left bereft that they never had a chance to try to change their lived ones’ minds.[24]

“…none of her immediate family knew that Ms. [Wilma] Hertgers had been approved for medical assistance in dying, let alone set a date. Not her 88-year-old mother, whom she called twice a day. Not her older brother, who lived one town over. And not Mr. Hertgers, 61, [her other brother] who had only that Friday, after driving the four hours to Chilliwack, B.C., shared a pot of tea at Wilma’s kitchen table.”[25]

It will change the essential nature of the role of the physician.

At the same time, it represents a fundamental shift in society from one where State intervention in the lives of its citizens is concerned with saving and extending life to one where it also provides for assistance to end one’s life.

KC Alex Ruck Keene has warned:

“That’s the thing I think is very difficult in this space to think about. Because you have individual stories which are very, very powerful, and we’ve got lots of other individual stories out there in the public domain at the moment. But the law can’t operate for individuals. The law has to operate for everybody.”[27]

Parliament will only be able to do this ONCE.

Any gaps or oversights will have profound consequences.

Professor of Health Care Ethics, Theo Boer, who was originally in favour of AS legalisation when it was passed in the Netherlands and is now a strong critic, has warned:

“We [in the Netherlands] have put in motion something that we have now discovered has more consequences than we ever imagined.”[28]

It is welcome that the second reading of this bill is scheduled for later than anticipated on 29 November 2024. However, the timeframe for adequate consideration of the many complex facets of this question is still inappropriately tight.

The Government has made it clear that it will not take any steps towards legalisation and this will only happen through Parliament, should its members choose to.

It remains the case that the more limited Parliamentary scrutiny given to PMBs makes this an unsuitable mechanism for enacting legislation on this issue.

It feels extremely unfair for new Parliamentarians to be asked to vote on an issue of this magnitude while they are still finding their feet.

A law of this nature requires extensive pre-legislative work by an independent, properly resourced commission.

The inquiry undertaken by the health and social care select committee in 2023 does not provide an adequate basis for legislation and does not negate this need.[29]

The committee’s aim was to publish a report to serve as a basis for discussion and debate in future Parliaments, and not to inform the drafting of actual legislation.

The conclusion to the report states:

“The debate on AD/AS is not new, and our report is not intended to provide a resolution to it.”[30]

Those with decision making-powers on this question must have the chance to reflect on unconscious assumptions about quality of life and what makes a life worth living that may influence their ideas on the subject.

There are people in the same situations, living with the same levels of pain, distress, physical limitations and/or degenerative conditions as those campaigning for legalisation who are opposed to it.

It is important to understand the different perspectives.

Nicki Myers, a Disabled woman who lives in Cambridge, said:

“I’ve been a Disabled person for my entire life but I was diagnosed with a terminal condition in 2017. I have almost died so many times and then I’ve rallied. I did not expect to still be alive now. I’ve been able to support my children and grandchildren, paint portraits from my bed, spend time with friends. My view on assisted suicide has never wavered, despite some very difficult times. In the UK, we do not have sufficient health and social care support or adequate palliative care or hospice services for legalisation to be safe. I have been reassured by the doctor at my hospice about my last days. Everyone should be able to access services to give them a good death.”

We urge Parliamentarians to ensure they have adequate time and information to give due scrutiny to legislation of such a profound nature.

 

3)          FIX THE FOUNDATIONS FIRST

AS must not become a way of plugging gaps left by broken services.

The UK must not follow in Canada’s foot-steps where human rights experts continue to express “alarm about the significant human rights concerns” presented by inadequate safeguards and the proposed expansion of MAiD.[31]

The Canadian Human Rights Commission is particularly concerned about reports that Disabled people are applying for and being granted MAiD because:

              “ they cannot access the basic supports and services they need to live with dignity.”[32]

They have stated that:

“MAiD cannot be a default for Canada’s failure to fulfill its human rights obligations”[33]

This is a situation that could very easily happen here under current conditions.

Dr Bob Gill, a family doctor for over 20 years, said:

“I strongly oppose the concept of assisted dying because there is a great risk that the patient’s decision is shaped by many external factors including the sense of guilt and anticipation of suffering…  Our fight should be for better funding and access social services, restoration of benefit payments and high-quality public service.”

More than 3,400 NHS staff have warned against putting an added burden on the ‘broken’ NHS by legalising assisted suicide.[34]

In the letter, 2,038 doctors, 905 nurses, and 462 other healthcare workers expressed their concerns, saying:

“The thought of assisted suicide being introduced and managed safely at such a time is remarkably out of touch with the gravity of the current mental health crisis and pressures on staff.”[35]

The letter added that the:

“Any change would threaten society’s ability to safeguard vulnerable patients from abuse; it would undermine the trust the public places in physicians; and it would send a clear message to our frail, elderly and disabled patients about the value that society places on them as people.”[36]

Palliative care is in crisis and increasingly unable to meet the needs of those requiring support to die with dignity and with as little pain as possible.

The Association for Palliative Medicine opposes any change in the law that could lead to the supply or administration of lethal medications to deliberately end a person’s life.[37]

84% of respondents to a survey carried out by the British Medical Association who work in palliative care said they would not be willing to actively participate in the process of prescribing life-ending drugs.[38]

A survey carried out by King’s College London found that over 100,000 people in the UK die each year needing palliative care but do not receive it, and inequalities in accessing care, including among people from ethnic minority groups, are common.”

Professor Katherine Sleeman, from the Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care at King’s College London said:

“The shocking gap in the public’s understanding of palliative and end of life care also needs to be addressed… It is essential that we address the disparities that create additional barriers for people to access the care that they need.” [39]

Palliative care has long been chronically under-funded with hospices relying on charity for the majority of their income.

According to data published by Hospice UK in September 2023, England’s adults’ hospices experienced a real-terms cut in their Government funding of £47m in the preceding two years.[40] None received any uplift in line with inflation over that period.[41]

Toby Porter, CEO of Hospice UK said:

“On average, only one third of adult hospice income comes from the state, leaving hospices to rely on charitable donations to pay for the majority of their vital work. With the cost of living crisis affecting everyone, many hospices are increasingly concerned that their local communities will not be able to continue to give as generously.”[42]

Many palliative care professionals fear that AS legalisation will lead to further reductions in funding justified on the basis that money will be saved through elimination of support costs for those opting to end their lives early.

This will mean increased denial of palliative care services to those who want and need them.

Anecdotally, we know of State funded palliative care services making frontline redundancies due to funding cuts. Staff working in the community fear they will be the first to go, removing patients’ choice to die at home.

Choice at the end of life is only meaningful if it includes the choice to access palliative care support right up until a natural end.

It also requires adequate support to continue living where there is no immediate terminal prognosis.

Sadly, the situation in the UK is far removed from this.

The Prime Minister has described the NHS as broken.[43] Social care and mental health services are in the same desperate state.[44] [45] There is also a housing crisis[46] and figures show that poverty rose dramatically among Disabled people even before the cost-of-living crisis.[47]

In 2016, an unprecedented special inquiry by the United Nations Committee on the Rights of Disabled People found the UK government guilty of grave and systematic rights violations. Two of the three areas on which the inquiry focused were support to live in the community, and income and adequate social protection.

Disabled people have direct and often very distressing lived experience of the impact of inadequate service levels, staff shortages and long waiting lists not just on our own lives but also on those of loved ones left to take the strain.

