BEING THE BOSS
INTRODUCTION – Who we are and why we are doing a survey
“Being the Boss” is a national network of disabled people who employ their own personal assistants (P.A.s)/support workers or carers. Our central role has been to support disabled people who employ their own Personal Assistants by providing peer support and a coherent voice for them in the wider community. The website and Facebook page are for disabled people who employ PAs no matter how they are funded – it is NOT just for disabled people who are receiving Direct Payments or Personal Budgets from the local authority. See: http://beingtheboss.co.uk/
Since 2010 when the Coalition government introduced Austerity measures we have seen many changes in assessment procedures, funding regimes, criteria, the closure of the Independent Living Fund and an overall undermining of Independent Living.
Given the current climate Being the Boss believe it is essential to establish ourselves as the advocate for disabled people who employ their own personal assistants because all forms of living independent lives is under threat. Alongside maintaining Being the Boss’s existing service/role, we want to build on our experience by making our advocacy role more visible and proactive and extend it to other disabled people facing difficulties with benefits and other areas which impact upon their ability to live independent lives.
To be able to play this advocate role we need to fully understand the national picture on the ground and to establish what are the key issues for those who employ their own personal assistants (P.A.s)/support workers or carers and are currently finding it difficult to live independent lives. To this end we have decided to launch a National Information Gathering Survey and are asking you to participate in it.
We can provide the Survey as a download from our website/Facebook page. Please feel free to be as detailed as you believe to be necessary or simply answer as much or as little as you feel able. Thank you for your time and support.