Jun 162013
 

Action for Rail Burton-Upon-Trent

Wednesday July 3rd 1500-1730

@ Burton Station

Highlighting the effects Rail Cuts will have on Disabled and Older Passengers

Featuring

Peter Pinkney RMT Presient

Paul Walker RMT National Executive Midlands

Ken Usher RMT Regional Officer

Jon Wheale Burton’s Labour Parliamentary candidate in 2015

Disabled People Against The Cuts

RMT  UNITE  TSSA  ASLEF  TUC  DPAC  BURTON LABOUR

Protest on Rail Policy Brings Political Turmoil to Small Town

Action For Rail is a campaign group set up by the Trade Union Congress (TUC) and its rail affiliated unions as a direct response to the governments proposals to cut up to 20 000 staff across the rail network. The campaign involves leafleting passengers at railway stations across the country informing them of the governments proposals and the affects they will have on their journeys. Within the leaflet there is a section for the passenger to fill in and send off to their respective local MP.

The government plans to close hundreds of ticket offices across the country and reducing the opening hours at even more. These ticket offices are likely to be replace by ticket vending machines a move that would have a devastating impact on disabled passengers, elderly passengers or anyone who needs help and support with a very complex system. There is also plans to cut platform staff, track maintenance and signalling staff, on train  none driver staff and even the frightening prospect  of driver only operations. In 1963 Dr Beeching took away railway lines and stations. In the present day this government is taking away the background the very people that make the service. Not only is this an attack on peoples jobs it is an attack on a important service which so many people rely on every day.

In the East Staffordshire Town of Burton-Upon-Trent  Action For Rail held its first protest at the towns railway station in December 2012. Burton is a station that will be hit by the governments proposals. So Last December members of the Burton branch of the Rail Maritime and Transport Union (RMT) joined forces with anti cuts campaigners and members of the local Labour party to protest against the governments pans. . After the protest the local Conservative MP Andrew Griffiths wrote to the managing director of East Midlands Trains the company that runs the station at Burton to ask for reassurances that the ticket office at Burton was not threatened with closure. The RMT had suggested that Burton ticket office was threatened with closure based on previous example and stated that if it was not going to close completely then the opening hours would be reduced.  EMT’s managing director David Horne gave the campaign a minor victor by confirming that the ticket office would not close. However  he dismissed Action For Rail as making ‘spurious accusations based upon a union assertion.’ This was backed up by the MP who suggested that Action for Rail was using ‘scare tactics in order to score cheap political points.’ He then had the arrogance to suggest that those involved should come forward and apologies.  Since then the campaign has been involved in several rounds of sparing with the local MP. Action For Rail has pointed out to him that  the campaign is based on opposing the facts of the governments rail policy and is only informing the public of the threats they cause as well as campaigning for the preservation of rail workers jobs. Mr Griffiths has refused to recognise that it is government policy to cut up to 20 000 rail workers jobs and has also refused to accept that to broken rails on the East Coast Mainline of over five inches are a direct results of cuts to track maintenance staff. Since then Action for Rail have returned to Burton on the campaigns national day of action on March 27th. Members of the RMT again linked up with political activists, the local Labour Party including the parliamentary Candidate in 2015 and the highly popular last Labour MP who retired from politics in 2010. They again mentioned with evidence outlined by the TUC and even the governments own legislation that Burton was set to have the opening hours of its ticket office reduced as well as all other cuts that are to be made. Neither EMT or the MP have made any further comment.

It is for that reason that an impromptu protest on July 3rd has been called to try and bring about a response. The aim is to make the protest as big as possible in order to show the MP and EMT that the public are on our side and it is hoped that the more people at the protest the more likely it is to get a response. The protest will be taking place on Wednesday July 3rd from 3pm. In attendance will be.

Paul Walker RMT National Executive Midlands

Peter Pinkney RMT President (subject to availability)

Ken Usher RMT Midlands Regional Officer

Jon Wheele (Labour) Parliamentary Candidate in 2015 (subject to availability)

Local Labour Party Members and councillors

Bill Upton RMT Burton branch secretary

Members of Disabled People Against The Cuts

William Walker (NUS) Anti Cuts campaigner and left wing political activist and Historian. Un-official political officer for Burton branch of the RMT

I would like to express my personal thanks to the RMT president and Disabled people Against The Cuts who are both coming from London for this event.

For further information please visit www.actionforrail.co.uk or visit the TUC’s website or www.rmt.org.uk www.unitetheunion.org.uk www.aslef.org.uk or www.tssa.org.uk

Solidarity to you all

William Walker

 

 Posted by at 13:35
Jun 102013
 

Monday, June 10th -2pm Dean’s Yard, Westminster with delivery of Birthday Card and photo opportunity at DWP office, Tothill Street.

 

Disabled people will gather tomorrow to celebrate the twenty fifth birthday of the Independent Living Fund (ILF) which was set up to support disabled people with the highest levels of support need to live in the community instead of being confined to residential care. The silver jubilee of the ILF follows the government’s announcement in December 2012 that the Fund will be permanently shut from April 2015 leaving disabled people in despair about their future.

 

Since it was established on 8th June 1988 the ILF has supported thousands of disabled people to live active and meaningful lives enjoying choice, control and independence and being able to participate in employment and volunteering, education and training and family, social and public life.

 

Local authorities do not and cannot provide the same level of range of support as the ILF. Even for disabled people found eligible for adult social care services, support packages are ever diminishing as funding for local authorities is slashed. Since the closure of the ILF to new applicants in December 2010 there has been a marked increase in inequality and oppression with support packages that do no more than feed, water and maintain disabled people effectively trapped in their homes. This is inhumane and in clear breach of disabled people’s fundamental human rights.

 

The permanent closure of the ILF signals the end of disabled people’s right to independent living. A spokesperson for Disabled People Against Cuts said, “It is shameful that in one of the richest countries in the world, disabled people should be left to live this way and that independence and inclusion should be sold out in favour of inequality and oppression.”

 

Protesters will gather to share birthday cake and celebrate the lives that support through the ILF has enabled us to live before presenting a birthday card to the Department for Work and Pensions.

 

contact –

Anne 0787 2038370

Jenny – 07966 132 523

 

 

Jun 032013
 

As more and more people are finding that they go from hours to minutes of support from their local authorities, as ILF users are threatened with being passed into a local authority system that cannot serve the aims of independent living, and as independent living is becoming more of a mirage every day, despite article 19 of the UN Convention on the Rights of Disabled Persons (UNCRPD) – we look at Angela’s story. Angela contacted DPAC several months ago when it was clear that her local authority were carrying out practices that appeared to be against protocol -legal representation was found. However, this could not stop the real threats to the reduction of Angela’s support or to her right to independent living:

Angela’s Story
I’m 28 years old – but if they take away my social care it’ll be the end of my life.

I’m disabled but I want to enjoy life the way any other young woman can.  I have two volunteer jobs.

 Now they’re threatening to take this support away – leaving me isolated at home, forcing me to go to bed at 9.30 every night, not even able to go to the toilet.

I did a degree in psychology and criminal behaviour. It was interesting but nothing like CSI! During one of the seminars, I met a representative from Headway, the spinal brain injury charity and I’ve been volunteering there for the last two and a half years. I won Luton’s Volunteer of the Year Award last year.

I’m constantly looking for paid work. I don’t sit around watching TV, I never have, I don’t believe in that. I would love to get a paid job. I have tried. I’ve been for interviews for customer services and as a support worker. Even though we are supposed to have equal opportunities, people still look at my wheelchair.

I was hit by a car when I was two. I have a spinal brain injury which has affected my left side. I can’t walk because I have no balance, so I use an electric chair.

When I turned 18, Social Services helped me find a place to live and be independent. Social care gave me total freedom to get up, go to bed, go to the toilet and settle into my new home and life. With decent social care I’ve been able to do whatever I want. I can go out and enjoy life the way any other young woman can. I have two volunteer jobs, and I can go shopping and see my friends.

Suddenly, out of the blue recently they’ve tried to cut my care from 20 hours a day down to three. I was shocked, upset and angry. I tried to negotiate with the woman at the Council and was told “life’s not perfect for anyone”.  I don’t expect it to be perfect – I want to have a life like any young woman.

I’d have no freedom. I’d have to be in bed at 9.30pm and get up at 7.30am, with no way to go to the toilet in the night either. My carer wouldn’t have time to cook me fresh food (microwaved horsemeat lasagne here I come!).

Imagine living this life for the next 50 years. If I was stuck with that forever, I would give up and lose my passion for living. I would find a way to end my life.

What I’m asking for isn’t unreasonable. I just want flexibility and freedom and a little support. I’m not asking for the world. But I do want dignity and I do want freedom. If I wasn’t in this wheelchair I would have those things, so why shouldn’t I.

What’s worse is it isn’t just me. It isn’t just about reducing how much support people get. They’re taking away all support for some disabled people. Every disabled person who needs support should get it – this is about the basic dignity and freedom to live our lives.

The government has what they call a spending review coming up – it’s when George Osborne decides: How will he spend our money? What do we care about as a country?

