Jun 032013
 

As more and more people are finding that they go from hours to minutes of support from their local authorities, as ILF users are threatened with being passed into a local authority system that cannot serve the aims of independent living, and as independent living is becoming more of a mirage every day, despite article 19 of the UN Convention on the Rights of Disabled Persons (UNCRPD) – we look at Angela’s story. Angela contacted DPAC several months ago when it was clear that her local authority were carrying out practices that appeared to be against protocol -legal representation was found. However, this could not stop the real threats to the reduction of Angela’s support or to her right to independent living:

Angela’s Story
I’m 28 years old – but if they take away my social care it’ll be the end of my life.

I’m disabled but I want to enjoy life the way any other young woman can.  I have two volunteer jobs.

 Now they’re threatening to take this support away – leaving me isolated at home, forcing me to go to bed at 9.30 every night, not even able to go to the toilet.

I did a degree in psychology and criminal behaviour. It was interesting but nothing like CSI! During one of the seminars, I met a representative from Headway, the spinal brain injury charity and I’ve been volunteering there for the last two and a half years. I won Luton’s Volunteer of the Year Award last year.

I’m constantly looking for paid work. I don’t sit around watching TV, I never have, I don’t believe in that. I would love to get a paid job. I have tried. I’ve been for interviews for customer services and as a support worker. Even though we are supposed to have equal opportunities, people still look at my wheelchair.

I was hit by a car when I was two. I have a spinal brain injury which has affected my left side. I can’t walk because I have no balance, so I use an electric chair.

When I turned 18, Social Services helped me find a place to live and be independent. Social care gave me total freedom to get up, go to bed, go to the toilet and settle into my new home and life. With decent social care I’ve been able to do whatever I want. I can go out and enjoy life the way any other young woman can. I have two volunteer jobs, and I can go shopping and see my friends.

Suddenly, out of the blue recently they’ve tried to cut my care from 20 hours a day down to three. I was shocked, upset and angry. I tried to negotiate with the woman at the Council and was told “life’s not perfect for anyone”.  I don’t expect it to be perfect – I want to have a life like any young woman.

I’d have no freedom. I’d have to be in bed at 9.30pm and get up at 7.30am, with no way to go to the toilet in the night either. My carer wouldn’t have time to cook me fresh food (microwaved horsemeat lasagne here I come!).

Imagine living this life for the next 50 years. If I was stuck with that forever, I would give up and lose my passion for living. I would find a way to end my life.

What I’m asking for isn’t unreasonable. I just want flexibility and freedom and a little support. I’m not asking for the world. But I do want dignity and I do want freedom. If I wasn’t in this wheelchair I would have those things, so why shouldn’t I.

What’s worse is it isn’t just me. It isn’t just about reducing how much support people get. They’re taking away all support for some disabled people. Every disabled person who needs support should get it – this is about the basic dignity and freedom to live our lives.

The government has what they call a spending review coming up – it’s when George Osborne decides: How will he spend our money? What do we care about as a country?

Will you sign the petition I’ve started and send George Osborne a message loud and clear that we want adequate support for disabled people to live independently?    They spent more than a billion pounds just on the Olympics village where the athletes stayed last year, surely they can put at least that much into social support for us? We only have a few weeks!
Angela Murray

Petition: http://www.change.org/en-GB/petitions/george-osborne-save-social-care-let-me-and-all-disabled-people-live-with-freedom-and-dignity

Please sign the petition and write to us at mail@dpac.uk.net with your stories. We are also looking for stories from people who were stopped from applying for Independent Living Fund support in 2010 when the Coalition closed it to new applicants.

This is not just about ‘care’ it is about independent living, the right to independent living and support for all. It is about the UK breaking its own signed commitment to the UNCRPD. It is about the impact on real lives like Angela’s. It is fundamentally wrong!

DPAC is continually gathering evidence of the impacts of the cuts, their effects on independent living and quality of life for disabled people and those with long term health issues. Unlike some other organisations we are keen to bring this Government to task through every route we can, including the legal system.

 

 

May 222013
 

DPAC Logo 3 amendment 1 (Small)On the day of the success of the ruling against the WCA-Activists from DPAC and disabled workers attending the TUC Disabled Workers Conference have blocked Tottenham Court Road in an unprecedented act of solidarity.

 This Government has repeatedly used the language of division, trying to divide workers and claimants, public and private sectors workers, non-disabled and disabled people. Today we strike back as one, united voice.

 The Cuts imposed by the ConDem Government under the cloak of ‘Austerity’ impact on disabled people in every area of life. The scrapping of Disability Living Allowance (DLA) and the Independent Living Fund (ILF) will tens of thousands of disabled workers, and will force many of them out of their jobs. Hundreds of thousands of disabled people both receive and deliver public services as workers in Public Service Departments, Local Authorities and the Voluntary Sector. ILF and DLA play critical roles in maintaining people in these jobs. The 1% uplift limit on Benefits, Universal Credit and the Bedroom Tax will impact on many disabled people both in and out of work.

 The removal of many of our basic rights affect not just disabled people, but all of us. For example, the removal of Legal Aid for medical negligence claims comes at the same time as every single contract within the Health Service is open to tender by private companies. This has serious and significant implications for each and every one of us who make up the 99%.

 But not everyone is being hit by austerity. While multi-nationals like Atos and Capita make fortunes, tax avoidance and evasion to the tune of tens of billions goes uncollected. The wealthiest 1000 UK residents increased their wealth by some 35 billion last year while disabled people and the poorest members of society were pushed into poverty and despair as the targets of brutal cuts.

 Disabled activists have led the fightback against this Government since the beginning, and today disabled activists and workers lead the way again in the first joint, co-ordinated direct action by campaigners and unions on the streets of the U.K.

 Shabnam O Saughnessy from DPAC said: “We are delighted to be joined on the streets today by our union comrades. This represents the first steps towards uniting resistance from communities and workplaces. It dispels the myth of disabled people as scroungers and workshy. We are not some separate group of others, we are your friends and neighbours, we work alongside you. Many millions of disabled people are being affected by cuts, and today is about getting our voices heard.”

 Sean McGovern, co-chair of the TUC disabled workers committee said: “Trade unionists would like to send a clear message to this government that trade unions, workers and grass roots disabled groups stand together against the onslaught of vicious cuts rained down upon us by the Condems.”

DPAC and disabled workers from the TUC conference block Tottenham Court Road 22nd May

Notes

1)    Disabled People Against Cuts is a national campaign led by disabled people to oppose the attacks on disabled people being carried out under austerity. www.dpac.co.uk

 

2)    The 2013 TUC Disabled Workers’ Conference takes place on 22-23 May. The TUC Disabled Workers committee recently rejected an invitation to join the government’s new Disability Action Alliance on the grounds that involvement would restrict the TUC’s ability to campaign against government policies that are affecting disabled people.

 For more information contact Ellen Clifford on 07505144371 or ellenrclifford@btinternet.com

For updates see twitter: @Dis_PPL_Protest

and Disabled People against Cuts Face book Group

We previously incorrectly attributed a quote to  Mandy Hudson that was said by Sean McGovern. This has now been corrected after we were alerted to this by Sean (26th May)

May 062013
 

Adding Insult to injury
The majority of disabled people, whether service users or not, are unlikely to know that this event is taking place. The fact it is ‘about them’ rather than an event seeking to involve them perhaps gives us the clearest message yet regarding the utter disregard the Coalition government has for the rights of disabled people. Sadly, with the shadow spokesperson on disability issues also participating in this patronising farce, it would seem we have a tri-partisan approach to displaying disabled people and service provision in the brave new ‘market place’. Every aspect of this National Disabilities Conference stink to high heaven – ideologically and politically – it adds insult to injury by stealing the language and concepts of the Disabled People’s Movement and transforming them into tools that will assist in the dismantling of the Welfare State.
Janus politics – creating a new culture of social exclusion
On the agenda are issues such as employment, independent living and disability hate crime, however, none of these subjects are likely to be discussed in the context of current government policies; policies that have contributed to disabled workers losing jobs, done nothing to challenge disabling barriers in the labour market, resulted in claimants losing benefits and many severely impaired people having their services reduced or removed. How can there be a discussion on independent living against a backdrop of the closure of the Independent Living Fund? How can people listen to a presentation on Disability Hate Crime and not round upon the role played by the Department of Works and Pensions in feeding material to fuel the ‘scroungers’ agenda? The answer is these issues will be discussed in terms of ‘opportunities’ – providing workfare programmes, making money by providing services within the voluntary and private sectors or increasing marketization in the public sector.
Since the mid-1990s we have seen the development of Janus politics where disability charities, parts of the voluntary sector and certain disabled people’s organisations have launched a new Disability Movement that speaks of rights on the one hand, whilst seeking to serve the neoliberal agenda on the other. The NDC is populated by individuals and organisations who want to foster the Big Society and buy a piece of the action as the services are hived off – it is an auction and disabled people’s lives will be placed under the hammer.
Nothing about us – without us!
This Conference employs patronage and an oppressive methodology. The United Nations’ Convention on the Rights of Disabled People advocates self-determination – nothing about us without us – yet, the blurb for the NDC is clearly at odds with the methodology that underpins the Convention because it portrays disabled people as passive receivers of ‘care’. Consider the following:
This event will provide delegates with the opportunity to debate and discuss the key issues around supporting disabled people across the UK. With key speakers, high level policy makers & drivers and important stakeholders present, this event is one not to be missed.

Add to this statement, the central purpose of the event:

Network with peers from across the health, work, crime and academic sectors, as well as stakeholders for central and local government. Just in case you are still unconvinced by the social exclusion of disabled people from this “Disabilities” event, take a close look at the Delegate price list: 1. Private £470 + VAT
2. Central Government £420 + VAT
3. Local Government £370 + VAT
4. NHS/Emergency Services/Police £350 + VAT
5. Third Sector/Charity £320 + VAT
6. Academic £350 + VAT
7. Trade Association £325 + VAT

Can you imagine the shock among disabled people who have come across this Conference and its agenda? Disabled activists fighting the austerity measures and promoting disability politics are being encouraged to take a stand against this Conference because it upholds everything the Disabled People’s Movement has fought against for the last forty years. The NDC 2013 epitomises the very essence of Janus politics by employing a dependency model approach to those sick and disabled people cast in the role of ‘deserving of care’ and a phoney ‘rights approach’ to those considered ‘lazy and workshy’ – in the words of Iain Duncan Smith, “….a hand up and not a hand out.” The Conference therefore can be seen as a watershed; it sets out the market stall for future government policies and draws a line in the sand vis-à-vis any progressive steps towards inclusive practices or the equalisation of opportunities for disabled people.
Protest and Resist
It is time to say enough is enough to this sheer hypocrisy; time to defend our struggle for emancipation against the patronising service providers who seek to exploit us and keep us dependent upon them; now is the time to demand Esther McVey sticks her disablist policies where the sun fails to shine!
There will be those who will fail to see what the fuss is all about; it is only a conference. The truth is the NDC is more than a conference; it is the first glimpse of a route map that will take us away from building an inclusive society and towards further marketisation, social exclusion, poverty and greater exploitation of both disabled people and those who work alongside them. It is vital to see this conference as yet another ideological and political attack on disabled people’s rights and welfare. We cannot afford to how the NDC to go ahead unchallenged.

Bob Williams-Findlay, co-founder of Disabled People Against Cuts and member of the Social Work Action Network steering committee.
May 2013

update: cartoons by Dave Lupton aka Crippen

”"

Apr 162013
 

If you missed it all -the Disability Action Alliance or DAA[i] has had a strange and tortured beginning. It was set up in 2012 to help with the new disability strategy. The merged organisation of RADAR, Disability Alliance and the National Centre for Independent Living (NCIL) AKA Disability Rights UK (DRUK) got the’ job’ of co-organising the DAA. This was a great surprise to all, not least the United Kingdom Disabled Peoples’ Council (UKDPC). The great surprise was that this ‘job’ hadn’t been advertised or put out for tender. After initial rumbles of shock and discontent DRUK said that they would not be paid for this ‘job’ so it didn’t matter, or words to that effect -and we all forgot about it.

