Debbie

Nov 172014
 

allfie logoNational Campaign Against Fees and Cuts

National Demo for Free Education

No Cuts / No Fees / No Debt

Alliance for Inclusive Education is supporting the

National Campaign Against Fees and Cuts rally

 November 19th 2014

 

Disabled students have faced unprecedented cuts to the support they require to access mainstream education. The Government is intending to cut £millions from the vital support that disabled students in higher education receive from their Disabled Students Allowance. The announcement has come after years of stripping millions of pounds from local authority’s Special Education Needs support services budgets that mainstream schools and colleges have come to rely upon for developing inclusive education practice for disabled learners. Since the Coalition Government’s funding and education reforms, the numbers of disabled children and young people attending mainstream schools have declined year on year. Equally, there has been a steady decline of disabled students’ participation in higher education since Government’s announcement of Disabled Students Allowance reforms.

We are told there is not enough money to build and fund an inclusive education system that would cater for the needs of all disabled learners, regardless of ability and support needs.

We are not told about the millions of pound that has and will continue to be squandered in both public and private segregated education institutions, which provide no real education for disabled learners.

What is the alternative: Free inclusive education for all

A fully funded free inclusive education that is inclusive of all learners, to be funded by decommissioning of segregated education provision.   ALLFIE is joining forces with students and education professionals to march for a well-resourced free inclusive education for all students.

If you want more information and want to come on the march do contact  Simone Aspis Tel No 0207 737 6030 mobile no: 07795 142 108. Email address simone.aspis@allfie.org.uk

 

Oct 312014
 

Below are ALLFIE’s (Alliance for Inclusive Education) crucial principles for inclusive education. We all agree that education is a fundamental part of life, as such these principles are crucial for disabled children and adults and for their right to be educated in an inclusive enviroment.
DPAC fully supports ALLFIE’s principles and calls for ‘Education not segregation’ for all Deaf and disabled learners.

The principles are:

Diversity enriches and strengthens all communities;

·       All learner’s different learning styles and achievements are equally valued, respected and celebrated by society;
·       All learners to be enabled to fulfil their potential by taking into account individual requirements and needs;
·       Support to be guaranteed and fully resourced across the whole learning experience;
·       All learners need friendship and support from people of their own age.
·       All children and young people to be educated together as equals in their local communities;
·       Inclusive Education is incompatible with segregated provision both within and outside mainstream education;

Education not Segregation

Oct 312014
 

Apology notwithstanding, your recent comments vis-à-vis disabled people reveal that, apart from bigotry, yours and your cronies’ attitudes towards disabled people are – surprise, surprise – based on a one-size-fits all world view. To suggest that our labour is worth less than that of a non-disabled person is despicable in the extreme.

Anyone with an ethical or empathetic bone in their body would realise that – as with non-disabled people – we are, despite some similarities, individuals, with individual problems and needs. To illustrate this, allow me to compare myself and my oldest living friend who I met when we were both mature undergraduates (I was 40). We had both taken this path because we had no wish to be consigned to a life of workless, isolated poverty.

At that time, our impairments were ostensibly the same: spinal injuries and osteo-arthritis. However, the individual effects were markedly different which made us complementary, strangely enough. I am 6’ 4” and her head does not reach my chin. As law students, much of our time was spent in the library which alone would have been problematic as I could not reach lower shelves without a great deal of discomfort and difficulty, if at all. She on the other hand struggled to reach higher shelves that, even with her short stature, she would have reached without difficulty had she been non disabled. In addition, we both experienced problems with mobility and fatigue.

Since that time however, our paths, disability-wise, have diverged markedly as both our then-existing disabilities and newer medical problems have taken their toll. She now holds the post of Senior Lecturer, is obliged to arrive at work by 07.30 if she wants a suitable disabled parking space, and despite her physical/medical issues, more work than any two non disabled colleagues. She is often so fatigued when reaching home never less than twelve hours later, that she falls asleep over marking. To suggest that such a person is worth roughly half the salary of a non disabled person is both despicable and delusional.

I, on the other hand, after a brief teaching career during which, at times, I was performing almost the teaching of three full-time colleagues, became so ill that I could no longer work. After several years (while volunteering with a local C.A.B.) of steadily building myself back to the stage where I felt I may be able to take at least a part-time position, I was to undertake a Masters Degree, which took me an extra year due to a near death experience with pneumonia and pneumo-thorax. Since then, my general condition, while it could be defined as stable is by no means work-fit. I keep myself occupied by searching out relevant research resources. However, it is impossible to set deadlines as I cannot say from one day to the next what I would be capable of.

It is long past time when you and people like you realised that we are living on planet Earth in the 21st Century – not some esoteric alternative universe that only you and your cronies have access to where us plebs can be assumed to be clones of one another.

John

Oct 302014
 

So finally released is the official news that Maximus take over from the toxic brand of Atos for £500 million. Already there are comparisons with Russell Crow characters, but there’s also an overlooked Maximus who might be more fitting as a parody or comparison. This Maximus comes from the U.S Marvel comics

Maximus was briefly the leader of the Inhumans while his brother, Black Bolt, went into exile, daring not to use his dangerous voice. Maximus believed that the Inhumans were the greater form of life on Earth and he set out to rule them and to destroy humankind to retake the planet.
More on Marvel.com: http://marvel.com/universe/Maximus#ixzz3Hd6bb9Bl

Leader of the inhumans seems much more fitting than the hero reduced to slavery and seeking revenge- can we compare Black Bolt to Atos going into exile too? No, not really, as Maximus are using Atos staff and equipment to continue with the inhuman Work Capability Assessments (WCA), and of course Atos have a whole host of other multi-million Government contracts including PIP-yet another planned disaster, shared with Capita, leaving disabled people stuck on a waiting list for up to a year without any financial support whatsoever. In June 2014 MacMillan identified that those diagnosed with cancer were waiting at least six months for the initial assessment rather than being fast tracked properly, as was the case under the Disability living Allowance.

We can be sure that this didn’t and doesn’t just apply to those with cancer,but those with other terminal illness’ too. The Work and Pensions Committee rightly condemned this, but then we hear nothing more than empty silence. New Labour say it will take 42 years to clear the PIP backlog. But they don’t tell us what they will do about it, which with an election year fast approaching is yet another lost opportunity for the rusty New Labour machinery.

From one toxic brand to another?

Its worth a quick recap on Atos and the WCA contracts. The Atos process contributed to deaths, the Atos process contributed to worsening mental health, Atos’ so called ‘healthcare professionals were ‘trained’ over a period of days, Atos got reports wrong frequently, Atos were subject to TV exposures, the Atos process was condemned internationally, Atos were closely linked Unum insurance sharing the same CEO, Atos declared people fit for work when they were in comas or days before they died. Atos pulled out of their contract saying that those nasty disabled people were being nasty to their staff- a claim which , true to form, they could provide no evidence for.

Atos became a toxic brand long before the hyped ‘pull-out’. Atos were targeted from 2011 onwards by DPAC with protests outside their shiny London headquarters and elsewhere. Atos tried to shut down web sites that said ‘bad’ things about them. In 2012 their sponsorship of the Olympic games ( along with a set of other dubious multi-nationals) led to a 7 day protest by DPAC, a protest that saw angry protesters outside Atos centres across the UK. It was then that national media, often silenced by their owners vested interests broke through. We saw from the first time a trickle of freelancers with a social conscience edge in the Atos issue under the Olympics rubric. We saw the beginnings of a snow ball affect which Atos’ public image never recovered from. Atos were known not as the IT company, but the company that carried out those bogus Work Capability Assessments.

From bad to worse
So what changes with Maximus? First let Maximus be in no doubt that they will get the same treatment as Atos did-disabled people will continue protest and civil disobedience- a name change doesn’t mean a thing. This company knew exactly what they were taking on-but money talks louder than conscience . As already mentioned Maximus take the infrastructure of Atos, its staff , its IT , its tick box assessments. Atos are still gaining. Second, Maximus take private contracts ( paid with public money) to help dismantle what’s left of our ( or anyone else’s) welfare state to force those ‘that can’ on to private insurance scams that may or may not pay out-Unum and co are also laughing all the way to their bankster friends. .

What’s different? Well, Maximus seem worse than Atos- yes you read that correctly. They have a string of law suits in their homeland the good old US of A. In 2014 they said

“We expect that demand for our core health and human services offerings will continue to increase over the next few years, driven by new legislation, austerity measures and increasing caseloads, as governments strive to deliver more services with fewer resources. Legislation, such as the Affordable Care Act (ACA) in the United States as well as other health and welfare reform initiatives abroad, has created increased demand for our services, a trend we expect to continue over the next several years.”

‘Core health and human services offerings':?. It seems these ‘offerings’ have proved a bit of an expensive minefield. But these days such things are written off to risk if the profits out weigh the pay-offs companies will do what the hell they like. In 2007 Maximus settled a Medicaide card fraud with the Federal Government paying $30.5 million. In 2012 they paid $50,000 in a disability discrimination case. In 2013 it was reported that Maximus has been engaging in ‘improper billing advice’ concerning $3.5 million cost to tax payers (sounds familiar-except here our state dont appear to do much about such things).There’s more, but you get the picture. Final add is that Maximus also like to give lots of money to right wing politicians-ah it gets even clearer.

Looks like we should expect the worst and looks like our unelected Government have managed to surpass themselves, again. The drain on the so-called public purse- that’s tax payers money- is set to rocket again. But beyond financial concerns are what happens now with the WCA? What happens to the backlog? And what happens to disabled people- the news doesn’t look good, as many commentators on social media have already pointed out. However, several things have been missed on social media

All in it together?
While Disability Rights UK (DRUK) were one of the first to get the notice of Maximus taking over from Atos out on their website, they failed to mention how they will be ‘helping’ Maximus. This information is not on their web site. It can be found elsewhere on the Department of Work and Pensions website :

“On top of recruiting additional healthcare professionals, MAXIMUS also plans to make further improvements to people’s experience of an assessment and will seek to continually improve the service they offer. It will increase the number of specialists who conduct assessments, including experts in mental health. They will also spend more time with people before their assessment to fully explain the process and provide Disability Awareness training for all staff through Disability Rights UK”.

