May 222013
 

DPAC Logo 3 amendment 1 (Small)On the day of the success of the ruling against the WCA-Activists from DPAC and disabled workers attending the TUC Disabled Workers Conference have blocked Tottenham Court Road in an unprecedented act of solidarity.

 This Government has repeatedly used the language of division, trying to divide workers and claimants, public and private sectors workers, non-disabled and disabled people. Today we strike back as one, united voice.

 The Cuts imposed by the ConDem Government under the cloak of ‘Austerity’ impact on disabled people in every area of life. The scrapping of Disability Living Allowance (DLA) and the Independent Living Fund (ILF) will tens of thousands of disabled workers, and will force many of them out of their jobs. Hundreds of thousands of disabled people both receive and deliver public services as workers in Public Service Departments, Local Authorities and the Voluntary Sector. ILF and DLA play critical roles in maintaining people in these jobs. The 1% uplift limit on Benefits, Universal Credit and the Bedroom Tax will impact on many disabled people both in and out of work.

 The removal of many of our basic rights affect not just disabled people, but all of us. For example, the removal of Legal Aid for medical negligence claims comes at the same time as every single contract within the Health Service is open to tender by private companies. This has serious and significant implications for each and every one of us who make up the 99%.

 But not everyone is being hit by austerity. While multi-nationals like Atos and Capita make fortunes, tax avoidance and evasion to the tune of tens of billions goes uncollected. The wealthiest 1000 UK residents increased their wealth by some 35 billion last year while disabled people and the poorest members of society were pushed into poverty and despair as the targets of brutal cuts.

 Disabled activists have led the fightback against this Government since the beginning, and today disabled activists and workers lead the way again in the first joint, co-ordinated direct action by campaigners and unions on the streets of the U.K.

 Shabnam O Saughnessy from DPAC said: “We are delighted to be joined on the streets today by our union comrades. This represents the first steps towards uniting resistance from communities and workplaces. It dispels the myth of disabled people as scroungers and workshy. We are not some separate group of others, we are your friends and neighbours, we work alongside you. Many millions of disabled people are being affected by cuts, and today is about getting our voices heard.”

 Mandy Hudson, co-chair of the TUC disabled workers committee said: “Trade unionists would like to send a clear message to this government that trade unions, workers and grass roots disabled groups stand together against the onslaught of vicious cuts rained down upon us by the Condems.”

DPAC and disabled workers from the TUC conference block Tottenham Court Road 22nd May

Notes

1)    Disabled People Against Cuts is a national campaign led by disabled people to oppose the attacks on disabled people being carried out under austerity. www.dpac.co.uk

 

2)    The 2013 TUC Disabled Workers’ Conference takes place on 22-23 May. The TUC Disabled Workers committee recently rejected an invitation to join the government’s new Disability Action Alliance on the grounds that involvement would restrict the TUC’s ability to campaign against government policies that are affecting disabled people.

 For more information contact Ellen Clifford on 07505144371 or ellenrclifford@btinternet.com

For updates see twitter: @Dis_PPL_Protest

and Disabled People against Cuts Face book Group

May 202013
 

IN JUNE THE INDEPENDENT LIVING FUND IS 25 YEARS OLD. 

The ILF has been invaluable to enable disabled people to live independently now without even any vote in parliament or any discussion the Butchers of Benefits have announced it will close from 2015 with no replacement funding for more than 12 months maximum. Many local authorities have said this will result in disabled people being forced back into institutions or left to rot in their own homes without adequate levels of support.

On June 10th we’re going to have a birthday celebration with some others including hopefully a magician, street theatre, and cake plus lots of birthday cards to go to our DWP ministers.

We’re all meeting up between 1.30 pm and 2pm at Deans Yard, SW1P 3PA which is at the back of Westminster Abbey (ie the side that isn’t opposite House of Commons).

Nearest accessible tube is Westminster and for other travel information contact Transport for All http://www.transportforall.org.uk/

Hope to see you all there. Feel free to drop us a line at mail@dpac.uk.net if you can come to this. Bring friends, banners, and noise plus cakes if you can.

 Posted by at 21:20
May 172013
 

Government plans to permanently shut the Independent Living Fund are a concern for all disabled people and to everyone who cares about inclusion and social justice in the UK. The ILF was set up to support disabled people with the highest level of support need to live independently in the community regardless of their level of support need and when the alternative was residential care. The end of the ILF without adequate alternative support provision signals the end of the right to independent living for disabled people and a breach of Article 19 of the United Nations Convention on the Rights of Disabled People.

The ILF has been shut to new applicants since December 2010 and thousands of disabled people must therefore have missed out on support needed to enjoy full and meaningful lives. At both central and local government levels no information has been recorded to monitor the impact of this and to measure any potential breach of Article 19.

Inclusion London and Disabled People Against Cuts are asking for individual disabled people to come forward if you think you would have been eligible to apply to the ILF before it was shut at the end of 2010. It is important that information is recorded from the UK about any threat to disabled people’s fundamental rights and freedoms and will give disabled people in the UK the chance to invoke international protection of our rights.

If you are happy to share your story, information the support you get (or don’t get) and the impact this has on your life then please contact ellen.clifford@inclusionlondon.co.uk or phone 020 7036 6032.

 

May 162013
 

This Code of practice for transition reviews of those in receipt of ILF funding has been drawn up by ILF, ADASS and LGA.  It seems fairly meaningless so there is no surprise there.