Another issue was that this Alliance would include charities, presumably big disability charities as well as small ones, and private companies or corporations. This caused more rumbles of shock and discontent because some of us had been taught and still believed that any ‘disability movement’ was about disabled people leading it, was user-led and rights not charity based, we weren’t sure how to deal with this astounding corporate thing being added on either.  DRUK said DAA would be advising on government policy and would not supplant the role of disabled peoples’ organisations so it didn’t matter, or words to that effect -and we all forgot about it.

Then there was a flash new website called unsurprisingly: Disability Action Alliance. At the link if you want to have a look http://disabilityactionalliance.org.uk/ or join

A site with pictures, a bit government branded in style, but what can we expect.  The ‘About us’ section says:

During the development of Fulfilling Potential – Next Steps, the idea of a new way of working in partnership emerged and ODI agreed to set up the Disability Action Alliance.  Disability Rights UK agreed to convene the Alliance to ensure ‘nothing about us without us’ – so that disabled people’s voices and experiences drive change, locally and nationally.

The ODI or Office of Disability Issues (an adjunct to the DWP) also set up a network called the ‘Network of Networks’ in 2010 so that disabled peoples’ voices could drive change, locally and nationally’ with a pure base of 12 user-led disabled peoples’ organizations, which they then disbanded, unceremoniously, shortly after the development of Fulfilling Potential.  So the ‘nothing about us without us’ does ring a bit hollow, especially with the potential corporate business and big disability charities in the ‘us’ bit.

Maybe a more apt chant would be ‘something about us without us again’ led by Government departments, sorry ‘disabled peoples’ voices’

Alliance Declaration and Membership Agreement

There was some more shock and discontent over the DAA ‘membership agreement’ on the web site. For example the section states members must:

‘Respect the views of other members, and not represent their views unless they are given permission’

It is unclear what this means exactly, but it doesn’t sound particularly empowering to disabled peoples’ voices. Does it mean that a group cannot represent another groups views ‘unless they are given permission’? or that they cannot represent their own views? It all seems a bit defeatist to us. Also included is that members must:

‘Protect the integrity of the Alliance and not bring it into disrepute’

Again, what does this mean? Why would any group want to bring the alliance into disrepute? And what is the ‘protect’ element about?

We also see members must: ‘Not campaign or lobby in the name of the Alliance (this would not affect whether members campaign or lobby on behalf of their own organisations)’

Oh well, that’s good then and…in the spirit of incorporating others into the new world order, members must:

‘Identify existing groups/alliances/networks who may already be acting and could be engaged’

Already be acting….?

Anyway, the drive for members of the quango, sorry, new exciting network of disabled peoples’ voices was launched and anyone could join up, presumably providing they could understand exactly what the Alliance declaration and membership agreement actually meant. At the time of writing there are 102 members. As we seem to have waited so long to find out who they are let’s see if our anticipation has paid off…

Members of DAA so Far….

Members include some disability type organisations, plus: the Department for Works and Pensions, the Department of Climate and Energy Change and presumably the ODI. Also Lloyds bank is there and big charity Shaw Trust. There are a number of companies but no big names such as Atos or Capita which is reassuring, for the moment anyway; a couple of DIAL’s (taken over by SCOPE a few years ago), a regional unison, and a local council.

For those who filled out or took part in completing the consultation on the disability strategy (Fulfilling Potential), the outcome of the DAA is all slightly surreal. There we were with our disabled voices trying to affect change and here we are with a hotchpotch of unforeseen organisations who are going to talk about it-providing they get ‘permission to represent’ their? Our? the DWPs? Views-oh who really knows anything about what’s going on with this anymore?

There was more surreal stuff to come when the TUC Disabled Workers Committee were approached by the government to join the Alliance- eh? –‘approached by the government’ must have been some kind of an elongated typo on the TUC website there…but anyway they said no. Why did they say no?

TUC Disabled Workers Committee says no to DAA

According to a piece in Disability News Service and on the TUC website: the TUC disabled workers committee were approached by the Government-OK-so not an elongated typo- to join the DAA. They said no. According to the TUC web site, they said no because:

Disabled trade unionists feel very strongly that joining the DAA – an organisation recently set up by the Office for Disability issues to encourage groups representing disabled people to work together – would restrict the TUC’s ability to campaign against government policies that are affecting disabled people.

Representing disabled people? Does Lloyds bank really represent disabled peoples’ views or do the DWP or those other government departments?

No, we didn’t think so either. But Sean McGovern (chair of disabled workers committee) gets to the heart of the matter and maybe to the focus of the real disability strategy when he says:

The government has been attacking the living standards of disabled people for almost three years now and things are getting worse.

Unions are working with disabled people against these brutal and inhumane cuts, and are campaigning against the government’s unnecessary and damaging austerity drive.

The ATOS work capability assessments, the closure of the independent living fund, the switch from disability living allowance to the personal independent payment, and the bedroom tax – every single one of these changes is punishing and impoverishing disabled people and their families.

Joining this government-inspired alliance now would be to pretend that none of this is happening.

We want to see all disabled people and the organisations that represent them continuing to oppose government policy and not conned into becoming part of the problem rather than part of the solution.’

And this is exactly where any growth of a real disabled peoples’ led disability action alliance must be focused for anyone aware of what is really happening to disabled people under this government and its disability strategy

 You can join up at www.dpac.uk.net

We already have over 12,000 members and supporters, and not a government department in sight. You know it makes sense.



[i] Not to be confused with Disability Awareness in Action a user-led organisation

Mar 232013
 

In the court case taken by five disabled people against the proposed closure of the Independent Living Fund (ILF) , and supported by a campaign led by DPAC and Inclusion London certain documents were used. These documents are mainly correspondence between civil servants at the Government’s Department for Works and Pensions (DWP) and the minister for disabled people: Esther McVey.

These documents were released and declassified after the court case because they had been mentioned in the case. This is a summary of those documents.

Early analysis of responses to the consultation on ILF Closure (undated)

This document gives a breakdown of responses and several points for McVey to take into account. First, the consultation asked:

Question 1Do you agree with the Government’s proposal that the care and support needs of current ILF users should be met within the mainstream care and support system, with funding devolved to local government in England and the devolved administrations in Scotland and Wales?[1] This would mean the closure of the ILF in 2015.

 

Question 2What are the key challenges that ILF users would face in moving from joint ILF/Local Authority to sole Local Authority funding of their care and support needs? How can any impacts be mitigated?

 

Question 3What impact would the closure of the ILF have on Local Authorities and the provision of care and support services more widely? How could any impacts be mitigated?

 As we see never were questions asked on extending the ILF or keeping it open. In fact question 1 is what is called a ‘leading question’

In the documents DWP tell McVey:

       ‘As we expected with the current challenges facing the care and support system, the majority of ILF users are opposed to closure of the fund, with many doing so on the basis that there could be no guarantee that their current level of funding would be protected in the future’

and….

           ‘A range of smaller national and local disability groups expressed similar concerns with our proposal. Some have been able to support the closures in principle but usually conditional on current user awards being protected as part of ring-fenced funding. The most vocal group has been the relatively new Disabled People against Cuts, DPAC. This group has taken a very strong critical position on a range of DWP policies’.

Yes we have and both Miller (our old mister for disabled people) and McVey refused to meet us and ILF users several times-in fact they didn’t even bother to respond to these requests!

We were very surprised to see this section advising McVey:

           ‘The consultation exercise has been immensely useful and we have been satisfied that we have listened to a collection of views that is representative of all those individuals or organisations that have an interest in or may be impacted by closure and devolution and have considered whether to modify the preferred position set out in the consultation in light of those views’ (emphasis added)

Amazing! Because if most said : keep it open, and if most said people would lose support or enter institutions, including responses from local authorities: what exactly did they listen to?

The documents recognize that ILF users will see a drop in support with some not being eligible for support at all

             ‘We do recognise that upon reassessment by LA’s most users are likely to see some reduction in the current funding levels, and there are a group of users with low care needs that may not be eligible for local authority support under current needs thresholds in most LA’s.’

The cost of closure will be £39 million! One document states that some of this has been achieved by the savings from closing ILF to new users in 2010. But closure cannot be publically defined as value for money-indeed!

        ‘The transfer costs mean that this proposal will cost rather than save money and therefore it cannot be defined as value for money. However the transfer costs are fully affordable’.

Not to ILF users they aren’t!

And wouldn’t £39 million, plus transfer cost be better put into ILF? Of course that’s not what they want to do, in spite of a consultation exercise where the majority appeared to say a resounding NO to closure.

Why did the DWP think it would Easy to Close the ILF?

One of the reasons given that the DWP found it so easy to close the ILF to new users in 2010 was the lack of any objections from the ‘big disability organisations’ which DWP call ‘Major Departmental Stakeholder Responses’ whatever that is.

In terms of the announcement of proposed closure in 2015 it was noted that none of these ‘stakeholders’ had requested a meeting with ministers from Westminster. Basically most had kept quiet, and hadn’t seen the closure of ILF as any big deal. Great support guys!

On this basis the DWP tell McVey in another document around the potential announcement of the closure in 2015

         ‘on the basis of attention shown so far, we do not think this will   receive  significant attention on its own…’

Guess they forgot about that vocal group DPAC and Deaf and Disabled Peoples’ Organisation: Inclusion London, because the closure of the ILF has now received significant attention in the UK and in Europe, at European Parliamentary level through MEPs and at UN level and we’ll make sure this continues.

Neither DPAC nor Inclusion London has the millions for campaigning that the big disability charities have, nor dedicated media, press and campaign teams. But we do have passion, and we do care about what happens to us all as disabled people, and we care what happens to independent living. ILF users taking the case and supporting the case have appeared on TV, on radio and in newspapers to get the message across that ILF is important and this will continue too.

Any journalists that want to know more or run stories can contact: mail@dpac.uk.net

So what did these so called ‘stakeholders’ say in response to the consultation? According to the DWP, there was not enough resistance at all.

In the early analysis document those who the DWP define as key stakeholders are broken down and their responses analysed. Below is what DWP said of their ‘Major Departmental Stakeholder Responses’ in the exact words of the DWP to McVey

 Carers UK-Weakly Disagree

-User packages would be reduced placing extra demand on unpaid care

Disability Rights UK-Concerned

-Lack of choice and flexibility under Local Authorities (Las)

-User packages will be reduced

-Poor perception and past support of Las

-Difficult for ILF users to transition easily

 Disability Wales- Strongly Disagree

-users packages would be reduced which could make it impossible to support ILF users in a family environment

-since the 2010 closure of the fund to applicants disabled people have had to start entering residential care.

-believes the government is targeting the disabled for cuts

-LAs could not cope with the additional workload

-Lack of choice, flexibility and dignity for ILF users under LAs

-Do not believe transitional protection will be offered

 Inclusion Scotland-Strongly Disagree

-The proposal would create a postcode lottery of support

-User packages would be reduced

-LA support is budget led rather than needs led

-ILF expertise would be lost

-Lack of choice and flexibility under LAs

 MENCAP-Pragmatic Agreement

-If reforms go ahead they should be about finding a better system, not cutting costs

-Funding should be allocated to LAs as a separate ring fenced funding stream based on current ILF regional spending patterns in which current users enjoy time-limited protection

-need for Government to provide advice and information to all parties

 MS Society- Concerned Agreement

-Consolidation of funding streams would simplify the care system

-The proposal should not be enacted until the impact of current welfare reform is understood

-Lack of choice, flexibility and dignity for ILF users under LAs needs to be addressed

-LAs need as far as possible, to replicate the personalised expertise of ILF

-Representative groups need to be closely involved in the transition design

 RNIB-Weak Concern

-Concerned that closure might lead to a breach of article 19 on UN Convention of the Rights of Persons with Disabilities

-Representative groups must be closely involved in transition design

-Current levels of support must be maintained

 SCOPE-Concerned Weak Agreement

 -Consolidation of funding streams would simplify the care system

-The proposal should not be enacted during current funding constraints

-The mainstream care and support system needs more experience and commitment to independent living to be able to undertake the responsibilities of the ILF

 Spinal Injuries Association-Disagree

 -Funding is likely to disappear into wider LA budgets on transfer

-ILF is more efficient than LAs

 

‘Rights not Charity’ seems very apt as the major charities for disabled people appeared to agree with the closure, after all more institutionalisation of disabled people might benefit them mightn’t it?  Disability Rights UK (DRUK) a so called user-led organisation incorporating, but clearly forgetting the principles of National Centre for Independent Living, did not offer more than ‘concern’.  The Spinal Injuries Association ‘disagreed’ but what this needed was for all to come out and say ‘Strongly Disagree’ as Disability Wales and Inclusion Scotland did.