Didn’t Atos claim similar things too? There are some who might say DRUK is what is needed. We should ask those people how a so-called user-led disabled peoples’ organisation can, with any integrity, involve themselves in this at all. Its no secret that like Maximus themselves, DRUK would know about the WCA, the Government lies that surround it, the misery caused by it, and why it all chimes together to remove welfare/state support from disabled people-It marks a purposeful intention to further open -up the market for private insurers – is this a mistake on the DWP’s own Government site?

Sadly, we think not. In the latest release DRUK say that they’ve been in discussions with Maximus and no work has yet been agreed- shouldn’t they be categorically denying the association outright?

Yet, DRUK are already ‘in bed’ with big corporations and private insurance companies. After their prior foray with Capita, DRUK now appear to have joined the game of pushing private disability insurance too. They are partnering with 17 big insurance companies to show the difference insurance would make, instead of fighting for the rights of disabled people. That is disabled people who by DRUK’s own admission occupy one of the largest groups in poverty, a poverty level that has been systematically widened and worsened because of this Government’s pursuit of removing welfare.

A few months ago DRUK publicised a new television program calling for disabled volunteers: Seven Families. Seven families will take the same number of families and show the benefits of purchasing private disability insurance. Its not about pushing products says the Income Protection Task Force (?) blurb-its about raising awareness-not since the Guardian published the much criticised info ads for Unum have we seen this sort of ‘stupid public’ approach. Once again , you wont find this on the DRUK web-site it’s been removed. But DRUK’s strap-line of breaking the link between poverty and disability just took on a new meaning

More importantly, under the WCA contract Atos were paid per assessment. Under the PIP contract Atos and Capita are paid a lump sum not depending on the number of assessments- the planned backlog becomes clearer. But what of the Maximus contract -are they paid by assessment or paid a lump sum? What is obvious is that the rounds of assessments and reassessments will continue to persecute disabled people. At intervals they might get a pittance of support, they might need to wait longer for a mandatory reconsideration ( brought in in Oct 2013 to make the process even more difficult and knock people out of the system). The best bet is to forget that you’ve paid state national insurance for all of your working life and go see Unum- and if 99% of disabled people cant afford it tough, because even your own so called disability organisations are telling you this is now the only way.

We want answers and we call on New Labour’s Rachael Reeves and Kate Green to provide them-what will they do with Maximus? What will they do with mandatory reconsideration? What will they do for disabled people? Oh and why should we a) trust them b) vote for them?

For now as The Void suggests: ‘Maximus are the new Atos: destroy Maximus’ and everyone and every organisation involved in or supporting this inhuman regime of the corrupt WCA, until its scrapped completely!

Oct 272014
 

The Government is proposing that their funding for the Welfare Assistance Fund ceases in May 2015.

The Local Government Association has said that if this proposal goes ahead support through the scheme will ‘have to be scaled back or scrapped completely in almost three-quarters of council areas’.

 

Inclusion London believes it is vital that funding for the scheme to continue, so as many organisations as possible need to respond to the consultation.

 

Sign our response or use IL’s as a template

I have drafted a consultation response, which you can welcome to use as a template. If you have examples of  members or services users have been supported by the Welfare Assistance Fund this will strengthen your response.

See draft response HERE

Alternatively you wish can sign up in support of Inclusion London’s response by emailing me saying

I support the response to henrietta.doyle@inclusionlondon.co.uk

 I would also welcome examples of your members/services users that have been supported by the fund to inform our response, all examples will be anonymised

 

Oct 262014
 

 

New Putney Debates

Disabled Women’s right to Occupy!

Feminism, disability and activism

Interviews with Ruth Bashall (Stay Safe East), long-time activist and front line work on disability hate crime and violence against women, and others to be confirmed. Chaired by Eleanor Lisney, founding member of Sisters of Frida.
With Michelle Daley & Martine Miel (Sisters of Frida) and Janet Price (DaDaFest).

Questions on feminist perspectives on issues of sexuality, disability, and social justice – disability and sexuality, queer crip politics, race, violence against women, the right for disabled women to occupy a safe space on their intersectional issues

Please let us know your access needs.

Venue: Friend’s House, 173-177 Euston Rd, London NW1 2BJ
31st Oct , 7 – 9.30 pm
(https://www.eventbrite.com/e/disabled-womens-right-to-occupy-tickets-13856072887)

There will be a stall from the Feminist Library

sof logo       sure safelogo


 

Oct 222014
 

Today was the first day of two days of a second court case against the DWP against the closure of the Independent Living Fund. Messages of support poured in. Many people turned out to support the vigil. The Strand was later blocked , as Kate Belgrave said : blocking roads is not extreme, cutting care is. There was wide support from Inclusion London, Norfolk and Suffolk DPAC local DPACs, the Greater Manchester Coalition of Disabled People, Transport for All, Winvisable, PCS Union, the TUC, Ros Wyne Jones Real Lives at the Daily Mirror, OCAP  and from as far as Toronto Canada where a simultaneous vigil was held. John McDonnell MP a great supporter of DPAC also came to speak.

Many messages of support came through some of which are below.

“@Dis_PPL_Protest good luck today! Amazing work being done in the face of such powerful opposition :)”
“Let’s hope justice prevails to counter rabidly cruel government”
“Best of luck and so many thanks to all at #ILF court case”
“many thanks for time and effort to all involved”
“Sending support from Toronto to London today. Disabled lives are worth it. #SaveILF @Dis_PPL_Protest pic.twitter.com/90YJEt7bL4″
“vigil at the RCJ supporting the campaign to #SaveILF”
“Good luck. You are courageous. The world is watching”.
“Good to see the likes of @Dis_PPL_Protest taking up the incentive to challenge the Govt on the ILF, much needed support lacking from orgs.”
.”@johnmcdonnellMP speaking in solidarity at #saveilf vigil today at Royal Courts of Justice”
“Shoutout to the awesome campaigners the #saveilf campaign, outside the Royal Courts of Justice today”
“Grateful thanks to @Dis_PPL_Protest & all who are fighting so hard to #SaveILF, ILF support for the disabled means having a life to LIVE”
“The TUC general council sends its solidarity and support for the Group fighting against the closure of the ILF in the High Court. Sean”
“All best wishes from WinVisible for ILF case – sorry we can’t make it but thinking of you all there. Claire”

Also check out some great media pieces
http://www.theguardian.com/commentisfree/2014/oct/20/disabled-lord-freud-austerity
http://www.mirror.co.uk/news/uk-news/tory-bid-cut-lifeline-profoundly-4477839

Thanks to everyone for making this such a success on the streets and on social media! We’re back at court tomorrow -maybe we’ll see Freud joining us too

(left to right) - Mark from PCS Union who is equalities officer London. John McDonnell MP Andrew Lee, People First.

(left to right) – Mark from PCS Union who is equalities officer, London.
John McDonnell MP
Andrew Lee, People First.

Andrew Lee, People first.

Andrew Lee, People first.

John McDonnell MP Linda Burnip, co founder of DPAC

John McDonnell MP
Linda Burnip, co founder of DPAC

(left to right) - Linda Jack liberal left, Liberial Democrats.  John McDonnell MP Andrew Lee, People First.

(left to right) -
Linda Jack liberal left, Liberial Democrats.
John McDonnell MP
Andrew Lee, People First.

Natasha  Burgess, Campaign and policy officer PCS Union, London.  John McDonnell MP Linda Burnip, DPAC Mark, eqaulities rep PCS London.

Natasha Burgess, Campaign and policy officer PCS Union, London.
John McDonnell MP
Linda Burnip, DPAC
Mark, eqaulities rep PCS London.


DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

DPAC protestors showing solidarity and support with ILF activists with Linda Jack and John McDonnell MP

John Kelly outside royal courts of justice London.

John Kelly outside royal courts of justice London.

(Left to Right) Jenny Hurst.  Paula Peters DPAC

(Left to Right)
Jenny Hurst.
Paula Peters DPAC

Jenny Hurst with save ILF campaign postcard

Jenny Hurst with save ILF campaign postcard

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B0jMETCIgAARSsL B0jQW-6IYAAtank
B0jTz8mIIAEyIJH B0jW8KSCAAI3L2M
B0jwp9ZCQAAxVcI B0jwr7UCQAEVkS_
B0jwtJTCEAAAP3o B0jYK5uIEAAYqQu
10354169_725881680798687_6051529399852839286_n 10384118_725880527465469_6775580639279853354_n
B0iyF5YIEAEaR9O B0j7OAoCIAA1cn3
B0jae-fIIAAHp5q B0jeA8DCAAA6lKI
B0jGoH3IcAAuJtn B0jKBevIYAEMw6H
B0jmC2lIAAMared B0jIuK-CIAAMAti
B0jH-etCAAAc1W3  IMG_5439

Oct 212014
 

Independent Living Fund (ILF) users and DPAC have led the campaign to #save ILF since 2011. In 2010 the ILF was closed to new applicants. DPAC tried to get some people to challenge this through the courts. We didn’t succeed. We were just starting up then-no other disability organisation made a move, in fact there were odd noises coming from some of them that seemed to suggest that ILF had had its day, in line with the Government rhetoric. Even today few organisations with the exception of Inclusion London have been consistent in supporting ILF users with the message that the loss of ILF will affect everyone.

So did local authorities manage to cover those potential new applicants who were no longer eligible for ILF. Did they support independent living or so called ‘choice and control’? Of course not! The funds were not matched, and their support continues to be cut because of central Governments 28 billion cuts to local authorities. As Kate Belgrave said in 2012 “This Cheshire woman, who was also in the substantial needs band, had run out of care hours on the day that I visited. I found her alone in her home lying next to a sick bucket. Who honestly thinks that the future holds local authority safety nets?” The latest film below attests that things have become worse, not better

We’re all in it together – aren’t we? from Moore Lavan Films on Vimeo.

