Nov 282024
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net
  • People with terminal conditions are by Disabled by definition.

 

  • Disabled people make up nearly one in four of the population and we die too. We are more likely to live in pain, to die early and to die from preventable illnesses.

 

  • Disabled people are disproportionately reliant on public services including the NHS, social care support and mental health support services – services that are broken and which we urgently need fixed. The cost and disruption of establishing an assisted suicide service will further delay improvements in these services. Delays will cost our lives. We are also concerned that terminally ill Disabled people will apply for assistance to end their lives early due to a lack of adequate support to live.

 

  • Disabled people are more likely to live in poverty and deprivation. 300 people die in poverty every single day in the UK. We are concerned that terminally ill Disabled people will apply for assistance to end their lives early by reason of poverty.

 

  • The most common reasons behind assisted suicide in Oregon are not pain – pain is only cited in around one third of cases – but lack of autonomy, not being able to enjoy the same activities and feeling a burden. These are all reasons linked to disability.

 

  • Non-terminally ill people with suicidal ideation are eligible for mental health support and treatment. We are concerned that assisted suicide will replace treatment for suicidal ideation among those who are terminally ill.

 

  • The wording of the bill is open to inclusion of people with anorexia as occurs now in US States where assisted suicide is legalised. We already have a working definition of terminal anorexia within our mental health services here.

 

  • Legalisation does not decrease non-assisted suicides. It does not even decrease non-assisted suicides of those with terminal illness. Data from jurisdictions where AS is legal suggest that legalisation increases non-assisted suicides. At a time when mental distress rates are rocketing, and when disability benefits cuts are being targeted specifically on claimants with suicidal ideation, we are concerned about the impact of normalising suicide within our society.

 

  • Disabled people are at risk of medical coercion not to continue with our lives linked to quality of life judgements. We have extensive lived experience of this through pressure to agree to DNRs (by no means limited to during the pandemic) and the Liverpool Care Pathway. The unequal value placed on our lives results in unequal access to healthcare services including life saving treatment. We are concerned that doctors will suggest assisted suicide as an option to Disabled people with terminal illness based on quality of life judgements and that this will be experienced as a form of coercion whether intended or otherwise.

 

  • Disabled people are more likely to experience coercive control. We are three times more likely to experience domestic abuse. Disabled people who are terminally ill are more at risk from inadequate safeguards in the bill.

 

  • Once passed, the legislation will be open to expansion to cover Disabled people and those deemed to be “incurably suffering”. The courts previously ruled that they would not legalise AS before a Parliamentary decision to do so. Once legalised, a discrimination case could lead to a ruling that the law is incompatible with the European Convention on Human Rights. It would be a government decision – not a Parliamentary one – to amend the law to remove this incompatibility. Evidence from other jurisdictions shows Disabled people seeking assisted suicide without access to adequate support and treatment and for socio-economic reasons.
Jan 052021
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net
Copied from: Reviewing the use of do not resuscitate decisions during COVID-19 | Care Quality Commission (cqc.org.uk)

In October, the Department of Health and Social Care (DHSC) asked CQC to review how do not resuscitate orders were used during the COVID-19 pandemic, building on concerns that we reported earlier in the year.

Person-centred, advance care planning enables people to have conversations and make informed decisions about their future care and what matters most to them. Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) orders can be part of this planning and to allow people to make their wishes clearly known ahead of time.

Since the announcement we have been working with people who have experience of this issue to help shape our approach. The valuable insight shared by stakeholders, people who use services, and providers, means we can focus our attention on the things that matter to people.

What will the review look at?

By talking to a wide group of people with experience in this area, we have been able to hear examples of good practice and where decisions or processes do not appear to have been person-centred.

The review will take a national view of how these decisions were made in and across different types of services – including hospitals, GPs and care homes – using all the information available to us. By doing this it will inform national learning and support good practice development as the nation continues to respond to the pandemic.

It will include examples of best practice in this complex area, as well as times when procedures may not have always been followed so that any mistakes are learnt from.

How will the review be carried out?

We are currently analysing what we know so far from initial conversations with people who have been affected by this issue and other stakeholders, concerns raised with us, and the existing literature and guidance on this sensitive topic. Interim findings from this work will be reported later this year.

The interim findings will also provide a base for fieldwork that we will carry out in seven local Clinical Commissioning Groups across the country. This will focus (but not exclusively) on the experience of older people and people with a learning disability or autism. Doing this will allow us to explore how primary, secondary, social care and system partners have worked together in an area – including the impact of commissioning arrangements.