Will you sign the petition I’ve started and send George Osborne a message loud and clear that we want adequate support for disabled people to live independently?    They spent more than a billion pounds just on the Olympics village where the athletes stayed last year, surely they can put at least that much into social support for us? We only have a few weeks!
Angela Murray

Petition: http://www.change.org/en-GB/petitions/george-osborne-save-social-care-let-me-and-all-disabled-people-live-with-freedom-and-dignity

Please sign the petition and write to us at mail@dpac.uk.net with your stories. We are also looking for stories from people who were stopped from applying for Independent Living Fund support in 2010 when the Coalition closed it to new applicants.

This is not just about ‘care’ it is about independent living, the right to independent living and support for all. It is about the UK breaking its own signed commitment to the UNCRPD. It is about the impact on real lives like Angela’s. It is fundamentally wrong!

DPAC is continually gathering evidence of the impacts of the cuts, their effects on independent living and quality of life for disabled people and those with long term health issues. Unlike some other organisations we are keen to bring this Government to task through every route we can, including the legal system.

 

 

May 292013
 

some ILF users have had letters asking for permission for their details to be passed onto their local authorities. This seems to be some group 2 users as well as group 1 users although who has had these letters seems rather random.

This is a draft reply that has been sent in response to the request which you might also want to use.

This is I suspect more relevant to those of us who are Group 1 users i.e. those with ILF packages that have no LA contribution.
I replied, today. My response is below and that is the line I am taking.
Thank you for your letter of 1st May 2013 requesting my consent for my details to be shared with my local authority. As you see from the attached form, I have declined this request for now. 

As you know, a judicial review of the legality of the consultation about the future of the ILF was held in March. Whilst the judge ruled that the consultation had not been unlawful, an appeal is being prepared and is likely to be heard. Hence, I do not feel it would be appropriate to accelerate the transfer process to local authorities until the future of the ILF has been decided in the courts. 

Furthermore, in the event the ILF does close and myself and other clients need to seek funding from a Local Authority, I’m really quite capable of approaching them myself and sharing my details with them at a time and situation that I judge to be appropriate. To this end, I may ask for my details to be passed on to my Local Authority at a later date but not now.

 Posted by at 21:51
May 252013
 

Any campaign from this Government which claims to support disabled people should be viewed with suspicion and the latest offering from the DWP is no exception.

The department yesterday put out a press release boasting: “Celebrities have joined forces with the government to help launch a campaign aiming to promote positive role models for disabled people.”

This campaign features a youtube channel where 50 videos have been posted which have “been produced with a focus on overcoming barriers”.  Many of these videos are unsurprisingly about disabled people who have high flying careers, such as Dame Anne Begg, or are stories of disabled entrepreneurs.

The accompanying press release includes a gushing quote from Emmerdale actor Kitty McGeever explaining how after becoming disabled it ‘took some time to get back into work’ but she managed it with the help of the Government’s Access To Work scheme.

This scheme provides funding for workplace adaptations, travel or some care needs for disabled people in employment.  The number of people benefiting from Access To Work has plummeted by over a third since this Government weren’t elected showing the true situation for disabled people currently seeking employment.

Whilst this campaign may be a cheap attempt to improve those figures, it comes against a background of savage cuts to benefits, services and housing for disabled people.  It is a campaign run by a government which is declaring hundreds of thousands of sick and disabled people to be ‘fit for work’ with the aim of stopping their benefits.  A government which has been only too happy to force sick and disabled claimants onto workfare as part of the Work Programme -  with no public scrutiny of where they are being sent or for how long.  A government that is set to force potentially hundreds of thousands of disabled people from their homes due to the bedroom tax, benefit cap and other measures.

And when Personal Independence Payments (PIP) fully replace Disability Living Allowance, this is a Government which will have slashed completely a vital benefit for 20% of disabled people.

This move alone is likely to mean that over 50% of disabled people are forced to leave work as funding for specialist equipment, care and transport disappears*.

Vast numbers of disabled people are set to be plunged into poverty by these measures, and it is this which reveals the true intentions of this latest DWP run project.  One of the charities involved in the campaign is quoted as saying that the “project is about showing what disabled people can do – not what they can’t”.

This is eerily similar to David Cameron’s line when interviewed shortly after the opening of the Paralympic games when he said: “It’s about the inspiration and it will change people’s minds and that’s what matters. It’ll teach people about what they can do, rather than what they can’t do.”

It is also the line used to justify the benefit-stripping Work Capability Assessment which according to the DWP focuses on “what an individual can do despite their health condition, rather than simply what they can’t.”

Minister for Murdering Disabled People, Esther Mcvey also pops up in this week’s press release, and whilst not quite so explicit, her underlying message is the same:  “young disabled people tell me they want to see more inspiring role models to show where disabled people have achieved their ambitions despite the odds being stacked against them”

For young disabled people the odds are stacked against them like never before due to this Government and in this context the true nature of the DWP’s latest campaign becomes clear.  This is not about providing role models for young disabled people or helping people fulfil their potential or even changing perceptions of disabled people as is claimed.  This Government doesn’t care about any of that.  This campaign is yet more insidious DWP propaganda attempting to give the impression that those plunged into poverty due to the ruthless cuts to disability benefits will only have themselves to blame.  If only they’d learnt to play wheelchair rugby, or been a fucking Dame, then they could afford to put the heating on.

The campaign also has a facebook page which might be a good place to share experiences of what people can no longer do due to the vicious cuts to benefits: https://www.facebook.com/Rolemodelsinspire

Dawn Willis writes well about this kind of narrative: ‘I’m not Stephen Fry, how damaging is that?’ from Dawn

*this figure comes from a survey carried out by Disability Rights UK (DRUK) which reported that 56% of those asked said they would have to leave work if they lost their DLA.  DRUK are notoriously in the pockets of the DWP, with Chief Executive Liz Sayce writing a report which recommended the closure of the Remploy factories.  The survey relating to the number of people likely to leave work due to PIP seems to have disappeared from DRUK’s website, for which there is surely an entirely innocent explanation.

Follow me on twitter @johnnyvoid

With massive thanks to the brilliant Johnny Void for letting us re-post

See more from Johnny at http://johnnyvoid.wordpress.com/2013/05/25/achieve-your-potential-or-starve/

 

May 222013
 

On the 22 May the Mental Health Resistance Network won their Judicial Review case against the Atos tests (WCA) and the impact on those with mental health issues. We congratulate them, the two people that took the case and the solicitors for the work they have done in exposing the WCA for the nightmare that it is for those with mental health issues and all disabled people. The DWP say they will appeal the ruling: we hope this is the beginning of the end for the WCA and the horrors that it is putting people through. However, this success would not have been possible without legal aid, and is tempered with further fears of the legal aid cuts.

 The Condems have already pushed through some of their wealth charter on justice and legal rights through their punitive cuts to legal aid for those facing benefit problems. Its not over yet-they now want to re-examine the process of Judicial reviews. However, the cuts so far are already affecting the process of judicial reviews because the new rules mean that those solicitors who take cases are less likely to be paid with the Condem cuts. We do not see all the work that goes into cases nor the effect that the cuts are having on those solicitors and legal firms who believe that justice has no class basis and is not restricted to those with wealth. But the Condems have cut funds to solicitors and CABs which means we have fewer allies to fight our cases. The Condems are doing a great job of removing every element of human rights, welfare and social justice from the British people. We cannot continue to let them get away with it without doing more and more about it.

 The proposals cover a range of aspects of legal aid including criminal work, prison law and judicial review and it can be difficult to get across what it means.

 In judicial review, for example, it’s hard to explain the impact of the proposal to prevent solicitors getting paid for all the work they do on cases if they don’t end up getting permission to go to a full hearing. So many cases succeed before that by just spelling out what the public body is doing wrong so they realise they have to sort it out. But there can be loads of work involved in getting to that stage and it would be really hard if lawyers can’t get paid for that at all. Judicial review lawyers and other legal aid lawyers will try everything they can to keep trying to help people but it just gets harder and harder to survive and already that means it’s hard to find someone skilled enough who can take cases on.

 What is clear is that disabled people will be disproportionately affected within each of the areas that is proposed to be cut – including disabled prisoners and others in the criminal justice system but also in areas like public law/judicial review which disabled people need help with more than ever now because of the effects of other cuts.

 We are trying to encourage as many people as possible to come forward with stories that illustrate the real types of problems they face that legal aid is vital to help with. There is a brilliant website set up by someone from Young Legal Aid Lawyers http://savelegalaid.wordpress.com/

 People can submit stories of how legal aid has helped them (or hasn’t been able to help them because of the effect of the cuts already – eg in many areas there are ‘advice deserts’ where you simply can’t get hold of a lawyer with the right expertise). There are several about disabled people unable to fight injustice because of cuts already in place in many areas including the criminal justice system.

 We need to see more experiences good and bad – the issues and what can be done to sort them out are so invisible to most people. There aren’t many examples of disabled people tackling problems with social services cuts etc.

 The website makes it really simple to give the examples. It’s so important to show people that it’s not about lawyers, it’s about people who need advice, and it’s a false economy to deny them that, in so many ways not least undermining the rule of law because people have no real access to justice unless they are wealthy.

 Please help and give your stories http://savelegalaid.wordpress.com/

Tweet share on Face Book and pass this on- its up to us!