DPAC continually receive emails from people who find their care hours slashed or completely removed-they can move from substantial to ineligible in a very short space of time. The cry that ‘choice and control’ will prevail can only be seen as the last vestiges of misguided hope by those who work on this thing called ‘co-production’ with Government departments- surely they cant really believe what they are saying anymore- the carnage is all around us. The fact that the Care Act replaces the term ‘independent living’ with the bizarre term ‘well-being’ (despite the best efforts of Inclusion London to stop it) shows how the notion of co-production has made fools of us all. The fact is that if ILF funds do move to the black hole of local authorities without being ring-fenced on the expected date of full closure of ILF in June 2015-we all lose.

ILF users took the Government to court in 2012/2013 They lost, they appealed and they won. John Pring reported ‘They [the court] ruled that Esther McVey, the former minister for disabled people, breached the Equality Act’s public sector equality duty, which required her to have “due regard” to the need to eliminate discrimination and advance equality of opportunity for disabled people’. There was also a plea from Stuart Brackling ( one of the plaintiffs) that a ILF task force of ILF users be set up to discuss issues with Government- a plea that has also been put to Labour’s shadow disability minister Kate Green by ILF users. But we haven’t seen it materialise. Disability Rights UK (DRUK) suggested something similar, but their task force seemed to be DRUK itself. After DRUK’s Independent Living conference sponsored by Creagmoor where the issue of ILF was raised only by angry delegates amazed that ILF was no where to be seen in the program of an independent living conference-we’re really not sure what to expect anymore.

Of course after the first court case the DWP did an equality impact assessment that said people weren’t guaranteed the same amounts or support, that some may end up with no support, and that it was business as usual.

A new court challenge is being held on 22nd and 23rd October with a vigil on the 22nd at 12.30. If we don’t fight this, then we, our children and their children will continue to be subject to limited levels of support based around a ‘clean and feed’ model, or no support at all-if you don’t want that then please join us. Support the ILF users and support your future too.

We need to show all political parties that they have got this very wrong. As Jenny Morris says ‘Unanswered question(still): What’s your plan for these people whose lives we apparently can’t afford?’

Oct 192014
 

Solidarity to our DPAC members and all in Parliament Square fighting oppression! DPAC fully supports Occupy-go and support them too…
Update: London police torment #OccupyDemocracy protestors on Parliament Square
Overnight in Parliament Square, #OccupyDemocracy protestors aiming to draw attention to the growing democratic deficit in the UK, have been enduring systematic torment from the Metropolitan Police and Heritage Wardens, who have been zealously enforcing new restrictions on the right to protest and assembly in the Square (Police Reform and Social Responsibility Act 2011).
The reaction of the Police and the State to the #OccupyDemocracy protest is in complete juxtaposition to David Cameron’s recent comments regarding the Occupy Central pro-democracy demonstrations in Kong Kong, when he said that “rights and freedoms, including those of person, of speech, of the press, of assembly, of association, of travel, of movement, and, indeed, of strike … These are important freedoms … which, most of all, we should stand up for.” [1]
Timeline of #OccupyDemocracy
5pm Friday 17 October – Occupation begins on Parliament Square with an overnight vigil to mark the UN Day for the Eradication of Poverty with speakers from groups including War on Want, Fuel Poverty Action and Reverend Dr Keith Hebden (author of Seeking Justice: The Radical Compassion of Jesus). Throughout the night protestors’ right to assemble and protest were contravened – with protestors not being allowed to rest and being forced onto the pavement.
Daytime Saturday 18 October – Protestors support the TUC March.
7-10pm Saturday 18 October – Scuffles instigated by police against protestors as Heritage Wardens instruct that the protestors should be removed. Police kettle the protestors. Two protestors are assaulted, several personal items removed. Banners calling for “Real Democracy Now!” and a small, battery-powered sound system – used by speakers such as Green Party leader Natalie Bennett and Labour MP John McDonnell to address the crowd – were all confiscated by the police. Later witnesses say that journalists and photographers were denied access to the protest by the police and removed from the Square. At around 10pm the police back off.
2am Sunday 19 October – Whilst protestors try to rest police arrest attempts were made with further harassment of the group who were huddled together in the mud. Police also confiscated cardboard that protestors had been using to keep warm. One protestor, a 24 year old woman from Manchester, reported that she was not permitted to lean against her own bag as it was camping equipment. Another woman, 65, has an air mattress literally pulled from under her, casting her to the ground.
7am Sunday 19 October – Things calm until 7am when the police entered the gathered crowd to remove printed materials including banners, hand held signs and a flag displaying a rainbow and the word ‘Peace’. A woman had the occupation’s Safer Spaces sign ripped from her hands as she shouted ‘No’ – this sign set out the ground rules for behaviour to ensure every individual feels safe, comfortable and welcome.
10.30am Sunday 19 October – Another protestor arrested – police allege that he cut a piece of string.
Upcoming – Sundays’ theme is “taming the power of finance” featuring speakers and workshops from UK Uncut, Tax Justice Network, New Economics Foundation and the Robin Hood Tax campaign.
On Monday the focus is on the attacks on our public services including NHS privatisation and cuts in welfare benefits.
Details of planned events for the rest of the week at the #occupydemocracy protest can be found at http://occupydemocracy.org.uk/.
The protest, organised by #OccupyDemocracy – a group that grew out of Occupy London – is demanding reforms to our democratic process so that it serves the public interest, rather than the interests of corporations, banks and a tiny wealthy elite.
Alison Playford from #OccupyDemocracy said: “The way the State has responded to our protest with this political policing just shows how frightened the elite are of a new movement pushing for radical democratic reform.”
Amongst the flurry of support coming in via social media, support includes:
Labour MP John McDonnell who also spoke at the protest said:
“When politicians and parties ignore them, people have no other option but to take direct action. Occupy Democracy is a way people can have their voice heard.”
Donnachadh McCarthy, the whistleblowing former Deputy Chair of the Liberal Democrats and author of The Prostitute State who also spoke yesterday said:
“Our political parties have been hijacked by the corporate lobbying classes, our media perverted by a handful of extreme right-wing billionaires, our tax system plundered by the tax-haven elite and our think-tanks, schools and universities increasingly corporately manipulated. Britain is no longer a democracy but a Prostitute State, which is reflected by the rise of UKIP. We desperately need a 21st Century Great Democratic Reform Act to re-gain our democracy for the sake of social and political justice and the very future of our planet’s ecosystems.”
Notes
1. http://uk.reuters.com/article/2014/10/15/uk-hongkong-china-britain-idUKKCN0I41C620141015

Reblogged with thanks to Occupy http://occupydemocracy.org.uk/2014/10/19/update-london-police-torment-occupydemocracy-protestors-on-parliament-square/
Twitter: @OccupyLondon

Oct 142014
 

A very interesting piece of information has come to light, which shows that Capita, which relies in part on contracted staff to deliver the PIP contract, has doubled the incentives offered to their staff, supposedly in order to clear the backlog which has accumulated since the introduction of PIP. As can be seen in the document below, a contracted HP can earn up to £6,300 a month for 21 assessments, after the report is completed. The target does not seem to be stretching it, as it represents 1 assessment per working day. Even if paying this whopping sum, Capita is still bound a make a profit.

see: www.trainedtodo.co.uk/Home

Capita graphic

New Incentive Payment Scheme
To further incentivise performance we have recently launched a NEW performance incentive scheme that runs from 1st August 2014 to 30th September 2014. The rate for completed and closed reports will be doubled for this period.

*New Incentivised Pay Rate for DWP Approved & Unapproved Contract Disability Assessors
Incentive Period 1st Aug 2014 to 30th Sept 2014
1 – 8 assessments        £160 per report
(£80 from 1st Oct 14)

9 – 14 assessments      £200 per report
(£100 from 1st Oct 14)
15 – 20 assessments    £240 per report
(£120 from 1st Oct 14)
21 assessments +        £300 per report
(£150 from 1st Oct 14)
* For DWP ‘Approved’ Disability Assessors
Approved is defined as achieving 4 consecutive Grade A reports following training.
Help where it really matters
Our overriding objective when carrying out each and every PIP assessment is to ensure an informed, fair and equitable decision is reached for the claimant and the DWP. Find out more
Latest jobs
We are currently recruiting Disability Assessors and Clinical Trainers for all areas across Central England and Wales

CONTRACT ROLES: New Incentive Period Pay Rate!

*£160 – £300 per completed and closed report
New Incentive Period 1st Aug 2014 to 30th Sept 2014

Reverting to £80 – £150 per quality completed report from 1st Oct to 30th Nov 2014
PERMANENT ROLES: New Incentive Payment

£300 for each case completed and closed above the monthly volume target. Incentive period is from 1st Aug 2014 to 30th Sept 2014

Reverting to £150 from 1st Oct 2014 to 30th Nov 2014

Salary: £32k plus 23 days holiday, contributory pension scheme and flexible benefits.

 

 

Oct 142014
 

9am-10am, Thursday16th October: Outside AIT (Asylum and Immigration Tribunal), Piccadilly Exchange, Piccadilly Plaza (top of Mosley Street just before Piccadilly Gardens), Manchester M1 4AH

“The asylum process feels like a slow poison that is taking away my zest for life” – Manjeet Kaur

Disabled human rights campaigner Manjeet Kaur, who is resisting Home Office attempts to evict her onto the streets, is to appeal against the decision to withdraw her housing support.

Trade unionists, disability and equal rights activists, and other campaigners will join the lobby in support of Manjeet outside the Asylum and Immigration Tribunal in Manchester from 9am-10am next Thursday, October 16th.

Manjeet, who is Chair of RAPAR, appeared on national television news last year to counter new anti migrant policies announced by Home Secretary Theresa May at the 2013 Conservative Party Conference.

Since she sought asylum in the UK more than three years ago, Manjeet has been a tireless campaigner for human rights and worked with the UK Disabled People’s Council to highlight injustices faced by disabled people seeking asylum

She was told she must leave the accommodation in Whalley Range, where she has lived since 2011, by today (Thursday, October 9th) at the latest. The unsigned and unaddressed hand delivered letter from Serco, which runs asylum housing in the North West on behalf of the Home Office, said:“Should you refuse to leave the property on this date, we will have no choice but to take legal action to evict you.”

Manjeet, who is from Afghanistan and has used a wheelchair since she was eight years old, recently lodged a claim with the Court of Appeal on the grounds that the High Court has failed to engage with the facts of her asylum case.