 Remember that when the charities ask you for money, remember that when those groups that didn’t come out fully against the closure of the ILF say they are on the side of disabled people or are working for disabled people: we believe they can no longer justify either of those statements.

 The DWP told McVey that ‘stakeholders’ (SCOPE, DRUK etc)

‘..have traditionally found it hard to defend the ILF model of funding care..’

‘none of the largest national disability organisations requested ministerial meetings and many did not submit responses to the consultation. While we have had an increasing number of letters from MPs on users’ behalf, the proposal to close the fund has received almost no attention in the mainstream media’ (correspondence to McVey 7th November 2012)

We will work through more of the documents looking at issues on transition, and the DWP’s media strategy which is unsurprisingly at odds with any issues raised by disabled people-you know the stuff Closure of ILF will give ‘choice and control’ , ‘committed to supporting disabled people’ blah, blah, blah.

The big difference here is that it is clear from the documents  that the DWP are perfectly aware that ILF users will lose funding and that their needs won’t be adequately met through the local authority system.

Cuts versus Reform

Finally, the DWP were keen to try and put the message out that the closure of the ILF was not about ‘cuts’ but about ‘reform’ –what’s the difference? They do appear to believe that if they say reform we all think this is a good thing, rather than identifying that everything that comes under the heading of reform is actually another cut.

The documents cannot be clearer: this is a cut

A cut to the dignity, life chances and lives of disabled people-not just those who are currently supported to lead independent lives through ILF , but also those who would have qualified before closure to new applicants in 2010 and all who could benefit from the ILF system in the future

Support ILF users now; support a better future-say no to the closure of the ILF!

 

 

 

 

 

 



[1] Funding for ILF users in Northern Ireland is currently the responsibility of the Northern Ireland Department for Social Development, not the Department for Work and Pensions.

Mar 032013
 
We urgently need people to email Scope over the next 2 or 3 days to let them know in no uncertain terms what a disaster the closing of the ILF (Independent Living Fund) will be and that their attitude not to oppose this as they don’t have enough money to campaign on everything is unacceptable.
 
Also we need Scope to be made aware their own inaction in not campaigning with regards to the ILF closure is totally unacceptable from a major Charity who claim to be at all interested in the rights of disabled people. (apologies if this makes you all fall around laughing).
A representative from Scope is meeting with Government this week to speak for you – so can you email Scope on the contact below to let them know exactly what you think of them and what you expect them to say for you. Be as brief or detailed as you want, but don’t allow SCOPE to sell disabled people out yet again.
 
Email address is campaigns@scope.org.uk and copy to their overpaid CEO richard.hawkes@scope.org.uk
 
Alternatively leave messages for them on their facebook pages
 
 

Dec 152012
 

Introduction

 A central feature of this article is an attempt to not only provide a response to comments made by leading figures within Disability Rights UK (DR UK) but also to offer a critical explanation as to why DPAC holds the positions it does vis-à-vis those comments. Our aim is an attempt to bring into the light important political differences that underpin the struggle against the Coalition’s attack upon disabled people. DR UK in their comments have raised historical issues relating to past practices of the Disabled People’s Movement therefore we are required to look back and consider how the past does indeed impact upon the present

Before embarking upon this journey we believe it’s necessary to reflect first of all upon some of the issues that have come to the fore over the last twelve months because they help us to understand and give context to the issues that will be under discussion.  

 How then should we appraise 2012?

 There’s little doubt that over the last twelve months the savage nature of the Coalition’s austerity measures have become a majority talking point among the community of disabled people. It’s also important to recognise that many disabled people have done much more than talk; there has been a massive influx into anti-cuts campaigns, the growth of campaigns led by disabled people, for example, the Spartacus Report, Black Triangle and our own organisation. We have also seen a range of alliances formed that have also impacted upon the struggle against the Coalition’s austerity measures, the most significant being, the disability charity led ‘The Hardest Hit Campaign’ and the formation of DR UK. If this is what has happened over the year, how should we appraise it?

 Firstly, it would be wise to say that large sections of the community of disabled people remain in a state of shock; many live in daily fear of losing their services, homes and benefits, with others seeing this fear turned into reality. The year has also been peppered with reports of both deaths and suicides linked to benefit assessments and removal.

 Secondly, whilst we have seen positive signs of a growing awareness amongst disabled people, nondisabled people and sections of the mass media about the true agenda of this Government, there has also been a steady diet of hatred, misrepresentation and rising hostility towards sick and disabled people. 

 A major factor that can’t be ignored, hence being a central feature of this article, is the fact that alongside acts of solidarity and common cause we have also witnessed divisions and an increase in political arguments between various factions within the community of disabled people. At the centre of these divisions and political arguments one specific organisation stands out from the rest; namely, DR UK. DR UK was formed through a unification of Disability Alliance, Radar and the National Centre for Independent Living on 1 January 2012 and since that date it has hardly been out of the news as far as disabled people have been concerned. Through a series of high profile projects, nearly all initiated by the Department of Works and Pensions, DRUK has found itself criticised by a raft of disabled people’s organisations and individuals. Before looking at this in more detail let’s provide some context. 

 Among disabled activists who are from mainstream politics the turn of events we’ve witnessed will not come as too much of a surprise because politics is primarily about a battle of ideas in terms of providing solutions to problems. In our opinion the existence of divisions within the Disabled People’s Movement were less obvious until the mid-1990s when things began to reach a crisis point. Up until this point in time activists sought not to wash their dirty linen in public and there was a genuine consensus at the heart of the Movement around the demand for an end to social exclusion and a call for social change. The divisions began to appear when different approaches towards achieving these aims were voiced and the Disability Discrimination Act became law. Activists such as Finkelstein, Oliver and Barnes questioned the direction the Disabled People’s Movement was going in.  

 Just as Cameron was spinning a line when he said, “We’re all in this together”, there is a certain political naivety within the community of disabled people which still believes “we all want the same thing” – a political analysis of the last twenty years of disability politics, we would argue, shows that this might not be the case. This article can’t provide such an analysis because there’s too much ground to cover, however, as part of our discussion on the different political perspectives that currently exist we will signpost to significant areas of debate.

 One of the problems with looking at current political perspectives among disabled people and their organisations is that there has been a historical break at both an ideological and organisational levels. The recent unification of Disability Alliance, Radar and the National Centre for Independent Living for example brought together one organisation created by the Disabled People’s Movement and two who were never associated directly with the Movement and are considered to have very chequered histories. How should this “unification” be viewed? Here’s a partial explanation.

 The legacy of the Disabled People’s Movement

 The word intent when used as an adjective can mean: ‘…having the mind and will focused on a specific purpose’. When DPAC was created its prime focus, as indicated by its name, was to stand in opposition to the draconian policies being put forward by the Coalition government. In this sense I would argue that the very reason behind the existence of DPAC was its intent to muster resistance to a full-frontal ideological attack upon the welfare state and as a consequence the lives of countless sick and disabled people.

 DPAC therefore right from its early days outside the Conservative Party Conference stood against the actions of people such as Osborne, Duncan Smith and Grayling. Some of the faces in government may have altered over time but their intent also remains the same.  What kept us apart from delivering our message directly to them that day was row upon row of police. This was the visible presence of the power of the State and it would be foolish for anyone not to recognise that the exercising of power is one of the major factors underpinning global politics. DPAC believes that the lack of power in many different forms is the reason why disabled people remain at the margins of society.  
 
The creation of DPAC wasn’t a spur of a moment thing; a knee-jerk reaction to what the Coalition was doing. The roots of DPAC were firmly within the politics of the social movement we often refer to as the Disabled People’s Movement. A social movement is a collective identity around key demands for social change and it can be argued that the Disabled People’s Movement has stood for seeing disability as a social issue rather than a personal one. Disabled academic Mike Oliver spoke of the Disabled People’s Movement as a social movement because:

  • it was peripheral to conventional politics
  • offered a critical evaluation of society
  • embraced ‘post-materialist’ or ‘post-acquisitive’ values (e.g. non-exploitative or anti-capitalist in nature)
  • had an internationalist perspective

 Oliver also stated quite recently that a ‘…key feature of the disabled people’s movement has been its focus on social exclusion and oppression.’ As a direct consequence of this ‘shared perspective’ disability politics of the disabled people’s movement:

a) Placed an emphasis on self-organisation;

b) Had a commitment to radical political action to promote change;

c) Sought to improve the quality of disabled people’s lives and

   worked to promote their full inclusion into society

 It’s doubtful that many disabled activists would disagree with this broad picture, although some might suggest that over the life of the movement there were elements within the Movement that moved away from these politics or have subjected them to ‘reinterpretation’. One area that has been subject to detailed ‘reinterpretation’ is the idea of “disability rights” and it can be found in what is nowadays called the Disability Movement.

The rise of the Disability Movement

 Since the early 1990s there has been a growing tendency among charities, public and voluntary sector bodies to adopt both the language and concepts of the disabled people’s movement but in the process, gutting them of their original meanings and intent. It is quite common these days to see local authorities for example speak about supporting the social model or implementing what is called ‘independent living’ however any scrutiny of their policies and practices reveal their approaches are a million miles from those developed by the disabled people’s movement. The failure of the disabled people’s movement to address this issue and the unwillingness to discuss divisions within our own ranks openly has produced an unhealthy situation where the community of disabled people are witnessing conflicting approaches towards defending “disability rights” and not fully understanding or appreciating what lies behind these conflicts.

 There is not a single factor that led to these divisions. Tensions existed prior to and after the defeat of the Civil Rights Bill and the passing of the Disability Discrimination Act (DDA). Vic Finkelstein who helped establish the disabled people’s movement believed there was a too narrow focus on obtaining ‘anti-discrimination legislation’ whilst others concluded that the DDA was in fact a victory for disabled people – which goes against all the evidence that exists. The differing positions taken on the DDA was the first indication of a fundamental split within the Disabled People’s Movement and it resulted in a tendency emerging with a focus solely on protecting and extending “disability rights”. Here was a clear division between those that stood for radical political action to promote change and a revision of the politics of disability which offered a reformist agenda. Although the actual division is clear, the forces who make up the two camps isn’t necessary obvious. As stated earlier, some disabled people’s organisations and individuals moved away from radical interpretations of social oppression and began to open a dialogue with traditional disability charities such as Scope and Leonard Cheshire Disability who were ‘using the right language’ (sic). People such Tom Shakespeare argued these organisations had ‘changed’, but time and time again these charities have been found to be employing double standards – speaking about ‘disability rights’ one minute and promoting ‘disability as a personal tragedy’ the next.

 Many of the organisations involved in the ‘Hardest Hit Campaign’, including DR UK, are sending mixed messages to both disabled people and the Coalition. The outcome of this new ‘disability rights’ approach spearheaded by DR UK, Scope and Leonard Cheshire Disability is the formation of a Disability Movement which seeks to present disability as an ‘opportunity’ within the marketplace. The notion of ‘disability rights’ becomes little more than a question of consumer rights – is it little wonder then that Disability Works* and DR UK have the ear of the DWP? Suddenly social oppression is assigned to the dustbin; we are informed that everyone favours ‘inclusivity’ in an age of austerity where disabled people are becoming less able to access mainstream provision or live independently. An Orwellian nightmare is unfolding before our eyes.

 What has all this to do with DR UK?

 At DR UK’s recent EGM and within an interview with Disability News Service (DNS) both Phil Friend, its new chair, and Liz Sayce, chief executive, made a stout defence of DR UK’s involvement in the report that supported the closure of Remploy factories, helping the outsourcing giant Capita win a lucrative disability assessment contract and convening the new Disability Action Alliance (DAA). There’s little point in going over old coals as DPAC has reported upon these issues at various stages of their development however a number of observations will be made in relation to these issues as part of DPAC’s response to DR UK’s defence of its own political perspective. It is our belief DR UK is attempting to justify its practice and political stance by distorting the history of the Disabled People’s Movement by reinforcing backward-looking interpretations of major concepts that came from the Movement. At the same time as calling for dialogue with sections of the Disabled People’s Movement it would appear they are trying to discredit the politics these sections represent.

