Feb 112015
 
Picture: Ian Dury. Caption: Ian Dury had it right when he sang What A Waste, says Mark Harrison.

Ian Dury had it right when he sang What A
Waste, says Mark Harrison.

In the words of Ian Drury – What a waste! I am referring to the exclusion of disabled people in society and the attitudes and behaviours of Government, both local and national, towards us. As a society we need to turn our approach to disability on its head.

This Government has initiated a poisonous discourse in order to justify targeting disabled people through austerity. By the 2015 election, more than £28bn in benefits and entitlements will have been taken away from disabled people. At the same time, disabled people are twice as likely to live in poverty as non-disabled people. In Austerity Britain, where the Prime Minister and Chancellor of the Exchequer continue to claim “We are all in this together”, disabled people will pay 9 times more towards reducing the budget deficit than the average citizen. Those who are severely disabled will pay nineteen times more.

We are not benefit scroungers or burdens, we are not too expensive or units of costs that we as a society cannot afford, we are not brave, courageous or ‘special needs’. We are human beings like everybody else. If you cut us we bleed. You call us names and bully us, we hurt. You pity us and stick us in the charity box, we behave like charity cases. You segregate us in separate institutions and we become institutionalised. You do everything for us and wrap us in cotton wool then we become dependent. You have low expectations of our abilities and you damage our growth and development.

Disabled people don’t want this; we just want to be treated equally. We don’t want to be labelled as ‘special needs’ and charity cases. We want to live in the mainstream like everyone else. We want the barriers to us leading equal lives removed. If you label us as charity cases then what happens when you lose interest and move on to the next ‘good cause’? Labels are for tins not disabled people!

So what is to be done to address this waste? It is our responsibility – all of us – to remove these barriers. The barriers are ‘man made’ so it is our responsibility to break them down and consign them to history together. Disabled people can’t do this by ourselves we need allies. We need non-disabled people to get along side us and not accept the apartheid lives many disabled people are forced to live. We need disabled and non-disabled to be passionate about disability equality just like we are about women’s, racial and sexuality equality.

Disabled people have enormous amounts to give if afforded the opportunity and responsibility. Let’s end this waste and call time on out of date 20th Century attitudes and behaviours. Together we can consign them to the dustbin of history where they belong. Let’s get passionate together about disability equality and removing those barriers, wherever they are. Our Government has signed and ratified the United Nations Convention on the Rights of Persons with Disabilities http://www.un.org/disabilities/

This provides a comprehensive road map for achieving disability equality – let’s implement it.

Mark Harrison

Mark Harrison is CEO of Equal Lives,
formerly known as the Norfolk Coalition of
Disabled People.

January 2015

Share This:

 Posted by at 22:00
Jan 112015
 

as you may have seen Mark Harper may have deliberately misled parliament and said that disabled people’s organisations have told him his government are right to close the independent Living Fund and devolve non-ring fenced funding to Local Authorities. Following DWPs response to an FOI we have now written to those disability charities it seems Mark Harper claims have supported this decision to ask them if they did agree with the government.

The charities concerned are DRUK,  Mencap, MIND, RNIB, Action on Hearing Loss, Leonard Cheshire Disability and SCOPE.

Many thanks to John Pring and his Disability News Service for also working on this issue.

http://disabilitynewsservice.com/2015/01/independent-living-fund-ministers-unbelievable-failure-prove-commons-boast/

Dear CEO,

A published statement in parliament made in December last year has left Mark Harper the minister for disabled people facing accusations that he misled parliament over the level of support for the government’s decision to close the Independent Living Fund (ILF).
Mark Harper told MPs that he had “talked to disability organisations about this matter, and they agree with the
government” that the ILF should be closed and non-ring-fenced funding passed instead to local authorities.

http://www.publications.parliament.uk/pa/cm201415/cmhansrd/cm141208/debtext/141208-0001.htm#1412082000005
Having now received a response to a Freedom of Information request about this matter the Minister for Disabled People’s Private Office has confirmed that the Minister does meet regularly with a large number of disability organisations including a regular monthly meeting with the Disability Charities Consortium – an informal coalition of seven disability charities; Action on Hearing Loss, Disability Rights UK, Leonard Cheshire Disability, Mencap, Mind, RNIB and Scope – and attendance at the Fulfilling Potential Forum.

We know that those attending the Fulfilling Potential Forum have not agreed with the government’s plans to close the ILF and refusal to ring-fence the money.

We also feel it is unlikely, but not impossible, that you as one of the CEOs of the Disability Charities Consortium have agreed with this stance but before we pursue this matter further we would like you to confirm to us whether you have in meetings with Mark Harper agreed with the government’s position that the ILF should be closed and non ring-fenced funding devolved to local authorities.

We have posted this on our website and will add your responses to us as and when we receive them.

Linda Burnip

Disabled People Against Cuts

Responses

Linda
Disability Rights UK has never  agreed with government to ILF closure.
We have not agreed with government on closure or transfer.

On ring-fencing we campaigned in 2014 on the lack of ring-fencing by many local authorities, after we did a Freedom of Information request to find out what local authorities were doing – this was on national media.

See our statement and these FoI  findings at: http://www.disabilityrightsuk.org/news/2014/august/most-councils-will-not-ringfence-ilf-resources

We will be doing a further Freedom of Information request shortly to sustain pressure

Best wishes

Liz

Dear Linda

I am currently chair of Disabilities Charities Consortium.

Disabilities Charities Consortium CEOs have met once with Mark Harper, on 14 October 2014. It was an introductory meeting at which we discussed the DCC’s priorities in the run-up to the general election and shared our joint policy platform (see attached document) and invited the Minister to outline his priorities up until May 2015.

There was a brief discussion about independent living at the meeting, which focused on social care funding and legislative reforms. The meeting did not include any discussion of the Independent Living Fund.

The Disabilities Charities Consortium does not have an agreed joint position on the ILF. Our positioning document (attached) calls for Government to reaffirm its commitment to independent living and put in place the mechanisms to deliver this. By the end of the next Parliament, all recipients of state-funded care must have the option to live independently, including being supported in their own home or in a supported living setting.

With regard to Action on Hearing Loss, we have not had any conversation with the Minister for Disabled People about the Independent Living Fund.

With best wishes

Paul

Paul Breckell
Chief Executive
Action on Hearing Loss

Dear Linda,

Thank you for your recent messages to Clare Pelham with regard the Independent Living Fund.

In addition to the clarification that I know has been sent on behalf of the DCC group, I can confirm that we have had two recent meetings with Mark Harper MP, the introductory meeting between the Minister and the CEOs of the Disability Charities Consortium on 14 October, and an individual meeting on 27 November. We did not discuss the ILF at either of these meetings. In addition, over the last year we have specifically called for the ILF to be retained.

Yours,

Andy Cole 

Director of Corporate Affairs
Leonard Cheshire Disability

Dear Linda,

Thank you for your email regarding the comment that the Minister for Disabled People made in Parliament in December 2014 about the Independent Living Fund.

Scope has held two meetings with Mark Harper as the Minister for Disabled People – the first in September 2014 and the second in January 2015.  The agenda of neither of these meetings included a specific item on the Independent Living Fund.

We have always been clear that our position on ILF is as set out below.

As you know, in our response to the Government’s 2012 consultation entitled ‘The Future of the Independent Living Fund’ (available here:https://www.gov.uk/government/consultations/the-future-of-the-independent-living-fund-ilf), Scope stated that ‘Whilst it may be reasonable to consider bringing the Independent Living Fund (ILF) into the mainstream care and support system at some point in the future, Scope is strongly opposed to closing the fund to existing users at this present time’ and that “the core issue of funding for all care and support services needs to be addressed before any potential consideration of closure of the ILF to existing users”.

Since then, Scope has been consistent and clear that we are very concerned about the closure of the Independent Living Fund (ILF) because it is likely to lead to fewer disabled people being able to live independently and because those basic conditions for any movement of the fund into the mainstream care system have not been met. Our most recent position statement on the closure of the Fund can be found here: http://www.scope.org.uk/Scope-responds-lawfulness-closure-Independent-Living-Fund.

The Disabilities Charities Consortium has met once with Mark Harper, on 14 October 2014. It was an introductory meeting at which we discussed the DCC’s priorities in the run-up to the general election and shared our joint policy platform and invited the Minister to outline his priorities up until May 2015.   There was a brief discussion about independent living at the meeting, which focused on social care funding and legislative reforms. The meeting did not include any discussion of the Independent Living Fund.

The Disabilities Charities Consortium does not have an agreed joint position on the ILF. Our positioning document calls for Government to reaffirm its commitment to independent living and put in place the mechanisms to deliver this. By the end of the next Parliament, all recipients of state-funded care must have the option to live independently, including being supported in their own home or in a supported living setting.

I hope this answers your query in full, and please do not hesitate to contact me again if you have any other questions.

Best wishes,

Richard Hawkes

SCOPE

Thank you for your email and giving us an opportunity to respond to what the government has said.

As you’ll see from the attached response to the original ILF consultation, which we submitted in October 2012, we called, amongst other things,  for a ring-fenced budget allocation, if the ILF were to be closed. We then set out the different developments we wanted to see across Wales and Northern Ireland, were the ILF to close, to ensure a proper funding settlement for the devolved administrations. We believe that the lack of ringfencing is a very serious issue, which the government has not recognised.

In particular, I would draw your attention to the following from our response:

“Mencap urges the Government to transfer the funding from the ILF to local authorities in the form of a ring fenced specific grant. Otherwise it would be highly likely that local authorities will use the ILF funding to meet other gaps in spending. Furthermore Mencap calls upon the Government to take urgent action to address the funding crisis within adult social care. ”

You may also know that we are a member of the Care and Support Alliance, along with over 70 other organisations, campaigning together for a significant increase in funding for social care.

As a member of the Disabilities Charities Consortium, we have met once with Mark Harper, on 14 October last year- our first meeting with him after he took up the new role. It was an introductory meeting at which we discussed the DCC’s priorities in the run-up to the general election and the Minister’s priorities up until May. There was a brief discussion about independent living at the meeting, which focussed on social care funding and the Care Act. The meeting did not include any discussion of the Independent Living Fund.

The Disabilities Charities Consortium, of which Mencap is a member, does not have an agreed joint position on the ILF. Our joint policy document, which we use to guide our work together, calls for Government to reaffirm its commitment to independent living and put in place the mechanisms to deliver this so that by the end of the next Parliament, all users of state-funded care services have the option to live independently, including being supported in their own home or in a supported living setting.

I hope this is helpful, and welcome you placing responses on your website, so disabled people and their families can see the position that we and other charities have taken.

Jan Tegelles

Mencap

 

 

 

Share This:

 Posted by at 18:05
Nov 262014
 

The Slow Progress On Disabled Peoples’ Rights

by Dominic McDevitt

There has been much said about the issue of Civil Rights for disabled people. Some from the current Coalition Administration between the Conservatives and Liberal Democrats have sought to infer that the Conservatives were somehow liberators of disabled people and that the Conservative Administration between 1992 and 1997 led the way on disability issues.

The reality is that the Campaign for full and enforceable Civil Rights for Disabled people has a long and turbulent history with many setbacks and disappointments and injustices done along the way. There is much evidence to demonstrate how disabled people have found ourselves “pushed to the back of the queue” when the equalities agenda has been addressed.

In many respects disabled people have at best been treated as an afterthought. The social stigmas around disability and disabled people in society have been deeply engrained and remain stubbornly present to this day.

The law has often been slow to react to issues in society and that is certainly the case when considering disability issues. The “low priority” afforded to disabled people can be seen from the weak and poorly enforced legislation that took the form of the Disabled Persons (Employment) Acts of 1944 and 1958. Following these Statues there was a voluntary register for Disabled People and a quota system established. This quota system was supposed to require employers of 20 or more people to employ a workforce of disabled people to the proportion of 3% of the total workforce.1This legislation lacked an effective enforcement mechanism, and the prejudice and hostility to disabled people in the workplace set the tone for many years and as a result was effectively rendered worthless .

It would seem that the attitude that disabled people were a ‘burden’ and a section of society to be addressed as a ‘problem’, rather than as a section of society with something to offer, and part of the community to be engaged with, was the prevailing one. The patronising and paternalistic attitude has unfortunately been a longstanding undercurrent in the UK and does seem to be resurgent since the arrival of austerity politics.

It is interesting to note that there were several attempts to introduce equality legislation for Disabled People but all of these were prevented from successfully completing the necessary Parliamentary stages to become law. Edwin Shorts and Claire de Than observe in their Book2

Between 1982 and 1994 there were seventeen attempts to reform the law in this area by introducing Bills most of which had cross party support, yet none of them became law. It was only in 1994 that the campaign reached such heights of popularity and publicity that legislation seemed inevitable, with Disabled people mounting protests such as sit ins… ….In 1994 the Government defeated the last of the attempts to legislate by Private Members’ Bill…and introduced a consultation document…”

It would be erroneous to contend that somehow the United Kingdom Government led the way in the field of Disability Rights Law, The United States of America acted considerably sooner and in fact it was their legislation which sought to open up a new frontier and value the contribution made by disabled citizens. The Americans with Disabilities Act (1990) was championed by Senator Edward M Kennedy3 and Senator Tom Harkin4 The Americans With Disabilities Act which was passed by the Senate towards the end of 1989 and signed into Law by the Republican President, George H.W Bush In July of 1990 built on America’s pervious Civil Rights legislation from the 1960’s . Senator Kennedy stated5

Today’s Action by the Senate marks an historic step in the long journey to complete the unfinished business of America and bring full civil rights and fair opportunity to all our citizens. In a sense this legislation is an emancipation proclamation……and America will be a better, fairer, and stronger nation because of it. 43 Million disabled men, women and children will benefit from our action. For too long, they have been invisible…denied opportunity, victimised by prejudice, excluded from everyday activities of society…….Mindless physical barriers and outdated social attitudes have made them second class citizens for too long. Now with this legislation, they will have a fair chance to participate in the Mainstream of American life. This is a proud day in the history of civil rights. It is difficult to believe that this Congress will enact a more far-reaching or more important bill.”