Currently, the Home Office are examining her latest appeal. Manjeet’s solicitor Gary McIndoe, of Latitude Law, explains: “In our view, successive judges have failed to address the core issues of the case – Manjeet’s nationality, the harm she suffered in the past and the practicality of removing her to India…”

A spokesperson for RAPAR said: “Manjeet is facing eviction from her home because her asylum case is deemed by the Home Office to be at an end. Yet, in the view of her lawyers, successive judges have failed to examine the core issues of her case. It seems that the Home Office is prepared to evict a disabled woman who uses a wheelchair onto the streets when the facts of her asylum case have not been properly considered.”

Manjeet added: “As a disabled asylum seeker with various health issues and hospital appointments, I feel I am living on the edge. I will be made destitute with a limited ability to survive on the streets. Is this something the state allows to happen in the society that we live in?

“The asylum process feels like a slow poison that is taking away my zest for life.”

Sharon Hooley, of DAN (Direct Action Network for Disabled People) will be one of the speakers at the lobby outside the tribunal next Thursday.

Commenting on Manjeet’s case, Sharon said: “We say this is a ‘civilised country’ yet it seems perfectly acceptable to demonise, discriminate, alienate and rob disabled people of their basic human needs.
“Since becoming disabled in the past six years, I never thought I would see such pure hatred and lack of humanity towards people like myself. So I’m shouting out for all those who have been made invisible to our society. I ask you all to open your eyes and ears and see the truth about what is happening right in front of you.”

For more information, please contact: Kathleen Grant 07758386208/ kath.northernstories@googlemail.com

Background notes
Manjeet Kaur, who lives in Whalley Range, came to the UK in March, a month after the disappearance of her husband Amitt Bhatt – a journalist and Kashmir human rights activist who was threatened and attacked because of his anti government articles and books. In the past, Amitt has spoken on the same human rights platform as Jemima Khan.

Manjeet fled to the UK because she was beaten twice and threatened with rape and murder by people who were looking for her husband. She uses a wheelchair due to paralysis caused by polio and the injuries she sustained during the beatings have worsened her condition.

Manjeet was born and lived in Afghanistan until the death of her father, a doctor in Kabul. Since her husband disappeared, Manjeet has no-one to care for her in India but she has relatives in England who can support her. Earlier this year, Manjeet’s husband finally escaped to the UK and immediately claimed asylum.

Details of Manjeet’s case can also be found on the RAPAR website http://www.rapar.org.uk/keep-manjeet-safe-in-the-uk.html

reblogged from RAPAR with thanks

Sep 292014
 

School children will face Jobcentre harassment from the age of 15 whilst claimants thought to have drug and alcohol problems will be paid benefits on smart cards if the Tories win the next election said Iain Duncan Smith in his speech to the party’s conference today.

ids-slug-e1397647313855
18-21 year old who cannot find a job are to be placed on permanent workfare, whilst further caps on Housing Benefits will see yet more cities become unaffordable for anyone currently unable to work – whether this is through sickness, disability, high unemployment or having young children to care for.  And if this wasn’t enough then benefits are to be frozen for two years, meaning a real term cut in the incomes of the UK’s poorest people, whether they are in or out of work.
The smart cards will be for people Iain Duncan Smith thinks have fallen into a “damaging spiral” and are spending all their money on drugs, alcohol and gambling.  Whilst details so far are scant, it seems likely to be similar to the Australian Basics Card which aims to control how benefit recipients spend their money.  The scheme has already proved hugely expensive and has led to people unable to shop at cheaper stores such as Aldi, who government officials say do not meet the “set criteria”.  Predictably Basics Cards have not prevented claimants buying drugs, alcohol or tobacco.  In the UK it is likely to stop people who have genuine problems with drugs or alcohol from seeking treatment in case the Jobcentre find out.  It is a stupid idea, as unworkable as it is callous.  You can see why it would appeal to a nasty fucking idiot like Iain Duncan Smith.
Permanent workfare for 18-21 year old is equally draconian, and equally unworkable – so unworkable that it was actually first announced in George Osborne’s Autumn Statement last year and then never implemented.  Already there isn’t enough workfare to go round, and with resistance to workfare showing no signs of dying down, there will be few community organisatins willing to take part in such an explitative programme.  Meanwhile sending Jobcentre busybodies to harass schoolchildren when they should be studying for their GCSE’s and aren’t likely to be looking for a job or eligible for benefits for two or three years seems little more than a waste of everybody’s time.
With Iain Duncan Smith’s welfare reforms unravelling in all directions and poverty not seen in generations returning to haunt the UK, there was nothing in his conference speech to suggest he has learnt anything from his failure.  The scary thing is, he thinks he is doing a wonderful job – even still pretending that Universal Credit will eventually be rolled out across the country.  Yet across the UK millions of people are facing a Winter where they will face the bleak choice between heating or eating and many will not be able to afford either.
It is horrifying that the Tories seem to think they can win an election by making poor people poorer.  Perhaps more fightening is that the Labour Party have eagerly embraced this vile competion to attack and scapegoat those with nothing.  Whoever wins the next election it will be down to us – unemployed claimants, disabled people, parents and low waged precarious workers – to fight these bastards.  It will be the struggle that defines the neo-liberal age as capitalism rub rampant drives people into the the ground in the name of making more profit for the rich.  We must continue to fight, and we must win.

This blog has no sources of funding so here’s a quick reminder that you can help ensure it continues by making a donation.

Follow me on twitter @johnnyvoid

re-posted on September 29, 2014 by DPAC written by johnny void with thanks

Sep 272014
 

First ever protest at Tory conference Oct 2010 under the name of Disabled Peoples’ Protest, before the name Disabled People against Cuts (DPAC) was chosen.

DPAC protest pic

see links

Disabled People make History

First call out for first protest

The British Library began archiving the DPAC site from 2011 so know that all on this site will stand as an historical testament of this governments actions towards disabled people and what they are doing to the lives of  millions-we will not give up fighting!

See Kate Belgrave’s excellent piece on DPAC’s recent Westminster Abbey protest

Browse the DPAC archives and DPAC on Flickr for more DPAC actions over the years

see local DPAC contact and facebook groups HERE

Happy Birthday DPAC and thanks to all who have helped make DPAC what it is

Sep 272014
 

by Linda Burnip

Shortly before the June budget statement from George Osborne in 2010 myself and others attended a training course on the UNCRPD and how it could be used to advance disabled people’s human rights run by Rachel Hurst from Disability Awareness in Action.

It was a pleasant weekend in a posh hotel with lots of free food but then came the budget announcement and it seemed that more needed to be done to protect disabled people’s human rights then sitting comfortably in a hotel. Disabled People’s Protest was born and we decided that disabled people should lead the march against the Tories at their conference in Birmingham in 2010. The police tried to stop us of course as we are all so vulnerable and they feared for our safety but we mustered complaints from around the world against this and they were forced to allow us to do that.

There were about 150+ disabled people who marched or wheeled at the front of a 7,000 strong protest in the pouring rain plus more taking part in a static protest in Chamberlain Square. Our slogan was Cuts Kill and of course we were accused by some of scaremongering but sadly we have since been proven right. Cuts are continuing to kill disabled people almost on a daily basis, malnutrition is rife in the 7th richest country in the world and diseases related to poverty are returning such as scurvy and rickets. This is an obscene public health emergency yet sanctions and the use of food banks continue to increase and poverty and deprivation worsen.

Over the last 4 years it seems like more and more attacks against disabled people have kept happening, our rights have been systematically stripped away and every aspect of our lives are under threat as the Tory killing machine continues to unfurl more and deeper cuts.

But we have achieved much and most of all we’ve shown that disabled people can fight back and will fight back, we are not the easy push over that Iain Duncan Smith and his party henchmen thought we would be. The much hated ATOS is on its way out and not even the nastiest of alternative corporations seems willing to even bid for the WCA contract to replace them. We’ve successfully made ATOS and Capita such toxic brands that they cannot recruit staff.

We’ve taken and supported court cases both to challenge the WCA and to save the ILF putting legal barriers in the way of this unelected government. We’ve had many street protests and carried out numerous direct actions and lobbied parliament and continued to speak at meetings and educate people about access needs and the consequences of cuts.

This year we’re celebrating our 4th birthday back where we started at the Tory Party conference in Birmingham and the Tories may well get an unexpected surprise at conference this time too

As well as that we’re launching our non-party political (due to the transparency of lobbying bill another aspect of the Tories trying to stifle dissent against themselves as they know there is so much) campaign Who2 Vote4 so you’ll be seeing this logo around a lot from now on.

Who2Vote4 Logo
We will be seeking to influence policies which affect disabled people and to get political parties to commit themselves to reversing the cuts we’ve all faced in the past 4 years.

We want you to let us know what is important to you as well. Please post on the blog or email us at mail@dpac.uk.net to tell us what you think we should be asking of our politicians.

More news about our planned activities in the run up to the General Election coming soon.

Sep 272014
 

by Andy Greene

‘Look into my eyes, deep into my eyes’ the Great Farago will mean no matter what he says to the Circus of Fools that is the UKIP Conference this weekend. As he tries to pull off his latest conjuring trick on the nation: ‘We are the alternative to the status quo’.

Honestly, Nigel, give it up man. We can see the strings. As we all know, magic works best when punters are distracted by the banter from seeing what’s really going on. In this case, the banter is offensive, divisive and harmful. The great feat Farago is trying to pull off is to get you and me to believe that UKIP are alternative to the failed political institutions and systems Westminster has to offer.

They aren’t any kind of alternative. Oh yes, they’ve improved the patter. Yes, Nigel has a pint. Yes, many of them talk about the issues facing working class people across the country in a way that resonates with working class people. But those are their greatest tricks. The ones they’ve been stood in front of the mirror practising for 2 decades. But, look up their sleeves.

