Dec 082014
 

Press release from Solicitors involved

Two severely disabled men who use the Independent Living Fund (ILF) today lost their bid to overturn the Government’s decision to close the ILF in June 2015, as the High Court ruled that former Minister for Disabled People Mike Penning had not breached equality laws in making the closure decision earlier this year. The two men had been granted permission for a judicial review of the process leading to Penning’s closure decision, taken just weeks after the Court of Appeal quashed a previous, almost identical decision as being unlawful.

ILF provides vital support and funding to some 17,000 disabled people in the UK to enable them to live independent and fulfilling lives. To be eligible people must already receive a substantial care package from local authority social services, but ILF funding provides a top-up for those with the highest support needs. The ILF system was set up in 1988 to tackle the barriers to independent living and working faced by the most severely disabled people, which were not adequately addressed by council provision with its focus on meeting basic needs. The claimants, represented by Scott-Moncrieff & Associates and Deighton Pierce Glynn, believe that these problems with council provision remain and are getting worse under Government cuts. They fear that loss of ILF support will threaten their right to live with dignity, and they may be forced into residential care or lose their ability to participate in work and everyday activities on an equal footing with other people.

As in the earlier, successful challenge, the claimants argued that the Minister had not been given adequate information to be able to properly assess the practical effect of closure on the particular needs of ILF users and their ability to live independently, or to consider alternatives. The Court of Appeal ruled that this information about impact was essential for the Minister to comply with the Equality Act, which requires the Government to act to positively advance equality of opportunity for disabled people, including meeting needs, removing disadvantages and increasing their participation in public life.

However, handing down judgment today Mrs Justice Andrews ruled that a crucial difference between the two decision-making processes was that in the first, the Minister (then Esther McVey) was given an over-optimistic ‘Panglossian’ summary of information about how ILF users would be likely to be affected, whereas in the second the Minister was made fully aware of ‘the inevitable and considerable adverse effect’ that closure would have on disabled people. She concluded that the assumption on which Mr Penning based his decision was that ‘independent living might well be put seriously in peril for … most (or a substantial number of) ILF users’. In the judge’s view that meant that the Minister had clear, unambiguous information on which to weigh up the implications for disability equality, regardless of the exact number of people who would be likely to have to go into residential care or lose their ability to work or study.

The judge emphasised that her decision was not about the rights or wrongs of closure, just whether the Minister knew enough about the likely impact to meet the requirements of a lawful decision-making process. The decision itself was up to him. The judge also declined to rule on whether the closure decision may put the UK in breach of its international legal obligations to advance disabled people’s rights to independent living and equality of opportunity under the United Nations Convention on the Rights of Persons with Disabilities.

However there is a really significant point arising out of the decision. Essentially the legal challenge was to the process of decision-making and specifically the question of what information the Minister had available to him about the likely impact on disabled people so as to be able to properly exercise the public sector equality duty.  What the judgment highlights is that, in the judge’s view, the Minister clearly believed that the impact of closure on disabled people and their ability to live independently will be really severe, and many or most ILF users will be at risk of losing their ability to work, study or live independently in the community as a result

 

For the purpose of the legal challenge, that meant that (in the judge’s view) the Minister had sufficient information to make a lawful decision – and that was end of story as far as the court’s role went.  But in wider terms it really begs the question of why, in that case, the Minister decided what he did:

 

          How can it have been justified if he thought the impact would be so severe?

          What is the benefit of getting rid of this tried and tested system of protection for those people who are most at risk of losing their independence? There has never been any suggestion that it will save money overall – indeed there is evidence that it may cost far more than it saves because of (a) the false economies of people losing good support then getting into crisis and being institutionalised, (b) the ILF system being such good value for money (extremely low running costs as it uses trustees) and (c) the double benefit of the ILF system which not only provides a funding top-up but (crucially) puts leverage on local authorities to put their contribution towards proper independent support packages instead of institutional care.

          How can  this decision to cause such a negative impact on such a large number of the most severely disabled people in the country be squared with the need for the Government to actively advance equality of opportunity for disabled people, including meeting needs better and increasing participation in public life rather than the other way round?

          Similarly how can it be squared with international obligations the UK has signed up to such as the UN Convention on the Rights of Persons with Disabilities (UNCRPD), which stipulates that contracting states must move forwards not back in realising rights such as that under Article 19 – the right to live independently in the community with choices equal to others.

Contact: Solicitors representing the Claimants:

Deighton Pierce Glynn (Louise Whitfield)

Scott-Moncrieff & Associates (Kate Whittaker)

8 Union Street, London SE1 1SZ

Tel: 020 7407 0007

Office 7, 19 Greenwood Place, London NW5 1LB

Tel: 020 7485 5588/ 07954 289595

Notes

  1. The ILF is a body of the Department of Work and Pensions but under the management of independent trustees. Since it was created in 1988 it has helped many thousands of disabled people to live independent lives and be included in the community as full citizens. It has targeted support at the most severely disabled people in the UK who face the greatest barriers to independent living, and has also played a key role in overseeing social services provision from local authorities for this group of people, to ensure that the combined ILF/local authority support packages meet criteria of promoting independence and inclusion and avoid unnecessary escalation of costs through people being institutionalised and cut off from their communities. In 2010 the Fund was closed to new applicants because the Government had reduced the amount of money it gave to the Fund. It is now proposing that the Fund close completely on 30 June 2015, leaving users to rely solely on local authority adult care services.
  1. This is at a time when the funding for local authorities is being dramatically reduced and many authorities are cutting services for disabled people. The Health and Social Care Information Centre states that the total number of people receiving social care services in 2012-13 was 1.3m, down 9% from 2011-12 and down 25% from 2007-08 (HSCIC, Community Care Statistics, Social Services Activity: England 2012-13, Provisional Release, 2013). This is the expected result of the targeting of cuts at local authority funding which will continue until at least 2015-16, suggesting a real-terms cut of nearly 50% in social care provision by that stage.
  1. Following consultation the Scottish government has announced that from 1 July 2015 it will establish a Scottish Independent Living Fund to protect the funding of the 3000+ existing ILF users in Scotland, and will build on the existing system through a £5.5 million investment which will re-open it to new users, ensuring its long-term future: https://www.gov.uk/government/news/scottish-governments-decision-on-a-scottish-independent-living-fund. The Welsh government is currently consulting on options for the future support of ILF users, including setting up a successor body as in Scotland; the consultation is open until 23 December 2014: http://wales.gov.uk/consultations/healthsocialcare/fund/?lang=en.
  1. Further information, including briefing (June 2014) and individuals’ stories, on the campaign against the closure of ILF is available at the Inclusion London website: http://www.inclusionlondon.co.uk/
Dec 082014
 

This morning after weeks of anxious waiting, disabled people and our supporters learned that the high court has found against the latest legal challenge against the government’s decision to close the Independent Living Fund (1). Disabled campaigners vow to continue the fight in every way that we can.

 

The campaign to save the Independent Living Fund has been one of the most high profile among the many battles disabled people are currently fighting against current government policy that is detrimentally impacting on disabled people, with disabled activists occupying Westminster Abbey gardens over the summer (2).

 

In November last year the Court of Appeal quashed the government’s decision to close the ILF with the Court of Appeal judges unanimous in their view that the closure of the fund would have an ‘inevitable and considerable adverse effect which the closure of the fund will have, particularly on those who will as a consequence lose the ability to live independently” (3).

 

On 6th March this year the then Minister for Disabled People Mike Penning retook the decision and announced a new date of June 2015 for permanent closure of the Fund that provides essential support enabling disabled people with the highest support needs to live in the community when the alternative would be residential care (4).

 

In October a second legal challenge was heard in the high court brought by disabled claimants claiming that the Minister had not considered any new information to properly assess the practical effect of closure on the particular needs of ILF users (5). The Department for Work and Pensions mounted a defence based on their assertion that the Minister had adequate information to realise that the independent living of the majority of ILF users will be significantly impacted by the closure of the fund.

 

Tracey Lazard, CEO of Inclusion London said: “The closure of the ILF effectively signals the end of the right to independent living for disabled people in the UK. Whilst never perfect the ILF represents a model of support that has enabled thousands of disabled people to enjoy meaningfully lives and to contribute to society as equal citizens. Since the closure of the Fund to new applicants in December 2010 we have seen disabled people left with their most basic needs unmet and unable to seek employment, to volunteer or go into education or simply even to leave the house.”

Linda Burnip, co-founder of the campaign Disabled people Against Cuts, said: “Regardless of this ruling, disabled people will not be pushed back into the margins of society, we will not go back into the institutions, our place is in the community alongside our family and friends and neighbours and we are fighting to stay”.

 

For more information or to speak to disabled people directly affected by the Independent Living Fund please contact Ellen on 07505144371 or email mail@dpac.uk.net.

 

Notes for editors

1)      For full judgement and press release from solicitors working on the case see: http://www.deightonpierceglynn.co.uk/http://www.scomo.com/

2)      http://www.theguardian.com/society/2014/jun/28/occupy-westminster-disabled-people-against-cuts

3)      https://dpac.uk.net/wp-content/uploads/2013/11/522372-ILF-Briefing-Note-06-11-2013.pdf?bb10e9

4)      https://www.gov.uk/government/news/future-of-the-independent-living-fund

5)      https://dpac.uk.net/2014/06/breaking-news-2nd-court-case-to-challenge-ilf-closure-launched/

 

Oct 222014
 

Today was the first day of two days of a second court case against the DWP against the closure of the Independent Living Fund. Messages of support poured in. Many people turned out to support the vigil. The Strand was later blocked , as Kate Belgrave said : blocking roads is not extreme, cutting care is. There was wide support from Inclusion London, Norfolk and Suffolk DPAC local DPACs, the Greater Manchester Coalition of Disabled People, Transport for All, Winvisable, PCS Union, the TUC, Ros Wyne Jones Real Lives at the Daily Mirror, OCAP  and from as far as Toronto Canada where a simultaneous vigil was held. John McDonnell MP a great supporter of DPAC also came to speak.