Please complete the consultation closing date June 4th HERE

More info on Consultation and what is happening HERE

May 202013
 

IN JUNE THE INDEPENDENT LIVING FUND IS 25 YEARS OLD. 

The ILF has been invaluable to enable disabled people to live independently now without even any vote in parliament or any discussion the Butchers of Benefits have announced it will close from 2015 with no replacement funding for more than 12 months maximum. Many local authorities have said this will result in disabled people being forced back into institutions or left to rot in their own homes without adequate levels of support.

On June 10th we’re going to have a birthday celebration with some others including hopefully a magician, street theatre, and cake plus lots of birthday cards to go to our DWP ministers.

We’re all meeting up between 1.30 pm and 2pm at Deans Yard, SW1P 3PA which is at the back of Westminster Abbey (ie the side that isn’t opposite House of Commons).

Nearest accessible tube is Westminster and for other travel information contact Transport for All http://www.transportforall.org.uk/

Hope to see you all there. Feel free to drop us a line at mail@dpac.uk.net if you can come to this. Bring friends, banners, and noise plus cakes if you can.

 Posted by at 21:20
May 172013
 

Government plans to permanently shut the Independent Living Fund are a concern for all disabled people and to everyone who cares about inclusion and social justice in the UK. The ILF was set up to support disabled people with the highest level of support need to live independently in the community regardless of their level of support need and when the alternative was residential care. The end of the ILF without adequate alternative support provision signals the end of the right to independent living for disabled people and a breach of Article 19 of the United Nations Convention on the Rights of Disabled People.

The ILF has been shut to new applicants since December 2010 and thousands of disabled people must therefore have missed out on support needed to enjoy full and meaningful lives. At both central and local government levels no information has been recorded to monitor the impact of this and to measure any potential breach of Article 19.

Inclusion London and Disabled People Against Cuts are asking for individual disabled people to come forward if you think you would have been eligible to apply to the ILF before it was shut at the end of 2010. It is important that information is recorded from the UK about any threat to disabled people’s fundamental rights and freedoms and will give disabled people in the UK the chance to invoke international protection of our rights.

If you are happy to share your story, information the support you get (or don’t get) and the impact this has on your life then please contact ellen.clifford@inclusionlondon.co.uk or phone 020 7036 6032.

 

May 162013
 

This Code of practice for transition reviews of those in receipt of ILF funding has been drawn up by ILF, ADASS and LGA.  It seems fairly meaningless so there is no surprise there.

Transfer Review Programme Code of practice
Purpose of the code of practice
Following engagement with local authorities in England and disabled people and their organisations, the Independent Living Fund (ILF), the Association of Directors of Adult Social Services (ADASS), and the Local Government Association (LGA) have co-produced this code in order to promote best practice to support the effective transfer of ILF users to sole local authority support from April 2015.
The code aims to maximise the success of the transfer review programme and enhance the customer journey throughout transition by providing key principles to underpin partnership working.
Key principles
1. Commitment to personalisation, inclusion, and choice and control
Throughout the process all parties will seek to demonstrate a commitment to the underlying principles of personalisation. There will be a high level commitment to maintaining choice and control, as well as maintaining users’ independent living outcomes.
All parties will ensure that users and their representatives are fully involved in transitional planning, and will take account of the views and requirements of users and their families/representatives in the preparation and implementation of the transfer of support.
2. Working in partnership
It is essential that the ILF and local authorities collaborate and work in partnership throughout the transfer programme to ensure that the necessary plans and structures are in place to fully support users up to and beyond 2015.
All parties will be committed to working towards and meeting relevant deadlines so as to guarantee that the programme is fully completed by 31 March 2015.
2
3. Open communication
Throughout the programme there needs to be continuous and open communication, providing relevant information that is shared in a timely manner. All parties should ensure that users are kept informed of plans that impact on their future. It is important that users have a clear awareness and understanding of what the transfer will mean for them.
4. Designated support
In order to facilitate the management of the programme, the ILF and local authorities will have place a named point of contact to manage relations between the ILF and each local authority, for both operational and corporate liaison. There should be a clear delineation of responsibility and accountability in running the programme both within the ILF and with local authorities.
5. Commitment to joint reviews
To aid the transfer process the ILF and local authorities will collaborate and participate in the joint transfer review programme, using a person centred assessment to identify how independent living outcomes can continue to be met.
In addition the programme will need to identify and inform users of what they will need to do prior to April 2015 to ensure that their eligible support continues to be met.
To aid in this process the ILF will seek consent prior to the initiation of the transfer review programme from all group 1 users to pass on information to local authorities. This will facilitate the collaboration between the ILF and local authorities and enable full participation in the programme by local authorities.
6. Advice and advocacy
Local authorities should where possible ensure that there is sufficient provision of, and clear signposting towards, independent advocacy and support. The ILF and local authorities will work together to share information on support available for users in order to effectively signpost people to this.
7. Personal budgets
The transfer to local authorities will be an opportunity to promote the take up of personal budgets. ILF users currently receive cash payments directly from the fund to pay for their support and the expectation is that they will continue to be able to exercise choice and control over how their care is provided. Users should be informed of what options and support are available locally.
3
8. Provision from April 2015
Transitional arrangements need to be in place from 1 April 2015 which enable users to plan for and manage any change in their support. The arrangement of a period of phased transition being provided that supports the protection of independent living outcomes is one of the issues for consideration during this transition period.
We believe that it is essential that before the end of the transfer programme all ILF users and their representatives have a clear understanding of how their eligible support needs will be met immediately following the transfer.
Any change to support arrangements made by the local authority should take into account the impact upon care providers making certain that the user is able to meet legal and contractual obligations where provision is reduced or replaced. In particular this includes redundancy payments and notice periods.
9. Data sharing
Any transfer of information needs to ensure that no person who has expressed a wish to receive support after April 2015 is unaccounted for.
The ILF will need to monitor the transfer of information to the relevant authorities. When information is transferred to local authorities there will need to be in place a mechanism to acknowledge the receipt of this information. All parties will ensure that appropriate measures are in place to transfer and protect sensitive information in compliance with data protection legislation.
10.Monitoring and evaluation
The ILF and local authorities will work in conjunction to ensure that there is a system in place to evaluate the effectiveness and progress of the programme. Any evaluation will naturally engage the opinions of users and their representatives.
Each party will have in place a clear process for managing complaints about decisions taken as a result of reviews. In addition the ILF and Local authorities should work in conjunction to resolve any concerns raised and provide a rapid resolution of any issues that arise.
7 May 2013

We also have this equally meaningless response to an FOI request for further information about what funding will be available. To summarise there is NO information which seems to be available to inform people what will happen.

https://www.whatdotheyknow.com/request/159619/response/390200/attach/html/2/FOI%202003.response.pdf.html

 Posted by at 18:39
Apr 302013
 

If you can judge a nation by how it treats those in most need, the judgement on this nation is damning. Those with the highest needs are effectively being attacked by a government for a circumstance they had no choice in: being disabled.

It is a damning indictment of this government that they have launched attack after attack on disabled people leaving them without support and removing income. The proposed closure of the Independent Living Fund (ILF) is the latest in that assault.

Five severely disabled people whose right to live independently in the community and who face having their lives trampled on by a decision which has never been discussed let alone voted on in parliament have vowed to carry on their legal fight against the callous Coalition government’s proposed closure of ILF.

While Conservative MPs around the country continue to churn out platitudes that their party will protect the ’most vulnerable’ the reality of what their ministers are actually doing is far different. The loss of the Independent Living Fund will have disastrous consequences for disabled people with high support needs and as DWP and Local Authorities have said will result in people being forced back into care homes or left in danger in their own homes.

How many will have to be abused or die through neglect before society takes this threat seriously enough to say this is a cut too far? Anyone of you could become disabled and need this level of care to keep living in your community or at home with your family and friends. This is not about party politics this is about justice, morality and dignity. It is about the right to continue to have a life worth living if you do become disabled at some point in your life.

All five will appeal the decision handed down in the High Court on April 24th claiming that the government failed to meet its Public Sector Equality Duties when carrying out what they claim was a flawed consultation process.

DWP have previously said that the ILF fund was unsustainable. They fail to clarify as part of the consultation if there will be any guaranteed on-going extra funding devolved to local authorities to take over the additional costs of meeting people’s care and support needs after 2015. Something which could be a slap in the face for already hard pressed Local Authorities whose budgets are already being squeezed by a further 28% and who will have to implement these cuts.

If, like us, you think its wrong that disabled people (8%of the population) bear 29% of all cuts and that disabled people with severest needs (2% of the whole population) bear 15% of all cuts[i]-

Please support the five and write to your MP to say this is a cut too far.

Find your MP

________________________________________
[i] ‘A Fair Society?’ Centre for Welfare Reform, January 2013

Apr 162013
 

If you missed it all -the Disability Action Alliance or DAA[i] has had a strange and tortured beginning. It was set up in 2012 to help with the new disability strategy. The merged organisation of RADAR, Disability Alliance and the National Centre for Independent Living (NCIL) AKA Disability Rights UK (DRUK) got the’ job’ of co-organising the DAA. This was a great surprise to all, not least the United Kingdom Disabled Peoples’ Council (UKDPC). The great surprise was that this ‘job’ hadn’t been advertised or put out for tender. After initial rumbles of shock and discontent DRUK said that they would not be paid for this ‘job’ so it didn’t matter, or words to that effect -and we all forgot about it.