As well as taking into account the information shared with us, these CCGs have been selected to cover a cross-section of areas and a mix of demographics so that the lessons we learn will be of value to people in health and social care across the country, wherever they are working.

To look at a range of ways of working and experiences, the seven areas we will be looking at are:

  • NHS Birmingham and Solihull CCG
  • NHS Bristol and North Somerset CCG
  • NHS Cambridge and Peterborough CCG
  • NHS Morecambe Bay
  • NHS Sheffield
  • NHS South East London CCG with a focus on Greenwich
  • NHS Surrey Heartlands CCG with a focus on East Surrey

We expect to start fieldwork later in November and publish a final report in early 2021. We anticipate this will include recommendations on how people can be properly supported in this area and support good practice that protects people’s human rights.

How you can help

This work is being developed and carried out at pace during November, December and January. We are keen to hear from people who would like to share their experiences.

If you would like to tell us about your experience, or that of a loved one, we would be grateful if you could get in touch. Please let us know using our Give Feedback on Care service, or by contacting our National Customer Service Centre.

Survey on do not resucitate orders during the coronavirus pandemic

We’re using this survey to hear the experiences of people who have had a DNACPR or had one reviewed since the start of the pandemic in March. Share your experience of DNACPR.

Aug 272020
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Disabled Bolivian activists and allies of DPAC from the campaigning organisation Nueva Esperanza have been hit hard by Covid-19. A number of our friends are or have been very ill including Felizia Ali Ramos and Marcelo Vazquez Bracamonte who came over to speak at DPAC’s International Solidarity Conference in July 2018. Most recently Feliza took part in DPAC’s online meeting on Eugenics, Covid-19 and International Solidarity.

We are asking for donations to help them keep going. See below for details on how to give, plus links to films so you can see the campaigners in action.

‘Hello, im Feliza Ali.

For the past 22 years I’ve been working for the dignity and freedom of people with disabilities in Bolivia. Its been a long and steep road, but the strength of my colleagues has always kept me going.

9 years ago, I discovered the principle of Independent Living, and it has transformed my life. It gave me strength and inspired me to share this philosphy with all my colleagues.

After a massive joint effort The Centre ‘Nueva Esperanza’ (New Hope) was born.

New Hope was launched to empower us, people with disabilities, by providing practical equipment to enable independent daily living, and give us power to decide over our own lives.

We now have more than 50 colleagues who have reclaimed their dignity, self-determination and love for life, thanks to what they have learned through the centre. There are many more who have been inspired by our work.

Unfortuantely, we were about to expand our centre and work, when Covid-19 hit.

It has hit us very hard, and now the work the work of many years is about to disappear

We are a grassroots organisation that self-finances through fundraising events. The lockdown has stopped all our actvities for more than four months and the bills are piling up daily.

We are counting on you to help save our dream.

We need to raise £4500.00 UK pounds (Or $5,400 US dollars) to survive until December 2020.

Currently we are struggling to cover medications and food, as well as wages for Personal Assistants.

Your support can truly help save our lives.’

 

 

Disabled People Against The Cuts (UK) are collecting donations on behalf of Nueva Esperanza (New Hope).

If you can contribute, you can donate by bank transfer to:

Disabled People Against The Cuts

Sort Code: 08-92-99

Account No: 65454743

Or donate using Paypal at: https://dpac.uk.net/

Important: please use ‘NEW HOPE’ as a reference for any donations to Nueva Esperanza

 

Learn more about the roots of Nueva Esperanza  and the Disabled people’s movement in Bolivia by watching the documentry film: ‘The Fight’:

(Content warning: Scenes of police violence and references to death)

 

To watch DPAC’s online meeting on Eugenics, Covid-19 and International Solidarity featuring a range of disabled speakers from across the world including Feliza:

 

Aug 272020
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

On 25 August Disabled People Against Cuts co-hosted a webinar with our international allies the European Network for Independent Living (ENIL) on the subject of special investigations under the United Nations Convention on the Rights of Disabled People (UNCRPD).

The UK government was the first to be investigated under special powers of the UN Disability Committee when DPAC triggered an inquiry which took place in 2015. Now campaigners in Hungary have followed our example and in April 2020, the UN Disability Committee published a report that finds the Hungarian government is also guilty of rights violations through investment in new institutions for the warehousing of disabled people.

Like the UK government, the Hungarian government has ignored the findings.