Transfer Review Programme Code of practice
Purpose of the code of practice
Following engagement with local authorities in England and disabled people and their organisations, the Independent Living Fund (ILF), the Association of Directors of Adult Social Services (ADASS), and the Local Government Association (LGA) have co-produced this code in order to promote best practice to support the effective transfer of ILF users to sole local authority support from April 2015.
The code aims to maximise the success of the transfer review programme and enhance the customer journey throughout transition by providing key principles to underpin partnership working.
Key principles
1. Commitment to personalisation, inclusion, and choice and control
Throughout the process all parties will seek to demonstrate a commitment to the underlying principles of personalisation. There will be a high level commitment to maintaining choice and control, as well as maintaining users’ independent living outcomes.
All parties will ensure that users and their representatives are fully involved in transitional planning, and will take account of the views and requirements of users and their families/representatives in the preparation and implementation of the transfer of support.
2. Working in partnership
It is essential that the ILF and local authorities collaborate and work in partnership throughout the transfer programme to ensure that the necessary plans and structures are in place to fully support users up to and beyond 2015.
All parties will be committed to working towards and meeting relevant deadlines so as to guarantee that the programme is fully completed by 31 March 2015.
2
3. Open communication
Throughout the programme there needs to be continuous and open communication, providing relevant information that is shared in a timely manner. All parties should ensure that users are kept informed of plans that impact on their future. It is important that users have a clear awareness and understanding of what the transfer will mean for them.
4. Designated support
In order to facilitate the management of the programme, the ILF and local authorities will have place a named point of contact to manage relations between the ILF and each local authority, for both operational and corporate liaison. There should be a clear delineation of responsibility and accountability in running the programme both within the ILF and with local authorities.
5. Commitment to joint reviews
To aid the transfer process the ILF and local authorities will collaborate and participate in the joint transfer review programme, using a person centred assessment to identify how independent living outcomes can continue to be met.
In addition the programme will need to identify and inform users of what they will need to do prior to April 2015 to ensure that their eligible support continues to be met.
To aid in this process the ILF will seek consent prior to the initiation of the transfer review programme from all group 1 users to pass on information to local authorities. This will facilitate the collaboration between the ILF and local authorities and enable full participation in the programme by local authorities.
6. Advice and advocacy
Local authorities should where possible ensure that there is sufficient provision of, and clear signposting towards, independent advocacy and support. The ILF and local authorities will work together to share information on support available for users in order to effectively signpost people to this.
7. Personal budgets
The transfer to local authorities will be an opportunity to promote the take up of personal budgets. ILF users currently receive cash payments directly from the fund to pay for their support and the expectation is that they will continue to be able to exercise choice and control over how their care is provided. Users should be informed of what options and support are available locally.
3
8. Provision from April 2015
Transitional arrangements need to be in place from 1 April 2015 which enable users to plan for and manage any change in their support. The arrangement of a period of phased transition being provided that supports the protection of independent living outcomes is one of the issues for consideration during this transition period.
We believe that it is essential that before the end of the transfer programme all ILF users and their representatives have a clear understanding of how their eligible support needs will be met immediately following the transfer.
Any change to support arrangements made by the local authority should take into account the impact upon care providers making certain that the user is able to meet legal and contractual obligations where provision is reduced or replaced. In particular this includes redundancy payments and notice periods.
9. Data sharing
Any transfer of information needs to ensure that no person who has expressed a wish to receive support after April 2015 is unaccounted for.
The ILF will need to monitor the transfer of information to the relevant authorities. When information is transferred to local authorities there will need to be in place a mechanism to acknowledge the receipt of this information. All parties will ensure that appropriate measures are in place to transfer and protect sensitive information in compliance with data protection legislation.
10.Monitoring and evaluation
The ILF and local authorities will work in conjunction to ensure that there is a system in place to evaluate the effectiveness and progress of the programme. Any evaluation will naturally engage the opinions of users and their representatives.
Each party will have in place a clear process for managing complaints about decisions taken as a result of reviews. In addition the ILF and Local authorities should work in conjunction to resolve any concerns raised and provide a rapid resolution of any issues that arise.
7 May 2013

We also have this equally meaningless response to an FOI request for further information about what funding will be available. To summarise there is NO information which seems to be available to inform people what will happen.

https://www.whatdotheyknow.com/request/159619/response/390200/attach/html/2/FOI%202003.response.pdf.html

 Posted by at 18:39
Apr 302013
 

If you can judge a nation by how it treats those in most need, the judgement on this nation is damning. Those with the highest needs are effectively being attacked by a government for a circumstance they had no choice in: being disabled.

It is a damning indictment of this government that they have launched attack after attack on disabled people leaving them without support and removing income. The proposed closure of the Independent Living Fund (ILF) is the latest in that assault.

Five severely disabled people whose right to live independently in the community and who face having their lives trampled on by a decision which has never been discussed let alone voted on in parliament have vowed to carry on their legal fight against the callous Coalition government’s proposed closure of ILF.

While Conservative MPs around the country continue to churn out platitudes that their party will protect the ’most vulnerable’ the reality of what their ministers are actually doing is far different. The loss of the Independent Living Fund will have disastrous consequences for disabled people with high support needs and as DWP and Local Authorities have said will result in people being forced back into care homes or left in danger in their own homes.

How many will have to be abused or die through neglect before society takes this threat seriously enough to say this is a cut too far? Anyone of you could become disabled and need this level of care to keep living in your community or at home with your family and friends. This is not about party politics this is about justice, morality and dignity. It is about the right to continue to have a life worth living if you do become disabled at some point in your life.

All five will appeal the decision handed down in the High Court on April 24th claiming that the government failed to meet its Public Sector Equality Duties when carrying out what they claim was a flawed consultation process.

DWP have previously said that the ILF fund was unsustainable. They fail to clarify as part of the consultation if there will be any guaranteed on-going extra funding devolved to local authorities to take over the additional costs of meeting people’s care and support needs after 2015. Something which could be a slap in the face for already hard pressed Local Authorities whose budgets are already being squeezed by a further 28% and who will have to implement these cuts.

If, like us, you think its wrong that disabled people (8%of the population) bear 29% of all cuts and that disabled people with severest needs (2% of the whole population) bear 15% of all cuts[i]-

Please support the five and write to your MP to say this is a cut too far.

Find your MP

________________________________________
[i] ‘A Fair Society?’ Centre for Welfare Reform, January 2013

Apr 242013
 

R (Bracking) and Others v Secretary of State for the Department of Work and Pensions

The legal challenge to the Government decision to close the Independent Living Fund

 

This claim for judicial review was brought by five disabled claimants to challenge the decision of the DWP to close the Independent Living Fund in 2015. The fund has been in existence since 1988 and provides grants to severely disabled people to enable them to live independently.  The ILF enables disabled people to control the way they use the funds and currently provides support to almost 20,000 of the most severely disabled adults in the country. Many ILF users receive some support from local authorities to help with their basic care needs but also receive funding from the ILF that enables them to live more independently.  Some only receive funding from the ILF.