Another issue was that this Alliance would include charities, presumably big disability charities as well as small ones, and private companies or corporations. This caused more rumbles of shock and discontent because some of us had been taught and still believed that any ‘disability movement’ was about disabled people leading it, was user-led and rights not charity based, we weren’t sure how to deal with this astounding corporate thing being added on either.  DRUK said DAA would be advising on government policy and would not supplant the role of disabled peoples’ organisations so it didn’t matter, or words to that effect -and we all forgot about it.

Then there was a flash new website called unsurprisingly: Disability Action Alliance. At the link if you want to have a look http://disabilityactionalliance.org.uk/ or join

A site with pictures, a bit government branded in style, but what can we expect.  The ‘About us’ section says:

During the development of Fulfilling Potential – Next Steps, the idea of a new way of working in partnership emerged and ODI agreed to set up the Disability Action Alliance.  Disability Rights UK agreed to convene the Alliance to ensure ‘nothing about us without us’ – so that disabled people’s voices and experiences drive change, locally and nationally.

The ODI or Office of Disability Issues (an adjunct to the DWP) also set up a network called the ‘Network of Networks’ in 2010 so that disabled peoples’ voices could drive change, locally and nationally’ with a pure base of 12 user-led disabled peoples’ organizations, which they then disbanded, unceremoniously, shortly after the development of Fulfilling Potential.  So the ‘nothing about us without us’ does ring a bit hollow, especially with the potential corporate business and big disability charities in the ‘us’ bit.

Maybe a more apt chant would be ‘something about us without us again’ led by Government departments, sorry ‘disabled peoples’ voices’

Alliance Declaration and Membership Agreement

There was some more shock and discontent over the DAA ‘membership agreement’ on the web site. For example the section states members must:

‘Respect the views of other members, and not represent their views unless they are given permission’

It is unclear what this means exactly, but it doesn’t sound particularly empowering to disabled peoples’ voices. Does it mean that a group cannot represent another groups views ‘unless they are given permission’? or that they cannot represent their own views? It all seems a bit defeatist to us. Also included is that members must:

‘Protect the integrity of the Alliance and not bring it into disrepute’

Again, what does this mean? Why would any group want to bring the alliance into disrepute? And what is the ‘protect’ element about?

We also see members must: ‘Not campaign or lobby in the name of the Alliance (this would not affect whether members campaign or lobby on behalf of their own organisations)’

Oh well, that’s good then and…in the spirit of incorporating others into the new world order, members must:

‘Identify existing groups/alliances/networks who may already be acting and could be engaged’

Already be acting….?

Anyway, the drive for members of the quango, sorry, new exciting network of disabled peoples’ voices was launched and anyone could join up, presumably providing they could understand exactly what the Alliance declaration and membership agreement actually meant. At the time of writing there are 102 members. As we seem to have waited so long to find out who they are let’s see if our anticipation has paid off…

Members of DAA so Far….

Members include some disability type organisations, plus: the Department for Works and Pensions, the Department of Climate and Energy Change and presumably the ODI. Also Lloyds bank is there and big charity Shaw Trust. There are a number of companies but no big names such as Atos or Capita which is reassuring, for the moment anyway; a couple of DIAL’s (taken over by SCOPE a few years ago), a regional unison, and a local council.

For those who filled out or took part in completing the consultation on the disability strategy (Fulfilling Potential), the outcome of the DAA is all slightly surreal. There we were with our disabled voices trying to affect change and here we are with a hotchpotch of unforeseen organisations who are going to talk about it-providing they get ‘permission to represent’ their? Our? the DWPs? Views-oh who really knows anything about what’s going on with this anymore?

There was more surreal stuff to come when the TUC Disabled Workers Committee were approached by the government to join the Alliance- eh? –‘approached by the government’ must have been some kind of an elongated typo on the TUC website there…but anyway they said no. Why did they say no?

TUC Disabled Workers Committee says no to DAA

According to a piece in Disability News Service and on the TUC website: the TUC disabled workers committee were approached by the Government-OK-so not an elongated typo- to join the DAA. They said no. According to the TUC web site, they said no because:

Disabled trade unionists feel very strongly that joining the DAA – an organisation recently set up by the Office for Disability issues to encourage groups representing disabled people to work together – would restrict the TUC’s ability to campaign against government policies that are affecting disabled people.

Representing disabled people? Does Lloyds bank really represent disabled peoples’ views or do the DWP or those other government departments?

No, we didn’t think so either. But Sean McGovern (chair of disabled workers committee) gets to the heart of the matter and maybe to the focus of the real disability strategy when he says:

The government has been attacking the living standards of disabled people for almost three years now and things are getting worse.

Unions are working with disabled people against these brutal and inhumane cuts, and are campaigning against the government’s unnecessary and damaging austerity drive.

The ATOS work capability assessments, the closure of the independent living fund, the switch from disability living allowance to the personal independent payment, and the bedroom tax – every single one of these changes is punishing and impoverishing disabled people and their families.

Joining this government-inspired alliance now would be to pretend that none of this is happening.

We want to see all disabled people and the organisations that represent them continuing to oppose government policy and not conned into becoming part of the problem rather than part of the solution.’

And this is exactly where any growth of a real disabled peoples’ led disability action alliance must be focused for anyone aware of what is really happening to disabled people under this government and its disability strategy

 You can join up at www.dpac.uk.net

We already have over 12,000 members and supporters, and not a government department in sight. You know it makes sense.



[i] Not to be confused with Disability Awareness in Action a user-led organisation

Mar 272013
 

An important recent post on Disabled People Against Cuts’ (DPAC) website reveals how the big disability charities once again let down the very people they claim to support by being indifferent at best to the closure of the Independent Living Fund (ILF).

As the name suggests, the fund is designed to support the most severely disabled people in living independent lives.  In a chilling sign of what was to come, less than two months after this Government weren’t elected it was closed to new applications.  Funding is now being devolved to local councils, who will have no legal duty to maintain the support offered under the scheme.  All ILF claims are planned to end by 2015.

The closure of the fund has met fierce opposition from grassroots campaigners such as Disabled People Against Cuts and Black Triangle.  Documents recently revealed in a high court appeal against the fund’s closure reveal it has been met by little more than apathy from the major disability organisations.

The documents show that the DWP recognise “that upon reassessment by LA’s (Local Authorities) most users are likely to see some reduction in the current funding levels, and there are a group of users with low care needs that may not be eligible for local authority support under current needs thresholds in most LA’s.’”

Despite this – according to the DWP at least – Mencap (highest paid earner £190,000 pa*), The MS Society, and Scope (highest paid earner £140,000) all supported the closure of the scheme, although Scope’s support was weak and they showed ‘concern’.  RNIB (highest paid earner £140,000) disagreed with the closure of the fund, but this disagreement was summed up as ‘weak concern’ by the DWP.  Only Disability Wales and Inclusion Scotland are mentioned as strongly disagreeing with the closure.

Charities will no doubt argue with the DWP’s assessment of their indifference to disabled people’s lives, however for once it seems the department may be telling the truth (stop laughing).  The documents point out:  “none of the largest national disability organisations requested ministerial meetings and many did not submit responses to the consultation. While we have had an increasing number of letters from MPs on users’ behalf, the proposal to close the fund has received almost no attention in the mainstream media.”

DPAC themselves have requested several meetings with ministers over the closure of the fund.  All requests were ignored.

With thanks to the excellent Johnny Void see more brilliance at: http://johnnyvoid.wordpress.com/author/johnnyvoid/

Follow  on twitter @johnnyvoid

 

Mar 232013
 

In the court case taken by five disabled people against the proposed closure of the Independent Living Fund (ILF) , and supported by a campaign led by DPAC and Inclusion London certain documents were used. These documents are mainly correspondence between civil servants at the Government’s Department for Works and Pensions (DWP) and the minister for disabled people: Esther McVey.

These documents were released and declassified after the court case because they had been mentioned in the case. This is a summary of those documents.

Early analysis of responses to the consultation on ILF Closure (undated)

This document gives a breakdown of responses and several points for McVey to take into account. First, the consultation asked:

Question 1Do you agree with the Government’s proposal that the care and support needs of current ILF users should be met within the mainstream care and support system, with funding devolved to local government in England and the devolved administrations in Scotland and Wales?[1] This would mean the closure of the ILF in 2015.

 

Question 2What are the key challenges that ILF users would face in moving from joint ILF/Local Authority to sole Local Authority funding of their care and support needs? How can any impacts be mitigated?

 

Question 3What impact would the closure of the ILF have on Local Authorities and the provision of care and support services more widely? How could any impacts be mitigated?

 As we see never were questions asked on extending the ILF or keeping it open. In fact question 1 is what is called a ‘leading question’

In the documents DWP tell McVey:

       ‘As we expected with the current challenges facing the care and support system, the majority of ILF users are opposed to closure of the fund, with many doing so on the basis that there could be no guarantee that their current level of funding would be protected in the future’

and….

           ‘A range of smaller national and local disability groups expressed similar concerns with our proposal. Some have been able to support the closures in principle but usually conditional on current user awards being protected as part of ring-fenced funding. The most vocal group has been the relatively new Disabled People against Cuts, DPAC. This group has taken a very strong critical position on a range of DWP policies’.