We are asking as many of you as possible to use the below template letter to contact the Hungarian government and also the European Union at the email addresses below to let them know the international community is aware of what is happening and to urge them to implement the disability committee’s recommendations.

It is EU money that is being used to build these new institutions. The EU has said that once the institutions are built they can be inspected to check what conditions are like within them. According to the UNCRPD ALL states that are signed up to the Convention should be implementing a policy of de-institutionalisation. Use of EU funds for building more, new institutions goes directly against this. As such we think the EU should withold funding so long as the Hungarian government intend to spend it for this purpose.

 

Appeals should be addressed to:

Mr. Attila Fülöp

State Secretary for Social Affairs

President of the National Disability Council

E-mail: attila.fulop@emmi.gov.hu

 

Ms. Ursula Von der Leyen

President of the European Commission

E-mail: ec-president-vdl@ec.europa.eu

 

Ms. Helena Dalli

Commissioner for Equality

E-mail: cab-dalli-contact@ec.europa.eu

 

Subject:

 

Take urgent action to address grave and systematic violations of the rights of persons with disabilities in Hungary

 

Text of the e-mail:

 

Dear Mr. Fülöp,

Dear President Von der Leyen,

Dear Commissioner Dalli,

 

In April 2020, the United Nations Committee on the Rights of Persons with Disabilities published a report (CRPD/C/HUN/IR/1) that found Hungary responsible for “grave and systematic violations” of disabled people’s rights. As a disabled person/representative of [name of organisation]/concerned individual, from [name of country], I am writing to ask you to carefully consider the Committee’s recommendations and ensure they are implemented as a matter of priority.

 

I am particularly concerned about the following findings, in relation to the right to live independently and being included in the community (Article 19 of the UN Convention on the Rights of Persons with Disabilities):

 

  • The fact that there is no legal recognition of the right to live independently and be included in the community and that almost a hundred thousand children, adults and older people live in institutions, out of which disabled people are the second largest group.
  • The fact that 55,056 people are under guardianship, and that out of this number, 30,735 individuals have had their legal capacity fully restricted. This means, among other, that they cannot choose where and with whom to live, and are often forced to live in institutions.
  • The fact that disabled people are being moved from large- to small-scale institutions, and that the newly built facilities (also called “supported housing” or “group homes”) perpetuate the segregation and social exclusion of disabled people.
  • The fact that European Union’s Structural and Investment Funds are still being used to build, renovate and expand large and small institutions, rather than supporting genuine community-based services.
  • The fact that there is a severe lack of community-based services that support disabled people’s right to independent living, allowing them choice and control over how they live their lives.
  • The fact that personal assistance, as a key tool for independent living, is not sufficiently developed and is available only to a limited number of disabled people.
  • The fact that hundreds of children with disabilities are institutionalised, alongside adults, and are overrepresented in segregated education.

 

It is for these, and many other reasons, that the Committee found Hungary responsible for “grave and systematic” violations of the rights guaranteed by the UN CRPD and set out a series of recommendations.

 

Among other recommendations, Hungary must ensure that the right to independent living becomes “an individual and directly enforceable right”. To this end, it must “develop a system of support for living independently that includes a range of individualised support and personal assistance for persons with disabilities in the community, outside institutions”. Both Hungary and the European Commission must “reorient the investment of public funds”, including EU funds, from institutions to support in the community, and Hungary must abolish the current practice of moving people from large-scale into small-scale institutions (supported housing) “by removing all elements of institutionalisation”.

 

I am deeply concerned that Hungary, as a member of the European Union, is responsible for such serious human rights abuses against disabled people. It is equally distressing that funds provided by the European Union were used to fund some of these abuses. I therefore ask you to carefully consider the recommendations made in the UN report and put together a plan of action on how to implement these as a matter of priority, in close consultation with organisations of persons with disabilities.

 

Thank you for your consideration.

 

Yours sincerely,

 

 

 

 

 

 

 

Apr 102020
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

DPAC is aware that some disabled people are not receiving essential support and resources from their local Council that they need during the pandemic.

Disabled people with certain impairments and health conditions are among those most at risk from Covid 19. At the same time, the government and medical professionals have made clear that they will not even be admitted to hospital let alone prioritised for treatment. The situation many disabled people living in the community have been left in has then put them at much greater risk, without access to food deliveries or protective equipment for the personal assistants coming in and out of their homes to provide indispensable support with fundamentally important daily tasks such as eating, drinking, using the toilet and staying clean.

