May 172013

Government plans to permanently shut the Independent Living Fund are a concern for all disabled people and to everyone who cares about inclusion and social justice in the UK. The ILF was set up to support disabled people with the highest level of support need to live independently in the community regardless of their level of support need and when the alternative was residential care. The end of the ILF without adequate alternative support provision signals the end of the right to independent living for disabled people and a breach of Article 19 of the United Nations Convention on the Rights of Disabled People.

The ILF has been shut to new applicants since December 2010 and thousands of disabled people must therefore have missed out on support needed to enjoy full and meaningful lives. At both central and local government levels no information has been recorded to monitor the impact of this and to measure any potential breach of Article 19.

Inclusion London and Disabled People Against Cuts are asking for individual disabled people to come forward if you think you would have been eligible to apply to the ILF before it was shut at the end of 2010. It is important that information is recorded from the UK about any threat to disabled people’s fundamental rights and freedoms and will give disabled people in the UK the chance to invoke international protection of our rights.

If you are happy to share your story, information the support you get (or don’t get) and the impact this has on your life then please contact or phone 020 7036 6032.


Sep 212012
Saturday 29 September 2012
12pm – 4pm
The Pandon Room
Newcastle Civic Centre
An independent consultation event for disabled people living in the north east who use the Independent Living Fund and their families to help them respond to the government’s plans to close the Fund.
Please return the booking form to Gateshead Access Panel or email your name, address and a contact number to by 3pm on Thursday 27 September. For more info text DPAC on 0780 449 8228 or phone Ian or Christine on 0191 443 0058.
Jan 122012

Independent Living Fund Trustees Press Need for Source of Social Care Support Beyond Local Authorites

In their response to “Caring for Our Future”, the government’s social care White paper consultation, ILF Trustees stressed the need for a source of specialised support from a ring-fenced budget. Whilst acknowledging the need to further develop the current system and a new model of support, the response warned of poorer outcomes for disabled people without the influence of a national element to independent living support.

The response highlights that “Despite attempts through the personalisation agenda for adult social care to support life in the community, with its primary focus on safeguarding and protecting ‘vulnerable people’ from being without basic levels of support, ASC supplied by Local Authorities has, in the experience of the most severely disabled people, been unable to effectively tackle their exclusion from society. “ In contrast to this, service users of the ILF have reported better outcomes and the value of having an assessor who has local knowledge but is independent of the local authority.

The Trustees state in the response that their “firm view is that [a new model of support] needs to look beyond the mainstream funding of social care from local authorities”. The case is made for maintaining a national element to continue the ILF’s role in driving up standards from local authorities and pushing for consistency.

To read the response in full please go to: caring for our future