Yes we have and both Miller (our old mister for disabled people) and McVey refused to meet us and ILF users several times-in fact they didn’t even bother to respond to these requests!

We were very surprised to see this section advising McVey:

           ‘The consultation exercise has been immensely useful and we have been satisfied that we have listened to a collection of views that is representative of all those individuals or organisations that have an interest in or may be impacted by closure and devolution and have considered whether to modify the preferred position set out in the consultation in light of those views’ (emphasis added)

Amazing! Because if most said : keep it open, and if most said people would lose support or enter institutions, including responses from local authorities: what exactly did they listen to?

The documents recognize that ILF users will see a drop in support with some not being eligible for support at all

             ‘We do recognise that upon reassessment by LA’s most users are likely to see some reduction in the current funding levels, and there are a group of users with low care needs that may not be eligible for local authority support under current needs thresholds in most LA’s.’

The cost of closure will be £39 million! One document states that some of this has been achieved by the savings from closing ILF to new users in 2010. But closure cannot be publically defined as value for money-indeed!

        ‘The transfer costs mean that this proposal will cost rather than save money and therefore it cannot be defined as value for money. However the transfer costs are fully affordable’.

Not to ILF users they aren’t!

And wouldn’t £39 million, plus transfer cost be better put into ILF? Of course that’s not what they want to do, in spite of a consultation exercise where the majority appeared to say a resounding NO to closure.

Why did the DWP think it would Easy to Close the ILF?

One of the reasons given that the DWP found it so easy to close the ILF to new users in 2010 was the lack of any objections from the ‘big disability organisations’ which DWP call ‘Major Departmental Stakeholder Responses’ whatever that is.

In terms of the announcement of proposed closure in 2015 it was noted that none of these ‘stakeholders’ had requested a meeting with ministers from Westminster. Basically most had kept quiet, and hadn’t seen the closure of ILF as any big deal. Great support guys!

On this basis the DWP tell McVey in another document around the potential announcement of the closure in 2015

         ‘on the basis of attention shown so far, we do not think this will   receive  significant attention on its own…’

Guess they forgot about that vocal group DPAC and Deaf and Disabled Peoples’ Organisation: Inclusion London, because the closure of the ILF has now received significant attention in the UK and in Europe, at European Parliamentary level through MEPs and at UN level and we’ll make sure this continues.

Neither DPAC nor Inclusion London has the millions for campaigning that the big disability charities have, nor dedicated media, press and campaign teams. But we do have passion, and we do care about what happens to us all as disabled people, and we care what happens to independent living. ILF users taking the case and supporting the case have appeared on TV, on radio and in newspapers to get the message across that ILF is important and this will continue too.

Any journalists that want to know more or run stories can contact: mail@dpac.uk.net

So what did these so called ‘stakeholders’ say in response to the consultation? According to the DWP, there was not enough resistance at all.

In the early analysis document those who the DWP define as key stakeholders are broken down and their responses analysed. Below is what DWP said of their ‘Major Departmental Stakeholder Responses’ in the exact words of the DWP to McVey

 Carers UK-Weakly Disagree

-User packages would be reduced placing extra demand on unpaid care

Disability Rights UK-Concerned

-Lack of choice and flexibility under Local Authorities (Las)

-User packages will be reduced

-Poor perception and past support of Las

-Difficult for ILF users to transition easily

 Disability Wales- Strongly Disagree

-users packages would be reduced which could make it impossible to support ILF users in a family environment

-since the 2010 closure of the fund to applicants disabled people have had to start entering residential care.

-believes the government is targeting the disabled for cuts

-LAs could not cope with the additional workload

-Lack of choice, flexibility and dignity for ILF users under LAs

-Do not believe transitional protection will be offered

 Inclusion Scotland-Strongly Disagree

-The proposal would create a postcode lottery of support

-User packages would be reduced

-LA support is budget led rather than needs led

-ILF expertise would be lost

-Lack of choice and flexibility under LAs

 MENCAP-Pragmatic Agreement

-If reforms go ahead they should be about finding a better system, not cutting costs

-Funding should be allocated to LAs as a separate ring fenced funding stream based on current ILF regional spending patterns in which current users enjoy time-limited protection

-need for Government to provide advice and information to all parties

 MS Society- Concerned Agreement

-Consolidation of funding streams would simplify the care system

-The proposal should not be enacted until the impact of current welfare reform is understood

-Lack of choice, flexibility and dignity for ILF users under LAs needs to be addressed

-LAs need as far as possible, to replicate the personalised expertise of ILF

-Representative groups need to be closely involved in the transition design

 RNIB-Weak Concern

-Concerned that closure might lead to a breach of article 19 on UN Convention of the Rights of Persons with Disabilities

-Representative groups must be closely involved in transition design

-Current levels of support must be maintained

 SCOPE-Concerned Weak Agreement

 -Consolidation of funding streams would simplify the care system

-The proposal should not be enacted during current funding constraints

-The mainstream care and support system needs more experience and commitment to independent living to be able to undertake the responsibilities of the ILF

 Spinal Injuries Association-Disagree

 -Funding is likely to disappear into wider LA budgets on transfer

-ILF is more efficient than LAs

 

‘Rights not Charity’ seems very apt as the major charities for disabled people appeared to agree with the closure, after all more institutionalisation of disabled people might benefit them mightn’t it?  Disability Rights UK (DRUK) a so called user-led organisation incorporating, but clearly forgetting the principles of National Centre for Independent Living, did not offer more than ‘concern’.  The Spinal Injuries Association ‘disagreed’ but what this needed was for all to come out and say ‘Strongly Disagree’ as Disability Wales and Inclusion Scotland did.

 Remember that when the charities ask you for money, remember that when those groups that didn’t come out fully against the closure of the ILF say they are on the side of disabled people or are working for disabled people: we believe they can no longer justify either of those statements.

 The DWP told McVey that ‘stakeholders’ (SCOPE, DRUK etc)

‘..have traditionally found it hard to defend the ILF model of funding care..’

‘none of the largest national disability organisations requested ministerial meetings and many did not submit responses to the consultation. While we have had an increasing number of letters from MPs on users’ behalf, the proposal to close the fund has received almost no attention in the mainstream media’ (correspondence to McVey 7th November 2012)

We will work through more of the documents looking at issues on transition, and the DWP’s media strategy which is unsurprisingly at odds with any issues raised by disabled people-you know the stuff Closure of ILF will give ‘choice and control’ , ‘committed to supporting disabled people’ blah, blah, blah.

The big difference here is that it is clear from the documents  that the DWP are perfectly aware that ILF users will lose funding and that their needs won’t be adequately met through the local authority system.

Cuts versus Reform

Finally, the DWP were keen to try and put the message out that the closure of the ILF was not about ‘cuts’ but about ‘reform’ –what’s the difference? They do appear to believe that if they say reform we all think this is a good thing, rather than identifying that everything that comes under the heading of reform is actually another cut.

The documents cannot be clearer: this is a cut

A cut to the dignity, life chances and lives of disabled people-not just those who are currently supported to lead independent lives through ILF , but also those who would have qualified before closure to new applicants in 2010 and all who could benefit from the ILF system in the future

Support ILF users now; support a better future-say no to the closure of the ILF!

 

 

 

 

 

 



[1] Funding for ILF users in Northern Ireland is currently the responsibility of the Northern Ireland Department for Social Development, not the Department for Work and Pensions.

Mar 172013
 

If you’re an ILF user and not already part of the ILF campaign group please email us your contact details at mail@dpac.uk.net

 Video from outside courts March 13th thanks to Shaun
 Reel News http://reelnews.co.uk

Dear All,

Firstly – well done us ! Great turn out on Wednesday and despite a new Pope
(!) we got some media coverage which I think we can definitely build on.

Key points from court case:

Regardless of whether we win or not (ruling likely end of April and I think
we have a very good chance) some potentially explosive stuff came out from
internal dwp documents that are now in the public domain namely:

· The dwp think its unlikely that there will be any funding for ilf
users after 2016. It looks like they are thinking of a year’s – non ring
fenced – additional transition money for LA for 2015-16 (to sugar the pill
as the judge put it) but then nothing.
· There is an internal paper that says we have to keep up the narrative that this is about reform not
cuts !
· The dwp estimate the cost of closure and transition to be £39
million!!
· The dwp barrister took an absolutely disgraceful line of defence
trying to say that the closure was not based on money but on desire for
equity between non ilf users and ilf users – ie ILF users have more so we
need to take that away so they are in the same situation as non ilf users.

Implications for our campaigning:

As I said regardless of the judges decision we need to use the dwp
documentation in our campaign from now on – its explosive evidence that
completely supports our position that this is a) about a cut and b) ilf
users will have their support cut with all the devastating consequences we
have been saying. These documents also reveal just how cynical the dwp have
been ie by admitting they need to pretend its about reform and not cuts.

The dwp ammo we will now have should help us really pile on the pressure
with Cllrs and MPs – both in substance of what’s been revealed ie likely no
funding post 2016 but also how the dwp have gone about this. Given this is a
cut targeted at 20,000 disabled people with highest support needs I think
this could be potentially extremely politically embarrassing – if we play it
right.