Some local authorities are operating good practices such as contacting everyone in their area with disability related support needs and co-ordinating deliveries of food and other supplies.

Sadly, others are not.

Inclusion London has produced a useful template letter for individuals who have not been provided with the PPE (Personal Protective Equipment) that they need for their personal assistants.
The letter can be downloaded here: https://www.inclusionlondon.org.uk/wp-content/uploads/2020/04/template-letter-re-LA-failure-to-supply-PPE.doc

Scope has information on their website about how disabled people can access food and other essentials during the pandemic, including how to register as a “vulnerable” person with the government in order to access priority deliveries from supermarkets. Go to: https://www.scope.org.uk/advice-and-support/food-and-essentials-during-coronavirus/

The link to register with the government as “vulnerable” can be found here: https://www.gov.uk/coronavirus-extremely-vulnerable

Disabled People’s Organisations have raised concerns about the creation of a government register of “vulnerable people” including data protection implications. There are 14 Million disabled people in the UK, qualifying for reasonable adjustments of one sort or another, but this register will only assist an anticipated 10% of disabled people. Read what Chris Fry of Fry Law has to say about the register here: http://www.frylaw.co.uk/archives/articles/dont-share-the-vulnerable-people-register/

Fry Law have developed a template letter to enable disabled customers to challenge supermarkets about lack of access to online delivery services. You can download the letter here: www.dpac.uk.net/2020/04/18010

DPAC understands that provision that is in place on paper (or on websites) too often fails to translate to provision on the ground to the people that need it. We also understand that not everyone will have the energy to both battle for your survival and share your experiences, but where possible within your individual circumstances we would like to hear about any difficulties you have faced or are facing in accessing the resources and support so that we can campaign for improvements – either using the comments below or by emailing mail@dpac.uk.net.

Aug 242013
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Join us for a day of creativity, fun and disability pride.

Tottenham Chances, 399 High Road, London, N17 6QN

Exhibition: 12 – 7pm: A range of grassroots disabled people’s work  exploring disability and protest

 Banner  making workshop: 1-3.30pm: come together for a fun afternoon  of banner and placard making for the Freedom Drive on 4th September

Sharing of Work: 4 – 6 pm: disabled performers and writers will put on a range of work exploring  disability and activism. With spoken word performance from Ju Gosling, scenes from Kate Cryer’s new play ‘Unspoken’, poetry, songs and open mic, prepare for a powerful afternoon.

Fundraising gig: 7.30pm till late: Madpride compere Jason Why introduces an all star line up with films from Katherine Araniello, comedian Laurence Clark, singer/songwriterAngryfish, live performance of the DPAC Anti Atos anthem ‘Condem Love’ by Kevin Robins and headlining will be Rockinpaddy.

  

The venue has its own carpark and has wheelchair access. BSL will be provided for the workshop and sharing of work.

             

For access requests please contact:   ellenrclifford@btinternet.com.

31st Aug flyer -1- copy

Feb 122012
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Cross posted from Disabled People Fight Back with thanks!

dignity not death

Disabled people: the first to go. Understand why & how to prevent the current backslide which threatens all groups who are discriminated against. RESISTANCE: a crucial & inspirational exhibition in Manchester til 3 Know this history to help fight current misinformation and hatred centered around the same ideals, spreading the idea that disabled people are unworthy and our state cannot afford us. Very similar propaganda is how the holocaust began – allowing it to happen led to the deaths of millions of other people too. Liz Crow tells us how the resistance of disabled people and our allies was central to bringing this to an end, as it still is now.

RESISTANCE ON TOUR

I had the opportunity on Friday to visit and participate on a panel discussion at Liz Crow’s hard hitting and inspirational installation “Resistance”  which I believe to be one of the most important projects about disabled people I have ever seen. It covers some of the hardest issues to cover in a radical and sensitive way and leaves people thinking about what we can all do to make sure nothing like a holocaust ever happens again. I found the discussion very inspiring and learned lots from the other (frankly, awesome) participants.

Then I finally went to see the installation RESISTANCE, which I have been waiting to see for years now, featuring some of my very favourite actors such as Jamie Beddard, Lindsay Carter, Mat Fraser and Ali Briggs.

It left me breathless.

I watched half of it with my head dropped in defeat on my friend Becca’s arm, soaking her sleeve. I felt grief stricken and angry. I felt euphoric seeing some fight back.

I felt confused at seeing highly skilled kickboxer Mat Fraser getting shoved into the death bus.. nothing like the man we know, no kicks in the face to his assailant, just the fear and confusion our people faced before the fightback started, before they knew what was happening. I wanted to scream KICK HIM MATT!