Many messages of support came through some of which are below.

“@Dis_PPL_Protest good luck today! Amazing work being done in the face of such powerful opposition :)”
“Let’s hope justice prevails to counter rabidly cruel government”
“Best of luck and so many thanks to all at #ILF court case”
“many thanks for time and effort to all involved”
“Sending support from Toronto to London today. Disabled lives are worth it. #SaveILF @Dis_PPL_Protest pic.twitter.com/90YJEt7bL4”
“vigil at the RCJ supporting the campaign to #SaveILF”
“Good luck. You are courageous. The world is watching”.
“Good to see the likes of @Dis_PPL_Protest taking up the incentive to challenge the Govt on the ILF, much needed support lacking from orgs.”
.”@johnmcdonnellMP speaking in solidarity at #saveilf vigil today at Royal Courts of Justice”
“Shoutout to the awesome campaigners the #saveilf campaign, outside the Royal Courts of Justice today”
“Grateful thanks to @Dis_PPL_Protest & all who are fighting so hard to #SaveILF, ILF support for the disabled means having a life to LIVE”
“The TUC general council sends its solidarity and support for the Group fighting against the closure of the ILF in the High Court. Sean”
“All best wishes from WinVisible for ILF case – sorry we can’t make it but thinking of you all there. Claire”

Also check out some great media pieces
http://www.theguardian.com/commentisfree/2014/oct/20/disabled-lord-freud-austerity
http://www.mirror.co.uk/news/uk-news/tory-bid-cut-lifeline-profoundly-4477839

Thanks to everyone for making this such a success on the streets and on social media! We’re back at court tomorrow -maybe we’ll see Freud joining us too

(left to right) - Mark from PCS Union who is equalities officer London. John McDonnell MP Andrew Lee, People First.

(left to right) – Mark from PCS Union who is equalities officer, London.
John McDonnell MP
Andrew Lee, People First.

Andrew Lee, People first.

Andrew Lee, People first.

John McDonnell MP Linda Burnip, co founder of DPAC

John McDonnell MP
Linda Burnip, co founder of DPAC

(left to right) - Linda Jack liberal left, Liberial Democrats.  John McDonnell MP Andrew Lee, People First.

(left to right) –
Linda Jack liberal left, Liberial Democrats.
John McDonnell MP
Andrew Lee, People First.

Natasha  Burgess, Campaign and policy officer PCS Union, London.  John McDonnell MP Linda Burnip, DPAC Mark, eqaulities rep PCS London.

Natasha Burgess, Campaign and policy officer PCS Union, London.
John McDonnell MP
Linda Burnip, DPAC
Mark, eqaulities rep PCS London.


DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

John Kelly outside royal courts of justice London.

John Kelly outside royal courts of justice London.

(Left to Right) Jenny Hurst.  Paula Peters DPAC

(Left to Right)
Jenny Hurst.
Paula Peters DPAC

Jenny Hurst with save ILF campaign postcard

Jenny Hurst with save ILF campaign postcard

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B0jMETCIgAARSsL B0jQW-6IYAAtank
B0jTz8mIIAEyIJH B0jW8KSCAAI3L2M
B0jwp9ZCQAAxVcI B0jwr7UCQAEVkS_
B0jwtJTCEAAAP3o B0jYK5uIEAAYqQu
10354169_725881680798687_6051529399852839286_n 10384118_725880527465469_6775580639279853354_n
B0iyF5YIEAEaR9O B0j7OAoCIAA1cn3
B0jae-fIIAAHp5q B0jeA8DCAAA6lKI
B0jGoH3IcAAuJtn B0jKBevIYAEMw6H
B0jmC2lIAAMared B0jIuK-CIAAMAti
B0jH-etCAAAc1W3  IMG_5439
Sep 212014
 

New short film about the fight for the Independent Living Fund I’ve made with False Economy, Ros Wynne Jones at The Daily Mirror, Disabled People Against Cuts and Moore Lavan Films.

The ILF is a fund that disabled people use to pay for the extra care hours (personal assistance) that they need to live full and independent lives. The government plans to close the fund in June 2015 – even though the court of appeal overturned a previous closure decision at the end of last year.

The film features Mark Williams and Daphne Branchflower – two disabled people who talk about their lives and interests, and the central role that ILF funding plays for them. The film also features Angela Smith, a disabled woman who does not receive ILF and must rely solely on her cash-strapped local council care system.

Disabled people will again fight the government for the ILF in court on 22 and 23 October. See Disabled People Against Cuts for regular updates on campaigning and events, and https://www.facebook.com/ILFpostcard to take part in the Save the Independent Living Fund postcard campaign on facebook.

Earlier this year, disabled people occupied Westminster Abbey to protest at government plans to close the ILF. Disabled people have every right to independence and to live their lives just like everyone else expects to. This fight against government can’t and won’t be lost.

We’re all in it together – aren’t we? from Moore Lavan Films on Vimeo.

Reblogged with thanks from Kate Belgrave’s Blog

 Posted by at 14:02
Sep 212014
 

The Fabulous Brian Hilton has yet again come up with some great images to use during the party conference season.

Please copy these images and tweet them or use them on facebook during the party conference season

Tomasz and his son Peter show support for disabled people and the Save The Independent Living Fund Campaign in their own unique way.  Every little helps, wether its writing to your local MP, lobbying your councillors or painting your neighbours gate.

Download Picture from this link


Download from this link


A is for Activism

Download from this link


 

On the 22nd and 23rd October disabled people will again challenge the government in the High Court over the closure of the ILF

Download from this link


Party Conference Time, grab your placards! Labour - 21st-24th Sept, Tory, 28th Sep-1st Oct, LibDem 4th 8th Oct

Download from this link


Gazing on a young Nick Clegg, who'd have thought he would be in a position help save the ILF - and yet would do nothing

Download from this link


Esther reminds David that if disable people are going to save the ILF we need to mobilise

Download from this link


Fearless David Cameron had no qaulms about entering a nuclear facility. However he was less keen on meeting Disabled People who face becoming prisoners in their own homes if the ILF is closed

Download from this link


Jane explained that the fight to save the ILF is not over and that disabled people still had a few tricks up their sleeve int he run up to the general election

Download from this link


And Jane was right!!! The fight is far from over,

disabled people do have some more tricks up our sleeve to save the ILF.

More announcements to come, watch this space ……

 Posted by at 12:28
Sep 152014
 

Statement on Bristol Green Group’s motion on the future of the Independent Living Fund 16 September 2014.

 

Bristol Disability Equality Forum (BDEF) support Bristol Green group’s motion on the future of the Independent Living Fund (ILF.)

 

Having led local campaigning and held discussions with representatives across all the major parties within Bristol, we call on our Mayor to support this motion. This is an opportunity for our city to support the rights of it’s Disabled citizens to live independent lives.

 

The ILF has made it possible for thousands of Disabled people with high support needs to live in their own homes, contribute to family and community life and to take part in work and education. The closure of the ILF will have a drastic impact on these Disabled people, their family members and communities.

 

The ILF has supported a diverse group of Disabled people, including people with learning difficulties, and also autistic people.  The ILF has made it possible for people to live at home with their families and with the support of their choice. Bristol is in the shadow of Winterbourne View, so the alternative is never far from our thoughts.

 

The threat of living an isolated existence, or being forced into residential care, is very real for ILF recipients in Bristol, many of whom are Forum members. There are also many other Disabled people who have been denied this vital support, since the ILF was closed to new applicants in 2010.

 

This all has come at a time when Disabled people have already been hit the hardest by welfare reform, cuts to services and combined impact of austerity measures.  It is for these reasons that we view the closure of the ILF as part of a wider agenda that affects all Disabled people.

 

The closure of the ILF will shift responsibility to local councils, placing already cash-strapped authorities under more financial pressure.  This will increase the risk of councils failing to meet their public duties, resulting in legal challenges and further appeals.

 

The ILF has created thousands of jobs and meant that central government  funding is spent and re-invested locally. The ILF is one of the most cost effective public sector schemes1, with just 2% spent on administration much less than local councils. The satisfaction ‘user rate’ for the ILF is over 97%2.

The Government accept that the ILF is more flexible than the services provided by some councils. The government have also stated that most current ILF recipients will face changes to support or reduction in funding.3

 

Closing the ILF is also likely to result in an increase in spending in the long-term, as result of reduced health and wellbeing and increased pressure on more expensive services.

 

Government has claimed that developments such as Direct Payments, Personal Budgets and new duties on councils under the Care Act mean that the ILF is no longer needed. This ignores the evidence of Disabled people and organisations with direct experience of both systems. The Government has not prevented the care and support ‘post-code lottery’. These developments have not reduced the variation and disparity between local councils, both in how direct payments can be used and in the services available.

 

We feel strongly that the success of this Government funded, centrally administered scheme that is ring-fenced for those that need it most, should be built upon. This should happen by re-opening and expanding the ILF, with Disabled people playing a central role in decision making.

However, as proposed in the motion, should the ILF close, ring-fencing of funds from central government and the full involvement of Disabled people in all parts of the process is essential. This is needed to ensure our rights to independence, to live in the community, to choices equal to others and access to a range of services.

As Disabled people we want to do the ordinary things in life that many take for granted, to live and not just exist.

 


References

 

1 & 2. ILF Annual Report and Accounts 2013 – 2014

https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/321510/ilf-ara-2013-14.pdf

 

  1. 3.Equality Impact Analysis ‘Closure of the Independent Living Fund with transfer of responsibility and funding to local authorities inEngland and the devolved administrations in Scotland and ’ DWP 2014:

 ‘It is almost certain that closure of the ILF will mean that the majority of users will face changes to the way their support is delivered, including the real possibility of a reduction to the funding they currently receive. This is because the ILF funds some aspects of care that some local authorities do not and may also provide different levels of flexibility in the use of such funding.’