Nathan Lee Davies, a Disabled man with Friedreich’s Ataxia, a progressive genetic condition of the nervous system said:

“The median age of death for someone with my condition is 35. I am 47. None of us know what is around the corner and this is why I passionately oppose assisted suicide.

“We all have a role to play in society. The main problem now is that people with impairments are overlooked and denied the services we need to express our creativity and be part of our communities. I have written three books and produced art works and there is more I passionately want to do.

“But I am currently tied up in a battle with my Local Authority who would rather tie me up in red tape. I haven’t seen a social worker in the past year and a half. I have a continual nightmare recruiting suitable Personal Assistants. Without support I am unable to eat, drink, use the toilet or wash, I can’t write or reply to emails from friends. I should be enjoying the final years of my limited life but instead I am trapped inside my bungalow.”

Disabled people in the UK are in urgent need of adequate support to meet our most basic needs.

In jurisdictions where eligibility has widened beyond terminal illness, our peers are choosing to end their lives not because of pain but because they are not able to access support to participate and contribute to society.

There are also anecdotal reports of Disabled people being inappropriately offered, pressured or made to feel guilty by professionals because they are choosing to carry on living and not opting to kill themselves.[48]

We urge Parliamentarians to be on the side of real and meaningful choice – not only over the deaths of individuals who live with pain and distress but also over the right of millions of Disabled and older people to live.

 

For more information contact: mail@dpac.uk.net

 

Additional resources

Documentary

Better Off Dead? A documentary on assisted suicide, authored by actor and disability rights activist Liz Carr.

Journal articles and research

Assisted death in eating disorders: a systematic review of cases and clinical rationales – https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2024.1431771/full

Assisted dying: Quebec allows advance directives, defying federal ban – https://www.bmj.com/content/386/bmj.q2029

Euthanasia and assisted suicide in patients with personality disorders: a review of current practice and challenges – https://bpded.biomedcentral.com/articles/10.1186/s40479-020-00131-9

Oregon Death with Dignity Act access: 25 year analysis – https://spcare.bmj.com/content/early/2024/04/05/spcare-2023-004292

Psychiatric euthanasia, suicide and the role of gender – https://www.cambridge.org/core/journals/the-british-journal-of-psychiatry/article/psychiatric-euthanasia-suicide-and-the-role-of-gender/936B360C6B2AEF2CA5360357ED8CF020

Terminal anorexia nervosa is a dangerous term: it cannot, and should not, be defined – https://jeatdisord.biomedcentral.com/articles/10.1186/s40337-022-00599-6

The Dangers of Physician Assisted Suicide in Eating Disorders – https://static1.squarespace.com/static/58e4b708f5e2312cc949b8b4/t/66e828dde88bf757b8f0acc3/1726490860329/Assisted+Suicide+in+Eating+Disorders+Report+-+US+Version.pdf

Lived Experience

Canada – https://living-with-dignity.ca/remembering-lives-lived/

Media articles and press releases

Assisted dying/assisted suicide: Too many “complicating factors” to be safely implemented, says British public in new poll

https://www.bbc.co.uk/news/world-us-canada-68120380

https://www.chrc-ccdp.gc.ca/en/resources/ending-ones-life-must-be-a-true-and-informed-choice

https://www.dailymail.co.uk/news/article-14067911/Doubts-Assisted-Dying-Bill-grow-doctors-nurses-warn-added-pressures-broken-NHS-campaigners-insist-people-hope.html

https://www.hospiceuk.org/latest-from-hospice-uk/hospice-funding-falls-short-ps47m

https://www.independent.co.uk/news/world/americas/canada-euthansia-maid-gofundme-homeless-b2228890.html

https://www.kcl.ac.uk/news/65-of-adults-are-worried-about-access-to-palliative-care

https://www.politicshome.com/thehouse/article/alex-ruck-keene-kc-assisted-dying-parliamentarians-radically-unsupported

https://www.telegraph.co.uk/politics/2024/10/05/widen-access-to-assisted-dying-say-labour-mps/

https://www.telegraph.co.uk/politics/2024/11/09/assisted-dying-echr-discrimination-human-rights/

https://www.theguardian.com/news/2019/jan/18/death-on-demand-has-euthanasia-gone-too-far-netherlands-assisted-dying

https://www.theguardian.com/society/2023/jul/13/anorexia-right-to-die-terminal-mental-health

https://www.theguardian.com/world/2024/feb/25/canada-assisted-dying-laws-in-spotlight-as-expansion-paused-again

Position statements and briefings

Association for Palliative Medicine [APM] – https://apmonline.org/wp-content/uploads/APM-Position-Statement-on-Assisted-Dying-October-2024-v2.pdf

BMA – https://www.bma.org.uk/advice-and-support/ethics/end-of-life/physician-assisted-dying/physician-assisted-dying-survey

Joint Statement Against Assisted Suicide For Eating Disorders – https://www.eatbreathethrive.org/joint-statement-assisted-suicide

Reports

Report from the health and social care select committee inquiry into assisted suicide: https://publications.parliament.uk/pa/cm5804/cmselect/cmhealth/321/report.html

Written evidence submitted to health and social care select committee inquiry:

Professor of Palliative Care, Baroness Finlay

Professor of Health Care Ethics, Theo Boer

Ministry of the Solicitor General | Office of the Chief Coroner MAiD Death Review Committee Report 2024 – 3 2024 Navigating Vulnerability in Non-Reasonably Foreseeable Natural Deaths

Website

https://notdeadyetuk.co.uk/ The website of Not Dead Yet UK, a UK-based network who are part of a global alliance of disabled people, who oppose euthanasia and assisted suicide.

 

 

 

Oct 162024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

We are a secular, human rights network of organisations run and controlled by Deaf and Disabled people (DDPOs) from across the UK.[1] We monitor and campaign for implementation of the UN Convention on the Rights of Disabled People, promoting the interests of 16.1 million Disabled people.[2]   This includes those who are terminally ill and who live with progressive, life-threatening conditions.

The debate around legalisation of assisted suicide[3] (AS) requires profound sensitivity and compassion. On both sides of the argument are lived experience of pain, suffering and distress.

The implications of this Private Members’ Bill (PMB) are far-reaching with serious potential consequences.  There is no straightforward way to legalise AS and the issues involved are complex. There are no clear lines, only blurred boundaries.

This is why no DDPO in the UK is in favour of legalisation. Additionally, all medical bodies remain opposed or neutral on the subjects. Doctors working in specialities such as oncology, geriatrics and palliative care, those where they are most likely to work with dying people, are the most opposed.[4]

We urge Parliamentarians to rigorously engage with all perspectives and the evidence base on which they rest.

Our key concerns are as follows:

  • LIMITING ELIGIBILITY AND SAFEGUARDING
  • Need to consider in detail lessons from other jurisdictions where AS is legal.
  • Pressures to extend eligibility. This has happened in ALL jurisdictions where it has been legalised so far. Legal experts warn the same will happen here. Pressure is already being exerted to within Westminster and by the main campaigning organisations in favour.
  • Risk of abuse and need to consider whether AS can ever be safely legislated for.

 

NEED FOR PROPER SCRUTINY

  • Legalisation entails a fundamental shift in society but a PMB gives little scope for scrutiny.
  • Need for extensive pre-legislative work by an independent commission.
  • Inadequacy of the health and social care select committee inquiry as a basis for legislation.
  • Need to question unconscious assumptions about quality of life.