It sounds like I am mentioning this through frivolity but this is a perfect example of how people capable of so much more were institutionalised unwittingly slaughtered like lambs when taken for a ‘day out’. (If someone tried and do this to the real Matt.. I don’t think they’d live long..)

I felt afraid at how current beliefs are now so very close to the beliefs which led to the deaths of almost all identifiable disabled people in Germany, not so very long ago. I felt overwhelmed that the public accepted this and that their acceptance of such hatred against disabled people then also led to the deaths of millions of Jewish people, LGBT people, Roma people and others.

I felt determined I would continue to fight and advocate for our equal right to exist. My brain was exploding with the question WHAT MUST WE DO? What can I do that I am not already doing?

The first thing I’m doing is talking about Liz Crow’s installation and I am asking you come and experience it and / or to tell others about it too – share this blog, blog about it yourself, tell other people, ask people to support us in our current fight against fatal prejudices.

The fundamental MODERN belief that disabled peoples’ lives are of different value to others underpins ALL the prejudice we currently face – especially the dehumanisation we currently face in some areas of media and public opinion. The same beliefs which led to the holocaust now lead to cuts against every service which affects our lives, including those which keep us alive, hatred, attacks and murders, leaving disabled people destitute, locking 340,000 people in institutions in the UK, the killings of unborn disabled babies any time until birth, the do not resucitate procedures and withdrawal of treatment from disabled people of all ages, and the focus on ‘helping’ us to die by setting up special death centres to administer lethal drugs (‘assisted suicide’ centres).

Liz’s project is a crucial installation for all of us to see, disabled people and everyone else. Not just because it exposes our hidden history which is ignored by so many (because they just don’t mind) but because it also draws attention to how current government propaganda is leaning very close to that which was spread before the killing started. And most of all because Liz tells us how disabled people began to resist, inspiring us all to resist, continue to resist and resist harder.

Many people do not realise the Nazi holoucaust began with the extermination of disabled people and having perfected techniques of mass killing on our people, the Nazis went on to exterminate millions of Jewish people, travellers and queers. Disabled people were the testing ground – would the methods work? Would the public accept the annihilation of their fellow citizens? The answer was yes and then the creep began, into every community the Nazis believed did not fit their ideal of humanity.

This part of history must never be forgotten so we never allow it to happen again and Liz Crow questions what we will ALL do to make sure it does not.

It is crucial to understand disabled peoples’ history to understand how we got where we are today. It is esential to recognise that the politics of the past continues to affect contemporary strategies – which, having thrived uninterrupted are now on a steep increase in these ‘Times of Austerity’ – while government is intent on convincing the population that disabled people are a burden on the other citizens of this country which we cannot afford and we are worth less than others.

I reaffirm my foundational belief that while our lives continue to carry unequal status to the lives of others, most importantly our very right to exist in the first place and to continue to exist, we remain at great risk and the symptomatic discrimination we face is to be expected.

We must fight back on those core beliefs and not shy away from them as so many do, we do have a right to fight these beliefs, to fight for our very lives, to encourage disabled people, our families and our allies to fight back and to never ever stop. Not even just a right – we have a responsibility.

Please support Liz’s installation by visiting it during it’s time in Manchester at Zion Arts in Hulme. Please share this blog. Please talk about the issues it raises. Please keep fighting deadly prejudice.

Miss Dennis Queen (was Clair Lewis)

Aug 132011
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

The unrest and violence we have seen across England over the past week is upsetting on many levels: there is upset for the innocent victims of criminality and those hurt and traumatised by events, upset over the prevalence of a lack of morality and empathy within our society, and upset that once again the violation of disabled people’s rights has been eclipsed.

In justification of the welfare to work programme, government and right wing media have played up the existence of a benefit scrounging element bent on fraud and deceit without regard for the consequences of their actions on the rest of the community who pick up the bill for their irresponsible lives. Disabled people have argued that so-called welfare reform is actually targeting the powerless and the oppressed in society and denying basic rights and freedoms. Just as we were being listened to, as the Work and Pensions Select Committee issued their report raising concerns over the Work Capability Assessment Process, just as the Lib Dems announced a vote on 10th September on their position over Employment and Support Allowance, a vision of the disaffected and feckless has been hurled into the lives of the nation, bringing to life the worst Daily Mail stereo-types in a fashion more dramatic and immediate than even shows such as Saints and Scroungers, have managed.