 

In 2010 the fund was temporarily closed to new users and in December 2010, without any consultation, the Government announced that the fund would remain permanently closed to new applicants. It also announced that it would carry out a formal consultation on the future of the ILF in 2012.

 

The consultation ran from July to October 2012. This claim was started before the consultation ended. The Claimants argued that the consultation itself was unlawful. The main reasons were: (1) that the consultation paper did not give enough information for people to be able to comment fully; and (2) that the DWP had not properly assessed the impact of closure on those disabled people who were currently receiving ILF support.

 

The consultation paper proposed that ILF funds would be ‘devolved’ to local authorities after 2015 so that the people currently receiving ILF support would, in future, be assessed and supported by social services departments and only receive funding for care from them.  However, it did not say how much funding would be ‘devolved’ or if the funding would be ring-fenced (to ensure that it was spent on supporting adults with care needs).  Further, it did not give enough information about the way social services assess and support disabled people.

 

The DWP also said that it could not assess the impact on disabled people until after the consultation had ended.  It said that it would publish a full impact assessment when it made its final decision.  The Claimants argued that this was unlawful and that the DWP had enough information to carry out a broad assessment of the impact and to set this out at the beginning of the consultation.

 

Under the Equality Act 2010 public bodies, including government departments, must have “due regard” to certain equality principles when it makes decisions and develops policies. This is the “public sector equality duty” and it applies when decisions and policies are likely to affect a group of people with a protected characteristic.  Disability is a protected characteristic.   Under this duty, public bodies

 

must have due regard to the need to advance equality of opportunity for disabled people. This duty has three elements: the need to remove or minimize disadvantages suffered by disabled people, the need to take steps to meet their special needs and the need to encourage disabled people to participate in public life.

 

Because of how important the ILF has been in the lives of those it has supported, and particularly the way it has enabled severely disabled adults to live independent lives and to undertake education and training, to work and to play a full part in their communities, the Claimants argued that there was a very strong duty on the DWP to take steps to find out how the proposal would affect ILF users and other disabled people. The Claimants’ case was that the DWP had acted unlawfully in failing to do this.

 

After the claim had been issued the Government announced, in December 2012, that it had decided to close the fund.  It also made clear that whatever funding may be ‘devolved’ to local authorities would not be ring-fenced.1 The claim was therefore amended to challenge not only the consultation process but also the decision to close the fund. The challenge was still focused on the process of the decision- making: the failure to consult lawfully and the breach of the public sector equality duty when making the final decision.

 

During the proceedings, the Claimants discovered a number of things that had not been made clear in the consultation:

 

  • other options, such as postponing closure until after 2015 had been considered;

 

  • the DWP had estimated the costs of closure at £39 million;

 

  • that one, central, reason for recommending the closure of the ILF was that the money currently spent by the ILF on the support packages for its users would be unlikely to be available to the DWP after 2015.

 

So, although the DWP had presented the decision as being purely about reform and streamlining the way funding was to be distributed, in reality, this was about cutting the funds available to support disabled people. The Claimants argued that this should have been made clear in the consultation.

 

The Equalities and Human Rights Commission intervened in the case to advise the court on how the public sector equality duty should have been discharged by the

 

 

1 In the Government’s published response to the consultation it was stated that “in their response to the consultation, most local authorities said they would be strongly opposed to a ring fence around this funding” but this was completely untrue. Not one of the local authority responses obtained by the Claimants under the Freedom of Information Act expressed opposition to ring fencing; 33 out of 80 were in favour of ring-fencing or suggested it should be considered and several authorities expressing qualified support indicated that their position depended on whether the funding would be ring fenced. The rest made no comment about ring fencing.

 

DWP.  In their submissions, it was pointed out that the public sector equality duty is part of how the Government meets its international obligations under the UN Convention on the Rights of Persons with Disabilities (UNCRPD).

 

The judge heard argument for one and a half days and decided that the DWP had carried out an adequate consultation and had not breached the public sector equality duty: he dismissed the claim.  A written copy of the judgment is available on the websites of the solicitors instructed: Deighton Pierce Glynn at www.deightonpierceglynn.co.uk and Scott-Moncrieff & Associates at www.scomo.com.

 

The judgment fails to explain the judge’s reasons for reaching the conclusions he did or to set out the evidence he relied on to reach those conclusions.  The judgment is therefore hard to follow.  In relation to the consultation process, the judge specifically found that there was enough information for people to engage in the process in a meaningful way.  He also decided that the information that had not been provided (about the costs and reasons for closing the ILF) did not make a significant enough difference to the consultation exercise to make it unlawful, though these would have been important issues for people to comment on.

 

In relation to the public sector equality duty, the judge decided that this had been brought to the attention of the Minister for Disabled People and therefore the duty had been met. He referred to a number of documents and information available at the time the Minister was making the decision.  However, none of these explained the duty properly or gave the Minister enough information to consider the specific elements of the duty set out above.

The Claimants are therefore seeking permission to appeal to the Court of Appeal. The Claimants are not just seeking to preserve the ILF for the existing users but want

the ILF to continue and for all young disabled adults to be able to apply so that they

can be supported to live independent lives.  It is with this goal in mind that they wish to pursue their legal challenge further: to ask the Court of Appeal to quash the decision that the ILF should close and to force the Government to think again about how it funds care for severely-disabled people so they can maintain their independence throughout their lives.

 

 

 

For further information (solicitors representing the Claimants): Deighton Pierce Glynn (Louise Whitfield)

8 Union Street

London SE1 1SZ                                   Tel:  020 7407 0007

 

Scott-Moncrieff & Associates (Diane Astin/Kate Whittaker) Office 7, 19 Greenwood Place

London NW5 1LB                                Tel: 020 7485 5588/ 07792 700825

Apr 242013
 

The Court of Appeal will be asked to over-turn the decision of the High Court in the judicial review brought by five service-users of the Independent Living Fund (ILF) of the Government’s decision to close ILF in March 2015. In its judgment handed down today, the court held that the consultation process concerning the closure had been lawful and that the DWP had met the public sector equality duty when deciding to go ahead.  All five claimants have begun an appeal against this ruling.