 

FIX THE FOUNDATIONS FIRST

  • Palliative care is in crisis. Choice at the end of life must include the choice to die at home and to die naturally in as little pain as current medical knowledge can provide for.
  • Services (NHS, social care, mental health) to support those who live in pain and distress are broken. Assisted suicide must not become a replacement for public services.

For more detail on the above see the following pages / go to: https://dpac.uk.net/2024/10/choice-at-the-end-of-life-bill-briefing-from-uk-ddpo-crdp-monitoring-coalition/

 

1)         LIMITNG ELIGIBILITY AND SAFEGUARDING

These two issues are of fundamental importance to the question of legalisation. There are no easy answers to either.

Any legislation must robustly safeguard against abuse. The risks are too big to disregard.

Those who are well-intentioned often under-estimate the capacity of others to take advantage of those whose situations make them vulnerable. Harsh reality is evidenced by the fact that Disabled people are statistically more likely to be victims of crime and abuse than non-Disabled people. We are three times more likely to be the victims of domestic abuse.[5]  

Consideration of adequate safeguarding must be informed by a full understanding of the factors involved in abuse and exploitation of those at the end of life, of the complex dynamic between carers and those needing support and of established difficulties not only spotting but also addressing abuse.

Examples of abuse from other jurisdictions where AS is legal must be carefully explored including reports of coercion pushing individuals to end their lives against their wishes[6] and the situation in Canada where AS has been linked to human rights concerns.[7]

Widening of the original eligibility has occurred in ALL jurisdictions where AS has been legalised.

Eligibility is a complex issue to begin with. It is not possible for doctors to give an accurate prognosis of how much longer a person has left to life. This makes it difficult to limit eligibility to those with only a set time left to live naturally and makes legislation vulnerable to extension.

In Oregon, the list of diagnoses covered by the definition of terminal illness under AS legislation has grown and now includes, for example, anorexia,[8] and diabetes.[9]

In 2021, the Canadian Parliament voted to extend their Medical Assistance in Dying (MAiD) programme to people with mental health conditions.[10] The introduction of this expansion has been paused until 2027.[11] Meanwhile, from 30 October, the Canadian province of Quebec started allowing people with incurable diseases or in the early stages of dementia to make advance directives specifying conditions under which they could receive medical assistance in dying without giving further consent.[12]

In four out of eight of the jurisdictions where AS is legal, young people living with mental distress who might otherwise have lived decades have been granted euthanasia. One study found that the majority of people labelled with personality disorders who have been granted EAS (euthanasia or assisted suicide) had not received any relevant evidence-based treatment.[13]

With wider eligibility, one of the areas of greatest concern involves questions of mental capacity, coercion and abuse of advance directives.

KC Alex Ruck Keene, who is a legal expert in mental health and mental capacity law and who represented Noel Conway, a man with Motor Neurone Disease who took his legal challenge fighting for the right for assisted suicide to the Supreme Court, says the idea that capacity is straightforward is “hopelessly naïve” and stresses that Parliament has to be aware that working it through is not immediately straightforward.[14]

In the Netherlands, there have been cases where people labelled as not having capacity have been held to advance directives made at a different time in their lives and forcibly killed against their wishes. There is one report from the Netherlands of a person being physically restrained by relatives, in order for the physician to administer the lethal dose.[15]

It is also not uncommon for patients to use physical conditions to access euthanasia or AS while motivated by reasons that are outside the eligibility criteria such as depression, loneliness[16] or homelessness.[17]

The percentage of those granted AS in Oregon who cite financial concerns as one of the reasons for their decision has been steadily rising over recent years.[18]

Inadequate pain control remains as an end of life concern for only around one third with loss of autonomy and inability to participate in enjoyable activities scoring highest.[19] Figures for those citing that they “feel a burden” remains at around one half.[20]

Autonomy and being a burden are distinctly different concepts from end-of-life pain.

They are also ones with which Disabled people are extremely familiar.

We understand that there is no inevitable connection between reliance on assistance to live and a desire to die.

If given the chance, and with the right support, people can and do adapt to circumstances they once imagined they would find intolerable.[21]

Scope for wider eligibility is given by the title “Choice at the End of Life”, which does not limit the legislation to just one group of people, unlike the PMB it superseded (Lord Falconer’s Assisted Dying for Terminally Ill Adults bill).

This aligns with reports of lobbying for the PMB to include those who are “incurably suffering[22] and would significantly broaden eligibility beyond Kim Leadbeater’s original intention of legalising only for those with terminal illness.

Many of those campaigning for the right to take their lives through assisted suicide will not qualify under Leadbeater’s bill so legal challenges on the grounds of discrimination will inevitably follow any passage of the bill into legislation.

A dozen human rights barristers and legal scholars have warned that the Leadbeater bill could breach the European Court of Human Rights by denying some groups access to AS while granting it to others.[23]

We urge Parliamentarians to seriously consider whether AS can be safely legislated for in any form; and, not to allow any legislation to pass that is both without adequate safeguards against abuse and against future widening of eligibility beyond the original intention.

 

2)         NEED FOR PROPER SCRUTINY

The question of AS legalisation requires time for extensive study, evidence-based discussion and heavy scrutiny.

Legislation will turn an abstract idea into a reality with enormous implications, impacting the lives and deaths of millions of individuals as well as touching the lives of all those who care what happens to them.

Anecdotally, we know of family members of those who have chosen to have their lives ended through the MAiD programme in Canada left bereft that they never had a chance to try to change their lived ones’ minds.[24]

“…none of her immediate family knew that Ms. [Wilma] Hertgers had been approved for medical assistance in dying, let alone set a date. Not her 88-year-old mother, whom she called twice a day. Not her older brother, who lived one town over. And not Mr. Hertgers, 61, [her other brother] who had only that Friday, after driving the four hours to Chilliwack, B.C., shared a pot of tea at Wilma’s kitchen table.”[25]

It will change the essential nature of the role of the physician.

At the same time, it represents a fundamental shift in society from one where State intervention in the lives of its citizens is concerned with saving and extending life to one where it also provides for assistance to end one’s life.

KC Alex Ruck Keene has warned:

“That’s the thing I think is very difficult in this space to think about. Because you have individual stories which are very, very powerful, and we’ve got lots of other individual stories out there in the public domain at the moment. But the law can’t operate for individuals. The law has to operate for everybody.”[27]

Parliament will only be able to do this ONCE.

Any gaps or oversights will have profound consequences.

Professor of Health Care Ethics, Theo Boer, who was originally in favour of AS legalisation when it was passed in the Netherlands and is now a strong critic, has warned:

“We [in the Netherlands] have put in motion something that we have now discovered has more consequences than we ever imagined.”[28]

It is welcome that the second reading of this bill is scheduled for later than anticipated on 29 November 2024. However, the timeframe for adequate consideration of the many complex facets of this question is still inappropriately tight.

The Government has made it clear that it will not take any steps towards legalisation and this will only happen through Parliament, should its members choose to.

It remains the case that the more limited Parliamentary scrutiny given to PMBs makes this an unsuitable mechanism for enacting legislation on this issue.

It feels extremely unfair for new Parliamentarians to be asked to vote on an issue of this magnitude while they are still finding their feet.

A law of this nature requires extensive pre-legislative work by an independent, properly resourced commission.

