Jul 112024
 
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Contents

Six days and 19,000 words into a new government, and just one mention of disability… then DWP claimant-blaming begins again 1

Trio of new disabled MPs join House of Commons 3

Anger and frustration over Labour’s ‘disgraceful’ decision not to appoint Foxcroft as disability minister 6

Campaigners welcome election defeats for DWP ministers, but frustration as key trio survive 8

Report poses crucial questions for Labour government on whether to scrap work capability assessment 11

Disabled people’s organisations call on government to ‘show you will be on our side’ 13

Other disability-related stories covered by mainstream media this week 15

 

Six days and 19,000 words into a new government, and just one mention of disability… then DWP claimant-blaming begins again

After six days in which disabled adults were ignored in a series of announcements from the new government, Labour’s work and pensions secretary has this morning launched an attack on the “unacceptable” number of people on out-of-work benefits.

In its first six days of government, after a crushing general election victory, Labour had mentioned disabled people just once in more than 19,000 words across 28 speeches and press releases, and that brief reference focused on disabled children.

But on the seventh day, just after midnight, work and pensions secretary Liz Kendall announced that rising levels of economic inactivity were “unacceptable” and “immediate action” must be taken, stressing the “record 2.8 million people” who were out of work due to “long-term sickness”.

Although the language used was not as hostile as that used by the last Conservative government, Kendall still said this morning (Thursday) that economic inactivity was “holding Britain back” and was “bad for people, it’s bad for businesses, and it’s bad for growth”.

The early response this morning from at least some disabled people was that she was “blaming those too ill to work for holding Britain back”.

Kendall said: “We’ll create more good jobs, make work pay, transform skills, and overhaul jobcentres, alongside action to tackle the root causes of worklessness including poor physical and mental health.”

She announced a new jobs and careers service; new work, health and skills plans for “the economically inactive”; and more opportunities for training, an apprenticeship or help to find work for all those aged 18 to 21.

She said more disabled people and those with health conditions would be supported to enter and stay in work, by devolving more power to local areas.

Health and social care secretary Wes Streeting had announced on Tuesday that cutting NHS waiting lists would “get Britain back to health and back to work”, and that his department would make economic growth a priority.

Analysis by Disability News Service (DNS) of the first six days’ public announcements on the government’s news and communications web page shows disabled adults were not mentioned at all by any ministers before Kendall’s announcement.

The only mention of disability was in a press release announcing the appointment of a non-executive board member by the Department for Education (DfE).

The DfE said in the press release that the education and care system “does not currently meet the needs of all children, particularly those with Special Educational Needs and Disabilities (SEND)”.

And it said that “earlier interventions in mainstream schools” was “key for those with less complex needs”. 

It announced that DfE would “restructure” its department to “ensure that improving inclusion in mainstream schools is the heart of our plans to improve opportunity for those children with SEND”.

It plans to bring policy on SEND and alternative provision under the responsibility of its schools group, one of the department’s six subdivisions that are each led by a director general.

None of the other releases by the government in its first six days in post mentioned disabled people, including a release describing Labour’s “six first steps for change”, or Keir Starmer’s first speech as prime minister, delivered outside 10 Downing Street.

Wes Streeting, the new health and social care secretary, managed to deliver his first speech in his new role without even mentioning social care, while transport secretary Louise Haigh set out her five “strategic priorities” without any mention of the huge access barriers disabled people face in using public transport.

Dr Marie Tidball, one of the new disabled Labour MPs (see separate story), suggested that disabled people should not read too much into this analysis.

Speaking before Kendall’s work and pensions announcement, she told DNS yesterday: “We’re not even a week in, and I think the damage that the past government did over the last 14 years is so great, there’s so much work to do across every aspect of government.

But I think the fact that the social model is very much embedded in the manifesto, that the party has worked so hard to increase representation of a whole diverse range of people, including disabled candidates in key seats, should fill people with enthusiasm and excitement.”

She said Labour would be “mainstreaming disability” by ensuring that “every aspect of the way that we’re doing government is integrating it within it”.

Tidball highlighted key areas in Labour’s manifesto, including pledges on disability employment, education and skills, that will benefit disabled people.

She also pointed to the government’s policies on mental health, including putting mental health workers in every secondary school, and she said that one of the party’s five missions to rebuild Britain was to “break down barriers to opportunity”, which she said was “the social model writ large in one whole strand of the manifesto”.

11 July 2024

 

 

Trio of new disabled MPs join House of Commons

The new House of Commons looks set for a small increase in its disability representation, with at least three new disabled MPs winning seats in last week’s general election.

Of the 650 MPs elected last week, there may now be at least nine who identify as disabled people – compared to possibly as few as five in the last parliament – with further MPs who self-describe as disabled likely to emerge in the coming months.

There are at least three new disabled MPs: Dr Marie Tidball, who was elected for Labour in Penistone and Stocksbridge; the Liberal Democrat Steve Darling, elected in Torbay; and Labour’s Jen Craft, who overturned a large Conservative majority in Thurrock.

Tidball is a disability rights activist, a legal researcher, and an experienced Labour councillor, and has a law degree, a masters, and a doctorate in criminology, from the University of Oxford.

During the pandemic, she spoke out repeatedly about the disproportionate number of deaths of disabled people from Covid, as coordinator of Oxford University’s Disability Law and Policy Project.

Early in the pandemic, she edited a report which showed that the government’s policy-making had breached its duties to disabled people under both the Equality Act and the UN Convention on the Rights of Persons with Disabilities.

She also accused the Conservative government of failing to “fulfil its national and international human rights obligations to disabled people” during the pandemic.

She later edited another report that found that the government’s National Disability Strategy had failed to address the “urgent challenges” posed by climate change and the COVID-19 pandemic.

She won Penistone and Stocksbridge last week with a 10 per cent increase in the vote share.

She told Disability News Service (DNS) yesterday (Wednesday) that she was feeling “elated” and “really happy” with her victory after “two years of hard work”.*

She said she had felt “really uplifted” by the efforts made by House of Commons staff and authorities to ensure the induction process for new MPs was accessible to her.

Tidball said she saw part of her role as being “visible” as a disabled MP.

She said: “I very much feel 14 million disabled people stood behind me.

There was David Blunkett when I was growing up, and a couple of other Labour MPs, but it was knowing that there was someone like David in the House of Commons at that time, who had a disability, that made me think, maybe one day I could do that.

And I really want disabled people of all age groups to see this and go, ‘Maybe one day I could do this too.’”

Darling also has a background as a local councillor, and led Torbay council for four years, as well as spending 18 years working for the former Liberal Democrat MP Adrian Sanders.

He overturned a Conservative majority of more than 17,000 at the 2019 election to win by more than 5,000 votes.

Darling is blind, and has a guide dog, Jennie, now set to become a familiar feature of the Commons chamber.

Craft won the Thurrock seat by more than 6,000 votes from Reform UK, beating the previous Conservative MP Jackie Doyle-Price, a former minister who was defending an 11,000 majority, into third place.

Last year, Craft told Centenary Action – which campaigns for a gender equal parliament by 2028 – that she was “really passionate about SEND issues and disability rights”. 

She described herself as “a stay-at-home mum and carer for my disabled daughter”, and added: “It’s very easy to overlook the role of an unpaid carer but it’s taught me a hell of a lot more than all of my other jobs.”

She told Centenary Action: “I am disabled myself, with long term mental health issues, and reform of the mental health system is long overdue.

I feel like things have gone backwards for disabled people with funding cuts and a lack of access. I will definitely take this up and campaign on it if I’m elected.”

Another new MP, Labour’s Liam Conlon, has spoken of becoming disabled following an accident when he was a teenager, and being unable to walk for four years, before he had extensive surgery and a hip replacement.

Although it is not yet clear if he currently identifies as a disabled person, he told a news organisation last year: “I know from using a wheelchair as a teenager the indignity of not being able to access public transport, and how it limits disabled people’s opportunities to find work, and it is a key driver of social exclusion for disabled people.

It’s why if I am elected, I am promising to set-up the first ever all-party parliamentary group on transport accessibility within 100 days of becoming an MP – and I want that change to start in south London.”

Conlon won the Beckenham and Penge seat with more than 25,000 votes, and nearly 50 per cent of the vote.

For Labour, Emma Lewell-Buck, Marie Rimmer and Marsha de Cordova, who have all previously identified as disabled people, were re-elected.

Labour’s pre-election shadow minister for disabled people, Vicky Foxcroft, who confirmed shortly before the election that she now identifies as a disabled person, was re-elected and won the Lewisham North seat with more than 25,000 votes.

But due to her appointment as a government whip, she will not be able to speak out on disability issues in parliament, despite her experience as shadow minister and her popularity among the disabled people’s movement.

For the Liberal Democrats, Daisy Cooper, the party’s deputy leader, has previously spoken of having a long-term health condition and told Channel 4 News reporter Ruben Reuter in a pre-election interview – when asked how many disabled candidates her party had – that she had “a hidden disability”.

Of those disabled MPs who lost their seats last week, Conservative Paul Maynard was heavily beaten in the new Blackpool North and Fleetwood constituency, while another leading disabled Conservative and former minister, Robert Halfon, did not seek re-election.

Among other disabled candidates who fought the election, Emily Brothers, who would have become the first disabled trans MP if she had been elected, was beaten into fourth place in a tightly-fought Isle of Wight East seat, behind the Conservatives, Reform UK and the Green Party, but still secured more than 6,000 votes.

Kim Marshall came second for the SNP in Dumfriesshire, Clydesdale and Tweeddale, behind the Conservatives, securing 10,757 votes.

Jody McIntyre, a candidate for George Galloway’s Workers Party of Britain, came within about 700 votes of defeating Labour’s Jess Phillips in Birmingham Yardley.

Katharine Macy came fifth for the Liberal Democrats in Colne Valley, with 4.3 per cent of the vote, while Richard Whelan came fifth for the party in Basingstoke, with 6.5 per cent of the vote.

Sara Nicola Ruth came fifth for the Greens in Colchester, with 5.4 per cent of the vote, while Mags Lewis, the party’s disability spokesperson, came seventh for the party in Leicester East, but still claimed 4.6 per cent of the vote in a seat in which two former Labour MPs were standing against their former party.

Independent candidate John Urquhart came eighth in Cardiff West, with 0.5 per cent of the vote.

*DNS will publish a full article based on the interview with Marie Tidball next week

11 July 2024

 

 

Anger and frustration over Labour’s ‘disgraceful’ decision not to appoint Foxcroft as disability minister

The new government has yet to announce who will be Labour’s minister for disabled people, but the decision not to appoint Vicky Foxcroft to the post has set back relations with significant parts of the disabled people’s movement.

Foxcroft, who has instead been appointed as a government whip, spent nearly four years working to develop relationships between her party and the movement as Labour’s shadow minister for disabled people.

Despite widespread unhappiness among disabled people with some of Labour’s policies, and its failure to take a stronger stance on disability rights, she was widely liked and respected.

The decision not to appoint her is even more of a setback as she had confirmed shortly before the election that she now identifies as disabled herself, and so would have been the first disabled person in the post since Labour’s Anne McGuire between 2005 and 2008.

But her appointment as a government whip will mean she will not be able to take part in parliamentary debates, or speak publicly on disability issues, other than on constituency matters.

Rick Burgess, a spokesperson for Greater Manchester Coalition of Disabled People, said: “We hosted a national disability hustings on 2 July with Disability Rights UK and Inclusion London at the People’s History Museum.

We were proud to say that all of the representatives were disabled people – including Vicky Foxcroft, the shadow minister for disabled people.

Vicky has been working hard in that role, making connections with grassroots disabled people’s organisations and giving many disabled people hope for the new government.

Vicky made strong pledges on behalf of the Labour Party and we’re concerned about how that’s going to be actioned without her as minister for disabled people in this new government. 

Once again, under the Labour Party, disabled people feel as if we were promised the earth to win our votes, and now our rights have been kicked to the kerb.”

The response on social media was also overwhelmingly negative.

One disabled campaigner, Catherine Hale, consultant researcher at King’s College London and founder of Chronic Illness Inclusion, described the decision as “very disappointing and wasteful”.

She said on Twitter that Foxcroft was her MP and had “worked really hard as shadow minister for disabled people for four years and built a wealth of knowledge about our issues.

For those in our movement to have to start again is exhausting and demoralising.”

Dennis Queen, from the Disabled People’s Direct Action Network (DAN), said the move to sideline Foxcroft was “disgraceful” and called on the government to “bring back Vicky”.

It was still not clear by 11am this morning (Thursday) who Labour will appoint as its minister for disabled people.

Keir Starmer, the prime minister, has now appointed six work and pensions ministers, but most of their roles have not yet been announced.

The six are work and pensions secretary Liz Kendall, Sir Stephen Timms – who chaired the Commons work and pensions committee in the last parliament and served as a DWP minister under the last Labour government – Alison McGovern, Andrew Western, Emma Reynolds and Baroness Sherlock.

It is unlikely that Starmer would appoint a member of the House of Lords to the disability post, while McGovern was previously Labour’s shadow employment minister, and this Twitter post suggests she will take the employment role in government, while Reynolds has already been appointed as pensions minister.

This suggests that either Timms or Western will be the new minister for disabled people, although with his ministerial experience Timms is more likely to be given a welfare reform role.

In the Department of Health and Social Care, Starmer has – as expected – appointed Wes Streeting as health and care secretary, while Stephen Kinnock has unexpectedly been named minister of state for care.

Andrew Gwynne, who served as shadow minister for social care, has instead been appointed as junior minister for public health and prevention.

Last year, Gwynne told a fringe meeting at Labour’s annual conference that he wanted to be remembered by Labour party members as “the Nye Bevan of the 21st century” for building a new National Care Service if Labour won power.

Meanwhile, Bridget Phillipson has been appointed secretary of state for education and minister for women and equalities, while Anneliese Dodds has been appointed as a minister in the Foreign, Commonwealth and Development Office and minister for women and equalities in the Department for Education.

It is not yet clear how Phillipson and Dodds will divide the role, but it is unlikely that their responsibilities will include the minister for disabled people position.

Dodds said on Twitter that she would be working with Phillipson on the equality agenda and would “deliver our plans to support women and girls, advance race equality, break new ground for LGBT+ rights and stand up for disabled people”.

11 July 2024

 

Campaigners welcome election defeats for DWP ministers, but frustration as key trio survive

Campaigners have welcomed election defeats for a series of former Department for Work and Pensions (DWP) ministers, while also expressing disappointment that three of the most unpopular figures from the last 14 years managed to survive the Labour landslide.

There was some satisfaction at the Conservative election losses, both from disabled activists and relatives of some of those who lost their lives through the actions of DWP, and policies introduced by former ministers.

But there was also frustration that Labour in-fighting allowed the survival of Iain Duncan Smith, who led DWP from 2010 to 2016 and is held responsible by many activists for the worst of the department’s actions during the austerity years.

He held onto his Chingford and Woodford Green seat with a little over 17,000 votes, after Labour’s Shama Tatler and independent Faiza Shaheen – who had been deselected as the Labour candidate just weeks earlier – both polled more than 12,000 votes.

It has also emerged that Chris Grayling, DWP’s employment minister from 2010 to 2012, who had already stood down as an MP, is to be awarded a life peerage, despite his key role in some of the most dangerous and damaging decisions of the coalition government.

Esther McVey – who served as minister for disabled people, employment minister and work and pensions secretary during the austerity years – won her Tatton seat by more than 1,000 votes, although she saw her share of the vote plunge by nearly 19 per cent.

And Mel Stride, work and pensions secretary until the election, won his Central Devon seat by just 61 votes.

He had been responsible for a string of damaging policies on disability benefits while leading the department.

Just weeks before the election, Disability News Service (DNS) revealed how two statements he had made about disability benefits had been found to be potentially misleading by the UK statistics regulator.

Among those who did lose their seats were Therese Coffey, work and pensions secretary from September 2019 to September 2022; Tom Pursglove, minister for disabled people from 2022 to 2023; and Justin Tomlinson, who served twice as minister for disabled people.

DNS revealed two years ago how DWP watered down key parts of a plan drawn up to prevent suicides and learn lessons from claimant deaths, while under Coffey’s leadership.

During her time as work and pensions secretary, Coffey was heavily criticised for her attitude to the families of benefit claimants whose deaths had been linked to her department’s actions, including refusing to meet them to discuss their concerns.

She was also criticised for preventing the release of key details from scores of secret reports into claimant deaths.

And there was repeated anger over her claims that her department had no statutory duty of care to benefit claimants, including those whose deaths were caused by her department.

There was also anger among many activists at the decision to make Coffey a dame for “political and public service”.

Other former DWP ministers defeated last week included Maria Miller, the first minister for disabled people under the Conservative-led coalition in 2010; and two other former disability ministers, Penny Mordaunt and Mark Harper.

Only last month, DNS reported how official DWP documents linked Mordaunt to a government cover-up of how a disabled man took his own life after being wrongly found fit for work.

Paula Peters, a member of the national steering group of Disabled People Against Cuts, said: “It was poetic justice to see some of the former secretaries of state for the DWP, ministers for disabled people and former employment ministers lose their seats as MP.

However, it is with deep anger and distress that we note Therese Coffey has been awarded a damehood for her role in the Tory government via the dissolution honours list.

This is a huge slap in the face to all the families who have lost loved ones as a result of the distress and harm the DWP have caused.

It’s a kick in the teeth to disabled people across the UK who are living in terrible poverty as a result of the welfare reforms she presided over.

We must demand this damehood be withdrawn without delay.”

She added: “There is a deep sense of anger that Iain Duncan Smith, Mel Stride and Esther McVey were re-elected to parliament.

There is more deep anger that Mel Stride has been reappointed as shadow secretary of state for the DWP under outgoing former prime minister Rishi Sunak’s shadow cabinet.

Our messages to both sides of parliament: we will continue to campaign and scrutinise policy, and hold ministers and MPs to account.”

Among those expressing relief at the end of 14 years of Conservative rule was Gill Thompson.

Her brother David Clapson, who had diabetes, died in July 2013 due to an acute lack of insulin, three weeks after having his jobseeker’s allowance (JSA) sanctioned.

Because he had no money, he couldn’t afford to pay for electricity that would have kept the fridge where he kept his insulin working, and he had also run out of food.

Four months after his death, McVey issued a press release in which she called for an end to the “something for nothing” culture and boasted of new figures which show JSA claimants had had their payments suspended 580,000 times in the nine months since “tougher rules” were introduced in October 2012.

Thompson, who has campaigned for more than a decade for justice for her brother and other DWP victims, said the election was “the best day ever” and that she felt that “now David can be put to rest”, although she said she would “always be supportive of the cause”.

She said: “I am glad Labour have won, but the biggest thing for me was to see this awful government out, and hopefully not to return, not easily anyway.

An end to all this suffering, that’s all I ever wanted.”

Alison Burton, whose father-in-law Errol Graham starved to death after DWP wrongly stopped his benefits when he missed a work capability assessment, stayed up until the early hours of Friday to confirm that Coffey had lost.

Although Coffey was not in charge of DWP when he died, she was secretary of state for much of the time the family subsequently sought justice through the courts.

She has previously highlighted Coffey’s repeated failure to show sympathy for the families of those who had died, and her lack of action to address DWP’s part in those deaths.

Burton said she had been thinking of her father-in-law on election night, and of the damage done by Coffey.

She said: “I was determined to make sure that she lost her seat. It was one thing I wanted to see more than anything.

Now she can’t do to another family what she did to mine.”

She added: “One thing I am damn sure of is I didn’t want the Conservatives in power.”

She said successive Conservative-led governments had “no excuses” for the continuing deaths of disabled benefit claimants, as there had been repeated warnings, including those from coroners.

She said: “They can’t step away from what they have done.”

Burton, who is disabled herself, said: “The Conservatives have created a hatred towards disabled people over the past decade among people who don’t have a disability.

They have painted the impression in their minds that we are scrounging off their taxes.

The Conservatives have created an awful lot of wrong and misleading information.”

And she promised that she was “not going to go away” just because there was a new government.

She said: “I don’t care who is in power. Many other families will do the same.

We still need answers. We still need the truth and we still need justice.”

Joy Dove, whose daughter Jodey Whiting took her own life after her employment and support allowance was wrongly stopped for missing a work capability assessment, said she did not celebrate when former DWP ministers lost their seats.

But she said she was glad that Coffey was defeated because of how she attempted to prevent her family securing a second inquest into her daughter’s death.

She said: “I hope this new government grant us a public inquiry into all those who died because of the DWP.

It’s about time we get justice and DWP are held to account.”

The Department, DNS editor John Pring’s book on DWP and how its actions led to countless deaths of disabled people in the post-2010 era, will be published by Pluto Press on 20 August. Visit TheDepartmentBook.com before publication for a 50 per cent discount 

11 July 2024

 

 

Report poses crucial questions for Labour government on whether to scrap work capability assessment

A new report on the work capability assessment (WCA) has posed crucial questions for the new government on whether to scrap the test or improve it, just four days after Labour came to power in a landslide election victory.

The Conservative government announced last year that it would scrap the WCA after the election, and would tighten the assessment in the short term as a cost-cutting measure.

But Professor Ben Baumberg Geiger has this week published a report on the “much-hated system”, weighing up the possible advantages and disadvantages of scrapping the WCA.

The final report draws on input from scores of experts who examined his initial conclusions, including disabled people with lived experience of the social security system.

The report, After the WCA: Competing Visions of Disability and Welfare, concludes that both scrapping the WCA and reforming it could each lead to a “much better” system.

Baumberg Geiger, co-lead on the work, welfare reform and mental health programme for the ESRC* Centre for Society and Mental Health at King’s College London, is now hoping to ensure the report is seen by Labour’s new ministers in the Department for Work and Pensions (DWP).

The Conservative government said last year that it planned to scrap the WCA and rely instead on the personal independence payment (PIP) assessment to decide if disabled claimants are eligible for extra support through universal credit.

Under that system, decisions on whether disabled people are expected to carry out work-related activity would be made by jobcentre work coaches.

This week’s report aims to sketch out possible best- and worst-case scenarios if the WCA was scrapped.

It shows that increasing spending on disability benefit spending “does not mean that ‘welfare spending is out-of-control’” but is instead a result of a much larger drop in spending on other benefits, such as universal credit.

The report also calls for a substantial increase in the basic rate of universal credit, to address widespread poverty among both disabled and non-disabled people.

Baumberg Geiger lays out some ideas for improving the WCA, such as finding a way to match people’s “functional” capacity with the requirements of those jobs that are available, but also ensuring that assessors “accurately report” what they are told by claimants, improving safeguards for cases where assessors challenge claimants’ descriptions of their lives, and improving how medical evidence is fed into the WCA process.

He concludes that the WCA is “not quite as bad as it was in the early 2010s” but is “still associated with much claimant unhappiness and anxiety, is about to get harsher, and it remains a poor assessment”.

The worst-case scenario of scrapping it could see “much greater income losses for ill and disabled people”, with the possibility that extending strict conditions and sanctions to more disabled people could be “a disaster” and might even increase disincentives to work.

But he also describes a “best-case scenario” in which the current regime is replaced by a focus by DWP on “engagement not compliance”; on “voluntary aspirations, rather than mandatory commitments”; and on “genuinely useful steps towards work, rather than jumping through hoops” and “threats”.

He says the system “needs claimants to trust the DWP”, which is “the most obvious lesson from the last fifteen years”, as “many ill and disabled claimants have little trust in the DWP, feel insecure, and negotiate work and benefits with trepidation”.

He writes in his report: “The current system for disabled people does not incentivise work; it does not consistently protect people from poverty or destitution; it does not provide administrative justice; and it creates insecurity and anxiety for many ill and disabled claimants.”

He concludes that the decision on whether to scrap the WCA or reform it is less important than “the broader challenge of building a system that works for ill and disabled people more broadly”.

Among the disabled campaigners who fed into the final report, Kaliya Franklin, who was a leading member of the grassroots Spartacus Network in the post-2010 years, and spent years researching the flawed WCA, said there needed to be a greater focus on increasing the level of benefits to avoid people living in “long term destitution”.

She said there needed to be much more emphasis on what employers can do to make reasonable adjustments for disabled people and support them in the workplace.

Bill Scott, senior policy advisor for Inclusion Scotland, said the question of the “adequacy” of benefit levels has to be “tackled absolutely fundamentally”.

He said: “If we want to see where the epidemic of mental health issues has come from, look at the adequacy of benefits, and look at austerity policies and the poverty it’s created in our society, and the anxiety that creates within the poorer parts of the population – and you have an explanation for the huge rise in mental health issues amongst working-age people.”

Catherine Hale, consultant researcher at King’s College London and founder of Chronic Illness Inclusion, pointed to a number of “injustices” in the WCA and the PIP assessment for people with chronic illness or energy-limiting conditions.

These include the “denial of cognitive fatigue and dysfunction” and its impact on work capability and employability; the “flawed rationale” in the WCA that takes more account of a single “severe” impairment than multiple fluctuating impairments when it comes to assessing capacity for work; and the failure of the PIP assessment to account for the needs and extra costs of people with chronic illness.

*Economic and Social Research Council

11 July 2024

 

 

Disabled people’s organisations call on government to ‘show you will be on our side’

Disabled people’s organisations (DPOs) have vowed to be a “critical friend” to the new Labour government, but they have called for it to “show our community that you will be on our side”.

DPO Forum England, which represents more than 350 DPOs across England, said it wanted to work with the new government to “coproduce the policies that will have a real impact on our lives”.

In a letter to the new prime minister, Keir Starmer, the forum said there were “many areas of our lives that have been neglected by the last government” and it called for recognition from the new government that it was “not possible to achieve a fundamental change in our lives without investment in public services”.

They say in the letter (PDF): “Accessible homes, good education support, investment in accessible transport, a well-functioning NHS and social care support in community are vital preconditions to enabling Disabled people to work, learn and have a good quality of life.”

Among their demands, they call for an end to the segregation and institutionalisation of disabled people, including involuntary detentions in psychiatric hospitals and forced treatment in hospitals and in the community.

And they call for a “real transformative disability strategy” that is co-produced by the government with disabled people, and for ministers to “urgently raise accessibility standards for new built homes”.

On disability poverty and disability benefits, the letter points out that the previous government “spent years in endless reforms of disability benefits and have laid the ground for a more brutal attack” on disabled people, with their policies causing “anxiety, distress and preventable deaths”.

It urges Starmer to take “urgent steps” to reject the Conservative government’s recent series of reforms to disability benefits, including its consultation on reform of personal independence payment (PIP); its plans to tighten the work capability assessment (WCA); its longer-term plans to link extra support in universal credit to the PIP assessment; and its reforms to the fit note system.

The letter also calls on the new government to “cease subjecting Disabled people to an unfair and harmful” regime of benefit conditions and sanctions, and to work with DPOs to “design a supportive benefits system that promotes our rights and respects our dignity”.

In a separate intervention, the Disability Poverty Campaign Group, which is led by DPOs Disability Rights UK and Inclusion London – both members of the forum – has urged the new government to “tackle the deep poverty experienced by millions of Disabled citizens”.

It said this week: “Poverty within the disability community continues to worsen and the new UK government needs to act urgently to support those struggling to afford food, energy, rents, care charges, medication and transport, and to prevent others falling further into poverty.”

It joined DPO Forum England in calling on the new government to co-produce solutions with disabled people.

Meanwhile, Disability Rights UK, along with other campaigning organisations, has written to Labour’s new work and pensions secretary, Liz Kendall, to ask her to reject Conservative plans to tighten the WCA from 2025.

These plans would mean cuts to support of more than £400 a month for 424,000 disabled people, who would also lose their protection from being forced to carry-out work-related activity as part of their universal credit claim.

They say in their letter: “Disabled people are already more likely to live in poverty, and recent research has shown that two thirds of people currently living in destitution are Disabled or have a long-term health condition.

We believe these plans would serve to exacerbate this inequity.”

And they point out that the real terms value of the basic rate of benefits has in recent years hit a 40-year low, which could mean that disabled people affected by tightening the WCA are “likely to find themselves unable to afford essentials”.

11 July 2024

 

 

Other disability-related stories covered by mainstream media this week

Bristol City Council has admitted “institutional discrimination” against disabled staff and says it will take years to put it right. Bosses are “embarrassed and ashamed” over advice given to managers for decades that reinforced bad practice on what should be “reasonable adjustments” for disabled employees. The council now says it is making “lasting and meaningful change” after joining forces with staff and campaigners who were at their “wits’ end” and raised the issue last year with the then-chief executive who ordered directors to take urgent action: https://www.bristolpost.co.uk/news/bristol-news/bristol-city-council-admits-institutional-9388139

11 July 2024

 

News provided by John Pring at www.disabilitynewsservice.com

 

 Posted by at 13:40
Jul 032024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

With the election this Thursday, finally all the parties in Northern Ireland have their manifestos available for you to read and to win your vote. What do their manifestos have on offer for disabled voters?

DPAC NI are not endorsing any parties running for election, but are merely giving you all the information they have provided in their manifestos, so you can make an informed choice as a deaf and disabled people when voting.

The core demands from DPAC NI are:

Legislate to fully incorporate the UN Convention on the Rights of Persons with Disabilities (UNCRPD) into UK law

  • A “triple lock” on annual benefit rate increases
  • Legal Right to Independent Living with a National Independent Living Service
  • Introduce a national requirement for all new build homes to be accessible and 10% to be wheelchair accessible
  • A right to mainstream education and to education in fluent British Sign Language / Irish Sign Language for Deaf and Disabled students
  • A fully integrated, fully accessible, affordable publicly owned transport system for all
  • A right of disabled access to built and natural environments
  • Introduce mandatory two-week timeframe for reasonable adjustments and an enforcement framework which does not fully depend on an individual.
  • An independent public inquiry into the deaths and maltreatment of disabled children and adults incarcerated in mental health institutions
  • Legislate to abolish forced detention and treatment of people on mental health grounds
  • No Assisted Dying
  • Adequate provision of technical aids and equipment, eg wheelchairs, and adaptive communication aides for people who are nonverbal

Lets look at each party and pick out what they have to say and what core demands they are going to deliver for our community

Sinn Féin sinnfein.ie

Building a Society for All

“There can be no place for sectarianism, racism, misogyny, homophobia, age or disability discrimination in our society.” – Page 9

“We want a society that values and celebrates the diversity of our identities, religious or none, sexual orientation, gender, disability, age, or ethnic origin.” – Page 9

Full Sinn Fein manifesto: Click Here

DUP mydup.com

Down’s Syndrome given Minority Status

“DUP Parliamentarians have been a committed and consistent voice for people with disabilities. One of our MPs co-sponsored the Down Syndrome Act 2022, the world’s first piece of legislation recognising people with Down’s syndrome as a specific minority group.” – Page 10

Department for Communities Outcomes Delivered

“Progress on a Disability and Work Strategy, ensuring no one who wants to work is prohibited from doing so because of their disability” – Page 12

Defending Our Most Vulnerable

“supported legal action by disability campaigner Heidi Crowter against legislation allowing the abortion of babies with Down’s Syndrome up until birth” – Page 39

Disabilities

“The DUP is committed to ensuring those with disabilities can live full and active lives. We will continue to advocate for better access to, and provision of, vital services that can help ensure they can play a stronger role in their local communities and the labour market.” – Page 39

“support a wide-ranging audit of central and local government facilities to ensure they are accessible to those with disabilities” – Page 39

“work with the Inclusive Mobility and Transport Advisory Committee (IMTAC) in future transport projects” – Page 39

“promote close collaboration between IMTAC, the Disabled Persons Transport Advisory Committee (DPTAC) in England and Wales and Mobility and Access Committee for Scotland” – Page 39

“support the introduction of further resident parking zone schemes” Page 39

“encourage government departments, public bodies and local authorities across the UK to join Access Able or require them to provide comparable information on disability access and services” – Page 39

“invest more in community transport, including services that provide a lifeline to older people” – Page 39 

Full DUP manifesto: Click Here

Alliance Party allianceparty.org

Victim and Survivors

“We have long supported the introduction of a pension for victims and survivors of the Troubles, and Justice Minister Naomi Long MLA took the lead in implementing the Troubles Permanent Disablement Pension Scheme when other executive ministers refused” – Page 13

Levelling Up and Shared Prosperity

“There has been a significant reduction in funding to Northern Ireland, coupled with the imposition of unnecessary and costly bidding competitions, short-termism, uncertainty as to the areas of activity that will be supported, plus duplication in some areas and gaps in others. Many core services, including apprenticeship, labour market inclusion measures, disability employment, regeneration and economic development measures are in jeopardy.” – Page 23

Equality and Justice

“The domestic incorporation of the UN Convention on the Rights of Persons with Disabilities (UNCRPD).” – Page 34

“The delivery of a Northern Ireland Bill of Rights to supplement the ECHR and Human Rights Act.” – Page 34

Global Justice and International Development

“We want to build a fair, sustainable world: reducing poverty and inequality, addressing the climate crisis, and ensuring that the most marginalised groups, such as women, girls, people with disabilities and the LGBT+ community, are at the forefront of international development and humanitarian assistance policy.” – Page 43

Full Alliance Party Manifesto: Click Here

SDLP sdlp.ie

Disability Rights

“The SDLP believes in a society where disabled people have full and equal access to public services, including through the full implementation of the UN Convention on the Right of Persons with Disabilities.” – Page 40

“In a myriad of ways, disabled people have been hit hardest by the cost-of-living crisis and the impact of the pandemic and require intervention and investment to address that impact. Robust action is required at all levels of government to tackle the inequalities faced by people with disabilities, including by closing the disability employment gap. We must also invest in public services and the built environment of our local communities to ensure that homes, schools, leisure and sporting facilities and public transportation are fully accessible to disabled people. We believe in a welfare system that upholds the rights of all disabled people, treating them with dignity and compassion.” – Page 40

“Alongside these important reforms, the SDLP will continue to campaign for a society that breaks down the negative attitudes and discrimination that affect disabled people, including through addressing disability hate crime. Public policy must be co-designed with disabled people and the organisations that represent them to ensure that it fully accounts for the needs of disabled people” – Page 40

Human Rights

“The SDLP remains unwavering in its commitment to advancing and upholding human rights. We believe that every individual, regardless of their nationality, ethnicity, disability, gender, sexual orientation or belief, are entitled to the same fundamental rights which are enshrined in international law.” – Page 43

Full SDLP manifesto: Click Here

Ulster Unionist Party uup.org

Disabilities

“Across the UK, around 16 million people have a recognised disability, which constitutes about 24% of the total population. This includes 11% of children, 23% of working-age adults, and 45% of pension-age adults (Disability, accessibility and blue badge statistics, England, 2022 to 2023 – GOV—UK; Disability facts and figures | Disability charity Scope UK.) “ – Page 16

“In Northern Ireland, approximately 21% of the population reported having a disability according to the most recent surveys, a figure that mirrors trends across other regions of the UK, indicating a rise in the proportion of people living with disabilities.” – Page 16

“These statistics emphasise the significant portion of the population living with a disability, highlighting the crucial need for policies and initiatives aimed at enhancing their quality of life.” – Page 16

“Ulster Unionist Party MPs will advocate for the next Government to not only acknowledge the high proportion of the population living with disabilities but also to proactively develop policy interventions that improve services and the overall quality of life for these citizens.” – Page 16

“We firmly believe that the most effective way to ensure these policies is by ensuring that individuals with lived experience are not just included, but are at the forefront of creating these policy interventions. Their unique perspectives and challenges are invaluable in shaping policies that truly meet their needs”. -Page 16

“Additionally, your Ulster Unionist Party MPs will work to hold the next Government to account if they fail in their duty to support our citizens living with disabilities in having active and fulfilling lives. This support must include recognising that Personal Independence Payment and other social security payments are crucial in this regard, and any attempt to scale back this support will have a far-reaching and devastating impact.” – Page 16

“We will advocate for the next Government to acknowledge the high proportion of the population living with disabilities and to proactively develop policy interventions that improve services and the overall quality of life for these citizens. This will include pressing for the incorporation of the United Nations Convention on the Rights of Persons with Disabilities into UK law, ensuring that the rights of individuals with disabilities are fully protected and promoted.” – Page 16

Supporting Young People with Disabilities

“We are committed to creating equal opportunities for young people with disabilities. To achieve this, we will:

Secure funding and resources for post-secondary education and training for young people with disabilities or learning disabilities.

Develop pathways to further learning and employment opportunities that are on par with those available to mainstream school leavers.

Ensure that all young people in Northern Ireland have access to the support and opportunities they need to succeed, regardless of their abilities.” – Page 18

People Before Profit pbp.ie

Full 5 page policy available on disability. Mostly Republic of Ireland related

Legislative Changes

“People Before Profit stands in solidarity with disability rights activists, and calls for the complete ratification of the UNCRPD, along with all other relevant legislation – a process that should include as a rule the full and decisive oversight of people with a lived experience of disability. As a matter of urgency, the government must:

Ensure that the ratification of the UNCRPD and all other relevant legislation, involving oversight by persons with a lived experience of disability.” – Page 3

Full People Before Profits manifesto: Click Here

Green Party Northern Ireland greenpartyni.org

Fund Reforms By Taxing the Wealthy

“Make pension tax relief equal to the basic rate of income tax – helping to fund adequate social care which centres the dignity of all elderly and disabled people regardless of income.” – Page 14

Make Government More Representative and More Local

“To enable diversity across politics, we will implement measures that support the candidacy of underrepresented groups, including women, ethnic minorities, and people with disabilities. Diverse political representation leads to policies that better reflect the needs of all citizens. We will also continue to advocate for devolution of powers to local levels, including reform of the Barnett formula and the funding package to Northern Ireland and the extension of powers and resources to Local Authorities.” – Page 15

Enhance Work Life

Address pay gaps for all people from protected groups, including those with a disability or chronic health condition, those from racialised or religious minorities, women and carers, and LGBTQ+ people.” – Page 19

Full Green Party Northern Ireland manifesto: Click Here

 Posted by at 22:07
Jul 032024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

The 14 DWP ministers – past and present – facing ‘punishment’ at the ballot box 1

Coroner’s report describes how disabled woman died after DWP told her she owed £13K 3

Conservative candidate tells disabled voters: the social model of disability is ‘wokeness gone mad’ 6

Network Rail delays releasing station access funding figures until after election 10

Sample of disabled people forced onto universal credit shows every one of them now receives less in benefits 12

Other disability-related stories covered by mainstream media this week 16

 

The 14 DWP ministers – past and present – facing ‘punishment’ at the ballot box

Up to 14 current and former disability ministers, employment ministers and work and pensions secretaries could lose their seats at tomorrow’s election, giving disabled voters the chance to “punish” them for 14 years of cuts, misery, and countless deaths.

Of the 11 Conservative MPs who spent time as minister for disabled people between 2010 and 2024, eight will be standing at the general election*.

Of the 11 employment ministers – with many of them responsible for key decisions on the hated work capability assessment – seven will be standing at the election (including Esther McVey and Mims Davies, who were also ministers for disabled people).

And of nine former secretaries of state for work and pensions, six will be standing* (including McVey, who also served as minister for disabled people and employment minister).

This means there will be 18 Conservative candidates who could be punished at the ballot box for actions at the Department for Work and Pensions (DWP) that have harmed disabled people, with one website – run by consultancy Electoral Calculus – predicting that 14 of them will lose their seats.

Former ministers for disabled people Maria Miller, Esther McVey, Mark Harper, Justin Tomlinson, Penny Mordaunt and Tom Pursglove could all lose their seats, although Claire Coutinho and Mims Davies are likely to retain their seats.

Former employment ministers Julie Marson, Victoria Prentis and Guy Opperman (as well as McVey) could all lose their seats, while Priti Patel and Damian Hinds (and Davies) are likely to retain theirs.

And former DWP secretaries of state Mel Stride, Therese Coffey, Damian Green, Stephen Crabb and Iain Duncan Smith (as well as McVey) are also at risk of defeat.

Electoral Calculus has predicted that not one former work and pensions secretary from the last 14 years of Conservative-led governments will survive the cull, while just two former ministers for disabled people (Davies and Coutinho) and three former employment ministers (Patel, Hinds and Davies) will be re-elected.

Paula Peters is a member of the national steering group of Disabled People Against Cuts, which has fought against cuts implemented by successive Conservative-led governments since 2010.

She said disabled people had “the opportunity to punish” the former ministers at the ballot box after “14 years of brutal Tory austerity, which has and continues to have a catastrophic impact on disabled people’s lives”.

She particularly highlighted Duncan Smith, Stride, Coffey, McVey, Harper and Miller, who was the coalition’s first minister for disabled people in 2010 and is standing for re-election in Basingstoke.

Peters said: “Punish them for benefit sanctions; the horrendous disability assessments, universal credit and human rights abuses.

There are tens of thousands of disabled people no longer with us today as a result of austerity. We must never forget the tragic human cost.”

But she added: “On 5 July we must continue to campaign to hold the new government’s feet to the fire for an independent benefit deaths inquiry and continue the fight for equality and social justice.”

John McArdle, co-founder of the disabled people’s grassroots group Black Triangle, which has been exposing the damage caused by DWP ministers for 14 years, said: “All of these candidates have caused incalculable harm to disabled people in Britain, whether by their conscious acts, their wilful implementation of policies which have led directly to avoidable harm and countless avoidable deaths of claimants, or by their omissions in presiding over systems and policies that have been explicitly exposed by coroners, civil society organisations and the United Nations without any attempt to safeguard the lives, dignity and human rights of our people.

The only just outcome of this election will be that all of them are summarily dismissed this Friday.”

But McArdle said disabled activists would “continue to pursue some of them through the courts to bring them to account for what we allege is their criminal behaviour [misconduct in public office].

Let this be a warning also to any incoming politicians. You will not play fast and loose with our lives and human rights with impunity.

We will never desist or leave any stone unturned, nor avenue unexplored, with which to hold you to account.

There may be an end to your term of office but there is no statute of limitations on your guilt.”

Ian Jones, one of the founders of the WOWcampaign, which has been campaigning against successive Conservative-led governments’ “war on welfare” for more than 11 years, said: “Whilst there may be some satisfaction in seeing them lose their seats, they will not have been unseated because of the way they targeted disabled people.

Until disability discrimination becomes unacceptable, there is every chance they will be replaced by another chancer who sees disabled people as unworthy and an easy target.”

Michelle Maher, another co-founder of the WOWcampaign, said: “I’ll be delighted if any of the ministers who have made our lives unbearable over 14 years lose their seats.

It will be a great relief to see the Tories losing their seats because of their poisonous ongoing 14 years of demonisation, inhumanity and cruel humiliation over the last 14 years.”

She said disabled benefit claimants had starved to death, there had been numerous suicides, and the government had repeatedly refused to carry out an impact assessment of all the cuts it had made to disability support, while disabled people had been “othered and marginalised”.

Claire Glasman, from WinVisible, said she would be “glad to see the back of all the Tory ministers who have viciously attacked our survival, before, during and after Covid.

But instead of being punished, they usually move to high-paid jobs, cashing in on their connections from government.”

She said WinVisible would continue to reject any politicians, including those from Labour, “attacking sick, disabled and/or immigrant people, which is inciting heavy harassment and violence against us, including immigrant women of colour in our group”.

*Mims Davies is standing in East Grinstead, Uckfield and villages; Tom Pursglove is standing in Corby and East Northamptonshire; Claire Coutinho is standing in East Surrey; Justin Tomlinson is standing in Swindon North; Penny Mordaunt is standing in Portsmouth North; Mark Harper is standing in Forest of Dean; Esther McVey is standing in Tatton; Maria Miller is standing in Basingstoke; Priti Patel is standing in Witham; Damian Hinds is standing in East Hampshire; Julie Marson is standing in Hertford and Stortford; Victoria Prentis is standing in Banbury; Guy Opperman is standing in Hexham; Mel Stride is standing in Central Devon; Therese Coffey is standing in Suffolk Coastal; Damian Green is standing in Ashford, Hawkinge and The Downs; Stephen Crabb is standing in Mid and South Pembrokeshire; and Iain Duncan Smith is standing in Chingford and Woodford Green

3 July 2024

 

 

Coroner’s report describes how disabled woman died after DWP told her she owed £13K

The repeated failures by the Department for Work and Pensions (DWP) that led to a disabled woman’s death – including telling her she owed nearly £13,000 in back-payments after her husband died – have been described in detail for the first time.

The department’s detailed failings were described in a coroner’s summary of the inquest into her death.

The document reveals how DWP sent three letters in quick succession – despite being repeatedly informed not to contact the woman because of her significant mental distress – that told her she owed £768, then £5,323, and finally £12,762.

Six days after the final letter was sent, she took an overdose that led to her death.

Disability News Service has obtained the summary of evidence put together by assistant coroner Fiona Butler at the end of February’s inquest into the death of Nazerine (known as Naz) Anderson, from Melton Mowbray, Leicestershire.

Three of the document’s 13 pages are taken up by an account of DWP’s multiple failings in the months leading to her death.

They expose the flawed universal credit and safeguarding systems, the repeated failures of DWP staff, and the months of distress caused to Anderson by the department’s actions.

These failings began in September 2022 when her case was randomly selected for a “performance measurement review” of her universal credit claim.

Butler concluded that this review was the “recurrent and predominant cause” of her increased anxiety through the seven months in which her mental health deteriorated before she died.

On 2 November, she was told by DWP that there may have been an overpayment of universal credit that her late husband had received before his death, which she could have to repay.

Before November 2022, her depression and anxiety had been managed by medication and “minimal input” from her GP, but after the DWP contact about the review she began to have significant suicidal thoughts and was referred to specialist mental health services.

She was admitted to a mental health unit for two periods of inpatient treatment in December, and Butler concluded that “the trigger stressor” for this was the DWP performance review and the suggestion that she was facing an overpayment debt.

After her discharge in January, she received months of support from the mental health crisis team.

The coroner’s summary details how DWP was repeatedly told of her mental distress and suicidal ideation, and how her work coach failed to record her “vulnerability” on her profile after a phone conversation with her and her daughter on 28 November.

It also reports how DWP work coaches are not able to see entries made by colleagues on the performance review system, so progress reports on the review were not seen by Anderson’s work coach.

After a meeting on 1 December, the work coach again failed to add information about her mental distress on the “additional support tab” of her profile.

This meant the work coach’s colleagues were not able to see this information “at a glance”.

Anderson’s daughter sent a letter with detailed information about her mother’s mental health – including her suicidal ideation and admission to the mental health unit – to the performance review team on 23 December.

The letter also requested that all correspondence should be sent to her – and not her mother – because further correspondence would be “of serious detriment to her health”.

This letter was uploaded to the performance review team’s system, but it was not available to other parts of DWP, including the work coach, and “nothing was done about it”.

Correspondence continued to be directed to Anderson and not her daughter.

On 17 January 2023, following another telephone appointment, the work coach noted Anderson had been “in and out of hospital” because of her mental distress, but they again failed to add information about her mental health to the additional support tab.

In March, Anderson left two messages about the review of her claim on her universal credit online journal, but neither of them was actioned.

It was only on 21 April that her daughter’s letter was finally uploaded onto the main DWP system, four months after she had sent it.

Six days later, a call handler failed to record anything on the additional support tab despite Anderson displaying mental distress during a call, and also failed to alert other staff to the need to communicate with her daughter, despite being told about the letter.

On 3 May, there was yet another DWP call in which Anderson showed mental distress, and which failed to lead to information being added to the additional support tab.

The same day, DWP sent Naz Anderson a letter saying she owed £768, then sent her a second letter the same day saying she owed DWP £5,323.

Eight days later, a third letter was sent, now stating that she owed £12,762.

In the previous four weeks, Anderson had now received six communications from DWP, despite the letter from her daughter.

Six days later, she took an overdose, and was admitted to hospital the following day, but despite treatment she developed multi-organ failure because of the effect of the overdose.

She died on 19 June 2023 at the age of 52, with her family by her side.

Butler found that she had not intended to take her own life.