 DPAC will forward a response under a number of distinct headings and will use material from the article written by John Pring for DNS in order to focus the debate.

 History, Politics and Practice

 Liz Sayce is reported to have said that if the disability movement had only protested in the 1980s and 1990s – and had not engaged with the Conservative governments of Thatcher and Major – “we would never have got direct payments; we would never have got the Disability Discrimination Act”. There are a number of issues here that need addressing because this paints a completely false picture.

 It is not clear as to whom Sayce refers to as the disability movement – there has always been a distinct difference between the nature of relationships Radar had with the governments of Thatcher and Major and the relations they had with the British Council of Disabled People. More crucially, we need to consider the position disabled people were in during the time of these governments compared to the position we find ourselves in today under the Coalition. Thatcherism was no friend – excuse the pun – of disabled people. It changed the nature of society, exploited the benefits system for its own ends and began the early stages of the ideological attack we’re seeing today. At no time, and we’ll return to this later, did any Tory government wish to introduce anti-discriminatory legislation. Despite this poor record there is a fundamental difference between the outcomes and intent of the Thatcher and Major governments and what is being done to sick and disabled people today under the leadership of Cameron and Clegg.

 BCODP did hold talks but the nature of those talks were based upon making demands on governments, seeking to influence and change policies – far removed from the world of undertaking projects on behalf of a government or working with the agendas set by governments. Sayce implies we would never have got direct payments or the Disability Discrimination Act without engagement with governments – once again, there’s more to this than meets the eye as they say. At no time did BCODP lend any support to Hague’s Disability Discrimination Bill (DDB) and once the Civil Rights Bill had been knocked back, the leadership of campaign group Rights Now sought work alongside the Opposition in order to obtain any many changes to the DDB as were possible. It should be noted however that the main six disability charities – those who now form the bedrock of what Sayce calls the ‘Disability Movement’ – were quite prepared to go behind the campaign group’s back and discuss the merits of the DDB with Hague! Is it the legacy of this opportunist, back stabbing that Sayce is drawing her inspiration from?

The history of the campaign for ‘direct payments’ is also an extremely complex one with various accounts which explore the political and social implications of the demand from a variety of perspectives. As noted elsewhere the notion of ‘direct payments’ is one of the examples where the meanings associated with it vary according to which agenda one is seeking to address. The Disabled People’s Movement had raised ‘direct payments’ as early as the 1970s as a cornerstone of ‘independent living’ however a sizeable number of activists would question whether or not the current practices around direct payment actually fulfil its original intent. Outside the core of the Disabled People’s Movement there have been differing political positions taken on direct payments with a body of opinion holding the view that the notion can quite easily be accommodated into right-wing ideologies which favour individualism, the free market economy and the weakening of dependency on the welfare state. It’s obviously not possible to explore these issues here, however, they do represent key considerations when discussing the relationship between the campaign for direct payments and the numerous Tory and Labour governments’ response to it.

 It is crucial therefore to understand that the campaign for direct payments was totally unlike any other campaign stemming from the Disabled People’s Movement – it didn’t seriously challenge the nature of society as the demand for anti-discrimination legislation had done; it was something the State could, if it had a mind to, accommodate. Similarly, the idea of direct payments, just like the concept of ‘Independent Living’, found itself subjected to both reinterpretation and transformation by governments and certain agencies working with disabled people as the shift towards neoliberal policies gathered pace. DPAC would argue that it is no accident that DR UK has hegemony over these two ‘policy areas’ and that this is part of an emerging pattern which fits quite nicely with Cameron’s plans for a ‘Big Society’.

 DPAC doesn’t accept the argument that one can compare the approach taken by the Disabled People’s Movement in the 1980s and 1990s with the current antics of DR UK and its allies in the Disability Movement (sic). The Disabled People’s Movement for the majority of this period took a principled and political stance vis-à-vis government; only with the arrival of New Labour did we witness fundamental divisions which seriously hurt disability politics. What we have never seen so openly, until now that is, are politics that are based upon the Janus approach – looking one way they seek to convince disabled people, by mingling among us and using our language and methods of organisation, that they represent us – looking the other way, they are sat with their feet firmly under the table of those who are socially oppressing disabled people and in doing so, are prepared to participate within projects which are tied, no matter how one might try presenting them, to maintaining the continuous attacks on disabled people without any real challenge to government.

 Let us develop this picture further.

 DR UK and the Government: the Janus approach

 Phil Friend said in the interview with DNS that DRUK had decided it would “rather be in the tent talking to the government than outside the tent chucking stuff in”. The statement makes a good “sound bite”, but does it stand up to close examination? Within the same interview both Friend and Sayce make contradictory observations which they not only fail to readdress but in the process went on to undermine their own argument.

 The last fifteen years of disability politics have been characterised by both Labour and Coalition governments being very selective about whom they “talk with”. Anyone who is ‘invited’ into government projects has been carefully vetted and no one with a radical agenda has made the grade. As we have already indicated, forces within the ‘Disability Movement’, including some DPOs, are working within a “disability business model” and have shown their willingness to trade with the Coalition – Essex Coalition of Disabled People and DR UK are prime examples of this approach and are often quoted in government documents. Logic suggests, therefore, to be in a position to be ‘invited’ into the tent one has to be seen to have something either worth listening to from the government’s point of view or something concrete to offer them. Okay, here’s where we employ a terrible pun: what intent is behind being in the tent? What is it that DR UK can say or offer the Coalition?

 Whilst we pause to consider this point, it should be noted that Friend is also reported to have said: ‘….he felt the current government did not care about how disabled people would be affected by the cuts and that the disability movement needed to “sit down and really reflect on how we are going to wake them up”’. So, let us consider this statement. If the government needs to be ‘woken up’, because they don’t care about the impact of their cuts on disabled people, what on earth is DRUK talking to the government about within the tent? Perhaps it isn’t DRUK “talking”; could it be that their role within the tent is one of sitting quietly as Iain Duncan Smith and company outline their orders? These two statements by Friend fail to add up.  

   To add fuel to the argument Sayce said Disability Rights UK was a “non party-political organisation” and would “work to achieve disabled people’s rights whatever government is in power”. This, of course, makes another good sound bite, but what does it actually mean in terms of what they’re actually doing? We hear a great deal from DRUK couched in the language ‘disabled people’s rights’ however this seems to be an abstract mantra that is never spelt out in any meaningful way and is always produced like a rabbit out of a hat when Sayce feels cornered. How does getting pieces of silver from the DWP’s piggy bank to legitimate the government’s closure of Remploy or to run their ‘selective’ Disability Action Alliance (DAA) further ‘disabled people’s rights’? Being a “non party-political organisation” doesn’t prevent any organisation undertaking projects on behalf of the State, so this statement doesn’t count for much, does it?

 DRUK does like to employ the Janus approach when it comes to articulating its relations with the government and the Disabled People’s Movement. One minute Friend is talking about his preference of being inside the tent talking with the government, the next he is advocating an array of activities:

“Some of that is direct action, some of that is sitting in rooms with civil servants, and some of it is getting Esther McVey to actually hear what we are saying.”  

 Wait one second Phil; you said the government didn’t care about how disabled people would be affected by the cuts, so why would McVey listen to what disabled people had to say? Sayce also contributed to this Janus approach when she said that, as well as campaigning against the “unprecedented threats to disabled people’s income”, Disability Rights UK needed to look for “opportunities where we can” within the government’s agenda, “just as we campaigned against the last government’s coercive mental health policies but still worked with them to achieve gains in disabled people’s rights”. Look, there’s that mantra again. 

 It’s interesting that Friend points out that DR UK does help lead the Hardest Hit alliance, which campaigns against the coalition’s cuts, and that many of its staff joined the TUC’s anti-cuts march in London under the Hardest Hit banner. This seems to imply they’re still “good guys” really, but does it? Isn’t it also the case that within the Hardest Hit alliance there are forces who also adopt the Janus approach by campaigning against the coalition’s cuts one minute, and are climbing all over each other the next in order to get a slice of the Workfare cake? 

 Another worrying and questionable statement from Sayce was her comment to DNS that: ‘…. the proposed rollout of personal health budgets, which could increase choice and control for people with long-term impairments and health conditions and ensure they were “much less likely to be stuck away in an institution”’. There is no empirical evidence whatsoever to support this view, in fact, the exact opposite opinion is held by many campaigners seeking to defend both NHS and Social Care services. It begs the question: exactly whose ‘voice’ are we hearing here?

 Part of the function of the Janus approach, not necessary a conscious effort, is to alienate and distort the politics of the Disabled People’s Movement – e.g. make the “radical agenda” look unreasonable whilst taking its concepts and making them fit for accommodation into the status quo. Here are two quotations to illustrate this point:

 ‘Sayce told DNS later that DR UK and grassroots campaigning groups such as Disabled People Against Cuts (DPAC) – which has led a string of direct action protests against the cuts – “all want the same thing” but were just “different in their tactics”’. 

 And

 ‘Sayce warned that divisions within the disability movement over how best to campaign on disability rights would just “play into the hands of the government”’.

 Based upon the arguments outlined throughout this paper, DPAC would challenge these statements on a number of fronts. First, there’s no clear evidence that DR UK and DPAC share a common understanding of what is required or are seeking in material terms the same objectives. Simply broadcasting that one champion’s ‘disabled people’s rights’ doesn’t provide a satisfactory explanation of the mysteries of envisioned outcomes DR UK is seeking. Following on from this we would dispute the idea that the differences between DR UK and DPAC can be reduced to a question of “tactics”. In our opinion there are fundament differences regarding how we view the positioning of disabled people within society and the tasks required to alter this situation. DR UK may claim to adhere to ‘the social model’ however within central pieces of their work there are arguments presented that DPAC believes seriously calls this claim into question. Being opposed, for example, to segregated provision doesn’t indicate that there’s an understanding of disablism vis-à-vis service provision or inclusivity present. Any dialogue around the issue of sheltered employment coming from a social oppression perspective would and should include an analysis of the disabling nature of the labour market; especially within the current economic climate. Does Sayce’s report on Remploy operate from within such a methodology?

 DPAC, however, would agree with Sayce that divisions around how best to campaign on ‘disability rights’ (sic) plays into the hands of the government, but we understand that these divisions arise from conflicting perspectives and interests. Sayce and Friend are snugly sat in the tent happily assisting to create Cameron’s ‘Big Society’ and being handsomely rewarded in the process, but they’re badly mistaken if they believe organisations such as DPAC are impotently standing outside the tent hurling stones. Disability politics haven’t developed over the last forty years through just ‘throwing stones’, they include well researched arguments, theoretical and practical concepts and ‘unity in action between disabled people and we intend to bring all of these things into play to bring the tent crashing down around its occupants because only by doing this will disabled people’s interests be furthered. As part of the process we hope to empower the Disabled People’s Movement to reclaim what is rightfully theirs and put an end to the political magpies growing fat by living off other people’s labours

 Sayce made an appeal for dialogue with parts of the disability movement that have been critical of its relationship with the government. As we have shown elsewhere ‘dialogue’ occurs when you have something worth sharing and this moment in time it is hard to identify any meaningful purpose – other than afford credibility – in talking with DR UK. The last twelve months has seen DR UK make their own bed to lie in and when criticism has ruffled the blankets they have suggested that it’s all down to misunderstandings, wrong interpretations and ‘differing tactics’ – sorry, DPAC is far from convinced. Here’s the reasons why:

 Remploy 

 DNS quotes Phil Friend as saying: “I am still of the view that the long-term future for disabled people is not separate workplaces and at some point that was going to have to be considered.”  What kind of argument is that? DPAC too understands the historical role sheltered employment has played in maintaining disablism, but this ‘understanding’ can’t be place in a vacuum where we can draw up a wonderful abstract ‘disability equality wish list’ that has no bearing on the reality of disabled people’s lives. Disability rights aren’t simply ‘entitlements’ to engage in the activities currently afforded to non-disabled people; they are social demands within specific areas aimed at transforming the nature of existing social relations to accommodate the needs and interests of disabled people. We are talking about social change that benefits disabled people. DR UK’s collusion with DWP vis-à-vis writing the Remploy report cannot be viewed by any stretch of the imagination as championing ‘disability rights’.