It could be contended that the American legislation embarrassed the Government of the day in the UK into action, after all it should not be forgotten that there had been other Equalities legislation passed in the United Kingdom, to address Race and Gender issues in the 1970’s onwards yet, it was not until the mid-nineties that disability was taken seriously. It is perhaps more accurate to describe the steps taken which led to the passage of the Disability Discrimination Act (1995) as grudgingly done.

Where the Americans blazed the trail the Political establishment in the UK merely followed. A clear example of this can be seen from the fact that the American Law introduced the notion of “Reasonable accommodation”, this is something we can see borrowed in the Disability Discrimination Act (1995) (DDA). The American law was considerably more comprehensive with a far bigger reach than the UK token measure, which had many glaring omissions.

The Disability Discrimination Act contained some massive omissions, such as failing to apply to education. It is worth observing that if a person is denied access to a good quality education, it will be significantly more difficult for that individual to succeed and progress in society. Regrettably it took until 2001 for Education to be properly included in Disability Discrimination legislation, this took the form of the Special Educational Needs and Disability Rights in Education Act (2001).

While there are those who would seek to portray the 1995 Act as being an adequate response to the needs and legitimate concerns of disabled people, this is far from the case, in reality it could even be contended that this legislation merely underscored the second-class citizenship imposed on disabled people. It was a weak piece of legislation that bore the hallmarks of tokenism rather than being a herald of new social change, valuing the contribution of disabled people. This legislation could perhaps be described as a rather half-hearted effort. This was because of the ‘built in’ weaknesses at the very heart of the Act some of these were as follows:-

  • The Act only applied to employers that employed 20 or more people. The key point here is that as has been observed above, the law merely required an employer to make “Reasonable adjustment”, why should any employer of any size need an exemption from Acting reasonably?6
  • The Disability Discrimination Act only addressed direct discrimination and created a situation where indirect discrimination could be justified
  • The Act established the “National Disability Council”, which was merely a talking shop, with no enforcement powers apparently based on the flawed contention that attitudinal changes to the deeply engrained prejudice and bigotry towards disabled people could be brought about merely by education of non-disabled people without the need to give disabled people a commission to assist in ensuring the law was taken seriously.

A key area where the 1995 legislation passed by the then Conservative Administration led by John Major, denied parity to disabled people as compared to other groups with Equality legislation on the Statute Book was the failure to provide for an adequate enforcement Commission like the ones which had been created to enforce laws on Race and Gender Discrimination. It is worth noting that the Legislation covering both Race and Gender had been in operation for around 20 years at the time of the Disability Discrimination Act (1995), this in itself serves as a demonstration of how far Disabled people had been left behind, the failure to include an enforcement Commission was a serious setback and one which was bitterly resented by many disabled people. The establishment of the Disability Rights Commission was a key achievement of the Blair Administration.7

In the Debate on the Disability Rights Commission Bill it was clear that there was a great degree of resentment about the fact that the previous Conservative Government had ignored the need for an enforcement mechanism.

Roger Berry, the then MP for Kingswood,8who himself had been a key Sponsor of the Civil Rights (Disabled Persons’) Bill, a Private Members’ Bill ‘talked out’ by the Government in 19949 observed10

One cannot forget entirely the fact that the previous Government were forced to introduce the Disability Discrimination Act in 1995 after years of doing everything imaginable-and even things that I thought were unimaginable to block that legislation… … The then Government established the National Disability Council……… The National Disability Council is the only Government agency that I can recall that campaigned for its own abolition almost from day one. It recognised that we needed a commission….Let no one pretend that we would today be debating the Third Reading of the Disability Rights Commission Bill without a Labour victory at the last general election. We are debating the Bill also because the Government have moved with great speed: they found the legislative time to introduce this legislation within…two years of taking office…”

The long awaited Disability Rights Commission opened to begin the serious task of its enforcement duties in April 2000.

The establishment of an enforcement Commission was far from the only area which needed urgent action one of the steps that was taken in December 1997 was the Establishment of a Disability Rights Taskforce. This body had the task of examining the gaps in protection of the rights of disabled people and making recommendations to the Government relating to changes in the law. 11 The Specific terms of reference in which the Taskforce operated were to:-

Consider how best to secure, comprehensive, enforceable civil rights for disabled people within the context of our wider society and to make recommendations on the role and functions of a Disability Rights Commission… … The Task Force will take full account of the costs as well as the benefits of any proposals, so far as quantifiable and practicable, and in particular ensure that its recommendations for a Disability Rights Commission achieve value for money for the taxpayer”12

The Taskforce was made up of a wide variety of representatives, some of whom were disabled people as well as representatives of Organisations with links to different types of impairment together with Employers organisations and those with links to the Trade Union Movement, representing Employees. The Taskforce final report entitled From Exclusion to Inclusion13 made over 150 recommendations for changes in almost all aspects of life the report made recommendations concerning:-

  • The definition of disability
  • Education
  • Employment
  • Access to Goods, Services and Premises
  • Travel
  • The Environment and Housing
  • Participation in Public Life
  • Local Government, Health and Social Services

It is incorrect to contend that the situation facing disabled people was adequately addressed by the weak legislation passed in 1995, as we have already seen, it lacked an effective enforcement mechanism, and in many areas of life in modern society, left disabled people with little or no protection. We must not forget these were in basic areas where others could take basic rights for granted. Indeed it could be contended that the slow pace of change was in itself an indication of the second-class status afforded to disabled people.

Another factor to bear in mind when considering these issues is the fact that the changes were often phased in so that Employers, Providers of goods and services etc, got time to ‘get used’ to the new obligations placed on them. While it could be contended that this was done so as not to “put off” those who would be affected, it could be contended that the negative ramification of the phased slow approach was the loss of impetus and perhaps, to some degree an inference that disabled people should apologise for seeking to assert their legitimate right to equality which may have sent out a mixed message, that somehow disabled people “didn’t want to put anyone to any trouble” or be a “nuisance” .

It was a flawed argument in the mid 1990’s to contend that the situation could be improved for disabled people simply by education alone with a minimal reliance on law. This seemed to be the view of those who opposed disabled people’s Civil Rights laws14. The danger resulting from such an approach is that the serious nature of the issues at stake can become portrayed as mere “political correctness” and this can do damage which resonates long into the future.

The other great barrier for disabled people has and is, the attitudinal one which holds disabled people back as a result of deeply ingrained prejudice and bigotry that has tainted the approach to disabled people and the issues affecting us for generations. Too often there is a culture of low expectation where disabled people are concerned and a lack of political will to address disability issues because disabled people have and to a large extent continue to be seen as needing a paternalistic and patronising approach where everything done to us, is for our own good . regrettably there has been a failure to acknowledge effectively that the attitudinal barriers weaken the effects of any legal change and alongside this, the simple, yet basic fact that disabled people have the same aspirations as anyone else, has been and still is too easily ignored.

Law alone will not soften the hard bigoted attitudes that often confront disabled people as we seek to assert our rightful place in society as equal citizens. Disabled Peoples Rights needed then, and still need now to be looked at from this perspective also This was an aspect which was not lost on the Disability Rights Taskforce there they observe15 that:-

We welcome the Government’s recognition of the weaknesses in the DDA and its…commitment to comprehensive and enforceable civil rights for disabled people……we felt it was essential attitudes towards disabled people were also changed if we are to make real progress. Changing attitudes should not be left to disability organisations or Government alone. It is a task all in society must share from teachers educating children about the value of diversity to businesses changing the attitudes of employees and customers…”

The then Government issued a formal response to the final report in a document entitled Towards inclusion – Civil Rights for Disabled people Government response to the Disability Rights Taskforce16 This document provided significant progress and eventually led to the Disability Discrimination Act (2005) getting to this point was a little drawn out as it was subject to a draft Bill, the explanation for such a move being the desire to get things right.

From this though, it is clear to see that the vast majority of the improvements in the recognition and enforcement of the Rights of Disabled people happened from the late 1990’s onwards and a significant piece of legislation to close the chasms in the 1995 Act came into effect 10 years after that Act.

Things moved on a stage further when there was recognition that people were encountering discrimination on more than one ground. Firstly there was the establishment of a single Equality commission and then the Equality Act (2010) which sought to codify all the Equality legislation into One Act.

It is also important not to underestimate the impact of the ratification of the United Nations Convention on the Rights of People with Disabilities (2007) while this does not seek to grant new rights it did however seek to make a statement about the basic Rights that Disabled people should have access to. The Handbook for Parliamentarians on the Convention17 states18

…The Convention on the Rights of Persons with Disabilities is the response

of the international community to the long history of discrimination, exclusion

and dehumanization of persons with disabilities. It is historic and

groundbreaking in many ways, being the fastest negotiated human rights treaty

ever and the first of the twenty-first century. The Convention is the result

of three years of negotiations involving civil society, Governments, national

human rights institutions and international organizations. After adopting

the Convention in the United Nations General Assembly in December 2006,

a record number of countries demonstrated their commitment to respecting

the rights of persons with disabilities by signing the Convention and Optional

Protocol when they opened for signature in March 2007.

The Convention ensures that the world’s largest minority enjoys the same

rights and opportunities as everyone else. It covers the many areas where

persons with disabilities have been discriminated against including access to

justice; participation in political and public life; education; employment; freedom

from torture, exploitation and violence, as well as freedom of movement.

Under the Optional Protocol, individuals of States parties to the Protocol who

allege violations of their rights, and who have exhausted national remedies,

can seek redress from an independent international body.

The Convention is long overdue. It is over 25 years since the 1981

International Year of Disabled Persons brought global attention to the issues

affecting persons with disabilities. …”

It was unfortunate that when the UK Government ratified the Convention in 2009, they made reservation from Article 24 with regard to maintaining segregation in education in certain circumstances, the Reservation stated

 Education – Convention Article 24 Clause 2 (a) and 2 (b)
The United Kingdom reserves the right for disabled children to be educated outside their local community where more appropriate education provision is available elsewhere. Nevertheless, parents of disabled children have the same opportunity as other parents to state a preference for the school at which they wish their child to be educated”
19.

Despite the Reservations made by the UK Government in relation to the United Nations Convention on the Rights of People with Disabilities (2007), its ratification did send out an important message about the progress that was and had been made in relation to the rights of disabled people. It is fair to say that in the UK, disabled people’s Rights advanced significantly during the period 1997-2010 before the Current Coalition took office. By contrast, since the Coalition took office, we have seen a situation develop where it is more difficult for disabled people to access their rights. While it is not the purpose of this document to set out the litany of attacks on the rights of disabled people, it is hoped that the reader will have gained an appreciation of the fact that Disabled people’s Rights made significant and steady progress which has now been significantly halted and worryingly, perhaps even dismantled.

Disabled People should not have to accept second-class citizenship. The simple reality is that disabled people have the same aspirations as anyone else. No Government, of whatever persuasion should ignore this fact or have difficulty accepting it. Regrettably however, history shows us that they have . What is needed is a commitment and the political will to ensure we do not get returned to the dark days of the past where the negative attitudes to disabled people set the agenda.

What we have seen is that Disabled People have always had a significant battle on our hands for the Rights others can take for granted. It is important that we fight to protect the gains that were slowly and painstakingly made and continue the fight to ensure that disabled people can take our rightful place as full equals in society.

October 2014

1 Often disabled People found themselves pushed into low skilled work and stereotypical roles left to disabled people might be something like Car-Park or Public Toilet Attendant Invariably low skilled or repetitive tasks.

2 Civil Liberties Legal Principles of individual freedom Published by Sweet and Maxwell ( London) (1998) 1st (edition) at p574

3 The then Senior Senator for Massachusetts who held a senior position on very significant United States Senate Committees, as the Youngest Brother of President John F. Kennedy and Attorney General, and later, Senator, Robert F Kennedy, He was a personality who carried significant weight in view of the legacy of the 1960’s and the historic significance of his late Brothers’ Administration (Senator Kennedy held the seat that had been held by his elder Brother who vacated it when he won the 1960 presidential Election and he served for 47 years until his death in August 2009)

4 Senator from Iowa

5 In a Press statement from his Senate Office Dated September 7th 1989.

6 This exemption was dropped gradually by the Labour Government from 20 first to 15 and then eventually abolished

7 The Disability Rights Commission Act was passed in 1999 and became operational in April 2000

8 Mr Berry served as MP for the Constituency of Kingswood between 1992 – 2010

9 Friday March 11th 1994

10 At Column 385 of House of Commons Official Report Parliamentary Debates (Hansard) Vol. 334 No.114 Disability Rights Commission Bill [Lords] (Wednesday 30th June 1999) (Published by HM Stationary Office)

11 The Disability Rights Taskforce was established in December 1997

12 At Paragraph 2 on pps 4-5 of Towards Inclusion the final Report of the Disability Rights Taskforce Published by the Department for Education and Employment London (December 1999)

13 Published by the Department for Education and Employment London (December 1999)

14 The author has in his possession, correspondence from a Conservative MP, for Leicestershire NW in 1994 that seeks to contend that the Bill for Civil Rights for Disabled People, while having noble intentions, would place to much of a cost on the economy and that the measures proposed in the alternative are a step forward.