She concluded: “Those mental health professionals who had worked with Naz throughout 7 months in which her mental health deteriorated gave evidence to me that the recurrent and predominant cause of Naz’s increased anxiety was the DWP performance review.

I find [on] the basis of the evidence I have heard and read that this was the case.”

She said that Naz Anderson “was dearly loved and is greatly missed” and had “dedicated her life both professionally and at home to caring for others”, as a support worker for people with learning difficulties, as a mother, and as a carer for her late husband.

Following the inquest, Butler sent a prevention of future deaths (PFD) report to DWP, raising serious concerns about its safeguarding failures and calling for action “to prevent future deaths”.

In its response to the PFD report, DWP admitted there were “missed” opportunities to share information about Anderson’s claim, and to consider whether an appointee should act on her behalf.

It also admitted flaws in its systems that meant some staff could not “pin” vital information to claims or use the additional support function on the universal credit system, and claimed it was being redesigned.

It also admitted repeated failings by staff to use the additional support tab that should have alerted those dealing with Naz Anderson’s claim to her support needs.

And it said it was reviewing how it handled cases where a claimant could not manage their own affairs and needed an “appointee” to act on their behalf.

Despite repeated concerns being raised in recent months about safeguarding and the safety of the administration of universal credit and other benefits, none of the main political parties have mentioned the issue in their election manifestos.

The rollout of universal credit to the remaining hundreds of thousands of disabled people still receiving income-related employment and support allowance will begin in September.

3 July 2024

 

 

Conservative candidate tells disabled voters: the social model of disability is ‘wokeness gone mad’

A Conservative election candidate was booed by an astonished audience of disabled activists yesterday when he dismissed the social model of disability as “discredited” and “wokeness gone mad”.

Charles Fifield, a disabled former councillor and chartered surveyor, was speaking to the first national disability hustings event, in Manchester, just two days before tomorrow’s general election.

The hustings, organised by DPO Forum England and hosted by Greater Manchester Coalition of Disabled People at People’s History Museum, featured three disabled parliamentary candidates and a disabled peer.

As well as Fifield, Vicky Foxcroft, Labour’s shadow minister for disabled people; Baroness [Sal] Brinton, former president of the Liberal Democrats; and the Green Party’s disability spokesperson Mags Lewis, who is standing in Leicester East, all answered questions from disabled people’s organisations (DPOs) and disabled voters.

Fifield, standing tomorrow in Mid Cheshire, had mostly kept close to his party’s general election manifesto during the hustings, while attempting to suggest that the government’s much-criticised Disability Action Plan – dismissed by DPOs as “weak”, “grudging” and even “pitiful” – was a sound basis for addressing widespread breaches of disabled people’s rights.

But minutes before the end of the hustings, candidates were asked whether they committed to the social model of disability, which argues that it is the barriers in society – rather than people’s impairments – that cause the disability and oppression disabled people face.

The other three panellists offered their support to the social model, but Fifield told the audience in Manchester, and about 100 people watching and listening online: “No, I don’t agree with the social model of disability.

I think it is as discredited as critical race theory*.

It creates a gap that can never be reduced and eliminated because we have lots of different disabilities and what works for one doesn’t work for another.

I think it is wokeness gone mad.”

Foxcroft, who is standing tomorrow in Lewisham North, told the audience she was “a bit in shock” after hearing Fifield’s response, and she said: “It’s definitely not woke to support the social model of disability, and the Labour Party is absolutely committed to that.”

One of those watching online said they were “disgusted” by Fifield’s responses, including his comments about the social model, while another said that calling the social model “woke” was “disgraceful”.

A third person who had been watching online said: “I am ASTOUNDED by the Conservative’s words,” while another added: “Yes, astounded.”

Disability News Service asked the Conservative party whether it supported Fifield’s views on the social model, but it had failed to respond by 11am today (Wednesday).

For most of the hustings, the panellists had mirrored their party’s election manifestos.

They were asked questions on the UN Convention on the Rights of Persons with Disabilities; disability poverty; the social care funding crisis; deinstitutionalisation and segregation of disabled people; accessible housing; inclusive education; enforcing the Equality Act; and co-production.

They were also asked about the need for a human rights-based social security system; whether the next government would “upskill” Deaf and disabled people to allow them to deliver their own services (asked by the British Deaf Association); and their support for recent government consultations.

Asked what the Liberal Democrats would do to move towards a humane, rights-based social security system, Baroness Brinton said there needed to be “a major culture change inside the DWP”.

She said: “It almost doesn’t matter which government is in power, there is something about the culture that has absolutely got to change, and I do hope that the next government takes that on.”

Foxcroft said: “You know it, we know it, it needs fixing and that’s the reason why I’m absolutely committed to working with disabled people’s organisations to make sure that we get this right.”

She said the work capability assessment was “inhumane”, that “many people don’t get their decision right the first time”, and that some claimants “are going for reassessments time and time again when they don’t necessarily need to be because their condition isn’t going to improve”.

Lewis, for the Greens, said: “I think the system is bureaucratic, it’s expensive, it’s not fit for purpose.

I think we’ve all given so much feedback on what needs to happen and how the system needs to be changed and how it could be tweaked and made better.

So all that needs to happen now is action and it needs to be changed.”

But when Fifield was asked what the Conservatives would do, he pointed instead to the government’s Disability Action Plan, which does not mention the social security system.

He told the audience that “the way forward is the Disability Action Plan… and I hope that the next government, whichever rosette it wears, will pick that up and take it forward because I think it is a good way forward”.

On housing, Baroness Brinton said it was a “disgrace” that the government had failed to implement the recommendation from the Grenfell Tower Inquiry that all owners and managers of high-rise residential buildings should be forced to prepare a personal emergency evacuation plan for disabled residents who might find it difficult to self-evacuate.

And although the measure was not in her party’s election manifesto, she called for new laws to ensure that all new homes are built to stricter accessible housing standards, with a proportion built to be wheelchair-accessible.

Foxcroft and Lewis also backed raising the minimum standards, even though Labour and the Greens also failed to include the measure in their manifestos.

Asked what their parties would do to make it easier for disabled people to enforce the Equality Act, Foxcroft criticised the cuts to funding faced by the Equality and Human Rights Commission under successive Conservative-led governments.

But she also promised that a Labour government would publish an equality impact assessment of all major policy announcements, and “restore enforcement” of the Equality Act “by working with disabled people… to make sure that we get this right”.

Lewis said she was “personally angry” as a disabled activist that when service-providers discriminate against her “they know I’m not going to take them to court, I’m too exhausted, or I haven’t got the funds, so they can just get away with things”.

She said: “I think that lack of enforcement has to change, and has to be addressed, and Green MPs would be able to push for that.”

Asked whether their parties would work with disabled people and DPOs to co-produce policy, Foxcroft said Labour had “already been working on plans together to make sure that we deliver this if we’re lucky enough to form the next government” and that co-production was “absolutely key to me to getting things right”.

She added: “And we know that it will take some time to rebuild capacity in [DPOs], but it’s absolutely imperative that we do this.”

Lewis said disabled people “must be at the table” but she also said they were “not a free resource” and that she was “sick to death” of the attitude that they do not need to be paid “when you would expect to pay any other professional who has that kind of expertise”.

Fifield said that “when you’ve got a good range of disabled people with a range of disabilities in a room, [then] you can discuss things and you can actually come up with better solutions”.

At the end of the hustings, Rick Burgess, from GMCDP, told the panellists: “Over the last decade and a half, we’ve had two United Nations reports that have found grave and systemic human rights abuses of disabled people.

We still face institutionalisation, poverty and avoidable deaths.

We have a chance to turn this decline around, to regain and extend our rights and remove the disabling barriers in our society, so the next time the UN report comes around, the UK will no longer be notorious for its abuse of disabled people.

We are ready for this challenge. Will the next government work with us to make an inclusive and non-disabling society a reality?

Whoever that government may be, we’re ready. We hope you are. We’re not taking no for an answer.”

*Critical race theory argues that systemic racism is part of American society and that it is “embedded in laws, policies and institutions”

3 July 2024

 

 

Network Rail delays releasing station access funding figures until after election

Network Rail has delayed releasing figures until after the general election that would have shown how much funding the government has allocated to improve access at train stations.

The delay means it will not be possible to hold the government to account if it emerges – as some campaigners believe likely – that spending on the Access for All scheme, which improves access at railway stations, has been cut.

Disability News Service (DNS) submitted a freedom of information request on 31 May for figures that would show how much funding the government has allocated to the Access for All programme in every year since 2017-18, and how much ended up being spent on the programme.

Freedom of information requests should be answered within 20 working days, but public bodies are allowed to seek extensions in certain circumstances.

The request* was submitted to both the Department for Transport (DfT) and Network Rail, but DfT left it to the public body – which owns and runs most of the country’s rail infrastructure – to respond.

DNS had asked for the annual funding allocated to Access for All for every financial year from 2017-18 to 2028-29, and how much was actually spent on the Access for All programme from 2016-17 to 2023-24.

But Network Rail said last Friday that it would need another 20 working days to respond, because of “the complexity and volume of the information requested”.

One disabled campaigner suggested it was “astounding” that Network Rail did not have such key information easily available.

DNS secured figures in 2018 through a freedom of information request that showed spending on Access for All fell from as much as £81.1 million in 2013-14 to just £14.6 million in 2017-18.

Spending in 2009-10, the last year of the last Labour government, was £53.9 million, with £41.2 million in 2010-11, £50.7 million in 2011-12, £39.7 million in 2012-13, and £81.1 million in 2013-14.

But spending then plunged over the next four years – in the first five-year planning period to begin under the coalition – with just £22.9 million in 2014-15, £24.6 million in 2015-16, £32.1 million in 2016-17 and only £14.6 million in 2017-18.

In 2019, the government announced it would spend “up to £300 million” over the next five years on Access for All, and the following year added another £50 million.

But it is not yet clear how much was actually spent from 2018-19 onwards, although the government is believed to have allocated up to another £350 million in potential funding for the five years from 2024-25.

If these are the correct figures, it will mean a significant real terms cut in funding.

Julian Vaughan, chair of Bedfordshire Rail Access Network, and a Labour parliamentary candidate in 2017 and 2019, said: “It’s very disappointing that Network Rail has been unable to provide this very basic information within a reasonable timescale and an example of the lack of clarity in the government’s approach to the railways.

What is clear is that the current level of Access for All funding is woefully inadequate to fix the thousands of railway platforms across the UK that remain inaccessible to disabled people.”

He said the “fragmented governance structure of the UK railways” was failing disabled people.

He added: “An accessible rail network isn’t just morally the right thing to do, reducing social isolation and enabling equal access to work and leisure, it makes economic sense too.

A future government must commit to long-term investment in an accessible rail network and involve disabled people at every stage of the process.

The railway network will be a vital part of our drive to combat climate change.

It’s time we set equally stringent targets for railway accessibility as we do for Net Zero.”

Tony Jennings, co-chair of a rail accessibility panel and co-founder of the Campaign for Level Boarding, said he was “astounded” that Network Rail did not have the figures “readily available”, as they were “essential for Access for All performance management and monitoring project delivery timescales”. 

He also said it was vital for the next government to “significantly increase Access for All funding, as at the current rate of investment, it will take 100 years for train stations to be step-free”.

He referred to a 2022 report, by the government’s own advisers on accessible transport, the Disabled Persons Transport Advisory Committee (DPTAC), which concluded: “At current annual rates of investment spend on station accessibility, it will take around 100 years to make the entirety of the station estate step-free to new-build standards.”

Jennings said: “A legislative deadline is required to remove the barriers and deliver an inclusive railway that is fit for purpose in a reasonable timescale.”

The Department for Transport (DfT) declined to say if ministers had placed any pressure on Network Rail to delay the release of the figures until after the election.

A Network Rail spokesperson said: “We endeavour to respond to freedom of information requests within the statutory 20 working days.

However, in cases where the request is particularly detailed or complex, we may request an additional 20 working days under the Environmental Information Regulations, as we have done so in this case.”

She added: “The DfT has no involvement in our usual freedom of information process, which includes this case.

Such information, as that requested, is no longer held centrally since Network Rail devolved its operating business into 14 routes contained within five regional businesses.

This makes gathering some types of information much more complicated than was once the case.”

It is not the first time that Network Rail has found it difficult to provide prompt and accurate information about access on the railways.

Last year, it was forced into the “deeply troubling” admission that it had no idea how many inaccessible footbridges it was planning to build across Britain, while claiming it was too time-consuming and expensive to find out.

Two years ago, rail operators told a research organisation that only “major” government funding would solve the accessibility problems at stations across the country.

*Because it related to access improvements, the request was dealt with under the Environmental Information Regulations and not the Freedom of Information Act

3 July 2024

 

 

Sample of disabled people forced onto universal credit shows every one of them now receives less in benefits

Every one of a sample of about 100 disabled people forced onto universal credit is now receiving less in benefits than when they were transferred from so-called legacy benefits, analysis of their claims by lawyers has revealed.

Many of the sample, who were “migrated” onto universal credit in the years leading to 2019, are struggling with monthly income that no longer covers their essential bills, solicitors responsible for the group legal action have told Disability News Service (DNS).

Law firm Leigh Day has so far looked at about 100 cases as part of the claim against the Department for Work and Pensions (DWP).

Every one of those disabled people is now receiving less in benefits than when they received legacy benefits.

DWP has always insisted that many disabled people would be better off on universal credit and that anyone who would otherwise lose out when transferring from benefits such as employment and support allowance (ESA) would receive “transitional protection”.

In 2016, DWP said that people “moving from the current system to universal credit in the future will receive transitional protection and have their benefit level maintained”.

But the department failed to highlight in that statement how that transitional protection would gradually be eroded over time.

The new analysis from Leigh Day now shows how many disabled people are being forced into poverty by the move to universal credit.

The transitional protection meant that everyone who was moved onto universal credit when their circumstances changed, in the years up to 2019, was initially no worse off than under their previous “legacy” benefits.

But Leigh Day is representing more than 200 disabled people who previously received severe disability payment (SDP), enhanced disability premium (EDP), or both SDP and EDP, in addition to benefits such as ESA.

These claimants were all forced to transfer onto universal credit in 2016, 2017 and 2018, before DWP changed the migration rules in January 2019.

Because SDP and EDP no longer exist under universal credit, many claimants had to rely on transitional protection to prevent their benefits being cut after the migration.

Ryan Bradshaw, a partner at Leigh Day, says he has been through about 100 cases and every one of those claimants is now receiving less in benefits than they were six, seven or eight years ago, after moving across to universal credit.

He said: “All of the ones I have looked at so far are now on less than they were before, when they were on legacy benefits.

We have seen a decrease in incomes. Some of them have been on universal credit for eight years.”

And, he said, most of those affected are now “running deficit budgets”, which means their income does not cover their monthly bills.

A key reason for their payments being lower is that transitional protection does not take account of “erosion”, which reduces the transitional protection by the amount of any increase in benefit income until – eventually – it is reduced to £0.

One of the reasons for this erosion is that when benefits are increased – uprated – every April to take account of inflation, the transitional protection is reduced by the same amount*.

Bradshaw said the deficit budget issue had become “particularly acute” in the last 12 months, probably because of the impact of soaring inflation.

Another reason for payments being lower for some of the claims Bradshaw has examined is that it is much easier for DWP to automatically reclaim past benefit overpayments and other debts through the universal credit system than it was under ESA and other legacy benefits.

A parliamentary briefing published last year (PDF) found that of 4.96 million households in Britain on universal credit in February 2023, 2.25 million (45 per cent) had a deduction – such as advance repayments to DWP and third-party deductions for money owed for electricity bills, council tax, rent or other debts – with the average deduction of £61 that month.

Leigh Day is taking a group action – which focuses on the same arguments as the long-running series of TP and AR cases against DWP – which involves about 200 disabled people seeking compensation from the department over the loss of their EDP, SDP or both EDP and SDP.

Ken Butler, welfare rights and policy adviser for Disability Rights UK, said: “Transitional protection is a puny fig leaf failing to disguise the fact that many disabled people are worse off under universal credit in the longer term.”

He said transitional protection for the loss of SDP and EDP was only won after the long TP and AR campaign in the courts.

But he added: “While an important legal victory, financially benefiting thousands of disabled claimants, it’s inevitably been a transitory one.”

He called on the next government to add SDP and EDP to the universal credit system, and to provide an “essentials guarantee” that would ensure disabled people “can afford not just the basics but meet too their extra disability-related costs”.

He said: “This is the only way existing and new claimants in the future will not be penalised.”

Finn Keaney, welfare rights manager for Mind in the City, Hackney and Waltham Forest, told DNS: “For a decade, we have been told that universal credit was introduced as a fairer and simpler new replacement to legacy benefits.

But in the East End of London, our service is still receiving calls almost daily from disabled adults who don’t understand how they are expected to survive on less under universal credit than they were on ESA.

It is ironic that due to transitional protection being eroded over time, the longer a disabled adult has been on universal credit, the worse off they are likely to be: people are essentially being punished for having been amongst the first to benefit from the new, ‘fairer’ system.”

He also called for the reintroduction of disability premiums under universal credit and for an end to “the confusing and unfair system of erosion”.

Bradshaw stressed to DNS that his figures are based only on the small sample of about 100 cases he has examined.

But he fears that most, if not all, of the estimated 15,000 claimants who were forced onto UC in 2016, 2017 and 2018 because their circumstances had changed will be in similar situations.

He points to a study published last month (PDF) by the Institute for Fiscal Studies, which showed that an out-of-work single disabled adult who also received the daily living component of personal independence payment would, on average, be £2,826 a year worse off – in the long-run, once transitional protection has completely eroded – when transferred onto universal credit.

The rollout of universal credit to the remaining hundreds of thousands of disabled people still receiving income-related ESA will begin in September.

DWP said yesterday (Tuesday) that it was unable to comment on ongoing court cases, but it said that transitional protection was not intended to permanently replicate legacy benefit awards.

It said transitional protection was based instead on the principles of protection at the point of moving from legacy benefits and ensuring equality among those claiming universal credit with no previous legacy entitlement.

But Ayla Ozmen, director of policy and campaigns at anti-poverty charity Z2K, said that ministers had often not been clear that, over time, the move to universal credit would make many people on low incomes worse off.

She said Z2K was also “really concerned” that many claimants were missing out on the transitional protection they were entitled to when moving to universal credit.

She said: “Those who miss their deadline and claim too late risk having their benefits cut off altogether and not receiving any transitional protection.”

She said it was “really critical” that the next government gets the managed migration of people on universal credit right and “stops cutting off vital income”.

She said: “We’re calling for whoever forms the next government to stop putting the responsibility on people to make a new claim for universal credit, even if there’s been no change in their circumstances.

But until that happens, anyone who gets a migration notice should act on it, to make sure they get what they’re entitled to.”

*Leigh Day provides the following example to highlight the impact of erosion: if transitional protection was £120 in March 2024, and the disabled person was moved onto the universal credit limited capability for work-related activity group, when benefits were uprated by £51.02 in April 2024 the transitional protection would have reduced to £68.98 and the annual uprating would not have increased their benefits. Their total benefit income would not have changed, despite the impact of inflation.

3 July 2024

 

 

Other disability-related stories covered by mainstream media this week

A summer Covid wave is growing and it is fuelled by a new variant. Rates are highest among those who are oldest as the “FLiRT” – Fresh Lineage of Rapid Transmission – variants take hold and hospital rates suggest infections are on the rise. The number of people hospitalised with Covid was 3.31 per 100,000 in the week ending 16 June, up from 2.67 the week before, and was even higher among older people, peaking at 34.70 in the over-85s: https://www.mirror.co.uk/news/health/new-summer-wave-covid-vulnerable-33146732

More than 1,000 people watched an election debate that allowed the deaf and disabled community to be heard by key political candidates. The event, hosted by Cambridgeshire Deaf Association in Peterborough, was live-streamed and featured British Sign Language interpreters and captions: https://www.bbc.co.uk/news/articles/ce580l3pngno

3 July 2024

 

News provided by John Pring at www.disabilitynewsservice.com

 

 Posted by at 18:43
Jul 022024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net
Callout to anyone who would be interested in joining a new borough wide disability rights group for Waltham Forest (Chingford and Woodford Green, Walthamstow and Leyton and Wanstead parliamentary seats).
The borough will have at least one, hopefully two, new MPs out of the three by then and we need to make sure they know and listen to our issues regardless of their party affiliation or otherwise.
We’re having our first meeting at Yaz (7-9 Signal Walk, Higham Park E4 9BW) at 12pm on Monday 8th July.
Venue is fully accessible and I can be contacted on my email if anyone is interested.
 Posted by at 12:37
Jun 292024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

We are collecting incidents of disabled people facing barriers to being able to vote in person, or with postal voting in this general election. If we find there are widespread access issues we will put in a formal complaint to the Electoral Commission.

Problems might include:

In person voting:

  • Problems voting because of lack of photo ID or problems with the ID you take

  • Lack of step free access, or space to move inside

  • Doors too heavy to open

  • Unhelpful election officials

  • Refusal to accommodate reasonable adjustments

Postal voting:

  • Difficulty in getting accessible voting forms

  • Late delivery of postal voting forms

  • Difficulty following the postal voting instructions
  • Lack of accessible help with the complicated instructions

If you have any issues at all where you found it more difficult or impossible to cast your vote because you are a disabled person, we want to know.

If you have an issue to report, please use this form to enter your information in a format we can easy send to the Electoral Commission.

If you have difficulty in accessing the form, please contact us at the usual email address mail@dpac.uk.net and please use the title “voting” so we can easily pick it up.

Also see article on voter id rights – How does the new voter ID law affect my rights?

 Posted by at 11:29
Jun 272024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

Election hustings candidates invent disability policies, days before general election 1

DPOs pledge to continue with election hustings, despite controversies, conspiracy theories and no-shows 3

Shocking’ failure of election candidates asked about accessible housing 7

Some parties still failing on accessible manifestos 9

Almost no councils now employ access officers, new research shows 11

Disabled election candidates: Labour’s Marsha de Cordova 13

Disabled election candidates: Liberal Democrat Katharine Macy 16

Other disability-related stories covered by mainstream media this week 18

 

 

Election hustings candidates invent disability policies, days before general election

A series of election candidates have been caught inventing party policy in front of an audience of disabled people, at a disability hustings event held just days before the general election.

The event in Bristol was organised by five disabled people’s organisations* who wanted disabled people to be able to question candidates standing in various Bristol seats at next week’s election.

The Conservatives, Greens, Liberal Democrats and Reform UK sent candidates from one of the five Bristol constituencies, but Labour only offered a city councillor, Kelvin Blake.

Blake explained to the audience of voters that none of Labour’s five election candidates were able to attend because they were “obviously very busy on the stump, trying to get people’s votes”.

There was frustration and concern after the event that each of the five representatives had made statements that were not in their parties’ manifestos and were not party policy.

Blake twice stated that a Labour government would implement the right to independent living into law, telling the audience that “we’ll change the law, and enshrine independent living”, later saying Labour would “basically enshrine in law independent living”.

That is not a policy that appears in Labour’s manifesto, which only promises that, under a new National Care Service, “services will be locally delivered, with a principle of ‘home first’ that supports people to live independently for as long as possible”.

Labour has in fact dropped its previous commitment to implementing the UN Convention on the Rights of Persons with Disabilities (UNCRPD) – which includes a right to independent living – into UK law.

The Conservative candidate, Rose Hulse, who is standing in Bristol North-East, said she wanted to implement the whole of the convention into UK law, a policy her party is opposed to.

She was responding to a question about a report in April from the UN committee on the rights of disabled people that found the Conservative government had made “no significant progress” in the seven years since being found guilty of “grave and systematic” violations of the convention.

But Hulse told the audience that the “UN policies… currently are not part of law. They should be part of law. They need to be written into the law.”

This is not Conservative party policy and does not appear in the Conservative manifesto.

For the Liberal Democrats, Tony Sutcliffe, who is standing in Bristol East, called for the part-nationalising of care homes, as he discussed his experience of working in a residential setting.

He told the audience: “It is absolutely vital that we try and bring all of these things back into some sort of ownership, possibly public ownership, possibly a public private ownership model.

But it needs to be done in such a way that we can get the profit motive out of the business and actually have homes that people would live in, that they can work in, that they can have a life that is worth living.”

There is no mention of such a policy in the Liberal Democrat manifesto.

Reform UK’s Robert Clarke, who is standing in Bristol Central, told the audience that he believed disabled people should not have to “jump over hurdles” to get benefits, and that the current system was a “very Kafkaesque nightmare, and we know that the authorities and the governments love this because it means they pay out as little as possible”.

But his own party’s manifesto says that all assessments should take place face-to-face and that a Reform government would “require independent medical assessments to prove eligibility for payments” as well as saving £15 billion a year by forcing “1 million plus back to work”.

The Green candidate Jai Breitnauer, who was the best-briefed of the five panellists, still appeared to over-state her party’s manifesto promise on accessible housing.

She told the audience that her party wanted to see 150,000 new social homes a year being built.

She said: “They would be affordable homes. They would be accessible, and they’d be on good transport routes.”

But the Green manifesto does not promise that all these new homes would be accessible, pledging only that the party would “ensure that the needs of the elderly, families with children, people living with a disability or requiring support through sheltered housing are adequately catered for”.

Rick Burgess, from Greater Manchester Coalition of Disabled People (GMCDP), said after the event that much of the information from the panellists had not reflected the parties’ manifestos.

He said: “No-one was happy with the level of information that the candidates generally gave out.

I don’t think any of them reflected their national manifesto fully.

The political system let us down. If it wasn’t great, it was because of the candidates who turned up.”

GMCDP is also supporting the national disability hustings event in Manchester next week, two days before the general election.

One disabled campaigner who attended the event, but asked to remain anonymous, said: “It was not informative – candidates were allowed to make up anything they felt the audience might like, without being called out for the lack of facts or the lack of semblance to their party manifesto.

It was not a means of holding anyone to account (which I would say is anyway an extremely naive objective for a hustings) because nobody that came has any chance of being elected.”

Alex Johnston, from West of England Centre for Inclusive Living (WECIL), who chaired the event, said he had been “hoping for more from the audience” and wished they had asked questions that were “a little bit more testing”.

He also criticised his own chairing of the event.

He said that “with hindsight I could have done better, I could have had more of a depth of understanding of each party’s manifesto” to try to “hold the candidates’ toes to the fire around policy”.

But he added: “The takeaway for me was that all of those parties could do well to read the Disabled People’s Manifesto.”

*Bristol Reclaiming Independent Living, West of England Centre for Inclusive Living, Disability Rights UK, Inclusion London and Greater Manchester Coalition of Disabled People

27 June 2024

 

 

DPOs pledge to continue with election hustings, despite controversies, conspiracy theories and no-shows

Disabled people’s organisations (DPOs) have pledged to continue hosting election hustings, despite organisers this week having to cope with an anti-trans rights activist, a conspiracy theory-spouting Reform UK politician, and no-show party candidates.

The event in Bristol was organised by DPOs* who originally wanted disabled people to be able to question candidates standing in the Bristol Central seat at next week’s election.

But both Labour’s Thangam Debbonaire and the Green Party’s co-leader Carla Denyer turned down invitations to attend.

Even though the event then had to be extended to all of Bristol’s five general election constituencies, Labour still failed to provide a candidate from any of them.

The event organisers also had to tell anti-trans activist Kellie-Jay Keen, who is standing in Bristol Central, that she could not join the panel of candidates, because her Party of Women has no MPs.

Keen, who has a vocal social media following, then booked a ticket to attend the event in Bristol.

She was initially prevented from entering the venue by security guards because of concerns that she would disrupt the event and distract from its aim of allowing disabled people to question candidates on disability rights issues.

There was also a police presence outside the venue, although it is not clear who asked them to attend.

The incident, and the refusal to allow her to speak, led to Keen posting a series of angry videos on her social media accounts, and her supporters swamping the comments section of the YouTube live-stream of the hustings with demands for her to be allowed to join the panel.

There was also anger and frustration that Robert Clarke, from the right-wing Reform UK, who is standing in Bristol Central and was on the panel, was able to deliver a stream of conspiracy theories and allegations relating to the United Nations, vaccine damage and Russia’s invasion of Ukraine, without challenge.

He repeatedly accused the other parties of being “globalist”, a term often used by right-wing parties and conspiracy theorists.

He echoed the controversial comments of his party leader Nigel Farage, who said that the EU and NATO had “provoked” Russia’s invasion of Ukraine by expanding eastwards.

Clarke told the audience that the main political parties were “interested in globalist wars like they are pushing in the Ukraine”, which he said had “very little to do with us” and was “a provocation of Russia”, and he accused the United Nations of doing “a lot of very bad stuff”.

He also repeatedly attacked the use of vaccines, claiming it was “extremely unwise to think that a so-called vaccination programme is going to help us or help disabled people” and referencing the discredited theory linking autism to the MMR vaccination.

After the event, Rick Burgess, from Greater Manchester Coalition of Disabled People, one of the DPOs that supported the event, said it had been obvious that Keen had arrived intending to create content for her huge social media following and “advance her personal campaign”.

He said she was eventually allowed to enter the event on the understanding that she did not disrupt the event and “other than handing out leaflets, she wasn’t disruptive”.

Burgess said there had been frustration at the failure of key candidates to attend the hustings, and with the quality of those who did attend.

He said that “the political class didn’t deliver, so it left us dealing with that failure”.

He added: “If at national general elections [political parties] are not going to engage, we will not do [hustings] anymore, but I think we need to give it a try, learn and do better.”

Alex Johnston, from West of England Centre for Inclusive Living (WECIL), who chaired the event, said they had been forced to restrict the number of candidates they invited to make the event manageable, and so only invited candidates from parties with at least one MP.

He said they had originally prevented Keen from entering the event because of the risk that she would “disrupt and sidetrack the event, which we know they have form for, undermining the real purpose of the event, which was disabled people hearing direct from politicians”.

He added: “Then the police got involved and security got involved and as a result they did come in.

There was some disruption to the event but not that it took away from the main purpose of the event.”

Jon Abrams, campaigns and justice coordinator for Inclusion London, which also supported the hustings, said there had been security and stewards present because people often attend such events who are “very angry and emotional”, but he stressed that it was not the DPO organisers who had called the police.

He said it was challenging organising such events when public figures such as Keen attend “to get media attention”.

He said Inclusion London had approached a number of DPOs to offer its support and in some cases funding to organise hustings events during the election campaign.

He said: “Clearly there is learning for us as well. People may come along to disrupt it for their own agenda.

This is what is happening now. Do we not organise hustings? I imagine some people have that view.

So how should disabled people in the run-up to elections who are already disadvantaged by barriers, how should they engage politically? What are the alternatives? Not to do anything?

There may well be better ways of doing it. It would be great if people had constructive ideas for future elections.”

He said it was the first election campaign (along with the London mayoral election in May) at which politicians were not turning up to hustings without apparently valid excuses, which he said was “very disappointing”.

Among others who have failed to turn up to disability hustings events in their local areas are Labour’s shadow health secretary Wes Streeting – who instead sent written responses to be read out at last week’s event – and Labour candidates in the two Richmond constituencies, earlier this week (see separate story).

Some disabled campaigners criticised the DPOs for going ahead with the hustings when it was clear that the two leading candidates for Bristol Central, Labour’s Thangam Debbonaire and the Green Party’s co-leader Carla Denyer, were not going to attend.

All three campaigners asked to remain anonymous.

One said: “It is unclear what the event was designed to achieve.

It was not informative – candidates were allowed to make up anything they felt the audience might like, without being called out for the lack of facts or the lack of semblance to their party manifesto (see separate story).

It was not a means of holding anyone to account (which I would say is anyway an extremely naive objective for a hustings) because nobody that came has any chance of being elected.

It was not a means of asserting disabled people’s voting power and there was not even any debate.”

She said such events play a “central role” in mainstreaming right-wing parties like Reform, while the Bristol event had used voluntary sector “time and money”, with each candidate given “equal time to put forward their ideas without interruption”.

The money could have been used instead for a “facilitated discussion about what we want from a future government and how we could get it”, she said, and DPOs could also then have publicised “the fact that the candidates couldn’t be bothered to come, so we have to organise without them”.

Another disabled campaigner said that “only allowing speakers to expound their views unquestioned was not a hustings, it was purely a platform” which “failed to either hold anyone to account or challenge the rubbish that was being said”.

A third disabled activist said: “The whole sorry incident hasn’t helped disabled people, caused division, and wasted £1000s that could have been used usefully.”

But Kamran Mallick, chief executive of Disability Rights UK (DR UK), said DR UK had wanted to support hustings organised by DPOs, including offering financial support, at “what is a really important moment”, and was also supporting next Tuesday’s national disability hustings in Manchester.

He said: “As with the Manchester national hustings, it was decided that parties represented in parliament should be invited to these sessions.

We cannot and would never try to control what candidates say, but hustings are an excellent way for local disabled people to meet and engage with candidates and hear what they say on important key issues.

This gives individuals the information and knowledge they need when it comes to casting their vote.

It is important that DR UK, working with other organisations, supports accessible hustings where disabled people feel they can go and ask the questions most important to them.

We do not condone harmful and hate speech about disabled people or members of our society.” 

*Bristol Reclaiming Independent Living, West of England Centre for Inclusive Living, Disability Rights UK, Inclusion London and Greater Manchester Coalition of Disabled People

27 June 2024

 

 

Shocking’ failure of election candidates asked about accessible housing

Politicians attending an election disability hustings event showed a “shocking and disappointing” lack of knowledge and commitment to addressing the accessible housing crisis, when they were asked about the issue.

None of the major parties have engaged within their manifestos with the critical shortage of accessible housing, despite several parties issuing significant house-building pledges.

Representatives of Labour, the Conservatives, the Liberal Democrats and the Green Party were asked about the issue at the hustings event in Richmond, south-west London, on Monday.

But none of the four appeared to recognise the scale of the problem, while two of the quartet misled the audience – and those watching online – about their party’s policies.

The hustings was organised by the disabled people’s organisation Ruils Independent Living, and covered the two constituencies within Richmond borough, focusing on issues around education, health, social care and housing.

Those taking part were Jonathan Hulley, who is standing for the Conservatives in Twickenham; Munira Wilson, for the Liberal Democrats, who was elected as the MP for Twickenham in 2019; and Chas Warlow, the Green candidate in Richmond Park.

Labour did not send either of its Richmond candidates, instead offering the local campaigns coordinator for Twickenham Labour, Philip Moshi.

Towards the end of the hustings, Svetlana Kotova, director of campaigns and justice for Inclusion London, told the panel that all the parties were pledging to build more homes.

But she pointed out that the Conservative government had failed to fulfil its promise to raise standards so that all new homes had to reach a higher standard of accessibility.

Only last month, a committee of MPs concluded that the shortage of accessible housing in England posed a “clear and direct risk” to disabled people across the country, with many of them living in unsuitable accommodation for years “without hope”.

The committee was highly critical of the government for failing to implement its “headline” policy to address the shortage of accessible housing: increasing the minimum accessibility level of all new-build homes to the M4(2) standard*.

This would mean nearly all new homes would need step-free access to all entrance-level rooms, as well as facilities and other features to make the homes more easily adaptable over time.

But it is now almost two years since the policy was first announced, and almost four years since it was first consulted on.

And there was no mention of accessible housing in the Conservative manifesto.

Despite these delays, Hulley, the Conservative candidate in Twickenham, told the audience that the new regulations had already been introduced.

He said: “It is frustrating to me to hear what you have said, and it is also frustrating it has taken longer than I would like to see these new rules and this new legislation on the statute book, but it is here now, underpinned by rules and regulations, enforceable by the social housing regulator.

If housing associations fall short on accessible requirements we must hold them to account. That is what I will do as your MP.”

But Hulley, a social housing lawyer, later clarified his comments to Disability News Service, and said he had “confused” the call for stricter accessible housing standards with new social housing regulations that were introduced by the government in April.

He said he would “like to see the next government mandate M4(2)”.

He accepted that this commitment was not included in the Conservative manifesto, but he claimed the party was “committed to bringing in M4(2)” and that it was “just a question of finding the time to get it done”.

Moshi, speaking for Labour, which also ignored accessible housing in its manifesto, said: “We will always ensure that a significant proportion of housing was accessible, was disability accessible.

What is the point … this is the social model of disability? Why would you build a house that is not disability accessible? We would not do it.”

Warlow, the Green candidate in Richmond Park, said only: “Universal design is the basic principle so that you are always going to have accessible housing. That’s it.”

On accessible housing, the Green Party’s manifesto promised only to “champion the right to… housing under the principles of universal design”.

Wilson did not address the issue of new national accessible housing standards, an issue which her party also ignored in its manifesto.

Instead, she focused on London, where at least 10 per cent of housing already has to be suitable for wheelchair-users* through the London Plan.

She said: “That needs to be enforced and also we have got to hold developers to account.”

She added: “I had somebody in my surgery who bought an accessible flat with accompanying parking space, but the developers sold the space to somebody else further up the building who wasn’t disabled.”

Wilson said there was “no planning enforcement mechanism” to deal with such situations, and she suggested that the law needed to be strengthened to address that.

After the hustings, Kotova said it was “disappointing and shocking to see how little political parties know and care about accessible housing”. 

She said: “For far too long there has been a game of passing the buck from national to local decision-makers, instead of everyone working jointly to ensure new homes are good for everyone. 

It is shocking that with the ageing population and with so many disabled people living in unsuitable homes, the current government failed to set accessibility standards for new-built homes. 

Next month it will be two years since they promised to do this.

Whoever forms our new government needs to take an urgent action on this, and all elected politicians, from MPs to councillors, need to ensure new accessible homes are being built.”

*Homes built to the M4(2) standard have 16 accessible or adaptable features, similar to the Lifetime Homes standard developed in the early 1990s, to make homes more easily adaptable for lifetime use, while M4(3) homes are those that are supposed to be fully wheelchair-accessible

27 June 2024

 

 

Some parties still failing on accessible manifestos

Some of the main political parties fighting the general election have still not published accessible versions of their manifestos, with just a week to polling day.

The worst offender is the right-wing Reform UK, which has so far failed to provide any accessible versions of its manifesto, preventing many disabled people from viewing its policies.

But some of the other smaller parties had also failed by 10am today (Thursday) to produce manifestos in some of the formats, including large print, easy read, Braille, British Sign Language (BSL) and audio.

The Greens, despite offering several disability-friendly policies in their manifesto, have so far only produced an easy read version of their manifesto, with no Braille, BSL, audio or large print versions.

The SNP has released a large print version, and it asks visitors to its website to email for a Braille copy of the manifesto, while there is a BSL version available on its website.

It originally said on the site that audio and easy read versions were “coming soon”, but that message has now been removed.

Until this week, the Conservatives – who pledge in their manifesto that they will make Britain “the most accessible place in the world for people with disabilities to live, work and thrive” – had not published any accessible versions, but they finally added audio, BSL, large print, easy read and Braille versions on Tuesday, just nine days before the election.

Labour has produced large print, easy read, Braille, digital Braille and BSL versions of its manifesto.

It has yet to publish an audio version of its manifesto, although it has released a “synthetic audio” version, which uses artificial intelligence and is less easy to understand than a human reading the document.

The Liberal Democrats have published easy read, Braille, BSL and audio versions.

Although there is no large print manifesto, the party has released plain text and clear print versions, which allow the text size to be easily enlarged.

Plaid Cymru has published easy read, large print, audio and BSL versions of its manifesto but does not mention Braille.

Deborah King, co-founder of Disability Politics UK, said: “Disability Politics UK would like political parties to tell the truth to disabled people about what plans they have for social security, work, transport, health and social care.

It is the responsibility of the communicator to communicate in a way that people can understand.

Parties who fail to provide accessible Information are unlikely to get disabled people’s votes.”

She said she was pleased that some parties had made more of an effort at this election to produce accessible manifestos.

She added: “The parties underestimate the audience for accessible information.

Disabled people want accurate information in plain language about what the various political parties are going to do if they vote for them.  

The parties could be marketing their ‘offer’ to the voting public in different ways, for example, by encouraging people to read or listen to manifestos on the way to work, to listen to the audio versions while doing housework or while running.

I hope that members of the public will make the effort to post the various accessible versions in their own social media.”

The Electoral Commission stressed this week that accessible formats should be released at the same time as the manifesto is published.

A spokesperson for the commission said: “Political parties are responsible for the production of their own manifestos but we have recommended that, when they publish manifestos, they should make sure accessible formats are available at the same time, so that disabled people have just as much time as anyone else to understand what parties stand for.”

But she added: “We don’t have any powers to investigate or take action around how parties publish their manifestos.”

Disability News Service approached Reform, the SNP, the Green Party and Plaid Cymru, but none of them had commented on their accessible manifestos by 11am today.

27 June 2024

 

 

Almost no councils now employ access officers, new research shows

Only a tiny minority of local authorities now employ a member of staff dedicated to improving access for disabled people in their area, new research has found.

Disability Rights UK (DR UK) has found just 15 of 222 English councils that responded to a freedom of information request said they employed a dedicated access officer, or a staff member with a similar job.

Access officers have duties such as responding to complaints and questions about disability access; providing advice on access design issues, for example with road crossings, traffic calming and street furniture; supporting local access groups; and providing technical advice on planning applications.

Many of the councils that told DR UK they did not employ an access officer said all their officers were expected to have knowledge of access and equality issues, while others said the duties mentioned by DR UK were spread among several of their officers.

But some were blunter in their responses.

One said: “The council can confirm that we do not hold such a position or commission an access officer.”

Another council said: “The Borough does not employ an access officer and has not done so [for] some years.”

A third council told DR UK it did not employ an access officer, but it added: “All staff are aware of the above mentioned duties and responsibilities under the DDA*.”

And a fourth local authority replied: “We do not employ an access officer. We would seek expert advice as and when required.”

Some of the councils that said they did employ an access officer – although sometimes giving the role a different title, such as inclusive design officer, or access and inclusion adviser – include Brighton and Hove City Council, Buckinghamshire Council, Liverpool City Council and Norfolk County Council.

Mikey Erhardt, DR UK’s policy and campaigns officer, who carried out the research, said: “Creating accessible communities and spaces requires local authority officers and planners’ skill, care and dedication.

This research shows that the years of austerity and underinvestment in our local councils have had a clear loser: disabled people and those with long-term health conditions.

If we continue to see fewer and fewer skilled access officers or equivalents, then we will continue to be excluded by local authorities, being unable to undertake the important work of co-production and co-design needed to create truly accessible spaces.”

He added: “The evidence shows that local authorities are not prioritising planning with our needs and desires in mind.

We cannot be surprised that in this context, with so few skilled access officers, many disabled people feel ignored, excluded, and unsupported.”

Erhardt said: “Being active and navigating our neighbourhood in a way that suits us and is fun is not a luxury; it should be a core part of our lives, regardless of background.

Being an active part of the community requires safe, accessible community infrastructure, from safe road crossings to high-quality pavements to accessible mobility lane options.

But the current lack of these options speaks to our wider exclusion from society.

We all have a right to live free, independent, and healthy lives.

To do this, we need more than transport options; we need safe and accessible walking, wheeling, cycling, and driving environments, and clean air to breathe.”

Disability News Service approached the Local Government Association for a comment on the research, but a spokesperson said her colleagues “don’t feel they know enough about the issue to provide valuable input”.

But Glyn Hayes, parliamentary and public affairs coordinator for Spinal Injuries Association, said access officers play “a crucial role in ensuring that individuals with spinal cord injuries receive the support they need”.

He said: “When someone sustains a spinal cord injury, their life can change dramatically, and their familiar home environment may no longer be safe or suitable.

Navigating the complexities of finding a new home or updating an existing one can be overwhelming, especially when it involves council support or funding.

Unfortunately, we often hear of cases where people with spinal cord injuries end up in hospitals or inappropriate settings due to decision-makers’ lack of awareness about their unique needs.

With local government budget cuts and overwhelmed departments, staff may struggle to allocate the necessary time and effort to ensure true equality in accessing services.

Access officers bridge this gap by advocating for those with protected characteristics, ensuring not only recognition but also a deep understanding of their requirements.

Their role is vital in promoting equality and accessibility.”

*The DDA (Disability Discrimination Act) was replaced by the Equality Act 14 years ago

27 June 2024

 

 

Disabled election candidates: Labour’s Marsha de Cordova

Despite her party’s decision to drop its pledge to implement the UN’s disability convention into UK law, disabled Labour candidate Marsha de Cordova has this week confirmed her own long-standing commitment to the policy.

She describes herself as a “lifelong campaigner for disability rights” and has made it her “mission” to campaign for the rights of disabled people since first being elected to parliament in 2017.

She says it was injustice in education and the labour market that first politicised her as a disabled person.

One of the policies she believes would improve the lives of disabled people would be to incorporate the UN Convention on the Rights of Persons with Disabilities (UNCRPD) into UK law, a policy she has backed for many years.

She repeated that backing this week, despite her party dropping its pledge to implement the convention last year, and failing to include any mention of the UNCRPD in its election manifesto.

De Cordova says she would also like to see more accessible and inclusive public spaces, services and transport, and improve funding for health and social care.

She says she has always been determined to help create a “fairer and more equal society”, with her own lived experience guiding the “two central pillars of my life… making a difference and being a voice for the voiceless”.

She says that “representation matters”, but not just in politics.

Being who you are should never hold you back,” she says. “I am standing again for re-election as it is important that all people have a voice.

Our motto is ‘nothing about us without us’ and we can only do that if we are represented in parliament.”

She says there are still “shockingly” few disabled MPs, possibly as few as five in the last parliament, which would have meant disabled people making up less than one per cent of the total number of MPs.

She points out that successive Conservative-led governments set up and then scrapped two schemes that were supposed to help candidates for elected office with their extra disability-related costs.

This, she says, “demonstrates their disdain for our participation in politics”.

De Cordova grew up in Bristol and then moved to London to study and work.

My career and purpose in life have been interlinked,” she says. “I have always been a lifelong campaigner for disability rights and issues affecting blind and partially-sighted people.”

She worked in the charity sector for more than two decades, including setting up a small charity, South East London Vision, which supported blind and partially-sighted people across south-east London, and as a director at the Thomas Pocklington Trust.

She says: “While the work done by charities is essential, my decision to pursue elected office was informed by the increasing realisation that this work requires representatives in the central institutions of power – whether on a local or national level – to truly realise lasting change.”

She was elected as a Labour councillor in Lambeth in 2014, and then stood as a general election candidate in Battersea in 2017 and overturned a Conservative majority of nearly 8,000, defeating a government minister.

She has served as shadow women and equalities secretary, and as shadow minister for disabled people, where she helped draw up the party’s Breaking Down Barriers disability manifesto for the 2019 general election, which she says would have “delivered transformative change for disabled people in education, employment and health”.

De Cordova says the current government’s record on disability is “woeful” and that the Conservatives have “waged a full-on assault on disabled people”.

She points to the government’s green paper on further cuts and reforms to personal independence payment (PIP), which was published shortly before the election was called, and the “cruel” decision to change the criteria for qualifying for the Warm Home Discount.

But she also highlights how the government downgraded the role of the minister for disabled people from minister of state to a junior ministerial position in October 2022, a move that was only reversed in April this year.

She says Labour “is and has always been the party of equality”.

She highlights its decision to replace the National Disability Council with the much stronger Disability Rights Commission in 1999, the Labour government’s ratification of UNCRPD in 2009, and the passing of the Equality Act, shortly before the 2010 general election, which “enforces, protects and promotes the rights of disabled people”.

Asked why disabled people should vote for her party, she says Labour is “committed to championing the rights of disabled people and to the principle of working with them, so that their views and voices will be at the heart of all we do”.

She points to its manifesto commitments to a new right to equal pay for disabled people, disability and ethnicity pay gap reporting for large employers, improved employment support and access to reasonable adjustments, and reducing the Access to Work backlog.

De Cordova says there is no question that life is far worse for disabled people than when the Conservatives first won power as part of the coalition with the Liberal Democrats in 2010.