Because a vote for UKIP is a vote for the status quo. And worse. Much, much worse. You see what Nigel is offering – himself – as an alternative to the public school educated, bankster loving, gravy-train riding establishment is – wait for it; a gravy-train riding, publicly school educated ex-bankster! Oh and if you think ‘well, that’s just one dude, not a whole party'; then think again. Today, the Mirror tells us that over 90% of UKIP funding comes from disillusioned ex-Tory funders. Their first MP is likely to come from the by-election in Clacton – brought about by the defection of former sitting Tory MP Douglas Carswell.

Hardly the ‘alternative to the same old tired parties’ they espouse on their various national and local party websites. More a case of the more things change, the more they stay the same.

And what of UKIP’s position on disability issues? Many disabled people don’t feel the mainstream parties have anything positive to offer amidst ideas such as work camps for long-term unemployed and disabled jobseekers, assisted suicide bills, IDS laughing his way through disability debates if he can even be bothered to stay at all and Labour determined to be ‘tough on welfare’.

When disabled people are desperately searching for someone to represent their interests against the onslaught of attacks it is not surprising that some have turned to UKIP for an answer.

But UKIP aren’t anything but bad news for disabled people.

Without a credible policy to their name (don’t take my word for it, Nigel called UKIP 2010 election policies ‘rubbish’, and their Head of Policy described them as ‘junk’), we are left with examining what they say and do in public to know their what position is on the 11 million disabled people in the UK.

‘Disabled children are a burden on the state and should be aborted as a foetus’ said Geoffrey Clark. Yes, cuddly old Geoffrey was suspended eventually, and probably loves kittens – but the fact that he thought he was in an environment where this would be deemed acceptable speaks volumes.

‘Are you Richard III?’ perma-fuckup Godfrey Bloom asked a disabled debater (I say asked, he actually interrupted the debater mid-flow) to a disabled person who happened to have a different point of view to him. Presumably, Godfrey would’ve preferred them to be kept at home, keeping the ‘sluts’ company (his word, not mine).

‘Because you are registered disabled, you will not be able to stand as a full UKIP candidate’ went the response to someone who applied to stand on behalf of the party at a previous election.

Then there’s the chilling notion of ‘supporting congregate communities for people with learning disabilities’. ‘Congregate communities?’ What, like special homes? Maybe we would call them something exciting like, camps? Maybe they should wear a special badge, just so we can identify campers? I dunno, maybe something simple like a black triangle? What could possibly go wrong?

So not only do UKIP not offer an alternative to the status quo, the attitudes their representatives show towards disabled people are even worse than anything anyone other than the most out of touch Tory councillor would dare publicly express.

Of course they will be on their best behaviour in the run up to the election. And the media will behave like a kindly uncle at Christmas patting them on the head as if its the greatest trick they’ve ever seen.

So it’s important that those of us who can see past the smoke and mirrors shout loud and expose Farago for the trickster he is.

That’s why DPAC will be marching in Doncaster this weekend, to stand up to UKIP, stand up to racism, homophobia, sexism and disabilism, to say we won’t let our communities be divided by millionaires in disguise, we will stand united and fight for a real alternative, one that UKIP definitely doesn’t offer

UKIP Tories

See also from May http://dpac.uk.net/2013/05/why-the-rise-of-ukip-is-dangerous-for-disabled-people/

and yes we know labour now say they will abolish the bedroom tax, they hadnt at the time this was written

References

http://metro.co.uk/2012/12/19/all-disabled-babies-should-be-aborted-claims-ukip-candidate-3322519/

http://www.huffingtonpost.co.uk/2012/12/18/ukip-geoffrey-clark-compulsory-disability-abortion-_n_2322798.html

http://www.dailymail.co.uk/news/article-2250114/UKIP-candidate-sparks-outrage-calling-compulsory-abortion-foetus-Downs-syndrome-spina-bifida.html

http://blog.ukipwatch.org/2005/01/ukip-scandal.html

http://www.lewes.co.uk/forum/post/ContUKIP_got_em_on_the_run/140952

Sep 242014
 

I am a journalist with BBC Radio Wales.  I’m currently researching a half-hour programme looking at people’s experience of the process of applying for PIP for broadcast towards the end of October.

I’m particularly keen to hear from people who have found delays in the assessment and decision-making processes who would be prepared to share their experiences through a pre-recorded radio interview over the next month or so.

I hope that you are able to help.  Please get back to me if you need any more information.

 

Regards,

Andy Fry

Series Producer, “Eye on Wales”, BBC Radio Wales

Work/Gwaith:    029 2032 2406 or 029 2032 3763

*       Room E1102, Broadcasting House, Llandaff, Cardiff CF5 2YQ

*       Ystafell E1102, Y Ganolfan Ddarlledu, Llandaf, Caerdydd CF5 2YQ

8       mailto:andy.fry@bbc.co.uk

 

Sep 162014
 

Sign petition by clicking here

Wording of petition

Enda Kenny and HSE stop the human rights abuse of Anthony Kletzander in Ireland

Anthony was an active member of our local community and well known by the people in Raheny. He was actively involved in his local church, library, and a gym member for years. He attended university, dined in the local universities and public places and enjoyed regular visits from his parents, three younger siblings, grandfather and extended relatives. For 3 years Anthony had independent living with personal assistants to support him living in a home of his own near his family and friends. He was living the life he wanted to live, as any man in his twenties.

In 2013 HSE refused to continue to support him in Independent Living in a home of his own, for reasons that they will not share with us. Anthony was forced into institutional care and residential homes: initially Redwood in Co. Meath Ireland and then being transported by Nua HealthCare in Co Kildare Ireland, over 150 kilometres round trip from the family home to a unit in Nua Health Care. Last week Nua moved Anthony to another Nua unit against our wishes so Anthony has been re homed three times in the past year causing serious damage to Anthony. We his parents only learnt that Anthony had been rehomed in the Nua service when his mother and a friend went to visit him at his original Nua unit or “house”. This human rights abuse is totally unacceptable. He is now socially isolated from his family and local community.

Although Anthony has been institutionalised for almost a year, due to the fact that staff are not trained up in Anthony’s communication Anthony is unable to make any phone contact with us whatsoever and Nua staff do not bother phoning us. We found a company to train staff in Anthony’s communication, but that offer was ignored. So Anthony remains effectively silenced. Because our visit is 150 km round trip we spend every minute of every day worrying about his health and safety.

Anthony is becoming more and more fearful and has been in hospital three times by emergency ambulance times because of treatment at the residential homes/institutions. He tells us to tell the institution to stop giving him the medication ( he was medication free before being institutionalised but is now being forced medication against his and us his parents wishes, Nua are fully aware of our objections) . He asks us constantly to get him out so he can have his own life through independent living again, and be close to the people he loves. We all want him back under the care of our family GP of more than 8 years who genuinely cares about the health and safety of our son Anthony.

An organisation in Dublin has offered to arrange support for Anthony live in a home of his own again, and live independently, but HSE refuse to discuss this option-despite it being what Anthony wants and despite having an organisation ready to offer the support to make this happen.

Hearing Anthony constantly asking that he be returned to Independent Living, to live near to his family, who he does not see often enough-to be released from institutionalisation is heart breaking for us as a family to hear. We have always listened and been led by Anthony and we feel extremely helpless in helping Anthony to live the life he chooses. To be constantly knocked back by the HSE and the institutions is extremely difficult for us.

The petition is for Enda Kenny and HSE to call an open meeting to discuss returning Anthony to the life he wants. The meeting should take place before the end of October 2014. The meeting should be attended by the support organisation offering to support Anthony, by Anthony ( with his communication aid), his family, Anthony’s chosen advocate Joe Whittaker, and the press. The meeting will be to discuss the arrangements to return Anthony to independent living, to his family and his community to allow him to resume his life, as any 26 year old man.

Linda Kletzander (Mother)

Joe Whittaker (Advocate)

HSE and assorted want to shut this whole thing up-dont let them-instead show them that this story will not be buried or silenced. Human rights abuse must always be exposed

see also: DPAC threatened with legal action for supporting Anthony Kletzander: parents interview

 

 

Sep 152014
 

Statement on Bristol Green Group’s motion on the future of the Independent Living Fund 16 September 2014.

 

Bristol Disability Equality Forum (BDEF) support Bristol Green group’s motion on the future of the Independent Living Fund (ILF.)

 

Having led local campaigning and held discussions with representatives across all the major parties within Bristol, we call on our Mayor to support this motion. This is an opportunity for our city to support the rights of it’s Disabled citizens to live independent lives.

 

The ILF has made it possible for thousands of Disabled people with high support needs to live in their own homes, contribute to family and community life and to take part in work and education. The closure of the ILF will have a drastic impact on these Disabled people, their family members and communities.

 

The ILF has supported a diverse group of Disabled people, including people with learning difficulties, and also autistic people.  The ILF has made it possible for people to live at home with their families and with the support of their choice. Bristol is in the shadow of Winterbourne View, so the alternative is never far from our thoughts.

 

The threat of living an isolated existence, or being forced into residential care, is very real for ILF recipients in Bristol, many of whom are Forum members. There are also many other Disabled people who have been denied this vital support, since the ILF was closed to new applicants in 2010.

 

This all has come at a time when Disabled people have already been hit the hardest by welfare reform, cuts to services and combined impact of austerity measures.  It is for these reasons that we view the closure of the ILF as part of a wider agenda that affects all Disabled people.

 

The closure of the ILF will shift responsibility to local councils, placing already cash-strapped authorities under more financial pressure.  This will increase the risk of councils failing to meet their public duties, resulting in legal challenges and further appeals.

 

The ILF has created thousands of jobs and meant that central government  funding is spent and re-invested locally. The ILF is one of the most cost effective public sector schemes1, with just 2% spent on administration much less than local councils. The satisfaction ‘user rate’ for the ILF is over 97%2.

The Government accept that the ILF is more flexible than the services provided by some councils. The government have also stated that most current ILF recipients will face changes to support or reduction in funding.3

 

Closing the ILF is also likely to result in an increase in spending in the long-term, as result of reduced health and wellbeing and increased pressure on more expensive services.

 

Government has claimed that developments such as Direct Payments, Personal Budgets and new duties on councils under the Care Act mean that the ILF is no longer needed. This ignores the evidence of Disabled people and organisations with direct experience of both systems. The Government has not prevented the care and support ‘post-code lottery’. These developments have not reduced the variation and disparity between local councils, both in how direct payments can be used and in the services available.