It is too early to say how recent events will impact upon the campaign against the government’s disability policies but our ability to protest is likely to be adversely affected. Last Saturday Disabled People Against Cuts stood with the anti cuts campaigners handing out leaflets in Birmingham City Centre publicising the protest against the Lib Dems on 18th September. It was intended to be the beginning of a mobilisation process to build support ahead of the march. To stand in the same spot this Saturday after the violence and murders that have occurred in the city since, would be insensitive and inappropriate. We had been planning how to oppose Birmingham City Council over the restrictions they are placing on the route for the march. We were hopeful there was room to negotiate. The chance to march down the main high street through the commercial area of the city is very slim, even more unlikely now . At the time of the TUC-organised March For the Alternative earlier this year there was some criticism of the demonstration by unsympathetic press and public, accusing protesters of wasting resources and police time. The association between violent disorder and dissent is now firmly etched into the public consciousness and it is reasonable to anticipate greater hostility towards plans for future demonstrations, however peacefully intended.

Without the option of protest, how are we then to raise awareness of the issues faced by an overlooked minority in whom neither the public nor the press nor politicians are interested?  Government cuts are hauling disabled people through fear and distress and robbing them of their dignity and in some cases their lives. The scenes of disorder and violence which the country has witnessed are symptomatic of a bigger picture, a picture where the rich can behave with impunity in the pursuit of material gain, whereas the poor are punished and demonised for the same.   Disabled people are part of that bigger picture but our voices just got smaller as attention is turned to more immediate issues and fears. Moreover there is a danger that government injustices against disabled people will now be justified as unfortunate but unavoidable consequences of necessary measures to deal with the disaffected in society and those dismissed as undeserving.  As emotions run high it is too much to hope that perspective will prevail and it is sadly inevitable that recent events will be exploited to discredit future dissent and protest.

-Ellen Clifford

Many of us have been glued to news listening with disbelief to riot details as they were spelled out in different cities across the country from London to Birmingham to Manchester etc. For disabled people, there is the extra fear of not having access and added stress and anxiety of being unable to get essentials from local shops in the affected areas. The Broken of Britain set out a hastag #disabledriothelp for disabled people in Twitter who felt the need to communicate about worries about the riots .

We joke amongst ourselves as mobility impaired disabled people that our disability gives us an alibi by default because we are not able to loot, break windows and disguise ourselves with hoodies.

It’s too soon to write about the impact of the riots on disabled people and our ability to protest. We can probably assume that the TUC March of the Alternative, Birmingham will definitely not be allowed to march pass the ICC where the Lib Dem annual conference is held this year.  But will the demo be curtailed further? What about peaceful anti protests against Atos – will these be jeopardised given the mood of the police and rhetoric from the Con Dem government?

And for those of us disabled people who use the social media to communicate, politicise, campaign and yes, to rant and vent – we will also be affected by David Cameron’s diatribe against social media. A 14 year old schoolboy in Leamington Spa was arrested by police ‘on suspicion of encouraging or assisting criminal disorder. The mind boggles about the reality of the implications that postings to “ incite criminal activity of any kind will be arrested and dealt with accordingly.” Another report of Jason Ulett ‘s arrest adds to my disquiet that the effect of the riot is to descend into some kind of witch hunt.

But we would want to question the reaction to the riots, undoubtedly disruptive and hard on those who have lost property and work, in comparison to the carnage wracked on disabled people’s lives as a result the result of the cuts. How many will give (media)attention and mourn for those who gave up in despair and committed suicides (eleven at last count)? Who counts the stress and worry the real cost of the havoc on disabled people’s lives – those who have to submit to Atos assessments? There was some uproar over the abuse handed out to disabled people in care homes after the Panorama programme but people in care homes are still systematically neglected and left unattended for hours in end. Do we see the same type of punitive and swift reaction for the perpetrators? Today (12th August) there was the ‘first’ Battersea riot-related eviction notice served by Wandsworth Council as a result of Monday night’s rioting and looting in St John’s Road and Lavender Hill. In fact we read that David Cameron has said there will be ‘no “phoney human rights concerns” (about publishing CCTV images of suspects involved in rioting) would be allowed to “get in the way of bringing these criminals to justice”. Is it not because of the same disregard of human rights – the shooting of Mark Duggan – that started the whole spiral of violence? Does he care equally about the woman in wheelchair who was stoned in Sittingbourne by ‘yobs’? What about violence against disabled people?

Eleanor Lisney