15 At Paragraph 2 on p4 of Towards Inclusion the final Report of the Disability Rights Taskforce Published by the Department for Education and Employment London (December 1999)

16 Published by the Department for Education and Employment (London) (March 2001)

17 From Exclusion to Equality Realising the Rights of Persons With Disabilities Handbook for Parliamentarians on the Convention on the Rights of Persons with Disabilities and its optional Protocol Published by the United Nations (Geneva) (2007)

18 At page III of the forward

Share This:

 Posted by at 19:22
Oct 092014
 

You are invited to an open meeting on 23rd October 6pm to 8pm to find out more about the changes to Access to Work and how Deaf and disabled people and interpreters have been opposing these changes and how you can get involved.  

The meeting will be on:

·       23rd October 2014 – 6pm to 8pm

·       Venue: 336 Brixton Road, London SW9 7AA

·       BSL interpreters available – let us know if you have other access needs

·       Refreshments available.

For further details contact Ellen Clifford – Ellen.clifford@inclusionlondon.co.uk – please let Ellen know if you are coming.

Share This:

 Posted by at 18:08
Aug 092014
 

 

See video of the excellent John Kelly speaking on BBC news on #ILF August 7th

 

Share This:

Jul 202014
 

Rob prepared this statement for the recent Disability Rights UK conference (18th July) He was not allowed to give his statement- we publish it here so people can understand why all voices should be heard and listened to.

The Fight for Our Lives

 My name is Robert Punton I am a disabled person and an Independent Living Fund (ILF) recipient I come here today to oppose Disability Rights UK stance on the closing of the ILF.

I have been a disabled activist for over 30 years both in a paid and unpaid capacity.  The money I have received through ILF funding has in no small part enabled me to achieve this, I have employed the same two guys as my Personal Assistants Mike Orme and Darren Harrison for over 25 years and now I am employing their son Daryl Harrison-Orme in the same capacity.  If the closure goes ahead this puts our partnership (family) in serious jeopardy.

I make no bones about the fact that as a person with high support needs without this extra funding I would be languishing in a Scope home or one run by some other likeminded establishment.  In saying this I am not in anyway denigrating the lives of anyone living there but I much prefer my lifestyle and will fight to my last breathe to save it.  Make no mistake everyone using ILF is in the same boat and none of us want to sink.

I am a member of DPAC and Co Director in Community Navigator Services with Clenton Farquharson MBE and Jack Nicholas it is a Community Interest Company we all identify as disabled; we aim to build capacity within communities to allow them to participate within society to their fullest n need or want.  We all agree the closure of ILF will severely destroy the advances that disabled people that achieved in last 3 decades.

Disability Rights UK and Simon Stevens advocate that when they close ILF it will make it a level plain field when they pass on funds to local authorities and everyone will be treated equally, equality only works when you use the highest possible denominator, in other words no one wants to be treated like their neighbour if they are being treated badly.  The term we like to use now is fighting for social justice for all, hence wanting the best standard of living (in this case support plans) for everyone.

Simon Stevens and his supports say that the ILF has made users of their scheme elitists in their communities.  I can’t argue that this may be perceived in that light. However, I would argue this two-tier system in society cannot be blamed on the independent living fund or its users; it was the Conservative government who closed the ILF in 2010 under the guidance of Maria (Killer) Miller, and in doing so cut off thousands of possible or probable new users of ILF, Con-Demning them to the level of substandard support given by most Local Authorities.

This substandard support shows the priority most local governments, and therefore National Government accord to people requiring high support – they are more than willing to leaving wallowing in our own shit!

Anyone following the campaign to SAVE the ILF led by DPAC and Inclusion London must know that we the major goal is to reopen the ILF to all people who fit their criteria.  In doing so raising the standard of those people’s support.  We believe this is the only solution not butchering the funding  of the so called “lucky” ones it in all honesty won’t help anyone.

I would love to know where the advocates of this Don’t Save ILF think the monies to raise everyone’ standards of support will come from. The money release from ILF we be swallowed up by incompetent politicians looking after their powerful votes, not us the people they view as worth less. In Authorities like Birmingham who have amassed debts of £600m you think the money given up by ILF will not even make a drip in their ocean of debt.

While I disagree with Simon’s argument I support his right to voice his opinion.  However, it is an understatement to say I am flabbergasted to hear Disability Rights UK supports this argument.  I thought you represented disabled people not the establishment!

What really exasperates me though is that we never learn from our mistakes.  Once more we are doing the governments work for them fighting between ourselves while they sit back laughing at us.  We must stop fighting and work together to defeat the Con-Dem coalition

I will finish with message to the camp supporting shut ILF.  If you can’t support don’t fight us.

Today we fight for our lives, if we lose today there will be no Tomorrow just an eternity of marginalisation and isolation either trapped our own homes or corralled in Care(less) Homes run by unscrupulous privateers only interested in profit not people

 

Thank you for listening  I hope you hear me!

 

see also: http://dpac.uk.net/2014/07/disability-rights-uk-independent-living-or-new-visions-in-neo-liberalism/

 

Share This:

May 182014
 

Disabled people have long been oppressed by professionals saying they’re acting in our ‘best interests’ as an excuse to maintain their own interests. One of the latest is their ‘take’ on facilitated communication, used by many across the world to express their voice if they do not have speech. FC is the use of a keyboard on which the user types what they want to say see the great piece written by the brilliant Quiet Riot

FC device being used to buy ice cream

communication board in hand doing ordinary things like buying an ice cream. This does not require a “transition plan” or “a service delivery audit” Or a specialist training programme to create a team of ” Whippy Therapist”

Some claim FC is incorrect and shouldn’t be used. DPAC fundamentally disagrees and fully supports FC. But, of course keeping people voiceless is much more profitable for ‘professionals’, charities and other groups whose livelihoods and/or donations often depend on our oppression and on keeping us powerless and silent. This has been evident throughout disabled peoples’ history.

Imagine the loss of contracts, work they get to psycho – analyse us. The lesser need for speech therapists, researchers, psychologists, service providers and academics,and the drop in donations to pay top salaries to their charity directors if we develop our own challenging voices-of course its in their interests to deny any method that empowers our voice if it renders them obsolete!

All those denying our voices through which ever means we chose to express them are violating our human rights as set out in the United Nations Convention on the Rights of Disabled Persons (UNCRPD) which argues we have a right to use any method we chose for communication including FC and that this should be respected and accepted. But in the so called disability business (i.e those who make money from us and from maintaining our oppression) profit speaks louder than human rights.

Please see below to find out how this can happen when the vested interests of ‘professional power attempts to overturn human rights…….

The ISAAC attack on the Communication used by Increasing numbers of Disabled People.

The International Society of Augmentative and Alternative Communication (ISAAC) released a “Position Statement” on facilitated communication (FC) on 23rd April 2014 to its international membership.

Along with theposition statement on FC, ISAAC finally issued the identities of the ad hoc committee, who were selected to deliver the statement. The majority of the committee had publicly condemned FC prior to joining the committee. Therefore, the condemnation of FC following their deliberations was the expected outcome.

The ISAAC ad hoc committee used flawed methodologies, collected biased data to support an unexplained hypothesis and cited highly selective references to create a spurious position statement on FC.

However, most significantly the committee refused to consult with disabled people who use FC. ISAAC had identified just one disabled person who was a member of this committee but this person did not use FC.

The remainder of the committee were Speech Therapists, Researchers, Psychologists, and Academics. There was no representation of people using the communication they were writing a “position statement” on. Such oppressive practice has no place in an organisation established supposedly to support a persons right to communication.

Rosemary Crossley (the founder of FC) alongside many disabled people using FC, had made many, well received presentations to large audiences at ISAAC events. Now following the work of the ad hoc committee FC, as a method of communication for increasing numbers of disabled people, has been dismissed as invalid.

This outcome appears to have been contrived to protect the power of professionals and academics whilst ignoring the rights of communication for disabled people using FC .

ISAAC have not established committees to create position statements on other alternative means of communication accepted within ISAAC ; Picture Exchange Communication System.(PECS), Rapid Prompt Method (RPM). This is another indication of the deliberate attempt to isolate and devalue FC by a group of professionals and academics whose status and “expertise” is seriously challenged by the authentic voice of disabled people.

Such an approach by ISAAC management requires the subjugation and acquiescence of disabled people and is an abuse of professional power.

This abuse of power and from professionals is being seriously challenged by large numbers of disabled people and their allies. Similar resistance to protect academic vested interests was used to stop the introduction of sign language and Braille and it took major struggle from Deaf and Blind people with their allies to overcome such oppressive practice.

ISAAC and it’s associated chapters state that:

The International Society for Augmentative and Alternative Communication (ISAAC) works to improve the lives of children and adults who use AAC. (Augmentative and Alternative Communication). ISAACs vision is that AAC will be ! recognized, valued and used throughout the world. ISAACs mission is to promote the best possible communication for people with complex communication needs.

 By dismissing a valued means of communication ISAAC management are devaluing hundreds of their members and in doing so fundamentally undermine the ISAAC  mission statement.

This position statement has given a licence to “hate speech” about FC which cannot go unchallenged. The ISAAC committee have excluded a section of their own membership because they use FC. I invite members of ISAAC to demonstrate their protest at such an abuse of power and an abuse of thousands of disabled people around the world.

“The only thing necessary for the triumph of evil is for good men (and women) to do nothing” Edmund Burke.

 Adam Barrett

BA (Hons), PGCE, MEd, FC Trainer.

 

Share This:

May 162014
 

We are asking all local council candidates to pledge their support for developing inclusive education practice if elected onto the council.

For DPAC members not standing, we want your local council candidates to pledge their support for inclusive education practice.

We would like to have a photo of candidate with his or her party rosette, name, borough and ward and a sentence or two on why she or he is supporting ALLFIE’s manifesto demands.

We would like to aim for every candidate to offer his or her support for inclusion.

Please follow link: http://www.allfie.org.uk/pages/work/manifesto.html

Send photos to simone.aspis@allfie.org.uk

 

Share This:

May 012014
 

Save the Independent Living Fund
“Nursing Homes Stink, They’re Worse than You Think.
We’d Rather Go to Jail Than Die in a Nursing Home”

jailnursing home ilf

Join us to protest against the closure of ILF on Monday, May 12th 3pm-5pm outside DWP head quarters, Caxton House, Tothill Street, SW1H 9WA.

Nearest accessible tube –Westminster.

Click for Face Book Event Page

Bring things to make lots of noise. We have asked Mike Penning Minister for disabled people to join us but in case he doesn’t we need to make sure he knows we’re there.
————————————————————————————-
Dear Mike Penning,
We understand that you have stated publicly that you feel closure of the Independent Living Fund (ILF) will not have any adverse effect on the ability of disabled people to live independently in the community, to be able to access education or to continue to be employed.

Disabled people who are ILF recipients do not agree with your view and are gathering to voice their fears for their futures on May 12th from 3-5pm outside Caxton House.

They would very much appreciate the opportunity to speak to you about their very valid concerns so although we know you must be a very busy person we hope you can join us to hear what disabled people are saying.

In the meantime we are attaching a small selection of case studies for your attention.

On behalf of DPAC ILF recipient support group
————————————————————————————————————————————-
What is the Independent Living Fund?
The Independent Living Fund (ILF) is a ring-fenced pot of funding to provide funding to help 18,000 disabled people with high support needs live an independent life in the community rather than in residential care.

Closure of ILF: In March 2014 government decided to close the ILF in June 2015 in spite of a court ruling that said their previous decision to close ILF was in breach of the Equality Act. As usual DWP blatantly ignored the court.

Recommendations: Deaf and disabled people’s organisations and disabled people believe the ILF should be kept open and re-opened to new applicants for two key reasons:
– The ILF is a cost effective model of funding that successfully supports the independent living of those with the highest support needs.
– In stark contrast many Local Authorities only provide funding for basic a clean and feed model of care which ends independent living and inclusion in the community. This will leave many ILF users with a choice between inadequate care at home or an inactive, isolated life in a residential home.

 

 

 

 

 

Share This:

Apr 212014
 

DPAC would like to thank everyone for making last week’s (April 12 2014) National Conference such a huge success. There was a huge turnout with over 150 disabled activists from all over the UK including many new DPAC members attending, but just as important there were hundreds of members and supporters beyond the venue taking part through social media – watching the video live-stream, tweeting and sharing comments, views and sending messages of support. This was fantastic work by everyone and a truly inspiring collective effort.

DSC_1030 con

Here’s a brief outline of how it went.