Successive Tory-led governments have implemented an austerity regime which has caused needless suffering to so many, but has disproportionately affected disabled people,” she says.

This regime has included their “cruel and inhumane” benefit sanctions regime, abolishing working-age disability living allowance and replacing it with personal independence payment, cuts to employment and support allowance, the scrapping of the Independent Living Fund, and cutting funding to Deaf and disabled people’s organisations.

She says the post-2010 programme of austerity “has demonised disabled people, harmed our livelihoods, and in some cases resulted in death”, as well as creating a “hostile environment” for disabled people over the last 14 years.

This led to the UK becoming the first country to be investigated for breaches of UNCRPD by the UN’s committee on the rights of disabled people, and being found guilty in 2016 of grave and systematic violations of disabled people’s rights.

She says this was a “stark illustration of the Tory government’s contempt for disabled people”, while a follow-up report by the committee earlier this year found no significant progress and even “signs of regression”.

But still the Conservative government “committed to further entrenchment of their disastrous austerity regime” in this year’s spring budget, she says, while the party has now pledged further social security cuts in its manifesto.

A further Tory term will be disastrous for disabled people,” says de Cordova.

*This is part of a pre-election series of articles that will give some of the disabled people standing as candidates at the general election a chance to describe why they wanted to stand, how they became politicised, and the kind of barriers they have faced as disabled people. The aim is to raise the profile of some of the disabled people seeking elected office. Disability News Service has analysed party manifesto commitments separately. It has asked two disabled Conservative candidates to take part, but neither of them has responded

27 June 2024

 

 

Disabled election candidates: Liberal Democrat Katharine Macy

Katharine Macy grew up “hearing about people faking disabilities to lounge around on benefits”, but they knew the truth, because they had a mother who struggled to leave the house and desperately wanted to return to work.

I remember her crying many times over our situation, and thinking how angry it made me that people saw her as a layabout,” says Macy, who is standing in Colne Valley.

She was a teacher and a councillor, she gave herself to so many people, and was abandoned, written off, then accused of being lazy.

She, and so many other disabled people, deserve better.”

Macy says that just “existing” as a member of a minority is politicising, but it is also “exhausting”.

Every year their family’s struggles have increased, and their mother has become more disabled, “but every time we ask for help, it’s a battle”.

Asked to choose three polices that would improve the lives of disabled people, they pick accessible transport, inclusive education and reform of personal independence payment (PIP).

They would like to see a focus on accessibility for all new public transport, including making it “completely wheelchair-accessible”, and cutting the distance that those with mobility impairments need to walk around stations.

They also want to see as many disabled pupils taught in mainstream schools as possible, because “separation is not the answer, but currently very few comprehensive schools are set up to provide disabled children the support they need”.

And they point to their party’s manifesto promise to reform PIP assessments to make the process more transparent, stop unnecessary reassessments, and end informal assessments.

Macy, who was consulted on the party’s manifesto as chair of the Liberal Democrat Disability Association, says their party has taken the rare step of putting disabled people “front and centre” of its campaign.

And they say the Liberal Democrats will fight to speak up for disabled people and have a manifesto “that promises to fix so many issues with the NHS, education and the welfare system”.

They say they wanted to be an MP to “change many lives in lots of little ways”.

Disabled people especially need this. I want to go down the path and widen it, strengthen it.

Others before me mean I have to fight a little less. I want to do the same. Reduce barriers as much as I can, so someone in 20 years has less to reduce.

Disabled people deserve representation and I want to try and be that.”

Everyone deserves dignity and a good life,” they say, “and everyone includes disabled people.

Disabled people deserve better, we deserve respect, we deserve opportunities, and we deserve support.

None of these have been provided under the last few governments.”

From the age of about 10, Macy grew up with an undiagnosed neurodivergent mother who was unable to work.

They have “countless memories of watching other children do things I couldn’t”, either because their mother could not do it or because they could not afford it.

They relied on free school meals and their friends had to pitch in to buy Macy a scientific calculator because their mother was unable to afford one.

Growing up as autistic was also “a challenge” and “exhausting”, leading to depression, anxiety, and teenage anger.

They say: “Even now, sometimes I come away cringing at myself, wishing I could be ‘normal’, but I know from my research that autism is natural – and I work hard to accept myself.”

In the last two years, a mobility impairment has opened their eyes “even wider” to the barriers facing disabled people.

They say: “I am not disabled enough to get any government support, because usually I can walk more than 200 metres, but I spend so much more on bus fares and Ubers.

I have to give myself significantly more time to get to places, and be willing to miss things.

I am still learning that I cannot do what I once could – in politics, it can be difficult.

Lib Dems win and campaign by being incredibly active. We deliver leaflet after leaflet, and canvass over and over.

When you cannot stand or walk for more than 20 minutes on a good day, this makes proving my worth in politics difficult.”

But, they say, they know they play a valuable role in their party.

I wrote the 2019 Young Carers motion that kickstarted Ed Davey’s focus on care and is the cornerstone of our manifesto.

I put hours of work into both paid and voluntary support for the party.

I will sit and write letters, fold leaflets or bundle tabloids for hours at a time, but proving I am still worthy feels exhausting sometimes.”

They added: “Being unable to show my pain, I have to rely on people believing me, accepting and understanding that I have good days and bad.

This makes me afraid of work environments, and scared of moving jobs. But I will keep fighting, because I can.

Not everyone has this energy – that’s okay – but it means I need to use the energy I have on making sure I keep speaking up for not just myself, but those who cannot.”

*This is part of a pre-election series of articles that will give some of the disabled people standing as candidates at the general election a chance to describe why they wanted to stand, how they became politicised, and the kind of barriers they have faced as disabled people. The aim is to raise the profile of some of the disabled people seeking elected office. Disability News Service has analysed party manifesto commitments separately. It has asked two disabled Conservative candidates to take part, but neither of them has responded

27 June 2024

 

 

Other disability-related stories covered by mainstream media this week

More than 200,000 people have wrongly faced investigation for housing benefit fraud and error after the performance of a government algorithm fell far short of expectations, the Guardian can reveal. Two-thirds of claims flagged as potentially high risk by a Department for Work and Pensions automated system over the last three years were in fact legitimate, official figures released under freedom of information laws show: https://www.theguardian.com/society/article/2024/jun/23/dwp-algorithm-wrongly-flags-200000-people-possible-fraud-error

Keir Starmer has said benefits offer people less “dignity” than work, prompting fears that Labour may take a tough approach to social security in the UK. Outlining his plans for “wealth creation” in the Telegraph, the Labour leader said “handouts from the state do not nurture the same sense of self-reliant dignity as a fair wage”. But charities have said the “real indignity” is in the UK’s “broken benefits system” which is leaving millions of people in poverty and struggling to afford the essentials they need to survive: https://www.bigissue.com/news/social-justice/keir-starmer-benefits-work-labour-general-election/

Bob Williams-Findlay has spent a lifetime fighting the system to ensure disabled people get a fair crack at the opportunities available to others. And he’s angry as hell over plans by Birmingham City Council to dramatically cut the budgets for services used by disabled people and the families of children and young people with special educational needs as part of their “recovery budget”: https://www.birminghammail.co.uk/news/midlands-news/we-not-numbers-real-people-29379650

Tens of thousands of people with sight loss will be denied their right to a secret ballot at next week’s general election, campaigners have warned, prompting calls to make it the last inaccessible election. The Royal National Institute of Blind People is calling on all political parties to commit to remove barriers that prevent blind people voting on their own and without help in future elections. It estimates that 160,000 people in the UK of voting age with severe sight loss will struggle to vote independently because of the lack of adjustments made at polling stations: https://www.theguardian.com/society/article/2024/jun/26/rnib-blind-people-vote-independently-elections-uk

27 June 2024

 

News provided by John Pring at www.disabilitynewsservice.com

 Posted by at 16:56
Jun 252024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

[Reproduced from Liberty]

Did you know you now need photo ID to vote in-person at an election? 

This is the first General Election in the UK where ID is required to vote. 

Since they were first proposed, Liberty has opposed the mandatory voter ID requirements. In a healthy democracy, everyone should have the right to vote. But mandatory voter ID is designed to make voting harder. It is unnecessary and undemocratic. 

Those who are already marginalised and under-represented by our political system are most likely to be affected by mandatory voter ID. If you’re young, if you’re a person of colour, if you’re disabled, trans or you don’t have a fixed address, you’re much less likely to have photo ID and risk being shut off from voting. 

Now that voter ID requirements are in force, we have been working with partners in the media and across society to make sure everyone knows what they need to bring with them when they cast their vote on 4 July.  Access our free guidance on voter ID for more information. 

VOTER ID GUIDANCE – WHAT YOU NEED TO KNOW →

You don’t need photo ID to vote via post, and if you’re voting via proxy, your nominated person will need to bring their ID to vote for you. However, if you’re voting in-person on the 4 July, you will need photo ID. 

Our free online advice answers key questions like:  

  • What kind of ID can I use?  
  • What if my ID doesn’t look like me?
  • What if I don’t have any ID? 

It’s not too late to get your Voter ID

The election is in less than two weeks, but if you still need ID, it’s not too late.

If you don’t have an accepted form of ID, you can apply for a free voter ID document known as a Voter Authority Certificate (VAC) before the deadline of 5pm tomorrow, on Wednesday 26 June. 

Voter ID advice for trans and non-binary people 

Just last week, Liberty teamed up with Pink News to provide specific advice for trans and non-binary people who are concerned about using voter ID.

And remember, if you’re still unsure about using the ID you currently have, you can apply for a Voter Authority Certificate (VAC) until 5pm tomorrow.

We hope this information has been helpful, and that you share it with your friends, family and colleagues to ensure that everyone has a chance to vote this General Election. 

 Posted by at 18:23
Jun 222024
 
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The main parties’ Election Manifestos 2024

Key points for disabled voters

 

DPAC are not aligned to any political party nor do we endorse or support any party, leaving us free to criticise (or praise, where it’s due) all parties.

But here is a run down of the manifesto offerings related to disabled people, provided by Merry Cross, with additional information links from Disability News Service articles on each manifesto.

Parties in alphabetical order:

CONSERVATIVES

They would

  • Reform disability benefits so they are better targeted and reflect people’s genuine needs, while delivering a step-change in mental health provision.

  • We will improve PIP assessments to provide a more objective consideration of people’s needs and stop the number of claims from rising unsustainably.

  • Continue the present trajectory of making it harder to get benefits and push more people into work.

  • Build 15 new free schools for children with special educational needs.

  • [Under the heading of Health and Social Care, there’s no mention whatsoever of Social Care]

  • No mention of implementing the UNCRPD into law.

Read more: Conservative manifesto is empty of new policies aimed at improving lives of disabled voters

GREEN PARTY

They would

  • Make it mandatory for councils to provide free transport for 16–18-year-old pupils with special educational needs and disabilities.

  • They say they will restore the value of disability benefits, with an immediate uplift of 5%.

  • Reform intrusive eligibility tests for PIP and the unfair targeting of carers and disabled people on benefits.
  • Introduce free personal care along the lines successfully brought in by the Scottish Government, to ensure dignity in old age and for Disabled people.
  • An Increase in pay rates and the introduction of a career structure, to rebuild the care workforce.
  • An increase to Universal Credit and legacy benefits by £40 a week.
  • No mention of implementing the UNCRPD into law.
  • They say they will support Assisted Dying.

Read more: Greens’ manifesto offers rise in disability benefits, free personal care and cash for inclusive education

 

 

LABOUR

They would

  • Improve inclusivity in mainstream schools and increase provision in ‘special’ schools.

  • Protect LGBT+ and disabled people by making all existing strands of hate crime an aggravated offence.

  • The emphasis remains on getting disabled people into work, but improving their pay.
  • Explore how to improve Social Care.
  • They will have a free vote on Assisted Dying.
  • No mention of increases to carers allowance or Disability related benefits.
  • No mention of implementing the UNCRPD into law.

 

Read more: Labour manifesto drops key disability rights pledges

 

 

LIBERAL DEMOCRATS

They would

  • Give every child the specialist support they need and have a mental health professional in every school.
  • Give local authorities extra funding to reduce the amount that schools pay towards the cost of a child’s Education, Health and Care Plan.
  • Establish a new National Body for SEND to fund support for children with very high needs.
  • Make the benefits system work better for disabled people by:
    • Giving disabled people and organisations representing them a stronger voice in the design of benefits policies and processes.
    • Bringing Work Capability Assessments in-house.
    • Reforming Personal Independence Payment assessments to make the process more transparent and stop unnecessary reassessments, and end the use of informal assessments
  • Improve accessibility at stations through the Access for All programme.
  • Make it easier for disabled people to access public life, including the world of work, by [amongst a list of measures]
  • Incorporating the UN Convention on the Rights of Persons with Disabilities into UK law.
  • Building on the British Sign Language Act by increasing the use of BSL in government communications and working collaboratively with the BSL Alliance to promote and facilitate the use of BSL.
  • They would give Parliament time to debate and a free vote on Assisted Dying

Read more: Lib Dem manifesto targets care charges, and promises to implement UN disability convention

PLAID CYMRU

They would

  • Work to deliver a National Care Service, combining health and social care and make it free at the point of delivery.
  • Consult on eliminating profit from children’s services.
  • Pay care workers at least £1 above the National Living Wage
  • Ensure people who present with neurodiversity, whether self-referred or referred by a professional are supported as soon as possible.
  • Press for the full transfer of powers to Wales in the Mental Health Act
  • No mention of education at all, let alone for disabled children.
  • No mention of Assisted Dying

Read more: Plaid Cymru calls for implementation of UN disability convention into UK law

REFORM

They would

  • Withdraw job-seekers’ benefits after either 4 months of unemployment or 2 refused job offers
  • Only have face-to-face PIP assessments with emphasis on coaching people back to work
  • Reduce or remove a wide range of benefits
  • Create a royal commission to tackle social care.
  • Leave the European Commission on Human Rights.
  • There’s no mention of incorporating the UN Convention on the Rights of Persons with Disabilities into UK law.
  • No mention of Assisted Dying

Read more: Reform UK manifesto suggests huge cuts, threats to disability rights, and risks to safety of benefit claimants

 

SNP

They would

  • Scrap proposed punitive welfare reforms (but no mention of changing existing welfare policies)
  • Scrap bedroom tax
  • No mention of education at all, let alone for disabled children.
  • No mention of UNCRPD
  • No mention of Assisted Dying

Read more: SNP mentions disabled people just twice in general election manifesto

 

 

 

 Posted by at 14:06
Jun 202024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

 

DWP staff fail in two-fifths of cases to meet new standards aimed at stopping deaths

Department for Work and Pensions (DWP) staff are failing in two out of five cases to meet new standards designed to “significantly reduce” the number of deaths of benefit claimants.

A survey by the department found its staff did not meet the standards on hundreds of occasions.

The standards include staff having to identify if a disabled person will need extra support with their benefit claim, making sure they provide reasonable adjustments for a disabled claimant, and following the department’s six-point plan, which tells staff what actions to take when claimants say they intend to self-harm or take their own lives.

Disability News Service (DNS) has previously reported how DWP staff had to be repeatedly reminded what to do when claimants threaten to take their own lives, following secret reviews into as many as six suicides linked to the benefits system.

The survey results – which were revealed in a series of DWP responses to freedom of information requests made by welfare rights expert Owen Stevens, from Child Poverty Action Group – show that frontline staff are still failing to follow rules laid down for them to follow to prevent deaths and other “serious cases”.

The results relate to a new set of 17 customer support standards that DWP introduced last year, which were “designed specifically to improve the experience of customers with complex needs and significantly reduce instances of serious cases by providing the right support at the right time”.

The survey, carried out in April across the range of benefits provided by DWP, examined a sample of nearly 4,000 claims.

Across those cases, 1,309 separate standards should have been met by DWP staff, but the survey found that on only 814 occasions (62 per cent of the time) did they follow the process correctly.

The survey results add to months of mounting concerns about DWP’s continuing failure to protect disabled claimants with significant support needs.

Only last month, DNS reported how a survey by the Commons work and pensions committee found two-thirds of DWP staff still do not have enough time to deal with safeguarding concerns “carefully” and “correctly”, despite years of deaths of benefit claimants linked with DWP’s actions and failings.

Last December, a dossier of evidence submitted by the PCS union to DWP showed the department to be a failing organisation in a “state of crisis” and facing a “near collapse” of its benefits systems, with staff accusing DWP of “deliberate neglect” and revealing that claimants in vulnerable situations were “falling through the gaps” in the system.

Meanwhile, DNS has reported on three suicides of universal credit claimants that have also raised critical concerns about DWP safeguarding.

In May, DWP admitted missing multiple opportunities to record the “vulnerability” of Nazerine Anderson, whose death was later linked by a coroner to failings at the heart of universal credit.

The new customer support standards were referred to by DWP in its response to the prevention of future deaths (PFD) report sent to the department by the coroner.

Last November, another coroner wrote to the department after the death of Kevin Gale, to warn DWP that it needed to act to prevent flaws in the universal credit system leading to further deaths, after Gale took his own life after becoming overwhelmed by the application process.

And in November 2022, DNS reported how a disabled woman left traumatised by the daily demands of universal credit took her own life just four days after being told she would need to attend a face-to-face meeting with a work coach. Her inquest has yet to take place.

Because of the election campaign, DWP has not responded to the survey results with a statement, but it did provide a series of background points that it has previously issued in response to previous concerns.

These stress that the department supports millions of people a year and that in nearly all cases claimants receive a supportive and compassionate service.

It also stresses that the safety of customers who may need additional support remains a top priority and that it has safeguards in place to protect them, including mental health training for all frontline staff.

It also says it is carrying out work in response to the Nazerine Anderson PFD report.

Meanwhile, Peter Schofield, DWP’s permanent secretary and its most senior civil servant, learned last week that he has been made a Knights Commander of the Order of the Bath, in the king’s birthday honours.

A government press release recognised his “relentless commitment to performance and delivery”.

None of the parties fighting next month’s general election have described in their manifestos how they would address the safeguarding concerns relating to DWP.

20 June 2024

 

 

Labour manifesto drops key disability rights pledges

Labour has published an election manifesto that has been shorn of key promises the party made on disability rights last autumn.

The manifesto also confirms the party’s continuing refusal to promise an end to ruinous care charges if it wins power.

And there is no explicit promise to co-produce disability-related policy with disabled people and their organisations, likely to be seen by many activists as a betrayal after years of promises that a Labour government would “work in co-production with disabled people in developing policy”.

There will also be alarm that the manifesto has avoided all mention of the UN Convention on the Rights of Persons with Disabilities.

Meanwhile, one of the biggest holes in the manifesto is its failure to promise any action on serious and continuing concerns about the safety of the Department for Work and Pensions (DWP) and the countless deaths linked to its actions and failings.

Despite mounting concerns in recent months over safeguarding, including more revelations from Disability News Service (DNS) this week (see separate story), there is not a single mention in the manifesto of how a Labour government would address these concerns.

Last year, DNS obtained a copy of the party’s National Policy Forum report, an internal party document that is supposed to form the basis of the manifesto.

In that report, the party promised to “ensure that respect and dignity are once more at the heart of our social security system” and that “every stage of the social security system will be supportive and accessible”.

It also promised to overhaul “the current unfair and punitive Tory system and end punitive Tory sanctions which strip away people’s dignity”.

None of these pledges appear in the manifesto, and there is only a fleeting mention of universal credit, the working-age benefit system that has been at the centre of many of the recent safeguarding concerns.

The manifesto promises only that a Labour government would be committed to “reviewing Universal Credit so that it makes work pay and tackles poverty” and gives disabled people “the confidence to start working without the fear of an immediate benefit reassessment if it does not work out”.

There are repeated references to employment, while the manifesto also stresses the importance of “rights and responsibilities” for claimants, and “consequences for those who do not fulfil their obligations”.

The closest the manifesto comes to a meaningful pledge on improving the disability benefits system is a statement that the work capability assessment “is not working and needs to be reformed or replaced, alongside a proper plan to support disabled people to work”.

Of 10 mentions of disabled people or disability in the Labour manifesto, six of them relate to employment or pay.

They include the introduction of a “full right to equal pay for disabled people” and disability pay gap reporting for large employers, improved access to reasonable adjustments for disabled employees, and a pledge to “tackle the Access to Work backlog”.

But there is no mention of repeated calls for an inquiry into the countless deaths linked to DWP’s actions over the last 15 years, a pledge that was made at the last general election in 2019 by senior Labour figures.

Only last week, DNS revealed how official documents link two former Conservative work and pensions ministers – including would-be party leader Penny Mordaunt – to a government cover-up of how a disabled man took his own life after being wrongly found fit for work.

Many disabled people are likely to be alarmed by the manifesto’s failure to even mention personal independence payment, when a DWP consultation on controversial Conservative reforms of the disability benefit is currently underway.

There will be no surprise among disabled campaigners that the manifesto includes no pledges on ending care charges, and that Labour has dodged any attempt at describing in detail how it will solve the social care funding crisis, despite acknowledging the need for “deep reform” to the care sector.

Instead, as expected, it promises a “fair pay agreement”, focusing on the needs of care workers rather than the disabled people who use care and support services.

It pledges to “build consensus for the longer term reform needed to create a sustainable National Care Service”, which will be “underpinned by national standards”, and it says a Labour government will “explore” how “to best support working age disabled adults”.

It adds: “Services will be locally delivered, with a principle of ‘home first’ that supports people to live independently for as long as possible.

Our new standards will ensure high-quality care and ongoing sustainability, and ensure providers behave responsibly.”

Rather than committing to co-production of disability policy, the manifesto promises only that Labour is “committed to championing the rights of disabled people and to the principle of working with them, so that their views and voices will be at the heart of all we do”.

Disability News Service (DNS) has been told the party remains committed to working with disabled people through co-production to ensure they have an input in designing the policies which affect them most.

And despite the manifesto’s failure to mention the social model of disability – a key principle for the disabled people’s movement – DNS has been told the party remains committed to the social model.

But many disabled activists are still likely to be alarmed at the failure to mention co-production and the party’s commitment to the social model in the manifesto.

On the UN convention, the party – through shadow disability minister Vicky Foxcroft – had made repeated pledges that a Labour government would implement the treaty into UK law in the year leading up to last year’s annual party conference.

That pledge was weakened in the National Policy Forum (NPF) report to a promise to “honour our commitments to the United Nations’ Convention for the Rights of Disabled People and ensure its principles are reflected across government”.

But the manifesto does not even offer that weakened promise, although DNS has been assured that there has been no change to the party’s commitment to ensuring the convention’s principles are reflected across government.

There are other key commitments that were included in the NPF report but have been dropped for the manifesto.

The manifesto fails even to mention the accessible housing crisis.

The NPF report had said Labour recognised that disabled people “are less likely to own their own home and that disabled people often struggle to find suitable rented accommodation” and was committed “to the principle of co-design and conscious of the lack of minimum standards for new build properties to be either adaptable or wheelchair accessible”.

Labour promised in the NPF report to “work with Disabled People’s Organisations and groups led by disabled people to ensure new builds are accessible and adaptable, building on the ongoing review by government” and to “ensure new requirements are enforceable and empower local leaders to ensure new developments meet designated standards”.

None of that appears in the manifesto.

The manifesto does promise reform of hate crime law, taking on the Law Commission’s long-standing call for new standalone “aggravated offences” that cover disability hate crime (and similar crimes against LGBT+ people), to mirror those that currently only apply to racial and religious hostility.

This would mean that an offender could be charged with an offence – such as assault, harassment or criminal damage – that was aggravated by hostility towards a disabled person.

Disabled campaigners have been calling for more than a decade for such a change.

There is also an emphasis in the manifesto on the need to address the long waiting-lists for mental health support, with new Young Futures hubs to provide “open access mental health services for children and young people in every community”.

Labour promises to modernise mental health legislation that is “woefully out of date” and discriminates against black people, and ensure it provides “greater choice, autonomy, enhanced rights and support” and that “everyone is treated with dignity and respect throughout treatment”.

Although the manifesto says the treatment of autistic people and people with learning difficulties “is a disgrace”, it does not explain how a Labour government would address this.

And there is a pledge to improve “inclusivity and expertise in mainstream schools”, while ensuring that special schools “cater to those with the most complex needs”.

20 June 2024

 

 

Conservatives twice ignore regulator’s warning on use of misleading ‘fitness for work’ figures

The Conservative party has continued to use misleading figures about “fitness for work” assessments, despite an independent watchdog finding they were potentially misleading.

The Office for Statistics Regulation (OSR) has been forced to contact the party to draw its attention to its decision, after Disability News Service told the regulator how the Conservatives had twice flouted its findings.

OSR concluded on 7 June that the repeated use of the figures by prime minister Rishi Sunak over the last year “had the potential to mislead”.

The prime minister had first used the work capability assessment (WCA) figures in his main Conservative party conference speech last October, comparing the proportion of those now found not fit for work (65 per cent) after an assessment with the figures in 2011 (21 per cent).

He repeated these figures in March in an interview with the Sunday Times.

And he repeated them again in a major speech on social security at the Centre for Social Justice in April.

Then, in a press release issued on 8 June, more than 24 hours after the OSR ruling, the party used the figures yet again, this time claiming people were “three times more likely to be assessed as not fit for any work than they were a decade ago”.

Three days later, the figures appeared in the Conservative manifesto, in a bid to justify the party’s claim that there had been an “unsustainable rise in benefit claims” by working-age disabled people.

But OSR had concluded that the use of the figures “does not reflect the complexities of the data or take account of any changes to the benefit system or the criteria for allocating to this group”.

When DNS informed the regulator that the party’s manifesto had ignored its ruling, an OSR spokesperson said: “Manifestos fall outside the Office for Statistics Regulation’s remit so while we monitor the content to pre-empt statistics that may be used in public debate, we cannot formally comment on their content.

We are, however, able to intervene in claims from manifestos when they are referred to in public statements such as interviews or social media posts.”

After being shown the Conservative press release by DNS, he said OSR had “flagged the relevant page on our website” with “Conservative Party HQ”.

The Conservative party had failed to comment by 11am today (Thursday) on why the prime minister and his party had ignored the 7 June OSR decision.

The 2011 figures reflected the particular harshness of the WCA in its early years, before its most serious flaws were exposed.

It took years of research and activism by disabled people and allies to reveal the links between the WCA and hundreds, and probably thousands, of deaths of claimants, and to force DWP ministers to ease the harshness of the assessment process.

There were also five independent reviews of the WCA commissioned by DWP, which led to multiple improvements to the assessment.

These factors eventually made it less arduous to qualify for the employment and support allowance support group and avoid work-related conditions for those found not fit for work, although the assessment process is still deeply-flawed and continues to be linked to serious harm and deaths of claimants.

20 June 2024

 

 

Police investigate security guard ‘who tried to push man with electronic implant through metal detector’

Police are investigating claims that a security guard tried to force a disabled man through a metal detector outside a sports stadium, even though he had been told he had an electronic implant and it could cause him serious injury.

Oliver Trowell was on his way to watch the New York Mets play the Philadelphia Phillies at the London Stadium in east London, as part of the Major League Baseball world tour, when the incident took place.

Police are now investigating the alleged assault.

As he approached the Olympic Park stadium, Trowell told a security guard he had an implanted device that provides deep brain stimulation through electrodes, due to a neurological condition, and therefore could not walk through a metal detector.

He showed the guard a card supplied by the implant’s manufacturer, which explained that walking through a metal detector could interfere with the technology or even cause him a neurological injury, so he would need to be searched by hand instead.

But the guard ignored the card, rejected what Trowell was telling him, and insisted that he must walk through the metal detector.

Trowell then told the guard he was going to speak to a more senior guard on the other side of the scanner.

When he attempted to do so, the first guard grabbed him and began pushing him towards the metal detector gate.

Trowell told Disability News Service (DNS): “For him to have succeeded could have potentially led to a serious incident in which my physical health would have been severely impacted.”

They were tussling for about a minute while Trowell tried to prevent himself being forced through the metal detector.

He eventually managed to show the second security guard his card.

The second guard then ordered his colleague to stop pushing Trowell, and he was finally allowed to enter the stadium.

Although he was able to enter the London Stadium and watch the game on 8 June, he said the incident “pretty much ruined the day for me, as I was constantly worried some damage or interference may have occurred to my implant, in addition to the upset caused by being dealt with in such a way”.

He was also publicly embarrassed because there was a queue of about 100 people behind him who could see what was happening.

He said: “I feel very upset about it, which is why I have not let it go.”

Now he wants to raise awareness of the kind of discrimination that people with implants frequently face in similar situations.

His partner joined him at the stadium an hour later and reassured him that they could take a taxi home to collect the device’s remote-control device and go to the hospital if needed, so they decided to stay and watch the game.

But he told DNS he was appalled by the discrimination he had experienced and wanted to push for better training for security guards so similar incidents do not happen to other people with sensitive medical implants.

He said other people with implants are “routinely being challenged even though they are presenting ID”, and he added: “It’s something that happens all the time to people with implants.”

But he is also frustrated that the stadium did not immediately acknowledge what happened and promise to improve the training of its security guards.

He said he has been told by police that the incident is being investigated as an allegation of common assault, with disability as an aggravating factor.

A Met police spokesperson told DNS that they had “received a report of an assault and the investigation remains ongoing”.

Trowell has also lodged a complaint with London Stadium.

London Stadium had not responded to requests to comment by 11am today (Thursday).

20 June 2024

 

 

Reform UK manifesto suggests huge cuts, threats to disability rights, and risks to safety of benefit claimants

The right-wing Reform UK party has published a manifesto that repeatedly threatens the rights of disabled people, suggests it will pose significant safeguarding risks to benefit claimants, and warns of massive spending cuts to benefits and public services.

Although the manifesto is short on detailed policies and contains just two explicit mentions of disability, the 28-page document is filled with policy suggestions that are likely to alarm many disabled people.

The document repeatedly issues blunt threats about slashing spending on social security and attacking long-established rights.

One alarming policy for those who rely on public services, many of which are already struggling with delivery after 15 years of austerity, is that Reform claims it can save £50 billion a year by telling every government department to “slash wasteful spending, cut bureaucracy, improve efficiency and negotiate better value procurement”.

Reform’s claim that this could be done “without touching frontline services”, and other tax and spending claims, have been widely discredited.

On social security, the manifesto is again short on detail but suggests that a Reform government would launch a new attempt to push disabled people into employment, suggesting that it would save £15 billion a year by forcing “1 million plus back to work”.

Although it does not explicitly say it would target disabled people, the document says it would “ensure those who can work do work” and adds: “Employment is critical to improving mental health.”

There is another alarming threat for those on out-of-work benefits, with the manifesto stating that “all job seekers and those fit to work” will have to find employment within four months or accept a job after two offers. Otherwise, it says, “benefits are withdrawn”.

The manifesto also suggests that all assessments for personal independence payment and all work capability assessments should take place “face to face”, a policy that would likely have dangerous consequences for many disabled people unable to cope with such situations.

The manifesto also says a Reform government would “require independent medical assessments to prove eligibility for payments”, although it has yet to explain how this would differ from the current system of assessments provided on behalf of the Department for Work and Pensions by private sector contractors such as Capita and Maximus.

In one of the two mentions of disability in the manifesto, Reform says that those registered with “severe disabilities or serious long-term illnesses would be exempt from regular checks”, although again there is no further detail.

The party had not explained by 11am today (Thursday) whether any disabled people currently seen as not fit for work would be forced off benefits, and how it would avoid repeating the countless tragedies linked to past welfare reforms if it did so.

It had also failed to clarify if the threat to withdraw benefits from those not finding jobs would apply to any claimants found not fit for work, and whether it would force disabled people not well enough or too distressed to cope with a face-to-face assessment into attending such a meeting.

On dealing with the social care crisis, Reform argues that a “national plan” is “critical”, but then fails to explain what that plan might be.

Instead, it suggests that there should be a royal commission into the social care system, but agrees that “more funding” – although it does not say how much – will be needed.

It says the social care sector needs “flexibility, tax incentives, VAT breaks and less waste”, but provides no further details or evidence of why this is needed.

It also calls for social care to have a “single funding stream, instead of the split between NHS and Local Authorities”, but it has yet to offer any further detail.

Among a series of attacks on rights – many of which would have a significant impact on disabled people – it suggests leaving the European Convention on Human Rights, reforming the Human Rights Act so it “puts the rights of law-abiding people first”, and creating a British bill of rights.

It has failed so far to provide any examples of which rights it would like to remove from the Human Rights Act.

It suggests that such a bill of rights would ensure that the government could never again order a national lockdown, an emergency step taken during the pandemic to stop the spread of the Covid virus and protect millions of disabled people who were particularly vulnerable to serious illness if infected.

The Office for National Statistics repeatedly found during the pandemic that nearly 60 per cent of those who died Covid-related deaths were disabled people, and most academic studies found that lockdowns were successful in reducing the spread of the virus and the number of deaths.

Disabled people’s organisations have publicly supported the use of lockdowns, and they and others have argued that they almost certainly saved tens or even hundreds of thousands of lives.

The manifesto also suggests that a Reform government would replace the Equality Act – which it mistakenly refers to as the Equalities Act – but doesn’t explain why, other than highlighting that the act “requires discrimination in the name of ‘positive action’”.

It has yet to explain what parts of the act would be scrapped.

The party also promises to scrap “Diversity, Equality and Inclusion (DE&I) rules that have lowered standards and reduced economic productivity”, but again provides no details on which rules it objects to or any evidence for its claims.

On criminal justice, the manifesto suggests a Reform government would make it even harder for disabled people to persuade police forces to investigate a crime as motivated by disability-related hostility, by changing the definition of a hate crime to ensure that “members of the British public must not be investigated because ‘any’ person ‘perceives’ that a hate crime has been committed”.

The current definition of disability hate crime used by the police and Crown Prosecution Service is that it is any criminal offence “which is perceived by the victim or any other person to be motivated by hostility or prejudice” based on the person’s “disability or perceived disability”.

It is not clear what a Reform government would replace this definition with.

The other explicit mention of disabled people comes in a policy suggestion that a Reform government would scrap all postal voting, except for “the elderly, disabled or those who can’t leave their homes”.

20 June 2024

 

 

SNP mentions disabled people just twice in general election manifesto

The SNP has said almost nothing in its manifesto about how it would fight for the rights of disabled people at Westminster if its candidates are elected as MPs next month, five years after its last general election manifesto faced similar criticism.

At the last general election in 2019, there were three mentions of disability or disabled people in the SNP manifesto, and this time there are just two across its 32 pages.

Many policies with a specific impact on disabled people, such as social care, local government, education, parts of the social security system, and many aspects of transport, are devolved to the Scottish government.

But the party still offers little to attract disabled voters across those areas where responsibility has not been devolved.

The manifesto makes pledges to push for improvements to LGBT+ rights, children’s rights, and the rights of asylum-seekers, but makes no such promises on disabled people’s rights.

The key policy it offers is that its MPs would push the UK government to “scrap proposed punitive welfare reforms for sick and disabled people which will take support away from some of the most vulnerable people in our communities”, but it offers no further details.

This is likely to refer to Conservative plans to tighten the work capability assessment (WCA), which will mean 371,000 disabled people losing their entitlement to extra support – and becoming subject to conditionality and sanctions – by 2028-29.

The WCA reforms will increase employment by just 10,000 by 2028-29, the Office for Budget Responsibility has estimated.

The SNP, which already has responsibility for providing some benefits, wants all social security powers to be devolved to the Scottish government.

Other SNP policies that could be of interest to some disabled people are a pledge to push for reforms to statutory sick pay so it is available to lower-paid workers and no longer has a four-day waiting-period, and to work with the UK government to ensure an effective compensation scheme for victims of the infected blood scandal.

The party also promises to push for disabled veterans with a war disablement pension to be exempt from an assessment of their income if they need social care, as already happens in Scotland.

An SNP spokesperson said this morning (Thursday): “Given the devolved nature of much of disability policy, it’s important to note that the SNP is not standing to be the next UK government.

Our 2021 manifesto [for the Scottish parliament elections], where we were standing for government, included a whole manifesto for people with disabilities.”

Marion Fellows, the SNP candidate for Motherwell, Wishaw and Carluke, had said earlier: “In the face of continued Westminster austerity promised by a future Labour or Tory government, the SNP is committed to advocating for and supporting people with disabilities to ensure they reach their full potential – as our SNP MPs in Westminster have consistently championed.

As announced in the SNP’s manifesto this week, people with disabilities would be among those eligible to benefit from a statutory social benefit tariff for their energy, broadband and mobile charges – supporting them with the cost of living and easing financial burdens.”

20 June 2024

 

 

Plaid Cymru calls for implementation of UN disability convention into UK law

Although Plaid Cymru’s manifesto contains just seven explicit mentions of disability in 72 pages, some of those policies would provide significant new rights for disabled people.

A key pledge in the manifesto is that Plaid Cymru would push to implement the UN Convention on the Rights of Persons with Disabilities into UK law.

It promises to do this by working with the UN committee on the rights of persons with disabilities, disabled people’s organisations, disability charities and disabled people.

Such a policy, it says, would secure dignity, human rights and fundamental freedoms for disabled people, as well as freedom from “poverty, social exclusion, discrimination, and negligence”.

The policy creates a sharp contrast with Labour, which has provoked widespread anger and frustration among disabled people after dropping its previous pledge to implement the UN convention (see separate story).

The Liberal Democrats have also promised to implement the UN convention in their election manifesto.

Plaid Cymru promises to create a National Care Service for Wales, and to “work towards” the goal of an end to care charges.

On social security, it says there should be a “Welsh benefits system”, with a “particularly strong case” for devolving benefits such as those linked to health and housing as they are “most closely aligned to existing devolved policy areas”.

The manifesto also stresses that the party opposes Conservative proposals to tighten the work capability assessment and measures announced last year through the UK government’s Back to Work Plan.

Plaid Cymru says this plan “again appears to blame people for being unwell and unable to work as they would wish to do so” and that it rejects “the discourse of blaming people for the circumstances in which they find themselves”.

On housing, the party points to the huge unmet demand for “bungalows for an ageing population”, although it fails to refer to similar levels of unmet demand for accessible housing for working-age disabled people.

But it says it would address the failure of developers to “build houses that answer community needs” by reforming the planning system “so that it is consistent with local needs and aspirations, rather than reflecting the interests of developers”.

And, it says, it would provide “funding packages to assist local government to robustly enforce planning decisions ensuring that developers stick to agreements”.

On criminal justice, Plaid Cymru says it would provide “better support” for the many people with ADHD in the prison system, and when they leave prison, which includes “training for all prison staff in ADHD awareness and appropriate medication care plans”, as well as ensuring access to safe housing, and local mental health and probation support.

20 June 2024

 

 

Disabled election candidates: The SNP’s Kim Marshall

Kim Marshall decided to stand in the general election because she has already spent most of her life speaking up for those who cannot speak up for themselves, and teaching others how to do that.

Although she knows her first duty, if elected, would be to the voters of Dumfriesshire, Clydesdale and Tweeddale, she also knows that disabled people need MPs who can put their case for them at Westminster.

She watched the 2010 Conservative-Liberal Democrat coalition’s “active attack on disabled people” and the “dismal” record of successive Conservative-led governments at Westminster who have made disabled people “scapegoats for austerity”.

But the incident that really politicised her took place, she says, on 26 October 2020, the day before her husband began chemotherapy.

It was, she says, “the day that the police knocked on the door to tell us that they’d found a body at our son’s flat.

He’d taken his life. He’d had mental health issues, but no one knew they were that bad.

I couldn’t stand by and let other parents go through what we went through.” 

She says that so many of the circumstances around coping with death during the pandemic, with her husband being clinically extremely vulnerable to the virus – they were living in Hertfordshire at the time – had made that time difficult.

But there were two “really pernicious things” that made it worse: a law that allows a landlord to enforce the rent on a property after the tenant has died, and the coroner taking three years to reach a verdict.

She also points to the apparent failure to offer her son – who lived in Cheshire – the treatment he needed before his death.

Asked to choose three policies that she believes would improve the lives of disabled people, Marshall says she would scrap benefit sanctions for all disabled people; stop service-providers “paying lip service” to their legal duties to make reasonable adjustments for disabled people; and incorporate the UN Convention on the Rights of Persons with Disabilities into UK law.

She says the SNP is a better prospect for disabled people than other parties because her party has “walked the walk” in Scotland.

She highlights the Scottish government’s introduction of adult disability payment to replace personal independence payment, where claimants “are treated with dignity and respect rather than being set up to fail”.

She also points to Scotland’s introduction of free personal care; higher pay for care workers; and funding from the Scottish government to mitigate the impact of the “iniquitous” bedroom tax, which “disproportionately affects disabled people”.

And she points to its different approach to mental health than in England.

The Tories don’t understand that mental health issues can be incredibly debilitating,” she says.

Their manifesto suggests that forcing people into the workforce is the answer while ignoring that a toxic workplace could have been the problem.

The Labour manifesto appears to be taking the same approach: work solves everything. It doesn’t.”

Marshall had an unhappy childhood in England, with an abusive, alcoholic father and her parents divorcing when she was seven.

She remembers rarely wearing anything but second-hand clothes, being bullied at school because her mum could not afford to buy her both a blazer and a coat, and having to fight her mum “tooth and claw to be able to go to university, as it wasn’t for people like us”.

After gaining a masters in law, she spent most of her career teaching law in England and Scotland, eventually being made redundant because of her employer’s failure to make reasonable adjustments for her “multiplicity of hidden disabilities”, before working as a policy officer and a manager at the Ministry of Justice in London.

She originally joined the SNP as a member of its London branch “after despairing of the chaos of politics in England and the stupidity of Brexit” and is now studying for a PhD at the University of Glasgow, researching the effectiveness of disability discrimination law.

She says she has “always been a political animal” and for years has been “quietly, subversively teaching law to show that it could change lives”.

As an expert in disability discrimination law, she has seen how the Disability Discrimination Act and the Equality Act failed to really improve the lives of disabled people, and after 2010 “things actually got much worse”.

The last Labour government’s decision to set up the Equality and Human Rights Commission (EHRC), which took over the functions of the old Disability Rights Commission in 2007, was also “a retrograde step”.

Previously we’d had a very distinct voice and a positive strategy to get legal precedents. That just seemed to evaporate with the EHRC,” she says.

The EHRC itself doesn’t seem to understand that disability is different.”

She had tried before to win selection to stand at a general election – for Labour – but was rejected after being told she failed to maintain enough eye contact, something she finds incredibly difficult because she is neurodivergent.

Marshall says that life for disabled people today, at least in England, is “much worse” than it was in 2010, as they are “demonised, humiliated, blamed for the failing of the economy”.

She says: “I went to the Paralympics in 2012 and it was wonderful. I thought, ‘We get it. Things will change for the better.’

But they haven’t. And it’s why people like me are standing. To make a difference.”

*This is part of a pre-election series of articles that will give some of the disabled people standing as candidates at the general election a chance to describe why they wanted to stand, how they became politicised, and the kind of barriers they have faced as disabled people. The aim is to raise the profile of some of the disabled people seeking elected office. DNS has analysed party manifesto commitments separately

20 June 2024

 

 

Disabled election candidates: Liberal Democrat Richard Whelan

Life for disabled people is hard, and getting harder, and they feel “constantly under attack”, according to Liberal Democrat election candidate Richard Whelan.

One of his priorities, if elected, would be to ensure that the Equality Act 2010 is properly enforced.

Too many employers pay “lip service” to equality laws, he said, and he pointed to his own experiences as evidence.

At the age of 47, he has always struggled to secure permanent employment.

Having initially made “no progress” at a special school, his parents – both doctors – sent him to a mainstream prep school where he “began to thrive academically”.

He eventually attended university, leaving with a good degree (a 2:1) in international relations and politics.

But his degree has not led to a permanent job.

Many employers still see disabled people as “burdens” who are “perceived as not as good” as non-disabled people, he said.

He added: “I know as much because in feedback to failed interviews they admit such sentiments directly to my face.

There are still far too many instances of disabled people both struggling to find work, and when they do, struggle in the role they’ve been appointed to, because they do not have the adequate support they need to succeed.”

It is these widespread negative attitudes to disabled people that have politicised him as a disabled person, he said.

Whelan is standing in Basingstoke, where one of his opponents will be the Conservative former minister for disabled people, Maria Miller.

He said the current government’s record on disability is “abysmal”.

You do not threaten to take benefits off disabled people and force them back to work without adequate support provision to ensure they can work in the first place.

Support provision for disabled people in general leaves a lot to be desired and the Conservatives neither understand, nor can adequately address, the hopes and desires of disabled people in today’s Britain.”

Asked why his party, the Liberal Democrats, have more to offer disabled voters at the general election than other parties, he points to their pledge to provide free personal care to all adults whose needs are seen as eligible for council-funded support.

He said: “This would save a disabled person a considerable amount of money and ensure that their personal care is guaranteed.

Whilst not sufficient, it is at least a start and a strong platform on which to build in future years.”

Another priority, if elected, is to push for reform of the disability benefits system.

He wants to “actively promote the need for disabled people to have control over their own lives and not have this determined by others”.

Whelan said he wants to see a new system that would enable a disabled person to employ a team of “all-encompassing personal assistants” who would provide support with all aspects of their life, including personal care and administrative support in the workplace, with this integration allowing disabled people to live “an independent life where the home is only one of the settings they need support in”.

He said: “Life for disabled people in today’s Britain, compared to when the Conservatives came to power in 2010, is hard, and getting harder, as benefit changes, such as the introduction of personal independence payment, which replaced the old disability living allowance, is removing support that disabled people once took for granted.”

He points to those with fluctuating conditions often having their benefits removed “because it is assumed they can do an activity that in reality they can only do occasionally”, while those with conditions that will never change face the “constant need for five-yearly reviews”, which causes “unnecessary worry and doubt”, while they have to wait months for a decision.

He said: “There has to be a more compassionate approach to these matters that treats disabled people as the individuals they are and gives them the support they need to live independent lives.

Because, as things stand, disabled people feel consistently under attack, fearful they will not get the support they need to live, with any support they do have under constant threat of being withdrawn.”

Whelan said he also wants to see an emphasis on improving access, particularly from owners and managers who hide behind a building’s listed building status.

He said he wanted to stand for parliament so he could be “a role model for other disabled people and offer them hope that they can fulfil their dreams if they set their mind to it”.

*This is part of a pre-election series of articles that will give some of the disabled people standing as candidates at the general election a chance to describe why they wanted to stand, how they became politicised, and the kind of barriers they have faced as disabled people. The aim is to raise the profile of some of the disabled people seeking elected office. DNS has analysed party manifesto commitments separately

20 June 2024

 

 

Disabled election candidates: The Green Party’s Mags Lewis

The current political system is not designed for disabled people’s inclusion, according to general election candidate Mags Lewis, which is why she is determined to stand and “be seen to stand” at this general election as a visibly disabled woman.

Lewis believes it was a “crime” that a fund introduced to support disabled election candidates, the Access to Elected Office Fund (AEOF), and its replacement, were both scrapped by successive Conservative governments, which have “paid lip service to our involvement”.

But she also points to the continuing failure to allow election candidates from the same party to job share, another measure which would “genuinely help with inclusion and accessibility”. 

Having AEOF still open would have allowed her to pay for the extra disability-related costs she will face during the election campaign.

Funding for a support worker to knock on doors for her would be a “game changer” and for disabled people representing other smaller political parties, she said.

As a disabled person who struggles to walk far, they could leaflet drop for me, or knock on doors and ask if that person would like to meet the candidate.

This would spare me knocking on ten doors before I get to someone who wants to chat. I could then engage and tell voters about my candidacy.

It is all about conserving energy for me, so that would be incredible.”

She said such a fund would support democracy and “encourage so many people to be able to stand if they didn’t feel they were going to be a drain on hard-pressed volunteers” or parties that were not well-funded.

Asked for an incident that politicised her as a disabled person, she remembers “almost wetting myself because the local public toilets were shut, and I realised just what a prisoner I was without decent public services”.