I think we also have a real chance to re-start lobbying and campaigning with
Local Authorities: its clear now that the govt intention is to devolve
responsibility to LA’s but not any funding to meet these responsibilities .
Now this is in the open I think we could have a real chance of getting some
LA’s on our side – particularly Lab ones.

Finally, some ILF users have done a great job in getting SCOPE to finally come out in support. We need to continue to put pressure on them because another DWP internal paper mentioned in court said (to paraphrase) we got away with the closure to new applicants in 2010 and the major disability charities are not interested in defending ilf . This should shame them into coming out in support.

Despite how shocking the info revealed in court has been we need to take
heart that we are right: right to campaign to save the ilf and right that
this is about cuts and nothing else.

So we need to start planning our campaign with this new info so we are ready
for decision at end of April.

 Posted by at 15:20  Tagged with:
Mar 112013
 

 

DPAC Logo 3 amendment 1 (Small) IL logo

 

VIGIL TO SAVE THE INDEPENDENT LIVING FUND

AND OUR RIGHT TO INDEPENDENT LIVING

March 13th 2013 – from 12.30pm

Outside front entrance Royal Courts of Justice, the Strand, London, WC2A 2LL

Speakers: Linda Burnip (DPAC co-founder), Tracey Lazard, (CEO Inclusion London)

Writers/performers Sophie Partridge and Penny Pepper to read from their new script highlighting the impact of the ILF closure

Six disabled people who receive support funded by the Independent Living Fund (ILF) will take on the DWP in the High Court on 13th and 14th March to challenge the government consultation which proposed to close it.

The ILF was set up in 1988 to support disabled people with the highest levels of support need to live in the community. Since then it has helped thousands to live active and full lives.

The government decision to close the Independent Living Fund and instead devolve responsibility to local authorities follows a consultation that disabled people claim is unlawful.

Whereas support received through the ILF has transformed thousands of lives, local authorities are not able to provide the same level or range of support through their current systems. With central funding to local authorities being cut this can only get worse.

Join us to show support and solidarity to those disabled people taking the legal challenge on an issue that is importance to everyone who cares about social justice and the rights of disabled people to live independently, equally and with dignity.

Speakers will include Linda Burnip, co-founder of Disabled People Against Cuts, Tracey Lazard, Chief executive of Inclusion London and many disabled people who are personally affected by the closure of the Independent Living Fund. Writer/performers and ILF users Sophie Partridge and Penny Pepper will read from their new script developed to highlight the importance of the Fund.

You can listen to how this vicious attack will affect disabled people at these links:

http://www.dpac.uk.net/2013/02/a-nasty-cut-people-affected-by-the-closure-of-the-independent-l5142/

For more information about the vigil contact: mail@dpac.uk.net

Attached information about the location of the High Courts and about accessible toilets in the area.

 Map courts

 Royal Courts of Justice

Strand,

London WC2A 2LL

 Travel: the tube stations around the Royal Courts are not accessible (nearest accessible tubes are Westminster and London Bridge and both are a bus journey away).

Please check www.tfl.gov.uk for more travel information

 Accessible toilets around the royal courts:

-         There is an accessible toilet outside Embankment tube station and inside Charing Cross station.

-         There are toilets opposite the Royal Courts but these are not accessible

-         There are also accessible toilets inside the Royal Courts themselves – see page 10 of this booklet: http://www.justice.gov.uk/downloads/courts/rcj/facilities-and-access/Facilitiesservicesleaflet2011.pdf

Mar 042013
 

“We can’t go back 30-odd years” – watch Sophie talking about the Independent Living Fund and her fears for the future in this powerful film by Kate Belgrave: http://www.guardian.co.uk/commentisfree/2013/feb/27/closing-independent-living-fund-disabled-care

 

Roxy’s Story

photo for ilf

I have been fortunate enough to be entitled to the receipt of funding from the ILF for all of my adult life; and have consequently enjoyed a high standard of life thus far. I have multiple disabilities ( including severe physical impairment, severe visual impairment, and Type 1 Diabetes), and the ILF has meant that it has been possible for me to have my support needs met.

 

These considerable care needs mean that I require round-the-clock assistance to do pretty much everything. I need help with washing, dressing, toileting, all aspects of personal care, managing my diabetes, preparing food, eating it, undressing, physiotherapy, moving in bed over night, and those are just my very basic requirements. The extra funding from the ILF means that I can afford to get the support to live a little, rather than just meet these basic needs.

 

Directly because of the support that the ILF has given me, I have been enabled to achieve a high level of education, including a BA and an MA living on campus at university, and I am also now pursuing my second BA with the Open University. The ILF has enabled me to travel abroad and see a bit of the world, and it opens many other social opportunities to me; for example, I love to see live music, and I am keen on visiting the theatre and eating out. I am able to spend time with my family and friends, in my hometown and further afield, and the ILF means that I Have been able to maintain these relationships, because it has meant that I can have assistance with  doing so. The ILF has also made it possible for me to now live independently in my own flat, and I am so glad that I am able to exercise some choice, and am not yet  forced to live in a residential care home.

 

When I think about the ILF closing in 2015, I know that I only have two years left to live. I may exist for a little longer, but I can’t see how I will be able to maintain any quality of life, without the funding to live independently.

 

Despite having multiple disabilities, I am in quite good health; but I know that this will change if the ILF is closed. I am sure that I would have to use agency staff, and I know from experience that they are so badly equipped to help manage medical conditions, that their clients are frequently admitted to hospital. As a diabetic, the only way for me to properly manage my diabetes is with an insulin pump. This requires very frequent blood testing, and specialist training to use, which is not a problem with my direct employees at the moment, but would be impossible with agency staff. I would have to change to another, inadequate, system for attempting to manage my diabetes, as I would be limited to a couple of visits a day from the district nurse to attempt to control my diabetes. This regime will fail to control it, and so I can look forward to a future where I spend a lot of time in hospital. Until they decide that it would save everyone money if I were in residential care.

 

I am usually a sickeningly optimistic person, who can’t help seeing the silver lining to any cloud; but this time I don’t see anything positive in what the government want to do. If they have the capacity for shame, then they ought to feel it and the inhumanity of their proposal.

 

 

Mar 032013
 
We urgently need people to email Scope over the next 2 or 3 days to let them know in no uncertain terms what a disaster the closing of the ILF (Independent Living Fund) will be and that their attitude not to oppose this as they don’t have enough money to campaign on everything is unacceptable.
 
Also we need Scope to be made aware their own inaction in not campaigning with regards to the ILF closure is totally unacceptable from a major Charity who claim to be at all interested in the rights of disabled people. (apologies if this makes you all fall around laughing).
A representative from Scope is meeting with Government this week to speak for you – so can you email Scope on the contact below to let them know exactly what you think of them and what you expect them to say for you. Be as brief or detailed as you want, but don’t allow SCOPE to sell disabled people out yet again.
 
Email address is campaigns@scope.org.uk and copy to their overpaid CEO richard.hawkes@scope.org.uk
 
Alternatively leave messages for them on their facebook pages
 
 

Mar 012013
 

In the count-down to the ILF court case on 13th March we will be publishing on a daily basis individual stories from disabled people affected by the closure of this essential source of independent living support.

This follows the powerful testimonies recorded by journalist Kate Belgrave and published by the Guardian:

http://www.guardian.co.uk/commentisfree/2013/feb/27/closing-independent-living-fund-disabled-care

Please circulate the links to the stories and use the tools in the campaigns pack to promote the Independent Living Fund campaign as widely as possible.

Our first story is from Mary Laver.

Olympic Torch Relay 041My love affair with the Independent Living Fund (ILF) started over 25 years ago, – I was just 40 and I am now 65, – when it came into my life, a life that I was existing not living.

Within 12 months of becoming crippled with Rheumatoid Arthritis at the age of 40 I was unable to leave my bed and this remained the case for the next 2 years.

I found myself in a position where I could not bear weight on my legs or feet, and my arms very quickly bent making it impossible to get out of my bed and into my powered wheelchair.  My care from social services was very basic at 2 hours per day. All but 2 of my friends deserted me.  I watched the seasons change by the reflection in a picture I had on the wall opposite my bed, which by this time, was now in my lounge.

Life was very grim until my social worker told me about the ILF; my love affair was to begin.

Being introduced to the ILF was not easy, my social worker had to fill in a long and complicated form and then we just had to wait for the verdict, yes or no to me getting the ILF, which was a long time coming. Meanwhile I decided to sell my house and buy a bungalow, which I did from my bed, and by the time the ILF was confirmed, the sale had gone through and I was on the move to my new home and my new life with my ILF.

I will not bore you with all the life changes over the past 25 years thanks to the ILF, but I will jump straight to 15th June 2012 at 5.03 pm Newbridge Street, Newcastle and a crowed eagerly awaiting the Olympic Torch to approach because that was the date, time and place that I was to have the greatest honor of my whole life, I was to carry the Olympic Torch in recognition of my charity work.  The list is long and you can Google me to find out more, but highlights are I drove my power chair from Lands End to John O’Groats making it into the Guinness Book of Records, which I did for the Royal British Legion, I have spent for the past 22 years, two weeks each year selling poppies, I have been pushed in my manual chair to raise monies for various charities in 16 Great North Runs. The list goes on and none of this would have happened without ILF.