 

ILF provides vital support and funding to some 20,000 severely-disabled people in the UK to enable them to live independent and fulfilling lives.  The closure of the Fund will threaten their right to live with dignity and in many cases, their ability to work. The Claimants, represented by Deighton Pierce Glynn and Scott-Moncrieff & Associates, fear that without ILF funding and support, they may be forced into residential care or may end up unable to leave their homes.

 

The Claimants’ concerns over the consultation process relate to the failure by the DWP to explain the proposals properly: there was insufficient information to enable consultees to respond in a meaningful way. In addition, further information came to light as a result of the claim which revealed the DWP had not been open and candid in its approach to the consultation exercise.  The judge dismissed these points as having no impact on the lawfulness of the consultation exercise.

 

The public sector equality duty required the Minister for Disabled People to have due regard to the need to eliminate discrimination and advance equality of opportunity for disabled people but there was no evidence that she had specifically considered these issues when deciding to close the ILF and the impact this would have on disabled people. In its ruling, the court did not explain how it reached the conclusion that the Minister had met the statutory duty in the specific way required.

 

The Claimants therefore intend to pursue their appeal on the basis that the judge’s conclusions did not reflect the evidence before the court and that the reasons for ruling that the process was lawful were not properly set out. All five are adamant that the process was flawed and that the impact of closure will be devastating for very large numbers of severely-disabled people.  They see it as vital that the decision is quashed and the matter reconsidered on a fair and lawful basis.

 

Contact:

Solicitors representing the Claimants: Deighton Pierce Glynn (Louise Whitfield)

8 Union Street

London SE1 1SZ                                 Tel: 020 7407 0007

 

 

Scott-Moncrieff & Associates (Diane Astin/Kate Whittaker) Office 7, 19 Greenwood Place

London NW5 1LB                              Tel: 020 7485 5588/ 07792 700825

Apr 092013
 

Please be aware that ILF users in Northern Ireland have set up their own group to ensure that user input is included in the decision making process.  The independent NI ILF user group have already begun to liaise with local politicians and Health Trusts/Social Care Board and will be holding user consultations during May 2013 to develop some proposed solutions regarding ILF in Northern Ireland.

If you would like to get involved or just give your input and be kept up to date on the latest developments please to contact them on : ilf_users_ni@hotmail.co.uk “.

Mar 232013
 

In the court case taken by five disabled people against the proposed closure of the Independent Living Fund (ILF) , and supported by a campaign led by DPAC and Inclusion London certain documents were used. These documents are mainly correspondence between civil servants at the Government’s Department for Works and Pensions (DWP) and the minister for disabled people: Esther McVey.

These documents were released and declassified after the court case because they had been mentioned in the case. This is a summary of those documents.

Early analysis of responses to the consultation on ILF Closure (undated)

This document gives a breakdown of responses and several points for McVey to take into account. First, the consultation asked:

Question 1Do you agree with the Government’s proposal that the care and support needs of current ILF users should be met within the mainstream care and support system, with funding devolved to local government in England and the devolved administrations in Scotland and Wales?[1] This would mean the closure of the ILF in 2015.

 

Question 2What are the key challenges that ILF users would face in moving from joint ILF/Local Authority to sole Local Authority funding of their care and support needs? How can any impacts be mitigated?

 

Question 3What impact would the closure of the ILF have on Local Authorities and the provision of care and support services more widely? How could any impacts be mitigated?

 As we see never were questions asked on extending the ILF or keeping it open. In fact question 1 is what is called a ‘leading question’

In the documents DWP tell McVey:

       ‘As we expected with the current challenges facing the care and support system, the majority of ILF users are opposed to closure of the fund, with many doing so on the basis that there could be no guarantee that their current level of funding would be protected in the future’

and….

           ‘A range of smaller national and local disability groups expressed similar concerns with our proposal. Some have been able to support the closures in principle but usually conditional on current user awards being protected as part of ring-fenced funding. The most vocal group has been the relatively new Disabled People against Cuts, DPAC. This group has taken a very strong critical position on a range of DWP policies’.

Yes we have and both Miller (our old mister for disabled people) and McVey refused to meet us and ILF users several times-in fact they didn’t even bother to respond to these requests!

We were very surprised to see this section advising McVey:

           ‘The consultation exercise has been immensely useful and we have been satisfied that we have listened to a collection of views that is representative of all those individuals or organisations that have an interest in or may be impacted by closure and devolution and have considered whether to modify the preferred position set out in the consultation in light of those views’ (emphasis added)

Amazing! Because if most said : keep it open, and if most said people would lose support or enter institutions, including responses from local authorities: what exactly did they listen to?

The documents recognize that ILF users will see a drop in support with some not being eligible for support at all

             ‘We do recognise that upon reassessment by LA’s most users are likely to see some reduction in the current funding levels, and there are a group of users with low care needs that may not be eligible for local authority support under current needs thresholds in most LA’s.’

The cost of closure will be £39 million! One document states that some of this has been achieved by the savings from closing ILF to new users in 2010. But closure cannot be publically defined as value for money-indeed!

        ‘The transfer costs mean that this proposal will cost rather than save money and therefore it cannot be defined as value for money. However the transfer costs are fully affordable’.

Not to ILF users they aren’t!

And wouldn’t £39 million, plus transfer cost be better put into ILF? Of course that’s not what they want to do, in spite of a consultation exercise where the majority appeared to say a resounding NO to closure.

Why did the DWP think it would Easy to Close the ILF?

One of the reasons given that the DWP found it so easy to close the ILF to new users in 2010 was the lack of any objections from the ‘big disability organisations’ which DWP call ‘Major Departmental Stakeholder Responses’ whatever that is.

In terms of the announcement of proposed closure in 2015 it was noted that none of these ‘stakeholders’ had requested a meeting with ministers from Westminster. Basically most had kept quiet, and hadn’t seen the closure of ILF as any big deal. Great support guys!

On this basis the DWP tell McVey in another document around the potential announcement of the closure in 2015

         ‘on the basis of attention shown so far, we do not think this will   receive  significant attention on its own…’

Guess they forgot about that vocal group DPAC and Deaf and Disabled Peoples’ Organisation: Inclusion London, because the closure of the ILF has now received significant attention in the UK and in Europe, at European Parliamentary level through MEPs and at UN level and we’ll make sure this continues.