 

Notes

 

Bristol Disability Equality Forum (BDEF) is an organisation of Disabled people, open all that identify as Disabled people, regardless of impairment in Bristol area. We develop projects and campaign to increase Disabled people’s inclusion, influence, equality and access to services.

 

The BDEF ILF Action Group was formed after a conference on the future of the held in Bristol in September 2013. The conference was organised by the BDEF, working alongside West of England Centre for Inclusive Living (WECIL) ILF and Council staff. Disabled people at the conference decided to form their own group, in order to campaign, share information and ensure direct involvement in any developments relating to the ILF.

 

For further information, please contact Laura Welti, BDEF Manager or Mark Williams, BDEF Co-Chair.

 

Bristol Disability Equality Forum Main Office:

 

E-mail:       bristoldef@gmail.com

Tel:             0117 914 0528.

Web:          www.bristoldef.org.uk

 

BDEF ILF Action Group:

 

E-mail:       ilf.bristoldef@gmail.com

Text:           07867 690 422

 

Sep 062014
 

SaveILF - Cos we're not taking no for an answer

BLOG of an ILF user by Anne Pridmore

22ndAugust 2014
Awoken by Brody (one of my cocker spaniels puppies) kissing my face swiftly followed by Eben and Suzie Brodys mother. Thought I better get up and greet the day so pressed the buzzer for my PA had a quick wee then waited for my first cuppa in bed, don’t get up too early these days.
Had breakfast (in bed) and decided to have strip wash rather than a shower. Asked PA to check for pressure sores as I can easily get them can result in stay in hospital. P A assisted me to get dressed and went into bathroom for teeth hygiene all facilitated by PA. Had BIG mug of coffee and felt ready for day.

Went with PA to get vegetables for dinner and took Eben with me. Had long conversation with my choirmaster’s husband about our new season. Without ILF I would not be able follow my love of singing. Arrived home and asked PA to unlock office and fire up computer. Answered some emails then had lunch prepared by PA. Made sure my fluid levels were up as had nasty scare last week because I failed to drink enough I couldn’t go for nine hours. It is crucial to drink on the hour failure to do this will damage my kidneys. This of course does result in many trips to the toilet facilitated by PA and also the odd accident which means I have to have another shower and change of clothes. In the bad old days before ILF I remember having to dry my clothes (I had on) with a hair dryer. I also was forced into having a hysterectomy because I had very heavy periods and could not keep clean because of having only “pop ins” a few times a day. My ex husband was infertile and we were refused AID or adoption. I was still young enough to have children and this has always been a sadness. Had lunch mushrooms on toast prepared by my PA.
Need to stop now as am going to exercise three dogs up the recreation ground with my PA who will assist me and pick up the pooh!
Had pork roast cooked by PA.
Had bad night owing to pain needed turning six times. Failure to do this results in pressure sore with can lead to skin graft.

23rd August 2014
Took dogs with PA walk on canal – got wet which necessitated PA changing me – find this tiring. Decided to have a shower and hair wash etc. Remember the days when I had to rely on bath nurse once a week my day was Monday and of course every Bank Holiday falls on a Monday so that meant waiting three weeks.
In the evening I had dinner but as it was freezing decided to go to bed at 8.00 pm and play bridge on my ipad. No more not knowing when the community nurse would come at any time to suit her. This is 28 years ago and I was much younger then, even though I was the youngest on her list she often came at 7.00 pm. I am sure it was more about “power and control” rather than putting me to bed at a reasonable time. Had cup of tea and chat with PA had drugs (prescription) and settled down to good book. Another very disturbed night – having to wake my PA five times to reposition me.

25th August collect my friend from her home to go to the cinema, My PA drives for me and I can recall the days before ILF when I was imprisoned in my own home. I had absolutely no social life at all. When we got home me and my PA took my two dogs to the local recreation park. This was only possible because my PA was able to pick up the dog pooh.

26th August had to get up early to be ready for my student who I am teaching to update our website. The beauty of having ILF to fund PAs is that if I need to get up early or fancy a lie in I am able to do this. Before the ILF I was at the mercy of the home help service and had no choice or control in my life. Going back to the mid 80s when I was entirely dependent on statuary services I was controlled by whoever determined the home carers hours. I remember raging about the fact that it was impossible to visit friends or have relationships because I never knew the time people would turn up. There was a particular occasion when I met a man and invited home to stay overnight with me. I rang the social services department to ask them to cancel my visit. But they told me that was impossible so I locked the back door and stuck a notice on the door which read “NO HELP NEEDED MAN IN HOUSE”. During the afternoon I was visited by the person who operates the volunteer centre. She came to give me feedback on the IT support I had been giving to an elderly lady in my district. I had only been able to do this because my PA was able to take and collect me.

27th August Had to be up early for PA training as I am recruiting a new PA this went on until 11.00 am then I collected my friend and took her to Leicester to choose a new outfit for a wedding. Ate lunch in town then came home all with the support of my PA.

28th August Went down town with PA grocery shopping. Then made orange and chocolate cake with PA looks and tastes yummy!

30th August Had leisurely breakfast made by PA then had lunch after which my PA drove me to cinema film was mediocre. Had lovely roast cooked by PA. Both dogs up the rec with my PA – dogs had lovely time. Watched some TV then decided to have an early night, perhaps readers might think nothing unusual about this but in the old days before ILF I had no choice as to when I went to bed.

31st August Trip to Aldi to purchase the food for our holiday in two weeks. Came home PA put shopping away and we both had lunch.
Mark Williams-My ILF Photo Diary
This diary aims to show how the ILF helps me to lead an independent life in the community. Without the ILF I would be trapped in my own home with no life.

Saturday 23rd August 2014
Today I met up with two friends, one of whom I knew at school and had lunch with them in a café. This is how the ILF helps with my social life.

Collette and Mark

Thursday 28th August 2014
Today I went to an accessible climbing event where I sat on the Bristol Disability Equality Forum Stall in order to publicise the group and get more members.

Promoting the BDEF

Keep up with our new ILF Diaries page coming soon

join the facebook group or find other ways to support the campaign at the link

https://dpac.uk.net/2014/04/support-the-saveilf-campaign-by-using-this-twitter-or-facebook-picture/

#saveilf

Aug 192014
 

 

A second court case against the DWP on the closure of the Independent Living Fund (ILF) will take place at the Royal Courts of Justice on the 22nd and 23rd of October. It is expected to last one and half days.

There will be a vigil outside the courts from 12.30 on the 22nd to support the ILF users taking the case and to support our right to independent living as enshrined in the UN Convention on the Rights of Persons with Disabilities- article 19

Article 19: “Living independently and being included in the community”, states that “disabled people have a right to live in the community; with the support they need and can make choices like other people do”.

Please join with us to show your support!

The closure of the ILF  has obvious implications for the UK’s chances of meeting such obligations. Most importantly for those disabled people who will lose this financial support they will lose any independence and choice in their lives. You can listen to how this vicious attack will affect disabled people at these links.

http://www.dpac.uk.net/2013/02/a-nasty-cut-people-affected-by-the-closure-of-the-independent-l5142/

 

https://www.youtube.com/watch?v=OMElPk0pq6I

 

We will be posting further updates

 

Aug 152014
 

 

The campaign to save the Independent living Fund (ILF) is now at its most crucial stage, because it involves you.

 

Following the high profile Westminster Abbey sit-in and the tea parties held outside DWP offices, we’re now asking ILF recipients to invite MPs to their homes to show them exactly what the ILF means in reality and why it must be kept.

 

This Summer is a great time to lobby MPs as they’ll be back in their constituencies working hard in the hope of securing votes in the run up to the 2015 General Election.

 

Please take the simple steps in this toolkit and let us know how it goes so we can target politicians and do everything we can together to save the ILF.

 

It includes writing a letter/email to your MP, writing to the local paper, meeting your MP, arguments and briefing and an invitation for your MP to the MP Drop in on 2nd September

 

Independent Living fund Drop in

with BBC Silent Witness actress Liz Carr

2 September 2014; 2 – 4pm; House of Commons Committee Room 19

This drop in session will be a chance for MPs to find out more about the closure of the ILF which currently supports nearly 18,000 disabled people with the highest support needs to live independently in the community, to contribute to society in employment, education, volunteering, as family members, friends and as members of our communities and to build the local economy through employing teams of Personal Assistants.

 

The surgery will be an opportunity to ask questions and to speak to Liz who has been enabled, through support from the ILF, to progress an acting career that has spanned stand-up comedy, presenting for BBC and primetime television.

 

Also in attendance to answer your questions will be a former ILF staff representative and a disabled person who missed out on the ILF through its closure to new applicants in 2010 and whose experiences reflect those of many other disabled people now excluded from participating in areas of life that non-disabled people take for granted.

 

The Drop in is being organized by PCS Union, Disabled People Against Cuts and Inclusion London.

 

For more information contact ellen.clifford@inclusionlondon.co.uk or Natasha@pcs.org.uk

 

Click Save-the-ILF-mobilisation to download the full Save ILF Mobilisation Word document

 

 

 

Aug 092014
 

 

Disabled people have been expressing their disquiet at the news that the Independent Living Fund (ILF) will cease to exist in 2015, and that the money will be transferred to Local Authorities. To date, out of the 153 surveyed Local Authorities and from 106 responses, only 10 Local Authorities have said they will ringfence the transferred funds to ILF recipients, which means that in all other areas, ILF recipients face a potential reduction of their care packages. How is it likely to happen?