 On the one hand we hear Friend say they “… had supported Sayce’s decision to write a report on disability employment programmes for the government, even though there was “a chance that her report would recommend closures of Remploy facilities and that would mean disabled people would be badly hit”’ and on the other, DNS reports:

  Sayce added: “I believe the government was going to close the Remploy factories anyway. I think I got commitments to a lot of things from the government. We have to be vigilant in ensuring they actually implement them.”

 And exactly what can DR UK do if DWP stick two fingers up? The DNS article gives us a clue:

 They both raised concerns about whether those commitments were being implemented. Friend said he was not yet sure there had been “vigorous enough efforts to support employees in turning Remploy factories into social enterprises”. 

 An article in The Guardian quoted Labour Party sources as saying only 31 of the 1,000 workers had found fresh employment! 

 Disability Action Alliance (DAA) 

 It is interesting that when news broke about the new alliance the DWP’s Disability Unit was establishing, the UK Disabled People’s Council (UKDPC) knew nothing about it. Was it poor communication, a misunderstanding or a cover up? DPAC only asks because Sayce says, in the DNS interview that the Disability Action Alliance ‘…. would not replace existing engagement between disabled people’s organisations (DPOs) and the government, and that its role would be to advise on “implementation” of government policy rather than suggesting new policies. Does this lead to UKDPC and other DPOs sleeping any easier in their beds at night; DPAC doesn’t think so!

 So why had confusion and concern been expressed over DAA? Firstly, there were mixed messages coming from both the government and DR UK regarding DAA’s function. It is now reported that: ‘ … DAA would focus on how existing policies could be improved at a local level, for example how DPOs could be more involved in the new health and wellbeing boards.’ This of course begs a whole series of questions about who is involved, the ownership and purpose of the agenda, not to mention its positioning vis-à-vis Cameron’s ‘Big Society’ agenda. Within the interview Sayce did make two very telling points in relation to ‘the market place’:  

 ‘She said: “If I thought it was to be advising on policy and supplanting the role of the disability sector being able to talk directly about policy with ministers, I would be very worried.”’ 

 Later she went onto say: ‘….no companies would be allowed to join “for commercial gain”, and added: “If Atos joined, I would have to resign from the alliance.”’  Note the use of the word, “I” here ….

 These comments are all the more bizarre because there was already something in place for this purpose called the Network of Networks (NoNs). This was a collection of some of the more radical user-led organisations with previous good standing in the ‘movement’- note not big disability charities and not private companies. These organisations wouldn’t have agreed to that. Instead, this was a group of small and medium sized Disabled Peoples Organisations  commissioned by the Office of Disability Issues (ODI), part of the DWP, precisely to avoid the problems of domination by large monolithic national organisations. What happened?

 Three commissions were agreed, after one commission and a meeting for a second, maybe the ODI realised that these DPOs weren’t as malleable as they would like them to be. Perhaps they realised that groups arguing for the current authentic experiences of disabled people were unhelpful to any public relations exercise they might choose. By June 2012, communication was strained to non-existent with the ODI, by the time the Alliance was formally announced, it was suggested that these DPOs simply join DAA: there were no further plans for the Network of Networks-of the DPOs involved, one has collapsed, and several are struggling to remain viable at a time when active user-led DPOs are needed more than ever. The remaining DPOs still await a considered reasoning of their ‘dumping’ from Ms McVey and the ODI.  

 This new alliance has begun its work, however, gaining access to what it is doing remains difficult to obtain. There are disabled people who are still questioning how the DWP selected DR UK to lead this project in the first place.

 Capita, Atos and DWP 

 Sayce had to explain another confusion that had arisen in relation to DR UK’s role in helping Capita secure one of three regional contracts to assess claimants of the new personal independence payment. Once again a quotation from the DNS interview says it all as far as DPAC is concerned.

 ‘Sayce admitted her organisation had been involved in discussions with Capita to explore ways of “improving disabled people’s rights”, but that its trustees had decided – after the tender document was submitted to the government – that they would restrict their involvement to providing “rights-based information” about PIP.’

 Yes, read it again, because the nugget lies at the heart of this quotation. It was the trustees, not Sayce, who had changed DR UK ‘role’. The worrying thing about DR UK is the tendency it has to employ the Janus approach – flip-flopping between engaging and distancing itself from DWP and the department’s associates. Earlier in the year there was an article published in which DR UK said it was the DWP rather than Atos who should be criticised for the WCA assessment process, yet elsewhere they’ve pointed fingers at Atos itself. There’s an old saying: it’s harder to hit a moving target!

DPAC believes it can’t be alone in questioning the role DR UK has in relation to the Coalition and its policies. Friend and Sayce at their EGM and in the DNS interview go to great pains to demonstrate the ‘reasonableness’ of their position within the tent and at the same time infer the ‘unreasonable’ and ‘impotent’ activities of those outside the tent. It is a difficult balancing act – facing two ways at once, especially trying to wear other people’s clothes at the same time!

What we have sought to do in this article is to respond to Phil Friend and Liz Sayce by providing our own context and take upon the current political scene. We are working in difficult times where it isn’t always obvious who our friends and enemies are. One thing that is certain for sure, DPAC is intent to stay well outside the tent, because ‘we aren’t all in it together’.

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 We want to make it clear that DDA (Disability Action Alliance) has no relationship to DAA Disability Awareness in Action – an organisation with long standing credibility focusing on disabled people’s rights at the international level

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 John Pring’s Disability News Service which DPAC writers have used for some of the source documents for this article can be subscribed to here 

You can also follow John on twitter: @johnpringdns

Nov 232012
 

It is with regret that we post this notice. We have been saddened by comments of a group of activists in Wales who have publically rejected the work, aims and objectives of the DPAC steering group, of DPAC’s members, supporters and co-founders as set out in the DPAC constitution. The issue began several months ago, with a more recent set of unacceptable actions which came about due to a joint statement between DPAC, PCS and Black Triangle (our sister group in Scotland). The joint statement has been rejected by the Welsh based group, as have the methods of DPAC working, the DPAC constitution and our long term aims and objectives in our fight against the cuts and the impacts on disabled people. DPAC campaigns from a social model perspective and in line with non-racist, non-sexist and non-homophobic principles. DPAC has an agreed set of aims and objectives within a constituted way of working to achieve our objectives and to achieve the rights set out in the DPAC Charter of Rights.

 As most of you know DPAC began in 2010. The steering group have worked tirelessly, along with other local DPAC groups, supporters and members in unity in successful direct actions and events, whilst co-working with a growing number of anti-cuts groups and other allies. DPAC’s actions have succeeded in raising the profile of the attacks against disabled people and have created a strong collective voice against the injustices we face. The steering group put in many hours after their various jobs and other commitments to help make this happen, and we will continue to do so. We will continue to build our already extensive DPAC networks to challenge the impacts of this Government on disabled people and others. We believe as we hope you do, that unity is vital in strengthening DPAC campaigns. The recent event with Inclusion London, ALLFIE, NCODP and DPAC in September raised the prospect of a UK Network working with unions, active user-led disabled peoples’ organisations, activists and academics. We all agree that we are stronger together by being united in our aims and methods. There is no place for fragmentation, or disunity, this does not mean there is no room for disagreement or respectful discussion, without which we agree we become weakened and risk becoming ineffectual.However, endless disregard for efforts on DPAC’s part are also ineffectual because they take time away from the wider aims of the work of DPAC and disabled people as a whole

 We have attempted to discuss disagreements and differences in the DPAC constitution agreed aims with some of the activists in Wales. It is regrettable that these discussions have floundered. It is the opinion of the elected steering group that we can progress no further. Some may be aware of the facebook posts which were critical of the DPAC steering group, members, local DPAC groups’ methods and DPAC co-founders. We have to add, that requests to the Welsh activists on an issue relating to talks with unions were ignored, damaging relationships and prospective DPAC campaigns.

 This week DPAC agreed to liaise with a third party who put themselves forward on DPAC Caerdydd’s behalf- a stance that was agreed by them and by the DPAC steering group.  The agreement was that we would create a space to discuss issues and would hold back from all public comment to try and achieve a mutual outcome so that we could work together. However, before this was underway the Welsh activists posted a press statement on their facebook page, again, stating their disagreement with the aims of DPAC , the elected steering group and the DPAC constitution. They announced the set up of  a DPAC Cymru, and  demanded that a revised joint DPAC, PCS, Black Triangle statement be issued owing to their ongoing belief that DPAC should target a particular set of low paid workers, many of whom are against the cuts and their impacts.

 It is our opinion that to characterise every trade union member or individual worker in specific sectors as the enemy is unhelpful and can only make the task of building unity amongst all those with an interest in opposing austerity policies more difficult. The DPAC steering group is talking to unions with the aim of joint working to aid this unity. As a result we have been accused of ‘giving in’ by the Welsh activists. This is far from the truth. However, we do believe in adopting the best strategy for the best outcomes. This cannot be done overnight.

 We are pleased that the group in Wales have had a meeting with Mark Serwotka that they felt was productive. However, we have been told that some people in that group were prepared to use tactics that would offer the Tory press an opportunity to issue statements which would have been incredibly damaging to the fight of disabled people. DPAC is no stranger to pushing the boundaries, but the tactics that were going to be employed would have endangered the very status of DPAC as a legal organisation, and put all the previous hard work of DPAC groups in doubt. We are grateful that this tactic was prevented.

 To clarify, the outcomes of the DPAC meeting in 2011: individual members and any local DPAC groups use the DPAC name under the terms of the agreed DPAC constitution. The elected steering group encourage self-organisation, and we have seen a growing number of local DPAC groups. We will not however agree with such groups or individuals using repeated verbal attacks or using inappropriate language directed towards any other DPAC members, supporters, allies or Steering Group members. We do not agree with our supporters and allies being referred to as “Marxist scum” or “murdering collaborators”

 We cannot accept that those who have repeatedly refused to work with the elected DPAC steering group when asked can continue to call themselves DPAC or use our logo which was produced under license and is copyrighted to DPAC co-founders and the elected steering group.

 Nor will the DPAC steering group be associated in any way with reckless and dangerous acts by any activists who would even consider using unreasonable tactics as part of a direct action against any prominent union leader.

 We do not accept that this is appropriate behaviour for anyone linked in any way to our name to even consider. This potentially unacceptable behaviour has brought DPAC Caerdydd/DPAC Cymru into total disrepute amongst both disability campaigners and mainstream anti-cuts groups.

 DPAC was founded upon the basis of opposing all forms of oppression and inequality and therefore the use of language and other actions which undermine DPAC’s stance and use the name of DPAC can only be regarded as completely unacceptable.

It has also been clear for some time that DPAC Caerdydd/DPAC Cymru neither share our values or concerns, appear unable to resolve issues in anything approaching shared responsibility or respectful discussion, nor do they appear to agree with the criteria under which the DPAC steering group and others are bound by the DPAC constitution. One final attempt was put to them again, this week to cease the use of the DPAC name without reference to the constitution. This was met with further contempt towards the co-founder who was attempting to ease the situation.

Regrettably, the steering group can see no reason why the Cardiff based activists would want to continue using our name other than to damage the cause that full members, local DPAC groups and our allies are in agreement with and share through the DPAC constitution and under the ownership of the DPAC name.

The DPAC steering group can no longer find any shared purpose in the group continuing to be part of the DPAC structure, using its name, publicity, or attempting to capitalise on the goodwill DPAC has taken time to build up with allies. As in the steering group’s remit and as stated in the DPAC constitution we renounce any association with DPAC Caerdydd/DPAC Cymru.

We advise in the strongest of terms that they set up a group that does not use the well known name of DPAC nor use the DPAC logo. We wish them success in their potential campaigns, while we continue with the important work of furthering effective DPAC campaigns, legal challenges, our work within the UK and Europe in continuing to bring the impacts on the rights of disabled people and the growing number of deaths and suicides resulting from this Governments complete disregard for disabled people lives, we will do this with proven allies.