Neither DPAC nor Inclusion London has the millions for campaigning that the big disability charities have, nor dedicated media, press and campaign teams. But we do have passion, and we do care about what happens to us all as disabled people, and we care what happens to independent living. ILF users taking the case and supporting the case have appeared on TV, on radio and in newspapers to get the message across that ILF is important and this will continue too.

Any journalists that want to know more or run stories can contact: mail@dpac.uk.net

So what did these so called ‘stakeholders’ say in response to the consultation? According to the DWP, there was not enough resistance at all.

In the early analysis document those who the DWP define as key stakeholders are broken down and their responses analysed. Below is what DWP said of their ‘Major Departmental Stakeholder Responses’ in the exact words of the DWP to McVey

 Carers UK-Weakly Disagree

-User packages would be reduced placing extra demand on unpaid care

Disability Rights UK-Concerned

-Lack of choice and flexibility under Local Authorities (Las)

-User packages will be reduced

-Poor perception and past support of Las

-Difficult for ILF users to transition easily

 Disability Wales- Strongly Disagree

-users packages would be reduced which could make it impossible to support ILF users in a family environment

-since the 2010 closure of the fund to applicants disabled people have had to start entering residential care.

-believes the government is targeting the disabled for cuts

-LAs could not cope with the additional workload

-Lack of choice, flexibility and dignity for ILF users under LAs

-Do not believe transitional protection will be offered

 Inclusion Scotland-Strongly Disagree

-The proposal would create a postcode lottery of support

-User packages would be reduced

-LA support is budget led rather than needs led

-ILF expertise would be lost

-Lack of choice and flexibility under LAs

 MENCAP-Pragmatic Agreement

-If reforms go ahead they should be about finding a better system, not cutting costs

-Funding should be allocated to LAs as a separate ring fenced funding stream based on current ILF regional spending patterns in which current users enjoy time-limited protection

-need for Government to provide advice and information to all parties

 MS Society- Concerned Agreement

-Consolidation of funding streams would simplify the care system

-The proposal should not be enacted until the impact of current welfare reform is understood

-Lack of choice, flexibility and dignity for ILF users under LAs needs to be addressed

-LAs need as far as possible, to replicate the personalised expertise of ILF

-Representative groups need to be closely involved in the transition design

 RNIB-Weak Concern

-Concerned that closure might lead to a breach of article 19 on UN Convention of the Rights of Persons with Disabilities

-Representative groups must be closely involved in transition design

-Current levels of support must be maintained

 SCOPE-Concerned Weak Agreement

 -Consolidation of funding streams would simplify the care system

-The proposal should not be enacted during current funding constraints

-The mainstream care and support system needs more experience and commitment to independent living to be able to undertake the responsibilities of the ILF

 Spinal Injuries Association-Disagree

 -Funding is likely to disappear into wider LA budgets on transfer

-ILF is more efficient than LAs

 

‘Rights not Charity’ seems very apt as the major charities for disabled people appeared to agree with the closure, after all more institutionalisation of disabled people might benefit them mightn’t it?  Disability Rights UK (DRUK) a so called user-led organisation incorporating, but clearly forgetting the principles of National Centre for Independent Living, did not offer more than ‘concern’.  The Spinal Injuries Association ‘disagreed’ but what this needed was for all to come out and say ‘Strongly Disagree’ as Disability Wales and Inclusion Scotland did.

 Remember that when the charities ask you for money, remember that when those groups that didn’t come out fully against the closure of the ILF say they are on the side of disabled people or are working for disabled people: we believe they can no longer justify either of those statements.

 The DWP told McVey that ‘stakeholders’ (SCOPE, DRUK etc)

‘..have traditionally found it hard to defend the ILF model of funding care..’

‘none of the largest national disability organisations requested ministerial meetings and many did not submit responses to the consultation. While we have had an increasing number of letters from MPs on users’ behalf, the proposal to close the fund has received almost no attention in the mainstream media’ (correspondence to McVey 7th November 2012)

We will work through more of the documents looking at issues on transition, and the DWP’s media strategy which is unsurprisingly at odds with any issues raised by disabled people-you know the stuff Closure of ILF will give ‘choice and control’ , ‘committed to supporting disabled people’ blah, blah, blah.

The big difference here is that it is clear from the documents  that the DWP are perfectly aware that ILF users will lose funding and that their needs won’t be adequately met through the local authority system.

Cuts versus Reform

Finally, the DWP were keen to try and put the message out that the closure of the ILF was not about ‘cuts’ but about ‘reform’ –what’s the difference? They do appear to believe that if they say reform we all think this is a good thing, rather than identifying that everything that comes under the heading of reform is actually another cut.

The documents cannot be clearer: this is a cut

A cut to the dignity, life chances and lives of disabled people-not just those who are currently supported to lead independent lives through ILF , but also those who would have qualified before closure to new applicants in 2010 and all who could benefit from the ILF system in the future

Support ILF users now; support a better future-say no to the closure of the ILF!

 

 

 

 

 

 



[1] Funding for ILF users in Northern Ireland is currently the responsibility of the Northern Ireland Department for Social Development, not the Department for Work and Pensions.

Mar 172013
 

If you’re an ILF user and not already part of the ILF campaign group please email us your contact details at mail@dpac.uk.net

 Video from outside courts March 13th thanks to Shaun
 Reel News http://reelnews.co.uk

Dear All,

Firstly – well done us ! Great turn out on Wednesday and despite a new Pope
(!) we got some media coverage which I think we can definitely build on.

Key points from court case:

Regardless of whether we win or not (ruling likely end of April and I think
we have a very good chance) some potentially explosive stuff came out from
internal dwp documents that are now in the public domain namely:

· The dwp think its unlikely that there will be any funding for ilf
users after 2016. It looks like they are thinking of a year’s – non ring
fenced – additional transition money for LA for 2015-16 (to sugar the pill
as the judge put it) but then nothing.
· There is an internal paper that says we have to keep up the narrative that this is about reform not
cuts !
· The dwp estimate the cost of closure and transition to be £39
million!!
· The dwp barrister took an absolutely disgraceful line of defence
trying to say that the closure was not based on money but on desire for
equity between non ilf users and ilf users – ie ILF users have more so we
need to take that away so they are in the same situation as non ilf users.