The inquiry undertaken by the health and social care select committee in 2023 does not provide an adequate basis for legislation and does not negate this need.[29]

The committee’s aim was to publish a report to serve as a basis for discussion and debate in future Parliaments, and not to inform the drafting of actual legislation.

The conclusion to the report states:

“The debate on AD/AS is not new, and our report is not intended to provide a resolution to it.”[30]

Those with decision making-powers on this question must have the chance to reflect on unconscious assumptions about quality of life and what makes a life worth living that may influence their ideas on the subject.

There are people in the same situations, living with the same levels of pain, distress, physical limitations and/or degenerative conditions as those campaigning for legalisation who are opposed to it.

It is important to understand the different perspectives.

Nicki Myers, a Disabled woman who lives in Cambridge, said:

“I’ve been a Disabled person for my entire life but I was diagnosed with a terminal condition in 2017. I have almost died so many times and then I’ve rallied. I did not expect to still be alive now. I’ve been able to support my children and grandchildren, paint portraits from my bed, spend time with friends. My view on assisted suicide has never wavered, despite some very difficult times. In the UK, we do not have sufficient health and social care support or adequate palliative care or hospice services for legalisation to be safe. I have been reassured by the doctor at my hospice about my last days. Everyone should be able to access services to give them a good death.”

We urge Parliamentarians to ensure they have adequate time and information to give due scrutiny to legislation of such a profound nature.

 

3)          FIX THE FOUNDATIONS FIRST

AS must not become a way of plugging gaps left by broken services.

The UK must not follow in Canada’s foot-steps where human rights experts continue to express “alarm about the significant human rights concerns” presented by inadequate safeguards and the proposed expansion of MAiD.[31]

The Canadian Human Rights Commission is particularly concerned about reports that Disabled people are applying for and being granted MAiD because:

              “ they cannot access the basic supports and services they need to live with dignity.”[32]

They have stated that:

“MAiD cannot be a default for Canada’s failure to fulfill its human rights obligations”[33]

This is a situation that could very easily happen here under current conditions.

Dr Bob Gill, a family doctor for over 20 years, said:

“I strongly oppose the concept of assisted dying because there is a great risk that the patient’s decision is shaped by many external factors including the sense of guilt and anticipation of suffering…  Our fight should be for better funding and access social services, restoration of benefit payments and high-quality public service.”

More than 3,400 NHS staff have warned against putting an added burden on the ‘broken’ NHS by legalising assisted suicide.[34]

In the letter, 2,038 doctors, 905 nurses, and 462 other healthcare workers expressed their concerns, saying:

“The thought of assisted suicide being introduced and managed safely at such a time is remarkably out of touch with the gravity of the current mental health crisis and pressures on staff.”[35]

The letter added that the:

“Any change would threaten society’s ability to safeguard vulnerable patients from abuse; it would undermine the trust the public places in physicians; and it would send a clear message to our frail, elderly and disabled patients about the value that society places on them as people.”[36]

Palliative care is in crisis and increasingly unable to meet the needs of those requiring support to die with dignity and with as little pain as possible.

The Association for Palliative Medicine opposes any change in the law that could lead to the supply or administration of lethal medications to deliberately end a person’s life.[37]

84% of respondents to a survey carried out by the British Medical Association who work in palliative care said they would not be willing to actively participate in the process of prescribing life-ending drugs.[38]

A survey carried out by King’s College London found that over 100,000 people in the UK die each year needing palliative care but do not receive it, and inequalities in accessing care, including among people from ethnic minority groups, are common.”

Professor Katherine Sleeman, from the Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care at King’s College London said:

“The shocking gap in the public’s understanding of palliative and end of life care also needs to be addressed… It is essential that we address the disparities that create additional barriers for people to access the care that they need.” [39]

Palliative care has long been chronically under-funded with hospices relying on charity for the majority of their income.

According to data published by Hospice UK in September 2023, England’s adults’ hospices experienced a real-terms cut in their Government funding of £47m in the preceding two years.[40] None received any uplift in line with inflation over that period.[41]

Toby Porter, CEO of Hospice UK said:

“On average, only one third of adult hospice income comes from the state, leaving hospices to rely on charitable donations to pay for the majority of their vital work. With the cost of living crisis affecting everyone, many hospices are increasingly concerned that their local communities will not be able to continue to give as generously.”[42]

Many palliative care professionals fear that AS legalisation will lead to further reductions in funding justified on the basis that money will be saved through elimination of support costs for those opting to end their lives early.

This will mean increased denial of palliative care services to those who want and need them.

Anecdotally, we know of State funded palliative care services making frontline redundancies due to funding cuts. Staff working in the community fear they will be the first to go, removing patients’ choice to die at home.

Choice at the end of life is only meaningful if it includes the choice to access palliative care support right up until a natural end.

It also requires adequate support to continue living where there is no immediate terminal prognosis.

Sadly, the situation in the UK is far removed from this.

The Prime Minister has described the NHS as broken.[43] Social care and mental health services are in the same desperate state.[44] [45] There is also a housing crisis[46] and figures show that poverty rose dramatically among Disabled people even before the cost-of-living crisis.[47]

In 2016, an unprecedented special inquiry by the United Nations Committee on the Rights of Disabled People found the UK government guilty of grave and systematic rights violations. Two of the three areas on which the inquiry focused were support to live in the community, and income and adequate social protection.

Disabled people have direct and often very distressing lived experience of the impact of inadequate service levels, staff shortages and long waiting lists not just on our own lives but also on those of loved ones left to take the strain.

Nathan Lee Davies, a Disabled man with Friedreich’s Ataxia, a progressive genetic condition of the nervous system said:

“The median age of death for someone with my condition is 35. I am 47. None of us know what is around the corner and this is why I passionately oppose assisted suicide.

“We all have a role to play in society. The main problem now is that people with impairments are overlooked and denied the services we need to express our creativity and be part of our communities. I have written three books and produced art works and there is more I passionately want to do.

“But I am currently tied up in a battle with my Local Authority who would rather tie me up in red tape. I haven’t seen a social worker in the past year and a half. I have a continual nightmare recruiting suitable Personal Assistants. Without support I am unable to eat, drink, use the toilet or wash, I can’t write or reply to emails from friends. I should be enjoying the final years of my limited life but instead I am trapped inside my bungalow.”

Disabled people in the UK are in urgent need of adequate support to meet our most basic needs.

In jurisdictions where eligibility has widened beyond terminal illness, our peers are choosing to end their lives not because of pain but because they are not able to access support to participate and contribute to society.

There are also anecdotal reports of Disabled people being inappropriately offered, pressured or made to feel guilty by professionals because they are choosing to carry on living and not opting to kill themselves.[48]

We urge Parliamentarians to be on the side of real and meaningful choice – not only over the deaths of individuals who live with pain and distress but also over the right of millions of Disabled and older people to live.

 

For more information contact: mail@dpac.uk.net

 

Additional resources

Documentary

Better Off Dead? A documentary on assisted suicide, authored by actor and disability rights activist Liz Carr.