An interesting article was published this morning by Joe Halewood (@SpeyeJoe): http://speye.wordpress.com/2014/08/09/dhp-dubious-hoodwinking-practices-or-how-ids-pulled-the-woolsack-over-the-courts-eyes/

which shows that 16% (UK average) of Discretionary Housing Payments (DHPs) allocated by the Department of Work and Pensions (DWP) to Local Authorities to mitigate the impacts of welfare reforms, and specifically of the infamous bedroom tax have been awards unrelated to welfare reforms. See Table 5 and 6 here: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/322455/use-of-discretionary-housing-payments-june-2014.pdf

It would be interesting to know what the money was spent on, but more to the point, DWP has twice relied on the DHP argument to win a legal case against claimants challenging the bedroom tax policy, and although DWP’s spokesperson said that the government has put in £345m to mitigate the bedroom tax, the figures shown in the Table 5 and 6 not only disprove this but also show that out of the money disbursed, 16% of the allocated funds have been used for awards totally unrelated to welfare reforms. This shows that disabled people are right to be worried about the future of the transferred ILF funds and about the willingness or unwillingness of Local Authorities to allocate these funds to disabled people who have been assessed as having the greatest needs. The ILF should be retained until assurance is given that these people will not see a reduction in their care packages.

 

 

Aug 052014
 

Permission has now been granted and the second  ILF Court Case will go ahead.

The papers went to a judge today and he has granted both permission and expedition (which means speeding up the usual timetable for the court case). The hearing should be “as soon as possible”, which could mean anything at the moment, as the judges are on holiday and the court has a very bad backlog, but we would hope we will get a trial date for some time in September/October as planned.

On behalf of all ILF recipients we’d like to say a continuing thank you to those involved in taking the case. We know from experience just how gruelling and stressful taking legal challenges can be and we offer our solidarity with you all.

 

 

 Posted by at 19:09
Jul 202014
 

Rob prepared this statement for the recent Disability Rights UK conference (18th July) He was not allowed to give his statement- we publish it here so people can understand why all voices should be heard and listened to.

The Fight for Our Lives

 My name is Robert Punton I am a disabled person and an Independent Living Fund (ILF) recipient I come here today to oppose Disability Rights UK stance on the closing of the ILF.

I have been a disabled activist for over 30 years both in a paid and unpaid capacity.  The money I have received through ILF funding has in no small part enabled me to achieve this, I have employed the same two guys as my Personal Assistants Mike Orme and Darren Harrison for over 25 years and now I am employing their son Daryl Harrison-Orme in the same capacity.  If the closure goes ahead this puts our partnership (family) in serious jeopardy.

I make no bones about the fact that as a person with high support needs without this extra funding I would be languishing in a Scope home or one run by some other likeminded establishment.  In saying this I am not in anyway denigrating the lives of anyone living there but I much prefer my lifestyle and will fight to my last breathe to save it.  Make no mistake everyone using ILF is in the same boat and none of us want to sink.

I am a member of DPAC and Co Director in Community Navigator Services with Clenton Farquharson MBE and Jack Nicholas it is a Community Interest Company we all identify as disabled; we aim to build capacity within communities to allow them to participate within society to their fullest n need or want.  We all agree the closure of ILF will severely destroy the advances that disabled people that achieved in last 3 decades.

Disability Rights UK and Simon Stevens advocate that when they close ILF it will make it a level plain field when they pass on funds to local authorities and everyone will be treated equally, equality only works when you use the highest possible denominator, in other words no one wants to be treated like their neighbour if they are being treated badly.  The term we like to use now is fighting for social justice for all, hence wanting the best standard of living (in this case support plans) for everyone.

Simon Stevens and his supports say that the ILF has made users of their scheme elitists in their communities.  I can’t argue that this may be perceived in that light. However, I would argue this two-tier system in society cannot be blamed on the independent living fund or its users; it was the Conservative government who closed the ILF in 2010 under the guidance of Maria (Killer) Miller, and in doing so cut off thousands of possible or probable new users of ILF, Con-Demning them to the level of substandard support given by most Local Authorities.

This substandard support shows the priority most local governments, and therefore National Government accord to people requiring high support – they are more than willing to leaving wallowing in our own shit!

Anyone following the campaign to SAVE the ILF led by DPAC and Inclusion London must know that we the major goal is to reopen the ILF to all people who fit their criteria.  In doing so raising the standard of those people’s support.  We believe this is the only solution not butchering the funding  of the so called “lucky” ones it in all honesty won’t help anyone.

I would love to know where the advocates of this Don’t Save ILF think the monies to raise everyone’ standards of support will come from. The money release from ILF we be swallowed up by incompetent politicians looking after their powerful votes, not us the people they view as worth less. In Authorities like Birmingham who have amassed debts of £600m you think the money given up by ILF will not even make a drip in their ocean of debt.

While I disagree with Simon’s argument I support his right to voice his opinion.  However, it is an understatement to say I am flabbergasted to hear Disability Rights UK supports this argument.  I thought you represented disabled people not the establishment!

What really exasperates me though is that we never learn from our mistakes.  Once more we are doing the governments work for them fighting between ourselves while they sit back laughing at us.  We must stop fighting and work together to defeat the Con-Dem coalition

I will finish with message to the camp supporting shut ILF.  If you can’t support don’t fight us.

Today we fight for our lives, if we lose today there will be no Tomorrow just an eternity of marginalisation and isolation either trapped our own homes or corralled in Care(less) Homes run by unscrupulous privateers only interested in profit not people

 

Thank you for listening  I hope you hear me!

 

see also: https://dpac.uk.net/2014/07/disability-rights-uk-independent-living-or-new-visions-in-neo-liberalism/

 

Jul 172014
 

DPAC have had an odd kind of non-relationship with DRUK. We’ve disagreed about many things. For example, DPAC is for saving ILF, DRUK’s Sue Bott suggests this is something we should probably forget about, and that ‘Whilst the ILF has benefited many disabled people, claims that it has been at the forefront of independent living are a little exaggerated’[1]. This is not the view of ILF users. See their stories, their lives, their experiences  It is amazing that anyone can believe that passing ILF to local authorities who already say that without ring-fenced funding many ILF users will lose support and/or be institutionalised is something we need to accept while we all get together to talk about ‘new visions’.

 

The DRUK conference dedicated to a ‘new vision’ for independent living is also a confusing affair, not only are they embracing Simon Steven’s approach[2] ( He who accused DPAC of murdering disabled people and was dropped from Leonard Cheshire’s sponsor program because of his outright abuse to other disabled people[3]), but one of their advertised partners for this conference are Craegmoor .

 

Craegmoor are part of the Priory Group owned by Avent International which is a US Equity Company- changing times you may say-and you’re right. Maybe that’s what these new visions are about: capitalising on the market, private equity companies taking public money, and disability organisations getting in on the act- maybe neo-liberalism rather than disabled peoples’ rights and equality now make up ‘new visions’ of independent living

 

Craegmoor ‘s target market are those labelled with autism, learning difficulties and mental health issues. They take 85% of their funds from public funds[4]. Craegmoor’s  web site boasts of its residential homes:

We provide understanding and support for people with learning disabilities, autism and mental health problems in a variety of settings based on the individual’s abilities and needs. Our nationwide residential care services support people to develop the skills they need to live as independently as possible’.

 

Wait, since when were residential homes part of independent living? Weren’t these the very oppressions that early activists fought to get out of, and current activists (and ILF users) are fighting to stay out of?

 

Their brochure[5] goes further:

Craegmoor is part of the Priory Group of Companies. From education to hospitals, care homes and secure facilities, the Priory Group of Companies offers individually tailored, multidisciplinary treatment programmes for those with complex educational needs or requiring acute, long-term and respite mental healthcare’.

 

Treatment programs? Not sounding very independent living or social model. As well as residential homes, secure ‘hospitals’ and segregated schools. It all sounds very daunting.

 

But there’s much more on the Priory group of companies too which is even less palatable concerning cover-ups and abuse. Until July 2013 Phillip Scott was Chief Executive if the name isnt familiar, he was also the Chief Executive for Southern Cross. Itself a subject of inquiry on institutional abuse and 19 unexplained deaths[6] Craegmor say they transform lives, but in what way?

 

In May 2013 there was Melling Acres, ‘where inspectors reported major concerns about the care and welfare of its seven residents – care plans were poor, with scant information about physical health needs, there were limited activities and a lack of advocacy to enable people to express concerns about their care’. In September 2012 ‘following an anonymous tip, inspectors found residents at risk of abuse in Lammas Lodge, a home for young adults. There were not enough staff and what staff there were, inspectors found, were not properly trained to meet residents’ complex needs. There were six major areas of concern, including care and welfare, medication and safeguarding. The home, which was warned it must improve or face closure, has since been given a clean bill of health by the regulators’. Both homes were registered under Parkcare Homes’ so neither Priory or Craegmoor got the fall-out despite ownership[7].

 

This was not the case in 2012 when concerned relatives hid CCTV cameras in the room of Highbank hospital in Bury Manchester to reveal abuse by staff[8], not so with the Bentley Court home in Wolverhampton suspended by the council for what it called ‘safeguarding issues’ in 2010, a council that stopped sending those with dementia to Bentley Court[9], and not so in 2012 when what was described as the ‘Priory mental hospital’ in Windes on Bennet Lane was closed due to not meeting 10 standards of Government quality and safety including: Patients not being fully protected from the risk of abuse and their privacy, dignity and independence not being respected, staff not receiving necessary training, a lack of systems to assess and monitor the quality of the service provided, care plans did not always cover patients’ needs. There were also reports of patients attempting to escape during supervised visits into Widnes town centre[10].

 

So as said definitely NOT independent living.

 

In 2004 the then CEO of the Priory group Chai Patel said ‘My view is, if there is ever a conflict that involves choosing between care and profit, then we should not be involved in that environment,’[11] Given the examples above it seems profit is the defining factor.

 

It didn’t take long to find this information, it didn’t take long to realise that these are not the partners who should be with any organisation claiming to support independent living, even ‘new visions’. So maybe the question that needs to be asked is what exactly do DRUK support?

