This is an account we received of the continuous damage the regimes of Government do, on an individual basis and on a family basis-while the private companies lap up millions in public money. The impacts of failed systems are more and more destructive, making no sense at all.
My son is 23 years old and lives with us. He has a serotonin deficiency which makes it difficult for him to sleep normally like other people. So he will go for days without sleep and then crash without warning and then nothing we can do to rouse him.
It’s always been a problem but it got worse when he was 15 due to severe depression and the fact that he had a number of traumatic incidents including saving sister from being kicked & hit by a rock at school, being hit with a half brick on way home from school and punched in the face by someone he only knew vaguely. Then there were 2 muggings, one of which involved him going to police station and identifying assailants etc but he didn’t go to court as assailants pleaded guilty. Left him with traumatic stress syndrome.
So where previously he struggled to college he gave up and now spends months at a time in his room. Sometimes I don’t speak to him for weeks. Just leave messages on his computer. Some of his behaviour is quite odd but can’t get him psychiatrically evaluated as they say he is not in crisis and he won’t go there. They did manage an assessment over 18 months and found he was depressed and suffering from depression plus his neurologist has written letter to DWP about my son’s physical problems.
Progress until Atos and back to work scheme
Things were beginning to go well. Under the neurologist they had worked out a strategy of treatment including a light box and drug treatment. That’s when ATOS struck. They had to try twice to find my son actually awake. We told ‘assessor’ all his problems but they moved him onto a back to work scheme. I wrote a letter to DWP and said there is no way that my son could guarantee to make any appointment. His treatment had just started and involved him adjusting gradually to a more normal sleep pattern which could take over a year to do. Forcing him to go to set appointment would destroy the treatment strategy.
We went to CAB and we appealed against the decision. We had to wait a year before they even replied. Meanwhile the appointment letters kept coming. He made the first one at Job Centre. Seemed very positive and hope of training on some online course. Son was handed over to this other group SERCO but was told that they would take into account his sleeping difficulty. After several missed appointments he made a Serco appointment. The added problem of him going, as well as sleeping problems, meant that he wouldn’t travel on his own to the appointment, as he had panic attacks. The stress of whole thing was beginning to tell on all of us too.
Treatment abandoned, appeal abandoned
My son’s treatment regime had to be abandoned due to all these appointment letters phone calls coming. He missed the appointment. I would have to phone and explain why. They would send another appointment and the whole cycle went on for months. It was making me ill as well as my son. Then we were sent a piece of paper to sign to say Richard had seen them. I took it to CAB and asked should he sign it as he had only seen them once in six months. I was told he had seen them even if it was only once so my son signed it and they moved him to new group and new building. All the stress and failure of never making a meeting made my son sink back into the depression.
So he moved onto next group. There has been no help for him getting online courses. They wouldn’t talk to him online. He won’t use phone as it often brings on panic attacks. So he goes for several months and this time doesn’t make any appointments.
He is more withdrawn than ever and even misses seeing Neurologist.
Finally the DWP reply about appeal and say there will be meeting within six weeks. I go to CAB to prepare case but Son takes off in panic to Friend. I didn’t know exactly where although I knew he was safe and got messages from him re emails. CAB says we can’t continue without Son so we withdraw appeal and son comes back home.
Increasing problems, but Serco still drawing the cash
His behaviour is now more and more erratic. He talks of laundry baskets attacking him and pinning him in corner. I set up appointment with GP but last minute he is asleep. SERCO then say he has passed through 2nd stage and is on 3rd stage. They set up an appointment for him to go to workshops. He hasn’t made one yet. The pressure of letters and phone calls start again but I have stopped answering them or phoning to cancel as my own health means frequent doctor appointments and clinic appointments and can’t keep up with SERCO too. I went to ATOS and actually passed as too sick to work. I do have chronic ME, a cataract and severe chest problems and was nearing 60 but hasn’t stopped ATOS re friends of mine. Probably the stress re my son helped as I was pretty shattered with it all and all my own hospital tests.
Son has taken off once again to the friend. The letters are piling up. I suppose I should tell SERCO he is gone as he has been away for over a month. I think whole thing is a scam as no way has he progressed and he hasn’t had any useful help. If they were legit they would have referred him back to DWP and he probably would have had his money stopped. However if I go to DWP or police they could argue that sons flight off to friend means he isn’t meeting terms re benefit and possibly even accusing him of fraud. CAB says we need psychiatric evaluation of son. GP is unwilling to send someone to our home when Son is there & Mental Health people say he is not a danger to himself or others. If he has to talk to authorities he will probably leave forever and I will lose all contact with him. So at moment I know even SERCO will have to claim he has finished course eventually and then we will have to challenge them. We will be asked why we didn’t challenge before and Son will go into hiding.
It’s just a case of waiting for axe to fall…..