Journal articles and research

Assisted death in eating disorders: a systematic review of cases and clinical rationales – https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2024.1431771/full

Assisted dying: Quebec allows advance directives, defying federal ban – https://www.bmj.com/content/386/bmj.q2029

Euthanasia and assisted suicide in patients with personality disorders: a review of current practice and challenges – https://bpded.biomedcentral.com/articles/10.1186/s40479-020-00131-9

Oregon Death with Dignity Act access: 25 year analysis – https://spcare.bmj.com/content/early/2024/04/05/spcare-2023-004292

Psychiatric euthanasia, suicide and the role of gender – https://www.cambridge.org/core/journals/the-british-journal-of-psychiatry/article/psychiatric-euthanasia-suicide-and-the-role-of-gender/936B360C6B2AEF2CA5360357ED8CF020

Terminal anorexia nervosa is a dangerous term: it cannot, and should not, be defined – https://jeatdisord.biomedcentral.com/articles/10.1186/s40337-022-00599-6

The Dangers of Physician Assisted Suicide in Eating Disorders – https://static1.squarespace.com/static/58e4b708f5e2312cc949b8b4/t/66e828dde88bf757b8f0acc3/1726490860329/Assisted+Suicide+in+Eating+Disorders+Report+-+US+Version.pdf

Lived Experience

Canada – https://living-with-dignity.ca/remembering-lives-lived/

Media articles and press releases

Assisted dying/assisted suicide: Too many “complicating factors” to be safely implemented, says British public in new poll

https://www.bbc.co.uk/news/world-us-canada-68120380

https://www.chrc-ccdp.gc.ca/en/resources/ending-ones-life-must-be-a-true-and-informed-choice

https://www.dailymail.co.uk/news/article-14067911/Doubts-Assisted-Dying-Bill-grow-doctors-nurses-warn-added-pressures-broken-NHS-campaigners-insist-people-hope.html

https://www.hospiceuk.org/latest-from-hospice-uk/hospice-funding-falls-short-ps47m

https://www.independent.co.uk/news/world/americas/canada-euthansia-maid-gofundme-homeless-b2228890.html

https://www.kcl.ac.uk/news/65-of-adults-are-worried-about-access-to-palliative-care

https://www.politicshome.com/thehouse/article/alex-ruck-keene-kc-assisted-dying-parliamentarians-radically-unsupported

https://www.telegraph.co.uk/politics/2024/10/05/widen-access-to-assisted-dying-say-labour-mps/

https://www.telegraph.co.uk/politics/2024/11/09/assisted-dying-echr-discrimination-human-rights/

https://www.theguardian.com/news/2019/jan/18/death-on-demand-has-euthanasia-gone-too-far-netherlands-assisted-dying

https://www.theguardian.com/society/2023/jul/13/anorexia-right-to-die-terminal-mental-health

https://www.theguardian.com/world/2024/feb/25/canada-assisted-dying-laws-in-spotlight-as-expansion-paused-again

Position statements and briefings

Association for Palliative Medicine [APM] – https://apmonline.org/wp-content/uploads/APM-Position-Statement-on-Assisted-Dying-October-2024-v2.pdf

BMA – https://www.bma.org.uk/advice-and-support/ethics/end-of-life/physician-assisted-dying/physician-assisted-dying-survey

Joint Statement Against Assisted Suicide For Eating Disorders – https://www.eatbreathethrive.org/joint-statement-assisted-suicide

Reports

Report from the health and social care select committee inquiry into assisted suicide: https://publications.parliament.uk/pa/cm5804/cmselect/cmhealth/321/report.html

Written evidence submitted to health and social care select committee inquiry:

Professor of Palliative Care, Baroness Finlay

Professor of Health Care Ethics, Theo Boer

Ministry of the Solicitor General | Office of the Chief Coroner MAiD Death Review Committee Report 2024 – 3 2024 Navigating Vulnerability in Non-Reasonably Foreseeable Natural Deaths

Website

https://notdeadyetuk.co.uk/ The website of Not Dead Yet UK, a UK-based network who are part of a global alliance of disabled people, who oppose euthanasia and assisted suicide.

 

 

 

Oct 142024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

**** The link to the zoom meeting we previously published will no longer work please, register via eventbrite below ****

 

#BetterOffDead?

DPAC & Allies Campaign Strategy Meeting

shows Houses of Parliament with a light blue background. With BBC logo in black text top left hand side and in red text I player top right hand side Woman in a wheelchair sits with a concrete wall behind her she is wearing a pink dress and a blue cardigan over the top and sits with her hands clasped. She has short black hair and wears a pair of black glasses on the top of her head

#BetterOffDead?

To campaign against Kim Leadbetter Private Members Bill on Assisted Dying

Sunday 20th October 2024
2.30pm to 5pm
Meeting will be on zoom
Meeting will be BSL and have zoom captions

Eventbrite link to register https://www.eventbrite.co.uk/e/betteroffdead-dpac-allies-strategy-meeting-against-assisted-dying-tickets-1048161789127 

You will receive a Link to the zoom meeting 48 hours before the meeting

You can watch Liz Carr in ‘Better Off Dead’ via YouTube with captions

Oct 222021
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Copy of letter that appeared in today’s Daily Telegraph:

SIR – We are from different political backgrounds but are united in our opposition to the attempt to change the law on assisted dying.

Baroness Meacher’s Bill would disproportionately threaten disabled people, question the value of our lives and suggest that assisted suicide is an option we “should” be considering.

Rights groups have long been concerned about pressure being put on disabled people to end their lives prematurely for fear of being a personal or financial burden on loved ones.

The legal, medical and social implications of the Bill for disabled people are enormous. They need to know that doctors are obliged to do all they can to help everyone to live a good life. The current law keeps unconscious discrimination and social bias towards disabled people in check.

Supporters of the Bill neglect to mention that none of the leading disability rights groups support a change in the law. Given Covid’s disproportionate impact on disabled people – 60 per cent of deaths – it is crucial that protection is strengthened. This Bill would weaken it, with fatal unintended consequences. We urge our colleagues to oppose the Bill.

Baroness Campbell of Surbiton (Crossbench)
Baroness Grey-Thompson (Crossbench)
Lord Shinkwin (Con)
London SW1

Aug 032015
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

– Urgent Action for DDPOs and Disabled Rights Campaigners to oppose the legalisation of Assisted Suicide

Book NOW for Assisted Dying bill briefing session and media training -13 August

The Reclaiming Our Futures Alliance is calling on Deaf and Disabled People’s Organisations (DDPOs) and individual Disabled Rights campaigners and supporters to join Not Dead Yet UK in speaking out about the dangers that the legalisation of assisted suicide poses to Disabled people.

There are currently two bills to legalise assisted suicide before Parliament. Lord Falconer’s Assisted Dying bill had its First Reading in the House of Lords on 4 June and Rob Marris’ Assisted Dying No.2 Bill had its first reading in the House of Commons on 24 June. Marris’ bill will have its Second Reading debate in the House of Commons on 11 September when Parliament returns from its Summer recess. For the first time in years MPs will get to vote on this highly controversial subject.

There are many different ways you can be involved but one important ask is for DDPOs to sign up to the ROFA statement opposing legalisation.

Inclusion London is also running an Assisted Dying bill  briefing session and media training workshop facilitated by Liz Carr from the Not Dead Yet campaign on Thursday 13th August at 336 Brixton Road, SW9 7AA.

The day is open to representatives and members from national as well as London Disabled People’s Organisations and campaigns. For more information visit the Inclusion London website  or contactellen.clifford@inclusionlondon.co.uk.

To read more about the Assisted Dying bills, the issues surrounding the legalisation of assisted suicide and ways you can be involved in the campaign see the Inclusion London (www.inclusionlondon.co.uk/Campaigns) and DPAC (www.dpac.uk.net) websites.