 

We feel strongly that the success of this Government funded, centrally administered scheme that is ring-fenced for those that need it most, should be built upon. This should happen by re-opening and expanding the ILF, with Disabled people playing a central role in decision making.

However, as proposed in the motion, should the ILF close, ring-fencing of funds from central government and the full involvement of Disabled people in all parts of the process is essential. This is needed to ensure our rights to independence, to live in the community, to choices equal to others and access to a range of services.

As Disabled people we want to do the ordinary things in life that many take for granted, to live and not just exist.

 


References

 

1 & 2. ILF Annual Report and Accounts 2013 – 2014

https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/321510/ilf-ara-2013-14.pdf

 

  1. 3.Equality Impact Analysis ‘Closure of the Independent Living Fund with transfer of responsibility and funding to local authorities inEngland and the devolved administrations in Scotland and ’ DWP 2014:

 ‘It is almost certain that closure of the ILF will mean that the majority of users will face changes to the way their support is delivered, including the real possibility of a reduction to the funding they currently receive. This is because the ILF funds some aspects of care that some local authorities do not and may also provide different levels of flexibility in the use of such funding.’

 

Notes

 

Bristol Disability Equality Forum (BDEF) is an organisation of Disabled people, open all that identify as Disabled people, regardless of impairment in Bristol area. We develop projects and campaign to increase Disabled people’s inclusion, influence, equality and access to services.

 

The BDEF ILF Action Group was formed after a conference on the future of the held in Bristol in September 2013. The conference was organised by the BDEF, working alongside West of England Centre for Inclusive Living (WECIL) ILF and Council staff. Disabled people at the conference decided to form their own group, in order to campaign, share information and ensure direct involvement in any developments relating to the ILF.

 

For further information, please contact Laura Welti, BDEF Manager or Mark Williams, BDEF Co-Chair.

 

Bristol Disability Equality Forum Main Office:

 

E-mail:       bristoldef@gmail.com

Tel:             0117 914 0528.

Web:          www.bristoldef.org.uk

 

BDEF ILF Action Group:

 

E-mail:       ilf.bristoldef@gmail.com

Text:           07867 690 422

 

Sep 132014
 

DPAC has removed our most recent piece on Anthony Kletzander from our website due to a ‘cease and desist’ letter from solicitors representing Nua Healthcare threatening legal action against us for raising awareness of the case. DPAC have published pieces on Anthony and his situation since late 2013. We firmly believe that Anthony’s desire for independent living, instead of institutionalisation should be upheld, as per Article 19 of the UN Convention on the Rights of Persons with Disabilities. We also believe that we have a duty to raise public awareness on Anthony’s experiences.

We will continue to campaign and to support Anthony, his parents: Linda and Sigi and his chosen advocate Joe Whittaker in any way we can. Anthony’s parents Linda and Sigi kindly agreed to an interview from their home in Ireland. We are grateful for their time and honesty.

Interview
As you may know supportive web sites and grass root disability groups in the UK and Europe received a solicitors ‘cease and desist’ letter regarding talking about Anthony’s circumstances, we can not talk about that specifically, but as Anthony’s parents and his legal guardians-what are your thoughts on:
 
a) the suggestion of the protection Anthony’s ‘confidentially’ :what has Anthony said to you on this, what is it that he wants to say about his circumstances? And as his parents what is it you would like to say?

Anthony repeatedly asks us to get him out of Nua and that he wants independent living in his own home near to his family. We fully support Anthony and take our lead from Anthony. He wants us to do whatever is necessary to help him to get back to independent living

BxRwyjuIQAAiqT3twitpic

b) We understand that Anthony’s chosen means of communication has been denied, can you tell us a bit about that?
Despite the fact that Nua were given Speech and Language reports from two Health Service Executive (HSE ) Senior Speech and Language Therapists, Speech and Language report from Central Remedial Clinic Speech Therapist and Marion Stanton communication expert in U.K no staff at Nua are trained up in his communication  Marion offered to come to Ireland (in March 2014) to train Nua staff, but Nua did not invite her over in fact Noel Dunne said on the phone that they would get their own experts.

IMG_0030

2.Anthony lived in his own flat with his own personal assistants for almost 3 years – why do you think it is proving so difficult for Anthony to exercise his right to independent living by living in a place of his own choosing now?
 

Having had independent living from 2010-2012 with Cheshire Ireland where Cheshire took a back seat, we recruited Anthony’s staff with Anthony, put together a schedule which Anthony helped in planning and we negotiated with Dublin City University (DCU) and Anthony attended DCU lectures which is something he always wanted to do. In 2013 Anthony service was given over to Áiseanna Tacaíochta Network (ATN) by HSE with no meaningful negotiations with Anthony or us, no explanation was given. Martin Naughton the Director of ATN carried out the negotiations with Geraldine Murphy HSE Disability Manager. Martin then imposed his staff on Anthony, none of which believed in Anthony’s communication and Anthony’s whole quality of life suffered a great deal under the service of ATN. Martin tried to dictate visiting hours for Anthony, restricted his movement. Basically we had to go to Anthony’s home every evening to take Anthony out as he was effectively under virtual house arrest. Martin also applied to the Dept of Social Protection to have Anthony’s personal disability allowance payment paid into the ATN company. Following Martin’s email we contacted the department objecting and it took about a year to sort out the stoppage of Anthony’s payment due to ATN’s actions.

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3.What does Anthony say to people fighting the campaign to get him independent living?

Anthony continues to ask us to keep the campaign going. He also appeals to us to ask Nua to stop the forced medication on him. Anthony has know Joe (Whittaker) for about 11 years and always asks us to ask Joe to continue the campaign for him.  We always reassure Anthony that Joe and we his parents are continually campaigning and won’t stop until Anthony is released to Independent living. We need to keep repeating this to Anthony to try to help him to survive his time with the Nua institution

4 What efforts have HSE made to discuss Anthony’s wishes for independent living with you and Anthony?
 
Possibilities Plus offered HSE their service to provide Independent Living. Geraldine Murphy has told them that as far as she is concerned the Nua arrangement is permanent.  We continue to write to Sheila Marshall the other Disability Manager involved.

5.Who do you recognise outside the family as closest to Anthony and who has Anthony chosen as an advocate?
Anthony chose Joe Whittaker as his advocate and we keep Anthony informed about the campaign. We Anthony’s parents feel encouraged and very appreciative of Joe’s on going support. We are all grateful that many more people know what is going on and we really appreciate all the support that Anthony is being given by growing numbers of people.

6.Prior to Anthony being institutionalised did Anthony have a history of hospitalisation

No, prior to ATN taking over the management of Anthony service, Anthony was on a strict gluten and dairy free diet. He was not given ANY medication but took natural supplements. When ATN took over Anthony’s service ATN stopped Anthony’s special diet against the advice of the family doctor claiming that they found him to be “often hungry”. This caused Anthony pain and subsequently contributed to his virtual “house arrest”.

7.When did forced medication start for Anthony

Anthony was medication free when he entered Redwood ( a prior institution). However three days after he entered Redwood we got a phone call confirming that Anthony’s crucial special gluten and dairy free diet was not being adhered to by Redwood and that they were giving him medication.

8.Did Anthony have a history of being hospitalised prior to being institutionalised

No. Despite the fact that we gave Redwood Anthony’s GP letter and met with Management when we were told that Anthony was been given medication and that his diet was not adhered to. Anthony was hospitalised by emergency ambulance with seizures for the first time in his life. Tests showed no epilepsy.

9.Did Nua continue with the drugs regime

When Anthony started in Nua he was not drugged according to our information. However in March 2014 Anthony was admitted to hospital by emergency ambulance. Since Anthony started in Nua he has been admitted twice to hospital by emergency ambulance and continues to be medicated.

10.Did Nua give you the list of Anthony’s medication

No despite the fact that we repeatedly asked Nua for the list of Anthony’s medication they refused to give it to us. We finally got the list of medication when our solicitor requested the medication list from HSE when Sheila Marshall, Disability Manager issued the medication to our solicitor so we then had access to this crucial information.

11.How does Anthony spend his weekdays

When Anthony started at Nua we attended a conference explained the significance of training for staff of Anthony’s communication. We also told everyone who attended the meeting from HSE and Nua that Anthony hates farms.  He attends the Nua farm daily where we recently witnessed Anthony shovelling manure into a wheelbarrow in a highly distressed state and being told “good boy keep going”. Anthony is a 26 year old man not a “boy”.

photo anthony

12.How did Anthony appear on your recent visit to him on the Nua farm

When we drove into the car park we could hear Anthony’s anguished sounds and rushed to find him. We were shocked to see him shovelling manure into a heaped wheelbarrow. Anthony’s anguished sounds increased significantly whilst bringing the heaped wheelbarrow down the very steep hill to the lower Nua gardens. We emailed Nua voicing our concerns but received a registered letter from Nua yesterday informing us that Anthony has been returned to the farm as of 8 September 2014 so we continue to worry significantly about Anthony’s health and safety in Nua.

13. What would you say to parents/people in a similar situation to that of Anthony?

We would say never give up. Everyone is entitled to be listened to, no one’s basic human rights should be abused. We would encourage people to speak up if they can.

14.What would you and Anthony say to the people supporting Anthony?
Anthony is continually thanking people for their support which he needs to stay strong. Anthony is particularly grateful to his and our friend Joe Whittaker

Video of Anthony typing thank you to supporters

Sign the Petition to stop this here

If you can help please contact Anthony’s chosen advocate Joe: whittakerjoe5@gmail.com

Abbreviations

ATN Áiseanna Tacaíochta Network
DCU Dublin City University
DPAC Disabled People against Cuts
HSE Health Service Executive: responsible for the provision of healthcare providing health and personal social services for everyone living in Ireland, with public funds.

 

Sep 102014
 

Posted on September 10, 2014 by johnny void

Poundland have seen dozens of protests outside their stores over their use of unpaid workers.

Poundland have seen dozens of protests outside their stores over their use of unpaid workers.