Implications for our campaigning:

As I said regardless of the judges decision we need to use the dwp
documentation in our campaign from now on – its explosive evidence that
completely supports our position that this is a) about a cut and b) ilf
users will have their support cut with all the devastating consequences we
have been saying. These documents also reveal just how cynical the dwp have
been ie by admitting they need to pretend its about reform and not cuts.

The dwp ammo we will now have should help us really pile on the pressure
with Cllrs and MPs – both in substance of what’s been revealed ie likely no
funding post 2016 but also how the dwp have gone about this. Given this is a
cut targeted at 20,000 disabled people with highest support needs I think
this could be potentially extremely politically embarrassing – if we play it
right.

I think we also have a real chance to re-start lobbying and campaigning with
Local Authorities: its clear now that the govt intention is to devolve
responsibility to LA’s but not any funding to meet these responsibilities .
Now this is in the open I think we could have a real chance of getting some
LA’s on our side – particularly Lab ones.

Finally, some ILF users have done a great job in getting SCOPE to finally come out in support. We need to continue to put pressure on them because another DWP internal paper mentioned in court said (to paraphrase) we got away with the closure to new applicants in 2010 and the major disability charities are not interested in defending ilf . This should shame them into coming out in support.

Despite how shocking the info revealed in court has been we need to take
heart that we are right: right to campaign to save the ilf and right that
this is about cuts and nothing else.

So we need to start planning our campaign with this new info so we are ready
for decision at end of April.

 Posted by at 15:20  Tagged with:
Mar 132013
 

Natassia and Petrell’s Story

Natassia and Petrell’s Story

Natassia is a 21year old young woman who lives at home with her parents in South Norwood, Croydon. She wants to live an independent life with choice and control over what she does and who she does it with. Her support package from the local Council is £175 per week. This is not enough to cover the support she needs yet the Council are refusing to raise it, giving her mother the only alternative of sending her to live in residential care.

Natassia has Cerebral Palsy and requires assistance with washing, dressing,***** She wants to be active and to enjoy social networks and get of the house so she uses her budget to pay to go to a day centre of her choice in South Croydon three days a week. This costs £141 and leaves little left in the budget for meeting her needs for the rest of the week. The Council say if it is too expensive from her budget she should choose to go somewhere else but other day centres in the area are full of older people who Natassia doesn’t relate to and aren’t appropriate. The cost of getting out of the house three times a week then means that there isn’t enough money left in the budget to pay for personal assistants to support Natassia get up, washed and dressed and her parents have to rise at 4.30am to do this. They are happy to do this on the weekend but they find it too much every day of the week.

The Council says that if this is a problem, Natassia should be sent into residential care.

This is despite the fact that residential care would be more expensive than raising the level of the personal budget Natassia receives, costing £225 in rent before any costs for support and personal care.

The family home has been adapted so it is accessible and meets Natassia’s needs. It is where she wants to live.

Had the Independent Living Fund been open Natassia could have applied for support to meet her full range of needs, to receive personal assistance support that allowed her to live with her family while allowing them to live their own lives while still being able to maintain her social networks and to be part of the community.

Mar 122013
 

Jenny’s Story

Before I was referred for funding from the Independent Living Fund I lived without having my most basic needs met, spending hours unable to have a drink or go the toilet, without dignity and without any quality of life, existing between TV and hospital.

I received a package of 4 hours a day, one hour for getting me up, showered and breakfasted, one hour for house work and lunch, one hour for supper and one hour to do the “put to bed”. In between times I couldn’t get a drink or use the toilet- let alone do anything meaningful with my life. I even had one of the care workers bring her husband or (male) neighbour along as she was unable to get me in and out the bath by herself! I thought this was normal! I whiled away my days watching TV or falling asleep due to boredom. I used to be got up at 9 and put to bed at 9. I couldn’t even do shopping as it was quicker for the care worker to do it alone. I spent weeks at a time in hospital going from one health crisis to the next.
A chance meeting with a social care researcher led to me hearing of disabled people using “indirect” budgets to employ their own PAs. I was reassessed and awarded a 24/7 package partly funded by the ILF. I recruited a team of PAs who enabled me to actually have a life!

 

Through support from the Independent living Fund I have been enabled to go back to University and to enter employment, firstly through casual work as an “expert by experience” for the Care Quality Commission and to then go on to get my first full-time job in 20 years (as a Personal Budget Coordinator – the job of my dreams and my hobby to boot!).

 

I am paying into the system in 2 ways – as a Trustee of a charity – and as an economically active tax payer, thanks to my paid work. Additionally, 7 other people are economically active through their employment as my Personal Assistants.

 

In terms of saving money to the state you can also count on the fingers of one hand the number of hospital stays I have had since receiving ILF funding – and all but one of those stays were planned.

My ILF pays for a quarter of my care package – essentially 42 hours a week- and roughly the same amount of time that I spend at work, in education or taking part in leisure activities.

I can’t bear to think of a return to life without these opportunities.

Unfortunately in my job I see many people who are suffering the dreary lifestyle that I had once had as they have missed the chance to apply for ILF funding. One client says that she feels she is treated “worse than a dog – at least dogs get taken for a walk every day” – as she spends all but a couple of hours a week in bed. She doesn’t have a package flexible enough to have someone around to help her back to bed when her muscles no longer allow her to maintain her position in her wheelchair. The hour that she can spend in her chair, while the care worker is doing housework, she drives from room to room like a caged animal “just to make sure the other rooms are still there”!

I have no doubt that ILF funding would have made her life much, much better.

I am worried for the day that my 42 hours funded by the ILF disappear and I resort to driving from room to room, no longer able to pay for the support I need to lead the meaningful life I currently enjoy thanks to the ILF.

 

Mar 112013
 

 

DPAC Logo 3 amendment 1 (Small) IL logo

 

VIGIL TO SAVE THE INDEPENDENT LIVING FUND

AND OUR RIGHT TO INDEPENDENT LIVING

March 13th 2013 – from 12.30pm

Outside front entrance Royal Courts of Justice, the Strand, London, WC2A 2LL

Speakers: Linda Burnip (DPAC co-founder), Tracey Lazard, (CEO Inclusion London)

Writers/performers Sophie Partridge and Penny Pepper to read from their new script highlighting the impact of the ILF closure

Six disabled people who receive support funded by the Independent Living Fund (ILF) will take on the DWP in the High Court on 13th and 14th March to challenge the government consultation which proposed to close it.