My life does not all revolve around good works. My ILF also enables me to go out for long walks with my two much loved Jack Russell’s, Jack and Molly. My ILF enables me to visit places of interest, to have the freedom to do what I want, when I want, with whom I want.  I also use the ILF time for my carer to take me to my hospital and doctor’s appointments.

In all to sum up I would say I lead a life full of challenges and wonderful experiences mixed up with the odd boring moments.

But if I am divorced from my ILF I will be living a life of hell in my beautiful bungalow. My beloved dogs will have to find a new home. My social life will disappear.

How do I know this?

I know because I have seen what my care package would look like without the ILF contribution. Per day, I would receive support for a carer to sleepover, then 1 hour support for lunch, and 1 hour for tea. Per week would be added 7 hours for social activities, 90 minutes for shopping, 45 minutes for housework and 20 minutes ironing, plus 2 support slots of 15 minutes each for showering.

With nothing but a Local Authority care package I  would have a future of nothing more than sitting in my wheelchair from quarter to eight in the morning until half past ten at night with only two breaks, at lunch time and at tea time.  Without support to go to the toilet between visits from a care assistant I would be wet, so when the care assistant did come for the hour lunch time and tea time would need to be taken to clean me. I would also get a sandwich, a hot drink and be toileted. At tea time instead of a sandwich I would get a warmed up meal, which would have to be a microwave meal because no time would be allowed in my support package for cooking.

By the time the night staff came on at ten, I would be wet again and need to be washed and changed as well as been given a hot drink and put to bed at half past ten.

Being left wet for so many hours every day would lead to open pressure sores which would need to be treated by a nurse on a regular basis.

My day would be nothing more than me sitting in a wet pad, just being fed and watered, no Jack and Molly to keep me company, and above all no freedom to do anything I wish. My home will be my prison.

Oh except for my 7 hours of social care per week. Well with that I could use it to have one day out of the house per week or I could add 1 hour per day to my lunch or tea time call to make it less rushed.

Being very dramatic, there is a pond at the bottom of my garden and if I were to finally mentally snap, unable to take any more of this appalling care, it would only take a few minutes and all my problems, and that of the government, will be sorted… Or I could get someone to leave my gate open- I cannot do that myself- and a short metro ride would see me on a short pier where I could take a long walk…

The other alternative would be a care home.  Would the people who are taking my ILF away care to live in a care home? The pond seems more inviting.

So there you have it, my love affair with the ILF.  I will fight with every breath in my body to keep this affair going on.

 

 

 

Feb 162013
 

Not all local authorities bothered to respond to the consultation over the future of the Independent Living Fund but here are links to the responses of most of those who did reply

 

Local authority responses to ILF consultation

 

Aberdeenshire

http://www.whatdotheyknow.com/request/134705/response/332139/attach/html/2/Aberdeenshire%20Council%20Response%20to%20ILF%20Consultation%20October%202012.doc.html

 

Anglesey, Conwy,Flintshire & Wrexham Joint response http://www.whatdotheyknow.com/request/134567/response/326222/attach/html/2/ILF%20Response%20North%20Wales%20LA%20s%20Oct%202012.doc.html

 

Argyll & Bute  http://www.whatdotheyknow.com/request/134707/response/324073/attach/html/3/Argyll%20and%20Bute%20Council%20Response%20ILF%20Final%202012.doc.html

 

Barking & Dagenham http://www.whatdotheyknow.com/request/133081/response/330461/attach/html/3/ILF%20Consultation%20Response.docx.html

 

Barnsley http://www.whatdotheyknow.com/request/134244/response/327015/attach/3/img%20X31113918%200001.pdf

 

Birmingham http://www.whatdotheyknow.com/request/133990/response/331269/attach/html/3/FOI%207763%20reply.pdf.html

 

Blaenau Gwent http://www.whatdotheyknow.com/request/independent_living_fund_consulta_149#incoming-325185

 

Brighton & Hove http://www.whatdotheyknow.com/request/133594/response/331709/attach/html/3/RESPONSE%20TO%20ILF%20REVIEW.DOC.doc.html

 

Bournemouth http://www.whatdotheyknow.com/request/133767/response/329417/attach/html/3/ILF%20response.docx.html

 

Buckinghamshire http://www.whatdotheyknow.com/request/137363/response/331429/attach/html/3/FINAL%20Clarification%20letter%2013.11.12.pdf.html

 

Bury http://www.whatdotheyknow.com/request/independent_living_fund_consulta_68#incoming-321716

 

Caerphilly http://www.whatdotheyknow.com/request/134557/response/328904/attach/html/4/03.CCBC%20response%20to%20consultation.doc.html

 

Carmarthenshire

http://www.whatdotheyknow.com/request/134564/response/332233/attach/html/2/Consultation%20on%20the%20Closure%20of%20the%20ILF%20in%202015.doc.html

 

Cheshire East http://www.whatdotheyknow.com/request/133425/response/330439/attach/html/2/20121022ResToBrady.doc.html

 

Cheshire West & Chester http://www.whatdotheyknow.com/request/133426/response/329618/attach/html/2/ILFCONSULTATION.docx.html

 

Croydon http://www.whatdotheyknow.com/request/133178/response/331452/attach/html/4/Response%20F%20CRT%202012%202205.doc.html

 

Coventry http://moderngov.coventry.gov.uk/documents/s4779/Responses%20to%20Government%20Consultations.pdf

 

Cornwall http://www.whatdotheyknow.com/request/133772/response/328476/attach/html/3/IAR%20245927%20FOI%20EIR%20Response%20Template%20NO%20Exemptions%20Applied.doc.html

 

Cumbria http://www.whatdotheyknow.com/request/133561/response/326948/attach/html/3/2012%2010%2031%20Disclosure.doc.html

 

Denbighshire http://www.whatdotheyknow.com/request/134568/response/324469/attach/html/2/Response.pdf.html

 

Devon http://www.whatdotheyknow.com/request/133959/response/324802/attach/html/3/Information%20Request%2003195.pdf.html

 

Doncaster

http://www.whatdotheyknow.com/request/134249/response/333090/attach/html/2/FOI%20Response%20Data%20Taylforth%2050159.doc.html

 

Dorset http://www.whatdotheyknow.com/request/133961/response/323544/attach/html/2/ILF%20draft%20consultation.pdf.html

 

Dudley

http://www.whatdotheyknow.com/request/133994/response/323677/attach/html/4/ILF%20Consultation%2010.10.12.doc.html

 

Dumfries & Galloway

http://www.whatdotheyknow.com/request/134709/response/332905/attach/3/ResponseConsutationProposedClosureOfILF.pdf

 

Durham http://www.whatdotheyknow.com/request/133401/response/322132/attach/html/4/ILF%20consultation.pdf.html

 

Ealing http://www.whatdotheyknow.com/request/133179/response/329882/attach/html/4/17102012%20ADASS%20Agenda%20Item%203%20ILF.Appx%201.pdf.html

 

East Dunbartonshire http://www.whatdotheyknow.com/request/134712/response/324687/attach/html/2/ILF%20FINAL%20RESPONSE%20SEP%2024TH%202012.doc.html

 

 

East Riding of Yorkshire http://www.whatdotheyknow.com/request/134251/response/333084/attach/html/3/EEF90461233811E2A672B51576002175.doc.html

 

East Renfrewshire

http://www.whatdotheyknow.com/request/134714/response/332040/attach/html/3/East%20Renfrewshire%20CHCP%20Response%20to%20ILF%20Consultation%20September%202012.doc.html

 

East Sussex http://www.whatdotheyknow.com/request/133597/response/333253/attach/html/3/1751%20ILF%20letter%20final%201.pdf.html

 

Edinburgh http://www.whatdotheyknow.com/request/134721/response/332950/attach/html/3/CEC%20response%20on%20Future%20of%20ILF%2010%2010%2012.pdf.html

 

Essex http://www.whatdotheyknow.com/request/133065/response/329347/attach/html/3/ASC%20IG%20025700%20Final%20Response%20Appendix%201.pdf.html

 

Falkirk http://www.whatdotheyknow.com/request/134723/response/332393/attach/html/5/FC%20Response%20to%20ILF%20Consultation%20October%202012.doc.html

 

Flintshire http://www.whatdotheyknow.com/request/134569/response/325743/attach/html/3/FCC%20ILF%20Consultation%20Oct%202012.doc.html

 

Gateshead http://www.whatdotheyknow.com/request/independent_living_fund_consulta_55#incoming-324658

 

Glasgow http://www.whatdotheyknow.com/request/134725/response/331701/attach/html/3/Brady%20D131112L%20FOI%205.doc.htmlhttp://www.whatdotheyknow.com/request/134725/response/331701/attach/html/3/Brady%20D131112L%20FOI%205.doc.html

 

Hammersmith & Fulham http://www.whatdotheyknow.com/request/133211/response/326346/attach/html/3/Response%20to%20consultation.doc.html

 

Hampshire http://www.whatdotheyknow.com/request/133743/response/333637/attach/3/FOI%205422%20Taylforth%20Formal%20Response%202012%2011%2020%20HF000003887806.pdf

 