In a bizarre move, several companies known to use unpaid staff on workfare schemes have teamed up to write a letter to The Guardian singing the praises of the disastrous Work Programe.
The list of employers – which includes Homebase who are known to have used workfare is the past, and Poundland, who were at the heart of the successful legal challenge against workfare – say that the government’s support for schemes like the Work Programme ‘must continue’.  Otherwise they might have to start actually paying their staff instead of exploiting unemployed people coerced into unpaid work by sanction-happy Jobcentre busy-bodies.
It is not known whether all the companies on the list, which include Ocado and Gap, are involved in unpaid work, although it is difficult to see why they have signed otherwise.  In fact it seems a strange thing for these businesses to be bothered to do at all.
The last signatory on the list may reveal one explanation for how this strange initiative came about.  Kirsty McHugh is the Chief Executive of the Employment Related Services Assocation, or ERSA for short.  This is the trade body established to lie on behalf of the welfare-to-work parasites like A4e and G4S who run the Work Programme.  Just last week they published a breath-takingly dishonest report making wild claims that no-one believed about how much money the Work Programme is saving the country.  It seems likely that this letter was co-ordinated by ERSA as part of a shabby PR campaign designed to convince the DWP to keep giving welfare-to-work firms billions of pounds of our money.
Labour have hinted that they might bring in local councils to run forced work schemes.  The Lib Dems are caling for a policy change and may yet hold the balance of power again come the next election.  More importantly, no-one know better than the welfare-to-work sector that the latest ‘Help to Work’ scheme is set to be a disaster and that they will be the ones that get the blame when it all goes wrong.  The future does not look so assured for ERSA and their welfare-to-work cronies who  have made hundreds of millions out of bullying and exploiting unemployed people.  They will fight as dirty if they have to keep Brtain’s biggest benefit scam alive.

Expect more bollocks like this.
join the Week of Action Against Workfare beginning on October 4th.  Please spread the word.
This blog has no sources of funding so here’s a quick reminder that you can help ensure it continues by making a donation.

Follow me on twitter @johnnyvoid

with thanks from DPAC for allowing us to reblog

Sep 082014
 

Response
(1) The Work Capability Assessment is a much more rigid test & cannot be compared with former Personal Capability Assessments.  It is inconceivable that a conclusion can be reached that the more rigid Work Capability Assessment has become easier to negotiate than the previous Personal Capability Assessment which had a lower threshold.
It is not accepted that there has been any form of significant improvement in the claims process surrounding the Work Capability Assessment.
Never before has one benefit assessment process attracted so much adverse publicity and negativity as the Work Capability Assessment.
It stands to reason that if the test is set as high bar as the Work Capability Assessment is, it logically follows that qualifying for entitlement will be far more difficult than qualifying for the previous Incapacity Benefit via the Personal Capability Assessment process used to determine eligibility for Incapacity Benefit & Income Support on the grounds of incapacity for work.
It is not accepted that any accurate comparison with Incapacity Benefit can be drawn without full regard to analysing similar cohort factors such as the ages, ICD coding, duration of claim, gender, and regions of the claimants being taken in to consideration.

(2) No comparisons can be drawn between Incapacity Benefit & Employment & Support Allowance without a proper scrutiny of a more complete set of statistics
Before drawing any analysis between Incapacity Benefit and ESA, the numbers of claimants used in the comparison including on and off flows would need to be carefully scrutinised. This is especially important where the flow rate is mixed with ib/ESA migration cases and where it can no longer be safely concluded that new ESA claimants are not in fact older claimants who have since submitted a fresh claim.
Between October 2008 and September 2013 the ESA regime has involved a total departmental case-load (across all cohorts) of 6,440,000 cases involving 4,396,400 Work Capability Assessments of which 1,198,700 were a repeat.  A case load of this magnitude requires considerable analysis across all cohorts before any accurate comparisons can be drawn between the older incapacity benefits and ESA.  The former was far less complex in cohort terms.
Between October 2008 and September 2013, 1,407,400 claimants have been placed in the Work Related Activity Group (453,300 at repeat assessment) and 1,437,300 in the Support Group (479,800 at repeat assessment).  These figures are considerably higher than those relating to the new ESA claim group in which 484,900 have been placed in the Work Related Activity Group and 445,400 have been placed in the Support Group. Far more information is required as to not only the numbers allocated to the groups but also what happens to the claimants after they have been assessed in to a placement.

(3) The DWP needs to produce statistics on appeals & reconsiderations before any reliance be can be placed on the Work Capability Assessment statistics.  Well over a million claimants have disputed the findings of Work Capability Assessments and the full dispute outcomes are as yet still unknown.
From April 2009 to December 2013, HMCTS figures confirm 1,054,541 ESA appeals have been lodged with Tribunals of which an average of 40 + % of those already heard have been overturned in the claimant’s favour.  These figures are far in excess of any related to the previous Incapacity Benefit and are an obvious indicator of significant numbers of claimants having a lack of confidence in the decision reached at initial assessment.
The DWP’s WCA statistics are inherently unreliable and cannot be read in the context of isolated quotations from quarterly releases without proper reference being made to the more specific and overall totals available.  The overall (cumulative) ‘qualifying’ rates for claimants are (up to September 2013):
-New ESA claimants 47%
-New ESA claimants at repeat assessment 78%
-IB/ESA migrated claimants 80%

Whilst it may be helpful to look at quarterly shifts in the figures, it is the overall cumulative rate which needs to change before it can be safely concluded that any material change has taken place.

The DWP’s WCA statistics are rendered inaccurate by way of the DWP’s inherently slow update of information from the inputting of the number of formal appeals lodged with HMCTS together with a total lack of explanation as to the number of initial decisions overturned informally following DWP reconsideration. This is particularly important in respect of monitoring the effects of mandatory reconsideration since October 2013.

(4) Employment & Support Allowance is an entirely different regime to that of Incapacity Benefit making any comparison unreliable.  Delays with the DWP & Atos Healthcare have resulted in a chronic backlog of 750,000 cases awaiting assessments from which no conclusions can be drawn.  The WCA statistics are made additionally complex by the influx of a case load of 1,354,800 claimants assessed from the Incapacity Benefit migration programme.
The claims process involving ESA is entirely different to that of Incapacity Benefit.  ESA involves the claimant initially being subjected to what should be a 13 week assessment phase before the Work Capability Assessment decision is decided upon by the DWP.  It is only once the assessment phase has been completed that a proper decision can be made as to whether the claimant can move in to the main WRAG/Support Group phases of ESA entitlement.  Chronic delays have built up to a point where the backlog awaiting assessment had recently reached over 750,000 claimants.  It is a clear sign that the DWP was earlier ‘over reassessing’ claimants leading to a substantial lack of residual data on outcomes and the possibility that the Department is now making less rigid placement decisions in order to get though its chronically stretched backlog.
Claimants who have undergone ib to ESA migration do not in any event claim ESA, their claim is merely converted (providing they qualify at the point of WCA conversion) and thus no comparison can be drawn between this cohort and those making a new ESA claim from scratch.

(5) Statistical manipulation
Between October 2008 and September 2013, the Work Capability Assessment statistics record that 1,551,500 claimants have been found fit for work and 1,500,900 claimants have ended their claims without completing their Work Capability Assessment. In total the overall number of claimants who seemingly should have exited Employment & Support Allowance is therefore in excess of 3 million claimants. However the DWP off flow figures for the period October 2008 to August 2013 show the numbers exiting from Employment & Support Allowance to be 2,288,980.

The number of claimants leaving Employment & Support Allowance who closed their claims is a fixed statistic, whereas the number found fit for work is reversible if the claimant appeals or requests a reconsideration.
It is hard to understand how an apparent ‘exodus’ of some 3 million plus Employment & Support Allowance claimants as shown in the assessment statistics is not matched by statistics showing a rise in the numbers claiming Jobseeker’s Allowance.
In addition to the exodus related to assessment, there are also claimants who will have died, transferred to other benefits or ended their claim through time limiting imposed upon contributory claimants in the Work Related Activity Group who cease claiming where there are no grounds upon which to continue claiming income based Employment & Support Allowance.
DWP figures, related to on-flows, show that of October 2008 to August 2013, 636,410 Employment & Support Allowance claimants made a second or more claim for Employment & Support Allowance. This will add substantially to the number of on flows and may therefore give a distorted perception over more claimants claiming as well as ‘clouding’ the influx of what may appear to be new Employment & Support Allowance claimants who are in fact previous claimants who have simply made another claim.

(6) Mistrust
Media articles including those relating to the deaths of ESA claimants such as Graham Shawcross (63), Mark Wood (44), Neil Groves (46), Lee Robinson (39), Elenore Tatton (39), Linda Wootton (49), Brian McCardle (57), Karen Sherlock (44), Trevor Drakard (50), David Groves (56) and others have created a massive mistrust in the Work Capability Assessment as a valid measure of a claimant’s ability to work.  The DWP has failed to produce any up to date statistics upon which any reliable conclusions can be drawn as to the number of deaths & whether they can be ruled out as being directly or indirectly related to the Work Capability Assessment process.
The Work Capability Assessment remains condemned by disability groups, the BMA, National Charities, senior judges and Parliamentary Select Committees. The process has been identified as unfit for purpose and of such toxicity that major re-work is required. There clearly remains widespread concern that the WCA has not improved, customers have no confidence in it in, employers are clearly not convinced by it as an accurate measure of fitness to work as evidenced by the appalling Work Programme Job Outcomes valid to March 2014:
In the New ESA claimant group, out of 484,900 in the ‘Work Related Activity Group’, just 10,760 ended up with a Job Outcome (2.2%)
In the Incapacity Benefit to ESA conversion group, out of 469,200 claimants placed in the ‘Work Related Activity Group’ just 980 ended up with a job outcome (0.2%)
In the Incapacity Benefit to ESA conversion group, out of 249,300 claimants found ‘fit for work’ just 3,160 (1.4%) ended up with a job outcome.   Whilst this appalling result is shocking in itself, it should be remembered that the DWP’s figures only point to people on JSA who have been on incapacity benefits.  These figures may therefore relate to claimants who have ended their older incapacity claims and taken up a JSA claim voluntarily without being tested for ESA.
In the overall ‘voluntary participation group’ where there is no mandatory requirement to take part (unless a claimant has agreed to participate) out of 957,500 claimants placed in the Support Group (from both new ESA and incapacity to ESA claim groups) 3,350 claimants (0.4%) ended up with a job via the Work Programme. This group does better than the mandatory groups in incapacity to ESA conversion cases.