 

 

 Posted by at 17:16
Jul 052015
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

In 2012, thanks to an award from The Winston Churchill Travelling Fellowship, disabled actor and activist Liz Carr travelled to the then five countries where assisted suicide and/or euthanasia are legal ie Belgium, The Netherlands, Switzerland, Luxembourg and in the USA, Oregon and Washington State.  (Assisted suicide is now also legal in the US state of Vermont and in Canada).

 

Liz is opposed to the legalisation of assisted suicide and wanted to discover for herself how these laws work in practice and how, if at all, their existence changes the culture of a country.  She shares her discoveries in a two-part BBC World Service radio documentary entitled, “When Assisted Death is Legal” and which is available to listen to here: https://www.bbc.co.uk/programmes/p014dkq5

 

In under an hour of listening time, these programmes provide important new information and perspectives on this most difficult of topics.  For example:

 

* In Luxembourg, Jean Huss and Lydie Err, who co-sponsored the Assisted Suicide and Euthanasia Bill 2012, admitted they were disappointed in the law because they said it failed to include children and those with dementia.  When I asked why these groups were not included in their law, they said that they knew it was easier to pass the law initially for terminally ill people only and then, once passed, to increase the law’s application.

 

* In Oregon, where the law is the blueprint for the Assisted Dying Bill currently before you in the House of Lords, the 2013 statistics reveal that pain is infact not one of the main concerns of people requesting assisted suicide.  Instead, the three main reasons are loss of autonomy (93%), decreasing ability to participate in activities that make life enjoyable (88.7%) and loss of dignity (73.2%).  By comparison, inadequate pain control or concern about it was one of the least important concerns at 28.2%.

 

*  Since this documentary was produced, Washington State’s 2013 annual report has shown that 61% of all those who were supplied lethal drugs in order to commit suicide listed the feeling of being a burden on family, friends or caregivers as one of their main reasons for their request.

 

* In Switzerland, assisted suicide has been legal since the late 1800’s and one of its most stringent safeguards is that each case is investigated by the police

 

* The Netherlands are currently debating something called ‘Completed Life’ which would legalise assisted suicide for those 70+ who are tired of life

 

* In the first 10 years since the Belgium Euthanasia law was enacted, there has not been one case of abuse reported.  Is this because there have been no abuses (the BMJ reported in 2010 that only half of all euthanasia cases are properly reported) or because, as in most other countries, reporting and monitoring are self-regulatory?

 

Liz’s personal conclusion is that the risks to the safety and wellbeing of the majority should continue to outweigh the individual needs of those who want an assisted suicide.  She hopes you agree and will vote ‘no’ to the Assisted Dying Bill.

Jul 052015
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Wolverhampton South MP Rob Marris’s Assisted Dying Bill is going to be debated and voted upon in what’s known as it’s Second Reading in the House of Commons on September 11th.  This is the first time in 18 years that MPs will have had the chance to vote on an assisted suicide (AS) law.

 

We want to make sure that MPs vote ‘NO’ and kill the bill on September 11th. see also info about the lobby on 14th July

 

We need to talk to our MPs about our fears and concerns about such a bill, to find whether they’re for or against it and if the latter, we desperately need them to attend on 11th September to vote against this bill.

 

This information sheet is the legal one.  It details the current legal situation and looks at the details of these assisted dying bills.

 

The current situation

 

Those of us who oppose a change in the law, believe the current situation is adequate.  Under the 1961 Suicide Act, killing yourself is not illegal but encouraging or assisting another person’s suicide is and can lead to up to 14 years imprisonment.  The current law acts a deterrent to malicious or manipulative assistance with suicide.

 

But the Director of Public Prosecutions (DPP) also has a discretion not to prosecute if, for example, it is clear that assistance has been given reluctantly / after serious soul-searching or for ‘wholly compassionate’ reasons to ill or disabled people.  It is this discretion that has allowed the high profile assisted suicide cases to avoid prosecution.

 

There are a list of factors considered when deciding if the law has been broken but in reality, if a person has made it clear that they want to end their life by an assisted suicide for health / impairment reasons and a friend or family member aids them (as opposed to a medical professional) then whilst they may be investigated, it is unlikely that they will be prosecuted.  Infact less than 20 cases a year throughout the whole of England and Wales cross the desk of the DPP and few of them call for prosecution.  And yet apparently this law isn’t working?

 

But laws send out messages – when something is legalised, it acquires the stamp of social approval.  An assisted suicide law says, in effect, that if you are terminally ill, ending your life is an option that it is appropriate to consider.

And by putting assisted suicide into the hands of the medical profession, it’s feared it could become a treatment option.

 

Critics of the current law say that it’s unfair for families and friends to have to help an ill or disabled person to end their lives and not know in advance whether or not they’ll be investigated and charged.  We say the illegatlity of the assisted suicide acts as a deterrent and ensures it is not the easy option.

 

Supporters say that because it’s not currently legal for a Dr to assist, that people have to kill themselves with amateur means which may fail.  We say that everyone has the means to commit suicide and why should ill / disabled people be given a 100% successful method when over 90% of suicides for everyone else actually fail?

 

They say that dying people may have no choice but to take themselves off to somewhere like Dignitas before they’re ready to die but while the person is still well enough to travel – and that travelling to Dignitas is costly and difficult for those involved.  We say that rather bringing assisted suicide to the masses and make it an easy option,  that there should be improvements to end of life care for all people to ensure everyone can have a peaceful and pain free end to their life.

 

Supporters say they want the right to die.  We believe the right to die already exists for each and every one of us. What those wanting a change in the law are actually asking for is the right for someone else to kill them.

 

Instead of a discretionary power where very few assisted suicides are ever prosecuted, supporters of a change in the law want to lay down in advance, the situations when it is okay for a Dr to assist a person to end their life.  We say the law as it is enables the choice of a few whilst protecting the many.

 

What’s in the Assisted Dying Bill?

 

At the time of writing the text of the Marris bill is unknown but it’s likely that it will be very similar to the Lord Falconer Assisted Dying Bill that Not Dead Yet UK protested against in the previous Parliament. (Lord Falconer has also re-introduced his Assisted Dying Bill into the House of Lords so even if we defeat the Marris Bill in the Commons, we will still have to contend with Falconer at some point in the future!).  Firstly they’re calling it an assisted dying and not an assisted suicide bill.  They say it’s because it’s only for those who are actually dying but we say it’s to make the term more palatable, after all, the current campaigning group Dignity in Dying used to be called the Voluntary Euthanasia Society.

 

If passed, the ‘assisted dying bill’ would license doctors to supply lethal drugs to:

  • terminally ill patients with less than 6 months to live and who have,
  • a settled intent to end his or her life
  • the capacity to make such a decision and
  • are making the request voluntarily, on an informed basis and without pressure or duress

 

Two doctors are required to certify that these criteria have been met and their decision is to be referred to a judge of the High Court for confirmation.  There is no requirement for a psychological assessment to assess capacity.  The doctors do not have to be your regular doctors.  If approved, the person would be supplied with the lethal drugs to enable them to commit suicide.

A medical professional (but not necessarily a doctor) would remain with the person until they died but they cannot help them to take the drugs – to do so would cross the line between assisted suicide and euthanasia.

 

Many people who support this bill believe it is to assist those who cannot kill themselves to have the same opportunity as everyone else but in fact, if someone cannot physically ingest or do the final act themselves would not technically come under this bill.