It is an issue she has campaigned on locally – as someone who needs to know which toilets are open, because of her MS – ever since she was told the toilets at her local library were closed because “the council had gone with the cheapest quote, but the parts were only available from Germany”.

She said: “It’s not fashionable, but dignity and access to loos is a political issue.”

As well as dedicating much of her time to the Green Party, Lewis describes herself as “a 52-year-old busy mother with MS, and a disabled activist”.

Her professional background was in NHS management, which “gave me an insight into the damage the private market and private profit are doing to our NHS” before she had to take ill-health retirement 10 years ago.

Lewis, who is standing for the party in Leicester East, described the current government’s record on disability as “abysmal”, characterised by “harsh benefit sanctions”, a “lack of curiosity or understanding of the disabled community and what we can actually offer”, and “hostility” towards disabled people.

She said there has been “a consistent and dedicated onslaught on our benefits, on systems and schemes to help us into work”, as well as a “hardening of public opinion, encouraged by government rhetoric”.

The Conservatives, she said, have encouraged a “culture of fear” with their benefit reforms, through sanctions, “stressful and demeaning” assessments – which are “run for profit” – and often-repeated suggestions “that disabled people are workshy”.

She also highlights lengthy NHS waiting-lists, particularly in mental health, cuts to bus services, and failings on accessible housing.

She contrasts that record with the many disability-friendly policies in the Green manifesto, but particularly the five per cent uplift to disability benefits; her party’s call for an end to “intrusive” disability benefit assessments; and the pledge to provide free transport for all 16-18-year-old students with special educational needs and disabilities (SEND).

The free transport policy shows “in a snapshot”, she said, “how changing legislative words for councils from ‘should’ to ‘must’ provide SEND transport can have a massive impact on children with SEND”.

The policy would help “hard-pressed” families “just a bit” and “show we value the education of 16-18 disabled kids”. 

She hopes that her party’s “comprehensive plan” on disability, which includes free personal care for adults, as well as its “targeted support for carers and children”, plans to bring essential services back into public ownership, to “save our NHS” and to provide “proper accessible housing”, will put it ahead of other parties when appealing to disabled voters.

The climate crisis will impact “vulnerable” and disabled people “more than anyone”, she said, so “we have to do much more to help disabled people in this country and around the world”.

*This is part of a pre-election series of articles that will give some of the disabled people standing as candidates at the general election a chance to describe why they wanted to stand, how they became politicised, and the kind of barriers they have faced as disabled people. The aim is to raise the profile of some of the disabled people seeking elected office. DNS has analysed party manifesto commitments separately

20 June 2024

 

 

Other disability-related stories covered by mainstream media this week

Hundreds of thousands of disabled residents in high-rise buildings are at risk without evacuation plans, firefighters have warned, seven years on from the Grenfell Tower fire. The Fire Brigades Union and Disability Rights UK said the government’s failure to implement evacuation plans for “vulnerable” residents, one of the main recommendations from the first-phase report of the Grenfell Tower Inquiry, meant “disabled people will continue to face unnecessary and avoidable danger and/or death”: https://www.theguardian.com/society/article/2024/jun/13/disabled-high-rise-residents-still-at-risk-seven-years-after-grenfell-fire

The number of children and young people in England requiring support for special educational needs and disabilities has increased sharply, according to new data. Local authorities issued 84,400 education, health and care plans last year, according to figures released by the Department for Education, a 26 per cent increase compared with 2022: https://www.theguardian.com/education/article/2024/jun/13/record-number-of-pupils-have-special-needs-support-plan-in-england

A senior staff member at an independent special school has been recorded by BBC Panorama saying he wanted to drown a pupil in a bath “like a kitten”. An undercover reporter spent almost seven weeks at Life Wirral in Wallasey and witnessed staff using offensive language to mock pupils for their neurodiversity or learning difficulties, as well as manhandling them into dangerous headlocks: https://www.bbc.co.uk/news/articles/cp6643jd8nwo

A disability rights campaigner has said she is disappointed with a decision to grant Uber a licence to operate private hire cars in York again after a six-year ban. City of York Council’s licensing committee voted last week to approve a new application by the online ride-hailing firm to operate there. But disabled campaigner Flick Williams said Uber had been “quite clear that if they were granted a licence there would be no option to book a wheelchair accessible taxi”: https://www.bbc.co.uk/news/articles/c0jj9135zypo

Complaints against three councillors for their views on special educational needs and disabilities (SEND) have been dismissed. An investigation took place into hundreds of complaints over contributions to a Warwickshire County Council scrutiny panel debate in January. Jeff Morgan, Brian Hammersley and Clare Golby have all been cleared of breaching the authority’s code of conduct: https://www.bbc.co.uk/news/articles/cv220q9r14no

A man who is registered blind is seeking a £112,000 payout after being sacked during his probation period at a bakery. An employment tribunal found that not enough was done by bosses at The Village Bakery in Coedpoeth, Wrexham, to accommodate Ian Stanley and help him adjust to his role: https://www.bbc.co.uk/news/articles/cy662dzz7v0o

20 June 2024

 

News provided by John Pring at www.disabilitynewsservice.com

 Posted by at 13:15
Jun 132024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

 

Caxton House cover-up: How DWP destroyed files and prevented investigation into claimant’s suicide

Official documents link two former Conservative work and pensions ministers – including would-be party leader Penny Mordaunt – to a government cover-up of how a disabled man took his own life after being wrongly found fit for work.

The email and letter are part of a huge quantity of documents relating to the death of Michael O’Sullivan that have been drawn together over the last decade by his family.

They show that senior civil servants at the Department for Work and Pensions (DWP) destroyed vital documents about his case – in breach of the department’s own rules – months after a coroner linked his death with DWP’s “fitness for work” test.

The decision, taken some time in 2014 – probably 14 months after his suicide in September 2013 – meant DWP was not able to carry out an in-depth investigation into the circumstances around his death, known at the time as a peer review.

Most of his records were destroyed even though a coroner had concluded earlier that year – in a ground-breaking ruling that later received significant media coverage – that the “intense anxiety” that triggered his suicide had been caused by his being found fit for work by DWP following a work capability assessment (WCA).

The coroner, Mary Hassell, had sent a prevention of future deaths (PFD) report (PDF) to the department on 13 January 2014, warning that “action should be taken to prevent future deaths” following his suicide.

DWP guidance at the time said that all records relating to a claimant suicide should be kept for six years, but the department later told the family that most of the paperwork connected to his various benefit claims was instead destroyed in 2014.

Disability News Service (DNS) has established through freedom of information requests to the department that this guidance was in place from April 2013 all the way through until at least December 2016.

An internal DWP email obtained by the O’Sullivan family, which was sent on 5 February 2014, shows that the minister for disabled people at the time, Mike Penning, was told about the coroner’s PFD report.

This email was sent by DWP’s then head of assessment policy to Penning, as well as to two DWP press officers and two DWP lawyers.

But despite DWP being sent the coroner’s PFD report, and Penning being informed about the inquest’s findings, civil servants later claimed they had destroyed many of the records relating to Michael O’Sullivan’s case at some point in 2014.

This would have been a clear breach of the department’s guidance on retaining records relating to a claimant who had taken their own life.

Penning has told DNS he knew nothing about the records being destroyed. DWP has refused to comment.

Three years after the internal email was sent, in March 2017, the then minister for disabled people, Penny Mordaunt – now leader of the House of Commons – told the O’Sullivan family in a letter that a peer review into the death had not been carried out because “much of the documentation” had “been destroyed” in accordance with DWP’s “records management policy”.

She said that this policy stated that “most benefit records are destroyed fourteen months after a claimant’s death”.

But Mordaunt failed to tell the family that DWP’s Benefits Document and Data Retention Guide, in place at the time Michael O’Sullivan died, stated that documents relating to claimant suicides should be kept for at least six years.

A copy of this guidance was provided to the family the following year by Mordaunt’s successor as minister for disabled people, Sarah Newton.

The guidance stated: “All documents relating to suicide and self-harm should be retained for 6 years following the date on which the incident occurred or the declaration of intention was made.”

Peer reviews – later renamed internal process reviews – were internal investigations into deaths and other serious cases linked to DWP’s actions, and were never published or even shared with families, but departmental guidance stated at the time: “Where suicide is associated with DWP activity, a Peer Review must be undertaken.”

Mordaunt, a leading contender to be the next leader of the Conservative party, told the family that the team that “prepared the Department’s response to the Coroner” had been “unaware” of the peer review procedure.

She wrote in the letter: “By the time the relevant team was made aware, much of the documentation relating to your father’s claim had been destroyed in accordance with the Department’s records management policy…

As a result, the Department was therefore unable to carry out [a peer review].”

But the internal DWP email that was sent on 5 February 2014 shows that the response to the coroner’s PFD report was prepared by DWP’s work capability assessment policy team.

This key policy team should have been aware of the peer review procedure because previous DNS investigations have shown that at least seven peer reviews that mentioned the WCA were carried out during 2012 and there were certain to have been others during 2013 and 2014.

Mordaunt has so far failed to comment on the letter and the destruction of Michael O’Sullivan’s records.

DNS has previously established that DWP failed to pass the PFD report to Paul Litchfield, who in 2014 was carrying out the fifth and final independent review of the WCA for the department.

DWP published Litchfield’s review in November 2014, but it made no mention of the coroner’s letter, or the peer reviews into claimant deaths that had mentioned the WCA.

Following intervention from the Information Commissioner’s Office, DWP finally admitted in 2019 that the peer reviews and two PFDs written by coroners, including the report written following Michael O’Sullivan’s death, were not shared with Litchfield.

DNS has also established that the other PFD, and the earlier peer reviews, were not shared with Professor Malcolm Harrington, who carried out the first three reviews of the WCA in 2010, 2011 and 2012.

DNS has approached Penning, Mordaunt and DWP about the department’s claims that the records were destroyed, although the O’Sullivan family still believes DWP has kept copies of all the documents.

In a letter sent to DNS, Penning, who is standing down as an MP at this election, said: “You are asking about the destruction of records relating to a Mr Michael O’Sullivan which, apparently, happened when I was a Minister at the Department for Work and Pensions.

As you will appreciate, I do not know anything about this as Ministers are not involved in the day-to-day operational running of their Department or individual case management.

I have passed your message to the Permanent Secretary of the Department for Works and Pensions.”

DNS asked Penning if he remembered the Michael O’Sullivan case, the inquest and the PFD report, but he had not responded further by 11am today (Thursday).

DNS first approached Mordaunt’s office about the allegations late last month.

For nearly two weeks, Mordaunt’s spokesperson – former Conservative councillor Alistair Thompson, who runs PR company Team Britannia PR – repeatedly told DNS that he would speak to her about the claims, but then failed to produce a comment.

He eventually claimed on Tuesday this week that he had “been unable to speak to Penny about this matter”.

DWP has been shown the email that was sent to Penning in 2014 and the letter from Mordaunt in 2017, and copies of its own guidance on destroying records.

After six days, a spokesperson replied: “Thanks for giving us the opportunity for right of reply. We won’t be commenting on this at this time.”

It declined to explain why the records were destroyed in breach of its own guidance, why the WCA policy team was – according to Penny Mordaunt – not aware of the existence of the peer review process in early 2014, and why Mordaunt told the O’Sullivan family that the records had been destroyed in line with departmental guidance, when that was not correct.

DWP also declined to comment on Penning’s actions.

DNS reported earlier this year how the O’Sullivans had concluded beyond any doubt – following their decade-long investigation – that DWP was responsible for their father’s death.

They told the Commons work and pensions committee – which had to abandon its inquiry into how DWP safeguards “vulnerable” benefit claimants when the general election was called by Rishi Sunak – that the government must impose a “clear and defined” statutory duty of care on the department.

They believe this is the only way to protect the lives of claimants in vulnerable situations, such as their father.

But they also want to see an independent inquiry into how the actions and failings of DWP can be linked to Michael O’Sullivan’s suicide and countless other deaths of disabled people.

They believe that their evidence of how DWP breached its own guidance by destroying their father’s documents – if that is what happened – adds significant weight to calls for an inquiry.

The proof that DWP admitted destroying vital documents relating to Michael O’Sullivan’s death, despite this breaching its own guidance, adds to years of evidence of systemic negligence by the department, a culture of cover-up and denial, and a refusal to accept that it has a duty of care to those disabled people claiming support through the social security system.

The abandoned inquiry by the Commons work and pensions select committee into DWP safeguarding had been examining whether there should be such a duty of care.

It is now more than 10 years since Mary Hassell concluded that the “intense anxiety” that triggered Michael O’Sullivan’s suicide had been caused by his being found fit for work by DWP following a WCA.

She found that both DWP and its private sector contractor Atos had failed to seek medical evidence about his mental health from his doctor, his psychiatrist and his clinical psychologist.

He was found fit for work, despite a suicide attempt months earlier when he had been forced into work-related activity after an earlier WCA that lasted just 12 minutes.

His case was twice mentioned at prime minister’s questions in 2015, after the PFD report was unearthed by DNS.

The family have now spent more than a decade fighting for justice and to discover the truth about Michael O’Sullivan’s death.

A spokesperson for the family said: “Ten years ago, the O’Sullivan family decided to bring about a forensic and detailed complaint to the DWP to demonstrate what had gone so tragically wrong in their father’s case so real lessons could be learned.

They did this to prevent future harm and to prevent other families having to endure the severe trauma they have sadly experienced.

Their complaint was originally delivered to then prime minister Theresa May, who assigned the DWP with responding on her behalf to the significant grounds of complaint.

Ten years on, many of the issues raised with the DWP go unanswered.

The family has faced hostility and obfuscation, yet they remain resolute in their determination to get the department to accept their wrongs, which has come at great expense to the family in every respect.

It is devastating for the O’Sullivan family to conclude that the DWP have always known exactly what their systemic failures were in regard to their assessment process but rather than engaging with the family in safely evaluating the WCA it appears those in authority have engaged in a cover up which has caused great harm to the most vulnerable in our society and to their father, who paid the ultimate price.”

*The Department, DNS editor John Pring’s book on DWP and how its actions led to countless deaths of disabled people in the post-2010 era, will be published by Pluto Press on 20 August. Visit the DNS website before publication for a 50 per cent discount 

13 June 2024

 

 

Statements by Sunak and Stride on disability benefits were potentially misleading, says stats regulator

Three statements made by government ministers on disability benefits – including one by Rishi Sunak – have been found to be potentially misleading by the UK statistics regulator.

Of the three misleading statements, one of them was made by the prime minister, while the other two were made by work and pensions secretary Mel Stride.

Just days after the Office for Statistics Regulation (OSR) delivered its findings, the Conservatives repeated Sunak’s misleading statement – although slightly altering the wording – in its general election manifesto.

The first of the three complaints dealt with by OSR was lodged in March by Disability News Service (DNS) about Sunak’s repeated claims that the number of disabled people being found not fit for work had trebled since 2011.

OSR has also responded to complaints (not made by DNS) about two comments made by Stride in the last few months.

The first of Stride’s comments was that 94 per cent of people who report feeling “down and bluesy” to their doctor are being signed off as not fit to work, and the second was that recipients of personal independence payment (PIP) receive thousands of pounds a month.

OSR told DNS this week that it had concluded that “all three statements had the potential to mislead”.

The Conservative manifesto this week ignored the OSR ruling and used one of the misleading statements to justify its claim that there had been an “unsustainable rise in benefit claims” by working-age disabled people.

It also ignored repeated statements by health experts that a key reason for an increase in claimants was a significant increase in ill-health, and in NHS waiting-lists.

Matthew Taylor, chief executive of the NHS Confederation, said this week – in response to the party’s manifesto – that “people are sicker than they were, with more complex healthcare needs”.

The Conservative party had not commented on the OSR rulings by 11am today (Thursday).

Those rulings came just a day after the regulator made a similar ruling on misleading Conservative claims about Labour’s tax plans.

The prime minister first used the fitness for work figures in his main Conservative party conference speech last October.

He repeated them in March in an interview with the Sunday Times.

And he repeated them again in a major speech on social security at the Centre for Social Justice in April.

Sunak said in April: “In 2011, 20 per cent of those doing a work capability assessment were deemed unfit to work.

But the latest figure now stands at 65 per cent. That’s wrong.

People are not three times sicker than they were a decade ago.”

DNS has repeatedly pointed out that the 2011 figures reflected the particular harshness of the work capability assessment in its early years, before its most serious flaws were exposed.

It took years of research and activism by disabled people and allies to reveal the links between the WCA and hundreds, and probably thousands, of deaths of claimants, and to force DWP ministers to ease the harshness of the assessment.

There were also five independent reviews of the WCA commissioned by DWP, which led to multiple improvements to the assessment.

These factors eventually made it less arduous to qualify for the employment and support allowance support group and avoid work-related conditions for those not fit for work, although the assessment process is still deeply-flawed and continues to be linked to serious harm and deaths of claimants.

OSR has now concluded that Sunak’s comparison “does not reflect the complexities of the data or take account of any changes to the benefit system or the criteria for allocating to this group”.

The second complaint related to comments made by Stride in an interview with the Telegraph in March.

In the interview, he said some people were now “convincing themselves they have some kind of serious mental health condition as opposed to the normal anxieties of life”.

Stride added: “If they go to the doctor and say ‘I’m feeling rather down and bluesy’, the doctor will give them on average about seven minutes and then, on 94 per cent of occasions, they will be signed off as not fit to carry out any work whatsoever.”

But OSR said: “The reasons for granting fit notes are varied.

While there are no statistics specifically on those who report feeling down and bluesy, nor those struggling with poor mental health, the NHS England’s statistics between October 2022 and September 2023 show that 37 per cent of fit notes with a valid diagnosis recorded were issued for closest available category of ‘mental and behavioral disorders’.”

It also pointed out that 74 per cent of fit notes issued between October 2022 and September 2023 “do not have a diagnosis recorded in the data so we can’t tell why they were issued”, while only electronic fit notes are included within the data.

And it added: “There is also no data available on occasions when patients may request a fit note and are not issued with one.”

The third complaint related to Stride claiming in a BBC interview – on the day he launched a new green paper that described plans to reform PIP to ensure it is “targeted at those most in need” – that PIP claimants received “thousands of pounds a month”.

OSR said the maximum a PIP claimant could receive was actually £184.30 a week, or an average of just under £800 a month.

The regulator concluded: “Those who receive PIP do not receive thousands of pounds a month.”

13 June 2024

 

 

Conservative manifesto is empty of new policies aimed at improving lives of disabled voters

The Conservative party has published a general election manifesto without a single new policy aimed at improving the lives of disabled people.

Analysis by Disability News Service of the manifesto shows that the few policies targeted at disabled voters are existing government pledges, or extensions of current schemes.

The manifesto also includes a statement – in a section that targets disabled benefit claimants – that was found, in a slightly different form, to be potentially misleading by the UK statistics watchdog just days earlier.

The party had not said by 11am today (Thursday) why it ignored the ruling by the Office for Statistics Regulation.

A significant chunk of the manifesto is devoted to explaining how a Conservative government would cut spending on disability benefits to put it “on a sustainable footing”, as part of £12 billion a year in cuts to spending on social security by 2029-30 (PDF).

These benefit-related policies have all previously been announced over the last year.

A key policy would cut spending on personal independence payment (PIP), although there is no suggestion of which measures in April’s PIP green paper the party would introduce, as a public consultation is ongoing.

The Conservatives also promise to tighten the work capability assessment, “overhaul the fit note process” and accelerate the universal credit rollout, all of which ministers have previously announced.

The manifesto says: “People are now three times more likely to be assessed as not fit for any work and put on the highest tier of sickness benefits than they were a decade ago.”

Four days before the manifesto was published, the Office for Statistics Regulation concluded that a similarly-worded statement was potentially misleading (see separate story), but the party appears to have ignored the regulator, other than slightly tweaking the wording.

A day after its publication, the Public and Commercial Services Union warned in its own general election charter that universal credit was “a dangerously flawed system, the most vulnerable continue to slip through its cracks and our members are the scapegoats for over a decade of social security failures”.

Ther is no mention in the manifesto of how a Conservative government would address these flaws, or the wider safeguarding issues within DWP that have led to hundreds, and probably thousands, of deaths being linked to its actions over the last 14 years.

The manifesto also promises “tougher sanctions rules” and a fraud bill that will give DWP fraud investigators new powers.

DWP has previously said it wants its investigators to be able to make arrests, conduct searches and seize possessions, allowing the department “to control the end-to-end investigation in the most serious criminal cases, applying for the warrants, leading the operation and searching and seizing evidence”.

The manifesto also refers to the party’s pledge to create 60,000 more places in special schools, a promise referred to earlier this year by education secretary Gillian Keegan and also mentioned by the government in March.

Disabled activists warned last month that the government’s policy of opening more and more segregated special schools was stripping funding from mainstream settings and handing it to profit-making bodies.

On social care, the party promises only a “multi-year funding settlement to support social care” at the next spending review, and it repeats its delayed pledge to implement a cap on care charging costs from October 2025.

On disability employment, there is a promise to increase the capacity of the existing individual placement and support programme – which provides intensive, individual support in the workplace for people with “severe mental health conditions” – by 140,000 places.

The Conservatives also promise to pass a new law “to provide better treatment and support for severe mental health needs in the first session of the next parliament”, which appears to refer to the draft mental health bill the government dropped from its legislative programme last year.

Many of the other disability policies in the manifesto are either too vague to analyse or refer to measures already introduced, such as a pledge to “continue to modernise autism and learning disability services”, and to “improve accessibility at 100 train stations, starting with the 50 stations announced in May”, which refers to the long-standing Access for All station improvement programme.

And there is nothing in the manifesto about how a Conservative government would address the accessible housing crisis, even though the government consulted on raising accessibility standards of new homes four years ago.

The absence of any policy on accessible housing suggests the party has been pressured by the housebuilding lobby to drop its long-delayed plans.

One of the few potentially positive disability-related policies in the manifesto is to “give councils the power to ban pavement parking, provided they engage with businesses and residents to ensure they are not adversely affected”.

But this comes four years after the government consulted on such a ban, with the last update issued 12 months ago, when the Department for Transport said it was “evaluating the feedback we received and will provide further information in due course”.

There are also two other disability-related measures that were included in the government’s much-criticised Disability Action Plan, which was published in February.

One is to improve support for disabled people who use guide or assistance dogs, and the other is to “explore” whether it could bid to host the 2031 Special Olympics.

Despite the absence of new policies in the manifesto to address the barriers faced by disabled people, the party insists in the document that its ambition “is to make this country the most accessible place in the world for people with disabilities to live, work and thrive”.

13 June 2024

 

 

Lib Dem manifesto targets care charges, and promises to implement UN disability convention

The Liberal Democrats have devoted a significant part of their manifesto to reforming adult social care and supporting independent living, but they have also pledged to implement the UN disability convention into law if they win power at the election.

The pledge to implement the UN Convention on the Rights of Persons with Disabilities (UNCRPD) into UK law could potentially see them challenging Labour for the votes of some disabled activists, after Labour admitted last year it had dropped its own promise to implement the treaty.

The Liberal Democrats have also promised to scrap the bedroom tax, replace benefit sanctions with an “incentive-based scheme” to help people into work, and end the outsourcing of work capability assessments, as well as give disabled people “a stronger voice in the design of benefits policies and processes”.

But there are gaps in the manifesto, with no measures on disability hate crime, nothing to tackle the accessible housing crisis, and nothing on accessible public transport other than continuing to fund the Access for All station improvement programme.

There is also no mention of the continuing safeguarding concerns about the Department for Work and Pensions (DWP), particularly relating to universal credit, and no mention of calls from disabled people and bereaved relatives for an independent inquiry into the years of deaths linked to DWP’s actions.

A day after its publication, the Public and Commercial Services Union warned in its own general election charter that universal credit was “a dangerously flawed system, the most vulnerable continue to slip through its cracks and our members are the scapegoats for over a decade of social security failures”.

Another policy likely to concern many disabled activists sees the party signalling its continuing support for legalising assisted suicide – party policy since 2004 – by giving parliament time to debate and vote on legislation, with a free vote for its MPs.

On social care, the Liberal Democrats say they would “forge a new consensus” on funding by setting up a “cross-party commission” to develop “a long-term agreement on sustainable funding for social care”.

As announced last week, the party would offer free personal care to all adults whose needs are seen as eligible for council-funded support.

It also plans to trial “personal health and social care budgets so that individuals are in control of what care they receive”, although it had not clarified by 11am today (Thursday) what this would mean.

It promises to set up an Independent Living Taskforce that would “help people live independently in their own homes”, although again it has provided no further details.

And it says it would enable disabled people to transfer their care package to another local authority “so they don’t feel stuck in their current locality due to their care needs”.

Among its measures on social security, the party would “repair the broken benefits safety net” by scrapping sanctions and the bedroom tax and reducing the wait for the first payment of universal credit from five weeks to five days.

It plans to replace benefit sanctions with a new “incentive-based” scheme, although it has yet to provide any further information on how this might work.

It also promises to reform the personal independence payment (PIP) system, making assessments “more transparent” and stopping “unnecessary reassessments”, but it stopped short of calling for an end to the outsourcing of PIP assessments to companies like Maximus, Serco and Capita.

The manifesto includes a series of policies aimed at making it easier for disabled people to access public life.

As well as implementing UNCRPD, a Liberal Democrat government would bring in new accessibility standards for public spaces, although it has yet to explain how this would work.

It would also introduce “a targeted strategy to support disabled people into work”; raise awareness of, and improve, the Access to Work scheme; and increase the use of British Sign Language in government communications.

And there would be a new right to flexible working, with every disabled person having the right to work from home “unless there are significant business reasons why it is not possible”.

There are a series of policies aimed at improving the rights around mental health, autism and people with learning difficulties.

A Liberal Democrat government would end “inappropriate and costly inpatient placements” for people with learning difficulties and autistic people.

It would also modernise the Mental Health Act – to “strengthen people’s rights, give them more choice and control over their treatment and prevent inappropriate detentions” – which suggests it would take on much of the present government’s discarded draft mental health bill.

It also promises to widen the current safety investigation into mental health hospitals to examine “the whole patient experience, including ward design and treatment options”.

The manifesto says: “In decades past, the UK has led the world in advancing human rights, civil liberties and equality for women, LGBT+ people and disabled people.

But under the Conservatives, progress has stalled. They are failing to stand up to hatred and prejudice, or tackle entrenched inequalities.”

13 June 2024

 

 

Greens’ manifesto offers rise in disability benefits, free personal care and cash for inclusive education

The Green party has promised that its MPs will push for a five per cent increase in the level of disability benefits, free personal care for adults, and more money to support disabled children in mainstream schools.

The party’s manifesto, published yesterday (Wednesday), promises that any elected Green MPs will push for policies that ensure disabled people can live “full, meaningful lives, can work if they choose, and access the help and support they need”.

But despite a series of promises across social care – including an investment of £20 billion a year in new funding – social security, education and democracy, there is almost no detail on how the party wants these pledges to be fulfilled.

And the manifesto also makes it clear that the party continues to support legalising assisted suicide.

Only last month, disabled actor and activist Liz Carr told Disability News Service (DNS) that legalisation would be particularly dangerous for disabled people at a time when “we are absolutely removing our welfare state, and we are dismantling our incredible NHS”.

On social care, the party’s promise matches that of the Liberal Democrats by calling for an end to charges for personal care, although not for other support such as housework, shopping, laundry and engaging with the local community.

But it goes further than the Liberal Democrats by also promising “investment of £20 billion per year” in adult social care.

As spending by local authorities in England in 2022-23 was already £20.5 billion, this means Green MPs would be pushing for that to be nearly doubled.

On social security, Green MPs would push for an “immediate increase” of five per cent in disability benefits such as personal independence payment (PIP), an increase of £40 a week in universal credit and legacy benefits such as employment and support allowance, and an end to the bedroom tax.

The manifesto also calls for an end to “the unfair targeting of carers and disabled people on benefits”, as well as an end to benefit sanctions, and it says its MPs would “challenge the punitive approach to welfare claimants”.

A day after the manifesto’s publication, the Public and Commercial Services Union warned in its own general election charter that universal credit was “a dangerously flawed system, the most vulnerable continue to slip through its cracks and our members are the scapegoats for over a decade of social security failures”.

In the long term, the party says, Green MPs would push for the introduction of a universal basic income.

The party also calls for an end to “intrusive” disability benefit assessments, and says it opposes at least some of the government’s proposals for reforming PIP, particularly plans to replace cash payments with vouchers*.

On education, it would push for £5 billion to be invested in special educational needs and disabilities (SEND) provision within mainstream schools, and for free transport for all 16-18-year-old students with SEND.

It says this would mean “all schools will have fully accessible buildings and specially trained teachers, and local councils will have the funds to properly support SEND students at school and in getting to school”.

Although the manifesto says its MPs would push for a “fully inclusive” education system, it told DNS that this did not mean an end to segregated special schools, but instead it would ensure that “either option is available” as they “want to give all children the education that is right for them”.

On both housing and transport, there is almost no detail on how the party would like to address the huge barriers disabled people face in securing accessible housing and dealing with barriers to public transport.

The manifesto promises only to “champion the right to… housing under the principles of universal design”, and to push for annual public subsidies for rail and bus travel to be increased to £10 billion to make public transport “reliable, frequent, accessible [to disabled people] and affordable”.

A party spokesperson told DNS: “We are allocating large sums of money for new electric buses and investment in railway stations and other transport infrastructure. This will enable accessibility.”

The Greens say they would fund many of their policies by taxing the wealth of individuals with assets above £10 million at one per cent a year, and those with assets above £1 billion at two per cent annually.

The party says its MPs would campaign for measures “to make parliament more representative, particularly of women, people of colour and disabled people”, which could include backing job-sharing for MPs and a permanent access to elected office fund to help with the extra disability-related costs of standing for election.

The manifesto also promises that Green MPs would push for sport “to be more diverse and representative, especially for women and girls and disabled people”, and for police forces to “acknowledge the institutional racism, misogyny, homophobia and disablism that have dominated policing for so long” and “root out any officers who hold views incompatible with serving as a police officer”.

The manifesto accuses successive Conservative governments of having “undermined the limited progress made by disabled people to live dignified lives as valued members of society.

Benefits have been cut, and access to education, work and parliamentary access schemes designed to improve the inclusion of disabled people have been decimated.”

It adds: “We need to ensure that everybody can lead full, meaningful lives, can work if they choose, and access the help and support they need.

Disabled people have as much of a right to control their day-to-day lives and their long-term futures as non-disabled people.”

*This is one of a number of suggestions for possible changes to PIP mentioned in a DWP consultation document

13 June 2024

 

 

DWP quietly starts early rollout of universal credit to some ESA claimants, without telling MPs

The Department for Work and Pensions (DWP) has started telling 500 disabled people on out-of-work benefits that they must move onto universal credit, just days after a Conservative minister assured MPs no claimants would face such a move until September.

DWP has previously announced that it would begin its rollout of universal credit to the remaining claimants of employment and support allowance (ESA) and ESA with housing benefit in September.

That date was confirmed by employment minister Jo Churchill last month, when she told MPs in a written statement that this extension would not begin until September.

Churchill, who is not standing for re-election as an MP, wrote on 21 May: “Our current planning assumption is that we would begin notifying this group in September 2024, with the aim of notifying everyone to make the move by December 2025.”

But less than two weeks later, on 3 June, DWP began sending out so-called “migration notices” to about 500 ESA claimants in Wolverhampton and East Suffolk.

This was reported by the social welfare charity rightsnet.

DWP said in an email to “stakeholders”: “The purpose of this activity is to gather more learning to inform our planning for migrating these cohorts at scale in due course, with one of the key learnings we are keen to understand being what proportion of households will require support through the enhanced support journey.”

DWP had asked welfare rights advisers not to share this “operational update” publicly because it was “keen to manage any anxiety for people on ESA and don’t want to give the mistaken impression to people on ESA that we have shifted from our publicly-stated plan to start migrating people from September”.

Disabled activist Gail Ward, a long-standing member of grassroots groups Disabled People Against Cuts and Black Triangle Campaign, and founder of the Hand2MouthProject, which helps and trains those claiming universal credit on how the system works, said Churchill’s written statement had been “absolutely misleading”.

She added: “I am concerned for claimants because they are being used as guinea pigs, as usual.”

Ward said Churchill had also misled MPs by telling them DWP had “developed and tested a new ‘enhanced support’ journey for income support and employment and support allowance customers who require additional assistance”, when the email suggested this had not been completed and was still being tested.

She said: “It seems the DWP is in a shambles and needs reform, as staff are unsure of the rules as much as claimants a lot of the time.

Claimants are telling me when they ring [DWP] they get told one thing, and when the claimant questions it at a later date they get told something different by another customer service agent.”

Disability News Service (DNS) has asked Churchill to explain why DWP misled MPs about the department’s migration plans, and when it made the decision to send out the June migration notices.

She had not responded by 11am today (Thursday).

DWP was unable to comment in detail because of the rules that civil servants must follow once a general election has been called.

But it said: “We regularly undertake small scale learning activity to develop our approach ahead of plans to move large numbers of legacy benefits customers later this year.

This activity does not change or alter any previous statements on universal credit migration.”

DWP has been faced with two coroners’ reports and concerns raised by its own staff about its failure to ensure the working-age benefit system is safe for claimants in vulnerable situations.

Only last week, DNS reported how DWP and the Cabinet Office had both been unable to find a report that was supposed to describe how DWP supported “vulnerable” people who rely on universal credit.

13 June 2024

 

 

Disabled election candidates: The Green Party’s Sara Nicola Ruth

The accessible housing crisis is a key issue for Green candidate Sara Nicola Ruth* in the general election campaign, particularly as she is herself “stuck in an inaccessible home”.

Her experience with inaccessible housing convinced her that she needed to use the campaign – she is standing in Colchester, Essex – to speak out about how disabled people are often trapped in their own homes.

In her case, when she had to move home, she had little choice about where she would move.

She is now living on a narrow street that has no parking restrictions, with cars – including huge SUVs** – parked on both pavements.

She said: “Sometimes they are parked right in front of the door so there’s no way for me to leave the house with my walking frame, and when I can get out of the door, I have to walk down the middle of the street.

Life shouldn’t be like this.”

Asked to choose three policies that would improve life for disabled people in the UK, she picks three housing policies from the Disabled People’s Manifesto, drawn up by DPO Forum England.

She would like to see a requirement for all new homes to be accessible, and for 10 per cent of them to be suitable for wheelchair-users; enforceable standards to ensure good quality, well-insulated housing in the private and social rented sectors; and new rent caps, so no-one pays more than one third of their income on rent.

She characterises the current Conservative government’s record on disability as “persecution, stigmatisation, and scapegoating”.

She said: “I hear horror stories daily about how people in need are being denied essential benefits and the terrible consequences of this.

Austerity policies are a political choice and the impacts would have been well known in advance.

It’s difficult to conceptualise the scale of the cruelty with which the government has treated disabled people.”

She added: “I was a single mother in the early 1990s at a time when the Tory government was heavily scapegoating single mothers.

I would say the current stigmatising of disabled people feels very similar.”

She says the Green Party is the only party that prioritises climate justice and social justice and sees them as “going hand-in-hand” and is “genuinely concerned about inclusivity and advocating for marginalised people”.

She said: “I definitely think the Green Party are most open to advocating for disability rights of all the parties as they include strategies to promote quality of life and wellness for everyone in their policies and acknowledge that disabled people are particularly vulnerable.

If elected I will fight for a properly-funded NHS and social care sector, rent controls and accessible social housing, and an end to no-fault evictions.

I will speak for disabled people and advocate for their rights, and for the rights of all marginalised people within the bigger picture of the multiple crises we face as a society.”

Asked why, as a disabled person, she wanted to stand at the election, she said: “For me the personal is political.

My elderly mother can’t get a GP appointment, my grown-up daughters are unable to buy homes and their rents are sky-high, and I am a disabled person stuck in an inaccessible home. 

I’m also a full-time student living on a low income and struggling with the cost of living. 

And I know that nothing will improve for me unless it improves for everyone.

The cost-of-living crisis, housing crisis and the NHS are my priorities, and within this the terrible impacts of austerity policies upon disabled people and the constant marginalisation of disabled voices.”

Ruth is a poet and visual artist and began studying for a BA after being made redundant. After graduating last year, she began studying for an MA in environment, society and culture at the University of Essex.

For many years, she worked from home because of her impairment, but it became increasingly difficult to find work.

Before the pandemic, she had to hide the extent of her mobility impairment from prospective employers because she knew she would not otherwise be taken on.

The impairment means she cannot drive, so she was restricted to administrative positions where she could commute by bus and a short walk.

But she was made redundant from her last job in 2020 due to post-Covid fatigue, which had made it difficult to leave the house on her own, “particularly as I can’t use a wheelchair because my home is completely inaccessible”.

*This is part of a pre-election series of articles that will give some of the disabled people standing as candidates at the general election a chance to describe why they wanted to stand, how they became politicised, and the kind of barriers they have faced as disabled people. The aim is to raise the profile of some of the disabled people seeking elected office. DNS will analyse party manifesto commitments separately

**Sports utility vehicles

13 June 2024

 

 

Disabled election candidates: Independent John Urquhart

As – probably – the only disabled person to have founded a UK political party, John Urquhart* can speak from a position of strength when it comes to the disability policies they would prioritise if their party came to power.

Their Harmony Party UK’s disability policies are entirely decided by disabled party members.

Thanks to complex problems with a former officer, Harmony has had to de-register and register again as a political party, but this has not come in time for candidates to stand at next month’s general election.

Instead, Urquhart, the radical socialist party’s founder and general secretary, will be standing as an independent socialist in Cardiff West on 4 July.

Their party, which probably has about 200 members and makes decisions and policy through a series of democratic assemblies, would introduce this structure across the country if it won power.

This would include an assembly of disabled people, which would be able to demand policy changes from the government if its members believed disabled people were being unfairly disadvantaged.

Their party would also set up a disability justice court to enforce those demands if they were ignored by the government.

Urquhart said: “No other active party that I’m aware of was founded by a disabled person.

I know for a fact no other political party can even claim to be entirely led on disability issues by disabled people, but that’s true for us.”

Another key policy would be the introduction of a National Care Service that would be integrated with the National Health Service (NHS), but – they said – with “no private services sapping off resources” from the NHS.

Urquhart describes the current government’s record on disability as “diabolical”, with a series of “seamlessly spiteful” policies over the last 14 years of Conservative-led governments.

They believe that disabled people “represent a potentially dangerous political bloc” but have been deliberately marginalised by successive governments.

They insist they have “no interest personally” in standing at the election, but they have done so “because someone from my constituency needs to stand up for the people here”.

Urquhart grew up on a council estate, and lives with chronic pain, chronic fatigue and complex post-traumatic stress disorder (cPTSD).

Asked for an incident that politicised them as a disabled person, they said: “When I was a kid, a teacher said I was not allowed to go to the toilet to take painkillers because other kids would ‘take advantage’ and go to the toilet more often. I was about 11.

I was already politicised but honestly this infuriated me and I still think about it regularly even now, aged 40.”

They said: “I worked a variety of jobs as a young adult; all of them incredibly painful.

I worked because I was told to and thought people would hate me if I didn’t.

Eventually, I learned how ridiculous that was, but only after my cPTSD made absolutely definitely sure I didn’t have a choice about the ‘not working’ thing.

Much of my life I’ve been gainfully unemployed, donating labour to other people’s projects in various ways, and sometimes my own.

Often, that was online, because a big chunk of the middle part of my life was housebound.”

As for the access barriers they have faced, they said: “I’m not even sure I know where to begin on those barriers; just imagine fences around everything and a twisted fate of being unable to jump them and you’ve got the idea.”

Asked how they would appeal to other disabled people to vote for them, they said: “Harmony was founded by disabled people. No other party was.

Our entire ethos – nothing about you without you – is rooted in disability activism.”

Comparing today with 2010, when the Conservatives came to power, they said the last 14 years had seen “a decline in quality of provision of almost all services for disabled people”.

And, they said, there had been an increase in the “targeting of disabled people with hatred and abuse in the streets – and discrimination everywhere else”.

They said: “At the same time, thanks to Covid, the number of disabled people is steadily increasing.

It’s not hard to see why we’re hearing the word ‘euthanasia’ so much more often, and it’s not difficult to understand why people are being left on benefits, languishing until death in far too many cases.

We are a growing bloc in this country – and we could be a powerful one, if we can only find our way to understanding that each of us can only find liberation in liberating other people.”

*This is part of a pre-election series of articles that will give some of the disabled people standing as candidates at the general election a chance to describe why they wanted to stand, how they became politicised, and the kind of barriers they have faced as disabled people. The aim is to raise the profile of some of those disabled people seeking elected office. DNS will analyse party manifesto commitments separately

13 June 2024

 

 

Other disability-related stories covered by mainstream media this week

On the last few occasions Alphonsine Djiako Leuga was seen in her neighbourhood, she is said to have told shopkeepers that she could not afford to heat her home or buy food for her disabled daughter. Months later, Leuga and her teenage daughter were found dead inside their Nottingham home. Police said the pair had “lain undiscovered for some time” but they were “satisfied” no crime had occurred. Nottingham City Council has now announced a review to look at the involvement agencies had with the family, whom neighbours said they had not seen for months: https://www.theguardian.com/uk-news/article/2024/jun/07/nottingham-city-council-review-women-found-dead

Vulnerable children with complex needs are being locked away in unregulated placements and are being “gravely damaged by the state” while their parents are driven to despair, according to England and Wales’s former top family judge. Sir James Munby terms the lack of provision of safe and therapeutic homes “a shocking moral failure”: https://www.theguardian.com/society/article/2024/jun/09/locking-vulnerable-children-up-moral-failure-says-england-top-family-judge-james-munby

13 June 2024

 

News provided by John Pring at www.disabilitynewsservice.com

 Posted by at 13:25
Jun 122024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

A lawyer in Shelter’s strategic litigation team whose work is focused on direct / indirect discrimination in housing is looking for evidence to provide to the court in a case for a disabled homeless refugee who is routinely being given less than 48 hours’ notice of each fortnightly temporary accommodation booking (despite the council accepting that they have a duty to re-house her in suitable long term accommodation)..

In Shelter’s 2021 “Still Living in Limbo” report, it was revealed that this practice of giving short notice of temporary accommodation bookings is common: “Two thirds (62%) of people were given less than 48 hours’ notice when they were last moved between temporary accommodation placements.”

If you have experienced being homeless and regularly rehoused in hotels could you send us a few sentences about how that made you feel to provide to her for this case (and others).

For example were you at a significant disadvantage compared to non-disabled people because you were unable to

• Physically pack up and move their belongings without help, quickly or on short notice
• Pay for packing and removal assistance services

• Psychologically cope with the additional stress and pressure of having to repeatedly wait in uncertainty not knowing where you would be going each fortnight / in the next 24 hours

We need this information by Monday June 17th please. Could you also say if we can pass on your contact details to the solicitor in case she needs to contact you.

 Email us at mail@dpac.uk.net

 Posted by at 12:31
Jun 122024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Core Demands

(Taken from DDPO Forum Disabled People’s Manifesto 2024)

(Full Document link: https://www.disabledpeoplesmanifesto.com/_files/ugd/794e19_8222e858807f4d63b3736ab74db87bdb.pdf)

Representation & Voice

We want Disabled people to participate across all political and public roles, with the required adjustments put in place, so we can achieve real justice and equality. Disabled people’s led organisations (“Disabled People’s Organisations”) are accountable to our community and must be viewed as primary advocates for us and be funded accordingly. Disabled People’s Organisations (DPOs) must have a seat at national and local decision-making tables and all Disabled people to fully participate in democratic processes.

Asks –

An election fund to support reasonable adjustments for Disabled candidates at local and national elections.

Strategic funding to support the network of DPOs across England to advocate for the rights of Disabled People.

Accessibility standards for elections including removal of voter ID.

Accessibility standards for all public consultation.

Co-produce policies and programmes at national and local level with Disabled people and our organisations.

Rights

We want to fully enjoy all rights guaranteed by the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). Discrimination we face in all areas of life must stop. We want financial and legal support to enforce our rights and all public bodies to have a duty to advance and enforce our rights actively. We want greater accountability for when our rights have been breached.

Asks –

Legislate to fully incorporate the UN Convention on the Rights of Persons with Disabilities (UNCRPD) into UK law.

Bring into force all provisions of the Equality Act, including socio-economic duty. Communication access to include languages and disability access.

Strengthen the Public Sector Equality Duty and ensure the Public Sector Equality Duty and the Socio-Economic duties are fully embedded in all public bodies’ decision-making processes.

Ensure parity in law for victims of Disability Hate Crime.

Legislate to ensure Disabled people who are abused by workers and professionals have the same protection and support as victims of domestic abuse, and that workers have proper pay and conditions to promote respectful relationships.

Introduce non-means tested legal aid for all discrimination cases.

End discrimination against Disabled parents, primarily mothers, including by providing social care, financial and other support to parents, making family court proceedings open to the public and fully accessible and ensuring Disabled parents have adequate income.

Establish an inquiry into benefits-related deaths.

Legislate to abolish forced detention and treatment of people on mental health grounds.

Independence

We want the right to live independently with choice and control over the support we get. We want the right to live in our own fully accessible homes connected to our family, friends and community. We want major reform and investment across social security, social care, education, housing and employment, to provide Disabled people of all ages, genders, backgrounds or immigration status with a decent level of income and free at the point of use additional support that we need to fully enjoy our rights and to lead full and connected lives. We should not be forced to live in institutions or accept medical treatment we don’t want.

Asks –

Finances:

Increase disability benefits to meet true extra costs.

Increase means tested benefits to adequately reflect the cost of living and extra disability related costs.

Stop sanctioning Disabled people.

Stop cutting off Disabled people’s benefits for failure to attend assessments.

Co-produce the benefits system that recognises everyone’s right to an adequate standard of living.

Abolish No Recourse to Public Funds – benefit and healthcare rights for all.

Independent Living:

Legislate for the right to independent living and a taskforce to develop independent living we can all be proud of.

Commit extra 8 billion funding for social care and ensure funding is prioritised for community-based support.

Stop social care charging.

Housing:

Introduce a national requirement for all new build homes to be accessible and 10% to be wheelchair accessible.

Increase funding for Disabled Facilities Grant, remove the means-test and increase the grant amount.

Implement all recommendations of the Grenfell inquiry, ensuring all Disabled people can evacuate safely.

Introduce enforceable standards to ensure good quality, well insulated housing in private and social rented sectors. Include adaptability requirements into Decent Homes Standard.

Introduce rent caps so that no one pays more than one third of their income on rent.

Invest in building accessible social housing.

Inclusion

We want plans for every aspect of life including energy policy, climate change, digital and technological development, health, housing, transport, street environment and emergency planning, to address specific needs of Disabled people from the outset. Segregated settings and programmes should not be a default. Choice, control, and inclusion are vital. Disabled people should have support to live, learn and work in the community.

Asks –

Education:

Work with organisations of Disabled people and the national organisation representing Deaf people, with equal decision- making power, to create an action plan/educational policy to fully implement the right to education in accordance with UNCRPD Article 4.3 & Article 24 and UNDRIP Articles 13 and 14.

A right for Deaf and deafblind children to get an education in BSL and in environments which maximise personal, academic and social development both within and outside formal school settings and support the linguistic identity of Deaf and deafblind children.

A right for every Disabled and Deaf student to get appropriate support to attend and remain in a fully inclusive mainstream education setting.

A right for every Disabled and Deaf child and young person to be mentored by a qualified and professionally trained person with a similar life experience of impairment, disability, communication and access needs from the point of diagnosis or earlier.

Commit £3bn extra per year for education support: to fund SEND; increase the number of Deaf and Disabled people in the teaching workforce; and increase the capacity and ability of national representative organisations of Deaf or Disabled people to lead on getting Deaf and Disabled education done right.

Access:

Review and strengthen the BSL Act to ensure BSL is recognised, promoted and protected on a par with English and all BSL-related public services and procedures are designed, managed and delivered by Deaf BSL signers.