Halton Borough Council http://www.whatdotheyknow.com/request/independent_living_fund_consulta_72#incoming-323442

 

Hartlepool http://www.whatdotheyknow.com/request/independent_living_fund_consulta_56#incoming-327676

 

Havering

http://www.whatdotheyknow.com/request/133215/response/326747/attach/html/3/Response%20from%20Social%20Care%20Learning.pdf.html

 

Hertfordshire http://www.whatdotheyknow.com/request/133067/response/321758/attach/html/6/Herts%20ILF%20final%20response%201%2010%2012%202.pdf.html

 

 

Hounslow http://www.whatdotheyknow.com/request/133217/response/322483/attach/html/4/Submitted%20LBH%20response%2010%2010%2012.pdf.html

 

Hull http://www.whatdotheyknow.com/request/independent_living_fund_consulta_139

 

Inverclyde http://www.whatdotheyknow.com/request/134727/response/324516/attach/html/3/Consultation%20Response.doc.html

 

Islington http://www.whatdotheyknow.com/request/133218/response/324586/attach/html/3/ILFConsultationResponse%20IslingtonOct2012.pdf.html

 

Kensington & Chelsea http://www.whatdotheyknow.com/request/independent_living_fund_consulta_39#incoming-330104

 

Kent http://www.whatdotheyknow.com/request/133745/response/322389/attach/html/3/The%20future%20of%20the%20ILF%20consultation%20response%20Oct%202012.pdf.html

 

Kirkless http://www.whatdotheyknow.com/request/independent_living_fund_consulta_140#incoming-331317

 

Lancashire (

http://www.whatdotheyknow.com/request/131103/response/320019/attach/html/3/ILF%20Public%20Consultation%20LCC%20Response.docx.html

 

Leeds

http://www.whatdotheyknow.com/request/134264/response/329797/attach/html/2/8782%20reply%202nd%20response.pdf.html

 

Leicestershire http://www.leicsfoi.org.uk/disclosureLogMonth.asp?year_value=2012&month_value=10#rn3803

 

Manchester http://www.whatdotheyknow.com/request/133567/response/331151/attach/html/2/ASC8Z6BR5%20ILF%20respnse.doc.html

 

Medway http://www.whatdotheyknow.com/request/independent_living_fund_consulta_94#incoming-332110

 

Middlesbrough  http://www.whatdotheyknow.com/request/133406/response/323469/attach/html/4/TAYLFORTH%20P%202923.3%20ATT.doc.html

 

Midlothian http://www.whatdotheyknow.com/request/134728/response/333568/attach/html/3/F4276%20MID%20ILF%20response.doc.html

http://www.whatdotheyknow.com/request/independent_living_fund_consulta_201

 

Milton Keynes http://www.whatdotheyknow.com/request/independent_living_fund_consulta_95#incoming-324054

 

Moray http://www.moray.gov.uk/downloads/file83404.pdf

 

Newcastle http://www.whatdotheyknow.com/request/133408/response/325991/attach/html/4/Final%20ILF%20consultation%20response%20Oct%202012.pdf.html

 

 

North Ayrshire http://www.whatdotheyknow.com/request/134730/response/334293/attach/html/2/10052%2012%20Consultation%20Response%20ILF.doc.html

 

North Tyneside Council http://www.whatdotheyknow.com/request/133409/response/322730/attach/html/4/ILF%20response.docx.html

 

North Yorkshire http://www.whatdotheyknow.com/request/independent_living_fund_consulta_144#incoming-323851

 

Nottinghamshire  http://www.whatdotheyknow.com/request/132919/response/324055/attach/html/2/ILF%20consultation%20questions%20responses%20NottsCC.doc.html

 

Oldham http://www.whatdotheyknow.com/request/independent_living_fund_consulta_76#incoming-322916

 

Oxfordshire

http://www.whatdotheyknow.com/request/independent_living_fund_consulta_96#incoming-322427

 

Pembrokeshire http://www.whatdotheyknow.com/request/134589/response/330598/attach/html/4/3286%20Brady%20Info.doc.html

 

Poole http://www.whatdotheyknow.com/request/133974/response/329013/attach/html/6/FOI%20615%20reply.pdf.html

 

Portsmouth http://www.whatdotheyknow.com/request/independent_living_fund_consulta_97#incoming-327297

 

Powys http://www.whatdotheyknow.com/request/independent_living_fund_consulta_163#incoming-327163

 

 

Renfrewshire http://www.whatdotheyknow.com/request/134984/response/334480/attach/html/3/Taylforth%20Paul%20ILF%20Response%20FOI%20Response.pdf.html

 

Rhondda http://www.whatdotheyknow.com/request/134591/response/334118/attach/html/2/RCT%20ILF%20Consulatation%20Response.doc.html

 

Rochdale http://www.whatdotheyknow.com/request/133572/response/332520/attach/html/3/TF%20Response.doc.html

 

Richmond upon Thames http://www.whatdotheyknow.com/request/133263/response/326232/attach/html/3/13604%201.pdf.html

 

Rotherham http://www.whatdotheyknow.com/request/independent_living_fund_consulta_145#incoming-331784

 

Salford http://www.whatdotheyknow.com/request/133573/response/333490/attach/html/2/Consultation%20document.docx.pdf.html

 

Sefton

http://www.whatdotheyknow.com/request/independent_living_fund_consulta_79#incoming-328385

 

Solihull http://www.whatdotheyknow.com/request/134005/response/323740/attach/html/3/ILF%20Consultation%20Response%20oct12.doc.html

 

Somerset

http://www.whatdotheyknow.com/request/143759/response/355033/attach/html/3/Consultation%20July12%20Draft2.doc.html

 

 

Southend

http://www.whatdotheyknow.com/request/independent_living_fund_consulta_17#incoming-326146

 

South Lanarkshire

http://www.whatdotheyknow.com/request/134988/response/327150/attach/html/3/20121101111552374.pdf.html

 

Stockport

http://www.whatdotheyknow.com/request/133580/response/323988/attach/html/2/ILF%20consultation%20answers%20Oct%2012.docx.html

 

Stockton on Tees

http://www.whatdotheyknow.com/request/133415/response/327789/attach/html/4/SBC0066.pdf.html

 

Stoke on Trent

http://www.whatdotheyknow.com/request/134013/response/333078/attach/html/3/Consultation%20Response.pdf.html

 

St Helens

http://www.whatdotheyknow.com/request/133576/response/327425/attach/2/ILF%20Consultation%20Response.pdf

 

Swansea

http://www.whatdotheyknow.com/request/134592/response/332296/attach/html/4/SH1.749%20Consultation%20Response.doc.html

 

Vale of Glamorgan

http://www.whatdotheyknow.com/request/independent_living_fund_consulta_167#incoming-323698

 

Wakefield

http://www.whatdotheyknow.com/request/134305/response/332276/attach/html/2/ILF%20Consultaion%20q%20s%20Sept%2012%20FOI%204603.docx.html

 

Warwickshire

http://www.whatdotheyknow.com/request/134233/response/331342/attach/html/3/Independent%20Living%20Fund%20Responses.docx.html

 

Warrington

http://www.whatdotheyknow.com/request/133586/response/327113/attach/html/3/0059%20Brady.doc.html

 

West Lothian

http://www.whatdotheyknow.com/request/134992/response/325216/attach/html/3/WL%20Response%20to%20the%20ILF%20Consultation%209%2012.doc.html

 

West Sussex

http://www.whatdotheyknow.com/request/133756/response/326953/attach/html/3/ILF%20consultation%20questions%20final.doc.html

 

Westminster

http://www.whatdotheyknow.com/request/independent_living_fund_consulta_52#incoming-328288

 

 

Worcestershire

http://www.whatdotheyknow.com/request/134239/response/332677/attach/5/ILF%20consultation%20response%20V2.pdf

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 Posted by at 17:16
Feb 162013
 

Dear_______________________ MP,

I am writing to urge you to defend disabled people’s right to independent living which is under threat from the closure of the Independent Living Fund (ILF), a source of essential support enabling disabled people with the highest support needs to live in the community.

The closure of the ILF will mean for me….

 

On 18th December 2012 the government announced its decision to permanently close the ILF following its closure to new applicants since December 2010. The announcement followed a consultation that was flawed and which ignored the views of disabled people and disabled people’s organisations as well as a number of other organisations and Local Authorities.

Government plans to merge the ILF with mainstream care and support will result in a greatly reduced quality of life for disabled people and for some will mean being forced into residential care against their wishes. This will prevent disabled people from full inclusion and participation in the community, as anticipated by Article 19 of the Convention on the Rights of Persons with Disabilities.

The Government’s decision not to put in place any ring-fencing for the support for current ILF recipients when responsibilities are transferred to local authorities and devolved administrations will inevitably lead to a loss of support as local authorities raised in their consultation responses and have a devastating impact on disabled adults who have been supported by the ILF to lead active and full lives.

I would ask you to sign Early Day Motion 651 and to call on the Government to review this regressive step and to look instead at ways of expanding the Independent Living Fund to provide needs-based support to all adults in the UK who require it.

In order to protect disabled people’s right to live with choice and control over their lives and with dignity we need the Independent Living Fund.

Yours sincerely,

 Download Template letter by clicking following link: ILF template letter

 Posted by at 17:12
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