The ILF was set up in 1988 to support disabled people with the highest levels of support need to live in the community. Since then it has helped thousands to live active and full lives.

The government decision to close the Independent Living Fund and instead devolve responsibility to local authorities follows a consultation that disabled people claim is unlawful.

Whereas support received through the ILF has transformed thousands of lives, local authorities are not able to provide the same level or range of support through their current systems. With central funding to local authorities being cut this can only get worse.

Join us to show support and solidarity to those disabled people taking the legal challenge on an issue that is importance to everyone who cares about social justice and the rights of disabled people to live independently, equally and with dignity.

Speakers will include Linda Burnip, co-founder of Disabled People Against Cuts, Tracey Lazard, Chief executive of Inclusion London and many disabled people who are personally affected by the closure of the Independent Living Fund. Writer/performers and ILF users Sophie Partridge and Penny Pepper will read from their new script developed to highlight the importance of the Fund.

You can listen to how this vicious attack will affect disabled people at these links:

http://www.dpac.uk.net/2013/02/a-nasty-cut-people-affected-by-the-closure-of-the-independent-l5142/

For more information about the vigil contact: mail@dpac.uk.net

Attached information about the location of the High Courts and about accessible toilets in the area.

 Map courts

 Royal Courts of Justice

Strand,

London WC2A 2LL

 Travel: the tube stations around the Royal Courts are not accessible (nearest accessible tubes are Westminster and London Bridge and both are a bus journey away).

Please check www.tfl.gov.uk for more travel information

 Accessible toilets around the royal courts:

-         There is an accessible toilet outside Embankment tube station and inside Charing Cross station.

-         There are toilets opposite the Royal Courts but these are not accessible

-         There are also accessible toilets inside the Royal Courts themselves – see page 10 of this booklet: http://www.justice.gov.uk/downloads/courts/rcj/facilities-and-access/Facilitiesservicesleaflet2011.pdf

Mar 102013
 

I am an advocate for my brother Anthony who has severe learning disabilities, autism and bi-polar. As a result of maladministration by Bradford council, when my brother went into supported accommodation in June 2001 he lost his support from the Independent Living Fund. This experience demonstrated brutally the difference between life with and without the ILF and the limitations of Local Authority care packages.

For the six years my brother went without ILF funding his life ceased. After returning from daycare at 3.30pm he did not go out again until the following morning at 8.30 back to daycare. His social life disappeared, no longer could he access the community, you could forget the days out or the occasional visits to the seaside. To my brother, a short walk down the road with his coat and shoes on can make his day seem so much more yet without the ILF he couldn’t step out of the four walls he was imprisoned in.

Although the local Council was made aware of what position they had put my brother in they refused to fund or help in anyway, continually stipulating they did not have the resources.

The ILF may well have certain flaws but the biggest flaw or mistake would be to transfer full responsibility for meeting social care and support needs Local Authorities. The lives of people without a voice, like my brother, will be ruined.

 

Mar 052013
 

Anne’s ILF story

Anne

Anne

My partner of 20 years left me in 1984. I am ashamed to say that until this time I knew nothing about disability rights let alone Disabled Peoples User Led Organisations. When I informed my social services department they hadn’t a clue as to how they were going to support me.
From 1984 until 1988 was four years of hell, never knowing who was going to get me up in the morning, put me to bed and all the other bits in between. I joined a Local Authority Strategy group with whom I visited a conference in London. It was there I met Jane Campbell who introduced me to the ILF.

To begin with I had only 14 hours ILF funding which in the early days I used to do some social things and join a local DPULO becoming chair after six months. However I was still having home care, districts nurses to put me to bed and a bath nurse once a week except on Bank Holidays when I could miss a bath for three weeks. During this period of my life I was forced into having a hysterectomy because with the limited amount of support I received I was unable to keep myself clean. One evening whilst entertaining two friends the nurse arrived and donned a plastic piny and gloves to undress me. Seemingly cerebral palsy had become contagious, this is when I decided to use some of my precious ILF funding to support me to go to bed.

As the years went on and my impairment grew worse I eventually got 24/7 funding half of which is paid for by the ILF. This package has enabled me to run local, national and European DPULO’s. The latter gave me the opportunity to travel all over Europe supporting people to fight for their rights to independent living. During the 28 years I have been part of many nongovernmental organisations, fed into countless government “think tanks” etc none of which would have been possible without the ILF because Local Authorities will or can only support basic care needs.

When you read my story you may think what a drain I have been on society but let me remind you that I keep six Personal Assistants in work, pay employers National Insurance, contribute both economically and mentally to society, run a web based organisation for disabled people who employ their own PAs, carers or support workers – none of which I could do without the support of ILF.

Mar 042013
 

“We can’t go back 30-odd years” – watch Sophie talking about the Independent Living Fund and her fears for the future in this powerful film by Kate Belgrave: http://www.guardian.co.uk/commentisfree/2013/feb/27/closing-independent-living-fund-disabled-care

 

Roxy’s Story

photo for ilf

I have been fortunate enough to be entitled to the receipt of funding from the ILF for all of my adult life; and have consequently enjoyed a high standard of life thus far. I have multiple disabilities ( including severe physical impairment, severe visual impairment, and Type 1 Diabetes), and the ILF has meant that it has been possible for me to have my support needs met.

 

These considerable care needs mean that I require round-the-clock assistance to do pretty much everything. I need help with washing, dressing, toileting, all aspects of personal care, managing my diabetes, preparing food, eating it, undressing, physiotherapy, moving in bed over night, and those are just my very basic requirements. The extra funding from the ILF means that I can afford to get the support to live a little, rather than just meet these basic needs.

 

Directly because of the support that the ILF has given me, I have been enabled to achieve a high level of education, including a BA and an MA living on campus at university, and I am also now pursuing my second BA with the Open University. The ILF has enabled me to travel abroad and see a bit of the world, and it opens many other social opportunities to me; for example, I love to see live music, and I am keen on visiting the theatre and eating out. I am able to spend time with my family and friends, in my hometown and further afield, and the ILF means that I Have been able to maintain these relationships, because it has meant that I can have assistance with  doing so. The ILF has also made it possible for me to now live independently in my own flat, and I am so glad that I am able to exercise some choice, and am not yet  forced to live in a residential care home.

 

When I think about the ILF closing in 2015, I know that I only have two years left to live. I may exist for a little longer, but I can’t see how I will be able to maintain any quality of life, without the funding to live independently.

 

Despite having multiple disabilities, I am in quite good health; but I know that this will change if the ILF is closed. I am sure that I would have to use agency staff, and I know from experience that they are so badly equipped to help manage medical conditions, that their clients are frequently admitted to hospital. As a diabetic, the only way for me to properly manage my diabetes is with an insulin pump. This requires very frequent blood testing, and specialist training to use, which is not a problem with my direct employees at the moment, but would be impossible with agency staff. I would have to change to another, inadequate, system for attempting to manage my diabetes, as I would be limited to a couple of visits a day from the district nurse to attempt to control my diabetes. This regime will fail to control it, and so I can look forward to a future where I spend a lot of time in hospital. Until they decide that it would save everyone money if I were in residential care.

 

I am usually a sickeningly optimistic person, who can’t help seeing the silver lining to any cloud; but this time I don’t see anything positive in what the government want to do. If they have the capacity for shame, then they ought to feel it and the inhumanity of their proposal.

 

 

Mar 032013
 
We urgently need people to email Scope over the next 2 or 3 days to let them know in no uncertain terms what a disaster the closing of the ILF (Independent Living Fund) will be and that their attitude not to oppose this as they don’t have enough money to campaign on everything is unacceptable.
 
Also we need Scope to be made aware their own inaction in not campaigning with regards to the ILF closure is totally unacceptable from a major Charity who claim to be at all interested in the rights of disabled people. (apologies if this makes you all fall around laughing).
A representative from Scope is meeting with Government this week to speak for you – so can you email Scope on the contact below to let them know exactly what you think of them and what you expect them to say for you. Be as brief or detailed as you want, but don’t allow SCOPE to sell disabled people out yet again.
 
Email address is campaigns@scope.org.uk and copy to their overpaid CEO richard.hawkes@scope.org.uk
 
Alternatively leave messages for them on their facebook pages
 
 

Mar 032013
 

Through support from the Independent Living Fund my step son John is able to enjoy a much more independent way of life, than would otherwise be possible. He can at the moment, go out & access his local community and feel part of society and valued as a person. He is a young man of 30 who wants to continue to live at home and have the best possible chance of some Independence in his life. His mother has been able to set up her own small florist’s market business because the support John receives through the ILF means she does not have to support him full time.

 

The support John receives now through the ILF is working for him and for our family.

 

John stays with me now every weekend from 3pm on Friday to 9pm on Monday, which allows Evonne to work the market and to go to the wholesalers too. I also go over several evenings and mornings to bath and shower John. Because of the ILF John gets to do social things he wouldn’t otherwise be able to. John has complex physical and learning support needs and is not able to work but there are many things he loves to do. I take him to a club night every week where he meets like- minded friends for an evening out. He loves to go to the theatre or cinema most weekends and out shopping too. When the weather is suitable we often go out for drives to the seaside which John loves, and also go bowling amongst other social activities. John also likes to take holidays in the UK on holiday sites which have entertainment and wheelchair access caravans. Again the ILF means that I can take him on these and we went away for 3 short breaks last year which he just wouldn’t get to do with a cre package funded solely by the Local Authority.

 

If the ILF were to close completely John would lose almost 50% of his care package: his care package comes to £52,580 per annum in total, of which £23,376 is made up of ILF payments. He has been scored in the highest funding band on the Local Authority’s Resource Allocation System, but their highest indicative budget would only provide care up to a cost of £31,094 for someone living at home. This would mean he could not be looked after at home and would almost certainly need to go into residential care.

 

Local Authorities and social workers are already cracking under the pressure from cuts and increased caseloads. The British Association of Social workers have been reported as having to revise their own code of ethics because of unmanageable caseloads. These are the Local Authorities and social workers that the government say should be responsible for handling even more case management and care packages if the ILF is allowed to close.

 

We know from personal experience that Local Authorities are cutting care packages back as far as they can under budget pressures and how hard you have to fight to keep what you need even with Independent Living funding in place.  The last time we had a review the social workers tried to cut quite a bit from their part of the package and admitted this was due to budget pressures and nothing to do with what John’s actual care needs are. We put up a strong resistance to this. I saw a solicitor for legal advice and let the social workers know I was doing this. We still however felt pressured to accept a small decrease in his sitting service from Crossroads which was reduced from 10 hrs a week to 5. We were told that if we accepted this the review panel would be more likely to agree not to carry out the other reductions they were trying to enforce on us including reducing John’s day centre care from 5 days to 3, his respite care from 42 days to 28, and to stopping his transport to the day centre altogether which we did successfully resist.

 

The closure of the ILF will have a devastating impact on our whole family. We know that the hours of support funded by the ILF will not be maintained by the Local Authority. John’s ILF package consists of 37 hours per week and I am John’s sole Personal Assistant, so as well as John losing a lot of his Independence I too would be losing my employment which will be a big loss to the family. Evonne, John’s mother, would be forced into making a decision as to whether John could stay at home as he wants to or whether he would have to go into residential care. If he stayed at home she would have to pack in her business as there is no way that she would be able to devote the amount of time needed to keep that running if she is forced into a position of having to stay at home looking after John. She often works until the early hours of the morning preparing and making up flower arrangements and is then back in the market by 8am and sometimes earlier. She isn’t getting any younger and the long term stress & fatigue of looking after John has started to take its toll. Things get harder as disabled people and their families get older and it is more not less care & support that is needed.

 

My Step Son of course is far from being alone, the ILF currently helps over 18,000 people with high support needs, both to access work placements in some cases, and in all cases to access support and the community in a way in which they would never be able to if it is allowed to close. It is called the Independent Living fund for a reason, it allows severely disabled people to live more independent lives than they would otherwise be able to do.

 

The Independence and quality of life that John enjoys because of his ILF award will all be taken away if the ILF closes and it will be a total disaster for him, Evonne & myself too. I would like to say the Government don’t realise that this will be a complete disaster for disabled people, their families and carers, but I’m afraid I think they do know this…..they just dont care!!

 

 

 

 

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