Programme
The day was timetabled into sections beginning with practical reports and voting on policy motions. This was followed by two workshop sessions and then a closing session for everyone to feedback on the day. Four workshops were available to choose from in each Workshop session. Detailed reports on these will follow later.

John McDonnell MP, a longstanding friend and supporter of DPAC, gave a rousing opening speech to encourage everyone and remind us of the victories achieved so far. He congratulated disabled people and DPAC for fighting back, along with our sister organisation Black Triangle and WoW Petition initiators

As he finished he mentioned his own recent health condition which he said he felt brought him closer to our movement. Ellen reacted quickly by giving him a DPAC t-shirt and declaring him a full DPAC member to instant applause and cheers.

photo1jm tshirt

Finances
The Finance Report showed a healthy state of affairs for the time being thanks to individual donations, t-shirt and badge sales plus grants from the Edge Fund, the Network for Social Change, Trust for London  and the Andrew Wainwright Trust. More fund-raising is necessary going forward.

Motions
1. Government Honours
This proposed that any future candidates for the DPAC Steering Group could thwart the network and collective ethos of DPAC if they had received a national honour like an OBE or MBE. The ‘BE’ refers to the imperialist British Empire which is still celebrated despite what we know of the suffering and oppression this caused. The motion conversations also suggested that any media attention would be focused on those with honours and titles, rather than on the collective network ethos that DPAC ascribes to. The motion was put forward as a rejecting of this possibility and that of the honours system more generally. This was defeated.

2. Discrimination
This motion stated DPAC opposition to discrimination on the grounds of gender, sexuality, age, faith, disability, ethnicity or status. It also empowered the Steering Group to terminate the membership of anyone who supported a party which holds discriminatory policies, like UKIP. This motion passed based on an appeals process being put in place

3. Steering Group Size
This motion sought to expand the Steering Group from 8 members to 12 in order to respond to increased activity and maintain a broad, diverse and inclusive profile. This was passed.

Steering Group
There were 11 nominees for the Steering Group. Conference took a vote on whether to vote for accepting all 11 nominees, or vote for them one by one. Conference voted to accept all 11 nominees. The new steering group are currently reviewing co-opted places and will get back to the additional people that applied past the deadline as soon as possible

Steering Group:
Andy Greene
Bob Ellard
Ciara Doyle
Conan Doyle
Debbie Jolly
Eleanor Firman
Ellen Clifford
Linda Burnip
Paula Peters
Roger Lewis
Sabina Lahur

It was highlighted that the working groups are important in taking DPAC forward. The co-chair said she hoped those who did not stand for the Steering Group but were still interested in getting involved would join these as soon as possible.

Finally, a big thank you to the Conference Organising group and Workshop leaders who worked so hard to make this wonderful event a reality.

Links to videos from the day are here with thanks to Occupy for live streaming on the day to make the conference inclusive to all are here

Links to pictures can be found on DPAC flicker here
Thanks to Pete Riches, Szucs Gabriella and Rob Peters

The powerpoint on highlights of the last year can be found DPAC Report
A link to 2013 and some of the things DPAC did is here

See you on the streets!

DPAC www.dpac.uk.net
Twitter: Dis_ppl_protest
Also find us on Facebook with a group and open page under ‘Disabled People against Cuts’

contact: mail@dpac.uk.net

 

Share This:

Apr 162014
 

DPAC Press Release: Top Corrie stars Support Save ILF Campaign

For immediate release: 16 April 2014

Coronation Street stars support the ‘Save the Independent Living Fund’ Postcard Campaign.

Stars of Britain’s longest running soap joined disabled people in their campaign to Save the ILF(1).  The fund which provides support funding to almost 20 000 disabled people is to close in June next year the Government announced last month(2). See Facebook campaign page

save ILF LM
Stars such as Bev Callard, who plays Liz McDonald, former Red Dwarf actor Craig Charles who plays Lloyd Mullaney and Jack P Shepard who plays David Platt ans several other stars posed with oversized postcards produced by campaign organisers who include DPAC(3)  (Disabled People Against Cuts), GMCDP (4)(Greater Manchester Coalition of Disabled People), Inlusion London(5), Equal Lives(6) and others.

Despite having their original decision to close the fund over-turned at the Court of Appeal late last year(7), the Government has re-announced the closure following a new Equalities Analysis(8) – where officials admit levels of support cannot be maintained and some users may end up having to move into Residential Homes to have their support needs met. Funding will be devolved to Local Authorities for 1 year until 2016(9), but not ring fenced, meaning there is no guarantee the money will be spent providing support for users, or indeed any disability services at all.

DPAC member Paddy Murphy said ‘At an annual cost of just over £350m, this isn’t a hugely expensive fund to run. Users receive an average of just £337 a week to maintain their independence. The Government have admitted some will be forced to move into Residential homes, and others won’t get the level of support they receive now – some none at all. Local Authorities are seeing their budgets decimated, and their largest expenditure is on Adult Social Care, they simply won’t be able to afford to meet people’s needs. Disabled People will once again be forced to pay the highest price to fund the bailouts and rescue plans for the banks, which is the underlying justification for the cuts to public services.’

Editors Notes & contact details here mail@dpac.uk.net

END

1.Http://dpac.uk.net/2014/04/save-the-independent-living-fund-postcard-campaign-saveilf/

2. https://www.gov.uk/government/news/future-of-the-independent-living-fund

3. http://dpac.uk.net/

4.http://gmcdp.com/

5.http://www.inclusionlondon.co.uk/

6.http://www.equallives.org.uk/

7.http://www.equalityhumanrights.com/news/2013/november/commission-welcomes-court-of-appeal-decision-overturning-the-abolition-of-the-independent-living-fun/

8.https://www.gov.uk/government/publications/closure-of-the-independent-living-fund-equality-analysis

9.http://hadag.org.uk/second-closure-of-independent-living-fund-and-our-analysis-of-the-equality-analysis-by-dwp/

Share This:

Apr 092014
 

OCAP logo2DPAC_coloured_Logo_2__bigger

Reposted from the OCAP site with thanks

Austerity is Global – so is our resistance!

The Raise the Rates Campaign is excited to announce an Ontario-wide speaking tour this coming May 2014 of Ellen Clifford from Disabled People Against the Cuts (DPAC) UK.

Who is DPAC: The Cameron Government in the UK has implemented brutal cuts to programs for unemployed and disabled people. This includes a system called the Work Capability Assessment that has been used to deny benefits to thousands of people. Disabled People Against Cuts (DPAC) is an organization in the UK that has been at the forefront of challenging this situation. It has mobilized disabled people to fight back and formed alliances with community organizations and unions in resisting the austerity measures of the Cameron Government. The hated private company, Atos, that was carrying out the assessments of sick and disabled people has been forced to quit as a result of the powerful resistance DPAC and others have taken up.

Here in Ontario, we also face major attacks. Ontario Works (Welfare) and ODSP (Disability) rates are too low to enable people to pay their rent and eat properly. The Special Diet and Community Start Up have been slashed by the Ontario Liberal government. Under huge pressure from ongoing community action, the Liberals have promised not to merge OW and ODSP but the danger remains that they will bring in a UK style assessment system that would pose a huge threat to disabled people on ODSP. We need to understand what is happening elsewhere and how people are fighting back and winning against the attacks. Austerity is global – but so is our resistance.

From May 4-15th, Ellen Clifford from DPAC will be visiting Toronto, Kitchener, Sudbury, Kingston and Ottawa. She has been campaigning with the disabled people’s movement for 15 years and, since 2011, has sat on the National Steering Committee of DPAC. She is also a member of Unite the Union and works to build solidarity between workers in unions and those forced to live on social benefits.

Details of the tour, with times and places for meetings will be announced soon. Visit: raisetherates.ca for the full schedule & for more information call the Ontario Coalition Against Poverty at (416) 925-6939
Join the Raise the Rates Campaign Today!
Raise the Rates is a campaign to fight poverty by raising social assistance rates in Ontario. Jointly organized by the Ontario Coalition Against Poverty (OCAP), the Canadian Union of Public Employees (CUPE) Ontario, Sudbury Coalition Against Poverty (S-CAP), Kingston Coalition Against Poverty (K-CAP), Poverty Makes Us Sick Waterloo Region, Poverty Makes Us Sick Ottawa, OPSEU and other grassroots anti-poverty organizers and trade union allies from across Ontario. We are a growing movement united in fighting for:

• Raise Social Assistance Rates 55%: reverse the cuts, raise the rates!
• Restore Special Diet and Community Start-Up Benefits
• Stop the Attack on Disability Benefits
• Living wage for all: Raise the Minimum wage above poverty wages

 

For more see http://www.ocap.ca/node/1148

Visit: RaisetheRates.ca
https://www.facebook.com/RaiseTheRates
#RaisetheRates

 

Share This:

Apr 052014
 

Defend Independent Living Rights

 Stop the Closure of the Independent Living Fund

 Stop Disability Cuts

 The European Network on Independent Living is calling on disabled people’s organisations across Europe to mobilise together on or near Monday 5 May 2014 through events, lobbying and protests to oppose the deep and ongoing cuts affecting disability services and benefits.

 As disabled Independent Living Fund users, close family members and allies campaigning to defend independent living rights and stop the Fund’s closure, we urge disabled people’s organisations and the broader disability movement in England, Wales, Scotland and Northern Ireland to actively support this important day.

 Even small events and public activities will help to raise awareness and act as a focal point for those who want to work together to oppose cuts to services and benefits, including the proposed closure of the Independent Living Fund in fifteen months.

 It is vital that we also use this opportunity to reflect and learn from the mistakes associated with the public service reforms of a decade ago and the policies of ‘welfare reform’ and ‘personalisation’, including the use of ‘tick-box’ processes such as the Work Capability Assessment and the Resource Allocation Systems in social care to replace the individual and detailed assessment of need.

 The fear of a ‘demographic time-bomb’ associated with growing numbers of older disabled people in their eighties and nineties, creating an age imbalance in a static or falling population, has been used to justify the raising of the pension age and the way pensions are calculated, the erosion and privatisation of the ‘welfare state’, cuts to health and social care, changes to the benefits systems, and latterly ‘austerity’.

 But a growing population associated with increasing birth rates and the immigration of young adults, improved productivity and the greater fitness and activity levels of older people means the ‘demographic time-bomb’ in Britain may be a myth.

 The political climate that has undermined independent living and disability rights, and is using positive ideas such as ‘direct payments’ and ‘individualised funding’ as vehicles for shifting financial responsibility for meeting social care needs from the state to the individual needs to be challenged.

 We should no longer ignore the needs of the tens of thousands of children who are compelled by their family circumstances to be ‘young carers’ or the four hundred thousand disabled people confined to residential care or the way new concepts such as ‘prevention’, ‘reablement’ and ‘recovery’ are used to deny hundreds of thousands of disabled people the services they need.

 Those who argue disabled people have been ‘liberated’ and the welfare state is ‘broken’ are wrong, and only do so in pursuit of a very negative agenda associated with privatisation and greater inequality between the ‘haves’ and ‘have nots’. The same people have been passive while the Independent Living Fund has been dismissed as ‘anachronistic’ and ‘paternalistic’, and the experience and wishes of the Fund’s users and their families ignored.

 The disabled people’s movement across England, Wales, Scotland and Northern Ireland has a proud history of campaigning for independent living rights, but the gains of a generation ago for disabled people of working age are now under threat, as are the social opportunities pursued by many disabled people with complex conditions.

 The innovations of the ‘independent living movement’ such as the ‘personal assistance’ approach, specialised information and training, and the self-assessment of personal needs have been marginalised. While our organisations and projects have struggled financially since the millennium, tens of millions of pounds have flowed towards those who supported the development of ‘personalisation’ and its ‘evidence base’.

 But what is perhaps worst of all is many of those severely disabled people who have assumed the demanding responsibility of organising and managing their own complex personal assistance support, and do so fifty-two weeks a year without any financial rewards, are defined as being ‘economically inactive’.

 A jigsaw of social equality has been slowly constructed since the end of slavery and the emergence of the Chartists through the right to vote, women’s suffrage, universal healthcare, the legalisation of same-sex relationships, reproductive rights for women, equal pay legislation, and the outlawing of racism and homophobia.

 Limited advances in tackling disability and age discrimination are now being reversed, with the statutory right to an individual assessment of need by local councils being replaced. Local authorities are to be given the power to restrict a disabled person’s rights or freedom of action in pursuit of a legal duty to prevent or reduce a person’s need for social care services or personal assistance.

 Social equality for all will never be achieved unless the needs of disabled children and adults are acknowledged, assessed and met as of right, and those children and young people compelled into a caring role within their family because of a lack of social services support are freed from this and allowed to develop socially in the same way as their peers. But this would require an unparalleled redistribution of wealth, and the redrawing of our society’s social priorities.

 We believe disabled people of all ages should: have the right to live in the community free of the threat of segregation; be supported to stay healthy, safe and free of distress; and be freed from the harsh means-tests that are a feature of social care. Young disabled people in particular should be supported to pursue their dreams and aspirations free of the social barriers and discrimination that impeded many in the past. And because of the vital social role played by full-time family carers, they should be paid a social wage of at least fifty percent of the average wage of a skilled worker.

 Our movement has a collective responsibility to defend the gains we have made, and renew its commitment to campaign for full civil and human rights for all disabled people and their families.