New accessibility standards which meet the needs of people with different impairments for transport, built environment, and public realm.

Infrastructure investment plans and regulatory measures to ensure Disabled people’s access to the environment, transport, information and communication.

Work:

Introduce mandatory workforce monitoring including pay gap and progression, including monitoring pay gap and progression for Disabled women/people of colour.

Introduce mandatory two-week timeframe for reasonable adjustments and an enforcement framework which does not fully depend on an individual.

Commit to closing the disability employment gap.

A right to disability responsive employment support which helps people get good jobs.

Ensure quick and adequate support from Access to Work.

Other Demands

Implement the National Independent Living Support Service (NILSS)

(Developed by the Reclaiming Our Futures Alliance – ROFA – link: https://www.rofa.org.uk/wp-content/uploads/2023/09/Fixing-a-broken-system-for-ROFA-conference-EC-proof-read-1.docx)

Benefits

A “triple lock” on annual benefit rate increases (whichever is the highest of: Inflation rate, Average wage increase or 2.5%)

An end to the hate rhetoric used by politicians about disabled people on benefits

An end to the Hostile Environment from the government towards benefits claimants

An independent public inquiry into deaths through suicide and destitution of disabled benefit claimants since 2008.

An end to punitive degrading disability assessments

An end to pressuring people who cannot work into harmful insecure low paid work

An end to benefit sanctions

Health

An independent public inquiry into the deaths and maltreatment of disabled children and adults incarcerated in mental health institutions

Mandatory mental health, learning disability and neurodivergence training for all trainee doctors

Social Care

A National Independent Living Service, free at the point of use

Legislate for the right to independent living and a taskforce to develop independent living we can all be proud of

Commit extra 8 bn funding for social care and ensure funding is prioritised for community-based support.

End social care charging.

Housing

Introduce a national requirement for all new build homes to be accessible and 10% to be wheelchair accessible.

Implement all recommendations of the Grenfell inquiry, ensuring all Disabled people can evacuate safely.

Introduce rent caps so that no one pays more than one third of their income on rent.

Invest in building accessible social housing.

Transport

Free bus passes for people on disability benefits

A fully integrated, accessible, affordable publicly owned transport system for all

A right of disabled access to open public spaces, whether publicly or privately owned

Legislation to govern the placement of “street furniture” that impedes access by disabled people

Education

A right to mainstream education and to education in British Sign Language for Deaf and Disabled students

Disabled children, young people & adults to be fully funded and supported through education at every level

Work with organisations of Disabled people and the national organisation representing Deaf people, with equal decision-making power, to create an action plan/educational policy to fully implement the right to education

Include BSL as a language option at GCSE

Work and employment rights

Legal Aid for employment tribunals

Assisted Dying

No legalisation of assisted dying

 Posted by at 11:28
Jun 122024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Disabled People Demand a future worthy of the name.

Thursday 18th July, 12 noon. Parliament Square

DPAC, Recovery In The Bin, Bromley & Croydon Unite Community and others invite you to join us for both a challenge to the incoming government and a celebration of our history and culture.

Joined by a range of disability campaigns, groups and organisations we will hold an afternoon of music, art, theatre and more.

We will host a Disabled Peoples Assembly to hear from YOU how you want to progress and elevate our ideas and aspirations.

We will lay down a marker for the changes we want to see in our communities which address the litany of crises we face.

We will present our solutions to these crises, borne out of our shared experiences of years and decades of fighting back.

Disabled People Demand our voices are heard and we demand our rightful place at the heart of rebuilding our society.

Closing the door on the past doesn’t just mean closing it on the policies of the past – but also on the negative and exclusionary practices of the past too.

This election is an opportunity to break with that past.

Through austerity, benefit cuts, assessment torture, covid and cost of living crisis disabled people have been at the forefront of the affects of our government’s wrecking the people of this country’s well-being, wealth and health

The narrative used by successive governments to cut resources and services have seen disabled people unjustifiably being blamed for government spending. 

These cuts to public services were not forced upon the government by disabled people or immigrants; they were a political choice.

Now is the time for a new chapter to be written.

But disabled people aren’t waiting for any incoming government of whatever party to come to our rescue. 

By the looks of the policy platforms on offer – that’s not going to happen. 

We have a long history of devising our own solutions to whatever crisis we find ourselves in. 

And we will again. 

We live in the 6th richest economy in the world. 

The idea that we don’t have the money to put right the damage done to disabled people over last 14 years is just not true.

The idea that we cannot afford to elevate citizens who have seen decades of underfunding and exclusion is simply unacceptable. 

That’s why we are taking this opportunity to present our solutions to political decision makers and to the rest of the people in the UK. 

We are putting what we believe are both possible and achievable out there. 

So, there’s no hiding place from them. 

Nobody can say they didn’t know. 

Nobody can say they weren’t presented with alternatives. 

We will use them as a marker to measure the success or failure of the next government by. 

 We will use them as the benchmark to measure progress by.

These are the changes we demand to take us towards a more inclusive, accessible and equitable society. 

 

Taking part

If your group, organisation or campaign would like to join us in presenting your own policy solutions or demands in a creative way – please get in touch with us.

If you are a disabled creative – an artist, musician or performer, and you would like to join us – please get in touch with us.

Contact details: mail@dpac.uk.net

What you need to know

Protest Rights

If you are planning on attending on the day, please click on the following link and read the information about disabled people’s rights on protests.

https://www.libertyhumanrights.org.uk/advice_information/disabled-people-protest/#:~:text=You%20have%20the%20right%20to%20protest%20without%20discrimination,-Everyone%20has%20the&text=Article%2014%20says%20that%20you,disability)%20without%20a%20good%20reason.

Parliament Square location

Postcode SW1P 3BD

Latitude: 51° 30′ 1.19″ N
Longitude: 0° 07′ 21.60″ E

Transport Links

Nearest Step-Free (By use of mini-ramps and boarding ramps) Underground Station is Westminster Station

For full access details: https://content.tfl.gov.uk/step-free-tube-guide-map.pdf

Buses to/from Parliament Square are 12, 24, 26, 87, 88, 159 & 453

For full details: https://tfl.gov.uk/bus/arrivals/490015048A/westminster-stn-parliament-square/

Car parking in Westminster: https://www.westminster.gov.uk/parking/visitor-parking-information

Core Demands

Legislate to fully incorporate the UN Convention on the Rights of Persons with Disabilities (UNCRPD) into UK law

A “triple lock” on annual benefit rate increases

Legal Right to Independent Living with a National Independent Living Service

Introduce a national requirement for all new build homes to be accessible and 10% to be wheelchair accessible

A right to mainstream education and to education in fluent British Sign Language for Deaf and Disabled students

A fully integrated, fully accessible, affordable publicly owned transport system for all

A right of disabled access to built and natural environments

Introduce mandatory two-week timeframe for reasonable adjustments and an enforcement framework which does not fully depend on an individual.

An independent public inquiry into the deaths and maltreatment of disabled children and adults incarcerated in mental health institutions

Legislate to abolish forced detention and treatment of people on mental health grounds

No Assisted Dying

Adequate provision of technical aids and equipment, eg wheelchairs, and adaptive communication aides for people who are nonverbal

 

You can see our full list of demands here: https://dpac.uk.net/2024/06/our-full-list-of-disabled-peoples-demands-disabledpeopledemand/

 

 Posted by at 09:00
Jun 062024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

 

Sunak faces verdict on misleading ‘fit for work’ stats, just days after his Labour tax row ‘lies’

The statistics regulator will rule tomorrow on whether the prime minister misled voters around the growth in disabled people found not fit for work, just two days after the same watchdog promised to investigate his claims about Labour’s tax plans.

The Office for Statistics Regulation (OSR) is to release a statement today (Thursday) on claims made by Rishi Sunak during Tuesday’s leaders’ debate that Labour’s spending plans would result in a £2,000 tax rise “for every working family in this country”.

OSR is particularly examining the claim that the figures were produced by “independent Treasury officials”, with Labour figures accusing Sunak of lying after the Treasury’s permanent secretary told the party the figures were not produced by the Civil Service.

But before this row erupted, Disability News Service (DNS) had already been told that OSR would deliver its response tomorrow to three complaints made about claims made by the government around disability benefits, including one lodged by DNS in March.

At least one of the complaints relates to claims made by the prime minister.

The DNS concern, currently the oldest outstanding complaint on the regulator’s issues log, relates to figures repeatedly used by Sunak about the number of disabled people being found not fit for work.

The prime minister first used these figures in his main Conservative party conference speech last October.

He repeated them in March in an interview with the Sunday Times.

And he repeated them again in a major speech on social security at the Centre for Social Justice in April.

Sunak said in April: “In 2011, 20 per cent of those doing a work capability assessment were deemed unfit to work.

But the latest figure now stands at 65 per cent. That’s wrong.

People are not three times sicker than they were a decade ago.”

The Department for Work and Pensions (DWP), which will have briefed him on the figures, will have been aware that they were deeply misleading.

Like his fellow ministers, and many media commentators, Sunak ignored the fact that the 2011 figures reflected the early years of the WCA, before its most serious flaws were exposed.

It took years of research and activism by disabled people and allies to expose the links between the WCA and hundreds, and probably thousands, of deaths of claimants, and to force DWP ministers to ease the harshness of the assessment*.

That eventually made it less arduous to qualify for the employment and support allowance support group and avoid work-related conditions for those not fit for work, although the assessment process is still deeply-flawed and continues to be linked to serious harm and deaths.

DNS lodged a complaint with OSR on 11 March, and the regulator told DNS in April that it had “contacted the team in 10 Downing Street for information on the sources behind the figures quoted by the prime minister”.

When DNS approached OSR for an update the following month, it was told by the regulator: “As we have looked into your case, there have been other statements made by ministers on the topic of out-of-work disability statistics.

We want to consider them together and respond in their full context. We will update you with our findings on this.”

DNS contacted OSR again on 31 May, after Sunak had called a general election, and pointed out that the complaint about the WCA figures was now the oldest outstanding concern on its issues log.

The regulator then confirmed that it would be publishing a statement on Friday 7 June on “recent statements on disability benefits and out-of-work statistics”.

It later clarified that this statement would be used to “respond publicly to three claims”, one of which was the DNS complaint.

Another appears to relate to claims made by work and pensions secretary Mel Stride in April that disabled people claiming personal independence payment (PIP) receive “thousands of pounds a month”.

Stride also claimed – wrongly – that PIP was “a benefit that has not been reviewed for over a decade”, when in fact there were two high-profile independent reviews of the PIP assessment process, with the first published in 2014 and the second reporting in 2017, just seven years ago.

When he was questioned about this in parliament, by Labour’s Neil Coyle, he appeared to add a further untruth, telling him: “It is the case that there has not been a fundamental review of PIP on the basis that that has subsequently led to a change in that benefit.”

But Stride’s own green paper makes it clear that the government made significant changes to PIP after the two reviews.

The green paper says: “We have continued to implement the recommendations of the independent reviews as we strive to shape PIP into a modern and dynamic benefit.”

*The Department, DNS editor John Pring’s book on DWP and how its actions led to countless deaths of disabled people in the post-2010 era, will be published by Pluto Press on 20 August. Visit the DNS website before publication for a 50 per cent discount  

6 June 2024

 

 

Disabled people ignored in ‘parallel universe’ election campaign

Disabled people were not mentioned once in the first major television event of the general election campaign, despite the participants speaking more than 21,000 words over more than two hours.

Analysis of transcripts of the leaders’ debate between Rishi Sunak and Keir Starmer, followed by interviews with Ed Davey, Stephen Flynn, Richard Tice and Adrian Ramsay, shows none of them, and neither of the two journalists moderating the debate or interviewing the leaders, mentioned disabled people or disability.

The one exception to the sidelining of disability from the two programmes broadcast by ITV on Tuesday evening was in its treatment of social care, but even this received only cursory attention and disabled people were not mentioned directly.

Social care was mentioned in the leaders’ debate after a question was put by ITV’s Julie Etchingham to Sunak and Starmer.

And when Davey was interviewed later by ITV’s Anushka Asthana, he gave his party’s call for an end to charging for personal care for all adults, and a higher minimum wage for care workers, as an example of a Liberal Democrat manifesto policy (see separate story).

The sidelining of disabled people during the leaders’ debate and interviews came just two days after Kamran Mallick, chief executive of Disability Rights UK, said it was “astonishing and appalling” – and that political parties appeared to be “living in a parallel universe” – that disabled people had been ignored in the first 10 days of the election campaign.

The section on social care during the leaders’ debate lasted approximately one minute and five seconds, and there was no cross-examination of the answers provided by Sunak and Starmer.

Etchingham had asked them: “Five years ago, Boris Johnson was standing where you both are now. He told me there was a plan ready to go on this.

We’re still waiting. Will you both now commit to a fully-funded solution in your manifesto this time round?”

Sunak claimed the government had “already implemented charging reform” but then added: “Pilots are in place to implement the reforms. They will be rolled out later this year.”

These long-awaited government reforms were widely seen as regressive and unfair but would have introduced a lifetime cap of £86,000 on how much anyone paid for social care in England.

Two years ago, the government delayed their introduction from October 2023 to October 2025.

But in January this year, the permanent secretary of the Department of Health and Social Care, Sir Chris Wormald, told the Commons public accounts committee that the government could be forced into further delays if it decided under-pressure councils would not be able to cope with the “big new chunk” of “complicated work”.

It is not yet clear whether the Conservative manifesto will stick to the October 2025 date for the rollout of the reforms, with pilot projects later this year.

Sunak then said that his Conservative government had provided “an extra eight billion” for social care because “the pressures are immediate”.

This appears to refer to the £7.5 billion funding provided for adult and children’s social care (PDF) over 2023-24 and 2024-25 – although only £2.7 billion of this was new central government funding – that was announced in November 2022 when the government said its charging reforms would be delayed, although some of this money went to the NHS.

The other £500 million of the £8 billion appears to refer to new funding for social care announced by the government in January.

The Association of Directors of Adult Social Services said later that this extra funding “simply isn’t enough to meet rising costs and growing numbers of adults needing care and support this year” and that social care “needs a long-term, sustainable, fully-funded plan”.

The National Audit Office said last November (PDF) that the government had “delayed its charging reforms, scaled back system reform, and is behind on some aspects of its revised plan”.

Starmer focused, as his party has in recent years, on the need to improve conditions for care workers, rather than any attempt to end care charges or increase the availability of funding for disabled people in need of care and support.

He told the audience: “We will have a plan for social care that, like everything else in our manifesto, it’ll be fully costed and fully funded.”

He said the focus on care workers was because “one of the biggest problems in social care is that the workforce has fragmented”, with “poor conditions of many, many people”.

Research by disabled campaigners showed in 2022 that tens of thousands of disabled people across the country every year were having debt collection action taken against them by their local authorities over unpaid care charges.

6 June 2024

 

 

Labour silent over key concerns on disability employment policy and claimant safety

The Labour party has refused to answer key questions about the safety of its disability employment policies, and why it published an inaccessible social media post about those plans.

Disability News Service (DNS) has been trying to clarify details of its announcements around disability employment since a speech by shadow disability minister Vicky Foxcroft at the TUC Disabled Workers’ Conference in Liverpool, the day after the general election was announced by prime minister Rishi Sunak.

Those questions became more urgent last week when Labour leader Keir Starmer delivered a speech in which he promised that “those who can work, will work” under a Labour government.

His statement suggested – although this was not explicit – that a Labour government would continue to exert pressure and impose sanctions on disabled people who are not currently in work, rather than offering a more supportive, safer system than the one operated under successive Conservative-led governments.

Starmer also said: “Under the Tories, there are too many people who are not in work, who should be.”

The party highlighted how spending on “health and disability benefits for working age adults” is set to rise by over 50 per cent over the next parliament, from £41.3 billion in 2022-23 to £68.5 billion in 2028-29.

But the party has refused this week to confirm whether it was correct that its approach in government would involve continuing to exert pressure on disabled claimants, while ignoring the need for a more supportive and safer system.

DNS also asked the party why it had made no reference to concerns raised repeatedly by DWP staff about the safety of their department.

Late last month, the work and pensions select committee released the results of a survey of DWP staff which found that two-thirds of them do not have enough time to deal with safeguarding concerns “carefully” and “correctly”, despite years of deaths of benefit claimants linked with DWP’s actions.

And last December, the PCS union submitted a dossier of concerns to DWP that suggested the department was in a state of crisis, while it accused DWP of “deliberate neglect”, and said benefit claimants in vulnerable situations were “falling through the gaps” in the system.

But Labour made no mention of these concerns in last week’s announcements, or in Foxcroft’s speech, while it also ignored two recent letters sent to DWP by coroners after the suicides of universal credit claimants.

DNS asked the party whether last week’s announcements on disability employment, which were heavily criticised by disabled people, suggested that it had already abandoned its supposed commitment to co-producing its disability policies with disabled people.

DNS also asked the party why a social media post it published on Saturday (1 June) referred to “people with disabilities”, and whether this meant Labour no longer supported the social model of disability.

And it asked why the post’s “alt text” – which allows screen-readers to describe an image that appears on the screen – failed to include the words included on the image the party had posted.

The alt text simply said: “A pink graphic with two animated people in work clothes under text.”

But it failed to say what that text was, even though the words summarised the party’s back-to-work plan in three bullet points.

Foxcroft, Labour’s shadow minister for disabled people, has now declined to answer questions about her party’s disability employment policies from DNS three times in the last two weeks.

The first time, she said she had a train to catch after delivering a speech at the TUC Disabled Workers’ Conference; the following week, she said she was tied up with her legal duties relating to her office and constituency casework after the election was called; and finally this week she said she was just “too busy” but could “probably” answer questions after the manifesto launch “in a few weeks”.

She redirected questions to the party’s press office, but after a two-day delay, a Labour spokesperson said yesterday (Wednesday), in response to the questions asked by DNS: “Confirming that we will not be commenting on this occasion.

Apologies for the delay in getting back to you. We are receiving an increased volume of press enquiries during this general election period.”

6 June 2024

 

 

DWP can’t find report on universal credit safety that PM’s unit told it to write

The Department for Work and Pensions (DWP) and the Cabinet Office have both been unable to find a report that was supposed to describe how DWP supported “vulnerable” people who rely on the universal credit benefit system.

DWP was told to produce the report five or six years ago by a civil service unit set up by David Cameron and deputy prime minister Nick Clegg in 2012.

But neither DWP nor the Cabinet Office have been able to find the report, despite separate freedom of information requests from Disability News Service (DNS).

The failure to find the report comes as DWP has faced a series of coroners’ reports and concerns raised by its own staff about the safety of universal credit and its failure to ensure the working-age benefit system is safe for claimants in vulnerable situations.

Previous freedom of information requests showed that the Prime Minister’s Implementation Unit (PMIU) had produced a report – Experience of Claimants and Vulnerable Groups – that described the “additional difficulties” faced by vulnerable claimants of universal credit.

The Cabinet Office had initially claimed it could not find this document.

When it finally found the report and provided a copy to DNS, it showed that the document had warned that the “experience of many groups of vulnerable claimants on UC is not currently understood”, while there was a “lack of evidence” on whether the range of support for these groups is “delivered consistently and delivering the desired outcomes with efficacy”.

The report included a recommendation by PMIU for DWP to draw up a “single and coherent” document that described its approach to vulnerable claimants.

The aim was to “demonstrate the support and adjustments” DWP had developed and help those working in the department to share information about this support and “ensure greater consistency” in how it was applied.

This report was supposed to be produced “internally” and then shared with PMIU.

But when DNS submitted fresh freedom of information requests to DWP and the Cabinet Office, neither of them were able to find the “single and coherent” document.

DWP told DNS: “We have carried out a detailed search for the information you have requested and can confirm, DWP does not hold this information.”

The Cabinet Office responded to a separate request: “We are writing to advise you that following a search of our paper and electronic records, we have established that the information you requested is not held by the Cabinet Office.”

This could mean that DWP and the Cabinet Office have lost the report, destroyed it, are refusing to release it, or that DWP ignored the recommendation to write it.

What happened to the report is important because, five or so years after Experience of Claimants and Vulnerable Groups is believed to have been written, DWP is facing increasing concerns about safeguarding claimants of universal credit and other benefits.

Only last week, DNS reported how two-thirds of DWP staff still do not have enough time to deal with safeguarding concerns “carefully” and “correctly”, despite years of deaths of benefit claimants linked with DWP’s failings.

The survey, completed by more than 1,700 DWP staff for the Commons work and pensions committee, also showed that more than two-fifths (42 per cent) of staff with direct contact with claimants did not believe they received adequate safeguarding training, while a similar number said the safeguarding guidance for frontline staff was not clear, comprehensive and easy to access.

More than a third (36 per cent) did not feel confident about how to handle a safeguarding concern.

Last December, a dossier of evidence submitted by the PCS union to DWP showed the department to be a failing organisation in a “state of crisis” and facing a “near collapse” of its benefits systems, with staff accusing DWP of “deliberate neglect” and revealing that claimants in vulnerable situations were “falling through the gaps” in the system.

Meanwhile, DNS has reported on three suicides of universal credit claimants that have also raised critical concerns about DWP safeguarding.

In May, DWP admitted missing multiple opportunities to record the “vulnerability” of Nazerine Anderson, whose death was later linked by a coroner to failings at the heart of universal credit.

Last November, another coroner wrote to the department after the death of Kevin Gale, to warn DWP that it needed to act to prevent flaws in the universal credit system leading to further deaths, after Gale took his own life after becoming overwhelmed by the application process.

And in November 2022, DNS reported how a disabled woman left traumatised by the daily demands of universal credit took her own life just four days after being told she would need to attend a face-to-face meeting with a work coach. Her inquest has yet to take place.

6 June 2024

 

 

Lib Dems’ free personal care pledge is ‘step in the right direction’, say disabled campaigners

Disabled people’s organisations have given a cautious but positive welcome to proposals from the Liberal Democrats to offer free personal care to all adults if they win power at the general election.

In a policy pledge unlikely to be matched either by the Conservatives or Labour, Liberal Democrat leader Ed Davey said his party’s “groundbreaking” and “bold” £2.7 billion-a-year plans would be funded by reversing tax cuts given to the banking sector.

The party has also provided further details of its plans to Disability News Service (DNS).

Davey, who has a disabled son, said the policy would revolutionise the care system and reduce pressure on the NHS, by providing more care and support for disabled and older people in their own homes.

But the party confirmed to DNS that the pledge would only see an end to charges for personal care, and not for other support such as housework, shopping, laundry and engaging with the local community.

A party spokesperson said: “Given the crisis in social care, it’s impossible for us to achieve a perfect system immediately but we hope that these issues would be covered in cross-party talks that we are calling for with other parties.”

It also told DNS that the threshold for support would remain the same as at present, where care needs are seen as eligible for council-funded support if they have a significant impact on the individual’s wellbeing.

Asked if there would be any limits placed on the free personal care policy, the spokesperson suggested there could be.

She said its model was based on the free personal care model introduced in Scotland, which was first introduced by the Scottish government in 2002, when the Liberal Democrats were in coalition with Labour, although it was originally only available to older people.

It was extended to working-age adults in 2019 by the SNP government.

She said: “There are limits on what can be delivered in Scotland due to financial pressures; that’s why we urgently need cross-party talks to put social care on a sustainable financial footing.”

The party said an average of 12,772 hospital beds in England per day in April were occupied by people ready to be discharged but waiting for resources to provide care in their homes, or a care home bed.

The party also revealed that the Liberal Democrat election manifesto would have a separate chapter on care.

And the party plans to introduce a new minimum wage for care workers, set at £2 above the national minimum wage, while it will also create a Royal College of Care Workers, to run alongside the existing royal colleges for nursing and midwives. 

The Liberal Democrat approach contrasts strongly with that of Labour and the Conservatives.

Last year, Labour was accused of caving in to “powerful vested interests” after failing to include any reference to scrapping care charges in documents that are set to form the basis of the party’s manifesto.

Meanwhile, the Conservatives have failed to take action to deal with a charging crisis that has left tens of thousands of disabled people every year facing debt collection action by their local authorities over unpaid care charges.

Successive Conservative governments have repeatedly promised – and then failed – to solve the social care crisis.

Davey said: “As a carer for my disabled son, and after caring for my ill mother when I was young, care is deeply personal for me.

That is why I am putting fixing the care crisis at the heart of the Liberal Democrat offer to the country at this election.

Far too often, family carers are being left to pick up the pieces because the care system simply isn’t there for them.

Millions of people are going without the care they need, while thousands are stuck in hospital beds instead of being cared for in their own home or a care home.

We cannot fix the crisis facing the NHS without fixing the crisis facing social care.

The Liberal Democrats would bring in free personal care to help people live independently and with dignity, in their own homes wherever possible.”

Svetlana Kotova, director of campaigns and justice for Inclusion London, said the announcement was “a step in the right direction”.

She said: “Social care has been absent from election debate and this announcement brings it back on the agenda.

Social care is a vital service; when working well it enables disabled people of all ages to live a fulfilling life with choice and control.

However, at the moment people are experiencing inadequate support and oppressive bureaucracy, and many, including those who are on benefits, are made to give up a significant proportion of their income to pay for this poor service.

Making people pay for care is a tax on disability. We believe all social care, not only personal care, should be free.

And this is not the only thing that needs fixing. The whole system needs a shakeup.

We are calling on all parties to make social care free at the point of need and to work with us to implement our vision for a national independent living service, which will enable all disabled people to live an equal life.”

Disability Rights UK (DR UK) also welcomed the policy announcement as a step towards all social care being made free.

Mikey Erhardt, DR UK’s policy and campaigns officer, said: “This is the first policy we have heard from the major parties that validates what disabled people have been saying for decades: that social care should be free at the point of use and that reform should be funded from general taxation.

We hope that this proposal drives other parties to come up with plans for reform, which puts the independence of disabled people at the centre and commits to major financial investment.

Care and support should be about enabling us to live with choice and control over our lives, connecting us with the communities around us.

It should not be a list of ‘care tasks’, which gives us the absolute minimum to survive.

We need to hear strong statements that charging disabled people for social care will be relegated to the history books.”

The grassroots disabled people’s organisation Bristol Reclaiming Independent Living (BRIL) also welcomed the Liberal Democrat announcement, but with reservations.

BRIL said it hoped the party’s move would increase pressure on the next government to “sort out the social care crisis”.

A BRIL spokesperson said that while free personal care in Scotland had helped some disabled people, research suggested (PDF) that there had also been confusion and disputes over defining what personal care was, along with other problems, such as further “fragmentation” of the social care system.

BRIL added: “Neurodivergent people and people who experience mental illness/distress often have social care needs that would not be paid for under the Lib Dems’ plans, and as a consequence would continue to face care charges, and the risk of debt.

Charging for ‘some’ care and support is not only a scandal but creates a hierarchy of need which is contrary to the Care Act.”

BRIL said the Liberal Democrats appeared not to have consulted disabled people about the policy, which was “far from our vision of genuine independent living and rights-based support” and at best “a sticking-plaster on a system that needs radical change”.

Autistic Nottingham also welcomed the Liberal Democrat proposal, but again with reservations.

Justin Donne, the autistic-led charity’s chief executive, said: “When the Conservatives are focused on how to punish disabled people into work, and Labour still hasn’t discussed support for disabled people outside getting us into the workplace, Sir Ed Davey’s plan to fund care for disabled people with high support needs is a breath of fresh air.”

But he added: “Just like he fears for his son once he isn’t there to look after him, our service users are worried about their care being taken away due to national and local government cuts.

We run a personal assistant service for autistic adults without intellectual disabilities which helps them in their daily lives such as going to the supermarket, cleaning their homes or cooking a meal – all of which greatly improve their quality of life.

However, our service does not fall under care for disabled people with high needs that would be fully funded under his proposal, and disappointingly there is no mention of even partial funding for lower care needs.”

He said the proposal was “a good first step, but it doesn’t go far enough for our beneficiaries.

I hope that one day we can have a government who is prepared to fund care for all levels of support needs, but currently that seems unlikely.”

6 June 2024

 

 

Council apologises for postponing end of care charges

A local authority has apologised for postponing the scrapping of all charges for care and support for disabled people in their own homes.

Tower Hamlets council, in east London, which is run by the Aspire party, led by former Labour politician Lutfur Rahman, had been set to become just the second council in England to abolish all such care charges from April this year.

But the council has now postponed the introduction of free care at home for a year.

A local disabled people’s organisation (DPO) has expressed regret at the delay and that it was forced to push the council into issuing an apology and a statement.

In its statement, the council said: “Over the next year, we will be continuing to work on plans to introduce free community care from April 2025, which will apply to people eligible for community care and support under the Care Act 2014.

We know that some of our residents were expecting the updated charging policy to be in place from April 2024, and understand the longer timeline may have caused frustration, or have had an impact on people’s budgeting.

We apologise for any disappointment and for the uncertainty this may have led to.

We are committed to launching this groundbreaking policy and believe April 2025 is a realistic and achievable date for implementation.

We would like to reassure those who access our care service that we do not anticipate the timeline changing, and we are on track to deliver our plans.”

Jack Gilbert, chief executive of the DPO Real, which is based in Tower Hamlets, said: “Real welcomes Tower Hamlets council’s apology for the change to the originally announced schedule, albeit seven weeks after it was due to come into effect.  

It is a shame that nobody seems to have even flagged it as an issue which might impact on the council’s reputation until we doggedly pursued it.

At the first sign of a potential delay, we should have been told. Whilst it would have been disappointing, we would have helped.

We still warmly welcome the unambiguous renewed commitment to implementing the removal of home-based individual charging for adult social care; this is a fundamental change for which we and DDPOs* across the UK have long campaigned.”

He advised any disabled people in the borough who have experienced “further unexpected hardship” due to the postponement to contact the council or Real’s advocacy services, including its our joint advice programme with Disability Law Service, which is now led by Real’s former chief executive, Mike Smith.

*Deaf and disabled people’s organisations

6 June 2024

 

 

Government fails to publish guidance to support disabled candidates in time for election

The Conservative government has failed to publish guidance that would have helped political parties support disabled people standing at next month’s general election.

The government’s much-criticised Disability Action Plan, published in February, pledged three actions that would “support both the recruitment and retention of disabled people in elected office”.

One of those pledges was to “develop and publish new guidance by summer 2024” on how political parties and elected public bodies “can best support disabled candidates”.

But there is no sign of the guidance on the Disability Unit’s web pages, and no announcements have been made by the unit, which has made just four announcements on its “news and communications” page in the last 12 months.

The government’s Disability Unit today (Thursday) refused to comment, after being asked what progress had been made on the guidance.

The action plan also pledged to work with disabled people to design a new way to provide financial support for disabled people seeking election to public office, to be launched in 2025.

A short-lived fund – the Access to Elected Office Fund (AEOF) – was originally set up in 2012 following Liberal Democrat pressure on its Conservative coalition partner.

It funded disability-related costs for candidates in parliamentary and other elections, before it was closed by the Conservatives after the 2015 general election.

It was eventually replaced three years later with the temporary EnAble fund in response to a legal action taken by a trio of disabled politicians who warned that the failure to reopen AEOF breached the Equality Act.

The fund initially only covered the 2019 English local elections, but it was later extended to cover the May 2020 local and police and crime commissioner elections, although these were postponed to the following year because of the pandemic.

It also provided retrospective funding for applicants who stood in the 2019 elections to the European Parliament.

The government has been promising to set up a replacement for the last three years.

A report commissioned by the government in 2018, and eventually published three years later, found that political parties and institutions such as local councils had repeatedly broken equality laws by failing to make reasonable adjustments for disabled politicians.

The report said disabled people in England and Wales faced a “multitude” of barriers across the different stages of the political process, from activism and considering running for office, to the selection and election processes, and once they had been elected.

Researchers found disabled politicians had been prevented from attending local party meetings because of access failings, had been invited to take part in inaccessible hustings events during election campaigns, and faced a lack of support from their party once selected.

And because of the barriers they continued to face, disabled politicians typically had to spend far more time fulfilling their duties than their non-disabled colleagues, after they were elected.

Disability Rights UK, which ran the EnAble fund with support from the Local Government Association – 88 per cent of applicants said they had had a “very positive” experience with the fund – this week criticised the government for failing to reinstate a support fund in time for the general election.

Disability Rights UK’s Anna Morell said: “Disabled people have been without democratic support funding for four years now.

In that time, disabled people have missed out on being able to stand in local elections, police and crime commissioner elections, and now the general election.

There are over 16 million disabled people in the UK, with just six MPs out of 650 in the last parliament on the record as being disabled.

Our government will not be reflective of the society it serves until those figures change.

Realistically, those figures can only significantly change when disabled people are valued enough to be given the resources we need to be able to stand for election.”

Morell also said that securing flexible working as an MP was difficult, while the built environment of many government offices was inadequate to meet the needs of disabled people.

She said the Houses of Parliament only had two accessible parking bays within its grounds, while the lifts in Portcullis House, where many MPs have their offices, are not big enough for mobility scooters or larger wheelchairs.

Deborah King, co-founder of Disability Politics UK, said: “Voters already distrust politicians.

The failure to help disabled politicians stand for election shows they do not want fair competition.

The delay in providing guidance and the failure to set up the AEOF smacks of self-interest.”

She said the government was also failing to support job-sharing for those seeking elected office, despite Disability Politics UK requesting that the Disability Unit ask the relevant minister to set up a working group to examine the issue.

Two years ago (PDF), Disability Politics UK worked with the Fawcett Society on a submission to the UN High Commissioner for Human Rights, which set out why this change was necessary.

6 June 2024

 

 

Activists to discuss working together over ‘insidious’ violence faced by disabled people and migrants

Grassroots activists fighting for disability and migrant justice are to discuss how they can work together to combat the bureaucratic violence that both groups face at the hands of the state.

The informal public meeting will take place next week at Bristol Old Vic as the theatre becomes the latest venue to host the award-winning mixed reality installation Museum of Austerity.

Museum of Austerity will be running at the theatre from Wednesday to Saturday.

Next Friday’s free discussion event*, Building Solidarity in Times of Fear, is designed to run alongside Museum of Austerity.

It will examine how government policies such as the Rwanda plan, restrictions on the right to protest, and the actions of the Department for Work and Pensions, have led to “individual fear”.

Those planning to attend the meeting include activists with organisations that are part of the Disability and Migration Network, such as Disabled People Against Cuts, National Survivor User Network (NSUN), Bristol Defend the Asylum Seekers Campaign and Migration Mobilities Bristol.

Kieran Lewis, NSUN’s rights and migration policy officer, said that groups fighting for disability justice and migrant justice are often seen as separate, but both groups face the same kind of dehumanising rhetoric and bureaucratic violence.

He said that both groups face “very long waits for decisions that will dictate the way you will be able to live your life.

In a lot of cases, they are having to provide an awful lot of evidence, and to justify things in a way that they should not have to justify.”

And, he said, both systems rely on heavily-criticised outsourcing companies working on behalf of government departments.

The bureaucratic violence, he said, was “insidious” and so activists “really have to pay attention to catch it.

In both cases, this kind of bureaucratic violence is meant to be a deterrent, either preventing you from accessing the support you need or getting the immigration status that you need.

It would be great if people were a bit more switched on to this kind of violence.”

Lewis added: “We want to break down the traditional separation there has been between disability rights and migrants’ rights because it’s not helpful to anyone.”

The meeting on Friday (14 June, 2-4pm) is the latest workshop to be held alongside the Museum of Austerity’s spring tour of England.

Each of the workshops has been led by Healing Justice LDN (HJL), as part of its Deaths by Welfare project*.

One of the topics for discussion next Friday will be how groups fighting for disability justice and migration justice can build solidarity and work together more closely on local and national actions.

It will be an informal meeting, without presentations, so that those taking part can share thoughts “on how fear and distress is being weaponised by government”. 

Rebecca Yeo, from Disabled People Against Cuts, an activist and academic on disability and migration, said that both groups – people seeking sanctuary in the UK and disabled people – are currently experiencing significant mental distress due to “deliberate government policy”.

She said: “When any life becomes considered disposable, it’s only a matter of time before that is extended to others.

Many policies are tested on one sector before being taken to a wider population.

It was under New Labour that people seeking asylum lost the right to choose where to live. People began to be forcibly moved to areas of cheap housing.”

Many years later, in Bristol, the previous Labour-controlled council proposed a plan that would force disabled people to move from their own homes into residential care if their needs were considered too expensive.

Yeo said: “The government is deliberately inciting a culture of fear.

When they release films of immigration officers bashing down someone’s door, when they incite hatred towards disabled people, when they use ever greater displays of violence at protestors, the purpose is to make us retreat in individual bubbles of fear.

So, we must do the opposite. We must respond with greater determination and solidarity.”

The idea of bureaucratic violence is at the heart of the Museum of Austerity installation, which uses recordings of verbal testimony given by family members and combines that with state-of-the-art technology to recreate the circumstances that led to the deaths of disabled benefit claimants in the post-2010 austerity years.

The production uses ground-breaking “volumetric capture” techniques that have produced high-quality, three-dimensional images.

It focuses on the stories of claimants whose deaths have all previously been linked by Disability News Service (DNS) to the actions and failings of DWP across its assessments, sanctions and safeguarding systems.

The installation is a co-production of English Touring Theatre, the National Theatre’s Immersive Storytelling Studio and Trial & Error Studio.

*To book a place at the free event, visit the Bristol Old Vic website. There will be a BSL interpreter at the discussion

**DNS editor John Pring has worked on both the Deaths by Welfare and Museum of Austerity projects

6 June 2024

 

 

Other disability-related stories covered by mainstream media this week

ITV has agreed to add a British Sign Language (BSL) version of an election debate programme to its on-demand platform, after pressure from a Deaf campaigner. The debate between prime minister Rishi Sunak and Labour leader Keir Starmer, aired on Tuesday evening, and it included subtitles but not a live BSL translation: https://www.bbc.co.uk/news/articles/c9rr0n7rrvzo

The number of patients stuck in NHS mental health units in England despite being clinically ready to leave has reached its highest level in at least eight years. “Delayed discharges” of patients from hospitals in NHS mental health trusts reached 49,677 days in March, according to an analysis – a higher figure than in any month since at least January 2016, when NHS Digital started publishing the data: https://www.theguardian.com/society/article/2024/jun/01/record-number-of-nhs-mental-health-patients-kept-in-hospitals-longer-than-necessary

Thousands of older people in Britain were incorrectly denied an upgrade to their personal independence payment (PIP) in the 2010s, following a major blunder by the Department for Work and Pensions. DWP has promised to pay back anyone who missed out on extra payments after a review of the failure to provide enhanced mobility payments. Experts from Benefits and Work called PIP legislation “badly drafted” after it emerged that thousands of older people who had their claim reviewed between 2013 and 2020 missed out on receiving enhanced payments: https://www.manchestereveningnews.co.uk/news/cost-of-living/dwp-blunder-pip-claimants-backpay-29288510

Adverts for the Alzheimer’s Society which described how a woman with the condition died “again and again and again” have been cleared following 235 complaints that they were irresponsible and caused “unjustifiable distress”. Viewers complained that the ads were excessively distressing, offensive and irresponsible: https://www.independent.co.uk/news/uk/home-news/alzheimers-society-advert-complaints-b2556732.html

The number of thefts of blue parking badges in London has more than quadrupled in the last decade, new figures have revealed. While 1,230 of the badges were stolen in the capital in 2014, the number has risen almost every year since then to hit 6,415 in 2023: https://www.bbc.co.uk/news/articles/crgg4m5pvrpo

6 June 2024

 

News provided by John Pring at www.disabilitynewsservice.com

 Posted by at 12:56
Jun 042024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Why bother with voting when the two main parties are offering such crappy deals for disabled people, and voting for smaller parties won’t effect the outcome.

 

Here’s why you should vote:

Older people tend to vote in very large numbers, and they get:

  • Pensions triple lock
  • Free bus passes
  • Many get free TV licences
  • and other goodies

Younger people tend not to vote, and they get:

  • Tuition fees
  • Insecure work and low wages
  • Expensive housing
  • Benefit sanctions

 

Now we’re not trying to be divisive and set young against old, but we’re showing that politicians know they can bully younger people because they don’t vote much, so there won’t be any comeback at elections, but they are scared of annoying older people who will vote against them.

So if we want a better deal from politics, we need to show that we vote in large numbers and we can hurt political parties that hurt us

So that’s why we need you to register to vote if you are not already, and vote on election day. It’s not very much effort and it could be the only thing that really gets politicians to pay attention to us.

Our future is in your hands

Register to vote to take part in elections in the UK. Includes how to get on the electoral register and how to update your address on the register.

Register to vote by 18th June  https://www.gov.uk/register-to-vote

Get a postal vote by 19th June https://www.gov.uk/how-to-vote/postal-voting

Get voter ID by 26th June https://www.gov.uk/apply-for-photo-id-voter-authority-certificate

Get a proxy vote by 26th June https://www.gov.uk/how-to-vote/voting-by-proxy

Plus – we want to know if you have any problems getting registered, getting ID or problems voting on account of your disability.

We will collate your complaints and send them to the electoral commission

Mail any problems to mail@dpac.uk.net with title Election24 Complaint

 Posted by at 14:40
Jun 012024
 
DPAC Logo

Disabled People Against Cuts were devastated to learn that Faiza Shaheen has been removed as the Labour Party candidate for Chingford and Woodford Green in the forthcoming General Election.

Over the past 14 years many of the atrocities disabled people have faced have been due to Iain Duncan Smith and his so-called Centre for Social Justice so we are horrified to find that Faiza has been deselected by Labour HQ and Keir Starmer.

Faiza is not only a local candidate who cares hugely for her constituency and who has spent the last 6 years building her campaign to remove Duncan Smith from office but is someone we believe could easily have beaten him in the forthcoming General Election.

We find it hard to believe that Keir Starmer seems willing to hand the constituency back to Duncan Smith on a platter and wish to offer our support to Faiza.

We know that several of DPAC members from the Chingford and Wood Green constituency and nearby ones were actively planning to support Faiza’s campaign due to their respect for her but will not be continuing to offer their support for an alternative Labour candidate forced on the constituency.

We as a national campaign group are willing to offer any support we can to facilitate the reinstatement of Faiza as the Labour Party candidate or to offer what support we can if she chooses to stand as an independent candidate.

 Posted by at 06:54
May 302024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

From @BBCAccessAll on twitter

Is there an election issue affecting disabled people you think we should be talking about? Get in touch we really want to hear from you Email us accessall@bbc.co.uk or message us here or on Instagram Our WhatsApp number is 0330 123 9480 start your message with the word ACCESS

 

 Posted by at 16:05
May 302024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

DWP staff tell MPs after years of deaths: We don’t have time to deal with safeguarding ‘carefully’ and ‘correctly’ 1

Anger and frustration after unions refuse to back disabled people’s manifesto 3

MPs forced to abandon DWP safeguarding inquiry after Sunak’s election call 6

Disabled union activists warn Labour: If you break your promises, we will come for you 8

Accessible housing crisis poses ‘clear and direct risk’ to disabled people, say MPs 10

Progress continues on key parts of Conservative disability benefit reforms, despite election 12

Union activists attack government’s ‘dehumanising’ rhetoric 14

Watchdog confirms DWP probe will not take evidence from individual claimants or relatives of those who died 16

Foxcroft promises a Labour government would ‘break down the barriers to work’ 18

Other disability-related stories covered by mainstream media this week 20

 

DWP staff tell MPs after years of deaths: We don’t have time to deal with safeguarding ‘carefully’ and ‘correctly’

Two-thirds of Department for Work and Pensions (DWP) staff still do not have enough time to deal with safeguarding concerns “carefully” and “correctly”, despite years of deaths of benefit claimants linked with DWP’s failings.

Results from a survey* carried out by the Commons work and pensions committee reveal serious concerns about safeguarding shared by a majority of DWP staff who took part, including hundreds who work in jobcentres.

DWP has continued to insist that it takes safeguarding seriously and has repeatedly challenged concerns raised by Disability News Service and others over the last decade, despite hundreds, and probably thousands, of deaths linked to its actions.

John McArdle, co-founder of the disabled people’s grassroots group Black Triangle, described the survey results as “truly shocking” after the years of activism by disabled people aimed at pleading with the department to act on safeguarding.

Mims Davies, the minister for disabled people, insisted to the committee (PDF) in March that the “narrative around DWP’s treatment of vulnerable people has been incredibly unhelpful” and was “not roundly correct”.

But the survey results, published quietly by the committee last week (24 May) after the date for the general election was announced, appear to show that these comments were misleading.

They show that 67 per cent of DWP staff who had direct contact with claimants either disagreed or strongly disagreed with the statement: “I have enough time in my day to deal with safeguarding concerns carefully, correctly and in a timely manner.”

They also show that more than two-fifths (42 per cent) of staff with direct contact with claimants did not believe they received adequate safeguarding training.

And even more (44 per cent) said the safeguarding guidance for frontline staff was not clear, comprehensive and easy to access, while more than a third (36 per cent) did not feel confident about how to handle a safeguarding concern.

The survey was completed by more than 1,700 DWP staff, of whom nearly 1,400 have direct contact with claimants.

It was carried out as part of an inquiry launched by the committee last July into DWP safeguarding.

For the last 10 months, the committee has investigated whether DWP has a duty to safeguard “vulnerable people”, and if it does not, whether it should.

Only last month, DWP admitted missing multiple opportunities to record the “vulnerability” of a disabled woman whose death had been linked by a coroner to failings at the heart of its universal credit working-age benefits system.

The survey results were published on the parliamentary website after the committee’s chair, Labour’s Sir Stephen Timms, wrote to ministers to tell them the inquiry had been abandoned because the committee had not had time to finalise its findings after prime minister Rishi Sunak called a general election and parliament was dissolved (see separate story).

Less than half of those who took part in the committee’s survey (44 per cent) and had direct contact with claimants said safeguarding was seen as a priority within jobcentres, and less than half (48 per cent) said they knew which agencies they could refer claimants to if there was a safeguarding concern.

Just one in four (25 per cent) of those with direct contact with claimants believed there was enough support from management and DWP’s “advanced customer support senior leaders” to ensure effective safeguarding.

In March, Mims Davies had told the committee: “We provide training and guidance for all our customer-facing staff so that they are adaptable to all the different scenarios they may face.”

She also said then that the department had “layers of support for those with complex needs”.

And she claimed it was “a core theme for us as a department to get the core of what we do right but always make sure vulnerability, an individualised, tailored approach and time is given to the people with the needs, and that we create a trusted relationship to then signpost them on to those with the expertise and ability to help with the wider complex needs”.

The Conservative party refused to comment on the survey results this week and said it was “one for the DWP to respond to given that it’s about their internal workings”.

But DWP declined to provide a statement on the survey results, although the department said mental health training was provided to all staff with direct contact with claimants, and that it had co-operated with the committee’s inquiry and had set out the improvements it had brought in to support “vulnerable claimants and those with complex needs”.

John McArdle said the survey results showed that disabled people in vulnerable situations were “taking their life in their hands” when entering a jobcentre.

He said: “You’re literally taking your life in your hands going in there when you’re a vulnerable person, and nobody seems to care enough to do anything about it.

How on earth can they sleep at night? We are just statistics to them.

They have been playing fast and loose with disabled people’s lives.”

He said the figures showed the department was in meltdown, and confirmed the picture shown by the dossier of evidence submitted by the PCS union to the department last December.

Evidence from PCS members in that dossier showed DWP to be a failing organisation in a “state of crisis” and facing a “near collapse” of its benefits systems, with staff accusing the department of “deliberate neglect” and revealing that claimants in vulnerable situations were “falling through the gaps” in the system.

McArdle also pointed to the failure of the Equality and Human Rights Commission to act on concerns about DWP and the safety of claimants for at least five years.

The commission finally launched an investigation into unlawful treatment of disabled benefit claimants last week, five years after it was first asked to act by Labour’s Debbie Abrahams (see separate story).

He said: “The EHRC should have been all over this like a cheap suit, but they have not lifted a finger.”

*The survey was distributed through the Public and Commercial Services Union (PCS) to DWP staff who were PCS members, so the majority of respondents are likely to have been PCS staff, although PCS members were able to share the survey link with other colleagues

30 May 2024

 

 

Anger and frustration after unions refuse to back disabled people’s manifesto

Disabled union delegates have been accused of failing to support the disability movement after refusing to back a motion at their annual conference that called on political parties, and the TUC, to support a manifesto drawn up by disabled people’s organisations.

Opposition to the Disabled People’s Manifesto appears to have started with the refusal of the influential National Education Union (NEU) and the NASUWT teachers’ union to support its demands on inclusive education.

The manifesto, put together by DPO Forum England and supported by 40 disabled people’s organisations (DPOs), calls for a “right for every Disabled and Deaf student to get appropriate support to attend and remain in a fully inclusive mainstream education setting”.

It also lays out a “radical reform programme” across the areas of representation and voice, rights, independence, and inclusion, which is aimed at tackling “disablist policy making and systemic oppression and injustice”.

Despite DPOs expecting a motion supporting the manifesto to be approved, it was opposed by NEU, NASUWT and even the TUC disabled workers’ committee, the body elected annually by disabled delegates to the conference, and which advises the TUC on disability policy. 

The committee told the conference in a statement that it supported the “vast majority” of the manifesto, but that the document “does not call out the resourcing and funding crisis facing schools when it comes to the delivery of SEND*”.

It also said it was concerned that the manifesto’s wording was “still subject to change” and that it did not want to commit the TUC and its affiliated unions to “a manifesto that could be altered”.

There was frustration and anger from disabled activists this week at the actions of union delegates at the conference in Liverpool.

Simone Aspis, a lifelong campaigner for inclusive education, and a former policy and campaigns coordinator for The Alliance for Inclusive Education, but speaking on behalf of her consultancy Changing Perspectives, said she was “angry” and “very disappointed” by the unions’ actions and their failure to support the manifesto.

She said: “Ever since I have been involved with the disabled people’s movement, I have never really felt that unions have really supported disabled people in terms of advocating for their rights.”

But Aspis, who attended a segregated special school herself, said she would not have expected the unions that represent school teaching staff to vote any other way “because they are worried about their workers losing their jobs in segregated provision” and have a “vested interest” which should be examined.

She added: “It will take some very brave union to actually say, ‘This is where we want to go and some workers will lose their jobs, but we really want an inclusive society.’”

Bob Ellard, a member of the national steering group of Disabled People Against Cuts, said: “Solidarity of the left with disabled people only seems to apply when organisations want something from us, but not when we ask them to do something for us. 

Again and again over years, disabled people have been let down by people who style themselves fighters for social justice. 

Are we surprised by this? No, we’re used to it.”

And Professor Peter Beresford, co-chair of Shaping Our Lives, said: “There isn’t a public service which hasn’t been damaged and subverted by the privatising and small state politics of at least the last 15 years.

We know that well-thought-through and well-resourced inclusive education is in the best interest of all school students, properly implemented.

We know that successive Conservative administrations have shown no commitment to the diversity of children’s educational needs and have done little to support truly inclusive education, more often the opposite.

But knowing this does not mean that we lose sight of the principles of inclusive education or our long-term commitment to them.

There is now real hope for ideological change in the UK; now is the time to recommit ourselves to disabled people-led inclusive education, not to weaken our support for it.”

Jonathan Bellshaw, a member of the disabled workers’ committee and a Communication Workers Union delegate, had spoken against the manifesto at the conference.

He told the conference that “we have to be very careful when we say let’s use mainstream for SEND”, and he told delegates that when he had been a school governor there was a disabled pupil “who was not suitable for mainstream school”.

Among his other concerns was that the manifesto’s two-week timeframe for dealing with requests for reasonable adjustments was not realistic because, he said, Brexit meant it now takes more than two weeks to obtain specialist chairs from Europe.

Kat Downs, from NASUWT, questioned the demand for accessible housing in the manifesto, because she said it wasn’t clear who would decide whether housing was accessible, and she did not trust “the government and the planning laws”.

She said that, as an autistic teacher, she supported “the right for anybody to choose where they want to be educated”.

She said: “Class sizes right now, in some schools, are way in excess of 30, 34, 35.

If I was an autistic person sat in one of those classrooms right now, I would not be maintaining mainstream education.”

Kevin Daws, from the University and College Union, had led support for the motion, and told delegates that the document “reaffirms our commitment to the social model of disability” and is “a manifesto for change, a manifesto which provides a new deal for Deaf and disabled people”.

He said: “The manifesto is a call to arms, it’s saying that we as disabled people are proud.

We’ve had enough of the warm words. We demand a change. And the manifesto is a tool with which to engage with us.”

Austin Harney, a delegate from the PCS union, seconded the motion, and told the conference that it was important to “build alliances” with disabled people’s organisations by supporting the manifesto.

In response to concerns raised by NEU and NASUWT, Daws told delegates: “We should remember that having segregated schools for people with special educational needs is actually based on a medical model of disability and is designed to isolate those people, exclude them from mainstream education.”

And he pointed to government evidence that found that greater inclusion in mainstream settings “can improve the academic achievement for children and young people with special educational needs”.

He said the manifesto “actually includes a demand to commit an extra three billion pounds per year for education support to fund SEND; in other words, properly-funded special educational needs within mainstream schools”.

And he reminded Bellshaw that the demand for a response to reasonable adjustment requests within two weeks was current TUC policy, and had been approved by the disabled workers’ conference in 2022.

The manifesto has been put together by the country’s leading disabled people’s organisations, and disabled activists had hoped that backing from the TUC Disabled Workers’ Conference would help pressure the Labour party ahead of July’s general election.

But opposition from NEU – whose delegates wore “disability pride” tee-shirts to the conference – NASUWT and other unions, meant a motion supporting the manifesto was defeated by 67 votes to 52, with 20 abstentions.

A spokesperson for DPO Forum England said: “We are disappointed the motion in support of our manifesto did not go through.

However, we are grateful and proud that 52 representatives voted for it. 

We will build on this support, recognising a huge need for DPOs and the unions to work together to create spaces for solidarity among disabled people. 

We know there are fundamental disagreements and we urge the unions to work with us to create opportunities where campaigners for inclusion can be at the table, explain their vision and be heard.”

*Special educational needs and disabilities

30 May 2024

 

 

MPs forced to abandon DWP safeguarding inquiry after Sunak’s election call

MPs have been forced to abandon a 10-month inquiry into safeguarding arrangements at the Department for Work and Pensions (DWP), just weeks before they were due to report its findings, because of the prime minister’s decision to call a general election.

Last week’s surprise decision by Rishi Sunak meant the Commons work and pensions committee did not have time to finalise its report.

The inquiry was launched last July and followed countless deaths of disabled benefit claimants linked to DWP’s actions and failings over more than a decade.

For the last 10 months, the committee has investigated whether DWP has a duty to safeguard “vulnerable people”, and if it does not, whether it should.

It was the first serious public investigation into safeguarding at DWP since reports of deaths first began to emerge in the early years of the 2010 Conservative-Liberal Democrat coalition government.

But Sir Stephen Timms, the committee’s chair, told DWP ministers Mims Davies and Viscount Younger in a letter that it had not been possible for the committee to agree a report before parliament was dissolved.

He wrote: “We hope that the evidence we have gathered will be of interest to our successor Committee, the next Government and to the individuals and organisations outside of Parliament and Government who are interested in the matters covered by this inquiry.”

He told Disability News Service (DNS) yesterday (Wednesday) that the committee had not reached the stage of having a draft report to consider by the time the election was called.

He said: “It is very disappointing that we haven’t been able to complete the work.”

Another committee member, the SNP’s David Linden, told DNS that he was “incredibly hopeful” that the committee “could pick up where we left off” with the inquiry’s evidence once it has been set up with new membership as part of the next parliament.

The committee has also published some evidence it gathered during the inquiry, including the results of a survey of DWP staff, which found that two-thirds of them still do not have enough time to deal with safeguarding concerns “carefully” and “correctly” (see separate story).

The survey results also show that more than two-fifths of DWP staff do not believe they receive adequate safeguarding training, while a similar number said DWP’s safeguarding guidance for frontline staff was not clear, comprehensive and easily accessed.

*The Department, DNS editor John Pring’s book on DWP and how its actions led to countless deaths of disabled people in the post-2010 era, will be published by Pluto Press in August. Visit the DNS website for a 50 per cent discount  

30 May 2024

 

 

Disabled union activists warn Labour: If you break your promises, we will come for you

Disabled trade unionists have warned that they will hold Labour to account on the promises it makes to improve the rights of disabled workers, if the party wins power at July’s general election.

They have also called for activists to exert pressure on Labour during the election campaign to persuade it to expand its existing pledges on disability employment.

And they called on the party to include in its general election manifesto all the measures in the Disability Employment Charter, which aims to address the widespread disadvantage disabled people face in their working lives.

The charter was founded by organisations including Disability Rights UK, the public services union UNISON and the Disability@Work group of academics, who have played a significant role in raising evidenced concerns about the Conservative government’s policies on disability employment.

Lola Oyewusi, a UNISON delegate, told the TUC Disabled Workers’ Conference in Liverpool: “To win for disabled workers is very paramount to the success of a Labour government.

If Labour does not deliver for disabled workers, we will definitely hold them to account.”

And she warned Vicky Foxcroft, Labour’s shadow minister for disabled people, who had spoken at the conference the previous day, that – if she becomes minister for disabled people – “we will surely make sure she delivers”.

Anong the policies described by Foxcroft in her speech – many of which are in the charter – was a pledge to force larger employers to report on their disability pay gaps; reform of the Access to Work scheme; action to make it easier for disabled workers to secure reasonable adjustments; and reform of the government’s much-criticised Disability Confident scheme.

Lee Starr-Elliott, a delegate from the Communication Workers Union, told the conference: “It is now imperative that we rid ourselves of the Tories.

However, it’s just as important that the Labour party is held to account and do not repeat or continue the mistakes that the current government are making.”

He added: “Attacks on Deaf and disabled people and workers must be stopped, and we need a Labour party that embraces and works with disabled people and groups to make the change for the better.

Access to Work, disability benefits and many other programmes must be fixed, and the rights of disabled people and workers must be strengthened, especially in employment, where we are seeing the biggest number of attacks from both the employer and the DWP.

Labour must also be held to account and commit to being a leading figure in disability issues, both nationally and internally.”

Philip Blundell, a Unite delegate, called on the Labour party to stand with the union movement.

But he added: “Don’t do it and you’re part of the enemy and we will come for you.”

He told delegates: “Go back to your workplaces, ask people to vote Labour, then we’ll hold them to account.

And if they don’t bring in, within the first 100 days, what they said they were going to do, we will hold them to account. We will march.”

Alison Gaughan, from the University and College Union, told fellow delegates: “I want to see the back of the Tories as much as anybody.

However, I’m sceptical about how much will change when Labour come to power.

I welcome the promises that we’ve heard from Labour. I hope they will come to pass, but I’m not holding my breath.”

She added: “We know that we live in a system where if the needs of disabled people come up against the interests of capital, capital will win.

We shouldn’t forget that the Labour party has committed to the same economic rules as the Tories adhere to.

Shadow chancellor Rachel Reeves has repeatedly emphasised her commitment to so-called fiscal responsibility, and she cosies up to business leaders.

The TUC must hold Labour to all their promises on disability, and more.

We want full equality for disabled people and a full commitment to the Disability Employment Charter and the UNCRPD*.”

Ian Thomas, from the PCS union, pointed out that only two of the unions represented at the conference had signed up to the charter themselves, despite 187 organisations backing it.

He said: “If we all… go back to our own unions and say, ‘Why haven’t you signed it yet?’ that action alone would really boost the visible sign that we as trade unions are signed up to the Disability Employment Charter, that we want to see a workplace where disability employment rights are recognised by the employers that we are negotiating with.”

Dougie Johnstone, a delegate from the bakers’ union BFAWU, told the conference that although he was looking forward to “getting rid” of the Conservatives, he also had “some concerns” about the Labour party.

He pleaded with Labour to ignore the “nice headlines you’ll get in the Tory rags” and “be the party that says, ‘I will stand up for everyone.’”

The motion was passed with only a handful of abstentions.

*UN Convention on the Rights of Persons with Disabilities

30 May 2024

 

 

Accessible housing crisis poses ‘clear and direct risk’ to disabled people, say MPs

The shortage of accessible housing in England poses a “clear and direct risk” to disabled people across the country, with many of them living in unsuitable accommodation for years “without hope”, a report by a committee of MPs has concluded.

Members of the cross-party levelling up, housing and communities committee said in their report that too many disabled people had been failed by the government’s housing policy, with the resulting shortage of accessible housing posing a direct risk to their “dignity, health, and wellbeing”.

Hundreds of disabled people submitted accounts to the committee of their experiences, with many describing the “horrendous impact that living in inaccessible housing can have on a disabled person’s life”.

The Commons committee – which had a Conservative majority – said it had been told of “decades-long” waiting-lists for accessible social housing; significantly higher asking prices for accessible homes; and some landlords denying permission for home adaptations.

And it concluded: “We have found little evidence that the Department for Levelling Up, Housing and Communities is treating disabled people’s needs as a priority in housing policy.”

The committee was highly critical of the government for failing to implement its “headline” policy to address the shortage of accessible housing: increasing the minimum accessibility level of all new-build homes to the M4(2) standard*.

It is now almost two years since the policy was first announced, and almost four years since it was first consulted on, the committee said.

The report also calls on all local authorities in England to include a minimum percentage of M4(3) standard* homes in their local plans.

And it highlights “many shortcomings” in the disabled facilities grant (DFG) system, and calls on the government to raise the current £30,000 upper limit on individual DFG grants.

The committee said it was “deeply disappointing” that the government had still not acted on the main findings of a review it commissioned, which reported in 2018, that made “several appropriate and valuable recommendations on DFG funding, eligibility, and the delivery process”.

The report also points out that none of the actions in the government’s much-criticised Disability Action Plan “specifically address housing for disabled people”.

In fact, the only “substantive reassurance” that housing and homelessness minister Felicity Buchan could provide to the committee was that she had “heard from lots of people on the ground” in her capacity as her department’s ministerial disability champion.

Among those who gave evidence to the committee, one wheelchair-user had been on a waiting-list for accessible accommodation for 16 years, and had been living in temporary accommodation for 13 years, “with no indication as to when an accessible home might become available”.

Another disabled person told the committee they felt “trapped in their own home” because they could only leave with assistance from someone to “bump them down the steps in a wheelchair”.

A third disabled person said they had been told by a London council that there would be a 40-year waiting-time for accessible social housing.

The Department for Levelling Up, Housing and Communities said it was unable to comment on the report because the government was now in the pre-election period.

But Mikey Erhardt, policy and campaigns officer at Disability Rights UK, said: “Almost 30 years after the Disability Discrimination Act and with the UK population including over 14 million disabled citizens, we still have public and private housing that totally fails to meet the needs of disabled people.

We should all have the right to affordable, accessible housing that keeps us warm and safe.

As I told the committee, no one is more at fault for this dangerous mess than successive UK governments.

They have failed to fund the building of social housing, leaving us in 2023 with six times more newly homeless families than new social houses.

They have left us stranded, nowhere near the 100,000-a-year target that we need, with record numbers of disabled people in inaccessible, unsafe, and incredibly costly temporary accommodation.

The committee’s recommendations are welcome, and we urge the next government to use them to make major changes to our housing system.

The way out of this mess is clear – freeze rents, build more affordable, accessible social rented homes, improve the avenues through which disabled people can get our homes adapted, and create a minimum accessibility standard reflective of the needs of the local population.”

*Homes built to the M4(2) standard have 16 accessible or adaptable features, similar to the Lifetime Homes standard developed in the early 1990s, to make homes more easily adaptable for lifetime use, while M4(3) homes are those that are supposed to be fully wheelchair-accessible

30 May 2024

 

 

Progress continues on key parts of Conservative disability benefit reforms, despite election

Progress on key parts of the government’s disability benefit reform agenda is unlikely to be significantly disrupted by July’s surprise general election, Disability News Service (DNS) has established.

Rishi Sunak’s decision to hold a general election on 4 July means parliament has been dissolved and a series of government bills have had to be scrapped.

But the dissolution of parliament also came in the middle of a crucial DWP consultation and a call for evidence.

The Modernising Support for Independent Living green paper and consultation – which includes options for making it harder to claim personal independence payment and even replacing cash payments with vouchers or one-off grants – is due to close on 22 July.

And the call for evidence on fit note reform – which could see responsibility for issuing fit notes shifted away from GPs and towards “specialist work and health professionals” – is due to close on 8 July.

Although there have been suggestions that the consultation and call for evidence would now have to be abandoned, because of the election, that is not correct.

Civil Service guidance states clearly that ongoing consultations “should continue as normal” and adds: “During the election period, departments may continue to receive and analyse responses with a view to putting proposals to the incoming government but they should not make any statement or generate publicity during this period.”   

When asked about the consultation and the call for evidence, DWP would only confirm when they were launched and when they were due to end.

DWP also provided little certainty on other key policies this week.

Policies announced in recent months by the Conservative government appear to be ongoing and there is no suggestion that they have been put on hold by DWP civil servants during the election campaign.

These include plans to accelerate the migration of claimants of employment and support allowance onto universal credit, which is now due to begin in September; plans to tighten the work capability assessment (WCA) from next year; and medium-term proposals to scrap the WCA.

DWP declined to comment on any of these three policies, and directed DNS only to a written statement made by employment minister Jo Churchill last week, in which she laid out the timetable for the universal credit migration.

Despite that statement, there have been mounting concerns about universal credit and its “potential threat to our safety and well-being”, with two coroners writing to DWP in the last year to raise concerns about safeguarding issues after suicides of disabled claimants, including the death of Nazerine Anderson.

Among other policy ideas likely to be presented to the next set of DWP ministers, whichever party wins the election, are the government’s plans for a new fraud bill.

This would give DWP fraud investigators new powers to make arrests, conduct searches and seize possessions, which it has said would “allow DWP to control the end-to-end investigation in the most serious criminal cases, applying for the warrants, leading the operation and searching and seizing evidence”.

That bill would also introduce a new civil penalty for benefit fraud with a “lower burden of proof”.

And although Conservative plans to give DWP sweeping new powers to carry out financial surveillance on benefit claimants through their bank accounts will now be abandoned, as the data protection and digital information bill was not passed before parliament was dissolved, there is nothing to stop the next government re-introducing those measures.

These proposed new anti-fraud powers have been heavily-criticised by many disabled people’s organisations and allies.

Although these anti-fraud policies – and other DWP proposals brought forward in recent months – have been presented as Conservative policies, the history of DWP and the Department of Social Security (DSS) before it, strongly suggests that departmental policy will continue to be driven by senior civil servants rather than politicians.

The last time there was a changeover from a Conservative to a Labour government, in 1997, policy on disability benefits, assessments, fraud and the use of private sector contractors – as well as the culture within DSS – hardly changed.

Labour has yet to express a clear opinion on whether it would take on or scrap existing Conservative DWP policies.

30 May 2024

 

 

Union activists attack government’s ‘dehumanising’ rhetoric

Disabled union activists have attacked the government’s demonisation of disabled people and its “disgraceful discriminatory language”, at a conference that began less than a day after prime minister Rishi Sunak finally announced the date of the general election.

A series of five emergency motions approved by delegates at the TUC Disabled Workers’ Conference in Liverpool condemned the Conservative government’s repeated attacks on disabled people’s rights, particularly through its social security reforms.

There were also calls for the UN Convention on the Rights of Persons with Disabilities (UNCRPD) to be enshrined into UK law.

One of the motions said Sunak and his government’s actions effectively “declare war on disabled people”.

Austin Harney, a delegate from the PCS union, which represents many Department for Work and Pensions (DWP) staff, attacked DWP for issuing “disgraceful benefit sanctions on disabled claimants”.

He called for unions to pressure a Labour government “to get rid of these sanctions once and for all”, and he accused the government of committing “what you could call corporate manslaughter or political murder” because of the impact of its DWP policies on disabled people.

He said: “It’s also terrible how this war on disabled people is not being taken very, very seriously and it’s time for all of us trade unions to stand together to do something about this.”

Kevin Daws, from the University and College Union, said he was “angry that the government are demonising disabled people and treating them as undeserving citizens”.

Criticising Sunak’s claim that there was a “sick note culture”, he said: “The level of statutory sick pay is so low that people go to work when they are sick because they have no choice, as we witnessed during the Covid pandemic.”

And Falyn Waterman, from USDAW, told fellow delegates: “Rishi talks about a sick note culture, tells us that we as a country can’t afford to have this many people sick, when he and his government are responsible for making us sicker and making us poorer and poorer.”

Moving the “war on disabled people” motion, Unite’s Sadia Mirza told the conference: “We all know that real change comes from the top and will only come once the [UNCRPD] is enshrined into UK law.

Disabled people are not outcasts. We are an important minority and deserve our basic rights.”

She said the government’s failure to send a minister to Geneva in March to defend its disability rights record in front of the UN’s committee on the rights of disabled people “showed the lack of priority towards the rights of disabled people”.

Lee Starr-Elliott, a delegate from the Communication Workers Union, moved an emergency motion that condemned the government’s “systematic violations of disabled people’s rights”, as demonstrated by the UN committee.

He was one of the union activists who joined the delegation of disabled people who were in Geneva in March to hear a civil servant defend the government’s record.

He told fellow delegates that it was “no surprise” to see the government and mainstream media ignore the UN’s subsequent report or even challenge it, but he added: “What was even more concerning was the lack of trade union support for disabled activists who have fought to highlight the abuses and hold government to account.”

He said: “The election is a golden opportunity for the TUC and its affiliates to lead Labour forward and ensure the UN’s recommendations are carried out and going forward we have a joined up collective approach to making Deaf and disabled people feel a valued part of society… now is not the time to be silent.”

Natasha Hirst, the first disabled activist to be president of the National Union of Journalists, said the government’s rhetoric on disabled people had been “designed to dehumanise us and to shift public opinion towards the narrative that tells us that our lives are worth less, that we are a drain and a burden and that we are evading playing our part in society”.

Hirst was another of the union activists who joined the Geneva delegation in March.

She was critical of the mainstream media for its lack of coverage of the UN report and the government’s benefit reforms, and she moved an emergency motion that attacked the “inaccurate negative and unethical coverage of disability issues” by the media.

She told the conference: “Policy changes to social security have made it impossible for most people to understand and access the support that they are entitled to unless they have an expert advocate by their side.

The inequalities and injustices that we experience as disabled people are a direct result of political choices and these are choices that are made by people who have never experienced oppression, who have never experienced the sharp end of our social security system, an incredibly demoralizing experience to go through.”

She added: “The government is not being held to account or shamed for its failures, and it empowers them to continue with their agenda.”

All five of the emergency motions were overwhelmingly passed by the conference.

30 May 2024

 

 

Watchdog confirms DWP probe will not take evidence from individual claimants or relatives of those who died

An investigation into unlawful treatment of disabled benefit claimants will not accept evidence from individual disabled people or relatives of those who died through failings of the Department for Work and Pensions (DWP), the equality watchdog has confirmed.

The Equality and Human Rights Commission (EHRC) was criticised last week when it emerged that its investigation into possible “unlawful acts” by successive work and pensions secretaries would not take evidence from members of the public.

It confirmed this week that it would not seek evidence from individuals because it did not consider this to be “proportionate”.

Instead, disabled people who claim benefits, and relatives of claimants who have died, will be expected to contact a “relevant organisation or representative such as an MP to provide their story”.

Disability News Service (DNS) has already seen one response from EHRC to the relative of a claimant who took their own life due to DWP failings.

The relative attempted to provide evidence to the commission, but has been told by EHRC that it is “not taking information or evidence from individual members of the public, other than employees or former employees of the DWP or their contracted health assessors”.

An EHRC spokesperson told Disability News Service yesterday (Wednesday): “Inviting evidence through third party organisations who represent disabled people is a proportionate way to gather the evidence necessary for the investigation, ensures that we are receiving the most relevant submissions and enables the investigation to conclude within a reasonable time.”

But the commission has confirmed that it will receive evidence from disabled people’s organisations (DPOs).

The inquiry’s terms of reference stated that it wanted to hear from “charities, third sector and advocacy organisations” and some disabled activists questioned whether this could exclude their evidence.

But after being contacted by DNS, an EHRC spokesperson said: “Disabled people’s organisations are welcome to submit evidence to the investigation.

The list on our website is intended as a guide, but we will update it to make it clear that disabled people’s organisations are included.

We have already invited a number of disabled people’s organisations, alongside other stakeholders, to attend a session on 4 June so that we can provide more information about our investigation and assessment.”

EHRC has also suggested that it could take evidence relating to some deaths of claimants who died before January 2021.

There were concerns that the inquiry was only focused on events from January 2021 onwards.

The focus on the last three-and-a-half years could have meant the investigation did not consider evidence relating to some of the most high-profile and disturbing deaths linked to DWP’s failures, such as those of Philippa Day (September 2019)Jodey Whiting (February 2017)Michael O’Sullivan (September 2013)Roy Curtis (November 2018) and Errol Graham (spring 2018)

And it could also have meant a focus on the actions of just three work and pensions secretaries: Therese Coffey, Chloe Smith (who was in post for less than two months in 2022) and Mel Stride, who current occupies the position. 

But when asked this week about the earlier cases, the spokesperson pointed to the inquiry’s terms of reference, which state that the investigation will look at earlier periods “if relevant, necessary and proportionate”.

He said: “This allows investigators to consider evidence from earlier than 2021 if appropriate and relevant.”

The EHRC investigation will examine concerns that successive secretaries of state may have broken the Equality Act in the way their department has carried out benefit assessments. 

It will particularly examine the work capability assessment (WCA) and the assessment for personal independence payment (PIP), and it will include the impact of the WCA on universal credit claimants. 

It will focus on failures to make reasonable adjustments for people with mental distress and learning difficulties. 

The commission will also be assessing whether DWP breached its obligations under the Equality Act’s public sector equality duty. 

DWP could face a potentially unlimited fine if the allegations are found proven, and be required to produce an action plan to correct its failings. 

Calls for EHRC to act date back as far as April 2019, when Labour’s Debbie Abrahams wrote to the commission to ask it to investigate deaths linked to the WCA and PIP assessment processes. 

*The Department, DNS editor John Pring’s book on DWP and how its actions led to countless deaths of disabled people in the post-2010 era, will be published by Pluto Press in August. Visit the DNS website for a 50 per cent discount  

30 May 2024

 

 

Foxcroft promises a Labour government would ‘break down the barriers to work’

A Labour government would introduce a string of policies to reduce the disability employment gap and strengthen the rights of disabled people in the workplace, Labour’s shadow disability minister has told union activists.

Vicky Foxcroft also told the TUC Disabled Workers’ Conference in Liverpool that her party would “end the politics of division”, although there was no mention in her speech of how a Labour government would address the key issue of disability benefit assessment reform.

Although the audience of disabled workers meant her speech was always likely to focus on employment, the content did suggest that Labour’s manifesto offer to disabled people is likely to focus strongly on jobs and employment support.

Foxcroft told the conference: “We will break down the barriers so that disabled people will have exactly the same rights to get into and get on in work as non-disabled people.”

Among her pledges was that a Labour government would “make it easier to secure reasonable adjustments in a timely manner, including when changing jobs or when circumstances change”.

And she repeated the party’s long-standing commitment to co-produce disability-related policies with disabled people, although there was no detail on how this would be done.

She said she was “working with colleagues across the shadow cabinet to ensure disabled people are at the heart of all of our policy-making”, and she promised that a Labour government would “restore and strengthen disabled people’s rights”.

She said: “Co-production with disabled people is key to delivering this, and I can assure you that this will be at the heart of everything that we do.”

Foxcroft said Labour’s planned New Deal for Working People would “hugely benefit disabled people and those with long-term health conditions”.

Employers would be required to accommodate all “reasonable” requests for flexible working; the “time and facilities” available for trade union representatives to do their work would be improved; and there would be new rights for union equality representatives.

There would also be a review of health and safety guidance to “properly support people with mental health conditions”; improvements to statutory sick pay, so it is available to “all workers, including the low paid”; and action to close the disability pay gap, including forcing firms with more than 250 employees to report on how their disabled and non-disabled employees are paid.

And, she said, Labour would ensure “full rights to equal pay for disabled people alongside Black, Asian and ethnic minority people”.

Foxcroft promised that a Labour government would “reform jobcentres so that they have a new focus on tackling the barriers to good employment” and would force them to work closely with “other agencies including the NHS”.

There was also a promise to “overhaul” the government’s Access to Work disability employment scheme – an area she has focused on in parliament in recent months – so “disabled people know what equipment and adaptations or personal support they will get before they start work, giving them the confidence to take the plunge”.

Her one reference to benefits was to repeat Labour’s promise that those receiving out-of-work disability benefits who are not currently expected to seek work would be able to try employment “without fear of losing their income or having to be reassessed if it doesn’t work out”.

TUC general secretary Paul Nowak told the conference, the day after Foxcroft’s speech, that Labour’s New Deal for Working People would provide the “biggest expansion of workers’ rights and, crucially, trade union rights in a generation”.

He added: “Regardless of what you’ve read in the press, regardless of what the employers’ organisations say, regardless of what the likes of Peter Mandelson say, our unions expect Keir Starmer to deliver that new deal for workers in full in the first 100 days of a Labour government and I’m going to make sure it happens.”

Nowak said the government’s attempts to target disabled people as benefit cheats had been “disgusting” and would be part of how the Conservatives will “go more and more into the gutter” as election day approaches.

He called for “a completely new approach, rooted in a social model of disability, so we build a world of work that is accessible by default, not where there are barriers to begin with.

The current medical model, which dominates our law and employment practice and our welfare system, simply isn’t fit for purpose.”

He added: “If you’re disabled in Britain today, you’re less likely to be in work.

If you are in work, you’re more likely to be in low pay; you’re more likely to be on a zero hours contract.”

He said the government had made “zero progress” in tackling the disability pay gap, with “disabled workers still losing £70 a week, the pay gap higher than it was a decade ago, and disabled women faring worst of all with their pay penalty doubling under the Tories”.

Nowak told the conference: “This isn’t about the odd bad employer or the odd bit of bad practice, it’s systematic inequality, discrimination and unfairness in our labour markets, our economy and our society and that’s why we need change.”

30 May 2024

 

 

Other disability-related stories covered by mainstream media this week

Rishi Sunak has been ordered to publish secret documents showing the impact of his cut to universal credit. As chancellor, the prime minister ignored pleas from campaigners by scrapping the £20-per-week uplift introduced during the pandemic. The government has refused to release an analysis examining the impact of not extending the support. But in a victory for the Mirror, the Information Commissioner’s Office has now ordered the Treasury to disclose the details: https://www.mirror.co.uk/news/politics/rishi-sunak-ordered-publish-secret-32895976

30 May 2024

 

News provided by John Pring at www.disabilitynewsservice.com

 

 Posted by at 14:20
May 252024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Update on the situation with recent Government benefits changes

Now the election has been called, disabled people will be wondering what that means for the recent changes to PIP, Fit notes and the Bank Snooping law

The bank account snooping law

This has failed in the Lords and the government are letting if fail, by not forcing it through, so it is now dead and won’t happen, unless the Tories get re-elected and decide to re-introduce the bill and start over again, which seems unlikely at the moment.

The PIP changes and Fit Note Reform

The first stage in implementing this is a consultation for each rule change which have started and both are going to end in July. These consultations have to happen before any rule changes can take place.

According to civil service rules for elections, the consultations have to go ahead, but it will be up to the next work and pensions minister (whoever that is) on whether they want to carry on with the changes or just drop them.

Who will be the next minister and what will they do?

Nothing is ever certain with elections, so while we don’t know who the next minister will be, we think it will probably be a Labour minister rather than a Tory one.

Will Labour carry on with the PIP changes and Fit note reform?

We hope not, but we don’t know for sure.

However we can try to influence Labour to drop the changes, by pestering Labour candidates to say whether Labour would go ahead with them or not.

If enough of us ask our Labour election candidates what Labour will do, this could get reported back as something a lot of people care about and that’s where our influence comes in.

So it’s up to you. Contact your Labour parliamentary candidate, especially if you live in a Labour target seat and ask them what Labour would do and you could tell them your vote depends on their answer.

You can contact your candidate by just searching for their name to get to their website.

 Posted by at 18:38
May 232024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Disabled benefit tribunal member says DWP drove her repeatedly to brink of suicide 1

Concern over scope of EHRC inquiry into ‘unlawful acts’ by work and pensions secretaries 3

Council sparks anger over refusal to release details of care cuts agreement with consultancy 9

DWP silent over whether Sunak was wrong to say PIP was being exploited, as fraud falls to zero 11

Baroness Grey-Thompson runs out of time in the Lords as she lists access barriers faced by disabled people 13

Government failure on mental health detentions ‘is scandalous’ 16

Low traffic neighbourhoods can often damage disabled people’s independence, MPs are told 18

Other disability-related stories covered by mainstream media this week 21

Disabled benefit tribunal member says DWP drove her repeatedly to brink of suicide

A disabled woman who sits on a social security tribunal has described how the incompetence and abusive actions of the Department for Work and Pensions (DWP) have driven her repeatedly to the brink of suicide.

Katherine*, who continues to sit on the tribunal, is now terrified that the department is investigating her for benefit fraud, even though she says she has done nothing wrong and is very careful to stay within the rules.

With a general election now just six weeks away, she says the department’s actions prove again that DWP is not fit for purpose, puts the lives of claimants with mental distress at risk, and needs top-to-bottom reform under the next government.

She has repeatedly told DWP of her history of suicidal ideation and suicide attempts, as well as her diagnosis of PTSD as a result of domestic violence, but she says this has had no impact on what she believes is a campaign of harassment.

She says DWP keeps making mistakes over the complex rules that relate to benefit claimants who sit on tribunals, despite her informing them repeatedly that she is “actively suicidal” and that its letters are having a very damaging effect on her mental health.

Its behaviour even led to her telling her two adult children on Christmas Day that she wanted to die, and that DWP was partly to blame.

She told Disability News Service (DNS) this week: “I am in real fear because I think they are going to turn up and send the police for fraud.

Every day I think, will it be today, the day the letter arrives with the postman? If I get a letter like that it is quite likely I will kill myself.

They don’t seem to give a damn if people are suicidal or killing themselves.”

Katherine, who has a law degree and has passed the legal practice course, was a justice of the peace (a lay magistrate) for 15 years and applied for a position as a disability qualified member of the social security tribunal in 2017.

Since 2014, she has been in the support group of employment and support allowance (ESA), which places a strict limit on how much she can earn every week under its permitted work rules.

But she wrote to DWP before she started working with the tribunal to check if the part-time tribunal role was allowed under permitted work and what impact it would have on her ESA if she took it up.

She said in the August 2018 letter that she was “terrified that I will end up in another suicidal crisis”, and added: “Please would you confirm that there would be no consequences from DWP [and its assessment company] that will be detrimental to my health if I were to undertake this role?”

But she never heard back from DWP in response to her letter.

Katherine, who lives in the south-west of England, started working as a disability qualified panel member of the first-tier tribunal in December 2018, sitting on a panel with a judge and a medical member and hearing benefit appeals.

She was soon told by her judicial mentor about a DWP regulation that allowed ESA claimants working as tribunal members to work a maximum of one full day or two half days a week, and still receive their full ESA entitlement.

Ever since, she has kept strictly under that limit.

But within weeks, DWP was sending her letters telling her that she had exceeded the permitted work limits – which appear to be based on a fundamental misunderstanding of their own rules – and deducting money from her ESA. It eventually fined her £50.

In a period of just over a year, she was sent 15 different entitlement, overpayment and civil penalty decisions by DWP.

All but one of these decisions were later conceded by DWP or set aside by the first-tier tribunal, she says.

At one point, during the pandemic, DWP sent her a letter telling her that her ESA had been stopped completely, a letter she received the day she returned home from hospital after a suicide attempt.

She appealed against DWP’s decision on her permitted work but eventually lost on one overpayment decision two years later.

But Katherine realised the tribunal had made legal errors, and appealed the ruling.

Just days before the upper tribunal was set to hear her case, in December 2022, DWP – which had instructed a barrister – capitulated and agreed that she had not been told clearly enough before she started working as a tribunal member how many days she would be able to work every week.

The tribunal ruled that money deducted from her benefits would have to be repaid.

But, she says, DWP never repaid it, nor the hundreds of pounds in arrears owed to her for just over five years.

And last year, DWP began to harass her again, despite her repeatedly informing the department that this harassment was making her suicidal and the tribunal having made it clear that it was misapplying the law.

Late last year, DWP sent her a “very threatening” letter warning that her ESA could be stopped a few days before Christmas, if she didn’t provide particular information before a certain date.

She told DNS: “I knew they were going to make the same errors again. I rang them in great distress and drew their attention to the upper tribunal judgement.”

The letter led to her telling both her adult children on Christmas Day how much she wanted to die and that DWP’s actions were the last straw.

She told DWP in a letter she sent days later: “Why DWP would send such correspondence to an isolated and vulnerable adult in Christmas week – threatening to cut off their benefit – is a question only they could answer.”

She fears DWP will now claim she owes it thousands of pounds, despite strictly following the rules and providing the department with all her tribunal pay slips.

Some letters she receives from DWP say she is within the legal limits for permitted work, but some appear to show DWP has ignored or forgotten her tribunal exemption.

Now she is terrified that she will be arrested and prosecuted as a benefit cheat, when she has always followed DWP’s rules.

She has been waiting for another two mandatory reconsiderations – the first stage in the appeal process – over what DWP claims was her non-entitlement to ESA during lengthy periods, and a decision that confirmed she was entitled to ESA from December 2023 but which was again made applying the incorrect legislation.

She told DNS: “I was a justice of the peace for 15 years, but I have never been able to get justice. I can’t get benefits and I can’t get justice.

They have now caused so much damage, I don’t think I will ever be able to return to work again full-time.”

A DWP spokesperson said last night (Wednesday): “We have reimbursed the customer for the money previously recovered and apologise for any distress.

This case is currently being reviewed.”

Katherine told DNS that the DWP statement was not accurate and that it still owed her hundreds of pounds.

*She has asked to remain anonymous

23 May 2024

 

 

Concern over scope of EHRC inquiry into ‘unlawful acts’ by work and pensions secretaries

The equality watchdog has finally launched a – limited – investigation into unlawful treatment by the Department for Work and Pensions (DWP) of disabled benefit claimants, including some who died, five years after it was first told to act.

The move to investigate possible “unlawful acts” by successive work and pensions secretaries – including an examination of the deaths of some claimants – has been welcomed by some activists.

But there is also mounting concern that the investigation by the Equality and Human Rights Commission (EHRC) will only focus on events from January 2021 onwards.

And there is also concern that EHRC has made it clear that it is not seeking evidence from individual disabled people or relatives of those who have died due to DWP failings, while it has failed to make it clear in its terms of reference if it will take evidence from disabled people’s organisations.

The decision to launch only a limited investigation has now strengthened calls for a full independent inquiry into DWP’s actions over the last 15 years.

The focus on the last three-and-a-half years will mean the investigation may not consider evidence relating to some of the most high-profile and disturbing deaths linked to DWP’s failures, such as those of Philippa Day (September 2019), Jodey Whiting (February 2017), Michael O’Sullivan (September 2013), Roy Curtis (November 2018) and Errol Graham (spring 2018).

And it is also likely to mean a focus on the actions of just three work and pensions secretaries: Therese Coffey, Chloe Smith (who was in post for less than two months in 2022) and Mel Stride, who current occupies the position.

Disability News Service (DNS) has continued to report on deaths linked to DWP’s actions since January 2021, including those connected to safeguarding flaws in the universal credit system, such as the deaths of Nazerine Anderson, from Leicestershire, who died in June last year, and Kevin Gale, from Cumbria, who took his own life in March 2022.

EHRC yesterday (Wednesday) launched the investigation into what it said were concerns that successive secretaries of state may have broken the Equality Act in the way their department has carried out benefit assessments.

It will particularly examine the work capability assessment (WCA) and the assessment for personal independence payment (PIP), and it will include the impact of the WCA on universal credit claimants.

And it will focus on failures to make reasonable adjustments for people with mental distress and learning difficulties.

EHRC commissioner Akua Reindorf, a barrister and employment judge who has specialised in human rights law, told DNS this week that the potential breaches of the act by DWP were “very serious”.

She said: “We wouldn’t be launching an investigation on this scale if we didn’t think it was extremely serious.”

She said the commission would “follow the evidence” and would look back further than 2021 “if it appears relevant to do so”.

Reindorf said the investigation was a “massive” piece of work but could not say how long it was likely to take.

The commission will also be assessing whether DWP breached its obligations under the Equality Act’s public sector equality duty.

DWP could face a potentially unlimited fine if the allegations are found proven, and be required to produce an action plan to correct its failings.

The commission finally took the step to launch an investigation after discussions with the department that lasted more than two years and were supposed to lead to a legally-binding section 23 agreement that would have forced it to take action to address its discrimination.

Just two weeks ago, this delay led to the watchdog being accused of bowing to political pressure by failing to force DWP to take action to prevent further deaths of claimants.

The commission has now apparently decided that DWP had no intention of ever signing the agreement.

But calls for EHRC to act date back as far as April 2019, when Labour’s Debbie Abrahams wrote to the commission to ask it to investigate deaths linked to the WCA and PIP assessment processes.

The commission eventually rejected calls for an investigation into the deaths the following year, blaming the pandemic.

Asked if the decision to launch the investigation was a recognition that it should have acted earlier, rather than spend two years trying to persuade DWP to sign a section 23 agreement, Reindorf said: “I’m massively restricted in how much I can talk to you about that, but I think we’re satisfied that we’ve approached it appropriately.”

EHRC says that those who are being asked to give evidence to its investigation are whistleblowers from DWP and its contractors, including Atos, Capita and Maximus, “charities, third sector and advocacy organisations”, welfare rights advisers, legal and medical professionals, academics and researchers.

Disabled People Against Cuts (DPAC) said the restricted list of people EHRC was willing to accept evidence from was “offensive and unacceptable”.

Paula Peters, a member of DPAC’s national steering group, said yesterday: “We’ve been waiting over five years for the EHRC to launch an inquiry into benefit deaths.

More disabled people have died since then as a result of the distress from the cruel, callous, inhumane treatment meted out by the DWP disability benefit assessments.”

She said the restricted period EHRC was examining meant it would not investigate the deaths of claimants such as David Clapson, Mark Wood, Errol Graham and Michael O’Sullivan.

She said their families were still “fighting for justice and to hold to account those in policy- making and the assessment process” and that starting the investigation from January 2021 was “a slap in the face” for those and other families.

She said DPAC demanded a “full public benefit deaths inquiry” that would cover the introduction of employment and support allowance and the WCA in 2008, and would allow relatives of those who have died, and members of the public, to be heard, and “hold to account every politician past and present and senior civil servant involved in policy and decision-making”.

Mark Harrison, a member of the steering group of the Reclaiming Our Futures Alliance, who has played a key role in holding EHRC to account over the section 23 agreement, said: “It is about time the EHRC used its powers to hold the DWP to account for the grave and systematic violations of disabled people’s rights.

I have concerns as to the scope of their investigations, as they have failed over the last two years to sign a section 23 agreement with DWP despite repeatedly trumpeting this in the media, publicly and with the UN disability committee.”

He claimed last night – although this is not clear in the terms of reference – that EHRC was “not going to take evidence from disabled people affected by this brutalising and unsafe regime, bereaved relatives or Deaf and disabled people’s organisations”, which he said would be in direct violation of the UN Convention on the Rights of Persons with Disabilities, so would have to “be rectified immediately”.

Harrison added: “The jury is out until they demonstrate that they are going to act in line with the UN convention and not just let the unnecessary benefit-related deaths and harm continue without challenge.

We will be monitoring them closely.”

Alison Burton, whose father-in-law Errol Graham starved to death after DWP wrongly stopped his benefits when he missed a work capability assessment, said she was disappointed that EHRC was only looking back as far as January 2021.

She told DNS that she welcomed the investigation as an acknowledgement of the harm that has been done.

But she said she was “still quite frustrated and annoyed that it has taken so long” and that the commission “has not supported disabled people in the way it should have done over the last few years”.

She said: “The EHRC has got a lot of work to do to gain that trust back from disabled people.

Hopefully this might be a starting point, but as a disabled person myself I have mixed emotions because I feel let down by the EHRC because there is a real risk of [ongoing] harm and this investigation is going to take a long time.”

Imogen Day, whose sister Philippa’s death was caused by widespread failings in the PIP assessment system, said she was “cautiously optimistic” about the investigation.

She said it was a “hard-won step and recognition” for disabled people’s campaigning, and added: “I look forward to seeing the results of the investigation and hope this brings the accountability we need.”

Joy Dove, whose daughter Jodey Whiting took her own life after her employment and support allowance was wrongly stopped by DWP for missing a work capability assessment, welcomed the commission’s decision to launch an investigation and said it was “about time something was done to investigate DWP’s actions”.

She said: “They have destroyed our family, they need to be held accountable.

I want justice for my daughter Jodey and all the others who have killed themselves.”

But she also said the investigation should look further back than January 2021.

Stride promised MPs yesterday – hours before the prime minister called a July general election – that he and his department would co-operate with the investigation.

Questioned about the failure to sign the section 23 agreement, DWP’s permanent secretary, Peter Schofield, its most senior civil servant, told the Commons work and pensions committee yesterday that the “challenge” his department had had was “understanding the nature of the concerns” and “where the suspected breach of the Equality Act was”.

He said the terms of reference for the investigation published by EHRC now provided “a clear sense about where the commission want to investigate”.

He said there had been “a lot of change in the way we do health assessments”, that “the vast majority of health assessments nowadays are done over the phone rather than in person”, and that DWP had “been taking lots of steps” in “changing the way we do health assessments” as part of its Health Transformation Programme.

And he said the department’s serious case panel continued to examine “where things have gone wrong”.

But Labour’s Neil Coyle later pointed out in the Commons that Schofield had told the committee in January last year that the negotiations with EHRC were “going well” and that an agreement would be secured.

And he said Stride had told the committee in November 2022 that negotiations were “constructive” and that he expected an agreement to be reached.

A DWP spokesperson said earlier in a statement: “The DWP is committed to providing a compassionate service to all our customers.

Benefits assessments are carried out by qualified health professionals with reasonable adjustments available to protect vulnerable claimants.

We take our obligations under the Equality Act incredibly seriously, including the public sector equality duty, and will continue to cooperate with the commission.”

Debbie Abrahams said last night: “I welcome the EHRC’s decision to use the full force of its powers and officially launch an investigation into the Department for Work and Pensions and the tragic deaths of vulnerable welfare claimants.

It has been two years since the section 23 agreement issued by EHRC, yet we are no further forward with justice or accountability for deaths of disabled claimants.

I am pleased that the EHRC have now said enough is enough and will be undertaking a formal investigation.

I hope this can be done as a matter of urgency.”

DNS editor John Pring’s book on DWP and how its actions led to countless deaths of disabled people in the post-2010 era – The Department – will be published by Pluto Press in August. Visit the DNS website for a 50 per cent discount

23 May 2024

 

 

Council sparks anger over refusal to release details of care cuts agreement with consultancy

Disabled campaigners say they are “horrified” at a council’s lack of transparency after it refused to release documents that would have revealed details of its agreement with a consultancy it is paying to help cut people’s care packages.

Bristol City Council is paying management consultancy Peopletoo more than £1.5 million to review the care packages of at least 190 disabled people with what the council calls “complex” packages of support.

But following a freedom of information request from Disability News Service, the council has refused to release details of its agreement with Peopletoo.

It is also refusing to release details of the financial packages being offered to locum social workers who are being recruited to carry out reviews of care and support packages in the city.