 

The proposed law – unsafe to change

 

Critics of the bill are meant to be reassured by ‘safeguards’ to protect ‘the vulnerable’ from abuse – and ultimately murder.  So what safeguards exist to protect someone from being killed without their fully informed consent?

 

The proposals list a number of qualifying criteria for assisted suicide – such as settled intent, capacity to make the decision and freedom from pressure – but they do not translate these criteria into concrete safeguards.  Instead, they

propose that these issues should be dealt with by the Secretary of State in codes of practice AFTER Parliament has agreed to change the law.  SO MPs don’t even know the full extent of what they’d be voting for on September 11th. In effect, the issue of safeguarding has been side-stepped and Parliament is being asked to sign a blank cheque.

 

After concern about lack of safeguards was raised when the House of Lords debated the Assisted Dying Bill, Lord Falconer added a proposal that when a doctor assessing a request for assisted suicide considers that it meets the designated criteria, the decision should then be referred to a judge of the High Court for confirmation.  The bill does not, however, require the Court to undertake any investigations of its own and as such, the role envisaged for the Court is little more than that of a rubber stamp.  It is expected this will also be included in the Marris Bill.

 

Many aspects of a request for assistance with suicide go beyond a doctor’s professional competence.  It may be fair to ask a doctor to confirm that a patient is terminally ill, to offer a prognosis and to advise on possible treatments.  But most doctors are in no position to judge whether a request for assistance with suicide derives from a settled wish or whether there are any pressures operating in the background that could be influencing the request.  In today’s world of busy multi-partner GP practices and declining home visits doctors often know little of their patients beyond what they pick up in the consulting room and they do not have the time or resources to set about investigating such matters.

 

The Oregon Experience

 

The Oregon Death with Dignity Act has been the blue print for the Falconer Bill and will be no doubt for the Marris Bill too.  Here are some of the problems with the Oregon law:

 

  • Individuals seeking assisted suicide can resort to doctor shopping- visiting doctor after doctor until one agrees to write the lethal prescription.

 

  • Patients are often misdiagnosed as terminally ill with less than 6months to live when in fact they live for months and even years beyond what was originally expected.

 

  • Individuals with a new illness or disability are often faced with depression, which requires more than Oregon’s 15 day waiting period to be treated.

 

  • Many patients experience outside pressure to commit assisted suicide, which often goes unnoticed and unpunished.

 

  • Individuals are often portrayed as a burden on their families and are made to feel that their life is not as valuable.

 

  • In 2007, none of the individuals that requested assisted suicide in Oregon were referred for a mental health evaluation.

 

  • Under Oregon law, depressed or mentally ill individuals can still be considered “competent” to request assisted suicide.

 

  • Under Oregon law, doctors that fail to report or file incomplete or inaccurate reports face no penalties.

 

  • All records are sealed and all underlying data is destroyed after the annual report is published.

 

  • The 2013 Oregon statistics reveal that the three main reasons given for requesting an assisted suicide are loss of autonomy (93%), decreasing ability to participate in activities that make life enjoyable (88.7%) and loss of dignity (73.2%).  By comparison, inadequate pain control or concern about it was one of the least important concerns at 28.2%.

 

  • Assisted suicide is also legal in Washington State. The 2013 annual report has shown that 61% of all those who were supplied lethal drugs in order to commit suicide listed the feeling of being a burden on family, friends or caregivers as one of their main reasons for their request.

 

  • 64 year old Barbara Wagner was diagnosed with metastatic lung cancer. Her oncologist prescribed chemotherapy to slow cancer growth, reduce symptoms, and extend her life.  The Oregon Health Plan however would not cover the costs for her chemotherapy prescription, but sent her a letter saying they would instead pay for assisted suicide drugs.

 

 

Jun 222015
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

(NB. Those supporting the Bill use terms such as assisted dying and death with dignity to make killing someone / assisting a suicide more palatable.  Those of us opposed to legalizing assisted suicide think it’s important to call it what it is and so we use the term assisted suicide.)

The Assisted Dying Bill is doing the rounds again.  This time Rob Marris, MP for Wolverhampton South is bringing this private members bill to the Commons for a full debate on Friday September 11 2015.  This will be the first time in over 18 years that Commons rather than the Lords have had the chance to vote on this subject so it’s essential that we let our MPs know that we oppose legalising AS.

The best way to do this is to pay your MP a visit before they finish for the summer on the 21st July.  Use this opportunity tell your MP that you oppose this Bill, to find out how they’re going to vote and most importantly, to tell your MP to attend the debate on September 11th  –  and hopefully to vote against it.

An actual meeting with your MP will have the most impact. MPs will see you at a ‘surgery’ (meeting) in their constituency (the area that your MP represents).  Sometimes you have to make an appointment and some MPs will hold drop in sessions.  If there’s a few of you in the same constituency from NDYUK, you could always go together?   Your MP should also be able to make a house call if visiting them would be difficult.

 

If you need to find out who your MP is, just put your postcode into www.parliament.uk/mps-lords-and-offices/mps/  The parliament.uk website will also help you find your MP’s webpage detailing when they hold constituency surgeries and how to make an appointment to see them.

Remember, an MP has a duty to see their constituents and an MP is meant to represent a constituent’s interests even if they disagree.

NDYUK will have an information sheet available with key points for you to print out and leave with your MP.  Your personal reasons for opposing the legalisation of assisted suicide however, will have the most impact – after all, your local MP is more likely to be concerned about issues that directly affect their constituents.  If your MP is also opposed to the Bill then you could ask them to help with our campaign, to debate against it in the Commons and to publicly speak out against the Bill in the media.

 

Most importantly, whether or not your MP shares your view, ask them to attend the debate and vote on September 11th.

 

Please make an appointment to see your MP before July 21st and if you really cannot visit them, write a letter or at least email them before July 21st.

 

Let us know how it goes, how your MP intends to vote & if you need any more information.  Thanks and good luck!

Jun 142015
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

While the Labour party still scrambles among the election debris searching for its identity and running focus groups to find out if it should be circa 1990s Bluritte retro Tory in shocking pink, or a Tuesday-an unpleasant creature seems to have emerged from the Wolverhampton dust…

Rob Marris Labour MP for Wolverhampton South West is a bit of an Indiana Jones: ex lumber jack, ex truck driver, traveller, sociologist and solicitor.  He also has a distaste for parked vans. In 2008 he caused £350 worth of damage to a van parked by a bus stop when he jumped on the bonnet because he didn’t like the way it was parked. While other people walked around the van, Rob chose to jump on the bonnet.

Colin Molloy, the district CPS prosecutor, said: “There were two vehicles parked in front of a bus stop with a small gap between them.” Others had walked through the gap but Mr Marris chose not to, Mr Molloy said. “The van was not parked to his liking,” he added. Marris admitted it was an ‘unconventional’ act and accepted a conditional caution. Unconventional is one term: contemptuous violent disregard for others property and person is another.

On the 31st July Rob Marris is hosting The Silence of Suicide. The event blurb says: ‘Strange title you may think … but it is the silence that precedes the ultimate act of those who tragically decide to end their lives’.

So it’s even stranger then, that this is the same Rob Marris who has resurrected the “assisted suicide” or “assisted dying” Bill via some archaic competition in which he was the MP who got to choose a Bill.  By this process, and choice, Marris is the man responsible for reopening the door of Falconer’s state sanctioned killing proposal.  The idea being that a doctor can leave you a lethal cocktail which you can take when he/she leaves the room, or have forced down you when he/she leaves the room-actually there are no safeguards on that unless your home is fully fitted with CCTV. Were there any other Bills he could have sponsored? Yes there were..