 The ‘European Independent Living Day’ is an opportunity we should not waste.

 Abi Vanes, sister of ILF user

Aine Young, family of ILF user

Alma Lunt

Andy Greene, Islington Disabled People Against Cuts

Angela Mountstephens, sister and carer of an ILF user

Ann Walawalkar, parent of an ILF user

Anne Novis MBE

Anne Pridmore, ILF user and Director of ‘Being the Boss’

Anne Rae, Chair of Greater Manchester Coalition of Disabled People

Ann Rainey, ILF user

Anne Whitehurst, ILF user

Anita Bellows

Ashleigh Myatt, personal assistant

Bill Riddall, Centre for Independent Living Northern Ireland

Brian Glaves, family carer and husband of ILF user

Brian Hilton, ILF user

Bob Ellard, member of Disabled People Against Cuts

Brenda Bayliss, mother of an ILF user

Caroline Kelly

Caroline Martin, mother of an ILF user

Cath Gibson, ILF user

Charles Rainey, brother and carer of an ILF user

Christine Pickthall, ILF user

Christine Squires, ILF user

Christine Stringer, parent of an ILF user

Clare Palmer, mother of an ILF user

Colin Griffiths, ILF user

Colm Murphy, family of an ILF user

David Vanes, brother-in-law of ILF user

Debbie Domb, ILF user

Debbie Jolly, co-founder of Disabled People Against Cuts and Board member of the European Network on Independent Living

Dessie Allen, brother of ILF user

Dolores Hannigan, ILF user

Ellen Clifford, Disabled People Against Cuts

Emma Dakin, ILF user

Fred Bayliss, father of ILF user

Gabriel Pepper, ILF user

Helen Brown, personal assistant

Ian Atkinson, Gateshead Access Panel

Ian Kenny, ILF user

Jacqui Armston, personal assistant

James Corker, carer of ILF user

Jan Turner, Project Manager of ‘Being the Boss’

Jean Allen, mother of ILF user

Jean Glaves, ILF user

Jenny Hurst, ILF user

Joe Whittaker

John Aspinall, ILF user

John Buckley, parent of an ILF user

John Gilliland, father of ILF user

John Kelly, ILF user

Juliet Marlow, ILF user since 1991

Kieran Coffey, ILF user

Kieran McCarthy M.L.A. Strangford (Northern Ireland)

Kieran Walawalkar, ILF user

Kristine Cope

Laura McCrum, ILF user

Lianne Bayliss, ILF user

Linda Burnip, parent of an ILF user and co-founder of Disabled People Against Cuts

Lise Marron, ILF user

Mandy Dexter, personal assistant

Margaret Coffey, mother and carer of ILF user

Maria Nash, ILF user

Marie Thompson, sister of ILF user

Mark Williams, ILF user

Michael Bayliss, brother of ILF user

Michelle Allen, personal assistant

Mick Hutchins, ILF user

Neil Bayliss, brother of ILF user

Niqi Rainey, sister-in-law and carer of an ILF user

Paul Taylforth, step-father and carer of ILF user

Paula Peters, Disabled People Against Cuts

Peter Coffey, father and carer of ILF user

Peter Steele

Philomena McCrory, Centre for Independent Living Northern Ireland

Rahel Geffen – CEO Disability Action in Islington

Richard Parker, ILF user since 1991

Rob Punton, ILF user, Community Navigator Services and Disabled People Against Cuts

Robert Allen, ILF user

Ronnie Allen, brother of ILF user

Rosemary Kelly, ILF user

Rosemary O’Neill, CarerWatch

Roxanne Homayoun, ILF user

Sam Whalley

Sean O’Hare, ILF user

Sophie Partridge, ILF user

Stuart Bracking, ILF user

Sue Lovett, English Campaign for a Fair Society

Surojit Walawalkar, parent of an ILF user

Theresa Murphy, family of an ILF user

Tracey Lazard, Chief Executive of Inclusion London

Ursula Corker MBE, carer of ILF user

Valerie McCarthy, sister and carer of an ILF user

Vin West, parent and carer

Wendy Mortimer, personal assistant

 

Share This:

Mar 282014
 

DPAC supports the organisers of phase 2 of demos against ATOS and DWP.

Please see national Face book page for those organising in your area

https://www.facebook.com/ATOSNationalDemo?fref=ts

ATOS may have run away from the WCA contract, but they have plenty more contracts funded by public money from this unelected Government, including the disastrous PIP contract, in which people have been waiting for up to 10-12 months to obtain support. The DWP continue to oversee the round of cuts impacting on disabled people leaving them destitute or dead, sanctions are at an all time high.

Show them we’ve had enough-see you there…..

 

Share This:

Mar 282014
 

NAPO, a member of Justice Alliance are striking on the 31st March and 1st April. London Criminal Courts Solicitors Association and Justice Alliance will join their protest on 1 April 2014. The protest will take place outside Westminster at 2.15 and then march to the MoJ at 3.30 where a birthday card will be delivered to Chris Grayling and we will sing an ‘alternative’ rendition of Happy Birthday.

Happy birthday to you
You want justice for the few
No more justice for the many
Only justice for you

http://www.savelegalaid.co.uk/justicealliance

twitter: @justallianceuk

image justice alliance

Share This:

Mar 232014
 

Fit for Work or Survival of the Fittest? We need to Act Now to make our Voices Heard!

How can we restore dignity to disabled Welfare Benefits?

Market Hall, Assembly Rooms, Chesterfield Sat 29th 11am-4pm

Speakers

Richard Exell-TUC

Kate Green -MP Shadow minister of State for Equalities

Debbie Jolly -DPAC

Sue Marsh- Spartacus

Plus Dead Earnest Theatre Company

Food available

Ring or text Colin on 0787 387999

For info/access requirements

Unite Community membership

Welfare poster 2014

Share This:

Mar 142014
 

Jenny Sealey has agreed to become the spokesperson and face of the Stop Changes to Access to Work campaign.

cropped-cropped-atw1-e13845513016702

STOP CHANGES TO ACCESS TO WORK

#stopchanges2atw

Jenny is the Artistic Director of the Graeae Theatre and co-directed the London 2012 Paralympic Games Opening Ceremony. Having such a high profile job, and with the government still making reference to the Paralympic legacy, you might expect that she would have escaped the 30 hour guidance. This is not the case. Jenny, like every other Access to Work user, is having to fight for the support she needs to do her job.

 You can expect to see and hear a lot more from Jenny and our campaign very soon!


Video transcript:

I just want to talk about Access to Work without that provision, I couldn’t do my job, it’s fundamental to being Chief Executive and Artistic Director of Graeae Theatre. Access to Work is amazing, it’s so brilliant to have that, when we were doing the Paralympics, I had a team of 14 or 15 fully highly qualified interpreters working amongst, I think there were 10 deaf people, plus me, and I had my own core team of three. Without that skill, that knowledge and everything, we would never, ever have been able to do such a glorious Paralympics and for all those deaf people to have full and equal access.

What I need in my job is so varied, I go from rehearsals, to budget meetings, to board meetings, to networking, working in schools, it’s so varied so I’m very, very aware, I carefully pick which interpreters I need for which jobs and to be forced to have one interpreter, just in the office… That’s giving me just one voice, one interpretation, all the way through my working life… That’s not going to work for someone like me, and there’s many, many other deaf people that I know, that same style will not work for them either. My interpreters need to be cast, I suppose, in the same way that I cast my plays… So I have the right person for my budget meetings, you know, an interpreter that knows and understands finance… I have the right interpreter when I’m working in schools that understands the school environment… I want, I need, and have to be allowed choice, and that is the same for other deaf people. Also, we need to have fully qualified high spec interpreters, not, you know, a baby CSW… Because… That’s wrong, and that means we’re not getting full and equal access, so… please, please, we have to have choice, skill, and qualified interpreters… We need that.

For more see: http://stopchanges2atw.wordpress.com/2014/03/13/announcing-our-spokesperson-and-face-of-the-campaign/

Sign petition: https://you.38degrees.org.uk/petitions/stop-changes-to-access-to-work

 

 

 

Share This:

Mar 092014
 

The Government has announced that the Independent Living Fund will close on 30th June 2015 despite losing a Court of Appeal battle over this plan.

The Department for Work and Pensions originally planned to abolish the fund on 31 March 2015, but was forced to review the move after the Court of Appeal ruled that it had failed to comply with its legal duty to promote equality when making the decision.

The fund provides cash payments to top-up local authority social care support to around 18,500 severely disabled people so they can live more independently.

This fund is ESSENTIAL to disabled people up and down the country -a lifeline for many and must be re-opened to new applicants.

The fund closing after the next general election gives us a window of opportunity.
This petition is to Nick Clegg and David Cameron and it is calling on them to not close the Independent Living Fund. *As the PM does not have a public email address, this petition will send email to offices of IDS*

The fact that this fund will not end until after the next general election puts the onus on the Labour Party to either continue the fund or create an alternative fund that will be in place post-30th June 2015.

This petition calls for the Labour party to put forward their proposals for a replacement fund at the earliest possible time and have this proposal in their 2015 manifesto. We need to make them understand how important this support is to sections of the disabled community.

Sign -up, share and fill up IDS’ and other MPs inboxes so they cant ignore us at

http://aworkingclassman.com/govt-announces-closure-independent-living-fund-3/

 

Share This:

Feb 172014
 

Many disabled people feel that none of the main political parties represent us: while the Condems are inflicting an unprecedented level of attack on disabled people’s rights and entitlements, we remember that it was New Labour who introduced Atos and the Work Capability Assessment and, much as Labour now tries to distance itself from the Blair and Brown years,they are failing to take a strong stand in defence of the welfare state. 

As things become ever more desperate for disabled people pushed into poverty and destitution, with independent living under greater and greater threat, people are searching for a way to escape the onslaught. One thing that is certain in these uncertain times is that UKIP is not the answer.

UKIP have undeniably rattled and inflicted defeats on the government. They have also succeeded in capturing the imagination of substantial sections of the electorate, pulling support away from the Tories. They are however nothing but bad news for disabled people.

UKIP has clearly been linked to racist, homophobic and disabilist attitudes. In December 2013 a UKIP county council candidate was investigated for advocating compulsory abortion of foetuses with spina bifida and Down’s Syndrome. Examples of racist attitudes displayed by UKIP members are too widespread to be disregarded as anomalies. The rise of a party linked so clearly to anti-equalities and intolerance of diversity is not something disabled people can afford to celebrate even when it does weaken the Tories.  

There does appear to have been a concerted effort by UKIP to reach out to disabled people’s groups to offer support and thereby contribute to building its own base. This does not mean that UKIP supports the principles of disability equality and independent living. Its policies are reactive, opportunistic and bigoted. Its focus on immigration is divisive, having the effect of shifting all the main political parties to the right, while diverting attention from the real issues, from the dismantling of the welfare state, the privatisation of the NHS and the attack on workers’ rights. They might succeed in blocking votes for the Condems but they are also holding back the development of a wider political consciousness that would actively fight for disabled people’s rights.

After the raft of benefit changes and cuts brought in from 1st April 2013 we saw real media attention focusing on welfare and a growing awareness among members of the public not yet personally affected by the cuts about the impact on disabled people – in spite of the lies and misrepresentations from Iain Duncan Smith. The rise of UKIP and their success in the elections has distracted the focus away from government attacks on the poorest and disabled members of society. Increasingly the problems caused by austerity are being blamed on government being soft on immigration instead of holding all political parties to account for the consequences of neoliberalism. 

Reposted from May 2013

Please also see Unite against Fascism web http://uaf.org.uk/

Stand up to UKIP http://standuptoukip.org/

Unite against fascism 22nd March event across Europe http://uaf.org.uk/?attachment_id=3472

All of which DPAC fully support

Share This:

Jan 122014
 

In another year of imposed austerity when the Condems voted in a 5% tax cut for all earning over £ 150, 000, another year when unpaid tax by corporations was at £95bn per year, a year that MPs paid their heating bills with our money, while we couldn’t afford to heat our homes DPAC received more emails and realities of destroyed lives under imposed austerity.

We have reproduced some of these below with all identifying elements removed. We know they don’t fit into anything that Channel 4 or the BBC would like to show as part of the media demonization propa ganda – so we rely on you to share and publicise the real demons and real impact of austerity for those that should be supported with basic necessities like food….

 

“I just got this information from a nurse friend of mine last night…….a man who has diabetics type 2 and severe copd was brought in to hospital last night…..aged 61 his esa was stopped 8 weeks ago after being found fit 2 work….. it turns out he has been eating dried corn flakes for the last 5 weeks and has no electric on for 5 weeks….. he has had no heating or even able to boil a kettle for a hot drink…..he was not even able to use his nebulizer without electric…..the cold has got to his lungs and his blood sugars have gone dangerously low as type 2 diabetics must eat 3 times a day 2 keep blood sugars level……the nurses have chipped in to get him a bottle of squash and some fruit ….apparently this gentleman is very unwell at the moment and if the Tories and Lib- Dems find peoples hunger something to laugh at will they also find this funny? The sick will end up in hospital beds if they cant eat and stay warm……this mans situation is just a taste of what the future holds for thousands…….”