All matters for DPAC local groups and members are set out on the DPAC web site under ‘about’ at www.dpac.uk.net

 

Oct 302012
 

We do not believe that any individual or group who claims to represent the disabled people’s protest movement should engage with DWP/Atos/Capita without insisting upon an end to the Work Capability Assessment (WCA) with immediate effect as a prerequisite to any discussion.

 We regard any such engagement with DWP/Atos /Capita without this insistence on the above as a prerequisite to be nothing less than collusion in policies and systems that have been irrefutably shown to be harmful and, in many cases, lethal to the sick and/or disabled person being ‘assessed’.

 The WCA has no empirical, scientific medical evidence-base and the process has never been risk assessed.

 There remains no feedback or reporting mechanism.

 The discharge of both a statutory and ethical duty of care – owed by professionals, citizens and public authorities – to others in a vulnerable situation depends upon the existence of a reporting mechanism whereby any potential or actual risk to the life and well-being of a patient or to those around them may be reported and adequately addressed.

 This is precisely why the entire British medical profession has demanded that WCA end ‘with immediate effect to be replaced by a rigorous and safe system whereby avoidable harm’ may be prevented.

 That the General Medical Council (GMC) continues to accredit Atos assessment centres with ‘approved medical environment’ status is an utter disgrace.

 The Work Capability Assessment has caused death, suicide, homelessness, and left people without income dependent on family and friends. The WCA also causes an increase in mental health issues and a worsening of impairments. The latest figures show 73 deaths and suicides per week amongst those subject to this brutal process.

 The WCA is based on the discredited UNUM manufactured bio-psychosocial model. The   Centre for Psychosocial & Disability Research at Cardiff University literature has provided the academic foundation for the increasingly notorious WCA administered by Atos Healthcare in the UK, and without it is unlikely that the WCA would exist in its present form. The volume of incriminating evidence against the WCA has grown phenomenally, as people with serious, incapacitating illnesses continue to be found ‘fit for work’.

 When Freud set out his vision of welfare reform for disabled people he used a number of references to back up the plans for reforms.  No less than 170 of these references came from a group of academics based at or connected to the Cardiff University Department:. This centre originally led by ex Chief medical Officer at the Department for Work and Pensions Sir Mansel Alyward was funded by Unum to the tune of 1.6 million pounds from 2004 to 2009 to add academic credibility to the bio-psychosocial model: a model used by Atos to identify that if someone can press a button they are ‘fit for work’ and ineligible for any disability support.

 The connection between the WCA and the Cardiff Centre are only too obvious. The latter seeks to locate the source of incapacity in the individual’s psyche/attitude, promoting a form of ‘positive thinking’ as being curative, while the WCA claims to focus on what sick/disabled people can do as an argument that they have even the merest work capacity. But there is a more important connection. The Centre’s funder, Unum Insurance, employed tactics of ‘disability denial’ in the U.S. to avoid paying out on legitimate health claims. And since founding the CPDR Unum have sought to promote their ‘Income Protection’ product, marketing it upon the fact that the British public can no longer rely upon the state to support them if they become sick or disabled. Are we really to believe this is a coincidence?

 For more see: http://blacktrianglecampaign.org/2012/09/14/private-firms-role-in-creation-of-disability-assessment-regime-black-triangles-letter-published-in-the-guardian/

 DPAC and BT want to state categorically:

 1. We reject all ideas that ‘tinkering’ with WCA descriptors will serve any positive purpose. We call for the complete removal of the WCA with immediate effect and we have remained unwavering and constant on that position.

 2. We reject the bio-psychosocial model as having any purpose but to cut state support and replace it with private insurance and other company profits.

 3.We work from the social model philosophy and this means a pan impairment approach with no hierarchy of ‘deserving’ and ‘undeserving’ groups or individuals; this is in complete contrast to this government, or any set of groups intent on taking us back to medical model terminologies or helpless victim approaches

 4. We will work with any group who we believe genuinely opposes the government’s attacks on disabled people. However we are seriously concerned with those organisations who believe that they can work with the government to lessen the effects of these attacks. We believe that there is no alternative to outright opposition to the government if we are to stop the impoverishment and destruction of the lives of millions of disabled people in the UK. We are particularly disturbed that some of the large disability charities seem willing to work with the government effectively giving cover to their attacks on disabled people. We call on all disability charities and other groups to immediately withdraw from any work that lends credibility to the government’s so called welfare reforms.

 5. We do not support in any shape or form what this government is doing to disabled people: we classify disabled people as those who have to endure the negative attitudes of others, and those disabled by the ways this so called society treats us as less deserving than non-disabled people. We support an assessment that truely establishes a person’s ability to assess their capability to work, not based on a tick box approach.  

 

 

 

 

 

 

 

 

 

 

 

 

 

Oct 062012
 

A successful conference held in London on the 27th September called for a new UK network to challenge the attacks on disability rights in the UK. The conference supported by DPAC, Inclusion London, ALLFIE, Norfolk Coalition of Disabled people and the Joseph Rowntree Trust brought together leading Disabled Peoples Organisations and leading disability activists.

Key speaker Jenny Morris said that the ‘disability movement’ was more vibrant than ever, and that this Government had launched a number of attacks on disabled people and their rights. However others suggested that there may not be a disability movement anymore, but pockets of activity. What was clear was that challenges by disabled people and disabled peoples’ organisations (DPOs) must increase. Speakers also raised issues of how ‘the movement’ could be more inclusive in the speakers ‘from the frontline’ slots.

DPAC was there to add commentary and information on what was happening to disabled people under the regime of Atos and the ESA processes as well as the everyday crisis disabled people were facing under this Government. The whole day was brilliantly co-chaired by Tracey Lazard ( CEO of Inclusion London ) and Tara Flood ( director of the Alliance of Inclusive Education) . Speakers included Jenny Morris, Andrew Lee, Eleanor Lisney, Chris Edwards, Debbie Jolly, Linda Burnip and Geraldine O’Halloran, yet, there was also plenty of time for discussion.

Catch up on conference and presentations with the livestream (with BSL)

Catch up on all presentations and discussions through live stream and see Stephen Lee Hodgkin’s brilliant time-line at http://www.inclusionlondon.co.uk/

Read the excellent John Pring’s ( Disability News Service) account of the day at

 http://www.thefedonline.org.uk/federation-news/item/1828-new-network-aims-to-unite-disability-movement.html

Another option to keep up with what’s happening and have a chance to dicuss your views is to tune into Make Yourself Heard on Tuesdays 2-4p.m with Merry Cross  www.Reading4u.co.uk 

Join up to the new UK network: be part of the increasing outcry on our injustices!

Send an email to mail@dpac.uk.net with subject line ‘UK Network’ to be kept in the loop on this exciting and much needed new network of DPOs and activists.

We can also put you in touch with any local DPAC groups in your area or help you set up your own local DPAC group. We now have 26 DPACs across the UK and along with our sister organisation Black Triangle in Scotland we have made sure that disabled peoples’ issues are vibrant and will continue to be-never again must we allow our ‘movement’ to get sleepy- join the challenge!

 

Sep 252012
 

The United Kingdom Disabled Peoples Council Response to the Fulfilling Potential Disability Strategy issued by the DWP.
The United Kingdom Disabled Peoples Council (UKDPC) initially had welcomed the long awaited publication of the Government Disability Strategy, Fulfilling Potential.

This important document would have guided the implementation of the UN Convention on the Rights of Persons with Disabilities and been a public declaration of intent to support disabled people to exercise full participation in every aspect of society.

UKDPC was surprised and disappointed to find that the action plan, Fulfilling Potential Next Steps, has set out the intention of creating a Disability Action Alliance, convened by Disability Rights UK, (DRUK). This alliance is apparently intended to be a partnership of ‘organisations from the voluntary, public and private sector who have expertise and influence’.

UKDPC is unable to support this action based on the following:

  • The contracting of DRUK to convene such a group was not obviously opened to expressions of interest or tendering by any other organisation. Alongside the appointment of the CEO to lead an employment review commissioned by Lord Freud without public tender, this places DRUK in a position of preferred supplier to the ODI.
  • The continued contracting of DRUK by the ODI and the convening of an unaccountable group could be construed as the creation of a Quango, which is against the principals of co-partnership and accountability.
  • This is a ‘top down’ structure that excludes disabled people from setting the agenda or defining the terms of reference. The creation of this alliance by the government is antagonistic to the principals of the CRPD which advocates the value of consulting and full involvement of disabled people.
  • Without clear terms of reference there is the possibility that the service providers or corporate employers represented would have a potential conflict of interest, eg if participating in government backed schemes such as Workfare or if being awarded contracts determined by changes in the benefits system.
  • The use of the name, Disability Action Alliance, gives rise to potential confusion with Disability Awareness in Action, a human rights based disabled peoples organisation that closed last year, with a well earned respect not just within the sector but also internationally.
  • As UKDPC considers the convening of the alliance as a flawed process then it follows that the function of such a group would similarly be flawed.
  • UKDPC wishes to state these concerns publically, and calls for:
  1. The process of contracting DRUK as the convenors be questioned and an open response be sought from government.
  2. The potential for forming a Quango be questioned and an open response from government.
  3.  Any proposed alliance be guided by disabled people with agreed terms of reference drawn up by the participants.
  4. Any further move to implement this alliance be suspended pending the questioning and satisfactory response to these concerns.

DPAC says….

We’d also like to add some further concerns as the inclusion of corporate partners and private for profit partners is not something DPAC endorses due to the activities of ATOS, UNUM and CAPITA being involved in actions through government partnerships and contracts that have clearly led to devastating outcomes for many disabled people. These outcomes have impacted on the core principles of independent living, dignity, respect and equality for disabled people throughout theUK.

We also feel that involving those who will profit from their exploitation of disabled people is against the intentions of the UNCRPD and the involvement of disabled people in self-determination of their lives and may lead to a conflict of interests with DRUK’s ability to carry out their functions.

Sep 092012
 

 

For printing purposes you can download -

Why the closure of the Independent Living Fund affects everyone in the UK (Word doc)
Why the closure of the Independent Living Fund affects everyone in the UK (pdf)

Sep 082012
 

No, really, I mean it. If I am forced to swallow one more dose of Paralympics hype syrup, I will throw up. With the Olympics, the shock and awe blast of nationalist triumphalist machismo was at least familiar – this is just the capitalist-spectacle-as-usual. But with the Paralympics we have seen the addition into this cocktail of a supremely powerful and toxic ingredient, the opportunity for liberals to feel good about themselves for supporting the underdog and ‘progress in the fight against prejudice’. It is this thick coating of syrup which has confused even radical disability rights advocates, and is making it almost impossible for critics to speak out, except about the blatantly obvious outrage of Atos as sponsors. But the truth is that, despite all the hopeful talk about how the Paralympics are going to revolutionise people’s ideas about disability, the ideas and values at the core of the Paralympics are the precise opposite of the values of disability liberation. (I write this as a disabled person, one who has undergone one of Atos’ medical assessments and been found wanting, and who is suffering financially as a consequence.)

But wait a minute, I hear you say, isn’t that a bit extreme, surely all the visibility and celebration of disabled people’s bodies is a good thing, at least it’s a step in the right direction? Sorry, I’m afraid not. It’s not just that the current epiphany of non-disabled people is shallow (how many of those enthusiastic millions will be attending the protests against Atos?). What is actually going on with the Paralympics is an intensification of the values that drive the oppression of disabled people. And there is actually no contradiction at all between Atos as administrators of assessments that rob disabled people of their benefits and Atos as sponsors of the Paralympics.

First, lets clear away some obvious dead wood. There is nothing useful to disabled people in being seen as inspirational for their heroic overcoming of their impairment rather than as pathetic disgusting objects of charity. As some have already pointed out, since the vast majority of disabled people will never become Paralympians, all this does is to set up again the traditional distinction between the deserving and undeserving poor. Equally obviously, this is the quintessential liberal narrative of the heroic individual, filled with (in the words of Tory Prime Minister David Cameron) ‘steely determination to succeed’. It has nothing whatsoever to do with a collective struggle for disabled people’s rights or the values of disability liberation. I don’t remember a wave of national euphoria about collective achievements of the disability rights movement.

Only slightly less obvious is that the deluge of what has now been dubbed ‘inspiration pornography’ is not about us: it’s composed largely of non-disabled people’s self-congratulation that they have overcome their bad feelings about disabled people and relief that they are no longer being asked to feel sorry for these poor creatures. The inspirational narrative makes them feel much better. The medical model again But the heart of the issue is this: this change of narrative is just the flip-side of the same coin, the medical model of disability, the rejection of which, in favour of a social model, has been the theoretical foundation of disability liberation for the last 30 years. While the medical model says that disability is caused by impairment, the social model insists that people are dis-abled by society that refuses to accommodate their needs (for a decent income, accessible transport, buildings etc). Medical model thinking is always focused on our individual impairments, and how we can overcome them.

In the past, the non-disabled people’s predominant feeling about this was despair and pity, expressed by wanting to help through charity; all that’s changed is that now they’re excited that it seems that impairments can be overcome after all. Can they not do better than go from one end to the other of this stupid construct? I am neither a hero nor a victim, just an ordinary person, as we all are. At the heart of the medical model is a value judgement that seems to be such a matter of common sense that it does not need examining; low functionality – bad, high functionality – good, and this is what is being celebrated at the Paralympics, (and, of course, in competitive sport in general). Here we are seeing the flip side of the medical model, a triumphalist ‘we can fix it with technology’ narrative that, in the age of high technology and biomedicine, has superseded the old designation of disabled people as ‘incurables’. Technocracy

The point is that the Paralympics don’t just reflect the familiar capitalist values of competitive sport, they also represent something just as deep and significant, the values of technology. The concept of functionality/performance/efficiency is one of the concepts that come from machines and engineering that have been the ruling concept of capitalist technocracy for the last 400 years. In economic theory, it is efficiency that leads to success in the marketplace. The medical model of disability springs directly from technocratic thinking. In capitalist technocracy, what matters is not ‘arbitrary’ or theoretical ideas (like religions or humanist principles) lacking a firm evidence base, but utility, ie. what works, what can be palpably felt and cashed out. ‘Facts! Give me facts, not fancies,’ declares Dickens’ Mr Gradgrind (Hard Times).

Thus Atos’ medical assessments are not about what illness/impairment you have, rather they are (supposedly) scientific assessments of the functionality of your body, what tasks it can and cannot do. It is perfectly logical within this technocratic way of thinking that people with terminal cancer can nonetheless be fit to work. This ruthlessly scientific way of thinking is, naturally, being implemented in the government’s planned Personal Independence Payments, replacing the Disability Living Allowance system that ‘arbitrarily’ accepts people with certain conditions as eligible for benefit payments.

In a world in which functionality rules, Atos as sponsors of the Paralympics makes perfect sense. And all the ‘radical’ talk of integrating the Olympics with the Paralympics, since the performance of Paralympians is approaching that of Olympians, is just another manifestation of technocratic thinking: in a world ruled by a linear scale of performance such ‘arbitrary’ distinctions are a form of discrimination, aren’t they? It is always the ironing out of ‘arbitrary’ anomalous barriers that is defined within liberal technocracy as progress. ‘Superhumans’?

Aug 142012
 

Like millions across the UK, I was inspired by the London 2012 Olympic Games. I decided I wanted to take family to the Paralympics to sample the once in a lifetime showcase of disabled sport in London.

I am a wheelchair user, with a four-year-old autistic son and a nineteen-month-old baby. Naturally we wanted to sit together and, particularly as it’s the Paralympics, I assumed there would be adequate provision for this to happen. I was stunned to hear that there was no way that this could happen as there is a policy that wheelchair users can only be accompanied by one other person.

I cannot believe that this event, designed to inspire a new generation of athletes, has a discriminatory ticketing policy. It’s essential that my husband sits with me as he helps me with things I need to do and clearly my kids can’t sit separately. Quite apart from these practical considerations, I want to share this special occasion with my family, but I’m being prevented from doing so just because I am in a wheelchair.

Please join my campaign to get the organisers of the Paralympics to change this ticketing policy for these and future Games – so every family may share the Paralympics together.

petition here

Jul 252012
 

Re-thinking disability equality policy and practice in a hostile climate’

 

Advance notice of a national event for the UK disabled people’s movement

 

When: Thursday 27 Sept 11am to 4.30pm

Where: Coin St Neighbourhood Centre, 108 Stamford Street South Bank, London SE1 9NH

Who is the event for: Places available for 80 representatives from disabled people’s organisations (DDPOs) and disabled activists from across the UK .

Aims of event:

1. ‘Take stock’ of the achievements and challenges
disability equality policy and practice has created over
last 15 years

2. To explore how we can best defend our achievements
and rights in a climate of austerity and free market/
anti Welfare state ideology.

3.     To identify areas of consensus that the movement can
mobilise around and take action on to influence the
political and policy agenda

 

Speakers include: Jenny Morris, author of Re-Thinking
Disability Policy published by the Joseph Rowntree Foundation

Booking details to follow soon. To register an interest in
attending email: info@inclusionlondon.co.uk

 

 

 Posted by at 13:47
Jul 152012
 

The Government has confirmed the closure by December of 27 Remploy factories, only days after workers at Remploy’s 54 factories balloted for industrial action with two 24-hour strikes planned for the 19th and 26th July. Phil Davies, national officer of the GMB union, said: “To close these factories that employ disabled people in the present economic climate is a sentence to life of unemployment and poverty. The strikes will go ahead on July 19 and 26 as planned and should be a rallying point giving for each local community, the opportunity to stand behind these disabled workers who will be facing the scrapheap.” DPAC encourages disabled people, our allies and our organisations to show support the strikes in any way possible and to show solidarity with the thousands of disabled workers facing the loss of their livelihoods.

Maria Miller, minister for disabled people, was heckled by Opposition MPs as she carried out the Secretary of State for Work and Pension’s dirty work in making the announcement to the House of Commons on Tuesday. The government’s justifications for the closures are flawed and inaccurate. Miller claimed that the loss-making sites could not be subsidised any longer and that the £320 million budget for disabled employment services could be spent more effectively, following recommendations from the Sayce Review that money from the disability employment budget should be reinvested into other schemes to help disabled people find work and she referred to support from disabled people’s organisations for the ending of segregated employment practices.

As was raised in the motion for the Opposition Day Debate on welfare and support for disabled people earlier this month, the Government has in fact ignored key aspects of the Sayce recommendations in terms of proper consultation with disabled Remploy workers and the establishment of an independent panel to consider the future of each factory. The figures used to prove that the factories are financially unsustainable have also been widely discredited: the figure for how much it costs to employ a single disabled worker is based on the amount it takes to fund the entire factory network including layers of unnecessary of overpaid management, their bonuses, and under-performing central posts filled largely by non-disabled workers and does not take into account income earned from provision of training placements, which although delivered through the factories has been used to generate income instead into Remploy Employment Services. Mark Holloway a worker at the Barking factory in east London said, “They say it costs £25,000 per disabled person to keep the jobs, but over 400 senior managers are on salaries of £40,000 to £60,000”.

Offers to find more cost effective solutions for the running of the factories by the unions and most recently by the Welsh Assembly have been turned down. A Welsh Government spokesman said: “When the UK Government made their closure announcement we asked them to devolve the Remploy budget and factories to the Welsh Government so that we could create our own sustainable future for this organisation. The Department for Work and Pensions has refused to consider this.”

Alternative uses for the disability employment budget include awarding substantial contracts to disabled people’s organisations to support individual Remploy workers following the loss of their jobs. 8 million will be made available for individualised packages of tailored support which will include a personal case worker with one-one-one sessions and access to a personal budget. 1.5 million is also available to disabled people’s organisation through a community support package aimed at supporting groups of Remploy workers through time-limited projects focused either on employment or community support. At face value these proposals could be taken as promoting disability inclusion with their emphasis on the principles of personalisation and support for disabled people’s organisations. In reality they will neither empower not improve inclusion for the disabled community.

At this time there are no jobs for anyone, not non-disabled people, not disabled people and not former Remploy workers, and especially not in the areas where the factories are largely based, thus targets for supporting the transition of individual workers into alternative mainstream employment are completely unrealistic.

The idea that the workers will benefit more from access to a support plan and personal budget than from continued employment in the skilled and salaried positions they currently hold is incredibly patronising and represents a step backwards in terms of equality and independence. It is insulting to claim that the factories and the wages of individual hard-working disabled people can no longer be afforded when millions of pounds can be simultaneously spent on help and support packages with little or no chance of success.

The overall aim associated with improving the life chances of disabled people has always been for us to be supported to lead ordinary lives. The question of segregation is not as cut and dried as supporters of the closures would have us believe as visits to the factories and time spent with the workers themselves reveals. The reality is that employment in the Remploy factories equates to an ordinary working class life. Government proposals for Help and Support initiatives to support individual disabled Remploy workers will benefit the organisations that are awarded the contracts to deliver the packages and fail to improve the employability of disabled people in general while robbing individual disabled workers of their livelihoods, replacing their ordinary lives with dependency on time-limited support without any future prospects.

The ideology of disability equality and inclusion does not justify the closure of the Remploy factories but it is discredited by the government’s exploitation and appropriation of the values of the disabled people’s rights movement. Whilst pursuing its agenda to smash the welfare state, with dire consequences for disabled people who depend on state support to meet our most basic human rights, the government is at the same time alienating ordinary disabled people from the principles of choice and control and personalisation for which our movement has fought so hard over the past few decades. Tools designed to empower disabled people such as personal budgets are becoming ever more widely associated with distrusted concepts such as privitisation and contract culture while being used to replace things that disabled people value such as in the case of the Remploy factories, self-respect, dignity and employment.

The list of the 36 factories that were announced in March to close were: Aberdare, Aberdeen, Abertillery, Acton, Ashington, Barking, Barrow, Birkenhead, Bolton, Bridgend, Bristol, Chesterfield, Cleator Moor, Croespenmaen, Edinburgh, Gateshead, Leeds, Leicester, Manchester, Merthyr Tydfil, Motherwell, Newcastle, North London, North Staffs, Oldham, Penzance, Pontefract, Poole, Preston, Southampton, Spennymoor, Springburn, Swansea, Wigan, Worksop and Wrexham .The nine factories to be subject to further consultation are: Aberdeen, Edinburgh, Springburn, Barrow, Bristol, Chesterfield, Poole, Bridgend, Croespenmaen.

If you would like to post messages of support for the Remploy workers we will ensure they reach workers on the picket-lines on Thursday.  To find out how you can support your local strikes please contact mail@dpac.uk.net.

 

 Posted by at 23:32
Jun 252012
 

Disability Support and Benefits was the subject of an Opposition Day Debate introduced by Shadow Secretary of State for Work and Pensions Liam Byrne on 21st June 2012. The Debate put the issue of the closure of Remploy factories announced by Government into the context of wider benefit and support cuts and highlighted the disproportionate level of cuts targeted at disabled people:  over the course of this Parliament £3.5 billion is being cut from disability benefit yet only £2.5 billion net is being taken from Britain’s bankers. Opposition MP’s called on Iain Duncan Smith to apologise or resign over disparaging remarks he made about Remploy workers but it was mainly Maria Miller, Minister for Disabled People, who responded on behalf of the Government rather than the Secretary of State as the Government continued its misappropriation of the language of the social model to justify its oppressive policies.  In the same week the Guardian published a leaked memo from Jobcentre Plus to operational staff warning about the risks of disabled claimants attempting suicide as a result of benefit losses. Although Labour lost the vote, the Condems were warned  by John McDonnell MP that the issue and disabled people are not going to go away.

Labour’s motion for the Opposition Day Debate stated a belief that “cuts to support for disabled people and carers pose a potential risk to their dignity and independence and will have wider social and economic costs”. He accused the Department for Work and Pensions of dropping the aim of achieving disability equality and expressed concern that taking the DLA from 500,000 disabled people and contributory employment and support allowance from 280,000 former workers will take vital financial support from families under pressure. In both the letter and the motion for the debate he cited the mismanaged closure of Remploy factories and noted the pressing need for continuing reform to the work capability assessment (WCA) to reduce the human cost of wrong decisions. Finally Byrne stated agreement “with the eight Carers’ Week charities on the importance of recognising the huge contribution made by the UK’s 6.4 million carers and the need to support carers to prevent caring responsibilities pushing them into ill-health, poverty and isolation”.