LBBill

Marris is a self confessed patron of Wolverhampton Mencap (Rights not Charity by the way Rob) but we’d still imagine he’d spare a thought for the LBBill  (see https://lbbill.wordpress.com/ ). A Bill intended to prevent the abuse, neglect and deaths of people with learning difficulties locked away in institutions often many miles from their families. Marris’ constituents wrote to him asking him to support the important Bill and presented the reasons why he should. But Marris replied that he had his own ideas.

 I already have a couple of ideas, and I’m sorry to disappoint you but the interesting-sounding Bill you suggest is not one of them.

I am a patron of Wolverhampton Mencap, and I can only hope that the problems you delineate are not present at New Cross (no we didn’t understand what that meant either).

Rob Marris

His idea was not to save countless lives, prevent misery and abuse of human rights, but to resurrect the call for death-A call that the majority of Doctors and the BMA rejects.

It’s the van all over again: A contemptuous violent disregard for others property, person and life. Not only will refusing to back the LBbill cost lives, but the dragging back of the assisted killing bill shows a complete contempt for disabled people. A complete ignorance of the circumstances we find ourselves in with social ‘care’ at breaking point, the loss of the ILF, £12.5bn more cuts to come, newspapers screaming scrounger, the rise of hate crime and the collapse of welfare support.

There couldn’t be a more dangerous time to bring back the Bill. But maybe that’s the idea, with little between Labour and the Tories, the shrinking of the state along with the culling of more disabled people through the assisted dying/suicide/killing Bill- it couldn’t be better timed. Why try to right the wrongs in long term hospitals, prevent deaths in long stay institutions, attempt to recognise human rights when people are tied down against their will or force fed psychotic drugs in long stay institutions-they needn’t bother with any of it.

Marris also needn’t bother with the hundreds of disabled adults in Wolverhampton who are Independent Living Fund (ILF) users. Wolverhampton ILF users are set to lose £784,000 when the ILF closes on June 30th and monies transfer to the local authority. At the time of writing Wolverhampton social services have refused to tell the 300 ILF users in Wolverhampton what’s going to happen to their support. Marris doesn’t seem particularly bothered either.

Marris doesn’t care about ILF users, he doesn’t care about the human rights abuses happening in long stay hospitals and institutions. He cares about the horrors of suicide while simultaneously imposing state sanctioned suicide on disabled people.

Ann Whitehurst sums it up

Rob Marris, Labour MP, was number 1 MP on the PMB ballot list and was therefore in a position to save countless disabled people’s lives and prevent thousands from abusive neglect. A number of requests were made for Rob Marris to present the Disabled Peoples Community Inclusion bill, known as LBbill, including one from Bob Williams-Findlay who lives in Marris’ constituency but he declined to sponsor the bill preferring to use his position of being in line-up for ‘private members bill’ to sponsor killing us rather than including us in life.

When have any of these Labour MPs who want us dead ever put forward Assisted Living bill? How many fought for the ILF? How many support people to get decent Care Packages from their social services? Labour fascism”.

Rob Marris we’re bringing a van to Wolverhampton very soon and we don’t think you’re going to like where we’ll be parking it.

Rob is on twitter @WSW_Labour why not let him know what you think

 

 

 

 

https://www.telegraph.co.uk/news/politics/labour/2076906/Labour-MP-Rob-Marris-cautioned-for-damaging-van.html

https://lbbill.wordpress.com/

https://www.changepeople.org/blog-and-news/justice-for-laughing-boy-a-new-bill-for-parliament/

https://www.robmarris.net/the_silence_of_suicide

https://www.expressandstar.com/news/2015/06/10/fears-over-780000-disability-benefits-in-wolverhampton-council-change/

 

 

 

 Posted by at 14:48
Jan 132015
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

NDY graphic

Press Release: 12th January 2015 @ 13:00
__________________________________________________

“NOT IN OUR NAME”
Terminally ill and disabled people speak out against the Assisted Dying Bill ahead of their protest outside the House of Lords on Friday, 16th January 2015.

NYD posters

Lord Falconer’s Assisted Dying Bill will be debated in the House of Lords on Friday, 16th January 2015. Members of Not Dead Yet UK and others, will protest against the Bill outside the Houses of Parliament. They will carry pictures and statements from 80 terminally ill and disabled individuals whose conditions prevent them from travelling to London or sitting outside in cold weather.

Celebrity supporters of the Bill are well known already but politicians need to hear and value the opinions of people living with terminal illnesses and severe disabilities. We oppose any change in the law on assisted suicide because we fear it will put lives at risk. We do not accept that safeguards proposed in the Bill are adequate.

Not Dead Yet UK firmly believes that terminally ill and disabled people need the full protection of the law, especially at times when they, their families and friends may be fearful of the future. That is why we oppose the Assisted Dying Bill.

Sian Vasey, a Not Dead Yet UK member, said, “When people ask to be assisted to die, this is often in isolation and before everything possible has been done to alleviate their situation in terms of medical, social and emotional support. Fears for the future are the most common reasons for a person to request assisted suicide”.

Photo opportunity

Date: Friday, 16th January 2015

Time: 10:00AM – 1:00 PM

Venue: Old Palace Yard (opposite the House of Lords)

Sign up to the Thunderclap on twitter or facebook  https://www.thunderclap.it/projects/21181-opposing-an-assisted-dying-law

Notes to Editors:

  1. Not Dead Yet UK is a campaigning network of disabled people founded in 2006 to oppose legislation on assisted dying for disabled and terminally ill people.

  2. NDY UK is an international ally to Not Dead Yet, USA https://www.notdeadyet.org/

  3. Not Dead Yet UK promotes equality for disabled people in a secular context; it is not faith centred or allied to any organised religion. Its supporters come from all sections of the community. Its guiding principles are to value the lives of terminally ill and disabled people and oppose assisted suicide.

 Posted by at 12:15
Nov 022014
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net
On Friday November 7th the ‘Assisted Dying Bill’ returns to the House of Lords to be debated and amended line by line.
We have to show the Lords, the public and the media that disabled people do not want to give doctor’s the power to end our lives.  We do not want the state sanctioned killing of old, ill and disabled people of all impairments. 
We do not want to legalise assisted suicide.
This Bill is not safe!  
We want support to live, not to die. 
We have to stop this before it begins.
If we don’t, who will be next?
We have no choice but to protest.
 
Not Dead Yet UK plans to be outside the Lords in a show of opposition that no one will want to miss.
 
We’ll be gathering from 8 am at the Methodist Central Hall where the cafe will be open and there are accessible toilets. 
 
From there, we’ll be making the 5 minute push to the statue of George V, opposite the Houses of Parliament, Abingdon Street, London, SW1P 3JY (where we were last time).
 
We know this is early for many of us but please, if you can get there at any time before 10.30 am, please join us.  If you’ll be arriving after 9 am, go straight to the George V statue.
 
We should be finished by 11 am at the very latest.
 
If you need support – financial or otherwise, it may be possible for us to help out.  Please contact us on:  0797 0959791
 
This is a matter of life and death – please join us on the 7th November to say Kill the Bill, Not Us!
 
#notdeadyetuk