 

“Hi guys… You’ve probably had a few complaints already, so I really am sorry, but I need to unwind… Would it have caused that many issues for the DWP to release our disability payments a few days early, and in time for Xmas this year? I struggle to feed myself as it is, and my payment is due this Friday, the 27th. I have no food in my fridge, nor my freezer, and none in the cupboards…I honestly do not know what I’m gonna do for food between now and Friday… Is the Government that much out of touch with the people? I have no family to whom I can turn for help… What am I going to do? I remember a time when payments were made available early, to cover such occasions… What’s happened? I have osteoarthritis, which is aggravated by my hypertension, and one out two other complaints. I’m unable to walk far, and I have no transport. I thought I had a friend, until I found out just how self-centered he is…Now it’s clear that I’m on my own. Is there any wonder people withdraw and become isolated from society if this is what’s on offer? Sorry for bring the bearer of such bad ridings, and I sincerely hope you have a great time. Thank you for taking the time to read this email”.


Today at the foodbank in Bromley over 200 families received help to eat over Christmas. Many of their stories were horrendous. Three of them am going to share with you now.

The 89 year old man, in hospital with malnutrition, freezing in his home, kicked out of the PRUH for bed blocking, sent home to a freezing cold home, and no food. Tonight he has food, carers are going in, and someone is going to spend Christmas with him. He has money on the gas and electric, the local shops made sure of that with donations. It was heartbreaking to see him cry and thanking us all. He hasnt had a decent cup of tea at home for the last 4 weeks, he told us. I just wanted to do more to help, but now the agencies in the area have swung into action to help. 

Of the family with a three week old baby, her father sanctioned this morning for a year. The job centre said he came on the wrong day, he showed them the letter for the day to see them today, the JCP changed it and did not tell him. Then as they sanctioned him they wished him a Merry Christmas and smiled at him. He cried on my shoulder, his family affected by the bedroom tax, no food, nothing. So we applied for DHP for him, and for hardship payments, his baby called May has a few toys for Christmas and some clothes and baby milk, some of the shops in the area donated for them. 

Of the man homeless who walked four miles in the driving rain to the foodbank today. The local church clothed him, got him hot food, and he is in a shelter for the next few months”. 

 

“my benefits are sanctioned over Christmas for arriving to a work program 5 mins & 15 minutes late on 2 appointments I’ve no money until the 5th January is I cannot get a budgeting loan as they say i owe them to much already I have no food no electric no heating & 2 young children I’m in desperate need of some form of help is there anything I can do?”

 

“I have just been sanctioned.

Apparently i have not been doing enough to find a job … despite the fact i have a job to go to in January.

When I mentioned this, I was told … but what if for some reason, that job falls through.

WHAT IF ??? ……….. can you imagine the hoops we’d have to jump through if we put on the jobsearch record … what if i got a job by sending out cv’s to companies that don’t exist ….. yet”

 

“I really need some money because I have no food and i need to pay rent and I need gas and electric I cant get help nowhere and I have been to the food bank 4 time AND you can only go 3 time they cant help no more”

 

 

am a 23 year old male with A levels and a degree.

Unfortunately I have been forced to sign on. My “Advisor” has put me down for picking/packing work and cleaning.

Not only that, I was sanctioned for not attending a group session. The reason for this is because I met up with a guy who interviewed me for a job. I told the job centre the reason and told them to ring the guy. I even got him to write them a letter. The PROOF is there. How can they sanction money for trying to get a job??????? Its ridiculous. They cant make ONE phone call. Its all computerised and robotic in today’s world so we don’t even stand a chance.

Why are the sanctioning innocent people?

The UK is meant to have a system in place to help those in need. I’m not a bad person. I have saved lives, raised money for charities and even worked voluntarily. I am treated with disgust by our system. I can now see why a man set himself on fire outside of the Selly Oak job centre!

I have lost weight. I have depression. My motivation is zero. I am in a pit. As I write this, suicide is in the back of my mind because I feel helpless. The support is not there and it never will be until there is a major change. Would me taking my own life be enough to make the system change? Sadly I think it will. It always takes somebodys life to make people realise.

I have waited over 8 days for a hardship fund. I am living on old biscuits which I had from Christmas 2012″.

 

“Just thought I’d post this I found, then read it again, this is the “care” cancer sufferers get

Dear Mr Cameron,

Chester and Ellesmere Port Foodbank (Wednesday, 6 November 2013): ‘Jenny shared her story with one of our volunteers, and requested that we share it with you (everyone). We are privileged to do so.’

Jenny

Jenny came to the Chester and Ellesmere Port Foodbank last month, having been diagnosed with terminal Cancer. Her prognosis was three to six months. She already suffered with several chronic illnesses preventing her from working over the last two years and was in receipt of Disability Living Allowance. Having no family she was trying to “put her house in order”, ensuring all her bills were paid and saving up for her funeral. Her DLA was stopped; the reason given was that as she was not expected to survive the required time, she did not qualify for this benefit!

She came to the Foodbank not for herself but to bring a neighbour who had mental health issues and short term memory problems. He had been 30 minutes late for his appointment at the Benefit office (he had forgotten the time!) and had therefore been sanctioned. He had not eaten for three days. They were both given a meal and the time to talk of their problems and referred to the appropriate agencies for food vouchers and further support and help. Several weeks later Jenny came to the Foodbank to thank everyone for the help and food that was given and the kindness and support that was shown in their time of need. Jenny died three weeks later.

Where did Jenny fit in your striver/scrounger world, Mr Cameron? Evidently she did not fit at all, she was abandoned to die in poverty as a direct result of your government policies and in particular the welfare policies of Iain Duncan Smith”.

 

“I’ve got no food rent is due also got an appointment 20 miles away on Tuesday at a local hospital with atos to see if I can get PIP don’t get paid ESA until next Thursday already had budgeting loan 3 months ago suffer with recurrent depressive disorder care cluster 3 and severe anxiety”

“I am close to suicide due to the threat of eviction due to not being able to pay council tax or the bedroom tax!

I have applied for a DHP and been refused, I also have a carer overnight which I have to pay £400 per month for and they use one bedroom but this is not being counted,I also have a room that is used for medical equipment such as a scooter, wheelchair toilet rolls and paper towels and washing tablets as I have bowel problems due to cancer treatment, and also the bed is used as a massage bed due to alleviate my pain due to arthritis, and also facial masks and filters for my CPAP machine and a facial steamer which clears my air passage at night and massage equipment! This was scoffed at as being a room for medical use”

 

Don’t forget: Monday 13th Twitter Demo against Love Productions supporting Street Demo against #BenefitsStreet

 

 

 

 

 

 

 

Share This:

Dec 302013
 

As a grassroots campaign group DPAC wouldn’t exist without the dedication of all those who give their time to exposing what is happening: coming out on the streets, writing reports, researching, writing web content and policy critiques, heading up and being part of the growing number of local DPACs, organising events, engaging with social media and a whole set of other stuff that keeps DPAC vibrant, active and strong – its thanks to you that DPAC exists.  DPAC also want to thank the growing number of grassroots groups, individuals, academics, supporters, unions and organisations we’ve worked with in 2013.

2013 began with DPAC being awarded campaign of the year for our work in 2012 the year ends with DPAC being named as ‘people of the year’ by Owen Jones. In 2013 DPAC supported many local based protests on transport, the bedroom tax, ILF, local authority cuts and privatisation. We blocked roads protested against fuel poverty, fracking, the loss of legal aid, the bedroom tax, the closure of ILF and more. We set up Reclaiming our Futures 7 days of action joined by hundreds to celebrate the gains of the disabled peoples’ movement and to protest at the effects of imposed austerity on disabled people. DPAC launched the UK Disabled Peoples’ Manifesto which was followed by an EDM.We also published a number of reports.

There was cause to celebrate: the Government were ruled to have made the decision to close the Independent Living Fund unlawfully. Mental Health Resistance network succeeded in winning both case and appeal by the Government on the discrimination of the WCA. DPAC were approached by the UN prior to Raquel Rolnik’s UK visit to feed-in –her findings on the bedroom tax were devastating for the Government. DPAC led a whole range of events and join events on benefit justice to join together and fight the evils that this Government have imposed. While every protest, every campaign, every new network and every exposure of this Government is a success, we received growing numbers of emails from those left without money, food, homes and suffering cuts to their support.

In 2014 we must continue to fight and take all actions we can to change and expose the devastation this Government is causing to disabled people.

You can subscribe to receive all DPAC web posts or become a DPAC member at www.dpac.net.uk join us on twitter @Dis_PPL_Protest or on Facebook

 Key highlights of DPAC actions from 2013 below….

January

DPAC were awarded campaign of the year (2012) by Lipstick Socialists. They said: The fight back by disabled people as the Con/Dem Govt stripped some of the most ‘vulnerable’ sections of the community of their benefits. Their campaign against Atos (who made the decisions) during the Paralympics was inspiring and they have led the way in the fightback against the Con/Dem Govt. – See more at: http://dpac.uk.net/2013/01/#sthash.tEoKp2ds.dpuf

Co-op Campaign: stop the Atos Contract! Launched to publicise that Co-op were thinking of renewing a three year Atos contract for occupational health-Eventual outcome Co-op publically state they wouldn’t renew the contract with Atos.

DPAC call Vigil on Judicial Review initiated by Mental Health Resistance Network on WCA

Benefit Justice organising meeting by Tenants, DPAC unions and others held in London. We also live streamed London DPAC meeting so that everyone could access it. Annie Howard exposed Atos and DWP in relation to the data protection Act http://dpac.uk.net/2013/01/dwp-and-atos-make-a-mockery-of-the-data-protection-act/ Alan Shellbrooke a Tory MP said he wanted to introduce US style cards for those on benefits. We also linked with Fuel Poverty Action for the first of the 2013 actions on Fuel Poverty. We urged everyone to have their say on the Care Bill and to mention the ILF issues and posted advice on the Bedroom Tax and Discretionary Housing Payments and how to access them ahead of this inhuman misery. Condemn Love anti-Atos song by the excellent Kevin Robbins got it’s first airing

February

Victory for Daniel Roque Hall and Winvisable as Daniel is released from prison. Annie and Bob uncovered The Atos and DWP’s Land of make Believe http://dpac.uk.net/2013/02/atos-and-dwps-land-of-make-believe/

Owen Jones donates some of his prize from young writer of the year (donated by Lord Ashcroft) to DPAC http://dpac.uk.net/2013/02/thank-you-owen-but-we-wont-count-on-the-money-until-lord-ashcroft-puts-it-in-our-account/

We publicised the workfare cases The judgment on cases brought by Cait Reilly and Jamie Wilson mean that all but one of the Government’s workfare schemes (Mandatory Work Activity) that force unemployed people to work unpaid or lose benefits have been deemed unlawful. As we know IDS went off and rewrote the law- See more at: http://dpac.uk.net/2013/02/#sthash.jZLw1k5A.dpuf

We publicised an update on the Bedroom Tax, unfortunately not rewritten by IDS or anyone else. The post by Frank proved to be an unfortunate prediction of what was to come.

On ILF we produced a template letter for MPs and our collected FoIs on what Local authorities responses were to the ILF consultation http://dpac.uk.net/2013/02/what-local-authorities-said-about-the-closure-of-ilf/

Whitehall Traffic was brought to a standstill outside the Dept of Energy and Climate Change http://dpac.uk.net/2013/02/whitehall-road-block-brings-traffic-to-a-standstill-outside-dept-of-energy-climate-change/

Unum were finally nailed on driving Governments’ on welfare cuts http://dpac.uk.net/2013/02/unum-finally-nailed-through-bragging-on-driving-government-thinking/

DPAC and Inclusion London issued a statement on ILF while our National English DPOs remained silent http://dpac.uk.net/2013/02/defend-independent-living-save-the-independent-living-fund/

Annie Howard exposed the myths around the support group and ESA http://dpac.uk.net/2013/02/11-was-never-intended-to-be-the-number-of-people-in-the-support-group-dwp-big-blunder-annie-howard/

Atos and the treatment of mental health users and survivors was further exposed through You Tube, while  Kate Belgrave asked where were the MFCs at Atos – we’re still looking… http://dpac.uk.net/2013/02/harrowing-atos-assessment-and-where-are-the-mental-health-champions/

A letter from Ed Miliband was publicised after it was sent to us by a supporter http://dpac.uk.net/2013/02/letter-from-ed-miliband-on-atoswca-but-is-it-enough/

DPAC joined the campaign against the privatisation at Barnet and the great Crapita takeover http://dpac.uk.net/2013/02/urgent-stop-captia-10-years-plus-contract-for-council-services-in-barnet/

We launched a campaign against Colin Brewer who said that disabled children should be put down – he later resigned, but tried to put himself forward in a subsequent election process. http://dpac.uk.net/2013/02/urgent-stop-captia-10-years-plus-contract-for-council-services-in-barnet/

We published an email from one of our supporters which asked SCOPE what it was doing to save ILF , SCOPE suggested they get in touch with  DPAC http://dpac.uk.net/2013/02/scope-and-ilf/

March

We reposted the excellent Nick on ESA Process in Chaos and the Government cover-up http://dpac.uk.net/2013/03/dwps-esa-process-in-chaos/

As DPAC is on the working group of the European Network on Independent Living (ENIL)  against European austerity and its effect on disabled people we asked you to write to your MEPs to support  a push to get this debated in the European Parliament