The council’s response, which was a month overdue – itself a breach of the Freedom of Information Act – claimed it was exempt from the duty to release the information because the details requested were “commercially sensitive” and releasing them would “disadvantage the supplier”.

It added: “In all the circumstances of the case, the public interest in maintaining the exemption outweighs the public interest in disclosing the information.”

The council has been at the centre of controversy since early last year over proposals to offer disabled people a “residential or nursing home placement” if a care package that would allow them to remain at home “would substantially exceed the affordability of residential care”.

The concerns about what the council called its Fair and Affordable Care Policy were first raised by the grassroots disabled people’s organisation Bristol Reclaiming Independent Living (BRIL).

The policy was eventually withdrawn, but this year the council brought forward new cuts worth millions of pounds that were also likely to push disabled people into residential care, as it aimed to save nearly £7 million from its funding of adult care and support packages in 2024-25.

As part of its new plans, the council will review the care packages of at least 190 disabled people with complex support needs.

It plans to pay Peopletoo £1,550,000 to carry out these reviews, and there are concerns that freelance social workers could be paid commission if they manage to cut people’s packages.

Peopletoo boasts on its website of how its reviews of council services “typically identify savings in the region of 10-20 per cent of service base budgets”.

It points to one council it has worked with to embed a “Strengths Based Approach” across adult social care, language similar to that used by Bristol City Council when announcing its planned reforms.

Last month, Disability Rights UK (DR UK)Greater Manchester Coalition of Disabled People (GMCDP)Inclusion London and WinVisible all wrote to the council to express their “deep concerns” about its proposed actions.

They said its plans would fail to uphold the rights of disabled people in Bristol to receive the care and support they needed, based on their personal choices, and that the new proposals were “arguably worse” than its “outrageous” Fair and Affordable Care Policy.

Val Stanfield, a member of BRIL, said: “We are horrified by the lack of transparency.

It begs the question: why? What have they got to hide? Would any transparency validate everything that BRIL and the wider movement is saying?”

Rick Burgess, from GMCDP, said the council’s freedom of information (FOI) response was “disingenuous”.

He said: “Contracting out is a well-trodden tactic to attempt to move information beyond FOI’s reach. It smacks of bad faith.

Given the attention and distress this issue is causing, a responsible approach would seek to be transparent and avoid both impropriety and the appearance of impropriety; they are failing in both respects.

I would hope the new Green broom sweeping through the council will abandon this secretive approach and work with disabled people and our organisations.”

WinVisible said it was “a scandal” that the council was refusing to say how much it was paying Peopletoo and locum social workers “to cut the services on which ‘high-need’ disabled people depend for our survival”.

Rensa Gaunt, Inclusion London’s communications manager, said: “We think being ‘fair and affordable’ involves transparency around use of public money, especially if it’s being used to try and force disabled people into institutions.

“‘Strength-based’ reviews seek to take vital care and support away from us, fundamentally attacking our right to independent living in the community.

This comes at the same time as the national government is trying to cut PIP disability benefit entitlement.

As disabled people, we are a convenient target for some. But what we need is investment in services that enable us to live good lives, not short-sighted cuts.”

DR UK called for the council’s new leadership to ensure a new culture of transparency.

Mikey Erhardt, DR UK’s policy and campaigns officer, said: “A well-functioning democracy requires transparency and the ability to scrutinise how those in positions of power are making decisions that affect us.

We all have the right to live in an inclusive society where everyone has a fulfilling life and feels connected and valued.

We know our lives are not valued equally to others, so the idea of making cuts in secret and hiding away when we rightly ask questions, all in service of a spreadsheet somewhere in College Green [where the council is based], is unacceptable.

How many more times must we go down this road?”

Peopletoo had not commented by 11am today (Thursday).

A council spokesperson said: “Disclosing the information requested under FOI would mean anyone from anywhere in the world would then have access to it, which would disadvantage the supplier as competitors would have access to it.

In line with Information Commissioner’s Office guidance, we wouldn’t release any information that would cause financial harm to either the council, its contractor or both, unless it was in the public interest to do so.

In this case, the public interest is to ensure that the council and other public bodies are consistently able to purchase goods and services at optimal value and that contractors to this council and other public bodies are able to compete fairly and with the confidence their commercial interests are not unreasonably harmed.”

23 May 2024

 

 

DWP silent over whether Sunak was wrong to say PIP was being exploited, as fraud falls to zero

The Department for Work and Pensions (DWP) has refused to say if the prime minister was wrong to suggest that disability benefits were being misused and exploited, after new official figures showed the level of fraud has fallen to zero.

The DWP figures, released this week, days before Rishi Sunak called a general election, showed that overpayment of personal independence payment (PIP) due to fraud had dropped to 0.0 per cent, a fall from 0.2 per cent the previous year.

The figures were released just a month after Sunak said in a speech – in which he announced cuts to PIP spending and other social security reforms – that he worried about PIP being “misused” and wanted to make it “harder to exploit”.

These comments, and others made by Sunak, including calling for an end to what he called a “sicknote culture”, led to him being accused of whipping up hostility towards disabled people, and demonising and scapegoating claimants of disability benefits.

DWP’s new figures show that the overpayment rate for PIP is now at its “lowest recorded level” of 0.4 per cent (£90 million) in 2023-24, with most of that due to claimant error, usually because the claimant had failed to report an improvement in their support needs.

But they also show that fraud by PIP claimants fell from 0.2 per cent in 2022-23 to 0.0 per cent in 2023-24 (of total spending on PIP of about £21.6 billion), while fraud by disability living allowance claimants was estimated at just 0.1 per cent.

Despite the striking figures, there was no discussion of this fall in the DWP report, or any suggested explanation.

Asked about the figures, a DWP spokesperson said: “I have checked – the stats are correct, with PIP overpayments due to fraud at 0.0 per cent.”

Asked if the department welcomed the PIP fraud figures, why it believed PIP fraud had fallen so low, and whether the prime minister was wrong to demonise disabled people, a spokesperson said: “Our reforms are not about fraud, they are about targeting help at those who need it most and making sure we have a welfare state that is fit for the future.

We support millions of people every year and are encouraging everyone to have their say and respond to our PIP consultation.”

DWP measures fraud levels by reviewing a sample of more than 13,000 claims to check if there have been any errors by DWP or the claimant, or any fraud.

The total amount of benefit fraud estimated from the reviews was £7.4 billion (2.8 per cent) in 2023-24, compared with £6.3 billion (2.7 per cent) in 2022-23.

The majority of this fraud related to universal credit, at £5.66 billion in 2023-24 (10.9 per cent).

23 May 2024

 

 

Baroness Grey-Thompson runs out of time in the Lords as she lists access barriers faced by disabled people

A disabled peer ran out of time during a Lords debate as she attempted to describe all the barriers disabled people face in their daily lives.

Baroness [Tanni] Grey-Thompson told fellow peers that there was not enough time to describe all of the barriers to accessing services that disabled people told her about in the days leading up to the debate.

Among the issues she raised were discriminatory and hostile attitudes, physical barriers in the Lords, barriers in education, employment and the built environment, the lack of accessible housing, inaccessible hotels, cinemas and restaurants, and access issues with buses, air travel and trains.

She mentioned this month’s revelations from Disability News Service that showed rail companies were using data from a mystery shopping company that has come from non-disabled people “role-playing” being disabled.

And she told the Lords: “Greater Anglia trains are fantastic for level boarding but, when I asked about accessibility, I was told not to worry because I would be in sight of the café-bar.

All my dreams for inclusion became as one when I realised that I could see the café-bar, but could not actually buy anything from it.”

She then listed some of the other many barriers disabled people face, including the lack of accessible charging-points for electric vehicles, inaccessible dental chairs, access to wheelchairs, disability hate crime, the barriers faced by disabled people during Covid, and barriers to elected office.

But she eventually admitted defeat, and told peers: “…I have run out of time.”

The junior work and pensions minister Viscount Younger later praised her “verbal marathon”.

But other disabled peers lined up to add to her list.

The Liberal Democrat Baroness [Sal] Brinton, her party’s former president, also raised concerns about the accessibility of the House of Lords, which she said was “getting worse” for disabled people.

She focused on access problems in the transport system, including trains, buses and taxis.

And she highlighted the Supreme Court legal victory won by disabled campaigner Doug Paulley, which should have made it easier for wheelchair-users like herself to gain access to the wheelchair space on buses.

But she told peers: “This week I have twice had to argue with bus drivers who have refused to move buggies.

I had to intervene yesterday to negotiate for an empty buggy to be folded and ask somebody with a pram to pull it back, let me into the space and then put the pram back in front of me.

The driver sat there silently…”

She also spoke out about the government’s failure to act on accessible housing.

She said research by Habinteg Housing Association showed that only seven per cent of housing stock meets basic accessibility standards such as having a level entrance.

The Liberal Democrat Lord Addington, who is dyslexic, questioned why so many jobs demand a written English qualification when voice-operated technology is so widely-available on computers.

He said: “Most people do not know it is there, but it is: all you have to do is press a couple of buttons, or voice call them into action, and have it read back.

We and government agencies are still saying, ‘You’ve got to pass certain tests in a certain way,’ and not, ‘Can you communicate information? Can you pass it on so that somebody knows what you are saying?’

No, you have to write it down. We all know how absurd that is.

Does anybody care if you have word-processed by talking or tapping a keyboard?”

The Conservative disabled peer Lord [Chris] Holmes called for a ban on “floating” bus stops, which are “essentially stuck in the middle of the road, with a cycle lane between the bus stop and the pavement”.

He said: “How can a disabled person – any person – effectively, efficiently and, crucially, safely access the bus?

It is a planning folly: a planning disaster. Can we commit today that buses can only pick up and drop off from the kerbside?”

Disabled Liberal Democrat peer Baroness [Celia] Thomas highlighted the barriers faced by disabled people who try to claim personal independence payment.

She called for the Department for Work and Pensions to change its rules so a medical report from a healthcare professional has to be obtained, at least at the mandatory reconsideration stage of the claim.

She said: “The whole appeals process in itself is long-winded and stressful for a disabled person to go through, let alone being very expensive for the government.”

The Conservative disabled peer Lord [Kevin] Shinkwin spoke of the lack of progress in reducing employment discrimination, and the apparent failure of the government’s Disability Confident scheme.

He also pointed to work by the Disability@Work group of academics who found that “the percentage of the workforce that is disabled is no higher in Disability Confident level one or level three organisations, and only marginally higher in private sector level two organisations, than in non-Disability Confident organisations”.

And he pointed to evidence from the group’s Professor Kim Hoque, from King’s College London, who has told MPs that – despite the government’s claim that there are now many opportunities for disabled people with high support needs to work from home – of the 129,000 jobs listed on the DWP’s own Find a Job service, only 0.51 per cent were fully remote and 2.75 per cent were listed as being hybrid remote.

Lord Shinkwin also criticised the government’s apparent “disdain” shown by its failure to respond to his call for mandatory disability pay gap reporting by bigger businesses.

Viscount Younger said the government was “proud that this government have continued to tackle the barriers faced by disabled people”.

He claimed there were now two million more disabled people in work compared to 2010, although similar figures ministers have used have been repeatedly debunked by Disability@Work academics.

He also said: “We have 20 ministers across government committed to championing accessibility and opportunity for disabled people within their departments.”

He claimed the government’s PIP consultation was “not a money-saving exercise”, even though ministers launched it by saying it would rein in the “spiralling” caseload and costs.

He also said the government had doubled funding for the disabled facilities grant, from £220 million in 2015-16 to £625 million this year.

The minister claimed the government was “fully committed to improving transport accessibility, supporting disabled people to have the same access to transport as everyone else”, although he admitted there was “definitely more to do”.

23 May 2024

 

 

Government failure on mental health detentions ‘is scandalous’

The government has “fallen short” on its promise to halve the number of people with learning difficulties* and autistic people detained in mental health hospitals, a committee of MPs has warned.

The number of autistic people in such settings is even increasing, according to a report by the Commons women and equalities committee.

One leading disabled activist called the government’s failure an “absolute scandal”.

The report by the committee** calls for the government to “learn from previous failings” and increase support for community-based alternatives to detention in mental health hospitals, and “do more to stop people reaching crisis” that can lead to detention.

It calls on the government to explain why the number of autistic people detained in mental health hospitals is increasing.

In 2019, the NHS Long Term Plan pledged to halve the number of people with a learning difficulty and autistic people in mental health inpatient care by March 2024 compared to 2015 levels.

But the report says the latest figures show 2,045 people in such institutions at the end of March 2024, just a 30 per cent reduction since March 2015.

It says that most of this limited reduction has been driven by a fall in the number of inpatients with a learning difficulty only.

During the same period, the number of autistic people in mental health settings has increased from 1,115 to 1,380, including an increase in the number of women from 390 to about 500 over the last five years.

Only last month, the UN’s committee on the rights of disabled people said in a report that it was “deeply concerned” at evidence of “increasing rates of institutionalisation of disabled people, including disabled people living in secure psychiatric facilities due to a lack of community-based support”, and of “abuse, mistreatment and the increasing use of restraints, restrictive practices and coercive measures” in institutions.

Simone Aspis, campaigns manager for Inclusion London’s Free Our People Now campaign, said the government’s continuing failure was “scandalous”.

She said: “This government still sees people with learning difficulties and autistic people as second-class citizens.”

She also pointed to increasing numbers of young disabled people entering the psychiatric system due to a lack of support in the community.

She said it was a “complete scandal” how much money was still being spent “locking people up in the psychiatric system” when it could instead be spent “moving people out of hospital and into the community”.

She said: “If they really wanted to do it, they would bring in legislation to make it happen.

People with learning difficulties and autistic people have a right to be living in the community and not locked up in hospital.”

The committee’s report also says that a National Learning Disability Board was established in 2013 to improve the health and wellbeing of people with learning difficulties, and its members included people with learning difficulties, but it was disbanded by the government in 2016.

Now the committee wants the government to set up a replacement body.

It says this new national board should be led by people with a learning difficulty, autistic people, people with parental and caring experience, and health and social care professionals.

Caroline Nokes, the committee’s chair, said: “The government has fallen short on its commitment to halve the number of people with a learning disability and autistic people inappropriately detained in mental health hospitals.

It must learn from previous failings and increase support for community-based alternatives to detention and do more to stop people reaching crisis in the first instance.”

The report is the third and final publication that has come from the committee’s inquiry into the government’s National Disability Strategy.

The report also focuses on the barriers that people with learning difficulties and autistic people face in accessing healthcare.

It reports that these groups face “significant health inequalities, leading to lower life expectancy and more avoidable deaths than the general population”, while 42 per cent of deaths of people with a learning difficulty (including autistic people with a learning difficulty) were avoidable, compared to 22 per cent of deaths in the general population.

People with learning difficulties can request to be added to the learning disability register, which entitles them to reasonable adjustments, such as support with making decisions and access to an annual health check.

But the report says that about three-quarters of people with a learning difficulty are not registered, and “many struggle to convince their GP and practice staff to add them to the register”.

It also calls for action to address the lengthening waiting-list for an autism diagnosis, and improve the understanding of how autism is presented in women and girls “so that they can receive the support they need before they reach crisis and to prevent misdiagnosis and inappropriate care”.

The report also points to the employment gap for people with a learning difficulty and autistic people, with just 30.8 per cent of people with “severe or specific learning difficulties” and 30.6 per cent of autistic people employed in 2022-23.

It says the government should improve the way its much-criticised Access to Work and Disability Confident schemes support people with learning difficulties and autistic people.

The committee says that people with learning difficulties and autistic people who do not have an education, health and care plan should be exempted from the maths and English skills requirement for apprenticeships.

And it calls on the government to set an employment target for people with learning difficulties and autistic people.

*Although the committee uses the term “learning disability”, Disability News Service continues to use “learning difficulty” as it is the preferred term of the self-advocacy movement

**Inequalities in Healthcare and Employment for People with a Learning Disability and Autistic People

23 May 2024

 

 

Low traffic neighbourhoods can often damage disabled people’s independence, MPs are told

A disabled MP has warned that the introduction of low traffic neighbourhoods (LTNs) across England has too often had a damaging impact on disabled people’s independence.

Labour’s Marsha de Cordova told a parliamentary debate this week that many disabled people have faced obstructions caused by bollards and planters, and blocked dropped kerbs, as well as much longer journeys.

Many local authorities have failed to exempt holders of blue parking badges from LTN schemes, she said.

The schemes are traffic-control measures that reduce motorised traffic in a particular area, with the aim of making active travel more comfortable and improving public spaces for pedestrians.

De Cordova was leading a Westminster Hall debate on two parliamentary petitions that have raised concerns about the impact of LTNs.

One of them called for an independent review of their impact and the other called for disabled people with blue parking badges to be exempt from LTN fines.

A survey carried out by the Commons petitions committee found 86 per cent of disabled people who responded saying that LTNs had a “negative” or “very negative” impact on them.

De Cordova told MPs: “The accessibility issues around LTNs show that society is rarely designed with the needs and interests of disabled people in mind, and that often leads to their exclusion.”

She pointed to narrow cycle lanes that are designed for a two-wheel bike and cannot be used by trikes or other non-standard vehicles.

She said that LTNs “can work in certain areas if they are supported by the community”, and she suggested the government makes it compulsory for councils to consult disabled people’s groups before introducing an LTN.

The Liberal Democrat MP Wera Hobhouse said her local council in Bath had been “very brave in introducing a wide range of LTNs”, but she accepted that there were “legitimate concerns”, including those of disabled people.

She stressed the importance of “proper consultation, comprehensive exemptions and more accessible transport options”, as well as “dropped kerbs and no street clutter”.

She added: “LTNs have clear benefits: they improve air quality, increase the number of journeys made by walking and cycling, and show reductions in street crime.”

But Conservative MP Jacob Rees-Mogg insisted that “however much we wish to pretend otherwise, we are a society, a nation and an economy based on the internal combustion engine”.

He said: “Do we really think that we should be telling people how to lead their lives?

Should we tell them what is good for them and make them do it?”

He added: “The thing that has reduced pollution has been not LTNs, but improvements in the internal combustion engine and, most crucially, the move away from diesel engines.”

Simon Lightwood, Labour’s shadow local transport minister, said LTNs “play an important part in delivering safer streets and cleaner air and in helping encourage people to use active travel to get around”.

He said: “The government’s own review on low-traffic neighbourhoods has found that of the LTNs surveyed, 38 exempted blue badge-holders and 34 did not.

It is clear that more can be done to ensure that LTNs consider the needs of those with limited mobility.

Labour’s position on low-traffic neighbourhoods is clear: they are decisions that should continue to be made by local authorities, not be decided by diktat from Whitehall or Westminster.

Of course, these decisions must be made with proper consultation, and the concerns of each community must be taken on board.”

Guy Opperman, a junior transport minister, said: “We have to accept that low-traffic neighbourhoods can work where they are well designed and where there is, crucially, local support for them.

But they can also do harm where they are poorly thought through and introduced with insufficient public engagement and support.”

He said the review commissioned by the government – which has so far produced an interim report – “flagged particular concerns over the impact on disabled residents, the high number of penalty charge notices, the cost of the LTN schemes, and even concerns from individual emergency services that delays to crews caught up in LTNs could potentially risk lives”.

He added: “Many disabled residents, as well as groups representing the views of disabled transport users, felt that inadequate consideration had been given to their needs and the impacts of LTN schemes on disabled people.”

And he said that several local authorities had not carried out equality impact assessments on their schemes.

He said the government had addressed these issues through draft guidance, “which sets out clear expectations for comprehensive and in-depth local engagement and full consideration of the needs of all road users in such a scheme”.

He said: “Although it is guidance, we reserve the right to take further action if local authorities do not follow it.”

He also said it was not a “viable solution” for vehicles belonging to blue badge-holders to be automatically exempt from any restrictions and enforcement, as “blue badges are linked to the individual and not the vehicle”.

But he said the draft LTN guidance “makes it clear that local authorities should always consider exemption from restrictions for blue badge-holders, as well as for deliveries and other essential services”.

Responding to his comments, De Cordova was critical of the government’s review, which she said was “not exhaustive and did not include many key stakeholders, such as disabled people”.

And she said it was “a shame” that the government had offered “no solution to ensure that anybody who holds a blue badge is exempt from the schemes”.

She told MPs: “As we have said, low-traffic neighbourhood schemes can work if they are done properly, are led by evidence and are fully inclusive and accessible to us all.”

After the debate, Mike Spenser, the disabled campaigner and musician who started the petition calling for disabled people with blue parking badges to be exempt from LTN fines, said he was glad that “the elephant in the room has finally come out and be seen to be an issue that must be addressed”.

But he said he was not happy that key issues around the impact of LTNs on mental health and the need for local authorities to use the national DVLA database were not addressed thoroughly enough in the debate, and he said he will now be pushing for another debate on the issue.

23 May 2024

 

 

Other disability-related stories covered by mainstream media this week

Jersey is to move ahead with allowing assisted suicide for people with a terminal illness after a vote in its parliament. Legislation is expected to be brought before the island’s states assembly by the end of 2025, and an assisted suicide service for residents to be in place by mid-2027: https://www.theguardian.com/society/article/2024/may/22/jersey-approves-plans-assisted-dying-terminally-ill-adult-residents

The NHS’s leading wheelchair provider has been told to urgently improve its complaints system by the health service ombudsman amid concerns disabled people are waiting up to two years for wheelchairs. The parliamentary and health service ombudsman took the unusual step of writing to AJM Healthcare after a sharp rise in complaints from wheelchair-users. Most related to people not receiving new wheelchairs or the correct parts. The waits range from a month to two years, the ombudsman said: https://www.theguardian.com/society/article/2024/may/21/nhss-leading-wheelchair-provider-told-to-improve-as-people-wait-up-to-two-years

BT has significantly delayed plans to force customers to switch from physical copper-based landlines to internet-based services following concerns from “vulnerable” people. The switch was paused at the end of last year after several incidents where telecare devices stopped working. Nearly two million people in the UK use personal alarms which rely on landlines. BT, which is also responsible for EE customers, has now abandoned the timeline of completing the national switchover by the end of 2025, and will instead aim to complete the move by the end of January 2027: https://www.bbc.co.uk/news/articles/c5119g5z4q5o

Thousands of children in England with “complex needs” are missing out on support as councils fail to meet care plan deadlines, BBC News has found. Councils have a legal time limit of 20 weeks, in most cases, to issue an education, health and care plan, after a parent or school asks for one. BBC News has found eight councils met the deadline in fewer than five per cent of cases, from April to December last year: https://www.bbc.co.uk/news/education-68668602

23 May 2024

 

News provided by John Pring at www.disabilitynewsservice.com

 

 Posted by at 19:17
May 212024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Kia ora and greetings of solidarity from Aotearoa New Zealand to DPAC UK members,

We are a group of disabled people who formed in March 2024 as Disabled People Against Cuts Aotearoa inspired by your movement in the UK.

We came together In the wake of sweeping changes to how previously flexible disability support funding could be used and also restricted disabled people’s access to housing modifications and access to equipment. They were announced on social media by Whaikaha our Ministry of Disabled People without consultation with Deaf and disabled people.

We recognise policies currently being introduced in Aotearoa as driven by austerity and ableism. We recognise that they will be all too familiar to those of you who have lived and fought through similar policies in the UK. We write seeking your solidarity and offering ours in return. We recognise Māori as tāngata whenua of Aotearoa New Zealand and aim to uphold Te Tiriti o Waitangi in all our work.

We are committed to growing a group of Deaf and disabled people and tāngata whaikaha Māori set up to:

· oppose the cuts to disability support announced in March 2024 by Whaikaha – Ministry of Disabled People and all issues which undermine disabled people’s rights according to the UNCRPD

· promote the Social Model of Disability, the full implementation of the United Nations Convention on the Rights of Persons with Disabilities and the realisation of the New Zealand Disability Strategy and the Disability System Transformation under the EGL principles

· ensure the voices of disabled people, Deaf people and tāngata whaikaha Māori are heard by decision makers.

We will work collaboratively with other groups and organisations that share our aims.

DPAC acknowledges there will be allies who will not share all of our views nevertheless we request that consideration is given to how everyone portrays disabled people, Deaf people and tāngata whaikaha Māori and our issues in the language and imagery they employ.

DPAC Aotearoa NZ also upholds the aims and objectives of the founding DPAC group in the UK.

The effective cuts to our support were justified on the basis that the budget had been blown out. Disabled people’s lives are being turned upside down and our needs are being characterised by Minister’s as indulgent misuse of funds . While the Ministry has appologised for the way changes were announced it has since come to light that the lack of warning was a deliberate approach – based on the risk that given warning disabled people might proactively spend their funding in anticipation of the changes. Government officials also seem uncertain about how much money these changes will actually save.

The Government seems to be responding to public pressure. Public outcry has resulted in Minister for Disability Issues Penny Simmonds stepping down from the portfolio and some aspects of flexibility being reinstated.

However, we are now facing a review of our Ministry and our disability support funding, by a panel with no disabled community expertise among them. In addition the Government is targeting the gifted Maori name of our Ministry and says it will force a rebrand. We anticipate all this will entrench the limitations to flexibility and make an already inequitable support system even harder to access.

We are planning a response in the form of in person and virtual rallies prior to our Budget Day on the 30th We ask for support in amplifying our acts of resistance via social media and in any ways you can.

The events are:

26th of May in 12-1.30pm (NZT) at Te Komititanga Square, Britomart in Auckland: Auckland Facebook event linked here

A silhouette of an arm and clenched fist punches up towards some open scissors on one side of the page. The text reads :Fight the Cuts, Te Komititannga Square Britomart Sun 26 May at 12pm. Rally with us against changes to disability funding flexibility. Fund Disability Support. Hands off Whaikaha! At the bottom are the logos of the three organisations hosting. They are Systems Change Aotearoa represented by a blue globe in which the islands of New Zeand are central Disabled People Against Cuts Aotearoa represented by Arms of multiple skintones extend out from a triangle with the DPAC acronym on it. They are clenched fists showing solidarity and they grip an outer circle of multiple colours. The words Disabled People Against Cuts are around the edge. The final logo is blue text reading Disabled United NZ
29th of May 12.30- 2pm (NZT) on Parliament lawn, in Wellington: Wellington Facebook event linked here
Two text boxes on a plain pink background. The upper one reads Rally to fight the cuts to disability funding Join us to fight back! The lower on reads Wednesday 29 May 12.30 - 2pm. Parliament Lawn, 1 Molesworth Street (by the Seddon Statue). Wheelchair accessible and NZSL interpreted if you need more information or support to participate email dpac.nz@gmail.com Below the the text is the DPAC logo. Arms of multiple skintones extend out from a triangle with the DPAC acronym on it. They are clenched fists showing solidarity and they grip an outer circle of multiple colours. The words Disabled People Against Cuts Aotearoa are around the edge.

We are also planning a virtual rally in the lead up to both these events. Scheduled for the 23rd at 7pm (NZT) and Virtual rally linked here

We are using the hashtags:

#HandsOffWhaikaha

#FlexibleFunding

#NothingAboutUsWithoutUs

In solidarity,

Disabled People Against Cuts Aotearoa

 Posted by at 16:32
May 162024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

DWP admits multiple universal credit failures before disabled woman’s death 1

Government fraud policy paper ignores coroner’s concerns over review of disabled woman’s universal credit claim 3

DWP told to pay £50,000 to Deaf job-seeker after repeated failure to provide BSL interpreter 6

Care charge mystery as council takes hundreds of pounds a month from disabled woman for non-existent support 9

Government to investigate ‘fake disabled’ mystery shopper rail claims 11

Truly shameful’ figures show more than 5,000 disabled people spent time sleeping on London’s streets last year 14

Anger over government’s ‘gleeful’ announcement of yet more special schools 16

Other disability-related stories covered by mainstream media this week 18

 

DWP admits multiple universal credit failures before disabled woman’s death

The Department for Work and Pensions (DWP) has admitted missing multiple opportunities to record the “vulnerability” of a disabled woman whose death was later linked by a coroner to failings at the heart of its universal credit benefits system.

DWP has admitted that staff made key errors in dealing with the claim of Nazerine (known as Naz) Anderson, from Melton Mowbray, who died in June last year.

But it also appears to have admitted a significant ongoing safeguarding flaw in the system that could continue to put many other disabled claimants at risk, just as it prepares to roll out its forced “migration” to universal credit that will affect hundreds of thousands of existing claimants of employment and support allowance.

The department was responding to a prevention of future deaths (PFD) report sent to the department by coroner Fiona Butler.

In her report, written at the end of an inquest in February, she highlighted how DWP missed six opportunities to record Anderson’s “vulnerability” on its IT system while it was reviewing her universal credit claim, and had failed to act on the mental distress she showed in phone calls about her claim.

It also repeatedly failed to act on requests to direct its telephone calls and letters to her daughter.

The review of her universal credit claim “continued to preoccupy her thoughts” and six days after receiving the final piece of correspondence from DWP, she took an overdose.

Although Anderson did not intend to take her own life, the overdose caused irreversible damage to her liver, and she died a month later, on 19 June 2023, while receiving palliative care at Melton Mowbray Hospital.

Now, in its response to the PFD report, sent to the coroner last month, DWP admits there were “missed” opportunities to share information about her universal credit (UC) claim, and to consider whether an appointee should act on her behalf.

But it also appears to highlight a serious ongoing flaw in the UC system, which is caused by groups of universal credit staff having “different access levels on departmental systems”.

As a result of this, DWP admits, “some colleagues cannot pin information to claims or use the additional support function on the UC system”.

The IT system allows up to three pieces of key information to be “pinned” to a UC claim, so they are immediately obvious to any staff member viewing that claim, while the additional support tab allows a claimant’s “complex needs” to be displayed “prominently” on their account.

The PFD response says training is taking place that will highlight the importance of sharing information about a claimant’s vulnerabilities with UC colleagues, but it is not clear if DWP has resolved the serious flaw that means some staff working on UC are unable to share key information about a claimant’s support needs.

DWP refused to say yesterday (Wednesday) whether some staff working on UC were still unable to use these safeguarding tools, how many staff this affected, and whether it would now fix this flaw.

It said only that it reviews access to its IT system and will grant “enhanced access” to the system for an individual or a team if there is a “business need” for it.

In its response to the coroner, DWP also admits repeated failings to use the additional support tab that should have alerted those dealing with Naz Anderson’s claim to her support needs.

It says it is redesigning the additional support tab and will be carrying out a campaign “to promote awareness and understanding of the additional support tab amongst UC colleagues” later this year.

The response also reveals that – due to “learning from serious cases” – DWP is reviewing how it handles cases where a universal credit claimant cannot manage their own affairs and needs an “appointee” to act on their behalf.

And it admits in its response that there were “missed opportunities” during Anderson’s claim to “consider the appropriateness of gaining her explicit consent to speak to a third party about her UC claim”.

It says it has updated how the UC system deals with cases where a claimant gives a representative “explicit consent” to seek information about their case, and it has carried out awareness and training exercises with staff on “what explicit consent is and how to record this consent on the UC system”.

Naz Anderson had been admitted to Leicester’s Bradgate Mental Health Unit in December 2022 after a decline in her mental health that a consultant psychiatrist told the coroner was triggered by a review of her universal credit claim by DWP’s performance review team.

DWP had suggested she had been overpaid and would need to pay back the debt.

During the six months it took DWP to complete the review, it missed at least six opportunities to highlight her need for additional support on the universal credit system.

It failed to take this action “despite Naz being tearful and distressed on the telephone on more than one occasion and advising the DWP of information surrounding her mental health and her inability to cope”, the PFD had revealed.

DWP also repeatedly failed to pass information between its performance review and universal credit case handling teams about the need to correspond with her daughter, a request made because “corresponding with Naz was of serous detriment to her mental health”.

Her daughter’s written request had sat in another DWP computer system for four months, and even when uploaded to the main DWP computer system it was not acted upon.

The request had been renewed by Naz Anderson during telephone calls to DWP and in entries on her universal credit online journal.

In the four weeks before her overdose, she received two telephone calls from DWP asking for detailed information, a universal credit message through her online journal that she did not understand, and three letters warning her that the amount she owed was increasing.

A DWP spokesperson said: “Our condolences remain with Ms Anderson’s family.

We have responded to the coroner’s report in full, setting out support for vulnerable claimants, mandatory mental health training for frontline staff, and changes we are making in response to the report.”

Meanwhile, DWP has announced that the rollout of universal credit to the remaining hundreds of thousands of disabled people still receiving income-related employment and support allowance is likely to begin in September.

The government had previously delayed the start of the rollout until 2028, but prime minister Rishi Sunak announced in a widely-condemned speech last month that the government would accelerate that process.

In a regular update to local authority housing benefit staff, DWP says its “current planning assumption is that we would begin notifying this group in September 2024, with the aim of notifying everyone to make the move by December 2025”. 

It says that it hopes its new Move to UC communications campaign will “tackle claimant fear and anxiety about moving to Universal Credit”.

16 May 2024

 

 

Government fraud policy paper ignores coroner’s concerns over review of disabled woman’s universal credit claim

The Department for Work and Pensions (DWP) has refused to explain why its new policy paper on benefit fraud has ignored concerns raised by a coroner about a disabled woman who died following a “targeted” review of her universal credit claim.

The new policy paper, released this week, is the government’s latest version of its plan to tackle fraud across the social security system.

Among measures in the policy paper – Fighting Fraud in the Welfare System: Going Further – DWP describes its efforts to carry out “targeted case reviews” of existing universal credit claims to “tackle fraud and error”.

It says DWP has recruited more than 3,000 staff to identify “incorrect claims”, which has led to more than 200,000 claims being reviewed this year.

The policy paper insists that DWP has “robust measures and safeguards in place to support customers through a review of their claim”, and that all its staff “undergo training to ensure they can recognise signs of risk or complex needs that can impact the claimant’s ability to manage their claim or take part in a review”.

But Disability News Service is reporting this week how DWP has admitted to a coroner that it missed multiple opportunities during such a review to record the “vulnerability” of a disabled woman whose death was linked to failings at the heart of the universal credit system.

DWP has admitted that staff made crucial errors in dealing with the claim of Nazerine (known as Naz) Anderson, from Melton Mowbray, who died in June last year (see separate story).

She had been admitted to Leicester’s Bradgate Mental Health Unit in December 2022 after a decline in her mental health that a consultant psychiatrist told the coroner was triggered by a review of her universal credit claim.

Mental health professionals who then worked with her in the months leading to her death told the coroner in February that that review of her claim was the predominant cause of her increased anxiety.

Coroner Fiona Butler highlighted in a prevention of future deaths report how DWP missed six opportunities to record Anderson’s “vulnerability” on its IT system while it was reviewing her claim, and had failed to act on the mental distress she showed in phone calls to the department.

DWP also repeatedly failed to act on requests to direct its telephone calls and letters to her daughter.

But there is no mention of her case, the coroner’s concerns about the review process, or its response to the coroner’s report, in DWP’s new policy paper.

DWP says instead that it has already trialled “enhanced reviews” of claimants of personal independence payment (PIP) and has rolled this out across its PIP service centres, and will now “extend the pilots” across other DWP benefits over the next year.

It claims it will “continue to ensure the protection of vulnerable customers during their review process”.

DWP refused to say yesterday (Wednesday) why the policy paper failed to mention the death of Naz Anderson and the coroner’s concerns about its safeguards.

It also refused to say if it was confident that the same flaws that led to her death would not also apply to its targeted reviews of PIP and other benefits.

Its response to the coroner also appears to reveal a significant ongoing safeguarding flaw in the system that could continue to put many other disabled claimants at risk – which prevents some staff from alerting colleagues to a claimant’s “vulnerability” and support needs – but it refused to say if it had resolved this serious flaw.

Meanwhile, other measures laid out in the policy document could see the UK “sleepwalking into another Horizon scandal”, disabled campaigners warned this week.

The controversial measures, included in the data protection and digital information bill, would use artificial intelligence to give DWP sweeping powers to carry out financial surveillance on benefit claimants through their bank accounts.

Activists from the disabled women’s organisation WinVisible were among campaigners who supported the Downing Street handover on Tuesday of petitions signed by more than 270,000 people that call on the government to scrap the proposed bank spying powers.

They say the new powers, which would see banks forced to scan all customers’ accounts in search of fraud and error in the social security system, would be “a disaster for everyone’s privacy”. 

DWP insists in its new policy paper that there are “a number of safeguards and limitations” with these new powers, and it warns that they are “a necessary first step to modernising and strengthening our powers”.

A new fraud bill in the next parliament – if the Conservatives win the next election – will also give its fraud investigators new powers to make arrests, conduct searches and seize possessions, which it says would “allow DWP to control the end-to-end investigation in the most serious criminal cases, applying for the warrants, leading the operation and searching and seizing evidence”.

That bill would also introduce a new civil penalty for benefit fraud with a “lower burden of proof”.

Mikey Erhardt, policy and campaigns officer at Disability Rights UK, said: “We know that polls report that everyone wants extra spending on benefits, not more groundless anti-fraud measures, which, if allowed to pass, will make the UK’s social security system, already one of western Europe’s least generous, even worse.

It looks like we’re sleepwalking into another Horizon [Post Office] scandal.

The government’s latest dalliance with untested, unscrutinised, and potentially unlimited powers for new ‘bank scanning’ algorithms will be used to tackle an issue seemingly so out of control that the fraud rate for disability benefits is only 0.2 per cent.

Their plans are essentially a digital sledgehammer to crack the tiniest nut.

With such widespread support for change, this should be our moment to create a system built on respect, dignity, and support that enables us to live the lives we deserve – not spend millions to create an uncontrollable digital panopticon.”

16 May 2024

 

 

DWP told to pay £50,000 to Deaf job-seeker after repeated failure to provide BSL interpreter

A tribunal has told the Department for Work and Pensions (DWP) to pay nearly £50,000 in damages to a Deaf man after repeatedly failing to provide him with the interpreters he needed for job-related interviews.

Paul Rimmer said he believed his local jobcentre failed to provide the support he needed because they found it “too difficult and too expensive”.

The jobcentre repeatedly failed to arrange the British Sign Language (BSL) interpretation that he needed over six years, and even when it did provide interpretation it was sometimes not of a high enough standard.

The employment tribunal has now told DWP to pay Rimmer £49,880 in damages and interest payments for the years of discriminatory behaviour.

It came as work and pensions secretary Mel Stride declared this week that his government was “leaving no stone unturned to get people back to work”.

The tribunal refers three times in its judgement to how Rimmer’s experience of repeated failures by the Leeds jobcentre to provide an interpreter must have felt like a “groundhog day”, and it describes how he felt he was “constantly fighting for things other people take for granted”.

Every time he faced discrimination, the tribunal concluded, it damaged his “mental wellbeing, whether by frustration or upset or depression or isolation”, and the “cumulative effect was considerable”, while it was “further depressing and despairing with each repeating occurrence against the background of some years”.

Despite a series of complaints to DWP, the tribunal found, there was no documented response or investigation findings from any of them, which led to the tribunal awarding Rimmer an extra £5,000 in damages.

The compensation also includes £10,000 in “exemplary damages” imposed due to a “victimising” and “oppressive” internal email sent in August 2022 by a DWP disability equality advisor (DEA) who referred to Rimmer making “multiple” complaints.

Despite a colleague describing Rimmer as “suitable” for an intensive job support programme and “keen to get support”, the DEA said he had a “history of complaints about treatment”.

The DEA then suggested, in the August email, that Rimmer did not want to work, that his lack of hearing was not his main barrier to a job, and that he needed “firm work coaching”, suggesting that he needed to be sanctioned.

The tribunal judge said the DEA had delivered an “assassination of the claimant’s character” and had taken a “victimising” approach when referring to complaints Rimmer had made, and added: “This is the sort of email or conduct which anyone in receipt of services from a job centre would fear, that if job coaches or others are challenged, there will be reprisals.”

The existence of the email only emerged during the legal case taken by Rimmer against the work and pensions secretary.

The tribunal’s judgment (PDF) was released less than a month after prime minister Rishi Sunak was accused of demonising and scapegoating claimants of disability benefits in a speech in which he spoke of a “sick note culture” and said there should be “higher expectations” of claimants in return for receiving benefits.  

The tribunal’s judgment is likely to raise fresh questions about the employment support provided by DWP and the attitude of some staff, despite the repeated scapegoating of disabled claimants by ministers.

Rimmer had moved to Leeds in 2013, in his 30s, and started attending Park Place, the largest jobcentre in the north of England.

Between 2017 and 2023, the tribunal heard that Park Place repeatedly failed to provide him with BSL interpreters, although interpreters were sometimes provided.

In 2017, he was sanctioned and had his jobseeker’s allowance stopped after he ended a jobcentre meeting because he had been provided with a poorly-qualified BSL interpreter.

During much of the pandemic, the tribunal had heard, the jobcentre failed to provide the services he needed, even though other claimants were being supported, and he was not offered BSL interpretation via video relay, even though that should have been available from January 2021.

At one point, he had no contact with his work coach for a year.

The tribunal concluded that the Park Place work coaches at the time had “little equalities training… and none had had deaf awareness training”.

As well as the damages, the tribunal said staff providing employment support at Park Place jobcentre in Leeds must carry out training on disability discrimination and deaf awareness.

Rimmer, who is profoundly Deaf and whose first language is BSL, has no spoken English and only very basic reading and writing skills, and he had told the tribunal that most DWP staff “do not understand the difficulties facing me as a profoundly Deaf person”.

He told Disability News Service this week: “I am shocked about the barriers and discrimination that I have had to go through.

I was shocked about the lack of training [DWP/Jobcentre] staff have had, lack of deaf awareness and how I have been stuck in a system and unable to move on.

I was shocked by what I have heard in evidence from DWP staff.

I am proud of what I have achieved and hope that it helps other people as well as myself.”

He added: “I know that the same thing happens at other jobcentres and I hope things will change more widely.

I hope it doesn’t just change at Leeds but that the DWP look more widely at the training of staff across the country.”

Rimmer said he still feels “a bit angry about the wasted years, but pleased that the truth has finally come out.

I have been telling the DWP about the difficulties I have faced for years and finally someone has believed me.”

Nick Whittingham, chief executive at Kirklees Citizens Advice and Law Centre, which supported Rimmer with his case, said: “This case shines a light on the way that disabled benefits claimants are treated by the DWP, and is particularly important in light of current political rhetoric.

The indications are that failings are systemic and that provision for supporting deaf and other disabled people is limited both by funding constraints and by an institutional failure to understand, or even attempt to understand, their needs.” 

John Horan, a leading disabled barrister specialising in discrimination and employment cases, who represented Rimmer at the tribunal, said: “In light of the prime minister’s recent comments that all disabled jobseekers should find a job within a year, this should be a wake-up call to ministers responsible for the jobseeker’s programme.

In an Orwellian ‘1984’ scenario, a disability employment advisor, who should be there to assist disabled claimants, has been shown to have been actively targeting disabled people and attempting to block access to assistance programmes and even to the benefit itself, because the claimant had raised legitimate complaints.” 

A DWP spokesperson said in a statement yesterday (Wednesday): “We are considering this judgment.

We are committed to providing accessible services to ensure customers who need extra assistance can access our help.”

16 May 2024

 

 

Care charge mystery as council takes hundreds of pounds a month from disabled woman for non-existent support

A disabled woman is being charged hundreds of pounds a month by her local council for care and support services she does not receive.

City of Wolverhampton Council and Select Lifestyles, the company that provides her accommodation, have both been unable to explain why Shauline Hall has been charged for services that she says she hasn’t received for months, or even years.

The charges have left her struggling to survive financially and having to dig into her small amount of savings.

The council and care provider produced a joint statement yesterday (Wednesday), after several days of confusion and delays, which admitted that Hall was “no longer in receipt of one-to-one care”.

They said they were now “in the process of reviewing what changes can be made to her current provision in the light of information now received”.

Both Hall and her fiancé’s mother, Diane Cummins – who has been supporting her – have been seeking an explanation for several weeks for why she was being charged £400 a month for what the council calls “non-residential care”.

Cummins only discovered the charges when she got to know her son’s fiancée and began to support her with her paperwork and found documents showing the payments.

Hall’s finances had previously been controlled by the council, and Cummins said she had been “fobbed off” when she raised questions about the charges.

Cummins then helped her complain to the council and Select Lifestyles.

But both the council and Select Lifestyles dismissed their concerns, with the council insisting that she was supposed to be receiving more than 50 hours of care a week.

But neither the council nor Select Lifestyles had been willing to discuss why she was being charged for services she did not receive until Disability News Service (DNS) began asking questions about the charges this week.

Hall lives with her cat in a self-contained flat in Wolverhampton, which is managed by Select Lifestyles and is separate from a larger building where other disabled people receive supported living services from the company.

Although she has received one-to-one support from Select Lifestyles in the past, she has not done so for months, and possibly years.

She said she did not currently receive any one-to-one care at all from Select Lifestyles.

She told DNS this week: “I’m independent. I shouldn’t be paying really because I don’t have the care.

When I went to the council, they said I was living in a residential home and need 50 hours of care.

All I need help with is bills and forms and letters. I don’t need personal care at all.

I feel like it’s a bit of a rip-off and they are taking advantage and they are taking the mick a little bit.”

She added: “It’s very strange, it’s very odd. I haven’t had a proper carer for two years, I do everything myself.”

When DNS initially approached Select Lifestyles, a manager insisted that the company did not receive the money Hall was being charged by the council.

A colleague later promised to carry out “a thorough investigation to ensure transparency and accountability”.

The company then engaged a public relations company to deal with DNS, and Emma Franks, executive director at Select Lifestyles, said in a statement: “We have been made aware of Ms Hall’s concerns regarding care charges and are actively liaising with the City of Wolverhampton Council.

While we can confirm we receive no payment other than the rent for the apartment and service charge, we are committed to ensuring the necessary assistance is given to Ms Hall.  

The well-being and satisfaction of our residents is a priority, and we are working with relevant parties to provide further clarity and help address concerns.”

The council originally claimed that the charge was “not for one-to-one care, but for 56 hours per week of day and waking night care provided at Ms Hall’s supported living accommodation.

She currently pays £108.19 per week towards this, with the remainer of the total cost of £1,084.16 per week being met by the local authority.”

But DNS questioned this statement when Select Lifestyles said it received no payment other than rent and a service charge, which Hall has been told covers the cost of utilities.

The council and Select Lifestyles finally provided a joint statement, claiming that “Shauline Hall is currently residing in supported living accommodation, which is staffed 24 hours a day to provide support to people living there”.

The statement said: “The City of Wolverhampton Council pays the provider Select Lifestyles £1,084.16 per week for the shared care that Ms Hall is planned to receive, and she is charged a weekly contribution towards this cost of £108.19 per week.

With the support of Select Lifestyles, Ms Hall has been working towards independence and, as a result, the care and support she has been receiving has reduced, and she is no longer in receipt of one-to-one care.

We know that as a result of the progress she has made, supported living is no longer necessary for Ms Hall and that she will be able to live independently as soon as alternative accommodation is identified.

We have been actively supporting her with this and will continue to do so.

In the meantime, Ms Hall is able to continue to reside in supported living with the existing arrangements for shared care remaining in place and we are in the process of reviewing what changes can be made to her current provision in the light of information now received.”

The council had declined by noon today (Thursday) to confirm how long Hall has been paying for care and support she has not been receiving, but said it was not as long as four years.

It had also failed to explain who was receiving the funding for the support when Select Lifestyles insisted that it only received rent for her flat and the service charge for the bills.

The council also refused to say if the concerns would now be investigated, if Shauline Hall would be reimbursed for the thousands of pounds of charges she has wrongly had to pay, and if the council would apologise to her.

Cummins said she was extremely concerned about how Hall had been treated.

She said: “It’s absolutely ridiculous. I told them it’s an absolute disgrace. They are not treating her right.”

She called on other disabled people in similar situations to check what they are paying for their care package.

16 May 2024

 

 

Government to investigate ‘fake disabled’ mystery shopper rail claims

The government is to investigate claims that rail companies are using “mystery shoppers” who are pretending to be disabled as a way of providing data on the accessibility of their services.

One campaigner said the concerns could have “huge consequences” for the rail industry.

Both the Department for Transport (DfT) and the rail regulator confirmed this week that data from these “role-playing” mystery shoppers should not be used in information passed by train companies to the government.

Disability News Service (DNS) revealed last week that a market research firm used by multiple rail companies was using “role-playing” passengers who pretend to be disabled to carry out mystery shopping assessments of services at rail stations and on trains.

At least one train company that uses the services of Mystery Shoppers Ltd (MSL) was unaware of the role-playing, and has confirmed that data from MSL is regularly passed to DfT.

Disabled campaigners warned last week that role-playing passengers could have been providing inaccurate, overly-positive information about the accessibility of the rail system.

DfT said yesterday (Wednesday) that it now plans to discuss with train companies whether data provided by MSL or other contractors had complied with their “audit requirements”.

DfT has yet to say if it was aware – before being alerted to the claims by DNS – that train companies were using role-playing mystery shoppers to test the accessibility of their services, and that this data might have been passed to the government.

It is also not yet clear if the data provided by MSL to train companies could have affected how the performance of those companies has been assessed by DfT and any bonuses they might have received.

DfT said this week that rail contracts require a quarter of all customer service audits to be carried out by mystery shoppers with “genuine disabilities”.

These results are used to calculate scores for key indicators of how those companies are performing.

It confirmed that data from role-playing mystery shoppers should not be included in these audits.

But DfT said it was for train operators to ensure that any companies they used to provide this data complied with the audit requirements. 

The Office of Rail and Road (ORR), the rail regulator, confirmed that mystery shopping of disabled people’s experiences “should be carried out by passengers who are themselves disabled”.

An ORR spokesperson said in a statement: “Thank you for bringing this information to our and train companies’ attention.  

We remind train companies that they are accountable for the performance of their contractors.

We expect operators to be continuously reviewing their performance in supporting disabled passengers and looking at how they can improve.    

If mystery shopping is to provide a proper reflection of disabled people’s experiences, it should be carried out by passengers who are themselves disabled.”

He added: “We support the use of mystery shopping as one of the ways that operators can understand the experience of their disabled passengers but do not require it.

We were not aware that train operating companies were using a mystery shopping company that allows non-disabled people to role-play being disabled.”

Emily Yates, co-founder of the Association of British Commuters, said yesterday: “This story could have huge consequences for the rail industry, if it’s found that operators are in breach of their contracts.

Train operators appear to have used this low quality, fake data to fulfil their audit requirements, which could also put the DfT’s entire contract performance regime into doubt.

We have to know the full extent and scale of the problem, especially how it has affected any policy decisions.

Meanwhile, the government keeps up its obsessive secrecy about rail, ticketing and staffing reform; and there is still no sign of the two consultations promised since 2021 – the National Rail Accessibility Strategy and the ORR’s Assisted Travel Policy consultation.”

Those carrying out MSL’s mystery shopping exercises at stations and on trains are paid a small fee and travel expenses.

The “assignments” are advertised on MSL’s website and in emails to freelance workers, but many of the tasks that request a passenger to test how the rail company performs in providing assistance to disabled people state that they can be carried out by passengers who “can role play that they need assistance”.

One task, from 2023, described the assignment, relating to a visit to a station in Sussex, as “an assitance [sic] shop, which can be a genuine need, or role played, here are some examples – Visual impairment – Hearing impairment – Physical disabilities, such as using a wheelchair or walking aids”.

Sarah Leadbetter, national campaigns officer for The National Federation of the Blind of the UK, said last week that the use of mystery shoppers who are role-playing being disabled was “disgusting” and added: “They have not got the right lived experience. They can’t walk in our shoes. They won’t have a clue.”

Sam Jennings, a disabled activist whose new website #DisabledByTheRailway highlights the access barriers faced by disabled rail passengers, said last week: “Until you’ve actually had the impairment, you won’t notice the nuance and the different things that could really be dangerous.

You don’t have that knowledge. It’s ridiculous. What they’re doing is dishonest, it makes a mockery of it.”

MSL last week admitted paying mystery shoppers to role-play being disabled passengers, and it said it would carry out an internal review of its “communication and practices”.

16 May 2024

 

 

Truly shameful’ figures show more than 5,000 disabled people spent time sleeping on London’s streets last year

New figures that show more than 5,000 disabled people spent time sleeping on the streets of London last year are “truly shameful”, according to the capital’s leading disabled people’s organisation.

The figures, secured by Disability News Service (DNS) through a freedom of information request*, show the number of disabled people seen rough sleeping in London rose by nearly a thousand between 2019 and 2023.

London’s mayor, Sadiq Khan, said the figures were “very worrying” and “should be a wake-up call” for ministers who continue to ignore the scale of the “national crisis”.

But the government was unable to explain this week why so many disabled people were living on London’s streets, saying there were many reasons why people become homeless.

DNS requested the figures after talking to disabled people who were living in tents just yards from where the Department for Work and Pensions (DWP) used to have many of its offices, in central London.

The new figures*, released by the mayor’s Greater London Authority, showed the number of disabled people seen rough sleeping in the capital rose from 4,434 in 2019 to 5,390 in 2023.

The biggest increase appears to have been in those with mental distress or trauma, with that number rising from 3,363 in 2019 to 4,184 in 2023**, although those living with significant health conditions also rose sharply, from 2,829 to 3,207.

Laura Vicinanza, Inclusion London’s policy and stakeholder engagement manager, said the numbers were “truly shameful”.

She said: “It’s appalling and unacceptable that there are so many disabled people who are sleeping rough in what is supposed to be the best city in the world.

Sleeping rough is a traumatic experience for anyone but it’s particularly devastating for disabled people.

The situation is out of control and demands urgent action from government at all levels to keep everyone, including disabled people, off the streets.”

Vicinanza said the increase since 2019 was also “shocking”.

She said: “Our community has been one of the hardest hit by austerity, the Covid pandemic and the cost-of-living crisis on top of the impact of long-term structural inequality and discrimination that we experience daily in our lives.

It is not surprising that a hostile housing market coupled with austerity measures and a chronic shortage of accessible, safe and affordable homes have pushed more and more disabled people into homelessness.”

She added: “We know that the risk of homelessness and housing precarity for disabled people has drastically risen as a result of a series of policy failures to prevent homelessness, including the lack of appropriate support being provided to autistic people and people with learning difficulties with managing tenancies.”

And she said that many disabled people are forced into private rented accommodation, which is “the most unaffordable, inaccessible and insecure form of tenure”.

No-fault evictions in the private rented sector are the leading cause of homelessness, she said, but disproportionately impact disabled people who cannot then find affordable housing that meets their needs once they are evicted by their landlords.

Inclusion London called on Sadiq Khan to “massively increase the supply of accessible social housing” and to work with local authorities to ensure that homelessness charities commissioned to provide support services receive mandatory disability equality training that is delivered by disabled people’s organisations.  

And it called on central government to abolish no-fault evictions “without delay”, and to increase funding to local authorities for “floating support” to prevent disabled people, particularly autistic people, people with learning difficulties and those experiencing mental distress or trauma, from becoming homeless in the first place.

A spokesperson for Sadiq Khan said: “The rise in the number of disabled people sleeping rough in London is very worrying and should be a wake-up call for ministers who continue to turn a blind eye to the scale of this national crisis.

Since first being elected, Sadiq has more than quadrupled City Hall’s rough sleeping budget, helping more than 16,000 people off the streets, with a further £10 million pledged for his third term.

He has committed to eradicating rough sleeping in London by 2030 and will not stand by and allow a social catastrophe to unfold in our capital.

Disabled people have been disproportionality affected by the government’s cuts to the social security system, alongside cuts to council and health budgets. 

The mayor will continue to put pressure on ministers to reverse these damaging cuts as he works to build a fairer, safer London for everyone.”

The mayor’s office said the Greater London Authority’s rough sleeping budget of £36.3 million for 2023-24 was more than four times the £8.45 million a year it was when the mayor took office in 2016.

And it said that more than 75 per cent of those who receive support following intervention from City Hall-funded services are not seen sleeping rough again. 

The government’s long-awaited plan to outlaw no-fault evictions should become law this summer, although this will only mean an end to the practice for new tenants. Extending the ban to existing tenants will have to wait until a review has been completed.

The Department for Levelling Up, Housing and Communities (DLUHC) was unable to say why so many disabled people were living on London’s streets, because it said there were many reasons why people become homeless.

But a DLUHC spokesperson said in a statement: “There are very strong protections for homeless people with disabilities, as individuals who are vulnerable as a result of mental ill health, learning disability or physical disability have priority need for temporary accommodation until suitable, settled accommodation is secured.

We are spending £2.4 billion to tackle homelessness and rough sleeping and giving £191 million to London boroughs over three years, supplying hundreds of beds and specialist support for the most vulnerable.”

*The figures come from the Combined Homelessness and Information Network database

**Many of those sleeping rough were recorded as having more than one type of impairment

16 May 2024

 

 

Anger over government’s ‘gleeful’ announcement of yet more special schools

The government’s policy of opening more and more special schools is stripping funding from mainstream settings and handing it to profit-making bodies, disabled campaigners have warned.

They said the government was allowing these organisations to make “huge profits” through the “institutionalisation and inhumane segregation” of disabled children, and they criticised this week’s “gleeful” announcement of locations for another 16 special free schools.

The warning came from The Alliance for Inclusive Education, as the Department for Education announced that the new special schools would provide spaces for more than 2,000 disabled children across England.

Academy trusts will now be given the opportunity to compete to run the new schools.

The government has already opened 108 schools as part of its special free schools programme since 2010, and said it planned to open a further 93.

David Cameron’s pledge in his party’s 2010 general election manifesto (PDF) to “end the bias” towards including disabled children in mainstream schools led to successive Conservative-led governments focusing on building new segregated special schools, and increasing the number of children attending special schools.

But Iyiola Olafimihan, ALLFIE’s justice and campaigns officer, said the government’s latest plan was nothing more than to “take away much needed funding and resources from mainstream educational settings and giving it away to commercial and private providers who are making huge profits off the back of institutionalisation and inhumane segregation of disabled children.”

He said the move to open yet more special schools across England “clearly undermines” the presumption of mainstream education included in the Children and Families Act 2014.

Even more importantly, he said, it breaches article 24 of the UN Convention on the Rights of Persons with Disabilities, ratified by the UK government, which states that inclusive education is a human right.

Last year, the government admitted in its Special Educational Needs and Disabilities and Alternative Provision Improvement Plan that there was evidence “that greater inclusion in mainstream settings can improve the academic achievement for children and young people with SEND* and has neutral or small positive effects on the outcomes of those without SEND”.

Olafimihan said it was “shocking” that the government kept funding special schools and units when there were “disturbing reports of harm and torture” in segregated schools.

He pointed to last month’s report by the BBC, which described how staff had been filmed “hitting, kicking and leaving special school pupils in their own urine” at Whitefield School in Walthamstow between 2014 and 2017.

Olafimihan said the government’s plans would ensure disabled children and young people “remain segregated, excluded and marginalized from society” and would deprive them of the chance to build “meaningful social networks and friendships with their non-disabled peers”.

He said the government had “gleefully and unashamedly” announced its “appalling” latest plan, which “clearly demonstrates that the government’s interest is to undermine the belief that every disabled person deserves equal access to mainstream education”.

Announcing the new special schools, education secretary Gillian Keegan said: “Special schools can truly transform children’s lives, enabling pupils with special education needs and disabilities to thrive in environments that meet their needs.

We’re creating tens of thousands of special school places since 2010 and today’s announcement takes us one step closer to our commitment of a record 60,000 more places for children with additional needs.

I know how hard it can be for families trying to navigate the SEND system, and the creation of more brilliant special schools is just one part of our plan to make sure every family and every child get the right support, in the right place at the right time.”

But ALLFIE said the argument that inclusive education works “is already won” and “education on an equal basis is a matter of human rights that must never be denied to disabled children and young people”.

Olafimihan said: “By continuing to implement policies that undermine equitable and equal right to the same quality of education in mainstream settings that non-disabled children and young people have access to, the UK government is violating our human rights and dignity.”

And he called on the disabled people’s movement to support ALLFIE’s campaign, and help it push back against the “relentless and continuous assault” on inclusive education.

*Special educational needs and disability

16 May 2024

 

 

Other disability-related stories covered by mainstream media this week

A deep dive into the crisis engulfing adult social care has revealed almost a third of councils are no longer confident they can meet their basic legal duties towards older and disabled residents next year. Research from the Local Government Association lays bare the scale of fear felt by those leading this work in local authorities across England. A survey with dozens of adult social care leads suggests just eight per cent are very confident about meeting their statutory duties for 2025-26, down from 27 per cent for 2024-25: https://www.itv.com/news/2024-05-14/one-in-three-councils-not-confident-they-can-provide-basic-adult-social-care

Visually-impaired people are calling for an end to so-called floating bus stops. Kevin Greenan, from Greater Manchester, who is part of a delegation delivering a petition to prime minister Rishi Sunak, said the stops – being built across the country – are dangerous for people with limited or no sight: https://www.bbc.co.uk/news/articles/c0jkky5xk85o

Filmmakers could improve cinema experiences for deaf people by putting more thought into captioning, according to researchers at the University of Sheffield. Research found that poor quality, missing or lagging captions led to deaf audiences feeling excluded through not fully experiencing film-making techniques like suspense. A team from the university and a research and design company based in the city worked with members of the deaf community on the project: https://www.bbc.co.uk/news/articles/cpwg3xedxw5o

16 May 2024

 

News provided by John Pring at www.disabilitynewsservice.com

 

 Posted by at 15:36
May 092024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

A serious response to a dark comedy

How do we, as a society, support disabled people? Why do we have a benefits system and what can we do to make it better? Is it just about money?

Join BOP for a national online event concluding its 30th Anniversary Tour of “Don’t. Make. Tea.”, a dark comedy written by Rob Drummond.

As Chris says in the play, “We’re not a problem. We’re a … a valuable resource.”

With this as a provocation, BOP Theatre Company invites you to join the debate as we gather audiences from across our national tour.

We’re hosting an event to ask big questions that have no simple answers. With key provocations from BOP Artistic Director Robert Softley Gale, Ellen Clifford of Disabled People Against the Cuts and Dr Sally Witcher Director and Founder of Inclusive New Normal (speaking in a personal capacity), we will hold space for an evening of discussion, allegiance building and action planning.

This event is the culmination of our 30th Anniversary tour and follows on from our in-person event in London on 25th March.

Join us – Thursday 9th May, 6pm to 7.30pm
Online – BOOK HERE

BSL interpretation and live captioning will be provided throughout the event and breaks will be scheduled. If you require additional access support, please let us know.

 Posted by at 14:11
May 092024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Contents

Rail companies are using access stats from mystery shoppers who pretend to be disabled 1

Government fails to act over minister who shared post on ‘dangerous’ DWP policies 6

Could clickbait news articles help explain why PIP claims are rising so fast? 7

It’s ‘time for a conversation’ on assisted suicide dangers, says Liz Carr, ahead of her BBC1 documentary 9

Two years since ‘toothless’ watchdog pledged to act on benefit deaths, and still no action 12

Stop this onslaught of attacks, say disabled people in letter to PM 14

Train companies admit inflating stats on pre-booked rail assistance 15

Other disability-related stories covered by mainstream media this week 18

 

 

Rail companies are using access stats from mystery shoppers who pretend to be disabled

Rail companies are using evidence on the accessibility of their rail services that has come from “mystery shopping” exercises carried out by freelance workers pretending to be disabled, Disability News Service can reveal.

Analysis of assignments offered by a market research firm used by multiple rail companies shows that it regularly uses “role-playing” passengers who pretend to be disabled to carry out mystery shopping assessments of services at rail stations and on trains.

One train company said this morning (Thursday) that it had been unaware that non-disabled people were being used instead of disabled customers.

And it said that data from surveys carried out by the company – Mystery Shoppers Ltd (MSL), which is based in Holsworthy, Devon – was regularly passed on to the Department for Transport.

Furious disabled campaigners spoke out this week to express their alarm at the practice.

They fear that role-playing passengers have been providing inaccurate information about the accessibility of the transport system, which has been used by rail companies to justify plans to close ticket offices and make rail staff redundant.

At least some of the false information is also passed on to the government and again is likely to provide an overly-positive picture of accessible transport.

An investigation by Disability News Service (DNS) has revealed that rail companies have been using MSL to test their services for more than three years.

Those carrying out the mystery shopping exercises at stations and on trains are paid a small fee and travel expenses.

The “assignments” are advertised on the company’s website and in emails to those signed up to the service, but many of the tasks that request a passenger to test how the rail company performs in providing assistance to disabled people say they can be carried out by passengers who “can role play that they need assistance”.

One task, from 2023, described the assignment, relating to a visit to Haywards Heath station in Sussex, as “an assitance [sic] shop, which can be a genuine need, or role played, here are some examples – Visual impairment – Hearing impairment – Physical disabilities, such as using a wheelchair or walking aids”.

A recent assignment for the Brighton area says the passenger “will need to roleplay/present with an assistance need”, which “can be a hearing/sight impairment or it can even be a hidden disability such as autism”.

A current assignment seen by DNS last week asked for someone to “present a simple question to the station staff member” at Market Harborough station, Leicestershire, and added: “We are looking for shoppers who require assistance or can role play that they need assistance whilst visiting the station.”

Another was looking for someone willing to use a Southern service from London Victoria to East Grinstead in West Sussex, and it asked: “We are looking for shoppers that would need assistance whilst travelling, to purchase a train ticket, ask a staff member a question and feed back on the experience.”

It then added: “You can either have or role play requiring assistance (eg help with boarding a train).”

And an assignment for Swindon, in Wiltshire, said the mystery shopper would need “to have or present with an additional need such as a disability or mobility need”.

The freelance mystery shoppers are often told by MSL: “If you get your first 5 completed in good time you may be able to complete many more!!”

This could mean that those who are role-playing being disabled people could be responsible for multiple fake results that are then being fed back to train companies, and probably also the government.

Sarah Leadbetter, national campaigns officer for The National Federation of the Blind of the UK, said her first reaction when hearing about the use of mystery shoppers who are role-playing being disabled was “anger and frustration”.

She said: “They have not got the right lived experience. They can’t walk in our shoes. They won’t have a clue.

This is a very sneaky, disgusting way to make figures look a lot better than they really are.”

Leadbetter, who continues to experience significant problems with securing the assistance she needs to travel safely on the rail system, said she believed the assignments completed by role-playing passengers will be providing the rail companies and the government with an overly positive picture of the support provided to disabled passengers.

She fears this could be used to fuel fresh plans by the industry and government to close ticket offices across the rail network.

She said: “They can’t get away with it. It’s disgusting.”

Emily Yates, co-founder of the Association of British Commuters, said: “Researching disabled people’s access needs by role-playing would be shocking at the best of times, but is particularly grotesque given this government’s record on rail consultations.

It has been many months since the collapse of proposals to close every ticket office in the country, and a three-year delay since the government first promised a ‘National Rail Accessibility Strategy’ consultation.

Passengers have been shouting about the issues, and activists have published mountains of evidence to prove widespread breaches of the Equality Act.

Yet, here is the railway conducting secret, low-quality research through a company that clearly has no rail accessibility expertise behind it.

There are more than enough access experts with real lived experience to design credible research projects and gain genuine feedback on the problems with the railway.

Whoever is behind this research – whether train operators, Rail Delivery Group, or Great British Railways – it will have zero credibility with disabled people as well as railway professionals.”

Sam Jennings, a disabled activist whose new website #DisabledByTheRailway highlights the access barriers faced by disabled rail passengers – and shows how railway staff are often disabled people’s “reasonable adjustment” and ensure the system is accessible – said it was “another low blow from the industry”.

She said: “I’m disappointed, but not surprised at all, because they’ve got a funny relationship with disabled people.

They only want the disabled people that nod along and agree with everything.”

Jennings said the information provided by MSL would be completely invalid.

She said: “Until you’ve actually had the impairment, you won’t notice the nuance and the different things that could really be dangerous. You don’t have that knowledge.

It’s ridiculous. What they’re doing is dishonest, it makes a mockery of it.”

She said the use of role-playing mystery shoppers demonstrated the “rubbish” attitude of the rail industry to disabled passengers.

She said: “There are specialist firms out there that disabled people with a range of impairments can sign up to, so it’s shoddy on the part of the mystery shopping company, but it’s even shoddier on the rail industry for selecting it.

I think they are probably using it as a really disingenuous way to make it look like things are better by cosplaying, by cripping-up, by role-playing.”

DNS approached three rail companies about their use of MSL.

Govia Thameslink Railway (GTR), which operates Southern, said it was unaware that MSL was using non-disabled people instead of disabled customers for mystery shops.

It said it uses MSL to carry out mystery shopping surveys as part of its quality control regime, and shares data from those surveys with the Department for Transport.

It also contracts MSL to carry out additional mystery shopping surveys designed to help it improve its service for disabled customers.

Carl Martin, GTR’s accessibility lead, said: “We were unaware that non-disabled people were being used in place of disabled customers for mystery shops, and we are urgently discussing with our supplier the circumstances in which they use this approach. 

At GTR we are always looking for feedback to improve customer service, and mystery shopping surveys are just one of the tools we use.  

We also have an access advisory panel of disabled customers who use our services and provide invaluable advice, which informs our staff training and the processes we use to improve the service we give our disabled customers.”

Great Western Railway (GWR) refused to answer several questions about its use of MSL, including whether its data was being passed on to the Department for Transport, and whether it was aware that MSL was using “role-playing” non-disabled passengers instead of disabled people.

But a GWR spokesperson said: “The mystery shopping programme looks at how colleagues respond to specific journey enquiries from customers.”

He added: “We use both disabled and non-disabled real-life mystery shoppers to carry out this work, and our supplier makes this clear when advertising for researchers.

However, this is just one small part of our wider research in this area.”

He said GWR also partners with several charities not led by disabled people, and runs its own “passenger-led Accessibility Advisory Panel, Assisted Travel post-journey research and customer satisfaction analysis”.

East Midlands Railway (EMR) refused to answer questions about its use of MSL, but a spokesperson did not dispute that EMR used the company and its role-playing mystery shoppers.

He said in a statement: “The requirement set for us is to measure the assistance asked for at stations and on train – which anyone can request.

We are not asked to report on specific types of disability as part of this process.

The information required is whether the assistance was delivered by friendly and helpful staff in a timely manner.”

He said EMR also had its own internal mystery shopper programme “that engages with customers with lived experiences who audit our services from their perspective”, and an accessibility and inclusion panel.

Mystery Shoppers Ltd issued a statement yesterday (Wednesday) in which it admitted paying mystery shoppers to role-play being disabled passengers.

It also said it would now carry out an internal review of its “communication and practices”.

And it appeared to suggest that the rail companies using its services were aware that it often used role-playing mystery shoppers instead of disabled people.

But it refused to say how long it had been allowing role-playing mystery shoppers to test rail assistance services, and which rail companies were using its services, and it appeared to insist that it would continue to use role-playing to test access on the railways.

In a statement emailed to DNS, it claimed its “intentions may have been misunderstood” but it insisted that “in some instances, it is necessary for us to use role play in testing the accessibility of certain services”.

It claimed role-playing was “a vital tool in mystery shopping, used to ensure that a wide range of service experiences are thoroughly tested”.

And it said: “It is fully communicated to clients that mystery shoppers are not real customers and the assessment form the mystery shopper completes is designed only to measure objectively what took place, with questions focusing on factual information.

Where there is use of role play, this is transparent to our clients.”

The statement added: “We understand and respect the concerns you’ve raised regarding the representation of disabled individuals in accessibility assessments.

Our aim is never to diminish or misrepresent the experiences of people living with disabilities and we would always choose to allocate the assignments to those with a genuine need as a priority.”

It claimed it had a “dedicated accessibility testing mystery shopper panel on our database”, but it added: “Whilst we are always continuing to strive to increase the size of our accessibility testing panel, we have carefully considered our approach and decided that, when it does not compromise data integrity, role-playing is a valuable tool that enables us to thoroughly and objectively assess services and facilities.”

The statement added: “The emails that have been sent to you by the mystery shopper cover a range of different assignments and projects.

It is apparent from your email that these emails have been perceived in a way we would not intend.

We will conduct an internal review to see where we may be able to make improvements to our communication and practices to ensure it is clear to all who read them that role playing an assistance need is conducted with the utmost respect and sensitivity.”

9 May 2024

 

 

Government fails to act over minister who shared post on ‘dangerous’ DWP policies

The government is refusing to act or criticise its minister for disabled people after she shared a social media post that attacked her own department’s disability benefit reforms.

Last week, Mims Davies shared a post on Twitter by a disability charity that described government reforms of personal independence payment (PIP) and out-of-work disability benefits as “dangerous”.

The post by the charity Scope also accused ministers of “demonising” disabled people.

Davies has refused to explain to Disability News Service (DNS) why she shared the post, or to say whether she shares the charity’s concerns about PIP and reforms such as tightening the work capability assessment, speeding up the rollout of universal credit, and ending what the prime minister has called – in a speech last month – a “sicknote culture”.

But Davies appears to have breached the long-standing convention of ministerial “collective responsibility”, which states that all ministers are bound by decisions made by the Cabinet.

As described in a briefing document published by the House of Commons Library, this means that “if a minister disagrees with a government policy, he or she must still publicly support it”.

A minister who cannot accept this collective responsibility “is expected to resign”.

Her actions have fuelled speculation that Davies may become the latest Conservative MP to defect to Labour, after yesterday’s move by Dover MP Natalie Elphicke.

A Conservative party spokesperson refused to comment on the actions of Mims Davies and instead said he had passed on the concerns to the government’s special advisers in the Department for Work and Pensions (DWP).

They had not responded by noon today (Thursday).

The party spokesperson also suggested that DNS contact the Cabinet Office.

The Cabinet Office declined to comment, and suggested DNS contact DWP.

DWP has also refused to comment on Davies’ decision to share the post, but referred DNS instead to a separate post in which Davies encouraged disabled people to engage in the PIP consultation.

Davies has now had several opportunities to clarify to DNS why she shared the post, and has repeatedly failed to do so.

Barry Ginley, chair of the Conservative Disability Group, also raised concerns about the government’s reforms this week.

He told DNS: “I can’t say why the post was shared, only Mims can answer that question.”

But he added: “I do recognise and understand the concerns of Scope and many disabled people, in which I share.

I would like to see more information of how any changes would impact disabled people.

I have recommended to everyone I speak to to respond to the consultation and let the government know their thoughts.

The speech from the prime minister has made many disabled people nervous about their futures and their independence.

I understand the need to reduce the growing benefits bill, but as a disabled individual, I hope the reforms assist disabled people to continue to lead independent lives with the benefits to ensure this happens.”

Vicky Foxcroft, Labour’s shadow minister for disabled people, said: “The government’s minister for disabled people appears to disagree with her own government policy, encouraging stakeholders to brand it ‘dangerous’.

This government really is a shambles. After 14 years of failing disabled people, it really is time for change.”

9 May 2024

 

 

Could clickbait news articles help explain why PIP claims are rising so fast?

Questions have emerged over the role played by local news websites across the country in increasing the number of disabled people applying for disability benefits, casting fresh doubts on the government’s key argument for spending cuts.

Last week, ministers announced proposals for significant cuts and reforms to personal independence payment (PIP), which they said were necessary to address “spiralling costs”.

They pointed to figures which showed PIP spending was expected to grow by nearly two-thirds between 2023-24 and 2028-29 and that there were now more than 33,000 new awards for PIP per month compared to 17,000 before the pandemic.

Rishi Sunak, the prime minister, said last week: “It’s clear that our disability benefits system isn’t working in the way it was intended, and we’re determined to reform it to ensure it’s sustainable for the future, so we can continue delivering support to those who genuinely need it most.”

Many disabled people argued instead that the increase in new PIP claims was not due to a disability benefits system that was too generous but to years of austerity cuts to the NHS and other services and the impact of the Covid pandemic – including the emergence of long Covid – on the nation’s health.

But after being alerted by a disabled campaigner, Disability News Service (DNS) is now asking if the publication of countless news stories on local media websites over the last couple of years could also be playing a significant role in the increasing number of disabled people applying for PIP.

This would suggest that the increase in claimant numbers could be partly because there are hundreds of thousands of disabled people who do not currently claim the benefits they are entitled to.

These “clickbait” news stories follow a familiar pattern, with headlines telling readers “DWP to pay extra £362 a month for one of these 23 conditions”, “DWP says it’ll pay £691 to people with any of 87 common conditions” or “87 common muscle and joint conditions that qualify you for £737 from DWP”.

The headlines are written in a way that is likely to encourage people with those health conditions to visit the news website to investigate if there is financial support that they could qualify for, particularly in a cost-of-living crisis.

Most of the articles, published by local news websites across the country, encourage readers to apply for PIP.

The articles examined this week by DNS were mostly published by two of the largest UK media companies, Newsquest and Reach plc.

DNS asked both companies this week whether the stories had been successful in driving visitors to their websites, and if they believed they were partly responsible for the steep rise in disabled people applying for PIP.

A Reach spokesperson refused to comment on the company’s role in increasing the number of PIP recipients, or whether the stories had been successful in driving visitors to its websites.

A spokesperson for Newsquest, which is owned by Gannett, the largest US publisher of newspapers, said: “Since the beginning of 2024, Newsquest titles have published more than 200,000 stories on a wide range of issues of interest to our readers, with less than a dozen focused on specifically on [sic] generic DWP/PIP stories.

Our mission is to report the facts as accurately as possible with no agenda.” 

When DNS questioned those figures and suggested that some of the articles appeared on multiple Newsquest websites, the company declined to comment further.

Newsquest also suggested that most PIP stories were written by other publishers.

A DWP spokesperson refused to comment on the role of the news stories in increasing new PIP claims.

But the department said that PIP payments were awarded based on how conditions affect the claimant.

And it claimed that it was consulting on PIP reforms to modernise the benefits system, which – it claimed – would better reflect the country’s changing health landscape.

9 May 2024

 

 

It’s ‘time for a conversation’ on assisted suicide dangers, says Liz Carr, ahead of her BBC1 documentary

Disabled actor and activist Liz Carr has described her hopes that her BBC1 documentary about assisted suicide will finally explain the dangers of legalisation to a mainstream audience.

Better Off Dead?, to be broadcast on Tuesday (14 May) at 9pm, sees Carr travel to Canada to examine the impact of some of the most permissive assisted suicide laws in the world, but she also interviews two key campaigners who support legalisation in the UK.

She told Disability News Service (DNS) that she believed her documentary was particularly important in the context of years of austerity cuts, and the rates of suicides already linked to austerity and the actions of the Department for Work and Pensions.

Legalising assisted suicide, she said, would be even more dangerous at a time when “we are absolutely removing our welfare state, and we are dismantling our incredible NHS”.

Last week, at a protest outside the Houses of Parliament, she told DNS she was terrified by the government’s latest proposals to cut spending on personal independence payment.

She said: “I don’t even think the other side will make the connection over how terrifying that feels to disabled people yet again.

We know disabled people have killed themselves because of DWP reforms in the past.

That’s what terrifies me: the kind of thing happening in Canada where people for socio-economic reasons are choosing to end their lives through euthanasia.”

In Canada, she interviewed Amir Farsoud, a disabled man from Ontario, who requested an assisted suicide because his landlord was planning to sell off his apartment building, and he was terrified at the prospect of being left homeless on the freezing streets.

He eventually changed his mind about seeking an assisted suicide after a crowd-funding effort raised tens of thousands of dollars to support him.

He told Carr – best known for her role in BBC drama Silent Witness, but also a prominent member of the disabled people’s movement – that it was easier and quicker in Canada to apply for medical assistance in dying (assisted suicide) than disability benefits.

Carr also told journalists and other guests at an event previewing her documentary that it was “quite frightening” to have the Labour party led by someone, Keir Starmer, who is in favour of assisted suicide.

She said: “I’ve always been a little bit worried about Starmer getting in power, because he introduced the guidelines [on prosecuting cases of assisted suicide, in 2010] when he was director of public prosecutions.

I’ve known he’s been pro, we all have, for over 10 years.”

She said this was “quite frightening” and “makes it difficult for voters like me to know what to do for the next election”.

Asked if she had a message for Starmer, she said: “I would say, please watch the documentary.

I want you to talk to those who have concerns. Don’t sideline us as being marginalized and religious. There are a lot of people who are really concerned.”

She also spoke of the “chilling” attitude of Canadian doctor Dr Ellen Wiebe – who is herself disabled – who has provided assisted suicide to hundreds of Canadians since it was legalised and is shown in the documentary telling Carr she was “so glad, so glad” that they had medical assistance in dying laws in Canada.

She told her: “I love my job. This is the very best work I have ever done.”

Wiebe is also shown saying that she had never had so many grateful patients, which Carr said was “one of the most terrifying things in the documentary”.

She said: “When she says that doctors like grateful patients, that is chilling to me.

And as somebody that’s had a lot of involvement with, you know, medics, that really frightens me.”

Carr told the audience at the preview event: “If we ask the question, ‘Do you want to stop dying people’s suffering?’ everybody has to say yes to that, or you’re a psychopath.

We all, I believe, want everyone to have a good death, so the answer is how we do that.

And the only difference between me and [those supporting legalisation] is how you do that. That’s the only difference.

I don’t want people to suffer. I want people to have a good death. I just think people will suffer more if we introduce assisted suicide.”

And she said there was “an absolute PR machine that keeps [legalisation] in the news and tells us that we’re going to get a change in the law. It’s not if, it’s when.”

But she said there was “nothing inevitable about it, nothing at all… I still think it’s time for a conversation and it’s not inevitable.”

Carr said she did not understand why those fighting for legalisation did not put their resources into pushing for improved healthcare and palliative care, or “into giving people choice and control in their lives”.

She said: “Because choice isn’t choice when you’ve got no choice. It absolutely isn’t.

And I meet people in my life who are suffering absolutely because they do not have choices in their life.”

One of the things she wanted to do with the documentary, she said, was to ensure that the disabled activists who are “a big part of my life” and “who have waited for this voice for years… feel heard and seen”.

A series of disabled actors, artists and activists opposed to legalisation are either seen on film or interviewed in the documentary, including Lisa Hammond, Ellen Clifford, Jamie Hale, Paula Peters, Eleanor Lisney, Penny Pepper and disabled peers Baroness [Jane] Campbell and Baroness [Tanni] Grey-Thompson.

During the film, Carr also interviews some of those who have campaigned for legalisation in the UK, including Labour peer Lord Falconer, and disabled journalist Melanie Reid.

Reid tells her she has “a human right to decide what happens to my body”, while Lord Falconer says the need for legalisation is “about control… not about the intensity of the pain… there are a group of people who will always want to be in control”.

But Carr said that, while filming her interview with Reid at her home in Scotland, “actually, most of the time we shared the experiences of being two disabled women, living in contemporary society, and the struggles and the fights to get our care needs met”.

9 May 2024

 

 

Two years since ‘toothless’ watchdog pledged to act on benefit deaths, and still no action

The equality watchdog has been accused of bowing to political pressure by failing to force the Department for Work and Pensions (DWP) to prevent further deaths of disabled benefit claimants, two years after promising to take legal action.

It is now more than two years since the Equality and Human Rights Commission (EHRC) announced it was drawing up a legally-binding “section 23 agreement” with DWP that would force it to act.

But every time EHRC has been challenged about its failure to act in the last two years, it has said it is legally prevented from commenting on any discussions it is having with DWP.

EHRC said in April 2022 that it expected DWP to sign a section 23 agreement by the summer of 2022.

The agreement, EHRC said at the time, would commit DWP “to an action plan to meet the needs of customers with mental health impairments and learning disabilities” and it said it had concluded that action was necessary “given the seriousness of the issues”.

The commission only announced that plan after failing to follow through on proposals for an inquiry into the deaths of countless disabled people that had been linked to DWP’s actions.

But this week, more than two years on, disabled people and allies have spoken of their anger and frustration at the commission’s continuing refusal to follow through on its promise of legal action.

Mark Harrison, a member of the steering group of the Reclaiming Our Futures Alliance (ROFA), said: “In the two years the EHRC has failed to sign the section 23 agreement, many more unnecessary benefit-related deaths have occurred and many more disabled people have been harmed psychologically by the DWP and their repressive policies.

ROFA has been raising this issue with the EHRC over the last 18 months as we know this government has no intention of signing this agreement.

The truth is the EHRC has failed to protect the human rights of disabled claimants.”

He added: “Unfortunately, the leadership of the EHRC, appointed by the Tory government, are political stooges who are preventing holding this administration to account.”

Debbie Abrahams, Labour MP for Oldham East and Saddleworth, who for years has led parliamentary efforts to hold DWP to account over the deaths, said EHRC’s actions showed that it “has no teeth” and she said it was “staggering” that “absolutely nothing has changed”, two years after the commission’s section 23 statement.

She pointed to last month’s report by the UN committee on the rights of disabled people, which found the UK government had made “no significant progress” since being found guilty in late 2016 of “grave and systematic” violations of the UN disability convention.

She said that, if anything, the discrimination was “getting worse”, and she pointed to the “scapegoating of sick and disabled people” by the prime minister in his “sick note culture” speech last month.

Disabled campaigner Alison Burton, whose father-in-law Errol Graham starved to death after DWP wrongly stopped his benefits when he missed a work capability assessment, told Disability News Service she was “seriously disappointed” at the commission’s failure to act.

She said: “I am disappointed that the EHRC has not exercised its powers to its full capacity.

They have let down an awful lot of vulnerable and disabled people who look on the EHRC to uphold their rights and protect them.

I feel that they have failed them.”

Carolin Ott, a solicitor with Leigh Day, which represents Errol Graham’s family, said Burton was “disappointed and concerned” that nearly six years after his death and two years after EHRC’s section 23 announcement “little has been done to ensure that what happened to Errol does not happen again and the agreement has yet to be signed”.

She pointed to last month’s report by the UN committee, which said the committee was “appalled” by reports of “benefit deaths” in the UK.

The committee said the deaths linked to benefit claims had a “disturbingly consistent theme”, with disabled people “resorting to suicide” following the denial of adequate support through social security.

It called for the government to take urgent action to “prevent, review and respond to” benefit-related deaths and provide appropriate compensation for the victims’ families.

And it concluded that the government had made “no significant progress” since 2016.

Ott said: “This begs the question: how many more people have to die before the relevant bodies take responsibility to effect meaningful change?”

An EHRC spokesperson said: “Due to legal restrictions set out in section six of the Equality Act 2006, the EHRC is unable to disclose further information about our ongoing discussions with the DWP.”

DWP refused to comment but claimed that it was continuing to work with EHRC over its concerns.

9 May 2024

 

 

Stop this onslaught of attacks, say disabled people in letter to PM

The prime minister has been asked to explain his government’s “onslaught” on disability rights, in a letter signed by more than 25 disabled people’s organisations and allies.

They have accused Rishi Sunak of trying to “scare people into good health” and forcing disabled people into inaccessible jobs.

And they say Sunak was guilty of issuing “harmful misinformation” when he tried to justify a new round of social security cuts and reforms.

They stress in the letter how successive Conservative governments have now had more than seven years to address serious breaches of the UN Convention on the Rights of Persons with Disabilities, since a UN committee found the government guilty of “grave and systematic” violations of the treaty.

Last month, the UN committee on the rights of disabled people concluded that the UK government had made “no significant progress” since the finding in late 2016.

The committee even found “signs of regression” – backward steps – in the UK’s progress towards fully realising the rights described in the convention.

The committee said the government’s social security reforms were based on the idea that “disabled people are undeserving and wilfully avoiding employment” and are “defrauding the system”, which has led to “hate speech and hostility towards disabled people”.

This week’s letter says that Sunak, when announcing his attack on “sicknote culture” last month, claimed social security had become a lifestyle choice, which the letter says was “harmful misinformation”.

The letter has been sent to 10 Downing Street by Disability Rights UK (DR UK), and co-signed by disabled people’s organisations including Greater Manchester Coalition of Disabled People, Wiltshire Centre for Independent Living, Inclusion London, and West of England Centre for Inclusive Living.

It says that last week’s Modernising Support for Independent Living green paper – which revealed proposals for cuts and reforms to personal independence payment – “undermines the very principle of an extra cost benefit” for disabled people.

The letter adds: “You cannot scare people into good health, and you cannot force people into inaccessible jobs.”

And it points to the UN committee’s concerns over inadequate support for disabled refugees and asylum-seekers, as well as highlighting the more than six million people who are on NHS waiting-lists for treatment in England, chronic underfunding of the NHS, proposals to enable the segregation of trans people in the NHS, inadequate housing and the cost-of-living crisis.

It also criticises the government’s consistent failure to “closely consult and actively involve” disabled people and their organisations in drawing up policies that affect their lives.

The letter calls on Sunak and his government to “build a radical and transformative disability strategy” that addresses the violations of disabled people’s rights “and eliminates the root causes of inequality and discrimination”, and to build on a blueprint for such action laid out in The Disabled People’s Manifesto.

Kamran Mallick, DR UK’s chief executive, said: “Despite mountains of evidence pointing to disabled people being disproportionately poor, marginalised and starved of essential income, support and services, the government continues to fail to tackle deep-rooted inequalities and injustices.

Instead, the government has introduced a string of proposals to create an even more hostile and punitive benefits process, failed to increase funding for public services such as social care and special educational needs, and produced a lacklustre Disability Action Plan.

The letter asserts that it is government policies that are forcing people into poverty and ill health, and that this is where it should focus its effort, rather than attacking disabled people.”

The letter came as the Department for Work and Pensions (DWP) announced the first pilots of its WorkWell work and health support programme.

The voluntary scheme, first announced at last year’s spring budget as part of the government’s Back to Work Plan, will see 15 areas across England aim to connect about 60,000 people to local support services so they can secure “the tailored help they need to stay in or return to work”.  

The service aims to provide advice on workplace adjustments, “facilitate conversations with employers”, and provide access to local services such as physiotherapy, employment advice and counselling.

9 May 2024

 

 

Train companies admit inflating stats on pre-booked rail assistance

Figures passed to the rail regulator by train companies have repeatedly inflated the success of the industry’s pre-booked passenger assistance service, potentially adding weight to the push to close ticket offices and cut station staff.

The data showed the number of disabled passengers booking assistance for rail journeys in advance skyrocketing last year.

The Office of Rail and Road (ORR) this week described RDG’s failure as “concerning” and has had to remove data on assisted journeys from its website because of the “data quality concerns”.

The Rail Delivery Group (RDG), which represents the companies that run Britain’s railways, admitted to ORR that it had been including – in figures showing the number of “booked assists” – the assistance provided to disabled passengers who had arrived at a station and requested support using their legal right to “turn up and go” (TUAG) travel.

RDG admitted that TUAG figures had been included in its statistics for booked assistance since April 2021.

ORR published a note on its website earlier this year explaining that it had been forced to remove the assisted travel data from the site.

A freedom of information request from disabled campaigner Doug Paulley has now revealed why ORR removed these figures.

Emails released through his request show one RDG executive telling ORR that the “data we have supplied has always included Turn Up and Go”, with another admitting that “it does include both unbooked and booked”.

The emails show that it is only after ORR raises the issue that RDG offers to separate the two sets of figures.

ORR tells an RDG executive in one email: “We’ve never been informed the data now includes unbooked assists.”

The emails show how the sudden realisation that RDG has been sending through inaccurate statistics causes the regulator to cancel publication of the latest figures a day before they were due to go live in January.

RDG’s actions had led to inaccurate figures showing a huge rise in the number of disabled passengers using Passenger Assist – pre-booked assistance – in the second quarter of 2023-24.

RDG had originally told the regulator that the data was accurate but later admitted that in fact it included TUAG assistance “and always has done”.

RDG’s actions are important because both the government and rail operators are desperate to encourage disabled people to book their assistance in advance rather than taking advantage of their right to TUAG travel.

A move towards more booked assistance could boost the industry and government’s arguments for cutting staff at stations and might even help them push again for a mass closure of ticket offices.

Paulley said: “The inability of Rail Delivery Group to create accurate statistics on passenger assistance bookings is a clear sign that the technology, people and organisation aren’t fit for purpose.

Metrics on disabled people’s transport rights and experiences are important, yet RDG doesn’t seem to treat them as such.

That RDG didn’t even notice that the data were problematic demonstrates once again their evident incompetence in accessibility.

It’s terrible that they still can’t get their figures right four months on.

Conflating a minority of Turn Up And Go assistance provisions with statistics on bookings is worrying and undermining our rights. It fits the narrative of expecting us always to book.

What we need is the inalienable right to Turn Up And Go and for RDG to be disbanded as the dysfunctional, two-faced organisation they are.”

ORR said the inconsistency in the data RDG supplied on passenger assistance was “concerning”, although a spokesperson said it had “worked constructively with RDG to investigate and resolve issues”.

An ORR spokesperson said: “As the provider of official statistics on rail, it is imperative that data is of a high quality and consistent.

As soon as ORR became aware of the inconsistencies in the passenger assistance data from RDG, we took action to withdraw the data and work with RDG to investigate and resolve issues.

We are aiming to publish latest available full year (April 2023 to March 2024) and corrected historic data for booked assistance in July.”

RDG refused to apologise for its actions, or to explain why it did not inform ORR that the Passenger Assist numbers were being inflated by TUAG figures.

It also refused to say if the inflated figures could have helped with the push to cut staff and close ticket offices.

But an RDG spokesperson said in a statement: “We strive to make sure that all the data the Rail Delivery Group provides to industry partners is of a high standard.

Since we were made aware that Passenger Assist (PA) data was not comparable we have been working collaboratively with the ORR to provide greater clarification of the data set for PA.

Our industry is committed and will continue working with stakeholders and accessibility groups to ensure that we provide an inclusive and barrier-free travel experience.”

9 May 2024

 

 

Other disability-related stories covered by mainstream media this week

A disabled pedestrian who shouted and waved her arm at a cyclist, causing her to fall into the path of an oncoming car, has had her manslaughter conviction overturned. Auriol Grey was seen on CCTV shouting at retired midwife Celia Ward to “get off the f***ing pavement” in Huntingdon, Cambridgeshire, causing her to fall into the road, where she was struck by a car. Grey denied manslaughter but was found guilty after a retrial and was jailed for three years in March 2023, but three Court of Appeal judges have now overturned her conviction: https://www.independent.co.uk/news/uk/crime/auriol-grey-court-cyclist-case-b2541520.html

A disability rights campaigner has said he felt like “an extra burden” after he could not board his chosen train home. Doug Paulley, a wheelchair-user, tried to get a Northern Rail service from Chesterfield to Leeds. But when he attempted to board, a pillar blocked access to the train’s ramp, and staff said they could not get the wheelchair onto the train. A video of the incident now has more than 2.1 million views: https://www.bbc.co.uk/news/uk-england-leeds-68977074

The Metropolitan police have said their refusal to routinely go to mental health calls means officers can spend more time at crime scenes, but charities say the policy could endanger lives. Six months ago the Met introduced a scheme called Right Care Right Person, aiming to cut the time officers spent dealing with mental health calls, which it said was diverting the force from fighting crime: https://www.theguardian.com/uk-news/article/2024/may/09/met-police-policy-on-mental-health-calls-may-be-putting-lives-at-risk-say-charities

Shortages and funding cuts are causing a “full-blown crisis” in special education for children and young people in England, according to school leaders who say they are struggling to give pupils the support they require. Paul Whiteman, the general secretary of the school leaders’ union NAHT, accused the government of treating schools as a “sideline” compared with headline-grabbing issues such as immigration: https://www.theguardian.com/education/article/2024/may/04/school-leaders-warn-of-full-blown-special-needs-crisis-in-england

9 May 2024

 

News provided by John Pring at www.disabilitynewsservice.com

 

 Posted by at 14:08