In the motion that Labour lost by 236 votes to 298 the Opposition called on Government to:

-          ensure welfare reform promotes work, independence, quality of life and opportunities for disabled people and their families;

-          restore the commitment to disability equality in the Department for Work and Pensions’ business plan;

-          conduct a full impact assessment of the combined effects of benefit and social care cuts on disabled people and carers;

-          to reform WCA descriptors as suggested by charities for mental health, fluctuating conditions and sensory impairment; and

-          re-run the consultation on the future of Remploy factories.

Liam Byrne opened the debate, giving figures to evidence how disabled people are being unfairly and disproportionately impacted by government policy. In n the debate he cited research showing how over the course of this Parliament disabled people in our country will pay more than Britain’s bankers, with disabled people in the final year of the Parliament paying 40% more than the banks. He went on to explain how Universal Credit will hit disabled people 30% harder than other people. He pointed to the unfairness of the arbitrary decision to cut Disability Living Allowance by 20% with an assessment designed to achieve that target rather than a fairer system of assessment first, and savings calculated after. Atos and the notorious Work Capability Assessments were criticised citing the figure of £50 million a year of tax-payers money being spent on an inefficient system where 40% of decisions are over-turned on appeal.  He stated that 1 billion has been cut from local budgets for social care since this Government came into power, meanwhile 1,000,000 unpaid carers have given up work or had to reduce their hours and four out of ten have fallen into debt.

Opposition MPs supported the motion expressing concerns about Atos in particular and citing examples from their own constituencies of the devastating impact of benefit losses and cuts on individual disabled people. Tom Greatrex referred to his difficulties in finding out information about the government’s contract with Atos which he has been told cannot be disclosed for commercial reasons. Sheila Gilmore MP gave examples of cases where individual disabled people currently in receipt of DLA would not be eligible for PIP and the impact this would have on them. Karen Buck MP described the situation in Westminster where her constituency is based, where one quarter of the 52 million savings the local authority are looking to make is coming from adult and social care. She said that any gains disabled people would make from having their Council tax frozen is more than outweighed by the amount they must now spend on travel after cuts to taxi-card.  Geraint Davies MP described government policy on disability as “asset stripping of the most vulnerable people in our society”; he said “it stinks”.

The Opposition took up the issue of the announced closure of 36 out of 54 Remploy factories following recommendations in the Sayce Review. Remploy workers are currently on a 90 day notice consultation period which ends on 25th June. Opposition MPs railed against what they described as a shambolic consultation on an impossible timetable where the rules had changed halfway through, where disabled workers had been bamboozled and where the whole process had been set against giving Remploy staff the chance to move onto creating new social enterprises. They called for a re-run of the whole consultation. The Condems attempted to use the segregation argument to support their current policy with the disabled Conservative MP Paul Maynard describing Remploy factories as “apartheid for the disabled”. He asked “Are the disabled community not full members of society too?” Opposition MPs in constituencies with Remploy factories were able to describe the skilled work that goes on in the factories and to challenge the perception of the factories as segregated workplaces. They were also able to point to the higher than average unemployment figures in those areas.

Byrne said “disabled people have the same right to a job as everyone else but at present the choice of where to work is being taken from many of them” and cited how the Government’s Work Programme is failing to meet its target for disabled people by 60%. He called on Government to:

-          honour the Sayce report for example in setting up independent panels to evaluate the expressions of interest

-          restart the 90 day consultation process

-          draw together extra work that could be available for the factories, for example under Article 19 of European regulations on procurement

-          a more flexible approach to how each and every factory is dealt with

-          a review of the subsidy available to the workers

In response to reports of Iain Duncan Smith’s comments that Remploy workers are “not doing any work at all. They are just making cups of coffee”, Byrne invited Smith to join him and the Sunday Express for a day working in one of the factories.

No acceptance to the invitation or apology to the workers was forthcoming from the Secretary of State. Miller defended the Government’s position explaining how the £320 specialist support budget is protected and that any money coming from Remploy will be reinvested in it. No one challenged how ineffectively this money will be spent under current Government plans, whereas at least through the Remploy factories disabled workers receive a wage. More could also have been made about the £25,000 given in the Sayce Review and widely cited by Condem MPs in the debate as the amount that it costs the State per worker employed in a Remploy factory as opposed to the average figure of £2,900 per person supported through Access to Work: this figure would be much lower if the inefficiencies and top heavy management structures of the current Remploy set up were reformed. The increasing restrictions on what Access to Work will fund, and its consequential irrelevance to being able to support many disabled people into work were also not raised.

John McDonnell MP concluded his contribution by warning the government about the consequences of continuing their current course. He said:

“Finally, the Government should not think that this issue or these people are going to go away because they are not: these people are mobilising. We now have a disability movement in this country of which we have not seen the equal before. Black Triangle occupied Atos offices in Scotland; members of DPAC—Disabled People Against Cuts—chained themselves in Trafalgar square. These people are not going to go away. They will be in our face—and rightly so. I will support them, including if Remploy workers opt to buy their factories.”

Nevertheless the vote was lost and none of the Opposition Day Debate demands will be implemented. George Hollingbery MP described the motion as “not so much something to be debated but a press release in search of an audience”. The timing conveniently coincided with the publication on the Guardian website of a memo from Paul Archer, head of Jobcentre Plus contact centres supporting ESA customers, sent to all staff in operations and stating that “The consequences of getting this wrong can have profound results” following the attempted suicide of one unsuccessful claimant. Just last week DPAC told a Labour Representation Committee meeting that disabled people have not forgotten that it was New Labour who introduced ESA, Work Capability Assessments, Atos and even Lord Freud. It is very easy to say what people want to hear when you are in Opposition but it will take more than words to eclipse the memory of how disabled people argued for years against the use of bio-psycho-social model approaches underpinning employment assessments without being heard by New Labour when they were in power.

 

 Posted by at 11:40
Jun 082012
 

The closure of the Remploy factories has ignited a wealth of media attention and strong feeling as well as differences of opinion between disabled people, and Disabled Peoples’ Organisations (DPOs) on the position of disabled Remploy factory workers. The now infamous Sayce report called for closure of the factories in the ironically titled: ‘Getting in, staying in and getting on: disability employment support fit for the future’. This was followed by a consultation exercise in July 2011 to which DPAC responded outlining the impact of the closure of the factories and urging that they remain open.

Since then, DPAC, DPOs, Unions, disabled workers, disabled and non-disabled people have been active on the proposed closures in a number of ways which have been publicised on the DPAC site. DPAC have invited Liz Sayce to comment, but she has not responded to our request.

Most recently the Sayce report has been accused of doing the Governments ‘dirty work’, as elitist and a part of the cuts agenda at the TUC Disabled Peoples’ conference. 

There was overwhelming support at the annual TUC Disabled Workers’ Conference for the campaign to fight the planned closure of the Remploy factories.

The government announced in March that 36 of the 54 remaining Remploy factories across the UK would close by the end of 2012, with the loss of more than 1,500 disabled people’s jobs, while there would be further consultation over the future of the other 18 factories.

The announcement was part of the government’s response to a consultation on last year’s review of employment support by Liz Sayce, chief executive of Disability Rights UK (DR UK).

Sayce called in her report for funds currently used to subsidise the factories to be ploughed into more personalised forms of employment support for disabled people, including the Access to Work (AtW) scheme.

But Mandy Hudson, from the National Union of Teachers, told the conference that the Sayce report had “gone about doing the government’s dirty work”.

And she criticised “the completely cavalier way that Liz Sayce’s report sets adrift a whole set of disabled workers”.

The disabled peer Lord [Colin] Low also criticised Sayce’s report, and said its “highly individualised approach… seems to smack of elitism”.

Read more of the article by John Pring including the Remploy protest outside the offices of DR UK by Remploy workers and UKUncut here  

 Opening up the debate

Since the government announced the closures, some DPOs have backed its plans, arguing that the move was one towards the inclusion of disabled people.

But Tracey Lazard, chief executive of Inclusion London, said:

This is a cut. It isn’t about inclusion. We shouldn’t let the government justify this in the name of inclusion.

She accepted that the disability movement has been divided on whether to support the closures, but she said:

What we need is a dialogue. This is us putting an alternative view forward which hopefully will get a debate going. That’s what we need. Read more

Letter to the Guardian

The publication of a letter against Remploy closures was published in both on-online and print versions of the Guardian on May 10. The letter was composed by Inclusion London, DPAC and unions. Many DPOs and disabled people signed in support of the Remploy workers. The letter was shortened and some names and DPOs were reduced due to space restrictions by the Guardian. This link  will take you to the letter with a link to the original letter’s wording. DPAC will be updating the names and DPOs that were left off the printed and online versions shortly. We asked Liz Sayce to comment, but she did not respond.

However, a response article to the letter was issued by DPO Breakthrough UK claiming that while they agreed with many aspects of our letter they could not join other DPOs in signing it and wanted to open up debate on the Remploy issue.

We agree with opening the debate, and provide a link to the thoughtful piece by disabled activist and comedian Laurence Clark published in the Independent: Remploy Closures: right in theory but where does it leave disabled employees?

Sean McGovern a former Remploy factory worker responded directly to the Breakthrough article

and Les Woodward a GMB convener and worker at the Swansea Remploy factory said of the Breakthrough article:

This article, unfortunately is typical of the “Politically Correct” brigades attitude to Supported Employment and the language they use to try and justify their positions…

Another unfortunate slant of this article is that it totally fails to take into account the effect on the workers themselves or indeed other disabled workers who given the present economic climate would give their eye teeth for a job any job. They would sell their soul for a job in Remploy that can provide skilled work, training and other support that employment in Remploy offers.

 I have said it many times and I will say it a lot more. No-one ever forced a gun to my head to work in Remploy, over the 28 years I have been employed by the Company, I have been free to leave at any time I wanted, just like any other worker in any other workplace.

 Of course whether or not I exercise that choice to leave is dependant not least on economic circumstances that I have found myself in and whether or not the alternative employment was viable in terms of remuneration or terms and conditions. No employment opportunities that can match those that I am on in Remploy have presented themselves as yet.

 No one would disagree with the aspirations of a fully inclusive society, and I for one would absolutely love to see the day when Remploy really was old fashioned and there would be no need for Remploy because we would have a fully inclusive society that caters for everyone. Unfortunately we live in a rather different world which is going further and further away from inclusion and equality of opportunity over the last 18 months or so rather than moving more towards inclusion and equal opportunity. The reason for this is that we are now governed by the rich for the rich and of the rich, while we get poorer and poorer.

 The ultimate shame in all this is that organisations such as the one who authored this article are wittingly or unwittingly collaborating with this Government in implementing cuts in the living standards of some of the very people they purport to support.

 Thanks a million to everyone that signed the letter, we really appreciate it and appreciate the support that you give us.

 Les

 We will provide more responses soon….

Previous pieces from DPAC and others

DPAC has always been transparent in its connections, actions and thoughts on the Remploy closures, which have been published on the DPAC web site, some of which we list here. We also include pieces by other groups

Remploy Closures: no segregated employment translates to unemployment for up to 2000 workers

DPAC Remploy Workers meeting London March 20th

Right to Work Pledges Support for Remploy workers

London meeting unites resistance to Remploy Closures

Furious workers hit out at Boss whose report led to Remploy factories getting the Axe

Demo for Remploy workers April 20th

Independent: Betrayed Disabled Workers protest against Remploy Closures

Fight the Remploy Closures

Remploy Public Meeting Thursday 26th April

Government accused of Hijacking Disability Equality Language to Justify Remploy Closures

The closure of Remploy factories is about cuts and cannot be justified by a misguided language of inclusion in a time when disabled people are facing the worse attacks on their inclusion, human rights and equality in UK history. Disabled people and DPOs need to support the Remploy workers rather than engaging in forms of ideological bullying that refuse to take into account the impacts on disabled peoples’ lives. Nor should they be so arrogant as to suggest that these workers shouldn’t have choice in where they chose to work. Less than 5% of Remploy workers in the last set of closures found alternative jobs, with some committing suicide-is this really something that we want to support for up to 2000 more disabled people under a flimsy Tory rhetoric of inclusion?

 

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