March 13th was the court case on ILF in which 5 ILF users took the DWP to court against the proposed closure of ILF in 2015 We stepped up the campaign to publish stories of ILF users and those that would have benefited from ILF if it hadn’t been closed to new users in 2010 by Miller without even a dodgy consultation process. http://dpac.uk.net/independent-living-fund/

 The Benefit Justice Summit co-organised by DPAC in London brought together unions, grassroots groups, lawyers and tenants groups

We publicised news for parents of disabled children in the private rented sector and how they could claim money back from the DWP http://dpac.uk.net/2013/03/urgent-news-for-parents-of-disabled-children-renting-in-private-sector-money-back-from-dwp/

Beth Tichbourne was fined £745 plus costs for saying that David Cameron had ‘blood on his hands’ in an outrage that we should never forget  http://dpac.uk.net/2013/03/bethan-tichborn-cameron-has-blood-on-his-hands5503/

We publish an update on ILF court case with video http://dpac.uk.net/2013/03/ilf-court-case-update-and-implications/

 

DPAC and our sister org Black Triangle issue a joint statement on Labour and Bedroom tax http://dpac.uk.net/2013/03/joint-statement-and-petition-by-dpac-and-black-triangle-anti-defamation-campaign-in-defence-of-disability-rights-on-the-labour-party-campaign-against-the-bedroom-tax/

DWP and Government lies on ILF closure are exposed by DPAC in previously classified papers and memos from the DWP to ministers http://dpac.uk.net/2013/03/summary-of-secret-correspondence-from-the-dwp-to-mcvey-on-the-ilf-closure/

ESA appeals increase by 70% DPAC reposts Nick’s analysis http://dpac.uk.net/2013/03/more-chaos-esa-appeals-up-by-70/

Disability charities consistent apathy for disabled peoples’ lives, but not for their high salaries for directors was highlighted yet again http://dpac.uk.net/2013/03/how-the-big-disability-charities-let-down-disabled-people-again/

DPAC supported local protests and campaigns and also protests against staff cuts on railways and transport protests

April

April was the month that the condemns brought in more of their cuts for ordinary people the hated bedroom tax, the end of council tax support, the benefit cap and more http://dpac.uk.net/2013/04/the-nasty-party-go-on-the-offensive-against-disabled-people/

DPAC and UKUncut served eviction notices on our ‘favourite’ MPs –they had too many bedrooms –a complaint was put into You Tube who were told to remove the videos of IDS’ mansion http://dpac.uk.net/2013/04/eviction-notice-for-ids-and-oh-my-what-a-big-house-you-have/ http://dpac.uk.net/2013/04/ids-home-occupation-videos/

The TUC disabled workers refuse to join the Government sponsored Disability Action Alliance hosted by Disability Rights UK (DRUK) http://dpac.uk.net/2013/04/the-disability-action-alliance-or-whatever-happened-to-the-disability-strategy/

After news that the 5 ILF users that took the DWP to court had lost the case processes began to appeal the decision and still not a word of support from the big Disability charities or the aforementioned DRUK  http://dpac.uk.net/2013/04/claimants-to-appeal-high-court-decision-concerning-closure-of-the-independent-living-fund/

DPAC learns of a man who was arrested and tried in a secret court and jailed due to Atos –DPAC launches a campaign http://dpac.uk.net/2013/04/man-arrested-and-tried-in-a-secret-court-after-atos-assessment-support-needed-in-nottingham/

We also supported and co-organised a number of Benefit Justice summits across the country, supported more protests on transport and privatisation and continued to support the Barnet crisis

May

We supported CSRF in protesting at the |PCS conference and their refusal to refuse to implement benefit sanctions http://dpac.uk.net/2013/05/civil-service-rank-and-file-protest-at-pcs-conference/

We joined with False Economy in the search for the elusive Mental Function Champions at Atos , Dr Greg Wood  quits Atos and turns whistle blower http://dpac.uk.net/2013/05/where-are-the-mental-function-champions-at-atos-and-other-atos-type-things/

DPAC publishes info on Hardship payments and budgeting loans as we get more and more emails from people caught in the poverty and sanction traps set by the DWP –the post has been shared over 36,0000 times  http://dpac.uk.net/2013/05/hardship-paymentsbudgeting-loans-and-short-term-advances/

Black triangle meet with Scottish Government to discuss regulations regarding Atos and GPs http://dpac.uk.net/2013/05/esa-regulations-25-and-31-campaign-black-triangle-to-meet-with-scottish-parliament-welfare-reform-committee-chief-this-thursday/

The Mental Health Resistance Network win against Government on WCA , but spectra of legal aid cuts is raised too http://dpac.uk.net/2013/05/will-legal-victory-by-mhrn-against-atos-tests-be-our-last-we-need-to-act-now/

DPAC and the TUC disabled workers block Tottenham Court Road in an act of solidarity http://dpac.uk.net/2013/05/dpac-and-tuc-members-in-direct-action-of-solidarity/

DPAC publishes a critique of UKIP http://dpac.uk.net/2013/05/why-the-rise-of-ukip-is-dangerous-for-disabled-people/

DPAC’s own Ellen Clifford talks to real fare http://dpac.uk.net/2013/05/ellen-clifford-talks-to-real-fare-on-welfare-reform-and-protest/

June

June 1st marked a day of UK wide protests against the bedroom tax attended by DPAC

DPAC publishes stats by Nick that show the huge hike in sanctions under the Coalition  http://dpac.uk.net/2013/06/jsa-benefit-sanctions-sky-rocket-under-coalition/

DPAC holds a Birthday party protest for ILF http://dpac.uk.net/2013/06/press-release-independent-living-fund-birthday-protest/

The fight against the Bedroom tax continues with protests and new groups springing up and supporting each other across the country http://dpac.uk.net/2013/06/updates-the-fight-against-the-bedroom-tax/

DPAC publishes Lies, Damn IDS and Statistics  http://dpac.uk.net/2013/06/lies-damn-ids-and-statistics/

July

DPAC releases its program for 7 days of action, campaigns and protest: Reclaiming Our Futures http://dpac.uk.net/2013/07/reclaiming-our-futures-7-days-of-action/

DPAC joins protest at Downing Street against the bedroom tax

DPAC joins Justice Alliance to protest against cuts to legal aid

DPAC joins vigil for case against bedroom tax outside the Royal Courts of Justice

DPAC posts a list of advice and legal resources as emails from people in severe hardship escalates further http://dpac.uk.net/2013/07/advice-and-legal-resources/

Sisters of Frida go to Geneva to challenge the situation for disabled women at the UN http://dpac.uk.net/tag/sisters-of-frida/

We list the MPs that voted against a cumulative impact assessment http://dpac.uk.net/2013/07/for-fellow-extremists-everywhere-how-your-mp-voted-on-the-cumulative-impact-assessment/

Southwark DPAC challenge local politicians http://dpac.uk.net/2013/07/sdpac-challenge-local-politicians/

Government Issues ministerial statement on Atos http://dpac.uk.net/2013/07/government-issues-ministerial-statement-over-atos/

Bromley/Croydon DPAC join UKUncuts Stuff the Banks http://dpac.uk.net/2013/07/bromleycroydon-dpac-stuff-the-banks-update/

DPAC takes part in the anti-fracking protests at Balcombe where Caroline Lucas is arrested

August

Updates for Reclaiming Our Futures 7 days of Action http://dpac.uk.net/2013/08/reclaiming-our-futures-29th-aug-4th-sept-updates/

UK Disabled peoples’ Manifesto launched http://www.inclusionlondon.co.uk/UK%20Disabled%20peoples%20Reclaiming%20Our%20Futures%20Manifesto

John McDonnell puts forward an Early Day motion on the UK Disabled Peoples’ Manifesto put together by DPAC, Inclusion London, ALLFIE and Equal Lives Norfolk

Early Day Motion 483: Disabled People’s Manifesto
That this House warmly welcomes the launch of the UK Disabled People’s Manifesto, Reclaiming our Futures, developed by disabled people and their organisations across the UK, which sets out the shared vision of disabled people for an inclusive and equal society free from economic, social and cultural barriers; and urges all political parties represented in this House to engage in a constructive dialogue with the disabled people’s organisations promoting the manifesto with the aim of achieving its objectives. – See more at: http://dpac.uk.net/2013/09/early-day-motion-483-disabled-peoples-manifesto/#sthash.VWGXvrlo.dpuf

 

DPAC are asked by UN to assist Raquel Rolnik UN Special Rapporteur on Housing prior to her visit to the UK . The visit and her findings that the bedroom tax is regressive and unfair cause Tory ministers to say she should sort her own country out, she is a Marxist and produce other ridiculous statements in the right wing media http://dpac.uk.net/2013/09/un-investigator-recommends-for-bedroom-tax-to-be-scrapped-immediately/

DPAC block the front entrance of BBC for non reporting of the true situation in the UK under welfare cuts as part of the Reclaiming Our Futures 7 days of action http://www.katebelgrave.com/2013/09/disabled-people-against-cuts-block-front-entrance-of-bbc-portland-place/

DPAC host art exhibition and night of entertainment, plus a day debate on the continued relevance of the Social Model with Anne Rae, Colin Barnes and Debbie Jolly

The Brilliant Kate Belgrave writes on protests and Government Extremism, protests are held outside the DWP, the Department for Education, the Department of Energy, and the Department of Health before moving on to Parliament to host the launch of the UK Disabled People Manifesto: ‘reclaiming our Futures on the UK Freedom Drive day part of the Reclaiming Our Futures week of action

http://dpac.uk.net/2013/09/protests-and-government-extremism-kate-belgrave/

 

DPAC posts UK Freedom Drive film by Reel News http://dpac.uk.net/2013/09/uk-freedom-drive-the-film/

 

See also http://dpac.uk.net/2013/09/dpacrof-4th-september-highlights/

 

 

September

 

DPAC works with Just Fair on Independent Living Issues ahead of a planned visit by the UN special rapporteur on disability http://dpac.uk.net/2013/09/dpac-works-with-just-fair-on-independent-living-issues/

We publish George Berger from Sweden report on Atos, KPMG and the NHS http://dpac.uk.net/2013/09/atos-kpmg-and-the-nhs-be-afraid-be-very-afraid/

DPAC launches a new report on the WCA http://dpac.uk.net/2013/09/dpac-report-work-capability-assessment/

Two of the DPAC co-founders go to Strasbourg to join the European Network on Independent Living for the 6th ENIL Freedom Drive to march to the European Parliament and tackle MEPs. Debbie Jolly is elected to serve another term on the ENIL Board and presents on behalf of DPAC on protest and what is happening in the UK under imposed austerity http://www.enil.eu/campaigns/freedom-drive/

DPAC co-organises with Wow Petition for 10,000 Cuts Memorial for those that have died through Atos and in solidarity with all suffering under Cameron’s regime of imposed austerity http://dpac.uk.net/2013/09/10k-cuts-and-counting-video/ see also http://dpac.uk.net/2013/09/10000-cuts-and-counting-linda-burnip/

Dr Alison Wilde discusses the Paralympic Legacy http://dpac.uk.net/2013/09/paralympic-legacy-but-which-one/

DPAC supports the Ontario Coalition against Poverty who Government want to follow the lead of the UK in denying people their entitlements http://dpac.uk.net/2013/09/call-out-to-support-ontario-coalition-against-poverty/

October

IDS found misleading again http://dpac.uk.net/2013/10/ids-found-misleading-again/

DPAC and Black Triangle consider legal action against GPs who refuse to provide evidence for disabled people and those with long term health issues http://dpac.uk.net/2013/10/legal-action-has-your-gp-refused-to-provide-further-medial-evidence-for-your-dwp-appeal/

Anita Bellows write another stunning piece exposing the bedroom tax http://dpac.uk.net/2013/10/bedroom-tax-the-policy-which-could-only-succeed-if-it-failed-anita-bellows/

DPAC organises vigil for Mental Health Resistance WCA case appeal by DWP http://dpac.uk.net/2013/10/vigil-for-wca-case-support-mental-health-resistance-network-21st-october/

DPAC joins UKUncut to protest to save Justice

DPAC join in protests against staff cuts on London Tubes http://dpac.uk.net/2013/10/boriss-latest-attacks-against-accessibility-and-safety-on-london-transport/ also see http://dpac.uk.net/2013/10/unions-unite-with-campaigners-on-tube-and-station-cuts/

DPAC publicises Punishing Poverty a report on Sanctions by Manchester CAB http://dpac.uk.net/2013/10/sanctions-punishing-poverty-new-report-by-cab/

DPAC publishes info on mandatory reconsideration http://dpac.uk.net/2013/10/some-information-on-mandatory-reconsideration-in-force-from-october-28th-2013/

UK Disability history month kicks off http://dpac.uk.net/2013/10/uk-disability-history-month-launch-event/

November

ILF users win appeal, Government say they won’t fight decision –a success but we wait for the Government next moves http://dpac.uk.net/2013/11/gov-will-not-appeal-court-ruling-on-closure-of-ilf/

http://dpac.uk.net/2013/11/victory-for-independent-living-rights-in-english-appeal-court/

DPAC reposts the critique of the Henwood and Hudson report as some in the disability field still claim that ILF should close http://dpac.uk.net/2013/11/why-the-henwood-and-hudson-report-failed-in-justifying-the-closure-of-the-independent-living-fund/

DPAC ask members and supporters to write to Penning on ILF http://dpac.uk.net/2013/11/write-a-message-to-penning/

Anita Bellows asks why Litchfield as ‘independent’ assessor of the WCA when he was involved in its design http://dpac.uk.net/2013/11/dwp-tactics-ask-litchfield-designer-of-the-wca-to-review-it-anita-bellows/

DPAC publishes info on fuel poverty as we receive more emails from people without heating or electricity due to sanctions and welfare cuts http://dpac.uk.net/2013/11/fuel-poverty/

Independent Living rights News is published on DPAC http://dpac.uk.net/2013/11/independent-living-rights-news-17-november-2013/

http://dpac.uk.net/2013/11/independent-living-rights-news-edition-2/

Paddy Murphy writes on the apparent idiocy of DECC http://dpac.uk.net/2013/11/disabled-people-and-fuel-poverty-what-does-decc-know-anyway/

DPAC attends the bedroom tax lobby at Parliament http://dpac.uk.net/2013/11/report-on-the-bedroom-tax-lobby-meeting-westminster-tuesday-12th-november-2013/

DPAC , Fuel Poverty Action and the London Pensioners are joined by hundreds on the streets to protest at unacceptable fuel poverty and deaths while the energy companies continue to make huge profits http://dpac.uk.net/2013/11/hundreds-protest-at-big-six-energy-companies-over-fuel-poverty-deaths/

http://dpac.uk.net/2013/11/npower-protest-against-31000-fuel-poverty-deaths-this-year/

DPAC supports ALLFIE’s campaign on no return to segregated education http://dpac.uk.net/2013/11/no-return-to-segregrated-education-please-sign/

DPAC and Inclusion London hear heartbreaking testimonies from disabled people affected by the cuts. We send them to the special rapporteur on disability.