(7) Summary
It is unsafe to draw any conclusion that it is any easier for a claimant to make a claim for Employment & Support Allowance than it was for previous range of incapacity benefits. It is not possible to make a valid comparison on the basis of comparing numbers/success. A full explanation as to how claimants made their claims and how they were assessed is required before an accurate comparison can be made.  There is simply not enough information currently available to conclude that the Harrington reviews have led to any identifiable improvement.
A rise in the numbers being placed within the Support Group and Work Related Activity Groups may be more related to the greater number of claimants involved, the appeal/reconsideration results beginning to filter through after data lag, more claimants re-applying after being turned down, less capacity within the Work Programme to handle the larger numbers involved and a reduction in the number of repeat & ib/ESA migration assessments following the announcement that Atos Healthcare were withdrawing from the contract to conduct assessments for the DWP.
For these reasons any claim that it is easier to make a claim for Employment & Support Allowance than it was for Incapacity Benefit is strongly refuted.
By Nick Dilworth.
For and on behalf of New Approach.
New Approach are committed to working with other individuals & groups, please add your signature to this statement by emailing newapproach_uk@outlook.com or in comments.

follow new Approach on twitter @newapproach_uk

website: www.http://newapproachuk.org/

Sep 062014
 

SaveILF - Cos we're not taking no for an answer

BLOG of an ILF user by Anne Pridmore

22ndAugust 2014
Awoken by Brody (one of my cocker spaniels puppies) kissing my face swiftly followed by Eben and Suzie Brodys mother. Thought I better get up and greet the day so pressed the buzzer for my PA had a quick wee then waited for my first cuppa in bed, don’t get up too early these days.
Had breakfast (in bed) and decided to have strip wash rather than a shower. Asked PA to check for pressure sores as I can easily get them can result in stay in hospital. P A assisted me to get dressed and went into bathroom for teeth hygiene all facilitated by PA. Had BIG mug of coffee and felt ready for day.

Went with PA to get vegetables for dinner and took Eben with me. Had long conversation with my choirmaster’s husband about our new season. Without ILF I would not be able follow my love of singing. Arrived home and asked PA to unlock office and fire up computer. Answered some emails then had lunch prepared by PA. Made sure my fluid levels were up as had nasty scare last week because I failed to drink enough I couldn’t go for nine hours. It is crucial to drink on the hour failure to do this will damage my kidneys. This of course does result in many trips to the toilet facilitated by PA and also the odd accident which means I have to have another shower and change of clothes. In the bad old days before ILF I remember having to dry my clothes (I had on) with a hair dryer. I also was forced into having a hysterectomy because I had very heavy periods and could not keep clean because of having only “pop ins” a few times a day. My ex husband was infertile and we were refused AID or adoption. I was still young enough to have children and this has always been a sadness. Had lunch mushrooms on toast prepared by my PA.
Need to stop now as am going to exercise three dogs up the recreation ground with my PA who will assist me and pick up the pooh!
Had pork roast cooked by PA.
Had bad night owing to pain needed turning six times. Failure to do this results in pressure sore with can lead to skin graft.

23rd August 2014
Took dogs with PA walk on canal – got wet which necessitated PA changing me – find this tiring. Decided to have a shower and hair wash etc. Remember the days when I had to rely on bath nurse once a week my day was Monday and of course every Bank Holiday falls on a Monday so that meant waiting three weeks.
In the evening I had dinner but as it was freezing decided to go to bed at 8.00 pm and play bridge on my ipad. No more not knowing when the community nurse would come at any time to suit her. This is 28 years ago and I was much younger then, even though I was the youngest on her list she often came at 7.00 pm. I am sure it was more about “power and control” rather than putting me to bed at a reasonable time. Had cup of tea and chat with PA had drugs (prescription) and settled down to good book. Another very disturbed night – having to wake my PA five times to reposition me.

25th August collect my friend from her home to go to the cinema, My PA drives for me and I can recall the days before ILF when I was imprisoned in my own home. I had absolutely no social life at all. When we got home me and my PA took my two dogs to the local recreation park. This was only possible because my PA was able to pick up the dog pooh.

26th August had to get up early to be ready for my student who I am teaching to update our website. The beauty of having ILF to fund PAs is that if I need to get up early or fancy a lie in I am able to do this. Before the ILF I was at the mercy of the home help service and had no choice or control in my life. Going back to the mid 80s when I was entirely dependent on statuary services I was controlled by whoever determined the home carers hours. I remember raging about the fact that it was impossible to visit friends or have relationships because I never knew the time people would turn up. There was a particular occasion when I met a man and invited home to stay overnight with me. I rang the social services department to ask them to cancel my visit. But they told me that was impossible so I locked the back door and stuck a notice on the door which read “NO HELP NEEDED MAN IN HOUSE”. During the afternoon I was visited by the person who operates the volunteer centre. She came to give me feedback on the IT support I had been giving to an elderly lady in my district. I had only been able to do this because my PA was able to take and collect me.

27th August Had to be up early for PA training as I am recruiting a new PA this went on until 11.00 am then I collected my friend and took her to Leicester to choose a new outfit for a wedding. Ate lunch in town then came home all with the support of my PA.

28th August Went down town with PA grocery shopping. Then made orange and chocolate cake with PA looks and tastes yummy!

30th August Had leisurely breakfast made by PA then had lunch after which my PA drove me to cinema film was mediocre. Had lovely roast cooked by PA. Both dogs up the rec with my PA – dogs had lovely time. Watched some TV then decided to have an early night, perhaps readers might think nothing unusual about this but in the old days before ILF I had no choice as to when I went to bed.

31st August Trip to Aldi to purchase the food for our holiday in two weeks. Came home PA put shopping away and we both had lunch.
Mark Williams-My ILF Photo Diary
This diary aims to show how the ILF helps me to lead an independent life in the community. Without the ILF I would be trapped in my own home with no life.

Saturday 23rd August 2014
Today I met up with two friends, one of whom I knew at school and had lunch with them in a café. This is how the ILF helps with my social life.

Collette and Mark

Thursday 28th August 2014
Today I went to an accessible climbing event where I sat on the Bristol Disability Equality Forum Stall in order to publicise the group and get more members.

Promoting the BDEF

Keep up with our new ILF Diaries page coming soon

join the facebook group or find other ways to support the campaign at the link

http://dpac.uk.net/2014/04/support-the-saveilf-campaign-by-using-this-twitter-or-facebook-picture/

#saveilf

Aug 232014
 

 

Read Denise McKenna’s co founder of Mental Health Resistance Network (MHRN) response to Rethink’s mail out that termed people with mental health issues as a ‘disease burden’!

DPAC fully support our good friends Denise and MHRN in urging Rethink to issue an immediate apology for using this offensive term.

If you want to email Rethink’s CEO too his email is mark.winstanley@rethink.org

Dear Mr Winstanley,

 

Members of the Mental Health Resistance Network (MHRN) and our friends at Disabled People Against Cuts (DPAC) were included in your mail-out below. We were shocked and bewildered that Rethink thought it acceptable to use the term “disease burden” in relation to mental health in a bulk mail-out. In this context it is brutal language and has caused offence to those of us who live with mental distress and to other members of the disability movement who have received your mailing. 

 

Disease burden” is a specialist piece of jargon used in disease informatics but, even when used in this context, disabled people do not accept that it is neutral. No language is neutral and this term should never have been used in a mail-out to random disabled people. You are no doubt aware that the words “disease” and, above all, “burden” are highly toxic to disabled people and those living with mental distress. It was crass to send this out willy nilly. Is there no sensitivity at Rethink? 

  

We urge you to issue an immediate apology to all of the people who received this mailing and rightly experienced it as offensive and hurtful.

 

Yours sincerely,

Denise McKenna

Co-founder, MHRN

Manifesto for Better Mental Health

Dear

Today we’re launching A Manifesto for Better Mental Health which sets out practical changes that a future Government must make in order to ensure our mental and physical health are valued equally. We’ve joined forces with our colleagues across mental health to agree on five key areas we are calling on all political parties to commit to if they are elected in 2015.

Mental health accounts for 23% of the disease burden, but it gets just 13% of the NHS budget and funding has been cut even further for the last three years.

This is not acceptable. The next Government must seriously tackle this issue.

That’s why we need YOU. You can help us secure change by:

Send a card to your MP with the Manifesto’s key priorities for action

1. Fair funding for mental health
2. Give children a good start in life
3. Improve physical health care for people with mental health problems
4. Improve the lives of people with mental health problems
5. Better access to mental health services

Share our asks on social media and raise awareness

Our Manifesto for Better Mental Health’  has been written with the Centre for Mental Health, Mental Health Foundation, Mental Health Network, Mind and the Royal College of Psychiatrists.

Together we intend to turn this tide. Our time has come.

Thanks for your continued help and support,

Mark Winstanley
Chief Executive

 

Aug 192014
 

 

A second court case against the DWP on the closure of the Independent Living Fund (ILF) will take place at the Royal Courts of Justice on the 22nd and 23rd of October. It is expected to last one and half days.

There will be a vigil outside the courts from 12.30 on the 22nd to support the ILF users taking the case and to support our right to independent living as enshrined in the UN Convention on the Rights of Persons with Disabilities- article 19

Article 19: “Living independently and being included in the community”, states that “disabled people have a right to live in the community; with the support they need and can make choices like other people do”.

Please join with us to show your support!

The closure of the ILF  has obvious implications for the UK’s chances of meeting such obligations. Most importantly for those disabled people who will lose this financial support they will lose any independence and choice in their lives. You can listen to how this vicious attack will affect disabled people at these links.

http://www.dpac.uk.net/2013/02/a-nasty-cut-people-affected-by-the-closure-of-the-independent-l5142/

 

https://www.youtube.com/watch?v=OMElPk0pq6I

 

We will be posting further updates

 

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