 

There are a few clues, in a recent blog piece by DRUK (dated 16th July) mentioning a very good Guardian piece by independent living activist John Evans[12], an ILF user, the last paragraph says: ‘Sue Bott, Director of Policy and Development at Disability Rights UK, has written a new blog which also discusses the role of the ILF but proposes that disabled people should concentrate their campaigning towards achieving a single integrated system that assesses people’s needs and allocates assistance and support based on the outcomes people could achieve in their communities and contribute to society’.

 

John Evans says everything we need to know-we have a vision for independent living and we already have a model forged by international independent living activists. There is nothing wrong with that model. There is no reason to stop fighting for it, abandon it or develop ‘visions’ or hallucinations of lesser systems in which we divide disabled people by perceived contributions to society-all disabled people are of value, all deserve to be supported. It is the ILF model that needs to be built upon and expanded to all-something that promotes real independent living.

 

The fact that a so-called user led organisation is putting forward anything different with the spectra of institutionalisation added to the mix is a tragic condemnation of all that disability activists have ever worked and fought for. We are appalled that DRUK are willing to sacrifice disabled people’s futures in this way and sadly can only assume this is to ensure on-going funding from the government.

follow @dis_ppl_protest for more

If you want to email DRUK you can do so by emailing:  liz.sayce@disabilityrightsuk.org

 

[1] http://disabilityrightsuk.blogspot.co.uk/2014/07/we-need-new-vision-for-independent.html

[2] http://disabilityrightsuk.blogspot.co.uk/2014/07/we-need-new-vision-for-independent.html

 

[3] http://davidg-flatout.blogspot.co.uk/2014/07/inclusion-forgotten-ambition-lost-i.html?spref=tw

[4] http://www.craegmoor.co.uk/library/files/Craegmoor%20Locations%20&%20Services%20Brochure(1).pdf

[5] http://www.craegmoor.co.uk/library/files/Craegmoor%20Locations%20&%20Services%20Brochure(1).pdf

[6] http://www.bbc.co.uk/news/uk-24581693

[7] http://beastrabban.wordpress.com/2013/07/20/private-eye-on-failure-of-care-at-more-care-hospitals-owned-by-american-private-equity-firms/

 

[8] http://www.dailymail.co.uk/news/article-2227229/Nurses-quizzed-police-abusing-patient-Priory-Hospital-concerned-family-hid-secret-camera-room.html

 

[9] http://www.expressandstar.com/news/2010/01/15/elderly-will-no-longer-be-sent-to-care-home/

 

[10] http://www.runcornandwidnesweeklynews.co.uk/news/health/failed-priory-mental-hospital-widnes-5875608

 

[11] http://www.managementtoday.co.uk/news/432103/Man-Priory/?DCMP=ILC-SEARCH

 

[12] http://www.theguardian.com/society/2014/jul/16/independent-living-fund-closure-disabled-people-residential-care

Jul 052014
 
Monday 7th July 9am: Justice for Tony and George 7th July Sheffield
Tuesday 8th July 12-2pm: Vigil for the WCA Judicial Review High Court, London
Wednesday 9th July 1pm: Legal Challenge to PIP descriptors, Birmingham – Vigil

Thanks to Paul Bull (@CllrPaul4Cowick) for producing this Storify

 Posted by at 12:32
Jul 012014
 

 

On Saturday 28th June 2014 I was proud to take a part in a legal non-violent demonstration the purpose of this demo was two-fold:

1 To shame the Coalition to reverse their shameful decision to close the ILF (Independent Living Fund) later this year.  There rationale is that it will save money and make life easier for users, we all know it given to people with high-complex support needs and we all know we will be imprisoned in our own homes as nearly all Local Authorities do not have the funds to provide the current level of support we require.  He funds release will not be ring-fenced and will in all probability be swallowed up.  Meaning we will be given call out care packages.

2 To publish our position to the general public and in doing so gain their support.

This the precise reason why after months of planning we decided to choose Westminster Abbey as the site of our camp.  The reasoning behind this being that we figured that as the Church of England had repeatedly voiced their concerns over the way in which the government’s austerity policies where having a detrimental effect on the most vulnerable people in society (vulnerability is placed on you by actions of others rather than your own actions) we concluded they would support us by allowing us to camp on their land, i.e. Westminster abbey. How wrong this assumption would prove!

Let met point out that the plan was to ask Church officials to allow us to camp out for 3 weeks until Parliament closed. This was always a DPAC (Disabled People Against Cuts) action, organisations such as Occupy and UK Uncut were only there to support DPAC. Believe it or not but when it comes to pitching tents crips are crap at such tasks.

We met up early and it was always our aim to pitch up (excuse pun) and take over site at 4pm. Thus causing the least trouble to any member of the general public visiting the Abbey that day.

However when we arrive it was obvious that the security of Abbey had been forewarned, because they had begun to lock gates early. This obvious curtailed our plans. However, we still managed to get a number of activists into the grounds, who secured gates by locking together both and to gates. Thus allowing our support team from Occupy to raise the camp.

Whilst this was happening our negotiation team contacted the Dean of Westminster (Rev. [honestly] Rob Hall) to ask permission to encamp. It became clear within seconds that we where not going to get the desired response. According to my colleague who was there. His reply went something like this: “We at CoE support the theory of standing up against austerity cuts and how they affect everyone. However the Church can’t support any form of Direct Action and we want you to leave immediately.

Before I continue I feel the need to point out to the Rev. that he needs to remember his history. What were the Crusades if not Direct Action?

Anyway back to Saturday’s events not only did the Dean request us to vacate his grounds, he called in the police to extract us. They arrived on mass. We estimate that around 300 police arrive and kettle the 100 or so demonstrators. Apart from surrounding the makeshift camp, they stood on tents and ripped the only accessible tent.

A Line of Police bravely protecting Westminster Abbey from ILF users

A line of Police bravely protecting Westminster Abbey from rampaging disabled people

I was one of the DPAC protesters left outside the gates. We asked one of the Officers why they thought the need to come out in such force his response was “that we are. Not here for you but because of UK Uncut Blackblock and Occupy”

I repeat what I said earlier, the part played by Occupy was solely there in a supporting role. This can be evidenced by looking at all pictures and video at no time have I see any banners or signs mentioning any other group or cause other then DPAC and Save ILF

Which leads you to ask the question how did the police know who was there?

During this time the first arrest of three occurred, a person was accused of assault a police officer.

There for a time a situation of tense stalemate the Police kept the protesters inside the cordon and just outside the fence taking to the press and general public.

At this time I found myself sat outside the gate situated to the left of the hot drinks cabin. Whilst I was there one of the protesters came over and asked my PA (Personal Assistant) to get his holdall which contained his medication. Once we got his bag we tried passing over the bag to him. At this time Sgt. Dodd XB 50 decided to step in, pushing the bag back over stating that: “No bags where going to enter.” When performing this task he aggressively pushed both my PA and the owner of bag. You can imagine tensions arose and I and many on street side of gate challenged his right to with hold vital medication from people. There was no leeway given by said Officer Sgt Dodd (or as I told him they miss-spelled name Sgt. Godd). He is pictured below.

More police

Due to the fact that the security of Westminster Abbey was so fast to respond to the “danger” we represented not all resources where able to be sent in. This included bags with meds, food and water. As the policy of police under the direction of the Dean of Westminster Abbey was to deny access of said provisions, disabled people where denied food, water and medication.

During the afternoon Armed Response Police Units appeared to mingle within crowd. This raised tensions even further as it was complete over the top policing of a peaceful protest of disabled people standing up to save them from being returned to institutions.

It has been denied that they were there and imagines removed of them from websites. Below is pictorial proof.

Armed Response

As afternoon turned into evening it became apparent that any overnight sleepover in Abbey grounds was impossible, the people within the cordon discussed the best exit strategy. Rightly it was agreed that the ILF users should have the last say. So it was decided that they would be the last group out. However this was countered by the police saying they would arrest everyone left. So after more discussions it was decided to all leave together.

At 9pm everyone left together triumphantly. Yes triumphantly because we had a victory. I say this because we showed the establishment we won’t go away quietly. It was a great publicity coup that brought the public on our side. We proved that we can work with other groups to achieve our collective goal SOCIAL JUSTICE FOR ALL.

On that subject a BIG thank you to our allies Occupy without who none of Saturday’s action would have been possible.

We can claim a moral and physical victory. The institution that loses most face is the Church of England. Their action on Saturday proves they are the Church of England’s establishment not its people.

The fight to Save our ILF continues on 4th July and beyond.

THE FIGHT GOES ON!

by Rob Punton

 Posted by at 11:14
Jun 192014
 

The ILF has transformed People’s lives.  The Independent Living Fund does what it says on the tin – it liberates people who wouldn’t otherwise be able to, to live independently.  It lets them make choices about how they live – things we often take for granted: when to get up or go to bed, what and when to eat.  It allows them to work, to be active in the community and to live in their own homes.

 

I challenge the Minister today to guarantee that those currently in receipt of ILF won’t become less independent as a result of his decision to close it in June 2015. Because that’s what people fear.  That’s what they are frightened of.  They fear losing their jobs, losing those staff they employ to support them and losing their independence.  They fear being forced out of their homes and into institutions.

 

The Minister may say he’s passing the monies and responsibility to Local Authorities but this will not ease their fear.  And he is rather naïve if he thinks that absolves him from his responsibilities for this decision.  I’m afraid he can’t get away with devolving responsibility and blame for the consequences of his decision to others.  That’s why I ask him for these guarantees today.  For a start Disabled People Against Cuts calculate the current annual cost of support at around £288 million yet the government only identified £262 million to transfer to local authorities.   And it gives no reassurances that this money will be ring fenced to be spent only on supporting disabled people to live independently rather than absorbed into broader council budgets.

 

According to SCOPE £2.68 billion has been cut from adult social care budgets in the last 3 years alone, equating to 20 per cent of net spending.  This is happening at a time when the numbers of working-age disabled people needing care is projected to rise by 9.2% from 2010 to 2020.  In a recent survey 40% of disabled people reported that social care services already fail to meet their basic needs like washing, dressing or getting out of the house.  And 47% of respondents said that the services they receive do not enable them to take part in community life.

 

So it’s not surprising that people are desperately worried about their future.

The worry is that continued underfunding of social care will mean the care system will simply not be able to support disabled people to live independently.  The lack of reference to ‘independent living’ under the definition of the ‘well-being principle’ in the Care Bill which local authorities will need to take into account when providing care further fuels this anxiety.

 

And it’s not just people in receipt of ILF who are worried – it’s their friends, their carers and their families too.  The cases of two of my constituents illustrate this well.

 

 

Ashley Harrison is a Scunthorpe United fan like me cheering on the Iron at Glanford Park. At 10 months old he was diagnosed with cerebral palsy.  He will turn 30 this year.  Ashley has lived in his own bungalow since 2006.  The ILF allows him to employ his own team of carers.  Ashley is an inspirational man, a fighter but he is worried that the control over his future is being taken away from him.

 

His mother says:

 

‘The closure of the ILF would be nothing less than devastating for us as a family. Since Ashley was awarded his ILF allowance the whole family’s lives have changed for the better. ILF understands Ashley’s needs and always do everything they can to constantly improve Ashley’s life and enable him to live independently.

As a family naturally all we have ever wanted is the best for Ashley, which the ILF has helped us achieve. The ILF has always seemed to be the leading and positive force at meetings ensuring that social services match and meet Ashley’s needs. Without the ILF we all face a very uncertain future. The uncertainty that Ashley faced in his early years prior to receiving his ILF award have been daunting, frustrating and of course a constant battle with social services.

The alleged “smooth transfer” over to social services is already proving to be nothing of the sort.  Each and every meeting we hold (which are incredibly frequent) leave us having to justify Ashley’s needs as a disabled person.  The assessments they ask us to complete are totally unsuitable for the severely disabled.

All of the disabled people living independently with the help of ILF are living their lives to the full. The fear is that if ILF closes these people will lose their human rights and dignity to live their lives as they should.

As a mother who’s fought the last 30 years for Ashley to have the life he wants and of course deserves, I dread to think what the next generation of disabled people will have to endure without the positive support of the ILF.

I beg you to listen to myself as a mother of a disabled son and also listen to all those disabled voices who deserve to be heard.

Give each and every person the ability to live and achieve their dreams just as you and I can.

The Paralympics just proves how amazing disabled people can be!!!’

 

 

Jon Clayton is also in receipt of ILF.  Like Ashley he has carers whom he employs who understand his disability.  His sister writes

 

‘My brother Jon is quadriplegic having been involved in an accident which was not his fault at the age of 18. He is now 54. 

He is one of life’s truly inspirational people; an accomplished mouth artist – a gift he only knew he had after his life changing accident-  living independently in his own home. He freely gives his time mentoring other disabled persons, helping them come to terms with another life. A life without limbs. A life without walking.


He has always sought to live as normal a life as possible. Having gone through marriage, divorce, being a step father, losing a partner.

He is both ordinary and extraordinary.

He relies heavily on his full time carers. Carers who he personally has ensured are trained to an appropriate and exceptional level to look after a person with specific and defined needs. One false move and he could (and has) spent 18 months bed bound with a pressure sore at the expense of some ill trained nurse.


His carers are trusted to ensure and give a high level of care, entrusted with the most personal of tasks from catheter changing, toileting, dressing etc.  This has been part of Jon’s life since his accident. Something he has taken on with humour and dignity.

If the ILF is removed Jon will be unable to live independently. Being able to engage in what you and I would consider a normal life. He will be unable to travel, have holidays, visit family, visit friends. 

The ILF has enabled independence. Given life, where life seemed over.

I would therefore urge you to do all you can to prevent this life enabling function – the ILF – from being eroded’

 

A fundamental concern for Jon, Ashley and others is whether they will be able to employ their specialist staff in the future.  North Lincolnshire Council’s responded to this question on 9th June 2014:

 

‘We appreciate this situation may cause you concern as an existing Independent Living Fund customer and would wish to reduce any worry or anxiety you may have.

 

Allocation of future monies will be based on your updated assessment and support plan and on future Local Authority funding so at this stage we cannot give any specific guidance on the amount of monies that you may receive from us or cannot give guarantees on the future employment status of any Personal Assistants you may currently employ.’

 

As you can imagine such ‘reassurance’ only serves to heighten anxieties and build mistrust!

 

So I return to my central question – will the government guarantee that Ashley Jon and all those currently in receipt of ILF will not lose their independence as a result of their decision to close it.  A decision I believe is aimed at saving money but might end up costing more in other budget areas such as health.  A better way forward would be for government to engage with ILF recipients learn from their experience and find ways of shaping future services that are cost effective but continue to deliver true independence.

 

As Disabled People Against Cuts points out for the 17,500 people in receipt of ILF ‘the closure of the Fund will have a devastating impact on the lives on these individuals and their families.  It also has a much wider significance because at the heart of this is the fundamental question of disabled people’s place in society: do we want a society that keeps its disabled citizens out of sight, prisoners in their own homes or locked away in institutions, surviving not living or do we want a society that enables disabled people to participate, contribute and enjoy the opportunities, choice and control that non-disabled people take for granted?’

Or in Mahatma Ghandi’s words “A nation’s greatness is measured by how it treats its weakest members.”

 

People like Jon and Ashley are not weak but strong.  The ILF gives them independence and liberates their strengths. Now is the opportunity for the Minister to guarantee their future independence will not be compromised by the closure of the ILF.

 

http://www.nicdakin.com/ilfspeech.html

 

DPAC would like to thank Nic and all the supportive MPs at the adjournment debate on ILF on 18th June 2014

 

See the ILF debate at: http://www.bbc.co.uk/democracylive/house-of-commons-27884690

 

 

Jun 042014
 

DPAC is delighted to extend an open invitation to celebrate Independent Living Day with us on the 4th of July at the ‘Independent Living Tea Party ‘.

The party will begin at 2pm at the DWP, Caxton House in Tothill Street SW1. There will be fun & games, and entertainment; and of course, some civil disobedience.

We have come a long way since the demand for Independent Living was first made nearly 50 years ago. Then, as now, IL was our solution for how society supports disabled people to take our place as equals. For how society addresses inaccessible institutions, structures and process it created, which do more to disable people than their impairments ever could.

There are many strands of Independent Living, and all are under threat. Cuts to:

  • Support funding – such Social Care, the ILF & Disabled Students Allowance;
  • Education – in areas like the wholesale destruction of SEN Statements and the continued segregation of disabled children into ‘special’ schools;
  • Transport – the withdrawal of Taxi-cards, freedom passes and the halting of planned works to make infrastructure more accessible, amongst a host of other cuts combine to make disabled people second-class citizens in society.

But we have fought this fight before – and won. Our Disabled Peoples Organisations, legal gains and the policy victories we have won previously are testament to the power, know how and skills disabled people have to develop solutions to problems created by society.  We must celebrate these achievements and remind ourselves that each of these successes have had to be earned, no-one ever gave them to us without a struggle.

So celebrate with us, or alternatively create your own party. Get together with friends and supporters, and create the kind of vibrant, positive spaces we have always created. Bring the noise – bells, whistles, drums, pots & pans etc. Bring food to share. Bring your enthusiasm.

if you are planning your own party, here are some suggestions:

1) Choose your target –

focus on the important issues locally; support, education, transport etc – its up to you. Identify what you want to celebrate and who represents the biggest threat to that locally. Is it your local council or Uni? Is it a transport provider? Or is it someone else?

2) Tell everyone –

yes, EVERYONE. Media, campaign networks, activists, local people. DONT FORGET TO TELL DPAC so we can list and support your action!

3) Be heard, be seen –

make your event loud and proud. Bring music, choirs, drum, bells, whistles. Remind everyone out there that we won‘t be separated from society, we are society. We won ‘t go quietly.

4) We’re also holding a Twitter Party on the Hashtag
#IL4JULY so that people at the DWP and at other events round the country
can tweet in pictures of their events and we can all join in. Further
details to follow, watch this space.

The famous Boston teaparty led to a revolution against the British government let’s see where our teaparty leads…..

 

 Posted by at 18:56
May 012014
 

Save the Independent Living Fund
“Nursing Homes Stink, They’re Worse than You Think.
We’d Rather Go to Jail Than Die in a Nursing Home”

jailnursing home ilf

Join us to protest against the closure of ILF on Monday, May 12th 3pm-5pm outside DWP head quarters, Caxton House, Tothill Street, SW1H 9WA.

Nearest accessible tube –Westminster.

Click for Face Book Event Page

Bring things to make lots of noise. We have asked Mike Penning Minister for disabled people to join us but in case he doesn’t we need to make sure he knows we’re there.
————————————————————————————-
Dear Mike Penning,
We understand that you have stated publicly that you feel closure of the Independent Living Fund (ILF) will not have any adverse effect on the ability of disabled people to live independently in the community, to be able to access education or to continue to be employed.

Disabled people who are ILF recipients do not agree with your view and are gathering to voice their fears for their futures on May 12th from 3-5pm outside Caxton House.

They would very much appreciate the opportunity to speak to you about their very valid concerns so although we know you must be a very busy person we hope you can join us to hear what disabled people are saying.

In the meantime we are attaching a small selection of case studies for your attention.

On behalf of DPAC ILF recipient support group
————————————————————————————————————————————-
What is the Independent Living Fund?
The Independent Living Fund (ILF) is a ring-fenced pot of funding to provide funding to help 18,000 disabled people with high support needs live an independent life in the community rather than in residential care.

Closure of ILF: In March 2014 government decided to close the ILF in June 2015 in spite of a court ruling that said their previous decision to close ILF was in breach of the Equality Act. As usual DWP blatantly ignored the court.

Recommendations: Deaf and disabled people’s organisations and disabled people believe the ILF should be kept open and re-opened to new applicants for two key reasons:
– The ILF is a cost effective model of funding that successfully supports the independent living of those with the highest support needs.
– In stark contrast many Local Authorities only provide funding for basic a clean and feed model of care which ends independent living and inclusion in the community. This will leave many ILF users with a choice between inadequate care at home or an inactive, isolated life in a residential home.

 

 

 

 

 

Apr 252014
 

Please save the independent living fund!

I got up this morning, brushed my teeth, showered, ate breakfast, got dressed, checked my e mails, went to work, had lunch with colleagues, met with friends on the way home from work, popped in on my mum to see she was alright before coming home to do a couple of hours work on my open university degree before bed. I was able to do all this because of the money from the Independent Living Fund that helps pay my Personal Assistant to support me to do the things I can’t manage to do directly because I have a condition that means my hands do not work and I get around using a wheelchair” – ILF recipient.

The money from the independent living fund helps pay for a personal assistant, and enables disabled people who need support to have a quality of life to do the same things everyone else can do. Live.

The government says “ILF recipients will be reassessed by their local authority, and will be funded by the local authority” The money given to the local authority to meet a disabled person’s support needs will not be ring fenced. The local authority can spend that money meant for disabled people and their support needs on other resources. Disabled people who need the support fear less or no support at all and then being placed into residential care, far from friends and family.

Imagine this; your local authority has cut your support needs. You would have to rely on the local pop in service from carers you do not know, to keep you clean, warm up a meal in the microwave, and convenient at the time for the carer but not a convenient time for you. If you need night care, you would then be forced to wear incontinence pads or even worse cathertised.

You would then be only able to shower once a week, have no social life, have to perhaps use a hoist and then excluded from every day activities outside, forced to give up your pet if you had one, no garden, forced into isolation, having to sack the personal assistant you relied on for many years with no redundancy for them.

Now you are thinking you do not want to go on anymore. Its how do I go on like this with little support? Due to the lack of support you are now isolated at home cut off from society and from friends and family and as the lack of support means no independence, no social life, can’t work, no quality of life, it would make anyone feel down, and even depressed. It’s awful to contemplate isn’t it?

Disabled people want rights. Rights to live independently in the community, to have our support needs met, so we can have a quality of life, and do the same things as everyone else does. Live.

Society forgets that we are human beings, people, we are mothers, fathers, brothers, sisters, friends, neighbours, colleagues, but society sees the impairment, not the person we happen to be. We are judged, discriminated against, and called a drain to society. Well, we are not!

People can be born with an impairment, or at some point in their lives can even be struck down with a devastating illness, hit by a car, lose your mobility need to use a wheelchair to get around, have a breakdown, could lose your job and need to claim benefits to live. The social security system was put in place to protect those who needed the support, who may be too ill to work. You need the support every day to carry out the simplest of tasks. Life is unexpected, it’s cruel and its tough, it can change in a flicker of an eye lash, and it can happen to YOU.

Life is really hard living as a disabled person every day. Trying to manage life with all the same worries as non disabled people. Money, keeping a job, family life, health issues, how to get around using public transport. It’s bloody tough.

The independent living fund gave people with severe impairments the support needed to live life as we chose, so we could work, go shopping, feel part of society, a human being. A non disabled person is not used to thinking about how they would go to the toilet, get in and out of their home, get to work but we need to plan all those things in advance and ensure we have the support to do them.” -ILF recipient.

Our demand is to keep the independent living fund open, open it up to new claimants and open up independent living to all disabled people so we can keep our independence, and with support, have a quality of life and live.

All I ask of you is for your help. Help us save the independent living fund from closing on 30th June 2015. As disabled people, we want rights to live independently as possible, having a quality of life despite what we battle with every day with our disabilities and illnesses.

Why? Because we’re worth it! We are human beings and we want to be treated as such, not the stock the government and great swathes of society think we are. We are worth it! Help us keep the independent living fund open and help us in the fight for our rights so we can have a quality of life living in society as best as we can.

by Paula Peters

Take part in the Save the ILF Campaign:




An Important Request on ILF from Mary Laver http://shar.es/BjyqK #SaveILF #ILF




What the Closure of the #ILF means to disabled people -Mary’s story http://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-mars-story-2/ #SaveILF #ILF




What the Closure of the #ILF means to disabled people – Justine’s story http://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-justines-story/ #SaveILF #ILF




What the Closure of the #ILF means to disabled people – John, Paul and Evonne’s story http://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-john-paul-and-evonnes-story/ #SaveILF #ILF




What the Closure of the #ILF means to disabled people – Roxy’s story http://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-oxys-story/ #SaveILF #ILF




What the Closure of the #ILF means to disabled people – Kathy’s story http://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-kathys-story/ #SaveILF #ILF




What the Closure of ILF means to disabled people – Richard’s story http://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-me-richards-story/ #SaveILF #ILF




What the Closure of ILF means to disabled people – Penny’s story http://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-me-pennys-story/ #SaveILF #ILF




What the Closure of ILF means to disabled people – Anthony and David’s story http://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-disabled-people-anthony-and-davids-story/ #SaveILF #ILF




What the Closure of ILF means to disabled people – Kevin’s story http://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-disabled-people-kevins-story/ #SaveILF #ILF




Second Closure of #ILF and our analysis of the equality analysis by DWP http://shar.es/Bm4hM #SaveILF #ILF




DPAC statement on government announcement on closure of the #ILF http://shar.es/BHRcl #SaveILF #ILF




How the closure of the ILF will affect lives https://dpac.uk.net/independent-living-fund/#sthash.dLgkwYIe.dpbs #SaveILF #ILF




What Local Authorities said about the Closure of ILF http://www.dpac.uk.net/2013/02/what-local-authorities-said-about-the-closure-of-ilf/ #SaveILF #ILF




A Nasty Cut people affected by the closure of the #ILF http://www.dpac.uk.net/2013/02/a-nasty-cut-people-affected-by-the-closure-of-the-independent-l5142/ #SaveILF #ILF




Second Closure of Independent Living Fund and our analysis of the equality analysis by DWP http://shar.es/BjygQ #SaveILF #ILF


There are many more tweets that you can use here: http://dftr.org.uk/SaveILF

The “Save The Independent Living Fund” postcard campaign is supported by GMCDP, ALLFIE, DPAC, Inclusion London and Equal Lives.

 

 

 Posted by at 16:13
Apr 212014
 

DPAC would like to thank everyone for making last week’s (April 12 2014) National Conference such a huge success. There was a huge turnout with over 150 disabled activists from all over the UK including many new DPAC members attending, but just as important there were hundreds of members and supporters beyond the venue taking part through social media – watching the video live-stream, tweeting and sharing comments, views and sending messages of support. This was fantastic work by everyone and a truly inspiring collective effort.

DSC_1030 con

Here’s a brief outline of how it went.

Programme
The day was timetabled into sections beginning with practical reports and voting on policy motions. This was followed by two workshop sessions and then a closing session for everyone to feedback on the day. Four workshops were available to choose from in each Workshop session. Detailed reports on these will follow later.

John McDonnell MP, a longstanding friend and supporter of DPAC, gave a rousing opening speech to encourage everyone and remind us of the victories achieved so far. He congratulated disabled people and DPAC for fighting back, along with our sister organisation Black Triangle and WoW Petition initiators

As he finished he mentioned his own recent health condition which he said he felt brought him closer to our movement. Ellen reacted quickly by giving him a DPAC t-shirt and declaring him a full DPAC member to instant applause and cheers.

photo1jm tshirt

Finances
The Finance Report showed a healthy state of affairs for the time being thanks to individual donations, t-shirt and badge sales plus grants from the Edge Fund, the Network for Social Change, Trust for London  and the Andrew Wainwright Trust. More fund-raising is necessary going forward.

Motions
1. Government Honours
This proposed that any future candidates for the DPAC Steering Group could thwart the network and collective ethos of DPAC if they had received a national honour like an OBE or MBE. The ‘BE’ refers to the imperialist British Empire which is still celebrated despite what we know of the suffering and oppression this caused. The motion conversations also suggested that any media attention would be focused on those with honours and titles, rather than on the collective network ethos that DPAC ascribes to. The motion was put forward as a rejecting of this possibility and that of the honours system more generally. This was defeated.

2. Discrimination
This motion stated DPAC opposition to discrimination on the grounds of gender, sexuality, age, faith, disability, ethnicity or status. It also empowered the Steering Group to terminate the membership of anyone who supported a party which holds discriminatory policies, like UKIP. This motion passed based on an appeals process being put in place

3. Steering Group Size
This motion sought to expand the Steering Group from 8 members to 12 in order to respond to increased activity and maintain a broad, diverse and inclusive profile. This was passed.

Steering Group
There were 11 nominees for the Steering Group. Conference took a vote on whether to vote for accepting all 11 nominees, or vote for them one by one. Conference voted to accept all 11 nominees. The new steering group are currently reviewing co-opted places and will get back to the additional people that applied past the deadline as soon as possible

Steering Group:
Andy Greene
Bob Ellard
Ciara Doyle
Conan Doyle
Debbie Jolly
Eleanor Firman
Ellen Clifford
Linda Burnip
Paula Peters
Roger Lewis
Sabina Lahur

It was highlighted that the working groups are important in taking DPAC forward. The co-chair said she hoped those who did not stand for the Steering Group but were still interested in getting involved would join these as soon as possible.

Finally, a big thank you to the Conference Organising group and Workshop leaders who worked so hard to make this wonderful event a reality.

Links to videos from the day are here with thanks to Occupy for live streaming on the day to make the conference inclusive to all are here

Links to pictures can be found on DPAC flicker here
Thanks to Pete Riches, Szucs Gabriella and Rob Peters

The powerpoint on highlights of the last year can be found DPAC Report
A link to 2013 and some of the things DPAC did is here

See you on the streets!

DPAC www.dpac.uk.net
Twitter: Dis_ppl_protest
Also find us on Facebook with a group and open page under ‘Disabled People against Cuts’

contact: mail@dpac.uk.net

 

Apr 182014
 

We read with interest the piece in the Independent by Rachel Reeves and Kate Green regarding Labour’s response to the Work Capability Assessment [1]

Labour should realise that disabled people are deeply distrustful of any Labour reform of a Work Capability Assessment system, which Labour introduced in the Welfare Act of 2007 with the stated aim of removing 1 million claimants from the benefit system [3].

Our position has been and will be that the Work Capability Assessment is deeply flawed in its basic concept, not just in terms of the details of its delivery, and inclusion in the workplace for disabled people cannot simply be achieved by a ‘back to work’ test.

manifesto

In the Reclaiming Our Futures, Disabled People’s Manifesto [4], we state that a priority demand from government is that:

A comprehensive and strategic plan of action is developed with disabled people and our organisations to tackle the discrimination and exclusion disabled people face in work and employment including: increasing quality and range of personalised support available to disabled people, strengthening disabled employees rights and tackling employer discrimination and poor practice

Other key demands include that:

Economic productivity must not be the only measure of people’s worth and value, volunteering offers as much value to society as paid employment. While we recognise that volunteering can offer additional skills, it should not be the default option for disabled people because of our exclusion from paid work

There must be policy and media recognition that there will always be disabled people who are unable or too ill to work. These individuals must be supported by a publically funded system. They should not be penalised or demonised as they are currently.

For true inclusion in the workplace for disabled people a wider approach is necessary including but not limited to:

• Will Labour commit to the restoration of Disabled Student’s Allowance,
• Will Labour commit to the restoration of the Independent Living Fund,
• Will Labour commit to the extension of Access to Work (AtW) to include unpaid voluntary positions,
• Will Labour commit to the reversal of the reduction of people who currently receive DLA, but will not receive PIP and also lose their Motability access,
• Will Labour commit to the reinstatement of the requirement for councils to produce equality schemes on employment and access
• Will Labour commit to the provision of accessible transport.
• Will Labour commit to the reinstatement of “day one” protection from unfair dismissal in employment law
• Will Labour commit to the provision of Employment Tribunals enforcing mandatory organisation-wide measures on preventing disability discrimination
• Will Labour commit to the provision that all government contracts, at a national, regional and local level, are only awarded to companies that are fulfilling measurable equality targets for the employment of disabled people

(for further points see reference 2)

These currently are some of the barriers to inclusion in the workplace for disabled people, and they will not be fixed by simply amending the WCA. The issue must be seen within the context of the wider interconnected system of barriers in place. It must be seen in terms of what a large majority of disabled people have already identified as key problems.

In terms of inclusion we also need from Labour, a recognition that for many disabled people to be able to work there has to be a nationally transportable social care system with a guarantee that people would keep the same levels of funding wherever they needed to move to work.

We need recognition that there is an onus on government and employers to fully accept the spirit of the Equality Act 2010 [4] with its requirement to the opening of work opportunity to disabled people. Without this, no “fit for work test” aimed at cutting disability benefits will make any impact whatsoever on the numbers of disabled people who can attain and sustain employment.

We also need from Labour a stronger recognition that there are many disabled people who cannot enter the work place and should not have to live in fear of being pressured into doing so.

There is much that the article leaves out and that leaves us with a number of serious concerns and questions.

While we are not yet prepared to endorse in any way Labour’s new approach to the Work Capability Assessment, we do see the article by Rachel Reeves and Kate Green as a helpful starting point for discussions on the future of inclusion of disabled people, who want and are able to work, in the workplace and we would welcome an opportunity to meet with them and discuss this further. We would like meet with Kate Green and Rachel Reeves to ask the following questions:

1. Will Labour commit to stop spending public money on private
contractors and return any assessments of disabled people back to GPs
with medical evidence taken into account as well as give a commitment to
look at the barriers to work for disabled people who can and want to
work (in line with the social model of disability)?

2. Will Labour commit to a time and date to talk with DPAC, My Legal,
the Mental Health Resistance Network, Black Triangle, Deaf activists,
those with learning difficulties ( with an outreach of ½ a million
disabled people) to listen to the views of the largest network of grass
roots disabled people on the WCA and ESA?

3. If Labour are committed to scrapping the WCA when will Deaf and
disabled people, and those with mental health issues have sight of the
detail of any alternative Labour is proposing?

4. If Labour accepts the harm, devastation and premature deaths that have
been an outcome of the WCA why have they chosen to suspend their
prospective parliamentary candidate for St Austell and Newquay, Deborah
Hopkins for speaking out in public about the harm caused by the WCA.

5. Will Labour address the disproportionate harm that the WCA and
sanctions on ESA and JSA are causing to all disabled people, in
particular those with mental health issues and learning difficulties?

6. We along with many others insisted that a centralised Independent Living Fund
for Scotland be established and it has been done. They have also promised to re-open ILF to new users, with a commitment of additional funds and recognition of its importance to independent living and obligations to article 19 of the UN Convention on the Rights of Persons with Disabilities. Why has the Labour
Party not promised to re-establish it south of the border?

Many of the Statements included in this response are taken from the UK Disabled Peoples’ Reclaiming our Futures Manifesto and are endorsed by a UK network of disabled people and Deaf and Disabled Peoples Organisations, including: ALLFIE, Inclusion London, Equal Lives, DPAC, Inclusion Scotland, Disability Wales and the TUC Disabled Workers Committee [2], who between them reach several million disabled voters.
References
1. How Labour would reform the Work Capability Assessment http://www.independent.co.uk/voices/comment/how-labour-would-reform-the-work-capability-assessment-9265479.html
2. The Reclaiming Our Futures, Disabled People’s Manifesto http://disability-studies.leeds.ac.uk/files/library/UK-Disabled-People-s-Manifesto-Reclaiming-Our-Futures.pdf
3. The Green Paper: The new deal for welfare: Empowering people to work. 2006 http://webarchive.nationalarchives.gov.uk/+/http://dwp.gov.uk/docs/a-new-deal-for-welfare-empowering-people-to-work-full-document.pdf
4. Equality Act 2010 http://www.legislation.gov.uk/ukpga/2010/15/contents

 

Apr 162014
 

DPAC Press Release: Top Corrie stars Support Save ILF Campaign

For immediate release: 16 April 2014

Coronation Street stars support the ‘Save the Independent Living Fund’ Postcard Campaign.

Stars of Britain’s longest running soap joined disabled people in their campaign to Save the ILF(1).  The fund which provides support funding to almost 20 000 disabled people is to close in June next year the Government announced last month(2). See Facebook campaign page

save ILF LM
Stars such as Bev Callard, who plays Liz McDonald, former Red Dwarf actor Craig Charles who plays Lloyd Mullaney and Jack P Shepard who plays David Platt ans several other stars posed with oversized postcards produced by campaign organisers who include DPAC(3)  (Disabled People Against Cuts), GMCDP (4)(Greater Manchester Coalition of Disabled People), Inlusion London(5), Equal Lives(6) and others.

Despite having their original decision to close the fund over-turned at the Court of Appeal late last year(7), the Government has re-announced the closure following a new Equalities Analysis(8) – where officials admit levels of support cannot be maintained and some users may end up having to move into Residential Homes to have their support needs met. Funding will be devolved to Local Authorities for 1 year until 2016(9), but not ring fenced, meaning there is no guarantee the money will be spent providing support for users, or indeed any disability services at all.

DPAC member Paddy Murphy said ‘At an annual cost of just over £350m, this isn’t a hugely expensive fund to run. Users receive an average of just £337 a week to maintain their independence. The Government have admitted some will be forced to move into Residential homes, and others won’t get the level of support they receive now – some none at all. Local Authorities are seeing their budgets decimated, and their largest expenditure is on Adult Social Care, they simply won’t be able to afford to meet people’s needs. Disabled People will once again be forced to pay the highest price to fund the bailouts and rescue plans for the banks, which is the underlying justification for the cuts to public services.’

Editors Notes & contact details here mail@dpac.uk.net

END

1.Http://dpac.uk.net/2014/04/save-the-independent-living-fund-postcard-campaign-saveilf/

2. https://www.gov.uk/government/news/future-of-the-independent-living-fund

3. https://dpac.uk.net/

4.http://gmcdp.com/

5.http://www.inclusionlondon.co.uk/

6.http://www.equallives.org.uk/

7.http://www.equalityhumanrights.com/news/2013/november/commission-welcomes-court-of-appeal-decision-overturning-the-abolition-of-the-independent-living-fun/

8.https://www.gov.uk/government/publications/closure-of-the-independent-living-fund-equality-analysis

9.http://hadag.org.uk/second-closure-of-independent-living-fund-and-our-analysis-of-the-equality-analysis-by-dwp/

Apr 152014
 

Postcard - Front   

Save the Independent Living Fund

Postcard Campaign

Hashtag: #SaveILF

Ways that you can take part:

The “Save The Independent Living Fund” postcard campaign is supported by GMCDP, ALLFIE, DPAC, Inclusion London and Equal Lives.

 

 Posted by at 15:19
Apr 072014
 

DPAC_coloured_Logo_2__biggerWe are very much looking forward to seeing everyone who can come to our national conference on Saturday but it is also important that those of you who can’t get there in person are able to take part. There are a number of ways you can do this:

  • Send messages of support and your ideas for what DPAC should focus on over the next year to mail@dpac.uk.net or @dis_ppl_protest.These will be put up on the graffiti wall at the conference and included in the notes from the day.
  • Watch the conference live on:

http://bambuser.com/channel/OccupyLondon and http://bambuser.com/channel/DPAC

  • Live tweet your questions and contributions to @dis_ppl_protest

  Or email: mail@dpac.uk.net

 The program for the day is at DPAC Conference 2014 Saturday 12th April – Conference Programme