DPAC and Inclusion London hold an Emergency  lobby at Parliament on Independent living to launch the DPAC report on Independent Living http://dpac.uk.net/2013/11/independent-living-and-the-cumulative-impact-of-cuts-from-the-streets-to-the-commons/

Mary Laver and ILF user film on life without ILF is posted http://dpac.uk.net/2013/11/an-important-request-on-ilf-from-mary-laver/

The Disability Crime Network write to the attorney General on disability hate crimes  http://dpac.uk.net/2013/11/disability-hate-crime-network-letter-to-attorney-general/

December

Anne Novis writes on hate crime http://dpac.uk.net/2013/12/a-life-less-valid-when-is-a-hate-crime-not-a-hate-crime-by-anne-novis-mbe/

Belgium vote yes on euthanasia for minors now accepted as law http://dpac.uk.net/2013/12/belgium-vote-yes-on-euthanasia-for-minors/

DPAC urges members and supporters to join Boycott Workfare in online action against workfare http://dpac.uk.net/2013/12/take-online-action-against-the-workfare-conference/

We publicise Habinteg’s report on the effect of the bedroom tax on independent living  http://dpac.uk.net/2013/12/what-price-independent-lives-a-new-report-on-bedroom-tax/

Government lose appeal against decision that WCA discrimates against those with mental health issues.  The Mental Health Resistance Network (MHRN) who instigated the case against the WCA celebrate another victory. MHRN a grassroots group were later joined by the charities, but without MHRN the case would not have got to the courts. http://dpac.uk.net/2013/12/victory-against-wca/

DPAC joins Boycott Workfare in targeting companies replacing paid work with workfare http://dpac.uk.net/2013/12/target-the-companies-replacing-paid-work-with-workfare/

DPAC support ALLFIE’s call for action http://dpac.uk.net/2013/12/educate-dont-segregate-allfies-call-for-action-on-the-10th-december-1pm/

We publicise Equal Lives’ video on how the cuts effect at the local level http://dpac.uk.net/2013/12/our-lives-equal-lives-norfolk-and-the-cuts/

DPAC posts video by Colin Barnes on the importance of the social model by UCU http://dpac.uk.net/2013/12/interview-with-colin-barnes-what-are-the-origins-of-the-social-model-of-disability-and-why-is-it-so-important-to-equal-rights-campaigners/

DPAC attends open meeting with Mike Penning http://dpac.uk.net/2013/12/feedback-from-todays-meeting-with-mike-penning/

DPAC publicises the case of Anthony  Kletzander’s  treatment in Ireland at the hands of ‘professionals’ as he is denied basic rights http://dpac.uk.net/2013/12/update-anthony-kletzander-needs-your-help/

Owen Jones names DPAC as one of his ‘person of the year’ choices for 2013 http://www.independent.co.uk/voices/comment/who-is-your-person-of-the-year-9018337.html

 

 

 

 

 

 

 

Share This:

Dec 092013
 

Our Lives – Equal Lives: Disabled people in Norfolk speak about how personal budgets have transformed their lives and their fears of them being taken away. 

This video forms part of Equal Lives contribution to the Norfolk County Council consultation on the cuts.  The scale of the proposed cuts to adult social care will mean the end of personalisation and will result in disabled people becoming prisoners in their own homes.

Share This:

Dec 022013
 

ALLFIE WILL BE VISITING THE DEPARTMENT FOR EDUCATION on the 10th DECEMBER TO DEMAND THE GOVERNMENT BANISHES THE GHOSTS OF SEGREGATION PAST BY WARNING ABOUT THE NEW GHOSTS OF SEGREGATION FUTURE !

WHERE & WHEN:
Date: 10th December @ 1 pm
Meeting place: the Café in Abbey Centre, 34 Great Smith Street, Westminster London SW1P 3BU
Contact: Simone/Tara at ALLFIE – 0207-737-6030 simone.aspis@allfie.org.uk / tara.flood@allfie.org.uk / www.allfie.org.uk

THE FACTS:
Since 2010 the numbers of disabled children and young people being forced into segregated education is on the increase, despite the Government’s UNCPD Article 24 (Right to Inclusive Education) obligations to develop a fully inclusive mainstream education system. This year the Government is pushing through SEN reforms that will increase, even further, the numbers of disabled children and young people being forced into segregated education – this is despite David Cameron, in 2010, promising parents of disabled children he would do all that he could to support their choice of inclusive education.
Time and time again, the Government have refused to listen to disabled people and our allies about the damaging impact the SEN reforms will have on the rights for disabled students and pupils to be included in mainstream education –
ENOUGH IS ENOUGH!!
We must ACT NOW to tell Michael Gove (Secretary of State for Education) and the Coalition Government that there must be no return to segregation!!
Today we are presenting the following DEMANDS to Michael Gove and the Coalition Government:
• Disabled children and young people MUST have a right to be included in mainstream education.

• Disabled children and young people MUST have a right to receive support to participate in mainstream education in accessible buildings.

• The Local Offer of services MUST support disabled children and young peoples’ access to mainstream education.

• Local Authorities MUST continue to have a strategic duty to promote and develop the capacity of mainstream schools to deliver inclusive education practice as set out in the Inclusive Schooling Guidance.

Join ALLFIE’s “EDUCATE DON’T SEGREGATE” Campaign now!

 

View the petition

Share This:

Nov 292013
 

Please write to your MP urgently, asking them to save the Independent Living Fund which exists to help disabled people who need the highest levels of support. You can contact your MP easily through this website: www.writetothem.com.

Below is a message and links to a video from Mary, who is directly affected by welfare cuts. At the end of this email is a template you can use when writing to your MP.

Dear friends,
I’m writing to let you know about an emergency that is happening to disabled people in the UK right now as you read this email.

Some of Britain’s most disabled people – including me – are facing losing our right to living independent lives. The Independent Living Fund is a pot of money that helps disabled people who need the highest levels of support to do more than just exist.

But David Cameron’s government has already closed the ILF to new applicants – and now he wants to stop it for the group of 18,500 people who already receive it.

That will mean people like me will end up sitting alone looking out of the window for most of the day unable to even go to the toilet. Until now, despite being severely disabled by rheumatoid arthritis and unable to walk or use my hands or arms, I’ve been able to live a fulfilling life. In 2012 I was a Gamesmaker, and I carried the Olympic torch. Now, I will be imprisoned at home, and will even have to give up my beloved dogs Jack and Molly.

At 66 years old, severely disabled, and totally human and wheelchair dependent, I have found myself looking at the deep pond at the bottom of my garden, no longer wanting to live. My weight has dropped down from 9 stone to 6 stone.

But I didn’t want to just sit around feeling sorry for myself, so I asked campaigners to make a film about me. The trailer is right here. But you can also watch the whole 15 minute film by going to http://vimeo.com/79330726

You can read my full story by going to www.mirror.co.uk/news/uk-news/ros-wynne-jones-column-mary-laver-2855221

It’s not just the ILF the whole of social care provision is in crisis. Sooner or later this will affect most of you if you become disabled or when you get older.

Disabled people are also under attack from the Bedroom Tax, from the flawed Work Capability Assessment process and ATOS’ reviled tests, from the abolition of Disability Living Allowance,from cuts to council tax benefit and Benefit Caps.

We wonder what we’ve done to deserve it. We aren’t the ones who caused the banking crisis. But it seems as if we are the ones who are paying for it.

We wanted you to know what’s happening to disabled people under ‘Austerity’, because we thought if you did you’d want to campaign with us about it.

If you do, please write to your MP urgently, asking them to save the ILF. You can send them a letter at the House of Commons, or email them via www.theyworkforyou.com.

And please forward this email to everyone you know.

Mary Laver

You could use this as a template:

Dear MP,
The government has already been found guilty of illegally deciding to close the Independent Living Fund and now have to remake their decision. I believe that closing this fund would violate the human rights of disabled people who have the highest support needs to live independently in the community. Closure of the ILF would not only force disabled people back into residential care homes but also cause the UK to breach its obligations under the UN Convention on the Rights of Persons with Disabilities.

I urge you to watch this video, which gives a very real idea of how important this fund is, and to do everything you can to save this vital fund: http://vimeo.com/79330726

Share This:

Nov 282013
 

It’s been a busy few days for DPAC gathering evidence on the cumulative impact of cuts on disabled people, and on the crisis in independent living.  On the 25th we heard moving and powerful testimonies of how the Government are ruining lives through their austerity regime. Disabled people are faced with a range of cuts and so called ‘reforms’ which are contravening our basic human rights. We are faced with stark choices between eating or heating while having our dignity stripped by a range of psychological attacks at the same time as having support removed.

 Testimonies will be sent to the UN rapporteur on disability-thanks to everybody who came to London to tell their stories and to those that submitted their experiences through email. This event was originally arranged by Just Fair, however due to the rapporteur being unable to come to the UK due to illness DPAC and Inclusion London stepped in to run this at the last minute, so we could get these important stories out to the UN.

On the 26th the morning saw a hugely successful protest on fuel poverty organised by DPAC, Fuel Poverty Action, the Greater London Pensioners and UKUncut: ‘Bring down the Big Six – Fuel Poverty Kills!’ against the increase in fuel poverty deaths and increasing profits and prices of the big 6. Supporting groups included No Dash for Gas, Campaign Against Climate Change, Climate Revolution, Young Friends of the Earth, Frack Off London, Power for the People, Barnet Alliance for Public Services, Lewes Against the Cuts, SOAS Energy & Climate Change Society and Southwest Against Nuclear. There were also protests in Oxford, Lewes and Bristol.

In the afternoon of the 26th the Emergency meeting on the crisis in independent living took place at parliament hosted by DPAC and Inclusion London.  An event originally planned by Just Fair to launch their report to the UN rapporteur which DPAC and Inclusion London stepped in to run with a new focus on the crisis in independent living.  This was in response to the successful appeal outcome at the courts on the Independent Living Fund-and the continuing awareness of the crisis for ILF users, those trying to access local authority support and the Government’s apparent non-compliance with article 19 of the UN Convention on the Rights of Persons with Disabilities.

The afternoon launched DPAC’s report on the crisis in independent living and cumulative impacts of the cuts, one of many that DPAC is working on, as well as the film by Mary Laver an ILF user. The afternoon was complimented by speeches from John Evans and reflection on the past battles for independent living.  We heard from the brilliant Louise Whitfield (one of the solicitors in the ILF case) and were treated to an excellent DPAC theatre performance which brought to life the reality of impacts on disabled people and the different barriers we face.

Despite extremely short notice the event was well attended by MPs and those from the Lords. Kate Green , Hywell Williams, Katy Clarke, Anne Begg, John McDonnell, Jim Shannon, Andy Slaughter, Baroness  Campbell, Baroness Wilkins  and a host of others including Mary Laver’s MP.  Apologies were sent from Anne McGuire, Caroline Lucas, Lucy Powell, Jeremy Corbyn and Theresa Pierce

Mike Penning ‘our’ new minister for disability was invited but did not respond or send apologies!

Many thanks to all that attended, supported and worked so hard towards the afternoon-especially the many DPAC members and supporters that wrote to their MPs and publicised this. Some may ask why English national formal disability organisations with much more money and resources than us aren’t putting their energies into these types of activities all the time- we don’t have any answers or understanding on that.

We will have a more detailed report on the Emergency meeting on the Crisis in Independent Living event in Parliament with film and photos soon

Download DPAC report Crisis in Disabled People’s Independent Living 

See Mary Laver’s film on ILF View the movie

kljxr

Share This: